Great shirt! :D plants ftw - very jealous of those snack boxes - looks amazing! Also happy you didn't get any reactions :) far better than my experience with tecfidera/ vumerity so far 😅 (daily flushing almost every afternoon now - I look like a cherry tomato / somebody who forgot their suntan lotion 😂) Have my next scan early Jan so hopefully no activity🤞 if there is any activity in the next scan / next year I hope to upgrade to Ocrevus, seems like the best thing out there at the moment 😸
Glad it went well for you. I can relate to it all. I have been on Ocrevus for about 3 years. I'm not sure what type M.S. you have but I have PPMS. Take Care and Keep up the videos !!
@@_alexandraraye From what my Doctor told me Ocrevus is the only FDA approved Drug to treat PPMS. Before Ocrevus the only drug I have been on is Baclofen. It's suppose to help with the stiffness in my legs. I can't tell it does much. I Pray that you get some help from Ocrevus.
I was just diagnosed on the 19th of September 😢 8 brain lesions and three spinal. RR. Thinking of Ocrevus. Tysabri is monthly with a higher chance of PML and I really don’t fancy the self injection or the pills that don’t really work. How do you do on O? Edit: I chose Kesimipta… I love it
I get generic rituximab for what I assume is rrms. I haven't been officially told my type, but I seem to have relapsing events. My infusion goes very similarly to yours, with the reactions and slight fever at end. I've only had one so far though! Loved your snack box, I gotta do that for my next one.
hey laura! how has rituximab been for you overall? any side effects post-infusion? i wonder why we both end our infusions with fevers :( yes, the snack box came in clutch! hands-free eats!
@@_alexandraraye ah I just find that I have delayed bruising since starting the rituximab, like I will smash my toes into something and they bruise a week later, weird. Overall I feel so much better than I did without medication, that I can't even really identify any major side effects.
Also I tried that vegan jerky you had brought but didn't eat and it is sooo good. I only found the regular flavor, will have to track down the hot and spicy now. Yum!
Glad the infusion went well. Take care.
thank you, donna! :)
Thank you for time stamps
I watched it now.Its great that you are feeling ok now Alex. Merry Christmas to you your hasband and your lovely cats :)
merry christmas, kosmas!! :)
Great shirt! :D plants ftw - very jealous of those snack boxes - looks amazing! Also happy you didn't get any reactions :) far better than my experience with tecfidera/ vumerity so far 😅 (daily flushing almost every afternoon now - I look like a cherry tomato / somebody who forgot their suntan lotion 😂) Have my next scan early Jan so hopefully no activity🤞 if there is any activity in the next scan / next year I hope to upgrade to Ocrevus, seems like the best thing out there at the moment 😸
thank you, thank you! oof, i'm hoping your reactions get their stuff together AND you have GREAT scan results!!! fingers and toes crossed for you!!
Glad it went well for you. I can relate to it all. I have been on Ocrevus for about 3 years. I'm not sure what type M.S. you have but I have PPMS.
Take Care and
Keep up the videos !!
How is the Ocrevus helping you?
@@dermlover1 Well I really can't say it's done anything. All I can hope is maybe it has slowed down the progression my M.S.
thanks, kevin! i have rrms :) did you try another dmt before ocrevus? i'm always curious to hear how everyone is doing on it!
@@_alexandraraye From what my Doctor told me Ocrevus is the only FDA approved Drug to treat PPMS. Before Ocrevus the only drug I have been on is Baclofen. It's suppose to help with the stiffness in my legs. I can't tell it does much. I Pray that you get some help from Ocrevus.
@@kevinwhite5007 whts ur condition now
Thanks for your post, I have this crazy sickness too.
thank you for being here
Hey Alex! Hope you are well. Thank you for sharing, glad to see infusion went well. Where are you based exactly??
hey there! i'm in the US - in georgia :) you?
@@_alexandraraye I was in Atlanta before, now in Seattle
I was just diagnosed on the 19th of September 😢 8 brain lesions and three spinal. RR. Thinking of Ocrevus. Tysabri is monthly with a higher chance of PML and I really don’t fancy the self injection or the pills that don’t really work. How do you do on O?
Edit: I chose Kesimipta… I love it
Whts ur condition
@@anisashraf8877? MS? Lol
@@Gigiroo u can walk sir nd wht medicine u take plz
I get generic rituximab for what I assume is rrms. I haven't been officially told my type, but I seem to have relapsing events. My infusion goes very similarly to yours, with the reactions and slight fever at end. I've only had one so far though! Loved your snack box, I gotta do that for my next one.
hey laura! how has rituximab been for you overall? any side effects post-infusion? i wonder why we both end our infusions with fevers :( yes, the snack box came in clutch! hands-free eats!
@@_alexandraraye ah I just find that I have delayed bruising since starting the rituximab, like I will smash my toes into something and they bruise a week later, weird. Overall I feel so much better than I did without medication, that I can't even really identify any major side effects.
Also I tried that vegan jerky you had brought but didn't eat and it is sooo good. I only found the regular flavor, will have to track down the hot and spicy now. Yum!
oh, that's so interesting! bodies are cool and weird! and yessss, this jerky is so good!! lemme know how you like the spicy one!
❤❤
How ganna be better
hi there! MS is incurable but treatment is intended to prevent future deterioration. hopefully i answered what you intended!