Mel's story of getting an axial SpA diagnosis (Act on axial SpA)

Поділитися
Вставка
  • Опубліковано 26 січ 2025

КОМЕНТАРІ • 20

  • @billybatson22
    @billybatson22 7 місяців тому +2

    Just got diagnosed last week (FINALLY!) after years of pain and more. THANK YOU FOR POSTING THIS!

  • @christineroberts_
    @christineroberts_ 2 місяці тому

    So happy for you. This gives me hope 🙏🏻

  • @Freeazabird
    @Freeazabird Рік тому +2

    Does this affect the EYES?

    • @NASSCentral
      @NASSCentral  Рік тому +1

      About a quarter of people with axial SpA will have an episode of an eye condition called uveitis at some point in their lives. We have some more info here: nass.co.uk/about-as/what-is-as/your-eyes/

    • @dmcguire2091
      @dmcguire2091 Рік тому

      Yes! Absolutely. I would get recurrent uveitis/conjunctivitis in my 20s.

    • @Ste13788
      @Ste13788 Рік тому

      I have had a diagnosis letter very little info but it’s saying spondyloarthropathy is this the same I’m so confused. I get lower back pain. Also I have got sacroiliitis inflammation and I get pain in my shoulders arms hands and ribs but no swelling also taken years for my diagnosis any info would be really appreciated

  • @jessicahurley3236
    @jessicahurley3236 2 роки тому +2

    What was the name of the medication that she uses? Since there are several Biologics and treatments for it, I would like to know which one she was using so I could also look into it

    • @NASSCentral
      @NASSCentral  7 місяців тому +1

      Hi, while I cannot give the details of Mel's medication given the personal details of that. The group of medicines referred to are Anti-TNF biologic medication. You can read more about these here: nass.co.uk/managing-my-as/medication/biologic-therapy/
      We also have help for making medication decisions here: nass.co.uk/about-as/your-space/medication/

  • @rgasta7765
    @rgasta7765 7 місяців тому

    It would help to know the name of her medication please

    • @NASSCentral
      @NASSCentral  7 місяців тому +1

      Hi, while I cannot give the details of Mel's medication given the personal details of that. The group of medicines referred to are Anti-TNF biologic medication. You can read more about these here: nass.co.uk/managing-my-as/medication/biologic-therapy/
      We also have help for making medication decisions here: nass.co.uk/about-as/your-space/medication/

  • @calechristensen1218
    @calechristensen1218 2 роки тому +1

    I also had my symptoms disappear while pregnant!

  • @EmmaRitchie-ji6ih
    @EmmaRitchie-ji6ih 4 місяці тому

    What was the knee symptoms like?

    • @Donbro
      @Donbro 3 місяці тому

      its inflammation so..your particular knee pain if caused by AS will likely be tailormade to your bodies own expression of it

  • @Chelbsn
    @Chelbsn 8 місяців тому

    It took me over 20 years to get a diagnosis and I worked in the medical field....

  • @Reeflovers007
    @Reeflovers007 2 роки тому

    Does methotrexate help this condition?

    • @NASSCentral
      @NASSCentral  Рік тому +1

      Hi, generally methotrexate doesn't help axial SpA. We have more information on the medication available here: nass.co.uk/managing-my-as/medication/ ~Zoë

  • @Jay-vm7xr
    @Jay-vm7xr 3 роки тому +2

    I wish I could see a rheumatologist and start on medication.

  • @RichMitch
    @RichMitch 3 роки тому

    Biologic medications are amazing, changed my life is not an understatement

  • @DanPlugaru
    @DanPlugaru День тому

    I can resume after you presentation and my 50 years experience with AS central form in male form...in women spondyliathritis manifest different....only in young man around 16-20 years AS ( ankylosing ) is very severe with fusion of spine...around 2 -10 years....at women hormonal system is different and as a result immun system....you are a typically exemple of AS IN WOMEN.....FACT THAT YOU GAVE BIRTH ( 2 CHILDREN) HELPED IMMUNE SYSTEM....AT WOMAN RARELY SPINE fusion !! Due to what i said.....hormonal system different vs men!!
    .
    .

  • @danplugaru8187
    @danplugaru8187 8 місяців тому

    You dont say what medicației helped......