Spinal Meningeal Cysts & Tarlov Cysts

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  • Опубліковано 2 лют 2025

КОМЕНТАРІ • 83

  • @richardjones8539
    @richardjones8539 2 місяці тому +3

    Dr. Frank Feigenbaum is awesome! I am a former patient of his. He saved my life. I was in such excruitating pain after a car accident. I was unable to sit, walk and barely slept. I was told by another neurologist just to live with it. I did extensive research and located this gifted surgeon. God Bless Dr. Geigenbaum and his staff. Marianne

    • @Lrabshire
      @Lrabshire Місяць тому

      Dear Marianne,
      Thank you for leaving us a positive review and sharing your feedback with us and the community. We are pleased to hear you had a positive experience!
      Take care,
      Laura
      Management

  • @espencedunn
    @espencedunn Рік тому +18

    I have been suffering for the last 5 years. I was finally able to get an MRI in which they provided evidence of the Tarlov cyst. My GP dismissed it and said theres no way that is causing you symptoms and there is nothing to do. I pushed and he said he gave a referal to a neurosurgen but he was really dismissive and told me my pain was the buldging disks and tried to push more meds. I'm in Ontario Canada, and I'm struggling to find someone who will listen to me and my pain.

    • @gailmcelhinney1907
      @gailmcelhinney1907 Рік тому +7

      I went through the same thing for 3 years. I finally found Dr. F's website and was shocked to see how many people go through this nonsense. I live in Colorado but called Dr.F and got the ball rolling. I flew to Dallas, had my appointment, which was incredible, flew home the same day, and waited to have my surgery a few months later. I have been pain-free and have my life back. My advice is to give his office a call.

    • @DanielleRadicanin
      @DanielleRadicanin 9 місяців тому +1

      I also live in Canada. The neurologist I saw didn't specialize in Tarlov's so dismissed me with no follow up with someone who may have knowledge.

    • @beckylutz2280
      @beckylutz2280 2 місяці тому

      I'm in the same exact boat

    • @Elaine-w2s
      @Elaine-w2s 17 днів тому

      @@gailmcelhinney1907do you have bulging discs or other issues in the spine?
      how big was your cyst?
      thanks

    • @gailmcelhinney1907
      @gailmcelhinney1907 17 днів тому +1

      I had no buldging discs. The name Dr. F. gave to my cyst was an ectactic spinal menengial sac cyst. It filled my sacrum, pinching the nerves to many lower parts off my body​. The sac was so full of fluid that it actually made my sacrum translucent. The bone has had to repair . I have nothing bad to report about my recovery. My life is normal, with no pain. For anyone in pain and being disregarded by your doctors, you need to get help immediately. I could have died if I would have waited much longer. The sac membrane was so thin, it could have burst. Dr. F has devoted his career to studying these types of cysts since so little is known about them. At the time I saw him, there were no Dr's. that wanted to work under him to learn because it was so risky. I haven't kept up with this site or what is going on with Dr. F. I just know if it wasn't for him I most likely wouldn't be here and living a pain free life.

  • @girlnextdoor7012
    @girlnextdoor7012 Рік тому +4

    I have “numerous” tarlov cysts. I am seeing my first neurosurgeon in a couple weeks, I wish I lived closer to where I could see this doctor I'm in so much pain😢

    • @amandagleaves-u5r
      @amandagleaves-u5r Рік тому +2

      how did it go?

    • @idreamofcali
      @idreamofcali Місяць тому

      Just curious- because I have numerous as well- does your pain/tingling ever go above waist level? When my PN is bad it’s all over. Unsure if this is related to the cysts though. Seeing a neurosurgeon for second opinion.

    • @Elaine-w2s
      @Elaine-w2s 17 днів тому

      @@idreamofcali did you get the second opinion?

  • @kenderbree1963
    @kenderbree1963 Рік тому +8

    What is the prevalence of CSF Leaks stemming from Tarlov Cysts? How many patients have Connective tissue diseases/conditions, such as Ehlers-danlos Syndromes. How do you address those instances during surgery & is there post-operative follow-ups with surgical patients to ensure that symptoms of such are being followed?

  • @riffnastyhubanks5714
    @riffnastyhubanks5714 Місяць тому

    Absolute mad science but I trust it and I know someone in need.

  • @GooffyyDude
    @GooffyyDude Рік тому +7

    I have perineural cyst S2 - S4 the size of an orange, 8cm long ond about 3 cm Wide and it has eroded bones away.. constant pain in my head, back and legs, erektion problem also.. been to about 20 doctors here in sweden where i live and they all been saying that it is to small to ever cause pain and just send me home with pain killers.. but ive finaly met a doc thats gonna help me with this and I hope i get surgery soon

    • @FlipMacz
      @FlipMacz Рік тому +2

      Any updates u can provide on your situation?

    • @GooffyyDude
      @GooffyyDude Рік тому +5

      ​​@@FlipMaczhello ! After i wrote this i got numb and paralysed from waist and down. So I ended up at the emergnecy center then send of to Uppsala here in sweden.
      I got surgery and now everything is even better! Years of pain is gone and im no longer paralysed :)

    • @GooffyyDude
      @GooffyyDude Рік тому +1

      ​@@moslypighi there!
      I had surgery and my doctor did not use glue, he used fat to surround the nervs and now im even better then before :)

    • @FlipMacz
      @FlipMacz Рік тому +1

      @@GooffyyDude the Tar lov Cysts had paralyzed you? Wow.

    • @GooffyyDude
      @GooffyyDude Рік тому +2

      ​@@FlipMaczyeah somehow it became bigger and the doctors didnt understand either

  • @lifesmirage1343
    @lifesmirage1343 Рік тому +8

    I have a tarlov cyst on s2 and s3 and the constant pain, walking, standing, sitting sometimes is more than I can bare. This video is 2 yrs old. Is there any new information. I live in Arizona. And the only treatment is physical therapy which causes me more pain. I dont think any of the pt really understand that this is different from herniated disc which i also have and bulging disc pushing on my nerve root which i think is also the s2 and s3 nerves. I cant seem to find any relief no matter what i do. If there is anything someone can suggest i try. I would be so grateful to try anything that may give me some relief.

    • @staciewiggans1768
      @staciewiggans1768 Рік тому +1

      You sound like me. 😢
      All the doctors wanted to do was injections. Expensive and not really helpful more than a day or two. I was thrown out of st. Luke's in kc when I lost bowel & bladder control. I begged for help, to no avail. It was traumatic & I already have trauma from medical issues. I just suffer until it bursts.😢

    • @amykrueger6600
      @amykrueger6600 Рік тому

      I was fortunate to have Dr. Feigenbaum do my tarlov cyst surgery last September 2022, and I can finally say that I'm FINALLY FREE OF PAIN! I was literally bedridden from the pain that caused by 6 tarlov Cysts in my sacral area! I was desperate for any kind of relief, but nothing worked! I finally found Dr. Feigenbaum when my husband said into his cellphone "doctors who treat tarlov cysts" and up came Dr Feigenbaum's video!" The next day I called his office and within weeks I was in his office for a consultation. He said I was definitely a candidate for surgery, and 4 weeks later we flew back to Dallas from Milwaukee WI for surgery! This surgery was life changing!! I can finally say that I am out of that horrible pain, and able to enjoy life, my new grandson and a lot more things!! Thank you Dr Feigenbaum for devoting your life to this horrible disease! I am forever in your debt!!

    • @JazzySerendipity
      @JazzySerendipity 11 місяців тому

      I was diagnosed by a PT to have chronic Equina Syndrome. I did not start therapy yet- that was at initial intake. I am beginning PT soon.

    • @Elaine-w2s
      @Elaine-w2s 17 днів тому

      @@staciewiggans1768how are you?

    • @gailmcelhinney1907
      @gailmcelhinney1907 17 днів тому +1

      I went through exactly the same thing for 3 years and several different specialists. My advice? Quit wasting time, and call Dr. F's office and set up an appointment. I live in Colorado and drove to Denver, hopped on a plane, flew to Dallas, took a cab to his office for my appointment, then flew back to Denver later that day. Dr. F. is the ONLY surgeon in the world with the experience, and the 'stones" to do these surgeries. Don't waste your time with anyone else! I'm serious!!

  • @triksy02
    @triksy02 11 місяців тому +1

    After MPT today in my documents is written tarlov cyst s2 16mm....

    • @FlipMacz
      @FlipMacz 9 місяців тому

      So how's it going for you? My Tarlov is 10mm.

  • @joewatson82722
    @joewatson82722 Рік тому +2

    How do I contact you? I am from Ontario, Canada

    • @FlipMacz
      @FlipMacz 9 місяців тому

      You have to Google his name and get his address and email to contact. Plus you have to have a referral.

  • @paulreichelt5352
    @paulreichelt5352 Рік тому +3

    Hello dear Doctor Frank Feigenbaum, I am a family father and husband of Regina Reichel and live in Germany. My wife has Tarlov cyst. I need your help. unfortunately I can only speak German and Russian. How can I communicate with you? I need your help as soon as possible. I'm waiting for your reply. Kind regards, Pavel Reichel

    • @FlipMacz
      @FlipMacz 9 місяців тому

      You have to write to his clinic or email. And you have to have a referral. Are you aware of that?

    • @Elaine-w2s
      @Elaine-w2s 17 днів тому

      did you get hold of them?

  • @thilinichinthika2343
    @thilinichinthika2343 Рік тому +1

    My mother has a tarlov cyst at s2 s3 level. Now her symptoms are worst. How can I contact you?

  • @robertrussell5565
    @robertrussell5565 Рік тому +2

    If I had the money to visit his clinic, I Wwould be there and opt for surgury if he suggested I happen to live near Toronto Canada and currently making every effort to resolve this,.D V

    • @harleygates9474
      @harleygates9474 Рік тому +1

      Where is your Cyst located? Currently been dealing with a Tarlov cyst located in the cervical at the C7 nerve root going on 7 years. I met and visited with Dr Feigenbaum back in 2017 and had my surgery scheduled before covid messed everything up.

    • @ilynn9794
      @ilynn9794 Рік тому +1

      @@harleygates9474 i got C5 C6 and C7! Twins! I’d Fist bump but too much of that radiating arm pain haha! What did he say about the cyst and treatment and risks if you’re willing to share?

    • @joewatson82722
      @joewatson82722 Рік тому

      Hey I’m in Toronto as well, u want to connect?

  • @dawnbaldini4464
    @dawnbaldini4464 2 роки тому +3

    I have Tarlov cyst in my sacral area . Were I live they will not touch me with a ten feet pole . My question is how do I get my medical insurance Anthem Blue cross pathways gold plan for individuals in my area to be able to come see you for help ?

    • @monav1423
      @monav1423 Рік тому

      I’m not sure about your insurance question but if you call his office , they are very helpful and maybe can help you with that. I just had a phone visit with Dr Feigenbaum but as of right now, I’m not sure of the total cost of his phone visit. I don’t live anywhere near Dallas but I’m trying to figure out all these expenses because I’m considering having him do this surgery. It’s beyond me how no doctors in my area have a clue about helping . I’ve had these for years and up until now, the Drs have dismissed them as causing problems. Sorry this is long but I hope it helped some. Please consider calling his office, they are helpful .

    • @Elaine-w2s
      @Elaine-w2s 17 днів тому

      @@monav1423how are you? did you have surgery ?

  • @aimjbtnh3
    @aimjbtnh3 8 місяців тому

    Having several Tarlov cysts is essentially the same as having cauda Equina syndrome correct? I've been having CES symptoms for a year and an MRI just showed that I have several Tarlov cysts at the s2-s3 level

  • @intuitionalart
    @intuitionalart 2 місяці тому

    Do you also come to the Netherlands or is there someone in The Netherlands who is familiar with your treatment ?

    • @Lrabshire
      @Lrabshire 2 місяці тому +2

      Hello,
      Internationally, we only go to AIMIS in Cyprus several times a year. The only physicians that we are aware of that treat Tarlov cysts are listed on the Tarlov Cyst Disease Foundation's website.
      Thank you,
      Laura
      Management

    • @intuitionalart
      @intuitionalart 2 місяці тому

      @@Lrabshirethank you for the response

  • @Dee47881
    @Dee47881 11 місяців тому +1

    When I was in my mother’s womb they told her I had spina bifida. When I came out it had apparently corrected itself. Today I have 6 Tarlov Cysts. Is there a connection between this phenomenon that you know of?

    • @JazzySerendipity
      @JazzySerendipity 11 місяців тому +1

      I was recently diagnosed w/ Tarlov Cyst in Sacrum and Spina Bifida Occulta (hidden). The nuero surgeon said that is why I have the cyst. She said, prior to a physical examination, she expected I have a visible birthmark in that area (I do). As a young child i had biopsies done of the birthmark 4 years. I had bladder issues and others then too.

  • @teresitamanuelsontag9974
    @teresitamanuelsontag9974 Рік тому +4

    I have the same . It shows in my MRI last August 2022 and my last MRI feb 21 2023. But my doctor is not concerned. Even though I tell him all the symptoms. I don’t know what to do.

    • @daveesutton-wv8fg
      @daveesutton-wv8fg Рік тому +2

      I’m experiencing the same type of experience about the doctors saying “it shouldn’t cause pain” although it COMPLETELY does

    • @ilynn9794
      @ilynn9794 Рік тому +3

      Hey, so i have a pretty extensive team of doctors at this point. I was getting completely gaslit by my first neurologist saying everything was psychological and thankkkkkfully i told another one of my doctors about it and she said: « when that happens i really want you to call the office and ask for a second opinion ». So I did, they assignmed me to a neurologist P.A. Who is an ABSOLUTE QUEEN, discovered my tarlov cysts and csf leak and is now coming through for me at every turn.
      Not all doctors are equal sorry y’all. Some do not care about their job, and some are super smart and very interested in their patients and their cases. Whenever you’re getting gaslit ask for a second opinion and change doctor! This is your actual life, for them it’s another day at the office.
      It’s hard to advocate for ourselves but we absolutely have to as we’re the only ones who will and can. You got this!!!!

  • @shimanaamdromeda1997
    @shimanaamdromeda1997 Рік тому +1

    I have all the symptoms,i think my doctor is missing my diagnosis😢

  • @threeqtrtime
    @threeqtrtime 4 місяці тому

    I have blurred vision almost double vision, tinnitus and numbness in my arms and hands.. I have had epidurals, physical therapy, dry needling. The Tarlov cycst is just written off as causing my symptoms.. could a TC cause such symptoms?

    • @Elaine-w2s
      @Elaine-w2s 17 днів тому

      where is your TC located?

    • @threeqtrtime
      @threeqtrtime 17 днів тому

      @ S2.. so I kinda think if my symptoms were from that I’d be dragging my feet.. but I have no idea what this affects

    • @Elaine-w2s
      @Elaine-w2s 16 днів тому

      @@threeqtrtime how’s your blurry vision, numbness to hands.? do you have bulging disc in your cervical spine?

  • @tearose3763
    @tearose3763 Рік тому +4

    why dont they call these herniations instead. i have multiple cysts in my neck and sacral area, meningeal and tarlov, you cannot wrap the meningeals cysts right? and since theyre not actually of growing tissues like a cysts, shouldnt they call the out pouchings herniations then? mine bother me tothe point of uncontrollable pain, i feel like going after the pain is fruitless since technically you trying to wrap a weakness in the spinal sheath isnt possible. i cannot sit, stand nor sleep, participate in anything, to the point of wishing our creator would take me home. what you suggest to someone like myself with many cysts do to control pain, opioids are a no, an implanted spinal cord stimular also doesn’t help either????

    • @ilynn9794
      @ilynn9794 Рік тому

      Y’all tell me if i’m wrong but from what i’ve read they are cysts filled with CSF fluid. The doc drains them first and then wraps the nerve so that there’s no room for the cyst to redevelop. From my understanding.
      Are your doctors suggesting any treatments? There are non surgical treatments available. As long as your docs aren’t dismissive

    • @girlnextdoor7012
      @girlnextdoor7012 Рік тому +4

      Are you saying a spinal cord stimulator does not help with your back and leg pain?
      My doctor has recommended the spinal cord stimulator …I am getting a second opinion, I have had a spinal cord stimulator in the past and also an neurological stimulator, they have both since been removed because they caused me so much pain. Just remember, things can get worse via surgery😢

    • @tearose3763
      @tearose3763 Рік тому +2

      It doesn’t help to the point that I am able to control pains that linger or are strains..my scs helps control about 50+% of the pain I get.

    • @tearose3763
      @tearose3763 Рік тому +1

      @@girlnextdoor7012 it helps ease 50-75% from c spine to L spine for %50 of the time

    • @FlipMacz
      @FlipMacz 9 місяців тому

      @@tearose3763 how are things now?

  • @jamieandrews5124
    @jamieandrews5124 3 місяці тому

    I had a ortho doc tell me before mine was nothing to worry about. I beg to differ.

  • @freeirishmexicanamericangi9199

    What is the root cause of these cysts? Also is there anyway to dissolve them internally naturally? I just feel like we're not meant to have these problems something's going on with our environment or the food we're eating that's causing these types of issues.

    • @bucketfriend297
      @bucketfriend297 Рік тому +7

      From what I've learned so far, physical trauma and connective tissue disorders are two of the top suspects. With connective tissue disorders, (I have one myself) I believe it's due to so many parts of our bodies being more flexible/loose than people without connective tissue problems, so the nerve root covering is able to dilate more easily. On top of that it seems like higher pressure in the fluid that can fill these cysts can be more common in connective tissue disorders, so between the laxity of the tissue and the higher pressure, it expands like a balloon. It's not something that can be dissolved because it's not an extra thing on a random part of your body, it's more like having a straw made from balloon material that you push a lot of fluid through but then stop it at one end, some part of it will expand to allow more fluid in because of the extra pressure. There is nothing in any research I've found yet that's a "natural" solution (though even the definition of that can vary a lot). One thing I have seen people discuss that may be worth looking into is that keeping inflammation down might be something that helps it from progressing. I can't say for sure and would definitely recommend seeking out qualified sources for that. I also haven't come across anyone who's gotten there's to go away on their own, although I'm sure many people are trying as the prospect and cost of surgery, for example, can be overwhelming. If you want to talk to more people with these to feel less alone and get more ideas, I highly recommend checking out the FB group facebook.com/groups/cystersandmysters/

    • @bucketfriend297
      @bucketfriend297 Рік тому +1

      Just realized he explained part of that similarly with the hose having a weak spot, hadn't watched most of the video yet!

    • @jenniferellsworth1226
      @jenniferellsworth1226 10 місяців тому

      I was told my Tarlov cysts were consistent with my EDS- Ehlers Danlos syndrome. I probably spelled it wrong. (EDS can also mean estrogen depletion syndrome, so I wanted to clarify.)