Mam Thanx for such great initiative Request you to please upload such mote videos , specially videos or clinical examination clip those who are repeatedly coming to recent NEET PG / INICET exams...it will be helpful to more and more students
My kids have some difficulty in climbing steps. They walks normal. CPK is 37-38 thousands. They have no learning disability as elder one is able to read and write better. Im from kerala. Where to get the best treatment?
Mam how long can person with beckar muscular distrophy live ? 4 exon deletion detected in me . I'm 19 . I can walk like normal people but not run and walk up stairs without support. Can exon skipping work in patients with beckar muscular distrophy.
I'm from Bangladesh. I'm a muscle disorder patient.I'm 29 years old. I've to move by wheel chair.Is it a curable disease? What can I do for it?Please reply.
Dear, Various curative treatment are under clinical trials eg gene therapy, stem cells transplant & various drugs eg PRO-051 is currently licensed by GlaxoSmithKline (GSK2402968) etc But not proven. Take the expert advice of neurologist
It's a progressive disorders. By some medications, we can slow down the progression eg. Steroids. Please consult neurophysician or paediatric neurologist. God will bless him.
Thanks for this video mam.. I want to say something.. I have some of these features.. When I was kid I used to take support of flour while standing, Difficulty in walking, and I had very bad pain in muscles of leg and back, and was too thin, I was 25kg in sslc, but now I'm feeling much more better because now I can walk, run, cycling and I can carry nearly 50kg weight, and now my weight is 43kg with height of 167cm, Now I don't have any pain.. but I looks too thin but far better than I was kid.. mam in future gradually I would gain weight or not? Please mam reply, because I need to know this before my medical examination, I got selected in rbi but I have applied on general category, because I don't had aware about this, now I have the fear of getting rejected due to this issue..please mam reply
Welcome According to your complain, you are not having any muscular dystrophy. During childhood, because of nutritional deficiencies, muscle weakness was present. You should consult a physician for further help.
Madam I am from Pakistan my mother 2 brothers and I are affected by myotonia. In Pakistan we are not able to find any doctor for diagnosis and treatment. Can you diagnose and treat through online channel.
Ma'am my two brothers are also afflicted with the same illness in Pakistan, and there is no treatment available here. Can you provide online treatment for them?
I'm am from Pakistan main pindi se treatment kar Raha ho main Apne ap Main changes dekh Raha ho alhamdullilah. Treatment+ physiotherapy+ daily exercises + Healthy diet.
Hi Ma'am my child is DMD patient...I m from Pakistan...plz help me how can I save him from progression of this disease ...he is on wheel chair now.....plz help me
Mr. Danish, As I have mentioned that it's a progressive disorders. By some medications, we can slow down the progression eg. Steroids. Please consult neurophysician or paediatric neurologist for further help. I can't prescribe medicine without seeing patient. God will bless him.
I am 32 yers old. Today I living my normal life. Difficulties in climbing steps. I have to push my arms on ground while getting up from groung. walking is normal.cant run.sometimes fall while walking.sometimes leg flexes.cpk level 3000.Done some tests to confirm LGMD.????I have 3 years old daughter. how much chances she affect by this disease in future. I am working in office 9 am to 5 pm regularly. No writing,eating problem. I do all my self work properly. how long i live.
In autosomal dominant LGMD type 1- 50 % chance to have affected child While in autosomal recessive loci LGMD type 2. -25% chance to have affected child Life expectancy is near normal God bless you & your daughter
Only prednisolone and other immunosuppressive medication to slow down the progression of disease.. So no medicine to cure this condition right now.Gene therapy and few newer drugs are under trial, but not proved.
I will never forget the day I came across Dr Igho channel on UA-cam , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr Igho
I m a student of last year physiotherapy 🙏🙏🙏 this topic was complex but now ur lecture has eased it
🙏
Nice video Dr. Short, crisp
Thanks
Hlo sar kya ap bata skte h ye jo per ka dikkat h ye kaha pe hospital h
You are a boon to medical students ❤..thank you
Welcome
Great video
शुक्रिया
Mam Thanx for such great initiative
Request you to please upload such mote videos , specially videos or clinical examination clip those who are repeatedly coming to recent NEET PG / INICET exams...it will be helpful to more and more students
Welcome
Definitely I will upload clinical video and images.
I have shared various clinical images in General physical examination video, Go through it.
Ok mam..🙏🙇♂️
Dear anudeep , very sad, when it come yr real life , what's the pain experienced by patients and parents
calcium phosphorus this madison how work plz tell me in hindi
My kids have some difficulty in climbing steps. They walks normal. CPK is 37-38 thousands. They have no learning disability as elder one is able to read and write better. Im from kerala. Where to get the best treatment?
Take the advice of paediatrician or Paediatric neurologist
How to contact with you?
Mam how long can person with beckar muscular distrophy live ? 4 exon deletion detected in me . I'm 19 . I can walk like normal people but not run and walk up stairs without support. Can exon skipping work in patients with beckar muscular distrophy.
Survival is upto 40 years of age
Limited data suggest Exon skipping is effective, so further research is required to know it's effectiveness
Thank you mam
Welcome
Please give me some advice for the treatment of D M D?
As it's a progressive disorders.
By some medications, we can slow down the progression eg. Steroids.
I'm from Bangladesh. I'm a muscle disorder patient.I'm 29 years old. I've to move by wheel chair.Is it a curable disease? What can I do for it?Please reply.
Dear,
Various curative treatment are under clinical trials eg gene therapy, stem cells transplant & various drugs eg PRO-051 is currently licensed by GlaxoSmithKline (GSK2402968) etc
But not proven. Take the expert advice of neurologist
Mam my son is 9 year old boy, I am facing this problem kindly suggest me. My son is not standing proper way and not climbing on stairs?
It's a progressive disorders.
By some medications, we can slow down the progression eg. Steroids.
Please consult neurophysician or paediatric neurologist.
God will bless him.
Thanks for this video mam..
I want to say something..
I have some of these features..
When I was kid I used to take support of flour while standing,
Difficulty in walking, and I had very bad pain in muscles of leg and back, and was too thin, I was 25kg in sslc, but now I'm feeling much more better because now I can walk, run, cycling and I can carry nearly 50kg weight, and now my weight is 43kg with height of 167cm, Now I don't have any pain.. but I looks too thin but far better than I was kid.. mam in future gradually I would gain weight or not?
Please mam reply, because I need to know this before my medical examination, I got selected in rbi but I have applied on general category, because I don't had aware about this, now I have the fear of getting rejected due to this issue..please mam reply
Welcome
According to your complain, you are not having any muscular dystrophy.
During childhood, because of nutritional deficiencies, muscle weakness was present.
You should consult a physician for further help.
All the best for your future endeavours
@@learningpediatrics5347 thanks a lot mam for your reply mam..
I hope same..
Surely I will visit physician..
Thank you mam.
Madam I am from Pakistan my mother 2 brothers and I are affected by myotonia. In Pakistan we are not able to find any doctor for diagnosis and treatment.
Can you diagnose and treat through online channel.
Dear Fatima,
Without seeing patient, not possible to treat patient.
Consult Neurologist in your city.
God bless you & your uncles
👌🏻👌🏻
Ma'am my two brothers are also afflicted with the same illness in Pakistan, and there is no treatment available here. Can you provide online treatment for them?
I'm am from Pakistan main pindi se treatment kar Raha ho main Apne ap Main changes dekh Raha ho alhamdullilah. Treatment+ physiotherapy+ daily exercises + Healthy diet.
Mamm mujya dhi muscular Dystrophy hu hya mya abhi 19 age ka hu to mujya ky karna hoga
You should consult neurophysician
Ok
Hi Ma'am my child is DMD patient...I m from Pakistan...plz help me how can I save him from progression of this disease ...he is on wheel chair now.....plz help me
Mr. Danish,
As I have mentioned that it's a progressive disorders.
By some medications, we can slow down the progression eg. Steroids.
Please consult neurophysician or paediatric neurologist for further help.
I can't prescribe medicine without seeing patient.
God will bless him.
@@learningpediatrics5347 madam Your Hospital address plz tell me
@@learningpediatrics5347 aap ka hospital kahan hai mam
I am 32 yers old. Today I living my normal life. Difficulties in climbing steps. I have to push my arms on ground while getting up from groung. walking is normal.cant run.sometimes fall while walking.sometimes leg flexes.cpk level 3000.Done some tests to confirm LGMD.????I have 3 years old daughter. how much chances she affect by this disease in future. I am working in office 9 am to 5 pm regularly. No writing,eating problem. I do all my self work properly. how long i live.
Please reply
In autosomal dominant LGMD type 1-
50 % chance to have affected child
While in autosomal recessive loci LGMD type 2. -25% chance to have affected child
Life expectancy is near normal
God bless you & your daughter
I want to test all things which are told by you.please tell me hospital name.patient is 3yrs 2month
We generally make the clinical diagnosis with raised ck-mb levels. Not having facility for other investigations in our institute (Gaims , Bhuj).
Send me hospital details
Mam mjhe bhi muscular dystrophy hua h kya iska sahi ilaj h bataye
Consult Paediatric neurologist
best
Thank you
Sir India have a permanent solution this problem?
Pls tell me more information
No
Send hospital address
Madam Hi My three disabled brothers suffering from disease Muscular Dystrophy lying on beds I from
God bless them
Aslkum hospital ka hai please please bolo mere beti OK hai please bolo plz
Gujarat Adani institute of Medical sciences, Bhuj, Kutch Gujarat, India
Mam is it curable
No..
Steroids only defer death by few months or years
It is unlikely that Patients go beyond 2nd decade of life
Cure possibilities mam
Only prednisolone and other immunosuppressive medication to slow down the progression of disease..
So no medicine to cure this condition
right now.Gene therapy and few newer drugs are under trial, but not proved.
I will never forget the day I came across Dr Igho channel on UA-cam , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr Igho
how bro? please tell
PLEASE HOW DR IGHO HELPED YOU .
Please reply how lgho helped you