I almost died from thyroid storm. I started having crazy panic attacks and my blood pressure shot up to crazy levels. I was waking up at 3 am every night and staying in the bathroom for hours. I lost 70 pds in 5 months and had my first seizure. Horrible. I’m so proud of you. Within a month of adjusting my levothyroxine I was almost back to feeling normal.
I have hyperthyroidism caused by Grave's Disease.. its so hereditary in the women in my family that my episodes started when I was 15 (I'm now 18), my first episode was a thyroid storm triggered by severe stress from trauma. I had minor seizures, high blood pressure and heart rate, confusion, and high levels of cortisol and adrenaline.. I couldn't eat or sleep for 7 days and after that it took my body 3 months to recover. My mother, who has hyperthyroidism, told me that I have the same symptoms of this disease as her. I'm doing better now, but I'm really prone to stress and can easily have another episode any day. I know its bad if I don't an appetite for a few days. God bless, and I hope you continue to stay healthy.
Hello. Thank you for writing to me. I'm sorry you and your family have this disease. The symptoms are just awful. I wish you all much healing and happiness and hope you are feeling well and healthy.
Thank you for posting your experience with thyroid storm. My son was diagnosed in December of 2021, refused medication, and ran away from home. I have not seen him for months.
I've got Graves & PTSD both are highly sensitive to Stress Levels! Recently went through a terrible experience with Family Violence which incorporated Current & Ex Military guys who HATE people with PTSD & believe it's their personal mission to Terrorise & Traumatise people with PTSD just for the lulz of it... Man were my stress levels HIGH for a severely extended period of time, 7 years of it actually & combined with the underlying Graves disease, I'm just so thankful I didn't get sicker earlier; it it certainly explained my extra, extra heightened Hypervigilance from the PTSD & why the Anxiety would carry so much adrenalin with it... I was forcefully medicated soon after for a misdiagnosis that has nothing to do with PTSD & consequently went into a repeatative Thyroid Storm state that lasted for 5 months when I nearly died multiple times but I had no chance in hell for accessing Medical Attention & when I tried the Ambulance Drivers just laughed at me collapsed on the Ground & drove off! I never, ever, ever, ever want to experience a Thyroid Storm again, let alone one that continues for months on end!
Thank you for sharing your story. You are so strong and brave. I am so sorry you went through all of this. I really hope you are feeling better now and are full of health and happiness.
My heart goes out to you, hopefully 🙏 you are in a better place today, and have a plan in case things get dicey again. I am working on my plan, I had stormed for more than 5 months and then the road back to health was longer ( our bodies are exhausted). There is no test to see if people are storming so you have to piece together what you remember and ask others. No worries we got this.
Hello I have hyperthyroidism too I've been suffer graves disease for almost 3 years I diagnose graves disease when I was 17 years old and when I watch your vlog I been inspired so thank you so much for sharing your experience on having graves disease it helps me a lot
I had a thyroid storm in 2012. for months before i had been getting stomach and mouth ulsurs that were very painful. the doctor kept giving me more and stronger doses of acid reflux medicine but never tested my thyroid. i kept getting sicker and weaker and losing weight. it became harder for me to eat and i would randomly be unable to swallow food at some points. then i got a gum infection+ strep+diarrhea. At one point i remember laying halway on the couch with my arm over my eyes, praying that i would get better becuase i felt so weak and awful and mom said "want to go to the hospital honey?" and i agreed... i've always hated needles and going to the emergency room but once everything was settled the doctors told me i would have died if i waited another day or two. my heart rate was 175+ and they gave me a medicine that reset my heart to make it beat faster.. it hurt really bad and my heartrate shot up to 200+ instead. they tried it again and it didn't help. eventually they finally found out the problem and put me on medicine that helped calm my heart down and relax me. i was in the hospital for 5-6 days and when they were taking one of the iv's out to let me go home i fainted and my heart was stopped for longer than usual during it so they moved me to a bigger hospital for another day to observe my heart. i had fatigue so badly i could barely bathe myself or walk from room to room when i got home for months and even years. it improved a tiny bit but i still have bad chronic fatigue and muscle weakness. I ended up getting the thyroid removed with a radioactive iodine treatment.
Thank you so much for writing to me. I’m so sorry you have been through so much. It can be a hard journey getting diagnosed and finding the right treatment for your body. I hope you are feeling better now and have an abundance of health 💙🦋✨
I’m home from hospital 5 weeks from thyroid storm still recovering. It came on very quickly only having been diagnosed 6 weeks earlier with hypothyroidism. I had to rush to emergency. My primary doctor was handling my treatment so my advice is get to an endocrinologist asap if you have hyperthyroidism. It could save your life. God is the reason I’m alive today ✝️
I’ve not been diagnosed yet but recently have gone for blood test as Graves’ disease is common in my family... I really relate to the video and a lot of what you have said is happening to me as well and it’s really debilitating! Thanks for the video! Glad you’re well now
I had thyreotoxicosis from taking too much t4 bc my dose was just too big. It was horrible. Lost weighy rapidly and I has dissosioation and fear. Luckily I was monitored in hospital and it went away it self
I just had thyroid storm four weeks ago, spent 8 days in hospital, on heart pills beta blockers.. tremors were really bad too, heart rate was 169, breathing was shallow cause by broncual tubes inflammed, eyes popping outta head, weight loss, hard time walking, its been 14 days home on meds and feeling like crap, the meds side effects are the worst,, but on the mend, im 63 suffered Lupus for years, two months on meds then thyroid ecctomy and eye surgery. worst part went to hospital a year ago and they said nothing wrong.. it just got so bad after that
I have Graves’ disease but I am really worried atm my heart is so bad I think i my have atrial Fibrillation I’m not sure it feels like my heart is vibrating in my chest I can’t actually take this much longer. It comes and goes I notice at rest or after food it’s so bad right now 🥺🥺i need help I am having tests but I need help right now I think I’m going to die soon that’s literally how I feel
@Emilia Orduno Metropolol is a selective beta blocker. If you use it on a long term basis, you should watch your potassium level. Otherwise your heart will start struggeling because of a electrolytes imbalance
When you said you couldn't walk, did it feel like arthritis? Were you told you had developed arthritis because of it? My joints ache so badly but it's worse. I have to call my doctor again. Thank you for your information. I'm glad you're better.
Hello. It felt more like chronic fatigue and muscle weakness. I was just not physically strong enough to walk. They were worried about osteoporosis so I still take calcium supplements daily. I hope you are feeling ok xx
@@EmmaTara Thanks for the response and response. I'm feeling better after I received my medication. I hate I still have to take it but until a change comes, I'm on it.
I’m in the US and have had Graves’ disease and hyperthyroidism for 4 years. The past few days I’ve been super anxious, weak, very sleepy, and just feeling so out of it. Going to the ER soon because I genuinely feel so awful I think I have thyroid storm 😔
Those symptoms are part of graves disease. Thyroid storm has severe symptoms extremely high blood pressure, vomiting/ diarrhea high body temp and more. Were you on the meds when you had symptoms? Did you goto the ER?
I feel like I am having hyperthyroidism and they tested my tsh and gave me a ct scan and it shows nothing is wrong. I feel like you explained you were feeling and Im at my wits end.
I’m not sure my treatment is right because i was diagnosed 3 months ago with Graves’ disease at the hospital and my TSH was 000.05 and after 1 month on medications it became 29.0 and now i have the symptoms of hypotheroidism which are awful :( I have stomach pain all the time and i can’t even go to the toilet i’m super exausted and sleepy but at the same time i can’t sleep at all... The worst part is my menstruation which is late for 40 days now...My doctor told me its a normal thing but i’m not really sure, because insted of getting better i feel much worse.. I don’t know what to do anymore and i’m afraid i need to quit my job because i can’t function properly and i feel like the stress is my worst enemy 😔
Hi Elis. I'm sorry you are feeling so unwell. If you are unsure perhaps you could get a second opinion. The symptoms can make you feel so uncomfortable. I noticed a big difference in how I felt when I changed my diet to a more clean paleo approach. It really helped to ease my stomach aches and overall health. I hope you start to feel better soon xxx
Quit your job get on disablity and get better dont force your body to work when it sick and stress im hyperthyroid i cant sleep tired anxity all the time i had to quit my job and get better im stiil sick but im better.
sick Rick I think you’re right! And i’m going to quit for sure soon... it’s too exhausting... And as much as i like my job, health is on first place :) Thanks for your reply and i hope you’re getting better! 🍀🍀
Hello. I did at the start of being unwell but ever since my levels became normal my hair and nails have grown and become healthy. I try to take extra good care of them by using oils, masks and professional shampoo and conditioner. It has helped me a lot because I get highlights.
My cat has hyperthyroidism and she use to have these episodes that you are describing now when she was going to the vet. She had the Jodi e therapy back in July and although she is still hyperthyroid she has not bad a episode like that since July. I'm hoping the next time we go back she won't have another one...
I have hypothyroidism no appointment until March 2023. I feel terrible. Does anyone have any home remedies. My thyroid went from 1 to 12 to 6 everytime is different. And does anyone have heart pain?
I never have heart pain but I get a lot of palpitations and a straight flushed feeling followed with extreme weakness where everything goes numb and I can’t think right
I have an enlarged thyroid and i have a really bad shake cant make phone calls at times or use key pads. I wake early also. I think i might be going into storm. Tremour has gotten way worse. I have ptsd. It looks like parkinsons Im 35kg as i also have bad nerves.
do you mind if I ask how old you are? I've got graves also. Had a storm. Was a very bad time of my life and still struggling. Im in the unlucky 20% that never fully recover.
I hope you are well. I think my doctors are trying to scare me into taking RAI or getting surgery due to my levels (records not release to me yet). Would you mind sharing your storm experience?
It sucks ! This is the exact same thing that you have to deal with when being treated life long for thyroid cancer . As forced hyperthyroidism is necessary to keep the thyroid cancer cells asleep and not reproduce. And sometimes the levels will make you have a heart attack , tac out , or respiratory problems and ya end up with a bradycardia incident , that one sucks bigtime as it feels like a heart attack but it’s not . Pulse drops to 37 bpm oxygen drops to low 90s but you can get out of it by taking a two aspirin and a glycerin pill , And there is the opposite where your blood pressure hits let’s say 260/180 and your rushed into the cardiac unit and hit with enough advan to knock out a horse to bring ya down before ya stroke out . Folks it’s been one hell of a ride, but I like it here so I take my medicine..
I havd been suffering for years for thyroid issues when I was taking my medicine it felt like it was making me sick so it's been three years since I haven't taken any medicine I still get the symptoms but I try to ignore them cause I'm not taking the medicine again I always got dizzy and sick when I was taken them so I gave up on the doctor I had lol
Hi Lori. Do you feel better now other than the symptoms? Finding the right doctor can be so hard. You want someone that understands and you can trust 💜
@@EmmaTara for the most part I'm doing ok just my stomach sometimes gets really bad and I go to see the doctor about it HD just keeps saying it's the thyroid but I get the feeling it's more than that cause my stomach gets so painful that I want to go to the doctors but I don't then I get bad diarrhea but like I said I think there's something else wrong with my stomach but overall I'm going to stop going to the doctors about it thanks for asking :)
Are you kidding me!? Ive had a couple of drs who are looking at my tsh being 0.015, im having trouble walking most of the time right now because im stressed out for the past 2 months i lost my job, have to mkve back in with mom. 6 months ago the heart beating out of my chest, exhausted doesnt describe it well enough, weigh 110, you can tell my muscle mass is different, stairs i look at. Cry daily because its either pulling muscles, hips will hurt and just like you said flexibility changed. Been waking up feeling like my shin was kicked wjen no one did it. There is an active dimple in calf muscle that wasnt there. Dr says thyroid doesnt do that. Thats why i asked if you can have a thyroid storm for months. Its not at the extreme as i described all the time. Never fully normal but stress ive noticed lately is what I was referring to as an episode. Most drs blew me off, the one recently whos trying to help me but knows im strapped for money, has been calling me to ask how im feeling. Thought it was weird butt now im wondering of she is picking up on me heading towards a storm? Im waiting on the full thyroid panel but i know my tsh is 0.015 and im getting looks of concern but no suggestion to be hospitalized. Thyroid thought process over. Sorry and great video 😊
Asad from Pakistan I'm also diagnosed with hyperthyroidism. Your video is motivation for me.I'm taking carbimazole one tablet in morning and one at night .kindly tell me is taking medicine before meal is effective or after meal ? And also kindly share natural food remedy which can help or life style remedy ? Because my symptoms are same as yours .
Hello. I'm so happy you liked my video. Some medication absorbs differently depending on what and when you eat. It's best to check this out with your doctor. I took my carbimazole after I ate breakfast when I had graves disease.
@@cookingwithatif6781 yes bro , mera automatically Khud he theek hogya after few months, menay bas carbimazole khai one bottle for a month and then left.
Sorry, what i was trying to get out of ny brain was can you have mild thyroid storms back to back? And is the myopathy you described when you would go to walk down the stairs be a precursor to a thyroid storm?
Hello everyone, I have hyperthyroidism and my doctor has recommended that I either do the radioactive iodine treatment or go through surgery. Has anyone here tried it? I am really scared to try it.
I almost died from thyroid storm. I started having crazy panic attacks and my blood pressure shot up to crazy levels. I was waking up at 3 am every night and staying in the bathroom for hours. I lost 70 pds in 5 months and had my first seizure. Horrible. I’m so proud of you. Within a month of adjusting my levothyroxine I was almost back to feeling normal.
Hi Natalie. Thyroid storms are so scary. How are you feeling now? I hope you are well xx
Emma Tara I’m doing much better now thanks, nothing really scares me now honestly.
I almost died too!
Isnt a thyroid storm acute? It can take 5 months?
@@mikehartwig5319 Yeah without appropriate treatment or the unexpected use of a new medication...
Even Asprin can set off a Thyroid Storm...
I have hyperthyroidism caused by Grave's Disease.. its so hereditary in the women in my family that my episodes started when I was 15 (I'm now 18), my first episode was a thyroid storm triggered by severe stress from trauma. I had minor seizures, high blood pressure and heart rate, confusion, and high levels of cortisol and adrenaline.. I couldn't eat or sleep for 7 days and after that it took my body 3 months to recover. My mother, who has hyperthyroidism, told me that I have the same symptoms of this disease as her. I'm doing better now, but I'm really prone to stress and can easily have another episode any day. I know its bad if I don't an appetite for a few days. God bless, and I hope you continue to stay healthy.
Hello. Thank you for writing to me. I'm sorry you and your family have this disease. The symptoms are just awful. I wish you all much healing and happiness and hope you are feeling well and healthy.
Thank you for posting your experience with thyroid storm. My son was diagnosed in December of 2021, refused medication, and ran away from home. I have not seen him for months.
I've got Graves & PTSD both are highly sensitive to Stress Levels!
Recently went through a terrible experience with Family Violence which incorporated Current & Ex Military guys who HATE people with PTSD & believe it's their personal mission to Terrorise & Traumatise people with PTSD just for the lulz of it...
Man were my stress levels HIGH for a severely extended period of time, 7 years of it actually & combined with the underlying Graves disease, I'm just so thankful I didn't get sicker earlier; it it certainly explained my extra, extra heightened Hypervigilance from the PTSD & why the Anxiety would carry so much adrenalin with it...
I was forcefully medicated soon after for a misdiagnosis that has nothing to do with PTSD & consequently went into a repeatative Thyroid Storm state that lasted for 5 months when I nearly died multiple times but I had no chance in hell for accessing Medical Attention & when I tried the Ambulance Drivers just laughed at me collapsed on the Ground & drove off!
I never, ever, ever, ever want to experience a Thyroid Storm again, let alone one that continues for months on end!
Thank you for sharing your story. You are so strong and brave. I am so sorry you went through all of this. I really hope you are feeling better now and are full of health and happiness.
My heart goes out to you, hopefully 🙏 you are in a better place today, and have a plan in case things get dicey again. I am working on my plan, I had stormed for more than 5 months and then the road back to health was longer ( our bodies are exhausted). There is no test to see if people are storming so you have to piece together what you remember and ask others. No worries we got this.
Hello I have hyperthyroidism too I've been suffer graves disease for almost 3 years I diagnose graves disease when I was 17 years old and when I watch your vlog I been inspired so thank you so much for sharing your experience on having graves disease it helps me a lot
Hello Mariella. Thank you so much for your lovely comment. I hope you are feeling well and are healing xx
Yes, confusion and major anxiety and severe mood swings from a stressful situation that doesn’t help me.
I had a thyroid storm in 2012. for months before i had been getting stomach and mouth ulsurs that were very painful. the doctor kept giving me more and stronger doses of acid reflux medicine but never tested my thyroid. i kept getting sicker and weaker and losing weight. it became harder for me to eat and i would randomly be unable to swallow food at some points. then i got a gum infection+ strep+diarrhea. At one point i remember laying halway on the couch with my arm over my eyes, praying that i would get better becuase i felt so weak and awful and mom said "want to go to the hospital honey?" and i agreed... i've always hated needles and going to the emergency room but once everything was settled the doctors told me i would have died if i waited another day or two. my heart rate was 175+ and they gave me a medicine that reset my heart to make it beat faster.. it hurt really bad and my heartrate shot up to 200+ instead. they tried it again and it didn't help. eventually they finally found out the problem and put me on medicine that helped calm my heart down and relax me. i was in the hospital for 5-6 days and when they were taking one of the iv's out to let me go home i fainted and my heart was stopped for longer than usual during it so they moved me to a bigger hospital for another day to observe my heart. i had fatigue so badly i could barely bathe myself or walk from room to room when i got home for months and even years. it improved a tiny bit but i still have bad chronic fatigue and muscle weakness. I ended up getting the thyroid removed with a radioactive iodine treatment.
Thank you so much for writing to me. I’m so sorry you have been through so much. It can be a hard journey getting diagnosed and finding the right treatment for your body. I hope you are feeling better now and have an abundance of health 💙🦋✨
I’m home from hospital 5 weeks from thyroid storm still recovering. It came on very quickly only having been diagnosed 6 weeks earlier with hypothyroidism. I had to rush to emergency. My primary doctor was handling my treatment so my advice is get to an endocrinologist asap if you have hyperthyroidism. It could save your life. God is the reason I’m alive today ✝️
Thank you for sharing. This week I was diagnosed with Thyroid Storm. It is frightening beyond what I can explain.
Hello. I’m so sorry you are in a thyroid storm. I hope you start to heal and feel better. Sending you much health, happiness and positive vibes 🦋🌻💜🌼
@@EmmaTara You're the sweetest.. thank you so much.
I’ve not been diagnosed yet but recently have gone for blood test as Graves’ disease is common in my family... I really relate to the video and a lot of what you have said is happening to me as well and it’s really debilitating! Thanks for the video! Glad you’re well now
I hope you are doing well!
Went into coma in 2009,ended up in ICU very sick I had a clinic Dr who did not care!!!
I had thyreotoxicosis from taking too much t4 bc my dose was just too big. It was horrible. Lost weighy rapidly and I has dissosioation and fear. Luckily I was monitored in hospital and it went away it self
I wish you better now. What was the dose you took?
I just had thyroid storm four weeks ago, spent 8 days in hospital, on heart pills beta blockers.. tremors were really bad too, heart rate was 169, breathing was shallow cause by broncual tubes inflammed, eyes popping outta head, weight loss, hard time walking, its been 14 days home on meds and feeling like crap, the meds side effects are the worst,, but on the mend, im 63 suffered Lupus for years, two months on meds then thyroid ecctomy and eye surgery. worst part went to hospital a year ago and they said nothing wrong.. it just got so bad after that
I’m glad you are healthy now and feeling so much better xxx
Thanks sis xxx
I have Graves’ disease but I am really worried atm my heart is so bad I think i my have atrial
Fibrillation I’m not sure it feels like my heart is vibrating in my chest I can’t actually take this much longer. It comes and goes I notice at rest or after food it’s so bad right now 🥺🥺i need help I am having tests but I need help right now I think I’m going to die soon that’s literally how I feel
@Emilia Orduno Metropolol is a selective beta blocker. If you use it on a long term basis, you should watch your potassium level. Otherwise your heart will start struggeling because of a electrolytes imbalance
When you said you couldn't walk, did it feel like arthritis? Were you told you had developed arthritis because of it? My joints ache so badly but it's worse. I have to call my doctor again. Thank you for your information. I'm glad you're better.
Hello. It felt more like chronic fatigue and muscle weakness. I was just not physically strong enough to walk. They were worried about osteoporosis so I still take calcium supplements daily. I hope you are feeling ok xx
@@EmmaTara Thanks for the response and response. I'm feeling better after I received my medication. I hate I still have to take it but until a change comes, I'm on it.
@@vivoyeur how is your muscles doing right now? Are they still week?
I’m in the US and have had Graves’ disease and hyperthyroidism for 4 years. The past few days I’ve been super anxious, weak, very sleepy, and just feeling so out of it. Going to the ER soon because I genuinely feel so awful I think I have thyroid storm 😔
Those symptoms are part of graves disease. Thyroid storm has severe symptoms extremely high blood pressure, vomiting/ diarrhea high body temp and more. Were you on the meds when you had symptoms? Did you goto the ER?
How are you doing?
Same 4 years work suffering
I feel like I am having hyperthyroidism and they tested my tsh and gave me a ct scan and it shows nothing is wrong. I feel like you explained you were feeling and Im at my wits end.
I had this too.. keep getting your levels checked.. it took almost 2 years of hyper thyroid symptoms until it showed up in my blood work❤️
Also other hormones like estradiol fluctuations can cause these kind of symptoms too
I’m not sure my treatment is right because i was diagnosed 3 months ago with Graves’ disease at the hospital and my TSH was 000.05 and after 1 month on medications it became 29.0 and now i have the symptoms of hypotheroidism which are awful :( I have stomach pain all the time and i can’t even go to the toilet i’m super exausted and sleepy but at the same time i can’t sleep at all... The worst part is my menstruation which is late for 40 days now...My doctor told me its a normal thing but i’m not really sure, because insted of getting better i feel much worse.. I don’t know what to do anymore and i’m afraid i need to quit my job because i can’t function properly and i feel like the stress is my worst enemy 😔
Try celeri juice, it helped me. Read the book by anthony william called thyroid healing. And change your diet.
@@thistimearaound Thank you! I will try for sure! :)
Hi Elis. I'm sorry you are feeling so unwell. If you are unsure perhaps you could get a second opinion. The symptoms can make you feel so uncomfortable. I noticed a big difference in how I felt when I changed my diet to a more clean paleo approach. It really helped to ease my stomach aches and overall health. I hope you start to feel better soon xxx
Quit your job get on disablity and get better dont force your body to work when it sick and stress im hyperthyroid i cant sleep tired anxity all the time i had to quit my job and get better im stiil sick but im better.
sick Rick I think you’re right! And i’m going to quit for sure soon... it’s too exhausting... And as much as i like my job, health is on first place :) Thanks for your reply and i hope you’re getting better! 🍀🍀
I’m getting thyroid storm radio active iodine treatment done next week. Hope I won’t have these symptoms anymore.
I hope your treatment went well and you are feeling healthy and strong
Hello, how are you doing now? Did it help you?
Treatment went well, my thyroid converted to hypothyroidism but I’m back to life. I can do normal activities everyday no palpations.
@@wajidarif820bhai kon c treatment li? Ap jab hyperthyroidism thy to weight loss bhi hua tha? Anxiety wagera thi? Weakness? Dull eyes?
Thank you Emma for helping us realize why we’re having all these feelings and symptoms?
I recently had a thyroid storm. I ended up on a ventilator for 5 days, hospital for 9 days. Still not back at 100%
Omg that is scary
EXACTLY My Story!
I hope you are on the road to recovery
Hello Emma, I am glad you are okay now. How about hair loss and thinning and ridged nails? Do you had that or have that still?
Hello. I did at the start of being unwell but ever since my levels became normal my hair and nails have grown and become healthy. I try to take extra good care of them by using oils, masks and professional shampoo and conditioner. It has helped me a lot because I get highlights.
I'm literally crying rn I have every single symptom they've gotten really bad the last few days. Every single symptom I'm going tomorrow
I hope everything is ok and you start to feel better 💙
Hi Tiffany. Please watch your diet. It plays a major part 💖
How are u now
My cat has hyperthyroidism and she use to have these episodes that you are describing now when she was going to the vet. She had the Jodi e therapy back in July and although she is still hyperthyroid she has not bad a episode like that since July. I'm hoping the next time we go back she won't have another one...
Your poor cat. I have quite a few people message about cats with this. I adore cats. I'm so happy your cat is getting such great care from you.
Love you so much for putting to words what this feels like 😢
Going through this . Thank you for sharing . Gives me hope .
Have you been checked for celiacs? It’s an autoimmune disorder which is often silent but causes thyroid Arturo immune
I have hypothyroidism no appointment until March 2023. I feel terrible. Does anyone have any home remedies. My thyroid went from 1 to 12 to 6 everytime is different. And does anyone have heart pain?
I never have heart pain but I get a lot of palpitations and a straight flushed feeling followed with extreme weakness where everything goes numb and I can’t think right
Diagnosed with Hyperthyroidism and possible Graves’ disease - how do you process your emotions when in a thyroid storm ? I’m struggling 🥺
I have an enlarged thyroid and i have a really bad shake cant make phone calls at times or use key pads. I wake early also. I think i might be going into storm. Tremour has gotten way worse. I have ptsd. It looks like parkinsons
Im 35kg as i also have bad nerves.
do you mind if I ask how old you are? I've got graves also. Had a storm. Was a very bad time of my life and still struggling. Im in the unlucky 20% that never fully recover.
I hope you are well. I think my doctors are trying to scare me into taking RAI or getting surgery due to my levels (records not release to me yet). Would you mind sharing your storm experience?
I had just turned 27 when I was diagnosed.
Does hyperthyroidism or thyroid storm causes delirium or hallucinations?
It sucks ! This is the exact same thing that you have to deal with when being treated life long for thyroid cancer . As forced hyperthyroidism is necessary to keep the thyroid cancer cells asleep and not reproduce. And sometimes the levels will make you have a heart attack , tac out , or respiratory problems and ya end up with a bradycardia incident , that one sucks bigtime as it feels like a heart attack but it’s not . Pulse drops to 37 bpm oxygen drops to low 90s but you can get out of it by taking a two aspirin and a glycerin pill ,
And there is the opposite where your blood pressure hits let’s say 260/180 and your rushed into the cardiac unit and hit with enough advan to knock out a horse to bring ya down before ya stroke out .
Folks it’s been one hell of a ride, but I like it here so I take my medicine..
I havd been suffering for years for thyroid issues when I was taking my medicine it felt like it was making me sick so it's been three years since I haven't taken any medicine I still get the symptoms but I try to ignore them cause I'm not taking the medicine again I always got dizzy and sick when I was taken them so I gave up on the doctor I had lol
Hi Lori. Do you feel better now other than the symptoms? Finding the right doctor can be so hard. You want someone that understands and you can trust 💜
@@EmmaTara for the most part I'm doing ok just my stomach sometimes gets really bad and I go to see the doctor about it HD just keeps saying it's the thyroid but I get the feeling it's more than that cause my stomach gets so painful that I want to go to the doctors but I don't then I get bad diarrhea but like I said I think there's something else wrong with my stomach but overall I'm going to stop going to the doctors about it thanks for asking :)
Are you kidding me!? Ive had a couple of drs who are looking at my tsh being 0.015, im having trouble walking most of the time right now because im stressed out for the past 2 months i lost my job, have to mkve back in with mom. 6 months ago the heart beating out of my chest, exhausted doesnt describe it well enough, weigh 110, you can tell my muscle mass is different, stairs i look at. Cry daily because its either pulling muscles, hips will hurt and just like you said flexibility changed. Been waking up feeling like my shin was kicked wjen no one did it. There is an active dimple in calf muscle that wasnt there. Dr says thyroid doesnt do that. Thats why i asked if you can have a thyroid storm for months. Its not at the extreme as i described all the time. Never fully normal but stress ive noticed lately is what I was referring to as an episode. Most drs blew me off, the one recently whos trying to help me but knows im strapped for money, has been calling me to ask how im feeling. Thought it was weird butt now im wondering of she is picking up on me heading towards a storm? Im waiting on the full thyroid panel but i know my tsh is 0.015 and im getting looks of concern but no suggestion to be hospitalized. Thyroid thought process over. Sorry and great video 😊
Asad from Pakistan
I'm also diagnosed with hyperthyroidism. Your video is motivation for me.I'm taking carbimazole one tablet in morning and one at night .kindly tell me is taking medicine before meal is effective or after meal ?
And also kindly share natural food remedy which can help or life style remedy ? Because my symptoms are same as yours .
Hello. I'm so happy you liked my video. Some medication absorbs differently depending on what and when you eat. It's best to check this out with your doctor. I took my carbimazole after I ate breakfast when I had graves disease.
@@EmmaTara thankyou Emma :)
May you have good life both here and hereafter .
@@izh666bro kese ho ab aap? Behtari hui levels me kuch carbimazole se? Aur apka weight loss hua tha?
@@cookingwithatif6781 yes bro , mera automatically Khud he theek hogya after few months, menay bas carbimazole khai one bottle for a month and then left.
What were some of your thyroid numbers, tsh, free t4, free t3, when first diagnosed and during your thyroid storm?
Good night I have a thyroid problem also right now sometimes I don't eat on time and the gas pain is just to much I need help
Hi, did you have difficulty eating, feel weak and had an ecography done for your thyroid during that time please ? Thanks 🙏🏻
Sorry, what i was trying to get out of ny brain was can you have mild thyroid storms back to back? And is the myopathy you described when you would go to walk down the stairs be a precursor to a thyroid storm?
Yes the myopathy is a strong indicator
Can you be in a thyroid storm for months?
Spot on
Can’t hear this clip talking Echo
Hello everyone,
I have hyperthyroidism and my doctor has recommended that I either do the radioactive iodine treatment or go through surgery. Has anyone here tried it? I am really scared to try it.
Hey! Whats the update? What route you went through? RAI therapy? Or surgery?