I have not and will not be the same post-total thyroidectomy. 2 years post-surgery, depression, anxiety, weight gain, sleep problems, and more have taken over my life. Before, I was extremely fit, very active, and didn’t experience such complications. Life post thyroidectomy and everything it affects is highly under-studied. Knowing my body inside and out, a pill is not doing the job of replacing this vital organ. I know this, but endocrinology believes a blood draw and a balance of TSH hormones is all that is needed. Well, it’s not. And it sucks being dismissed by doctors, specifically endocrinologists. Typical response: “Well, your levels are perfect; please see your primary care physician.”. I pray that one day, a doctor can figure it out and accept if they take such a vital organ, they should fix the eamifications it causes. I’m not giving up. I know this is not well-studied. And unless you like to settle for things, you definitely won’t get it.
I had thyroid cancer so I thought I had no choice, but life without it is such hell I truly don't know if it's worse. I am afraid to see how other countries actually think about the quality of life of the patient post-thyroidectomy.
@@AimeeSeavey I had a partial thyroidectomy, follicular thyroid cancer was found. I’m 61 and I have chosen not to proceed to TT. Reason being, many of these cancers are slow growing and indolent in nature, the average lifespan is 80 years old, my remaining thyroid gland might well see through to the end of my life at 80, without being the cause of my death.
I have not and will not be the same post-total thyroidectomy. 2 years post-surgery, depression, anxiety, weight gain, sleep problems, and more have taken over my life. Before, I was extremely fit, very active, and didn’t experience such complications. Life post thyroidectomy and everything it affects is highly under-studied. Knowing my body inside and out, a pill is not doing the job of replacing this vital organ. I know this, but endocrinology believes a blood draw and a balance of TSH hormones is all that is needed. Well, it’s not. And it sucks being dismissed by doctors, specifically endocrinologists. Typical response: “Well, your levels are perfect; please see your primary care physician.”. I pray that one day, a doctor can figure it out and accept if they take such a vital organ, they should fix the eamifications it causes. I’m not giving up. I know this is not well-studied. And unless you like to settle for things, you definitely won’t get it.
I was recommended to remove my thyroid, but I've been having doubts about it. Thank you for sharing your experience.
❤Thank you for your comment!
@@Guap303 What is your case why surgeon wants to remove your thyroid? mine is enlarged, but asymptomatic, non cancer
@@mariachua3780 I have several nodules that can become cancer
My endocrinologist said it would be best to get mine removed I have graves disease so my thyroid is overactive but I'm terrified to get it removed..
educating myself on how other countries manage this as well as life expectancy without removing it is mind-blowing.
educating myself on how other countries manage this as well as life expectancy without removing it is mind-blowing.
I had thyroid cancer so I thought I had no choice, but life without it is such hell I truly don't know if it's worse. I am afraid to see how other countries actually think about the quality of life of the patient post-thyroidectomy.
@@AimeeSeavey I had a partial thyroidectomy, follicular thyroid cancer was found. I’m 61 and I have chosen not to proceed to TT. Reason being, many of these cancers are slow growing and indolent in nature, the average lifespan is 80 years old, my remaining thyroid gland might well see through to the end of my life at 80, without being the cause of my death.