The average life expectancy may be 40 for people with Brugada but, keep in mind those numbers are for people that are untreated with an ICD. Once treated with an ICD the death rate of Brugada is 0%. Instead of being scared that you have an ICD be thankful you were lucky enough to survive long enough to get one. The shocks may hurt but the pain in temporary and a small price to pay considering the pain you would leave behind to your family if you passed away. These are some things I keep in mind to help with anxiety and stress and I hope they can help someone out there.
@@Nerrva051 Yes. What Brugada tends to do is cause the heart to beat erratically. These erratic beats usually happen while resting. What happens to people with Brugada is they are usually doing something pretty strenuous, such as mowing the lawn or shoveling snow. When they go to sit down and rest is usually when the very fast heartbeats happen and unfortunately kill most people. The problem with that is they weren't diagnosed and properly treated with an ICD so therefore there was nothing they could do to save themselves. With the ICD constantly monitoring you however, if a dangerous rhythm occurs it's able to shock and reset the heart back into normal rhythm therefore saving your life. Be thankful you were diagnosed before something fatal happened not everyone is so lucky. It will take a while to adjust to the new ICD (I've had mine for 2 years now) and I hated having it at first but now I couldn't imagine life without it. Take it easy on yourself, don't push your body to the limit with heavy lifting or overly physical activities (do light exercises) and if need be find somebody that can get it done for you. I'm sorry to ramble on but this is all stuff I had to figure out on my own as doctors were no help and if I can make someones life better by sharing this information you better believe I'm gonna do it. I wish you luck my friend I'm happy you're getting treated.
My boyfriend was diagnosed with BS type 1 about 2 years ago, he’s only 24. But after he saw the specialist and displayed no symptoms the doctor said he doesn’t need the ICD (which my bf was happy about) but has me worried. I’m thinking about buying a defibrillator online just to have in the house incase we need it god forbid. When he sleeps it sounds like he gasps but he’s always fine. I’m constantly worried something will suddenly happen to him.
@@NR-bw6kh Purchasing a defibrillator might not be a bad idea. Brugada usually strikes during sleep. I think it's better to be safe than sorry since Brugada is very unpredictable. Symptoms tend to get worse as we age unfortunately. As for the gasping for air, that may be sleep apnea. A sleep study would have to be conducted to be certain though. Sleep apnea can lead to heart arrhythmias so it may be worth looking into if he does it quite frequently. One thing you will learn with Brugada is most doctor's are clueless about it, and I find it better to do my own research and educate myself about myself. If you have any questions please feel free to reach out to me as I feel I have more knowledge than doctor's just based on my research and personal experience with this syndrome.
Just diagnosed. 😭 my friend and mother both found me fainted on the floor 5 times in 2 months. Now I'm wearing a life vest a Zoll life vest until I see my cardiologist and have a defibrillator implanted with the wire to my heart unbelievable I'm in shock it runs in my dad's side of the family I didn't meet my dad's house 26 so I really didn't know the genetic diseases and I found out be careful all of you you don't know you're going to faint you're on the ground and if no one finds you you can die
@@tvashrafmky lost 2 of my brothers in a period of 2 years,they died at their 20's because of heart attacks,just realized we have this genetically transmitted illness
I just came from the hospital and told them my heart feels like it’s racing 1000 miles a min. Before I was discharged they told me I have burgada syndrome. I’m 32 male with 2 kids 7 and 8. I’m scared shitless right now.
I haven't had fainting or cardiac arrest yet, but I'm already diagnosed with Brugada syndrome.(drug induced type 1) However, I do have a bit of a weird anomaly. When my body and mind are stable, a normal electrocardiogram comes out, but when I do an electrocardiogram with excessive anxiety disorder and an excessive load on the body and heart due to this, an electrocardiogram abnormality with st elevation occurs. and it seems to be a peculiar phenomenon that cannot be found even after searching on the Internet. what the heck is this?? are going to be okay?? In the hospital, I'm just doing follow-up for 8 years. The hospital tells not to do icd anywhere if i go to a big hospital.
The truth this that most of these might not even be true and that syndrome is a bastardization of various different issues or normal varriations and inaccurate protocols definitely the most who have been diagnosed worldwide except maybe South Eastern Asian do not really have it but they will live with a fear and peacemaker forever 😢
Doctors have been scaring me with this for 5 years, I will start with the fact that in 2018 The doctor examining the ECG said that I have a "suspicion" of Brugada syndorme type 2. Type 2 is often difficult to confirm. After 5 years it is still only a suspicion, in 2018 I had a test with ajmalin, but it was negative. I'm going to have another one soon as I'm 18. I still have this disease in my head, I have more and more frequent panic attacks, I'm afraid for my life, what do you think are the chances that I have this disease. Should I be concerned about this "suspicion" as it were?
I’m 33 years old and Just recently diagnosed after having what they thing was a stroke. Even tho the MRI said different. My doctor said to take it seriously because the chances of dying randomly are high. Is this really true? I don’t know anyone who has had this so I have no one to talk to about this. Iv done a bunch of tests from the echocardiogram to the zio patch to the cardiac MRI. Not to mention mitral valve regurgitation. I don’t know anything about all of this. Is this Brugada Syndrome rare? Lol ya i got no one to talk to about this stuff lol. MIT doctor mentioned it being genetic but no one on either side of my family has ever had heart problems. The doctor said “well it’s generic and sometimes it has to start with someone to become genetic.” I mean makes sense it has to start somewhere i guess. Has anyone else gotten Brugada syndrome and it not being from genetics or anyone with it that family does not have heart problems on both sides?
how are you bro? I also experienced a syncope last year and now Im going in a series of test. Im so scared. My doctor also told me all the things you have said. how are you right now? did you already have an ICD thanks man
The average life expectancy may be 40 for people with Brugada but, keep in mind those numbers are for people that are untreated with an ICD. Once treated with an ICD the death rate of Brugada is 0%. Instead of being scared that you have an ICD be thankful you were lucky enough to survive long enough to get one. The shocks may hurt but the pain in temporary and a small price to pay considering the pain you would leave behind to your family if you passed away. These are some things I keep in mind to help with anxiety and stress and I hope they can help someone out there.
Im diagnosed write now. Il get icd. Is this true about 0% deaths with icd
@@Nerrva051 Yes. What Brugada tends to do is cause the heart to beat erratically. These erratic beats usually happen while resting. What happens to people with Brugada is they are usually doing something pretty strenuous, such as mowing the lawn or shoveling snow. When they go to sit down and rest is usually when the very fast heartbeats happen and unfortunately kill most people. The problem with that is they weren't diagnosed and properly treated with an ICD so therefore there was nothing they could do to save themselves. With the ICD constantly monitoring you however, if a dangerous rhythm occurs it's able to shock and reset the heart back into normal rhythm therefore saving your life. Be thankful you were diagnosed before something fatal happened not everyone is so lucky. It will take a while to adjust to the new ICD (I've had mine for 2 years now) and I hated having it at first but now I couldn't imagine life without it. Take it easy on yourself, don't push your body to the limit with heavy lifting or overly physical activities (do light exercises) and if need be find somebody that can get it done for you. I'm sorry to ramble on but this is all stuff I had to figure out on my own as doctors were no help and if I can make someones life better by sharing this information you better believe I'm gonna do it. I wish you luck my friend I'm happy you're getting treated.
@@turtlewax7167 Omg, thank you all for answers.
My boyfriend was diagnosed with BS type 1 about 2 years ago, he’s only 24. But after he saw the specialist and displayed no symptoms the doctor said he doesn’t need the ICD (which my bf was happy about) but has me worried. I’m thinking about buying a defibrillator online just to have in the house incase we need it god forbid. When he sleeps it sounds like he gasps but he’s always fine. I’m constantly worried something will suddenly happen to him.
@@NR-bw6kh Purchasing a defibrillator might not be a bad idea. Brugada usually strikes during sleep. I think it's better to be safe than sorry since Brugada is very unpredictable. Symptoms tend to get worse as we age unfortunately. As for the gasping for air, that may be sleep apnea. A sleep study would have to be conducted to be certain though. Sleep apnea can lead to heart arrhythmias so it may be worth looking into if he does it quite frequently. One thing you will learn with Brugada is most doctor's are clueless about it, and I find it better to do my own research and educate myself about myself. If you have any questions please feel free to reach out to me as I feel I have more knowledge than doctor's just based on my research and personal experience with this syndrome.
THANK YOU SO MUCH! Short, precise, quick, and to the point.
Just diagnosed. 😭 my friend and mother both found me fainted on the floor 5 times in 2 months. Now I'm wearing a life vest a Zoll life vest until I see my cardiologist and have a defibrillator implanted with the wire to my heart unbelievable I'm in shock it runs in my dad's side of the family I didn't meet my dad's house 26 so I really didn't know the genetic diseases and I found out be careful all of you you don't know you're going to faint you're on the ground and if no one finds you you can die
Just don't push your limits when you have an implant, those shocks are no joke. I was diagnosed at 8, after having a heart attack.
@@1Guason3 Are you still alive?
@@kennethmajorSG yes
@@1Guason3 can you send me contact tvashraf@gmail.com
@@tvashrafmky lost 2 of my brothers in a period of 2 years,they died at their 20's because of heart attacks,just realized we have this genetically transmitted illness
What I can never understand is all the informative videos with background distracting music
soooo annoying especially in x2 speed
Woderfully explained Brugada syndrome, its signs and symptoms, ECGg changes and treatment. Thumbs up!
I am suffering from this too..
And i don't want to die 🙂
But i know thats not possible💔
I just came from the hospital and told them my heart feels like it’s racing 1000 miles a min. Before I was discharged they told me I have burgada syndrome. I’m 32 male with 2 kids 7 and 8. I’m scared shitless right now.
@@iamtroyyy wish you a speedy recovery, miracles can happen in our lifes, stay positive & happy . You 'll be fine.
@@omicron6513 that’s how I feel I think about it all the time now. At anytime I can die. I also have sleep apnea so I know that doesn’t help.
Also do you get heart palpitations randomly?
Brah any yas had shock man they fkn suck
I haven't had fainting or cardiac arrest yet, but I'm already diagnosed with Brugada syndrome.(drug induced type 1)
However, I do have a bit of a weird anomaly. When my body and mind are stable, a normal electrocardiogram comes out, but when I do an electrocardiogram with excessive anxiety disorder and an excessive load on the body and heart due to this, an electrocardiogram abnormality with st elevation occurs. and it seems to be a peculiar phenomenon that cannot be found even after searching on the Internet. what the heck is this?? are going to be okay??
In the hospital, I'm just doing follow-up for 8 years. The hospital tells not to do icd anywhere if i go to a big hospital.
Diagnosed on 2016 staying with ICD
What can help when the patient cardiac arrest???
The truth this that most of these might not even be true and that syndrome is a bastardization of various different issues or normal varriations and inaccurate protocols definitely the most who have been diagnosed worldwide except maybe South Eastern Asian do not really have it but they will live with a fear and peacemaker forever 😢
Doctors have been scaring me with this for 5 years, I will start with the fact that in 2018 The doctor examining the ECG said that I have a "suspicion" of Brugada syndorme type 2. Type 2 is often difficult to confirm. After 5 years it is still only a suspicion, in 2018 I had a test with ajmalin, but it was negative. I'm going to have another one soon as I'm 18. I still have this disease in my head, I have more and more frequent panic attacks, I'm afraid for my life, what do you think are the chances that I have this disease. Should I be concerned about this "suspicion" as it were?
Where are u from
@@naturelovers8355 Poland
Apply a controlled shock
I got type 2 brugada sindrome am I gonna die 🥺🥺
I got type 1 so chill bro.
@@aliosmanak too late he died
@@fernandeslhow old are u brother ?
@@naturelovers8355 I'm 27 now. I got diagnosed and I got an ICD when I was 21
@@aliosmanaksende var mı bu hastalıktan
I’m 33 years old and Just recently diagnosed after having what they thing was a stroke. Even tho the MRI said different. My doctor said to take it seriously because the chances of dying randomly are high. Is this really true? I don’t know anyone who has had this so I have no one to talk to about this. Iv done a bunch of tests from the echocardiogram to the zio patch to the cardiac MRI. Not to mention mitral valve regurgitation. I don’t know anything about all of this. Is this Brugada Syndrome rare? Lol ya i got no one to talk to about this stuff lol. MIT doctor mentioned it being genetic but no one on either side of my family has ever had heart problems. The doctor said “well it’s generic and sometimes it has to start with someone to become genetic.” I mean makes sense it has to start somewhere i guess. Has anyone else gotten Brugada syndrome and it not being from genetics or anyone with it that family does not have heart problems on both sides?
I was just diagnosed and my genetic test was negative. But the gene is only found in 30% of people with it.
how are you bro? I also experienced a syncope last year and now Im going in a series of test. Im so scared. My doctor also told me all the things you have said. how are you right now? did you already have an ICD thanks man
You sound like Jared Owen
My mom is having a test about this today I hope she does not have it
What happened your mom?
Diagnosed in 22
How old are u now?
this track is super fire 🔥 . i actually produce a lot of similar instrumentals. id be down to work on a record with you - let me know!