Caregiver Guilt - Memory and Alzheimer's Disease

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  • @tonyabayman2344
    @tonyabayman2344 5 років тому +53

    If I had only one wish to be granted, it wouldnt be for money, or power, or fame. It wouldnt be to have radically expensive things and endless opportunity. It would be for my father not to have Alzheimer's. He is the greatest man I have ever known and now I have to watch his brilliant mechanical mind decay right before my eyes. Most people have idols and superheroes that they will never meet or dont even really exist. Mine does and I know him. He is my father.

    • @fareenscuisines5083
      @fareenscuisines5083 3 роки тому

      I know how you feel. My mom has recently been diagnosed with dementia, I'm finding it very difficult.

    • @moniquetimmermans7808
      @moniquetimmermans7808 2 роки тому

      Alex it’s a really tough road but like the doctor says it’s all about love we are both slowly saying goodbye it helps me a lot to listen to other peoplesExperiences I hope it helps you to sending you love and strength keep up the good work

  • @grannybooster9188
    @grannybooster9188 5 років тому +25

    I've been through this and still experience the guilt caused by my impatience toward my loved ones with memory disorders.

  • @babygiraffe123
    @babygiraffe123 5 років тому +15

    I was up at the hospital yesterday, in the ER, waiting for the doctor to give me some test results, and there was an elderly lady in the bed directly across from me.
    She was clearly distressed, repeatedly crying out for God to help her, and yelling for her mommy and daddy.
    I was close enough to hear her husband say that she had Alzheimer's, and that she had those 'bouts' all the time.
    It was heartbreaking.
    To the point where I had to put my head down so nobody would see the tears in my eyes.
    I didn't even know this lady at all, but it still broke my heart to hear those cries either way.
    It reminded me of my great grandmother who also had Alzheimer's towards the end of her life. ☹️

  • @grannybooster9188
    @grannybooster9188 4 роки тому +12

    This explains so well, caregivers' feelings of anger and impatience and that it happens at some time or another with most caregivers.

  • @ginastagg4808
    @ginastagg4808 6 років тому +15

    My husband died 3 months ago. Over the past 6 years I cared for him with no support, no visiting nurses or people to help me. He'd had Alzheimer's for 6 years, and the past 2 years were tough as, after a fall, his condition accelerated. My husband and I are British and moved to Spain 14 years ago. Spain is totally lacking in sufficient social workers and services especially in the villages. We lived in the middle of nowhere It's a culture where families band together to take care of the elderly so carehomes are awful and a last resort. l cared for my husband alone and would go for weeks without getting a break. When his disease was advanced he had no idea who I was and was sleeping all day and shouting all night. I was exhausted, depressed, lonely, isolated and also resentful and angry. At times I'd snap and be hurtful towards him. Right now I feel so guilty for all of this. I really loved him
    I wish I had seen this sooner

    • @mirjanapucarevic2105
      @mirjanapucarevic2105 5 років тому +7

      Gina Stagg You are a good person, you did best you could!

    • @pwife4
      @pwife4 5 років тому +3

      I'm sorry you didn't have help. My husband is in the moderate stage right now. It's scary.

    • @kesmarn
      @kesmarn 5 років тому +7

      You're a human being. And you had a super-human task thrust upon you. I hope the guilt diminishes over time. You deserve peace of mind.

    • @heidijacobs2716
      @heidijacobs2716 5 років тому +5

      Gina Stagg you did the best you could in those incredibly stressful circumstances. Its ok, he has forgiven you and loves you for all the sacrifices and love you showed in your care. He wants you to be happy and wants you to please let this go. He loves you and has only praise for your work. Join him in his love and appreciation for you and the loving relationship you enjoyed together. That is his focus...let it be yours too for eternity!

    • @Crzybinet
      @Crzybinet 5 років тому +2

      Ur an angel

  • @Germatti13489
    @Germatti13489 3 роки тому +2

    My mother had some dementia but you could tell her personality changed she did not have full blown memory loss. At least I don't think so.
    She initially had a stroke and I stayed with her for four years during that time I had my own health issues. I injured myself trying to pull her up and had to have surgery on my left wrist.
    I still feel guilty for not going over and sitting with her the last few weeks of her life. After 4 + years I was completely burnt out. I fret every night that I could not go and be with her after she had said to me that I had not done anything for her . Yet I was the only one that stood 14 hours in the ER or stayed all night in the hospital or moved in with her.
    Even though I had taken care of her and her male friend for four years, I still feel guilty for her last days.

  • @dailybread300
    @dailybread300 4 роки тому +4

    What a beautiful video. It’s all about love. How true. It’s good to remember that the person can’t help it, in not remembering. It took me a while to figure this out too. I just try to be toward my mother as I would like to be treated. The Golden Rule.

    • @caregiverschrysalis
      @caregiverschrysalis 4 роки тому +1

      Oh that is such a beautiful reminder, Karen! ❤ When my grandma got Alzheimer's and my mom and I had to make some hard decisions for her, we often asked ourselves, "What would mom do?" That helped. :-)

  • @kaitlynneleskin7689
    @kaitlynneleskin7689 3 роки тому +1

    I live with my grandma and this is helpful. The only thing is I can’t adapt to the constant criticizing and how she makes me feel bad for things in the same ways she did when I was a kid. It feels intentional.

  • @corecubed2284
    @corecubed2284 6 років тому +4

    Caregiver guilt is so common, especially when caring for a loved one with a chronic, progressive disease such as Alzheimer's. It can often feel as though we should have managed something differently, that we lost our patience, or that we're helpless to meet our loved one's myriad of needs. Help for those caring for someone with Alzheimer's can be found here: livewellathome.com/alzheimers-dementia/transforming-dementia-care/

  • @debraseiling455
    @debraseiling455 5 років тому +4

    Thank you for dealing with this common problem.

  • @nancyschaefer9748
    @nancyschaefer9748 2 роки тому

    Thank you I am still learning about this disease with my 86 year old husband

  • @debbief2274
    @debbief2274 5 років тому +4

    I am looking after my Dad who has alzheimer's. I HAVE NOT, AND NEVER WOULD get angry with my Father because of his condition. YOU MUST ALL REMEMBER THAT YOUR PARENTS LOVED AND CARED FOR YOU , ALL OF YOUR LIFE SO FAR. SO HAVE PATIENTS AND BE THE DAUGHTER/SON THAT THEY DESERVE AND ARE TOTALLY ENTITLED TO....XXX

    • @angelamilne2054
      @angelamilne2054 4 роки тому +4

      I don't think that the people who are being honest enough to admit their difficulties within their C. A. R. I. N. G. are necessarily becoming angry because of the condition.... Maybe at times when the C. A. R. E. R. S. are ill themselves... Yet still have to continue Alone with no one caring for "them"... become physically & emotionally exhausted & maybe haven't got the Finances to make their life easier in many different ways. Maybe their Relationship to that parent wasn't that close or even abusive as a child when at best their parent didn't have much patience with them etc etc & due to the consequence of that it may not be as Easy to express love as another person.
      It isn't that people are justifying getting irritated or whatever & it is right to do what it takes to do whatever they can to improve the situation even if it's to Pray for help continuously....and although it is Good to remember how their parent cared for them as a child... . In general It is Not a good equal comparison. Also everyone has a completely different life experience that has led to their present view point.... Personally I feel that rather than looking to the Past & attempting to dutifully measure up to an ideal that maybe is too high to "reach"in practice... That to see each day as a Brand new opportunity to respond in Love with the relationship together" As It IS" rather than as a person thinks it "Should" be.... with prayer for help to practically Do that (& for a miracle healing if a person has belief for that possibility) This way a loving relationship can develop deeper & overspill from the Inside out into areas of difficulty that could have had closed doors from the outside In.... Kind of... The bottle becomes half full instead of half empty.... Both sides(filling or emptying) can increase depending on the Conscious starting point... THIS day.....but I am not disagreeing that remembering a parents care for one's self is a tool to get back on the "This Day" track in the middle of the "feeling" of approaching overwhelm.....in order to Shrink the "present" challenge to an achievable success...practicing returning to the Reality of the Here & Now where guilt doesn't get chance to restrict An Increase of love in action.

    • @dailybread300
      @dailybread300 4 роки тому

      Debbie F
      I just care for my mom because I love her and because she is in need.

    • @Morgan-bt6xu
      @Morgan-bt6xu 3 роки тому +3

      Try having two parents with dementia one with Parkinson's and one vascular also has had a replacement hip operation, then your siblings end up fighting with you because you don't have children and they expect you to do all the caring all this while working a fifty hour week job looking after two houses and I also forgot there is a pandemic out there too . I do love my parents but God this is breaking me in ways I never thought possible.

    • @cheryl9032
      @cheryl9032 3 роки тому +2

      @@Morgan-bt6xu I get it... I, alone am taking care of my husband with Alzheimer’s, and my Mom who had a stroke. I don’t deal with the sibling issue, (I have a sister, she doesn’t interfere) I don’t work, because I am disabled with multiple spinal issues (and anxiety disorder). It’s very difficult to impossible living with all of this and not doing/saying things out of frustration &/or anger that make me feel guilty, sometimes immediately, sometimes later.
      I also feel like I’m breaking. I really understood the lady who said that she looks at the door and would like to go out and not come back.
      They are both wonderful people whom I love ~ however they are no longer who they were😞

    • @Morgan-bt6xu
      @Morgan-bt6xu 3 роки тому +1

      I'm sorry for your troubles cheryl. As bad as one person has it another has it worse. Yes these people deserve to be cared for as good as we would like to be cared for! It's all a phase nothing lasts forever except the memories (fingers crossed) and it's better to have good one's.
      Take care cheryl
      Blessings on you and yours.

  • @ihsandeeb
    @ihsandeeb 4 роки тому +8

    I'm dying inside, my father's sickness is killing me. We don't know what is wrong with him, he sleeps more than 20 hrs a day, wants to go to the bathroom and barely uses it, and my mother and I are extremely restless. 😩😩😩

    • @CarlosPerez-pr9ei
      @CarlosPerez-pr9ei 4 роки тому +3

      May GOD grant you and your mom grace, mercy and peace.

    • @dailybread300
      @dailybread300 4 роки тому +4

      Mom and I went through that with my father. Try to do only what you can with what is in front of you. He’s probably not thinking on all of this as you are. Let go of that which can not be controlled and try to find small things in each day that bring you and your mom peace and a small measure of happiness. Take one day at a time. Matt 6 and Luke 12 talk about how God will take care of you and not to worry. I hope this helps. God bless you and know that God loves you.🙂

    • @caregiverschrysalis
      @caregiverschrysalis 4 роки тому +1

      Ihsan, how are things going with your father now? If you feel like sharing an update.

  • @777pusher
    @777pusher Рік тому

    I’m in the beginning stages of taking care of my father. The hardest thing is to realize that when he has moments of lucidity, that it is still, and only will be getting worse.

  • @TerryB751
    @TerryB751 Рік тому

    Currently caring for someone with Alzheimer's that now wants to make changes to her estate planning documentation (wills, power of attorney, etc.) that was created when she was lucid back in November 2022. Now, according to the lawyer, unless someone is declared incompetant by the court, they are legally able to make changes to that documentaiton. She thinks her relatives have stolen all kinds of stuff from her house and now wants to keep everyone out of her will and eviscerate the medical power of attorney provisions because of delusions. There's always more unbelievable challenges that never seem to end.

  • @dbetaki8846
    @dbetaki8846 2 роки тому

    Here I am mid day without being able to relax figuring out that my gramma has dementia and we diagnosed it just now. I feel really weird and very sad. Obviously guilty for every memory I have. What if , what if I wasn’t close enough, good enough, if she is scared, watching videos of how dementia patients see the world... point is I feel sad because if I need support I have the capacity to seek it. I fear that they feel alone and hopeless and it breaks my heart. Love you gramma !

  • @peterc9153
    @peterc9153 4 роки тому +2

    I am from the UK and I am a full time carer for my 88 year old mother. She doesn't have Alzheimer's or full blown dementia, but she is becoming increasingly confused. This is exacerbated by the frequent UTI bladder infections she develops. Sometimes I get very frustrated when things like bodily function accidents occur but I know she cannot help it. Thank God for feedback like this. This is why I came here.

    • @sladi4ka
      @sladi4ka 4 роки тому

      You can help the frequent UTIs by using silver gel by a company called 3rd rock essentials. They have an all natural gel called Nutrasporin. It is 100% natural and actually fully edible. They did a study where nursing homes started using it on elderly patients and the rates of UTIs radically dropped. The study is on their website if you wish to read it. The gel isnt expensive and they ship worldwide I believe. Youd have to put it on the urethra frequently to prevent and also cure active UTIs. You may also want to check out a website called the Pantry pharmacy just Google it will come up. It is all natural protocols for curing UTIs by a woman who had a UTI for 4 yeats straight that nothing would kill and she finally killed it naturally. It is fully free no advertisements nothing to buy. I hope this helps- I used to struggle a lot with UTIs and these two sources helped me a lot. I used the protocols on the pantry pharmacy to cure my UTI and then I use the silver gel as preventative all the time.

    • @peterc9153
      @peterc9153 4 роки тому

      @@sladi4ka Thankyou for your feedback. I will certainly follow up on your advice. One substance that I have found to be very helpful in keeping my mother's UTI's at bay is manuka honey. It has natural anti-bacterial qualities. It is very expensive and retails at about £50 ($70) a jar for the best quality honey. But it is very effective. It doesn't keep her totally immune, but it has undoubtedly decreased their frequency significantly . Thankyou.

    • @dailybread300
      @dailybread300 4 роки тому

      You can put one pad over another inside her diaper and this works! Change her often and keep her as dry as you can. Hand held shower is effective because clean AND dry is very preventative. Also, for at night you can put a full length liner in the diaper and two pads. This way she won’t sit in liquid at all. I also take care of my 86 year old mother....

    • @peterc9153
      @peterc9153 4 роки тому

      @@dailybread300 Thankyou Karen. These sort of things we both do. Most of the time she is sufficiently aware enough to adequately care for her own intimate needs. But when she does go through a period of increased confusion due to a UTI infection or she is simply having a bad day, I have to help her. Here in the UK we do have quite a lot of public assistance from NHS professional carers and they are God send. But they can't be there all the time and often it is down to me. As you suggest cleanliness and keeping her dry is essential. Thankyou for your feedback and best wishes to yourself and to your own mother.

    • @dailybread300
      @dailybread300 4 роки тому

      peterc
      Thank you and God bless you!

  • @peterbergweiver6823
    @peterbergweiver6823 2 роки тому

    my Mum is looking after my Dad, I feel for every single care giver! I have been helping her for 4 weeks and am exhausted! I am only 50, Mum is 70+, I do not know how she does it! Viva la care givers!

  • @cherrybomb8328
    @cherrybomb8328 4 роки тому +1

    It's not so much of her forgetfulness that gets to me , it's her vagueness and laziness that gets me so annoyed . I bring her breakfast in bed each morning and run around after her most of the day,, but she slumps in bed not bothering to sit herself upright , when she is perfectly capable of sitting upright , it's as if she expects me to lift her up too . I ended up getting quite annoyed and snapped , telling her to come on and sit up properly I wasn't going to do all the work .
    I took her out to a cafe and got out of the car, and waited for her to get out but she sat there staring into space even though she knew we were at the cafe and she saw me get out ...that really irked me that she could be so vague . I said "Are you getting out or aren't you ?"

  • @lisagarrett2657
    @lisagarrett2657 4 роки тому +2

    I'm scared & overwhelmed

    • @beckybocnuk96
      @beckybocnuk96 4 роки тому +1

      I feel the same way lots of days. There are lots of resources online to help caregivers understand different situations and behaviors. Talk to your family or doctor about getting help. The community might have some resources for you. Purple Angels is a Dementia support . You are not alone. It is a very hard and loving thing you are doing. God Bless.

    • @lisagarrett2657
      @lisagarrett2657 4 роки тому

      Resources where ?? Her damn caseworker/LPN doesn't do squat !! F amily ?? My dad was on hospice & I was taking care of both of them ! My sister got everything she wants she hadn't been over or callwom

  • @mikejudyvandenheuvel1693
    @mikejudyvandenheuvel1693 6 років тому

    Very helpful.

  • @Crzybinet
    @Crzybinet 5 років тому +6

    So Hard 😔

  • @amandaallen9460
    @amandaallen9460 Рік тому

    This is me everyday as I feel guilty that I still do everything that my Grammy used to be able to, but can no longer do...

  • @carndoderer
    @carndoderer 4 роки тому +3

    My grandma is showing early signs of dementia and I’m scared I don’t know what to do

    • @JohnsHopkinsMedicine
      @JohnsHopkinsMedicine  4 роки тому +1

      Hi Carn, thank you for reaching out to us. We’re very sorry to hear about what your grandmother is going through. Unfortunately, because each person’s medical situation is different, we are unable to provide treatment recommendations or second opinions via this form of communication.
      If you would like to request an appointment at one of our hospitals, please call 888-872-1408. Our specially trained medical concierges can arrange consultations or treatment plans with the most appropriate specialists. Johns Hopkins USA can also provide language interpretation, financial counseling, assistance with travel arrangements and anything else to help make Johns Hopkins feel as close to home as possible.