I am a brugada 2 type and I wish I had more information on cannabis use and brugada beyond just simply banning the use altogether. I you can expand on this it would be very useful thank you
got sprung with this possible diagnosis earlier this month, in for a ajmaline challenge in a few weeks. Im hoping for a negative response here because I cannot imagine myself dealing with an ICD or even S-ICD . im amazed at people who seem so chill about it .
@@kxni122 because i is an invasive moment and experience and the machine is not the only part of the experience. you will have to take more drugs, consider more tests, and return to hospital every 7 years or so to have the battery replaced. Theres risks in each of those experiences along side a change in life. Humans are machines, terribly complex, and constatnly in a possible state of failure and we can add machines it might stabilise things .. but .. they can also add complexity and new modes of failure. Add to this a mind damaged through previous hospital experiences to the point of cPTSD and anxiety from appointments.. Its not simple .. its terrifying.
I had the test a couple of months ago and .. Im negative for Brugada ; so whilst there is still no clarity as to what caused the blackout ; its ever more unlikely despite the specialists insistence that this was a heart electrical issue.
@@kxni122 how is that even an answer ? I mean .. its not even an acknowledgement that mental health is an impact on well being its just .. oh .. maybe in the future .. fantasy ideas will make things easier.
uncertainty indeed. Poor guy here i had ecg it says electrolyte imbalnce or brugada pattern. No family history. or syncope. i feel so anxious all yhe time about it
@@southerncalifornia3155 that’s weird. But doesn’t this pattern make it Brugada? But either way you should confirm it with a clinician. Hopefully it’s just a pattern and not confirmed. Best of luck to you.
@@thelarstone6711 yes I know man, it sucks because I can't exercise hard anymore...because the Brugada is on my mind...they told me I have the Patterns not the syndrome..don't know what they mean by that..
Thx that's a very good interview with sharp details we can't easily find in the French content on YT about brugada
Hey hun Ive had Brugada for 20 years now Its a rough disease but You need to keep fighting
im 28 and was just diagnosed just got out of surgery 2 days ago.i do construction and ill never be able to go back.very stressful
Did you guys implanted an ICD?
@@PatMofRockies I had my first ICD implanted when I was 10.
@@Mori-chandesu Thanks for your answer. Keep fighting man!
I am a brugada 2 type and I wish I had more information on cannabis use and brugada beyond just simply banning the use altogether. I you can expand on this it would be very useful thank you
Thank you for sharing your story, it was helpful ❤️
Thank you so much for the video
I hope the lady is fine.
5 members of my family been diagnosed after one passed away.
Thanks so much for this video, God bless.
I was diagnosed with brugada syndrome hun your not alone...I had a defibrillator put in my chest...
got sprung with this possible diagnosis earlier this month, in for a ajmaline challenge in a few weeks. Im hoping for a negative response here because I cannot imagine myself dealing with an ICD or even S-ICD . im amazed at people who seem so chill about it .
an s-icd is not a bad thing dont understand why humans are scared to help your own body out with machines whats so wrong with that ?
@@kxni122 because i is an invasive moment and experience and the machine is not the only part of the experience. you will have to take more drugs, consider more tests, and return to hospital every 7 years or so to have the battery replaced. Theres risks in each of those experiences along side a change in life.
Humans are machines, terribly complex, and constatnly in a possible state of failure and we can add machines it might stabilise things .. but .. they can also add complexity and new modes of failure.
Add to this a mind damaged through previous hospital experiences to the point of cPTSD and anxiety from appointments..
Its not simple .. its terrifying.
I had the test a couple of months ago and .. Im negative for Brugada ; so whilst there is still no clarity as to what caused the blackout ; its ever more unlikely despite the specialists insistence that this was a heart electrical issue.
@@NikButler and the medicine improves everyday maybe in 10 years the s-icd will have the size of an pill nobody knows
@@kxni122 how is that even an answer ? I mean .. its not even an acknowledgement that mental health is an impact on well being its just ..
oh .. maybe in the future .. fantasy ideas will make things easier.
Can we have news of her ?
What is the name of this doctor ?
uncertainty indeed. Poor guy here i had ecg it says electrolyte imbalnce or brugada pattern. No family history. or syncope. i feel so anxious all yhe time about it
I was diagnosed with it ..yesterday...But its Bugrada Pattern not the syndrome..thats what i was told.
@@southerncalifornia3155 that’s weird. But doesn’t this pattern make it Brugada? But either way you should confirm it with a clinician. Hopefully it’s just a pattern and not confirmed. Best of luck to you.
I am 21 and I have brugada too. The uncertainty is something a very bad feeling
@@thelarstone6711 yes I know man, it sucks because I can't exercise hard anymore...because the Brugada is on my mind...they told me I have the Patterns not the syndrome..don't know what they mean by that..
@@costcostore7376 thank you...I'm going to asked for a provocative test to see if I got it....
jokink the man cous i have a inplantate S-ICD but in my land it,s only infulese i am not ill....