UPDATED MYELOMA STORY (surviving and thriving)

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  • Опубліковано 10 лис 2024

КОМЕНТАРІ • 29

  • @Mystified1978
    @Mystified1978  Рік тому +5

    One thing I didn’t mention is one of the tests I received. I had a bone scan and they did discover lyctic lesions which are spots on the bones where the cancer ate through. I did have that in the beginning. I also receive a zometa treatment for my bones…..I believe I mention that in my treatment video linked in the description.

    • @yvetteanorris9748
      @yvetteanorris9748 4 місяці тому

      Hi I’m glad you’re still in remission. I came out in remission in 2022 and now may due car-t cell infusion

  • @ElephantsRock19
    @ElephantsRock19 Рік тому +4

    You are such an inspiration and a blessing, thank you so much for sharing your story!
    My oldest brother was diagnosed w/MM in 2001 @ 47, he went Home to Jesus in 2013. He was such an inspiration and blessing as well! I was recently diagnosed with MGUS, and the inspiration I get/got from people like y'all, and most importantly, God, will sustain me whatever may come!
    May God bless you richly, my prayers sent up for your continued remission!
    🕊️🙏❤️🕯️

    • @Mystified1978
      @Mystified1978  Рік тому +1

      Oh my gosh I am so sorry for your loss and recent diagnosis. Praying it never develops into myeloma. May God richly bless you as well and prayers of healing and strength to you and your family!! 🥰🥰🥰

    • @ElephantsRock19
      @ElephantsRock19 Рік тому

      ​@@Mystified1978Just now seeing your lovely reply for some reason after 2 months (UA-cam, right?😊) but thank you so much, my continued prayers and well wishes for you! 🕊️🙏❤️🕯️

  • @robinsonridge3627
    @robinsonridge3627 Рік тому +1

    Thank you SO much for sharing your story! I was diagnosed with mgus last November, at age 41. It is so hard to find a female in her 40s living this. I’m so grateful you are doing these videos.

  • @dianeanddaniathome2135
    @dianeanddaniathome2135 Рік тому +2

    Thank you for sharing your story. My sister was diagnosed and it was a such a shock and has been so scary. Thanks for bringing Hope.

  • @FoothillGem
    @FoothillGem 6 місяців тому +1

    I love, love, love your heart for God and for sharing your story.
    On 1/20/24 my 39 year old daughter had a ruptured brain aneurysm and survived. Praise God! One month later, while still recovering in the hospital,she was diagnosed with MM and had several fractures in her low back caused by the myeloma. Two days later she was sent home and told the fractures just need time to heal as she begins treatment for the myeloma.
    She is now on her second round of VRD treatments, turned 40, and has a one yr. old son that, due to medical needs, she is apart from four days each week.
    I can’t wait to share your story with her. It will give her hope, as it has given me.
    My condolences regarding your niece.
    Thank you and God bless you.🙏👼

  • @michelleseguin2930
    @michelleseguin2930 9 місяців тому +1

    I was recently diagnosed with MM IGg Lambda. I am doing chemo right now and just turned 60. My doctor hasn’t really mentioned stem cell so just taking one day at a time. Prayers for you. 🙏🏻💕

  • @jesuslovesher3632
    @jesuslovesher3632 9 місяців тому +2

    Thank you for giving glory to God

  • @krissythewhimsy
    @krissythewhimsy 7 місяців тому +1

    Thanks for sharing your story. I was diagnosed in 2020 at 37 years old. High risk. Glad I came across your channel. New sub here

  • @pjackson7186
    @pjackson7186 Рік тому +3

    Thank you for the update. I'm glad to know that you are in better health/remission. I was waiting for you to respond to my email. This is the third week of my treatment for Multiple Myeloma (no side effects so far).

    • @Mystified1978
      @Mystified1978  Рік тому +1

      I am so sorry. I know I have missed so many. 😢😢 I’m sorry you are dealing with this to. What med are you on? Are you doing the dex too? I did dexamethasone for a few months but not anymore. Usually on maintenance you don’t use it.

  • @Samantha-wu5vn
    @Samantha-wu5vn Рік тому

    You are helping so many younger people to at least watch for any signs and not ignore pain or symptoms. Cancer is on the rise in younger people and I sure believe it's because of processed foods we eat and the environment. God bless you and your journey. ❤️ 🙏

  • @mullinsros
    @mullinsros Рік тому +2

    Thank you so much for taking the time to share your experience and thoughts. Your attitude is very inspiring. Hope things continue to go well for you.

  • @joanhenschel3511
    @joanhenschel3511 Рік тому +1

    Hi, Sweetie - you are a beacon of hope to me! I have acute osteoarthritis, pain is unbearable at times. I needed to see your video right now. The Lord Yeshua bless and heal you xxxx

    • @Mystified1978
      @Mystified1978  Рік тому

      Thank you so much for that!!! I’m sorry you’re dealing with such a painful disease. May the Lord heal and bless you as well!! It’s so amazing having encouragement and support and I appreciate you! 🥰🥰🥰🥰

  • @LizB757
    @LizB757 Рік тому +1

    Thank you for sharing . God is so good!

  • @simil252
    @simil252 11 місяців тому +2

    I’ve been diagnosed with MM IgE lambda and going to stem cells transplant next year. I’m 50 and I’m afraid thinking of how my life will develop while aging…are you not scared about Revlimid bringing so much side effects? What do you think about your future? (Over 60 and on)

  • @doyinoyenuga7279
    @doyinoyenuga7279 Рік тому +1

    God bless you and I pray that He will perfect your healing and give you peace all around.

  • @marythomas8793
    @marythomas8793 Рік тому +1

    Great video! Love you!😘🥰🥹

    • @Mystified1978
      @Mystified1978  Рік тому

      Thank you mama. I love you and wouldn’t be here without you!

  • @curvykie89
    @curvykie89 Рік тому

    Thanks for sharing sis praying everything goes well

    • @Mystified1978
      @Mystified1978  Рік тому

      Thank you sweet friend! 😍❤️❤️❤️

  • @bensare
    @bensare 5 місяців тому

    God bless you !

  • @venusserafico1161
    @venusserafico1161 4 місяці тому

    Did your ankle that has tumor has a lump on it?

  • @susiebaez
    @susiebaez 4 місяці тому

    How are you doing haven't heard from you in a long time