Thank You for Your Story. I am praying for You...🌺🌸🤗🤗...my daughter is Autistic and has Chronic BARTONELLA ELIZABETHAE because of the PANDEMIC she could not see a doctor and my DAUGTHER is now pay the price. It is affecting every part of her body, brain and sll of her functions. Could YOU ALL KEEP HER IN YOUR THOUGHTS AND PRAYERS, PLEASE?? WOULD BE GREATLY APPRECIATED. LOVE UOU ALL...🌸🌺🦋
I was misdiagnosed for 32 years, I used to have crackling in my neck and so much pain, but it did get better with treatment. I don’t know if it will ever completely be gone, but life is more manageable. 😊
wow same story here so sorry this has been the most frustrating thing ever i cant explain how much money this has took bite in 2015 i was misdiagnosed 2 years 2 years i.v treatment have not worked since i have been very sick paid for everything out of pocket over 200,000 i have two kids and soul provider to house hold disabled veteran just out of war for 6 years i cant explain how hard this has been i lost pretty much everything but most important my health please stay strong and fight for health and are rights to access to care.
Thanks for sharing your story! My heart goes out to you. I totally understand how frustrating Lyme disease can be. I sincerely hope things will improve for you someday. Keep hanging on to that hope! Take care!
@@kimberlyreitsma thank you and good luck with everything i have been near 100% but it takes to much things need to be perfect you have to do everything perfect no mistakes very hard to beat and it all depends on the individual so same might not be for you we need better testing to see period. thank you for being so brave to speak up.
I’m 64 and was kinda diagnosed with fibromyalgia and chronic fatigue about 1 year ago. As far as I can tell, I developed this after having Covid in April 2020. It’s been a nightmare. To me you are very young but you have great insight.
Thank you for your kind words! And you have my sympathy! Covid has been nasty to so many people on so many levels. I hope you are able to find your way back to health soon! :)
Have you ever looked at Mikhaila Peterson's channel? She dealt with chronic issues between ages 8 and 23. She interviews a lot of doctors and talks about the things that worked for her. I currently don't have any chronic issues but I enjoy hearing about the research.
Thanks for the video! Similar situation myself. Still have brain fog, fatigue, guts issues, fungal and chronic pain. Looking into mold avoidance, binders, infrared sauna, and ozone therapy. Best of luck!
See I had a tick in my scalp as a kids. Sill have a bald spot from digging it out. And back then we didn't know to look for a circle. But here I am all these years feeling like crapp ten diagnosis later and feel they have the medical community has missed something.
Yes, I did - quite recently actually. I really need to post another health update video that talks about my current phase of treatment. Lots of gut healing going on now!
Hi! Thank you so much for sharing! I'm currently in my 3rd year of pain and look for answers. I have been told I have fibromyalgia and chronic fatigue syndrome. I did have the Lyme disease blood test at my regular practitioners office but can you tell me what the more extensive test is called or how I can find out more? This really could be it for me!
Of course! :) The more specialized blood tests to test for Lyme Disease are called the Igenex Lyme Western Blot or the Immunoblot test. The more conventional tests are no good because their determination for a positive Lyme disease result is way too high. The test my primary care physician gave me came back "negative." Oh, if only I knew better. And here are two great websites for you to learn more about Lyme Disease: www.ilads.org/ www.lymedisease.org/ I hope that helps!
@@kimberlyreitsma thank you so much! I'm going back to my general practitioner on Monday and I'm going to request one of these tests. Thank you so much for the info!
When I did the Igenex Lyme Western Blot test, my integrative doctor had to order a boxed kit which I took to LabCorp to get my blood drawn using the provided vials. Then I had to mail the box back to Igenex myself. That was a good eight years ago, so I do not know if the process had changed since then. So don't be surprised if you have to do an extra couple steps! :) Good luck!
I’m so glad that you doing better ❤
Thank You for Your Story. I am praying for You...🌺🌸🤗🤗...my daughter is Autistic and has Chronic BARTONELLA ELIZABETHAE because of the PANDEMIC she could not see a doctor and my DAUGTHER is now pay the price. It is affecting every part of her body, brain and sll of her functions. Could YOU ALL KEEP HER IN YOUR THOUGHTS AND PRAYERS, PLEASE?? WOULD BE GREATLY APPRECIATED. LOVE UOU ALL...🌸🌺🦋
Nice to see you back,my friend
You are going through a lot
Nice,honest and clear explanation
Take care
I was misdiagnosed for 32 years, I used to have crackling in my neck and so much pain, but it did get better with treatment. I don’t know if it will ever completely be gone, but life is more manageable. 😊
wow same story here so sorry
this has been the most frustrating thing ever
i cant explain how much money this has took
bite in 2015 i was misdiagnosed 2 years 2 years i.v treatment
have not worked since i have been very sick
paid for everything out of pocket over 200,000
i have two kids and soul provider to house hold
disabled veteran just out of war for 6 years
i cant explain how hard this has been
i lost pretty much everything but most important my health
please stay strong and fight for health and are rights to access to care.
Thanks for sharing your story! My heart goes out to you. I totally understand how frustrating Lyme disease can be. I sincerely hope things will improve for you someday. Keep hanging on to that hope! Take care!
@@kimberlyreitsma thank you and good luck with everything i have been near 100% but it takes to much things need to be perfect you have to do everything perfect no mistakes very hard to beat and it all depends on the individual so same might not be for you we need better testing to see period. thank you for being so brave to speak up.
I’m 64 and was kinda diagnosed with fibromyalgia and chronic fatigue about 1 year ago. As far as I can tell, I developed this after having Covid in April 2020. It’s been a nightmare. To me you are very young but you have great insight.
Thank you for your kind words! And you have my sympathy! Covid has been nasty to so many people on so many levels. I hope you are able to find your way back to health soon! :)
@@kimberlyreitsma thank you so much
Have you ever looked at Mikhaila Peterson's channel? She dealt with chronic issues between ages 8 and 23. She interviews a lot of doctors and talks about the things that worked for her. I currently don't have any chronic issues but I enjoy hearing about the research.
Thanks for the video! Similar situation myself. Still have brain fog, fatigue, guts issues, fungal and chronic pain.
Looking into mold avoidance, binders, infrared sauna, and ozone therapy.
Best of luck!
Where is your pain are you hypermobile
Watch the documentary, “Skin Deep”.
See I had a tick in my scalp as a kids. Sill have a bald spot from digging it out. And back then we didn't know to look for a circle. But here I am all these years feeling like crapp ten diagnosis later and feel they have the medical community has missed something.
Have you got pain
20:05- treatment
Did you look into candida as a contributing factor?
Yes, I did - quite recently actually. I really need to post another health update video that talks about my current phase of treatment. Lots of gut healing going on now!
Did you use garlic coconut
What 2 antibiotics did you take?
It was so long ago that I do not remember. My apologies!
Hi! Thank you so much for sharing! I'm currently in my 3rd year of pain and look for answers. I have been told I have fibromyalgia and chronic fatigue syndrome. I did have the Lyme disease blood test at my regular practitioners office but can you tell me what the more extensive test is called or how I can find out more? This really could be it for me!
Of course! :) The more specialized blood tests to test for Lyme Disease are called the Igenex Lyme Western Blot or the Immunoblot test. The more conventional tests are no good because their determination for a positive Lyme disease result is way too high. The test my primary care physician gave me came back "negative." Oh, if only I knew better.
And here are two great websites for you to learn more about Lyme Disease:
www.ilads.org/
www.lymedisease.org/
I hope that helps!
@@kimberlyreitsma thank you so much! I'm going back to my general practitioner on Monday and I'm going to request one of these tests. Thank you so much for the info!
When I did the Igenex Lyme Western Blot test, my integrative doctor had to order a boxed kit which I took to LabCorp to get my blood drawn using the provided vials. Then I had to mail the box back to Igenex myself. That was a good eight years ago, so I do not know if the process had changed since then. So don't be surprised if you have to do an extra couple steps! :) Good luck!
@@kimberlyreitsma thank you again! We ordered my test kit yesterday with my primary care doctor.
Woot woot! Definitely comment back and let us know how it went! :D
Look at PANS and PANDAS in children!!!!
I had 2 false negative tests!!! So I had to pay for the 2nd one. It’s a vicious cycle!!🥱