Sometimes health declines are accompanied with waves of discouragement. Other times I feel like I can handle what’s up ahead. Each day is different. Today, I’m ready for the fight 💪🏻
The Frey Life sorry it cut me off hi Mary my names Bella and I’m 13 years old I have type 1 diabetes and Cystic fibrosis it affected me forever and I’m getting weaker but I just wanted to say you are strong and you can do this😃 stay strong for me every day is a challenge
Hello Mary,Peter and Olive!!! I wish you the best, keep fighting and do what you're doing, God Bless you all, God is making the path for you and watching everyone from above😊 By the way nice cough and burp Mary!!!!😉
Uh oh. There's probably a reason why Duke's thinks Mary is eligible for double lung and liver transplant ... Sorry to say that so matter of fact-ly. I know that from my child, too. Believing everything's really good and having the worst values ever and needing to go to hospital within a week. And on the other hand he's being unwell for weeks and all values are okay-ish and noone knows why. I have to consciously fight the feeling that our bodies are unreliable, because they can obscure some truth. Well, it's the way it is ... And what will happen will happen. We're just out of hospital and minor surgery but my child will have to start immunosuppression next week. (Complicated Crohn's) And start on a lot of extra calories. I'm sending you some extra hope and endurance from Europe! Kind regards and thank you so much for sharing all this with us!
@@Atrixjones I am thinking of you, too! I hope you live close to a good hospital with a kind and competent team that leads you as safely as possible through the wild water of your health!
That constant coughing and gagging and struggling to get enough air must be so unbelievably exhausting. The way you push through it and don't stop living your life on your terms (as much as possible) is so inspiring and admirable. ❤️
Seeing Mary struggling is heartbreaking (that whole trying not to gag from coughing... 😥). I want you to feel healthy sooooo badly ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ whatever it takes, girl! 💪🏻💪🏻💪🏻 overcomer
It breaks my heart to watch Mary cough so hard & struggle to breathe. She always remains so upbeat. Makes me feel bad that I don't do as well as she does handling my chronic illnesses. Watching her do PFT's is so hard to take. She's such a sweetheart & Peter you are an amazing husband. You take such good care of Mary. Y'all are such a wonderful couple. Love y'all & start practicing your y'all's, your about to be southerners soon.
I was crying watching your video today. I am so sad you have to go through this. But I so admire your positive attitudes. Thank you for sharing your life with us. I really didn’t know much at all about CF. Thank your for teaching me more about this disease. God bless you both as you walk this walk. Jackie from Indiana
Mary, you look so tired from coughing. Looking forward to you being closer to Duke. You have so much love. We are all here sending love and prayers your way. I love your channel. xoxo
I felt so badly for Mary today, she looked so exhausted from coughing, but then I was glad for her because she has someone strong, who loves her with her 24/7. How blessed she is.
Mary you are a hero, a warrior, a fighter an inspiration! And peter you are such a great support. You are two of the most genuine, kind souls I’ve ever seen. If either of you need anything from Australia don’t hesitate to ask. Mary your inspiration gets me through many difficult days so know I will always be here for you and peter no matter what even if it’s just someone to talk too xo
Melissa, thank you for your encouragement and kind words! And I'm so glad to hear our vlogs can be a source of encouragement to you even all the way in Australia!! Keep on keeping on!
Thank you Mary and peter, they are more than an encouragement, Mary what you said about one step at a time helped me through surgery for my j tube and the complications that came after, 2 days after being released from hospital my dr believes I am having hours long absent seizures then 2 days after that I found out one of my incisions had opened and currently have a major infection. I believe Mary we could be great friends while you fight for your lungs I fight for my heart. Pls contact me anytime you share your life with me everyday I would like to reciprocate and support u too! I learned recently support from family and friends is everything. And I would enjoy talking to peter I was never religious before but I think that’s changing. Xo
I just wanted to wave my "magic wand" and wisk some of the stress away. Your poor cheeks were so red and clearly having a less than spectacular medical day - much love to you Mary. You are so strong and carry such grace. Sending forth hugs and hope to you!! 💗💗💗
Clinic’s like a box of chocolates; never know what you’re gonna get. Prayers for direction, and that you feel better soon. Us NC folk are excited to welcome you. ☺️
Sorry you had a rough clinic day! Seeing you struggle not to gag in the mornings is rough! But you keep on smiling an giving us a thumbs up. Strong, girl!
The minute Mary put her arms around her husband .I could see peace in her face. Having a medical condition myself I find a calmness if I just hold on to my husband also.. Peace,Love and Healing.💜
I know you can't help but handle it, because your chronic illness is part of your life so you have to handle it. But you handle it with such grace. One of my greatest fears is not being able to breath and just hearing you cough and try and catch your breath after a coughing fit gives me so much anxiety, I can't even imagine how you are feeling and then to share that with everyone else is so incredible and giving. I'm so incredibly happy I found your channel it has given me such happiness over the years and has helped me with how I handle or feel about my chronic illness, which is no where near yours or some others. Thank you really I really do mean that .... THANK YOU ....
My gosh you guys have surely gone through a lot of stuff. I don't know how you do it. I think your faith has a lot to do with it and you are both a very courageous and strong couple. I will pray for you and God bless you both. This is from Toronto, Canada and I wouldn't miss one of your vlogs.
Carol thank you for your continued prayers & encouragement! Yes, we definitely couldn't do it without God's help and strength! Have a great weekend! :)
Have you ever made a list of the songs that encourage you and build you up, like a playlist? I’ve only recently found your blog and today was the 3rd time I have only a clip of a song that made my heart pay attention. I don’t have CF or any other physical health problems but I do struggle with Panic/Anxiety that triggers depression. I use to go to church every time the doors opened and studied God’s word all the time but these 20 years of struggling alone have left me with a mustard seed or two. My hope is barely there and my attitude is struggling with so little trust. That glimpse just to say a list if songs might be helpful for someone like me. I admire the attitude and outlook you two have and it has given me strength more than once. I wish I wasn’t facing life alone but it is what it is. Thank you for sharing your story!
One thing I love about watching you both is that I have learned so much. When I first began watching I had no idea what CF was. But now I feel like I know a lot. I also love seeing how strong you are Mary! You just keep fighting. Each day is a new day with a new adventure in it. You inspire me so much.
Stay strong Mary.To Peter: You never cease to amaze me..You put on such a strong front for everyone. I can see the worry in your eyes, and pain in your voice..It's ok, to not be ok...No one understands the pain and mental struggles being the spouse of chronic illness patients..my husband has End stage renal Disease which is different but . 10 years, the bumps in the road are scary. I feel for you. Attitude is everything, good luck guys
So true. Peter is amazing and Mary is amazing to Peter. They are perfect together. So sorry about your husband. I think this is just a part of true love and care for your spouse/person. You just do it out of love. Best wishes to you and your husband.❤❤
When one week at a time sounds impossible, try one day at a time, when one day at a time overwhelms you, try one hour, then one minute or second at a time. You WILL get through this storm, Mary. I want to hug you so bad right now! Love the crap outta you.
You guys have the most genuine smiles I ever saw!! Mary, your face positively lights up when you smile. How you do what you do while coping with your health issues is such an inspiration. All the very best to you both. xxx
"I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world."" - John 16:33 ESV
I'll be praying these help you feel better this time. I just finished my first round of IVIg yesterday. I am feeling pretty horrible. But I knew a lot more about it thanks to you! I really appreciate you being so honest about it. It really helps. Also as a new port patient, you talking about yours helps me feel more confident with mine! I really appreciate it and were gonna be here with you through this! You be got this!
I have taken advantage of out of state real estate closings several times, and I would highly recommend considering it. It was SO convenient, and did not cause undo stress (both physically and emotionally). Your realtor can walk you through everything. When life is so busy and hectic anyway, and then throw chronic illness in the mix....I was ever so thankful to be able to get my closings done via long distance. Just a suggestion, in case you haven't considered it. I've never closed on a property in NC; however, it's likely very similar to out of state closings elsewhere.
Its amazing the peace the lord can give us. I have caught myself in a similar moment shortly after my cancer treatment started. I just finished my chemo and radiation but about a month in, maybe 3 weeks but I found myself just sitting in the car on my way to treatment thinking, "Why am I so calm? Why am I not worried? I have cancer in my body ..." Because God is good. The lord is constantly keeping me in awe, mostly with all the little things he blesses us with and those moments - removal of fear just make me so grateful because fear can pull quite a doozie on your poor brain. Take care Mary, will be praying for you, and you as well Peter.
Prayers Mary, you are a very strong young women!! Watching you going through this has touched my heart. Peter is an amazing husband and so supportive, prayers for him as well! I’m sure you sharing your journey has helped many people.
Hi Mary & Peter, I am so sorry Mary’s health is declining and her struggles are heartbreaking. You are an amazing fighter and Peter an amazing caregiver. I know God has led you to NC to receive the next level of care. I pray for you everyday and know together with your faith better days are ahead. You two are a beautiful example of unconditional love and commitment. May God help to keep you at peace as you begin this next chapter. Much love, hugs and prayers from VA. 🙏🏻💗🦋
Your strength in all this is absolutely unbelievable. I see you struggle, and it's breaks my heart that I take breathing for granted. Cheers to you both!
It’s so inspiring how you can still carry on when your feeling so low, you might not feel great but you are a true inspiration to myself as a cfer and I’m believing many more. Stay strong and rest as much as this awful cough allows you xx
Always praying for you Mary and Peter (and of course Ollie Boy!). I can’t imagine how scary it is to have all of these unknowns right now. But I know that you all are taking it one step at a time, hour by hour, day by day and leaning on the LORD through it all. Thank you for sharing this journey with us... the good and the bad ❤️
Oh peter. The concern on your face. When I watch a video of you two, it warms my heart that Good brought you two together because he knew this needed to happen. With how our society is to see a man being an amazing rock for his wife is such a beautiful thing. God Bless both of you. Much love and support Mary. 😊🙏❤❤❤❤
Thank you for being strong, keeping a positive attitude, and reminding all that God is with us. I’m older than you guys but I’ve learned from you. Thank you!
Peter , you are amazing with Marry. Such a wonderful husband and it show , how much you love her. Marry is so lucky to have a wonderful husband. Marry you are so strong and an inspiration to all of us with chronic health issues , I thank you very much for showing us how to be the same.Bless you both for being so humble and honest about real life chronic health issues. I do not have CF , BUT I do have early onset disc degenerative disc disease ( meaning my spine discs are collapsing fast with anything i do ) , I have Ehlers Danlos Syndrome classic, hyper mobility, and being watched for vascular EDS, I also have Fibromyalgia with ms symptoms along with all the fibro symptoms, anxiety, ptsd, type 2 diabetic. You always make me feel like yes I can and , I get at least 1 thing done like laundry on a bad day.
hopefloats lk I'm so glad that the vlogs have become a source of encouragement for you on the difficult days! Keep on keeping on! So glad you're part of the Frey Life fam!
Thank you for sharing your life, the good and the bad. I really hope that you and your doctors can find a good path forward with your treatment. Thank you for helping me find the good in hard situations ❤️
You can close the house via mail. I hope all goes well and you can get to Duke soon. The Transplant team watching over you for the next time period will be great. Reassuring to know they keep tabs on you ... our friend saw the pulmonary doc on the transplant team for about a year ... they helped so much by knowing his lungs. I bet you will love Durham!
I think a lot of life uncertainty at the moment & lots of stuff rolling around in your head is tiring you both out right now. Your a trouper Mary - totally inspiring young woman.....all that you were going through & your giving us a thumbs up - brave wee lassie. Love from Scotland.
I'm sorry you're having such a rough time 💔 sending you all my love and support! Could you do a video explaining some of the CF clinic stuff? Like what is PFT(?) and what does it tell you about your lung function/health.
Oh Mary I am so sorry for the pft decline. I wish you had received better news. I do not have CF but I do have chronic cough that sounds just like yours. It’s so painful at times. Keep your head up and be blessed.
You're so so cute Mary! I just love the princess cup. I guess when you are in a coughing fit all you can do is do the small things that make you smile and if a princess cup doesn't do it, I don't know what will
Ugh it KILLS ME to see Mary struggle to cough and breath...I am so sorry you have to go through that...hopefully after your transplant things will be a little bit easier...praying you are feeling a little better today...much love from New York💕
I feel like we know each other because I've been watching for years and years, and it breaks my heart that I don't get to actually help and support you guys like a good friend would.
Peter, it broke my heart at the beginning of the video- you looked so distraught. Best wishes and prayers for your sweet family. Mary, we are all praying for you!
Take comfort in the emotional progress you have made by having the pre-transplant testing faced and accomplished. You have often referred to transplant as a last resort treatment followed inevitably by, "But we're no where near there now!" As if emphasizing "last resort" being the end of choices. And you seemed to push it away as if it terrified you. Look how far you have come! Emotionally you have overcome your fear, forced yourself to do the testing, making real preparations to relocate, to be ready for whenever you need to meet dealing with this life changing treatment. Do you see the courage you have found? You have entered into the space of acceptance which is beyond all fear. With this courage you are ready to make wise decisions as choices become important. You are accomplishing preparedness. There is no greater peace of mind than to be ready, in every way, to work with God to experience the best and healthiest life possible. Live laugh love. May God continue to Bless you!
It does sound a little worse on that cough but pray you'll feel better, and hope that med you took will stabilize your lungs. Yesterday you seemed pretty good.
Praying for the best plan when you are talking to your doctor. Thank you for the blessing of you singing on the way to the hospital. It reminded me that God is our rock. Would love to know some of Christian artists you listen to in the car.
I can relate to pfts being all over the place. I can never tell before I take them if they will be good or bad or great. My best numbers in the last few years came during pfts when I felt like death which completely shocked me. Sometimes I don’t pay attention to them because I feel their accuracy for telling me health aren’t always reliable I hope they come back up I’ll throw some prayers your way!
I think you guys would like the song Elijah by Mathew and the atlas, personally I'm not religious but I think the song is and regardless it's such a beautiful, gorgeous song. Love you guys so much and thinking of you through this transitional, unknown time xx
I love watching your vidoes. They make my day. I have experienced the pain of PFTs.. they sucked for me. I almost passed out once. KEEP FIGHTING Mary. DO what you think you can't do! 😄😄💙💙😘😘😘😘
Mary cariad, Martin and I are here with you every step of the way, whatever the journey looks like. Hang in there darling! Good Shabbes from both hoomuns and houndies here in north London xxxxxxxxxxxxx
Mary is a fighter and she says nothing gonna get a n her way 💪💪you both truly are great for in this journey together 💗 love Tfs God bless 🙏 Margaret from Florida 🌴 🌴
this was a crying vlog, but i love you singing praises to the KING! together, you can do ANYTHING. love you, and am praying for you. your friend in Nebraska.
Sometimes health declines are accompanied with waves of discouragement. Other times I feel like I can handle what’s up ahead. Each day is different. Today, I’m ready for the fight 💪🏻
The Frey Life hey Mary
The Frey Life sorry it cut me off hi Mary my names Bella and I’m 13 years old I have type 1 diabetes and Cystic fibrosis it affected me forever and I’m getting weaker but I just wanted to say you are strong and you can do this😃 stay strong for me every day is a challenge
Hello Mary,Peter and Olive!!!
I wish you the best, keep fighting and do what you're doing, God Bless you all, God is making the path for you and watching everyone from above😊
By the way nice cough and burp Mary!!!!😉
Uh oh. There's probably a reason why Duke's thinks Mary is eligible for double lung and liver transplant ... Sorry to say that so matter of fact-ly.
I know that from my child, too.
Believing everything's really good and having the worst values ever and needing to go to hospital within a week.
And on the other hand he's being unwell for weeks and all values are okay-ish and noone knows why.
I have to consciously fight the feeling that our bodies are unreliable, because they can obscure some truth.
Well, it's the way it is ... And what will happen will happen.
We're just out of hospital and minor surgery but my child will have to start immunosuppression next week. (Complicated Crohn's) And start on a lot of extra calories.
I'm sending you some extra hope and endurance from Europe! Kind regards and thank you so much for sharing all this with us!
@@Atrixjones I am thinking of you, too! I hope you live close to a good hospital with a kind and competent team that leads you as safely as possible through the wild water of your health!
That constant coughing and gagging and struggling to get enough air must be so unbelievably exhausting. The way you push through it and don't stop living your life on your terms (as much as possible) is so inspiring and admirable. ❤️
Six Mercer amen to that. They are both amazing ❤️
Seeing Mary struggling is heartbreaking (that whole trying not to gag from coughing... 😥). I want you to feel healthy sooooo badly ❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️ whatever it takes, girl! 💪🏻💪🏻💪🏻 overcomer
I so agree with you Rebecca!
I love and asmire her strength. Shes amazing!
Rebecca Brazil why not use a wheelchair?
Thank you Rebecca! So glad you're on this journey with us!
@@FkD814 Thanks!
that you can give a thumbs up and smile while going through all this says a lot about you.Whats the saying "one tough cookie)
UA-cam invites us into the lives of so many people. Truly wishing this loving couple all the best.
It breaks my heart to watch Mary cough so hard & struggle to breathe. She always remains so upbeat. Makes me feel bad that I don't do as well as she does handling my chronic illnesses. Watching her do PFT's is so hard to take. She's such a sweetheart & Peter you are an amazing husband. You take such good care of Mary. Y'all are such a wonderful couple. Love y'all & start practicing your y'all's, your about to be southerners soon.
I was crying watching your video today. I am so sad you have to go through this. But I so admire your positive attitudes. Thank you for sharing your life with us. I really didn’t know much at all about CF. Thank your for teaching me more about this disease. God bless you both as you walk this walk. Jackie from Indiana
All I can say is you two are the most precious couple ever. Thanks for inspiring me to keep pushing through the tough times. ❤️
Holding you up to the One who holds *you*. Sending much love across the pond. ❤
Mary, you look so tired from coughing. Looking forward to you being closer to Duke. You have so much love. We are all here sending love and prayers your way. I love your channel. xoxo
I felt so badly for Mary today, she looked so exhausted from coughing, but then I was glad for her because she has someone strong, who loves her with her 24/7. How blessed she is.
Mary you are a hero, a warrior, a fighter an inspiration! And peter you are such a great support. You are two of the most genuine, kind souls I’ve ever seen. If either of you need anything from Australia don’t hesitate to ask. Mary your inspiration gets me through many difficult days so know I will always be here for you and peter no matter what even if it’s just someone to talk too xo
Melissa, thank you for your encouragement and kind words! And I'm so glad to hear our vlogs can be a source of encouragement to you even all the way in Australia!! Keep on keeping on!
Thank you Mary and peter, they are more than an encouragement, Mary what you said about one step at a time helped me through surgery for my j tube and the complications that came after, 2 days after being released from hospital my dr believes I am having hours long absent seizures then 2 days after that I found out one of my incisions had opened and currently have a major infection. I believe Mary we could be great friends while you fight for your lungs I fight for my heart. Pls contact me anytime you share your life with me everyday I would like to reciprocate and support u too! I learned recently support from family and friends is everything. And I would enjoy talking to peter I was never religious before but I think that’s changing. Xo
I just wanted to wave my "magic wand" and wisk some of the stress away. Your poor cheeks were so red and clearly having a less than spectacular medical day - much love to you Mary. You are so strong and carry such grace. Sending forth hugs and hope to you!! 💗💗💗
Clinic’s like a box of chocolates; never know what you’re gonna get.
Prayers for direction, and that you feel better soon. Us NC folk are excited to welcome you. ☺️
JANDK2004 what a perfect way to describe clinic! Thank you for your prayers!
Oh sweet Mary, how do you manage to be so adorable even when you burp-cough. Holding you & Peter in my heart and prayers.
Sorry you had a rough clinic day! Seeing you struggle not to gag in the mornings is rough! But you keep on smiling an giving us a thumbs up. Strong, girl!
My heart aches for you Mary and Peter. You're having such a hard time. Prayers that you team can sort something for you xxx
You’re one of the toughest people I’ve never met...you’re an inspiration, both of you honestly. I’ve never been more thankful for my health.
The minute Mary put her arms around her husband .I could see peace in her face. Having a medical condition myself I find a calmness if I just hold on to my husband also.. Peace,Love and Healing.💜
y'all are such an inspiration to me. the fact that y'all try to see the best in every day, and every situation is just....amazing to me!
I know you can't help but handle it, because your chronic illness is part of your life so you have to handle it. But you handle it with such grace. One of my greatest fears is not being able to breath and just hearing you cough and try and catch your breath after a coughing fit gives me so much anxiety, I can't even imagine how you are feeling and then to share that with everyone else is so incredible and giving. I'm so incredibly happy I found your channel it has given me such happiness over the years and has helped me with how I handle or feel about my chronic illness, which is no where near yours or some others. Thank you really I really do mean that .... THANK YOU ....
So sorry, mary isn't feeling well and the numbers are down. It is heartbreaking to watch you cough! Really hope you'll feel much better soon!!!
My gosh you guys have surely gone through a lot of stuff. I don't know how you do it. I think your faith has a lot to do with it and you are both a very courageous and strong couple. I will pray for you and God bless you both. This is from Toronto, Canada and I wouldn't miss one of your vlogs.
Carol thank you for your continued prayers & encouragement! Yes, we definitely couldn't do it without God's help and strength! Have a great weekend! :)
seeing you so down is heartbreaking but God gives you strength!! you are an inspiration for us... send you love and blessings
Have you ever made a list of the songs that encourage you and build you up, like a playlist? I’ve only recently found your blog and today was the 3rd time I have only a clip of a song that made my heart pay attention. I don’t have CF or any other physical health problems but I do struggle with Panic/Anxiety that triggers depression. I use to go to church every time the doors opened and studied God’s word all the time but these 20 years of struggling alone have left me with a mustard seed or two. My hope is barely there and my attitude is struggling with so little trust. That glimpse just to say a list if songs might be helpful for someone like me. I admire the attitude and outlook you two have and it has given me strength more than once. I wish I wasn’t facing life alone but it is what it is. Thank you for sharing your story!
One thing I love about watching you both is that I have learned so much. When I first began watching I had no idea what CF was. But now I feel like I know a lot. I also love seeing how strong you are Mary! You just keep fighting. Each day is a new day with a new adventure in it. You inspire me so much.
Sending you lots of love this evening . You are a very brave bunny and I pray that there is an up turn for you soon xxx
Love you guys, keep on with your positive journey..God Bless💖⭐💖⭐💖⭐💖
Stay strong Mary.To Peter: You never cease to amaze me..You put on such a strong front for everyone. I can see the worry in your eyes, and pain in your voice..It's ok, to not be ok...No one understands the pain and mental struggles being the spouse of chronic illness patients..my husband has End stage renal Disease which is different but . 10 years, the bumps in the road are scary. I feel for you. Attitude is everything, good luck guys
So true. Peter is amazing and Mary is amazing to Peter. They are perfect together. So sorry about your husband. I think this is just a part of true love and care for your spouse/person. You just do it out of love. Best wishes to you and your husband.❤❤
When one week at a time sounds impossible, try one day at a time, when one day at a time overwhelms you, try one hour, then one minute or second at a time. You WILL get through this storm, Mary. I want to hug you so bad right now! Love the crap outta you.
You guys have the most genuine smiles I ever saw!! Mary, your face positively lights up when you smile. How you do what you do while coping with your health issues is such an inspiration. All the very best to you both. xxx
"I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.""
- John 16:33 ESV
I'll be praying these help you feel better this time. I just finished my first round of IVIg yesterday. I am feeling pretty horrible. But I knew a lot more about it thanks to you! I really appreciate you being so honest about it. It really helps. Also as a new port patient, you talking about yours helps me feel more confident with mine! I really appreciate it and were gonna be here with you through this! You be got this!
I'm so confident that both of you will make awesome decisions! After all, you GOT JESUS♡
I have taken advantage of out of state real estate closings several times, and I would highly recommend considering it. It was SO convenient, and did not cause undo stress (both physically and emotionally). Your realtor can walk you through everything. When life is so busy and hectic anyway, and then throw chronic illness in the mix....I was ever so thankful to be able to get my closings done via long distance. Just a suggestion, in case you haven't considered it. I've never closed on a property in NC; however, it's likely very similar to out of state closings elsewhere.
Its amazing the peace the lord can give us. I have caught myself in a similar moment shortly after my cancer treatment started. I just finished my chemo and radiation but about a month in, maybe 3 weeks but I found myself just sitting in the car on my way to treatment thinking, "Why am I so calm? Why am I not worried? I have cancer in my body ..."
Because God is good. The lord is constantly keeping me in awe, mostly with all the little things he blesses us with and those moments - removal of fear just make me so grateful because fear can pull quite a doozie on your poor brain. Take care Mary, will be praying for you, and you as well Peter.
Prayers Mary, you are a very strong young women!! Watching you going through this has touched my heart. Peter is an amazing husband and so supportive, prayers for him as well! I’m sure you sharing your journey has helped many people.
Hi Mary & Peter, I am so sorry Mary’s health is declining and her struggles are heartbreaking. You are an amazing fighter and Peter an amazing caregiver. I know God has led you to NC to receive the next level of care. I pray for you everyday and know together with your faith better days are ahead. You two are a beautiful example of unconditional love and commitment. May God help to keep you at peace as you begin this next chapter. Much love, hugs and prayers from VA. 🙏🏻💗🦋
You guys always have the best worship music going! Would you make us all a playlist of your favorites?!
Your strength in all this is absolutely unbelievable. I see you struggle, and it's breaks my heart that I take breathing for granted. Cheers to you both!
It’s so inspiring how you can still carry on when your feeling so low, you might not feel great but you are a true inspiration to myself as a cfer and I’m believing many more. Stay strong and rest as much as this awful cough allows you xx
Yasmin Thomas thanks! So glad we can be an encouragement and inspiration to you and others!
Thank your for sharing your life I have Learned a lot about CF
Always praying for you Mary and Peter (and of course Ollie Boy!). I can’t imagine how scary it is to have all of these unknowns right now. But I know that you all are taking it one step at a time, hour by hour, day by day and leaning on the LORD through it all. Thank you for sharing this journey with us... the good and the bad ❤️
God bless you 3. That's a tough journey for sure but you have all of our support!
Oh peter. The concern on your face. When I watch a video of you two, it warms my heart that Good brought you two together because he knew this needed to happen. With how our society is to see a man being an amazing rock for his wife is such a beautiful thing. God Bless both of you. Much love and support Mary. 😊🙏❤❤❤❤
Thank you for being strong, keeping a positive attitude, and reminding all that God is with us. I’m older than you guys but I’ve learned from you. Thank you!
My dear Frey family, my heart to yours. It’s time to go to NC. I think u need to be closer to Duke.
They are in the process of buying a house near Duke.
Sarah Alleman yes I know :). I meant maybe it’s time to move up the timeline. I so look forward to seeing Mary healthy :)
Mary, you and Peter are a beautiful example of true love. Hope you feel better.
Peter , you are amazing with Marry. Such a wonderful husband and it show , how much you love her. Marry is so lucky to have a wonderful husband.
Marry you are so strong and an inspiration to all of us with chronic health issues , I thank you very much for showing us how to be the same.Bless you both for being so humble and honest about real life chronic health issues. I do not have CF , BUT I do have early onset disc degenerative disc disease ( meaning my spine discs are collapsing fast with anything i do ) , I have Ehlers Danlos Syndrome classic, hyper mobility, and being watched for vascular EDS, I also have Fibromyalgia with ms symptoms along with all the fibro symptoms, anxiety, ptsd, type 2 diabetic.
You always make me feel like yes I can and , I get at least 1 thing done like laundry on a bad day.
hopefloats lk I'm so glad that the vlogs have become a source of encouragement for you on the difficult days! Keep on keeping on! So glad you're part of the Frey Life fam!
Praying for you both. You have such a beautiful voice, Mary. 💜❤
Thank you Kelly!
Mary, you are such a warrior! My heart and prayers go out to /for you! May God's embrace comfort you and give you strength. Thank you for sharing!
Keeping you guys in my prayers as always! Thank you for showing those glimpses of your life, it never fails to bright up my day 💛
Lais, I'm so glad that our vlogs can bring some joy into your day! Keep on keeping on! :)
You are such a fighter-overcomer, bless you Mary. 🙏🙏🙏
Thank you for sharing your life, the good and the bad. I really hope that you and your doctors can find a good path forward with your treatment. Thank you for helping me find the good in hard situations ❤️
So sorry the numbers werent great but you have both got this. The strongest people i know. Take care guys love and hugs from NZ
You can close the house via mail. I hope all goes well and you can get to Duke soon. The Transplant team watching over you for the next time period will be great. Reassuring to know they keep tabs on you ... our friend saw the pulmonary doc on the transplant team for about a year ... they helped so much by knowing his lungs. I bet you will love Durham!
sending so much love and prayers 💛 you guys inspire so many. keep fighting
I’m sorry you had a hard morning Mary! I hope you start feeling better however that looks. Praying for you!
thanks MJand EA!
I think a lot of life uncertainty at the moment & lots of stuff rolling around in your head is tiring you both out right now. Your a trouper Mary - totally inspiring young woman.....all that you were going through & your giving us a thumbs up - brave wee lassie. Love from Scotland.
Praying for you both. Mary, I’m specifically praying for strength and perseverance! Good night from the Pacific Northwest!
I think a great idea for a video would be about marys health and healthcare while you were in scotland. 😙❤❤❤
Mary your amazing, your so strong and I must thank you. You have brought me closer to whom ever is up there than I have ever been before. Lots of love
I'm sorry you're having such a rough time 💔 sending you all my love and support!
Could you do a video explaining some of the CF clinic stuff? Like what is PFT(?) and what does it tell you about your lung function/health.
I think PFT means pulmonary function test. Not sure though
I'm curious, Mary do you get a lot of sore throats from the coughing? Does the coughing affect your vocal cords?
Oh Mary I am so sorry for the pft decline. I wish you had received better news. I do not have CF but I do have chronic cough that sounds just like yours. It’s so painful at times. Keep your head up and be blessed.
My heart breaks for you both. I pray all the answers you need become known. You keep fighting girl your a beast💜 prayers and love💜💜💜
Thank you for your continued prayers Amy!!
You're so so cute Mary! I just love the princess cup. I guess when you are in a coughing fit all you can do is do the small things that make you smile and if a princess cup doesn't do it, I don't know what will
❤️ You guys are the best!!!!! I love this channel so much!❤️
Oh Peter....that worry on your face. My heart is with you. And Mary, you’re doing great! Girl....you are my hero. Keep fighting.
Ugh it KILLS ME to see Mary struggle to cough and breath...I am so sorry you have to go through that...hopefully after your transplant things will be a little bit easier...praying you are feeling a little better today...much love from New York💕
Catherine Elizabeth thank you for your continued prayers, support and encouragement!
The Frey Life anytime💕
Aww Mary I hate to see you not feeling good! You are so strong!
Seeing the Lord work through both of you, brings me joy! Here's hoping for progress. My pap used to say, hope until there is nothing left to hope for!
I am so sorry you are struggling but i am also proud of you for staying tough thru all the coughing
Thanks Nikki!
Mary you and Peter are so good together. Lots of hugs and prayers 🙏 for you guys
I'm praying for you both daily!
I feel like we know each other because I've been watching for years and years, and it breaks my heart that I don't get to actually help and support you guys like a good friend would.
Awe thanks fighting blind! You are so sweet! Thank you for being a part of our Frey Life fam!
Peter, it broke my heart at the beginning of the video- you looked so distraught. Best wishes and prayers for your sweet family. Mary, we are all praying for you!
J lew thank you for your continued prayers!
My heart is breaking Mary!!! So love you both!
Take comfort in the emotional progress you have made by having the pre-transplant testing faced and accomplished. You have often referred to transplant as a last resort treatment followed inevitably by, "But we're no where near there now!" As if emphasizing "last resort" being the end of choices. And you seemed to push it away as if it terrified you. Look how far you have come! Emotionally you have overcome your fear, forced yourself to do the testing, making real preparations to relocate, to be ready for whenever you need to meet dealing with this life changing treatment. Do you see the courage you have found? You have entered into the space of acceptance which is beyond all fear. With this courage you are ready to make wise decisions as choices become important. You are accomplishing preparedness. There is no greater peace of mind than to be ready, in every way, to work with God to experience the best and healthiest life possible. Live laugh love. May God continue to Bless you!
My thoughts and healing prayers are with you Mary, 🙏❤️ sending my love and hugs to the three of you, see you tomorrow!
It does sound a little worse on that cough but pray you'll feel better, and hope that med you took will stabilize your lungs. Yesterday you seemed pretty good.
Sending prayers. Mary you are so positive and strong. Keep on fighting.
Thank you Marianne!
I am praying constily for yall girl yall are overcomers god will heal you just keep believeing in god and your self
Sending you both tons of hugs, and prayers too! Hang in there Mary!!
Praying for the best plan when you are talking to your doctor. Thank you for the blessing of you singing on the way to the hospital. It reminded me that God is our rock.
Would love to know some of Christian artists you listen to in the car.
Sally thank you for your continued prayers!
I can relate to pfts being all over the place. I can never tell before I take them if they will be good or bad or great. My best numbers in the last few years came during pfts when I felt like death which completely shocked me. Sometimes I don’t pay attention to them because I feel their accuracy for telling me health aren’t always reliable I hope they come back up I’ll throw some prayers your way!
I really needed the message of that worship song today. Thanks for reminding me that 'the Rock wont move'. 🤗🙏
I think you guys would like the song Elijah by Mathew and the atlas, personally I'm not religious but I think the song is and regardless it's such a beautiful, gorgeous song. Love you guys so much and thinking of you through this transitional, unknown time xx
Cicely thanks for sharing!
Praying for you and for wisdom with all of the decisions you’ll be making soon about your health.
Thank you Hannah!
I love watching your vidoes. They make my day. I have experienced the pain of PFTs.. they sucked for me. I almost passed out once. KEEP FIGHTING Mary. DO what you think you can't do! 😄😄💙💙😘😘😘😘
Thanks Alex!
@@thefreylife you're welcome!
Praying for you, Mary! Your Subscriber from Michigan! 💝
You are such a sweetheart Mary. God bless you. I'm so sorry you were struggling so much. Peter is a wonderful husband. 💕💕💕
you have the options and it is ... not any of them are fun!! BUT, I am so glad you have a good team there all helping you figure out what to do next!
Hang in there guys! As always, keep smiling🙏🙏🙏🙏🙏🙏
Prayers❤Love💛Positivity💚more love🧡
Mary cariad, Martin and I are here with you every step of the way, whatever the journey looks like. Hang in there darling! Good Shabbes from both hoomuns and houndies here in north London xxxxxxxxxxxxx
Thank you Penelope Polins Née Meyer!
💜💜💜 You are always in my thoughts. You are both so strong.
You both always say thank you to us for watching but THANK YOU for taking the time to vlog even even things are though. Praying for y'all 💖💖
Mary is a fighter and she says nothing gonna get a n her way 💪💪you both truly are great for in this journey together 💗 love Tfs God bless 🙏 Margaret from Florida 🌴 🌴
this was a crying vlog, but i love you singing praises to the KING! together, you can do ANYTHING. love you, and am praying for you. your friend in Nebraska.
Kimberly thank you for your continued prayers!
@@thefreylife you are so welcome. it is my privilege to pray.