Myeloma & Me - Lynn's Story - Dealing with fatigue
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- Опубліковано 15 жов 2024
- Fatigue is a common challenge of living with myeloma and Lynn describes it as “like wading through mud” and having a “porridge/marshmallow head”. Lynn also discusses receiving her diagnosis of myeloma and how she focuses on making the most of every single day.
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Thank you so much! People really don’t understand, even when they want to and care for you. It is difficult. I even force myself over my exhaustion to comply and do things when I can hardly move a hand. This month I’m thinking more of myself. I have rested more tanned before. The Lord is with me and He is the best, I’ll be praying for you. God bless you!
I can't tell you what relief seeing this gave me .... thanks so much
I was dx w/ this in June it is cancer of the bone marrow and I have it in my kidneys as well. I have a terminal autoimmune: diffuse systemic scleroderma as well. This and myeloma bring on extreme fatigue. I explain it as it is at the cellular level. Every cell in our body screams for rest and you simply just have to do it. There is no treatment that will stop the myeloma we can only treat symptoms. I have declined chemo as this will only create havoc w/ the scleroderma and I do not want to be sick from drugs on top of what I am dealing with.
Hi Laura. How are you doing today? Are you still declining therapy?
I am a 75 year old Vietnam Veteran who drank the poison water at Camp 𝖫𝖾𝖩𝖾𝗎𝗇𝖾. I am positive for M Protein in both my blood and urine I feel tremendous lethargic; constants current of electricity running through my hands and arms and what I call Morning Dementia whereby I start a task and I can’t decide what come next. I am treating myself with nutrients that somehow sends ketones in my brain cells to energize them. Believe me it works. Also I take Quercetin 500 mg a day as I read research paper from China that it can help to kill Myeloma cells. If you wish to know more. Let me know. i am not selling either natural substance; just telling you it works for me. More blood test and bone biopsy for me to take.
Keep your hope up and never let that go🙏❤️
Praying for healing please my sister has this
Thank you for sharing
I wish you well..thank you for your personal story. I was just diagnosed with Myeloma....very, very, beginning..and I really didn’t have any idea what it was. I have other health problems that cause immense fatigue so I completely understand you. It is frustrating that others look at us and have no idea of the depth of fatigue we feel and how debilitating it is. I am curious how long it took for your body to show symptoms of Myeloma? Did you have a bone marrow test? Thank you and Happy New Year from California ..originally London.....
You have more energy than me!
Making urself do something is exactly what I just do!
I have a question isn’t the chemotherapy and the pain killers that make us feel in such a ways, because I have diminished the pain killers, except once a day in the morning like since yesterday about 10:00 I took oxicodone and other one I forgot the name, plus the other medicines to prevén infection, I didn’t have so much nausea during my chemotherapy stage, doctor wanted me to take revlimid” and I refused to put more stuff in my poor already troubled stomach, such a diaphragm pain etc nausea horrible constipations because the pain killers, now they yesterday just the put only I think an injection called cylofax or something like, except the regular chemotherapy, to day my legs are not that swollen and I yes feel tired because the anemia, but I think and I hope my diet of my own is helping, the foods I am eating perhaps are the key to the problem perhaps is not going to save me from myeloma but my bowel movement improved immensely, I don’t have so much pain perhaps because I do some exercises, stretching watch my weight etc, drink a lot of natural juices, kale salad, parsley cilantro spear mint, a bit turmeric in my juice, apple, pear, I squeezed al together no much, because is strong may give you nausea is just a small glass, about one large or two medium carrot, beans in the afternoon and salmon fish is very good I eat chicken to varying the diet, and why not I eat quesadilla once a day, with vegetarian sausage nor very nutritious but I am going to die any way, so why not to have something satisfying to stimulate the appetite no coff at all a lot of a water and papaya eithe juice, Concord grape juice etc... I can tell you more that I forgot now.., I have to go now have a smooth day breath, I am in the myeloma too.... and I have intuition for this doctors will not approve but I believe in my faith, and I accept my faith... take care
Thank you for sharing God bless you 🙏🏾
Is there a link to the article she was talking about that explains what myeloma does to your head?
Searching for what blood lab test results would be seen in a person with myeloma?
Kappa light chain serum is one
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Exactly what I was thinking.