DECEMBER LIVE STREAM - Ask Me Anything Multiple Sclerosis

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  • Опубліковано 27 жов 2024

КОМЕНТАРІ • 68

  • @bertagonzalez488
    @bertagonzalez488 10 місяців тому +9

    I wish you would live here near inHouston Texas. I won't be diagnosed until February 1, 2024. In November 2023 I had my first Trigeminal Neuralgia experience with a a horrible electrical shock in the right side of the nostril. Please keep me informed if there's any good doctors that in Houston Texas. Thank you Dr for all your educational videos they're helping me a lot to understand about MS.

  • @runla11
    @runla11 10 місяців тому +4

    Live in Norway, got MS diagnose this in august this year. got a lot of useful information from your videos😊

  • @dianethompson7449
    @dianethompson7449 10 місяців тому +1

    I've been doing "Word of the Year" for several years. It started out with tenacity. Other words have been: responsibility (what is your RESPONSE to your ABILITY), journey, grow, connect, and create. I then search for quotes that include the word of the year. I also write the word on a rock to keep on my desk or bed stand. I enjoy seeing my growing collection of rocks. I have less than 24 hours to think of my new word.

  • @lagrady6933
    @lagrady6933 10 місяців тому +2

    I would like to say thank you thank you thank you. I’m a homebound ms person, doing my best to stay strong

  • @rachaelewing-warriner5656
    @rachaelewing-warriner5656 9 місяців тому

    😊 7:17 7:22 7:23 First timer, Rachael, from Lake Charles, Louisiana

  • @ChooseHope
    @ChooseHope 10 місяців тому +2

    OMG PBA! I had an episode of this in church at east 25 yrs ago. I was visiting family and the minute I walked into church I was trying to choke back tears. It got to where I couldn’t hold it back anymore and I sat in church balling my eyes out for no reason. I was mortified. The last few years I struggle with a weird symptom of choking back tears at the oddest times. If someone so much as holds the door for me at the store, I have to choke out a thank you cause it brings tears to my eyes. It happens constantly. Would that still be considered PBA?

  • @jomamapalmer9223
    @jomamapalmer9223 10 місяців тому +2

    Water challenge design is sweet!!

  • @rachaelewing-warriner5656
    @rachaelewing-warriner5656 9 місяців тому

    2:57 Hi from Lake
    Charles, Louisiana

  • @Nannasrevival
    @Nannasrevival 10 місяців тому +1

    I’m pretty new to your channel but I’m fully subscribed now. I missed this live and I’m just watching videos as I get to them, not necessarily in order. I’m 66 and I’m from Brisbane, Australia. I’ve not been diagnosed with MS even though I have extra lesions and demyelination for my age, shown in an MRI of my brain 2 months ago. I had 2 episodes lasting around 30 mins each time where I could still talk but couldn’t actually think of what I wanted to say. It was so strange. This happened once each month over 2 months so I was sent for the MRI to rule out more serious issues. I had the usual age related white areas but my GP felt that although I could possibly have MS it was doubtful.. The MRI specialist recommended another one in 6 months. I have not been with this GP for longer than 6 months as my former GP left my former practice and moved on without telling me. After watching some of your videos and also reading lots of info, I’m wondering if I may have MS. I have had lots of strange symptoms over the years like a dropped foot for a while, aura migraines not always with pain, tremors of the legs and hands now (age related?) vice like feeling in my leg and other times when I felt like my skin was too tight on my legs. Unexplained stabbing pain in my toes at times, mostly r/h side. Eyes are blurry on and off and dry but apart from glasses my eyesight is ok even though I’m constantly feeling like there’s a blotch on my glasses on my right eye but nothing is there, then a few mins later it’s feels the same. I had an eye test 2 weeks ago. I’ve had balance problems over the years when one moment I can be standing and the next on my knees mostly when I was younger in my 30’s and 40’s. I waited almost 2 years in my early 50’s to see a Neurologist at a public hospital as I’d been experiencing strange spasms that felt and feel like they travel through all the muscles in my abdomen. He spent no more than 10 mins talking to me, no physical examination, he just said he had no idea why I had been referred to him by the head dr of specialists, as they couldn’t figure out why I was getting these spasms. He was annoyed and sent me away. I’ve never stopped getting these spasms in my abdomen, sometimes I might have a break for a month or two, other times weekly and sometimes mutiple times per day. This usually is worse when I’ve been driven somewhere like the shops or drs after I’ve been out even getting into the car the spasms start. They are more strong and painful now and can now even move down to my ovaries and feel like someone is twisting them. I can also get spasms in my hands, I used to get Charlie horse cramps in my thighs in my 50’s but they are very rare now that I no longer work. I have osteoarthritis in my right hip and both knees as well as Lipedema. I’m also obese but I have lost 37 kg and still working on losing a lot more. I get a lot of itching again unexplained by any drs and put down to my diabetes type 2 which I’ve had since I was 40. It’s the spasms in my abdomen that disrupt my life the most now and the tremors are getting worse. My GP put me on 1/2 tablet of atenol but it made me wheezy and didn’t stop the tremors. I take Targin 30/15 and endone 5mg daily for pain at night and paracetamol during the day when needed. I try to ride thru the pain. I’ve had a few falls where I just toppled over and an ambulance had to come to lift me off the floor. I’m sorry this is so long but should I be asking now to have more tests done like a spinal MRI as I have quite severe lower back pain which has worsened in the past 6 weeks. Or, should I wait the 6 months for another MRI to see if I have any more lesions? Do I need to ask for more tests or just wait as I said my GP doubts if I even have MS. Thank you for reading this long post.

  • @omarhayesdrums
    @omarhayesdrums 10 місяців тому +1

    Hi Aaron.
    I'm newly diagnosed.
    I'm reading Prof. George Jelinek and learning from you. Who else is worth learning about MS from? Thank you
    Omar Hayes(UK 🇬🇧)

  • @rachaelewing-warriner5656
    @rachaelewing-warriner5656 9 місяців тому

    16:18 Louisiana - Is there any way that MS could could cause or facilitate an episode of rhabdomyalysis? I keep getting this with no other causation.

  • @aaronlucas1756
    @aaronlucas1756 10 місяців тому

    I want my word for 2024 to be prosper!

  • @pamkirby4390
    @pamkirby4390 10 місяців тому

    Happy New Year to you and yours! I’m from Alabama and enjoy your videos so much. 🙏🤩

  • @cherylvl1036
    @cherylvl1036 10 місяців тому +1

    Thanks for another awesome livestream Dr. Boster! I’m excited for your interview with Dr. Gretchen Hawley. I asked a question in the livestream about neuroplasticity and if it’s possible with spinal cord lesions so I’m hoping she/you will have addressed this in the video.

  • @kaitlyncox6117
    @kaitlyncox6117 10 місяців тому +1

    Happy New Years Eve Dr. Boster! Can you tell me if the CRP blood test is worth checking regularly to check inflammatory levels due to having MS? Thank you!

  • @laurenpierson3445
    @laurenpierson3445 9 місяців тому

    Hi from Orlando FL

  • @studiohost
    @studiohost 10 місяців тому +2

    Hey, I looked on your website but could not find the list of states that you are licensed to practice virtually in. How about Illinois?

  • @roberture5903
    @roberture5903 10 місяців тому

    Hello doctor Aaron, so sorry Happy New Year to you and your family I missed your live stream yesterday because I had a friend come in from out of town and totally forgot about it

  • @anneparisi1828
    @anneparisi1828 10 місяців тому

    Just finished watching the livestream from this morning- Warren Ohio where I’m at. Great video as always, I found Dr Hawley last year, she’s fantastic. Love her book and the posts she makes. Wishing you a happy new year🎉 🎆 Dr Boster

  • @majdacehic5738
    @majdacehic5738 10 місяців тому +2

    Hello Dr. Boster and everyone checking/joining! Does stem cell therapy for MS is something that could help?

    • @jerodewert8334
      @jerodewert8334 10 місяців тому +2

      It is the single most effective therapy but it must be done correctly and it is very hard to get the correct therapy in the US.
      It seems Italy is a good option.

  • @Nomogizmo111200
    @Nomogizmo111200 10 місяців тому

    I can’t believe I missed this!!! Not sure you will see this Dr.Boster… but I have been having severe Bilateral shoulder pain with tightness of both triceps and extreme fatigue for 6 months after post hernia wound infection but no doctors have been able find out the cause of my symptoms my Neurology consult is months away my question is have you ever heard anyone that has had bilateral shoulder pain caused by MS?

  • @josephvered3991
    @josephvered3991 10 місяців тому +1

    Hi from Israel happy new year dear doctor thanks for your interesting video

  • @50Maxscott
    @50Maxscott 10 місяців тому +2

    I am a physio diagnosed with RRMS in 2011. Started on DMT then & on Ocrevus in 2019. Despite this still getting worse bilateral degeneration of optic nerves & right sided weakness. What else can I do, I follow OMS program for 3 years. Any suggestions ??? STILL WORKING part time.

  • @SDAAJ
    @SDAAJ 10 місяців тому +2

    Hi Could you tell me any information on CIONIC leg brace/ Sleeve .

  • @gmurray735
    @gmurray735 10 місяців тому

    You can’t get license in Delaware? I just pre registered before I saw this. I had an appointment today so I missed the live. Ugh!!

  • @talentec5149
    @talentec5149 8 місяців тому

    1:00:27 1:00:32 1:00:34

  • @Nannasrevival
    @Nannasrevival 10 місяців тому +1

    Hi Dr Boster, one other thing I also have excess fatigue. Not just normal, I can sleep for 15 hrs and still be tired. I am mostly sedentary due to the osteoarthritis and no energy at all.

  • @biljanastern
    @biljanastern 2 місяці тому

    ❤ Resilience!

  • @nataliemaxted5333
    @nataliemaxted5333 10 місяців тому

    Thanks Dr B from uk. My word of the year is going to be "fun". Happy New year

  • @rachaelewing-warriner5656
    @rachaelewing-warriner5656 9 місяців тому

    13:21 Getting ready for Mardi Gras down here in the Deep South, Lake Charles 🎉

  • @dipakchavan7897
    @dipakchavan7897 10 місяців тому +1

    I have paramedical background.I am sure I have MS symptoms. Had to leave job.Sufferring with M.S.since last 20 years.Misdiagnosis by doctors

  • @ChooseHope
    @ChooseHope 10 місяців тому

    Missed your live stream and I was over listening to one your medical marijuana videos! Dang it!

  • @studiohost
    @studiohost 10 місяців тому +1

    Can you comment on the new “multiple sclerosis vaccine”

  • @sandraredmond1212
    @sandraredmond1212 10 місяців тому +1

    PERSEVERANCE

  • @bethcook2832
    @bethcook2832 9 місяців тому

    I have had ms for 36 years and I’m wondering if there are any hopes for improving my lasting symptoms. I have numbness on my right side of my body. .5 of my body felt numbness and optic neuritis with my 1st symptoms in 1987. I still have reduced sensations. It isn’t fun. Also please speak about neurologic troubles deeloping after ms is found. I have epilepsy also!! I’m from Columbus also😁FYI.

  • @angieconnley1217
    @angieconnley1217 10 місяців тому

    Hi there from Kansas City. Waiting on dz and scared shitless.

  • @merewynhodshon9685
    @merewynhodshon9685 10 місяців тому

    Bonjour DrB Merewyn from Melbourne here. Just woken up been sleeping lots. Have currently been having a weird but noticeable relapse for the first time in 20 years of MS and they did nothing in ER for me xmas eve. Is this a thing? Ive got SPMS now but I was refused steroids, etc. There was nothing to be done in Melbourne (st vincents) is this right with this disease? M

  • @JesusisLord-oj9jm
    @JesusisLord-oj9jm 10 місяців тому

    Montgomery, Texas

  • @sharrariley9981
    @sharrariley9981 10 місяців тому

    Hi from Topeka Kansas ❤

  • @susanfabian6234
    @susanfabian6234 10 місяців тому

    Dr Boster, I have tried to regulate meds with my neurologist but can’t get the right results. By the time the meds kick in it’s ten at night and that’s when I can function better. But it doesn’t help me during the day. Tried doing reverse taking of meds, doesn’t work. Any suggestions?

  • @matthiaskuhn9359
    @matthiaskuhn9359 10 місяців тому +1

    Matt from Stuttgart/Germany

    • @matthiaskuhn9359
      @matthiaskuhn9359 10 місяців тому +1

      I am enjoying your informativ Videos on a regular basis

  • @stupud818
    @stupud818 10 місяців тому +1

    What would you suggest as a way to increase your rest time? I get 8 hrs hardcore deep sleep a night but am still always tired

  • @martinschultz2631
    @martinschultz2631 10 місяців тому

    What is the risk of developing cancer in CD20 drugs?

  • @dipakchavan7897
    @dipakchavan7897 10 місяців тому +1

    I am suffering from insomnia since 20 years,is this related to MS.

    • @komoonkh
      @komoonkh 10 місяців тому

      Try CBN drops, if you can get it in your country. It is magic for sleep.

  • @mattysheets
    @mattysheets 10 місяців тому

    Hola from Greensboro NC

  • @Krise343
    @Krise343 10 місяців тому

    Watching now, 12:48 my time, from St Pete Fl. Very grateful to have found you. After being on Ocrevus one year, just prior to third dose, I experienced leg spasticity for the first time. It was a Saturday so I spoke to my neurologist’s on call associate. She advised me to not worry about going to ER for steroids as it wouldn’t effect my long term outcome. WHAT?! In Sept I was found to have new, inactive, lesions on my cervical and thoracic spine MRIs. Yes, this was just prior to leg spasticity… my questions are: should I get a new, more aggressive neurologist, should I see if I have one more breakthrough of symptoms to change to another therapy and would you advise a lateral move or stronger med?
    ✨🙏💓

    • @komoonkh
      @komoonkh 10 місяців тому +1

      Ocrevus is actually very strong. Maybe your MS just needs different type of medicine. But I wont act like a smart*ss, because I am no doctor.

  • @ShadowbladeBook
    @ShadowbladeBook 10 місяців тому

    Is it possible to have MS with brain lesions but without spinal lesions? I'm struggling to get a diagnosis.

  • @majdacehic5738
    @majdacehic5738 10 місяців тому

    Majda from Princeton Texas

  • @JesusisLord-oj9jm
    @JesusisLord-oj9jm 10 місяців тому +1

    Client with Primary Progressive MS

  • @Georgia_transplant
    @Georgia_transplant 9 місяців тому

    I realize this was aired a few days ago, however wondering what your thoughts on genetic tests for PML risk? Is it a valid and/or valuable?
    Newly diagnosed and cannot say how much I appreciate your videos!!!

  • @lisaMN858
    @lisaMN858 10 місяців тому +1

    Caring for ME

  • @50Maxscott
    @50Maxscott 10 місяців тому

    Sustainable

  • @susanhoward2906
    @susanhoward2906 10 місяців тому

    Can you diagnose MS WITHOUT an MRI

  • @sheralynnicholson7639
    @sheralynnicholson7639 10 місяців тому

    I am from Ontario Canada

    • @sheralynnicholson7639
      @sheralynnicholson7639 10 місяців тому

      I was just diagnosed with MS last year. With no family history I did have mono as a child. Do you believe in the link of mono and MS.

  • @dipakchavan7897
    @dipakchavan7897 10 місяців тому

    I am from India

  • @rachaelewing-warriner5656
    @rachaelewing-warriner5656 9 місяців тому

    😊😊🎉🎉

  • @michaelacurran-cox528
    @michaelacurran-cox528 9 місяців тому

    Hi im a 58 yr old female from UK 🇬🇧 . i am 3 years post stage 3 breast cancer treatment consisting of chemotherapy surgery and extensive radiotherapy a result now post menopausal. Im taking Tamoxifen. I have been recently diagnosed with MS (left optic neuritis first diagnosed 18 yrs ago) since the cancer treatment i have developed 2 more small lesions. Totalling 3 brain lesions plus recurrent optic neuritis. Whole spine clear. Neurologist says i have a non progressive MS so dont need follow up but can contact the specialist nurses if i get symptoms in the future. Would you agree im on the right pathway.

  • @danielhernandez-fo3mj
    @danielhernandez-fo3mj 10 місяців тому

    And my word of year is ..... stability lol even within the symptoms i can find stublity ... with emotions with houseing almsot anny thing can need to keep some form of stubility ... so thats my word of the year

  • @sharrariley9981
    @sharrariley9981 10 місяців тому

    Howdy from Topeka Kansas