Well said young man. Thank you from an Australian male 73 yo MG sufferer presently on holiday in Vietnam. I was diagnosed in Feb 2024. I had almost the same symptons as Pedro, but luckily was diagnosed almost immediately. Yes, folks. You can still have a reasonable life with MG. The key is to manage your life and eliminate STRESS. Stress is the trigger of relapses. Happy people around you are the antidote. Cheers.
Hope it works out for you, the most important are the first seven years. If you don't have a crisis during that time, I heard that's a positive. myself now in 6th year of MG.
So glad you had antibodies show so you didn't get to falling. I am triple sero negative but strong mestinon responder. Took5 yrs of falls, blurred vision, failing breathing, complete exhaustion before i demanded trial of mestinon. Being in US no job security or time off for ilness. Am only about 30%better now but was so bad thought I would die at night even with bipap and oxygen. Keep educating people
You are doing it tough while your govt is sending all your tax dollars to Israel and Ukraine. It's hard to imagine what you have to injure due to neglect in the US health system. By contrast, as a 73 yo male in Australia I was diagnosed almost immdiately in Feb 24 and given excellent free heatlh care that I believed saved my life. I am now on heavily cost subsidised medication even though I have not expensive health cover. Good luck to you in the future.
Thanks for sharing this! I have had a very similar story, so this really helped me. Unrelated, where did you get that great lego rainbow figure behind you?
You need to have steriods and chemo tabs to take over because thecsteriod regine is very tough on your system. You initially need to have 4 x I hour plasma blood transfusions so your excess anti bodies can be removed and your treatment can start from a fresh slate.
I have lot of blurring of vision.... Lot of difficulty in seeing... I left my studies... despite being meritorious student... I m 26 yrs old now .. i have vision problem since 2019... Nothing properly diagnosed till july 2024.. .. in july ...i was diagnosed with mg.....achr 2.5 .... Too muh difficulty in vision..swelly eyelids.....brain fog ... Insomnia........pls help me... How i get my vision better... I have mg without acute exacerbation now...but no gravitor is working...no WYSOLONE 20 worked... symptoms worsening as time passes...
Thanks for Sharing your journey .
Well said young man. Thank you from an Australian male 73 yo MG sufferer presently on holiday in Vietnam. I was diagnosed in Feb 2024. I had almost the same symptons as Pedro, but luckily was diagnosed almost immediately. Yes, folks. You can still have a reasonable life with MG. The key is to manage your life and eliminate STRESS. Stress is the trigger of relapses. Happy people around you are the antidote. Cheers.
Love you Pedro. You’re so inspiring. ❤️
Hope it works out for you, the most important are the first seven years. If you don't have a crisis during that time, I heard that's a positive. myself now in 6th year of MG.
This is a well thought out, detailed and clear video. Thank you so very much.
Thank you for your presentation
You did very well. Keep going 💪💪
❤️ you Pedro; keep getting better.
Thanks for your story. I was diagnosed with MG after 6 years of doctors trying to figure it out.
I can't even imagine how hard it was waiting for 6 years without any answers, I hope you are so much better now. Thank you for sharing you too
This was helpful. I hope you have found improvement.
Thank u dear for ur story... I was diagnosed mg in three months...i got problem in dec and in March i was diagnosed with mg
Thank you for sharing your story because my son his diagnose mg
So glad you had antibodies show so you didn't get to falling. I am triple sero negative but strong mestinon responder. Took5 yrs of falls, blurred vision, failing breathing, complete exhaustion before i demanded trial of mestinon. Being in US no job security or time off for ilness. Am only about 30%better now but was so bad thought I would die at night even with bipap and oxygen. Keep educating people
You are doing it tough while your govt is sending all your tax dollars to Israel and Ukraine. It's hard to imagine what you have to injure due to neglect in the US health system. By contrast, as a 73 yo male in Australia I was diagnosed almost immdiately in Feb 24 and given excellent free heatlh care that I believed saved my life. I am now on heavily cost subsidised medication even though I have not expensive health cover. Good luck to you in the future.
Thank you for sharing. I've been dx since January 2023 and I'm Canadian to. 🇨🇦
Thanks for sharing this! I have had a very similar story, so this really helped me. Unrelated, where did you get that great lego rainbow figure behind you?
Thank you for sharing your story because my son his diagnose mg. Also
What about the diet tell us
You need to have steriods and chemo tabs to take over because thecsteriod regine is very tough on your system. You initially need to have 4 x I hour plasma blood transfusions so your excess anti bodies can be removed and your treatment can start from a fresh slate.
I have lot of blurring of vision.... Lot of difficulty in seeing... I left my studies... despite being meritorious student... I m 26 yrs old now .. i have vision problem since 2019... Nothing properly diagnosed till july 2024.. .. in july ...i was diagnosed with mg.....achr 2.5 .... Too muh difficulty in vision..swelly eyelids.....brain fog ... Insomnia........pls help me... How i get my vision better... I have mg without acute exacerbation now...but no gravitor is working...no WYSOLONE 20 worked... symptoms worsening as time passes...
Anti bodies to start was 4 now it is 22