Jessica Kellgren-Fozard Everyone in the DissociaDID system is amazing. I can’t tell you how happy it made me to see the you were working on videos with them ❤️ You’re amazing too lovely lady.
You need a trigger warning for all the medical talk in this video. I clicked because of DissociaDID and did not realize you would be describing in detail painful medical procedures. :( Also I'm now starting to think I might have this because I also avoided running. Pretty much all through school I found P.E. to be an exhausting and stressful time. I had a heart attack while running in the sixth grade. Oddly even though excersizing is something most people do to lose weight I found that I actually lost weight after I finished high school and was no longer being forced to excersize on a daily basis. I later found out that stress can make you gain weight so it turned out the reason I was so over weight in school is because I was excersizing every day. Of course I've since gained that weight back for entirely different reasons that have caused me stress. I do not understand people who find excersize to be relaxing. To me it's stressful and exhausting. Just doing warm ups I was already exhausted and pretty much just laying on the ground wandering if I was going to pass out... I've never heard of anyone else having this problem till I heard the two of you talking about it in this video.
OMG, you had dislocated your jaw, a day before moving house?! Ouch! Btw, I really enjoyed all your informative videos on such topics, it really teaches me a thing or two, expanding my little world a bit more.
Hey! This is so weird for me bc I've been watching you for months now Jessica, but I only discovered the channel of the very lovely Chloe the day before yesterday & I've been binging ever since! I had no idea what amazing act of kismet got Chloe & friends on my feed but I'm not one to look a serendipitous gift horse in the mouth so I just took the win. I guess now I know what it was, although kinda weird the algorithm took so long to show me this if it was catalyst. Anyways, I just wanted to say that I was diagnosed with fibromyalgia more than 10yrs ago, among other things as is so often the case, & I was lead to believe that fibro & CFS are almost exactly the same thing. The distinction made to me at the time, which honestly felt pretty semantic, was that fibromyalgia is a chronic pain condition with associated intense fatigue & Chronic Fatigue Syndrome is a chronic condition of intense fatigue with associated chronic pain. They honestly made it sound like whichever symptom was slightly worse & could be characterized as the chief complaint determined the diagnosis. From your video I gathered that things had changed so I looked it up & both the UK's NHS site & the Mayo Clinic here say that CFS/ME is one condition with 2 names. I'm so confused as to how such major medical authorities could be so careless & inaccurate. What actually is the difference why don't they recognize that there's any distinction at all? Love you both so much! Thanks for doing what you do! It helps a lot! After spending a few hours grocery shopping in one of those moderized shopping carts, getting dirty looks that clearly convey "but she's so young & she doesn't look sick. She shouldn't be stealing that cart from a real disabled person" & making a point to hold my back & make my limp more obvious when I get up so people don't look at me like I'm a horrible person for needing it, watching your videos really makes me feel better. Sometimes you just need to hear someone else to say, "You have nothing to prove to them & no matter how 'young & healthy' you may look to them, you ARE valid, your conditions DO matter & I know that having an invisible illness doesn't make your pain disappear." You guys do that for me. I can't ever express what that means to me, but I have a feeling you already know. To begin to repay the favor, I hope you all know that YOU are not only valid & worthy of love, kindness, respect & empathy, but you're an inspiration to the rest of us. You are NOT alone! We walk through this life with you & while many may not realize it, NONE of us ever take a single step by ourselves. Much like our illnesses, just bc you can't see us doesn't mean we aren't there with you all the time. 💙💋💜
Omg, I know how grounding this is. I used to fight panic attacks by going to the small fabric store near my college. The right times of day it would be practically empty (which is probably why it went out of business, unfortunately). I would walk back and forth through all the aisles running my hands over each of the bolts. It was grounding to feel so many different textures.
I hate tulle, I have autism and certain textures feel like my skin is burning off, including tulle and felt. But, I do understand how grounding it could be to someone else. I find that cotton, velvet (or similar fabric) and leather really ground me and make me feel calmer
That is a term persons who have DID use to describe how their many selves are in one body. It is a system. That is my understanding and definition, though perhaps not exactly absolutely correct.
Ruth Christianson Yep, as someone with DID that’s the most common terminology. Basically a way to describe all of the alters (alternate personalities) all in one body.
@@candygurlxxx178 No that's what it means, Alters does indeed stand for Alternate states of consciousness. Most people will say 'alternate personalities' as it was previously known as multiple personality disorder and although most people are ok with using personalities they aren't exactly. Well, I'll stop rambling because all I meant to say was you thought correctly. - Paige
HOW DID I NOT KNOW THIS EXISTED!!!!!!!!! IVE WATCHED BOTH THESE PEOPLE FOR AGES AND SOMEHOW DIDNT KNOW THIS COLLAB EXISTED!!!!!!!!!!!!! AAAAAAHHHHH IT WAS SO GOOD!!!!!!!!!!!!!!
I'm very happy to see this as someone with Dissociative Identity Disorder. A lot of people really don't understand it and seeing someone with a platform as large as yours help share that we're not scary and dangerous. Much love to both of you 💕
Jessica's nightmare story about the lumbar puncture makes me so angry every time I think about it. The fact that she can find humor in the whole ordeal today is an incredible sign of strength.
My Dad had a horrible time with a lumbar puncture, I think it was probably exacerbated by his neurological condition(MSA) but he ended up really sick and then dehydrated. I remember visiting him in the hospital, he was so pale, and he could barely talk. I can't remember now whether his neck muscles had atrophied before or after the lumber puncture, either way his neck muscles basically stop being able to hold his head up and so he was always at risk of choking and really couldn't eat very well. Either way, Lumbar Punctures scare the crap out of me. Also Jessica is amazing.
@@Aconitum_napellus I've always been afraid of a lumbar puncture because I hate the idea of needles being stuck inside me (blood tests and vaccination are scary, but I have to do them anyway) and because the spine seems like a sensitive spot to me. But I never knew that it was risky beyond spinal headaches - or infection if not sterilised properly. *fear intensifies* But was the atrophy of his neck muscles stimulated by the lumbar puncture or did it just coincide with it? Correlation is not causation.
Having LPs done by med students and having them done by trained doctors or radiologists makes a WORLD of difference. I had a similar experience to Jessica's when I was 18, only instead of stabbing me with the needle multiple times, the student dug the needle around in my back trying to find the correct location. It was arguably the worst hour of my life. But the next day, they popped me downstairs to radiology and the whole thing was over within 30 minutes.
It should be illegal having medical students doing LP without having done it successfully on a dummy (or corpse) at *least* a couple dozen times. I had it done by an "expert", and still it was the most painful thing I've done. Oh and him saying something along the lines of "Your spine discs are a bit too close together, I'll have to use this other spot. Don't worry, the chance for permanent nerve damage doesn't go up by much, now hold still"... Well, let's just say that having a painful procedure, where moving can result in paralysis, done by a medical student would be a HUGE *NO* from me. PS, I had insane headache for a week after, it didn't go away until I had a cup of coffee, hated it before but from that point on I love coffee. It was my wife that knew it might help, bless her. PPS, I've said that if they need a second LP they can just prepare a pine box for me instead. And I'm not entirely sure if I'm joking or not...
God, Chloe (or Kya now) and the whole system articulates themselves SO well no matter what they're talking about 🥺 I'd listen to them talk abt literally anything for hours ❤️
I love how chloe plays with the tool to keep grounded. I was fully waiting for a Kyle switch out because he seems to like joining in at random times haha. Love you kyle
Well, she is Nin now, but the person we are seeing in this video is 100% Chloe, Nin didn’t exist and was nowhere to be seen during this video so the correct way would be “Chloe”. I don’t wanna coma across as rude, just as informative :)
Isabella Bustamante no that actually helps thank you. I’m so used to changing names because of the trans friends around me that I automatically change it. I don’t take offence thank you for politely explaining I was wrong.
From what I can tell, Their content was used as a foundation for people who were harmful to the community. Which is why they had to take time off, they are not okay, but we can't really help either.
From everything I have seen, they weren't bullied off. The system was standing up for a child preditor, and either one of their littles, or someone else's little, was groomed. Its not just like "oh illness! Let's go poke it!" There was a reason behind her leaving.
Louise A Schmal I don’t think they were standing up for them? I thought it was their partner system and they broke up when it came out because nins system didn’t know
If anyone is wondering why Jessica drinks so much water, partly it is because with POTS staying hydrated is imperative. Becoming dehydrated makes someone with POTS suffer with more symptoms. Along with that it is important to get enough sodium and other electrolytes because drinking so much "washes away" important electrolytes.
Thank you so much for having a TW for vomit! No one else does it/there's tons of films with scenes pertaining to it and it makes it difficult to navigate certain media.
yes! It made me so happy to see it! it gave me such a relieving feeling, to be able to avoid it, because as you said no one ever puts tw for that sort of thing
I've loved both Jessica and Kya & Co for so long but never saw this video. I had forgotten Kya & Co had this disorder. I myself found out I had fibromyalgia a few years ago, and the chronic fatigue is exactly like Chloe described.
I’m a visually impaired lesbian from Somerset lmao, I used to watch your bsl videos years ago and seeing you now married to Claud and catching up on so many videos makes me so happy:) I’m now 18 and studying to become a carer and doing work experience in a adults with learning disabilities school and just want you to know how inspiring you are and cheers for putting your story out there and keeping it real as situations are more relatable than we think:)
To be fair, medical students need to learn to do these procedures on real people. They just need good supervision and proper followup, which obviously didn't happen in this case because she was discharged!
@@ceven526 thats true, I just assumed as its a procedure with some risks youd be taught during foundation years. IMO if a dr asks you to do something as a med student you feel you aren't well prepared for that has serious risks you should say im not trained im not doing this. Sad times for me if I get asked to do one
I don't think I know ANYONE who has a good lumbar puncture story to tell, tbh. I had mine at age 12 and I'm 43 now and I refuse to ever have another one for any reason! 💗🌻
@@Elle-cg1dh I've had a lumbar puncture, and while it wasn't pleasant I was well taken care of! I was about 8, and they didn't know what was happening with me so I did in fact have specialists and they even put me to sleep for it because I was afraid. The aftermath was horrible and very blurry though - couldn't get to the bathroom or really move.
I enjoyed this so much. You have good chemistry and relate well to each other. Jessica, not everyone would understand that Chloe liked the tulle because it was grounding but because you are such a kind and caring person it didn't phase you a bit. Like the others that commented I have been waiting for this video ❤ and I appreciate the content. Such valuable information. Thank you.
If I haven't done so already, I would like to wish you welcome to the Dis-Associate family. :) Hope you enjoy it there, and that we can help you learn a lot. As always, please don't hesitate if there's something you're wondering about. All we ask i that you're respectful, and catious about possible triggering subjects. ;)
Christian F. thank you so much! that’s so lovely. i’m learning a lot everyday and i’m enjoying learning about a new community of people on the internet
@@mollysmith9606 You're welcome, and thank you too! Although it's 10 past midnight here, so not exactly "day" anymore. ;) Hope you too have a brilliant day. :)
same (well i've been watching entropy theses last few days mostly, but the topic is similar + i really like the few videos i've seen of dissossiaDID channel) i'm a bit freaked out to see that collab now tbh :'D
I love the “Big Day Out” plan because it really could help me, not necessarily for my physical health, but for my mental health. I have bpd, adhd and bipolar and sometimes having a lot of stimuli around makes it harder to cope emotionally, so being more conscious about what I am going to do that day would really help me.
To Jessica and Chloe. Thank you so much for this video. I have suffered from ME for 12 years. It means so much to hear the two of you talk about it as ME makes me feel so isolated. You are both delightful. I could listen to your banter all day.
Thank you so much for this video!! I don't have ME/Chronic fatigue but I have fibro/chronic pain which often comes with extreme fatigue. Chloe's story about getting fatigued just doing chores or cooking really resonated with me. Cleaning my house sometimes takes me an entire week because I can only do so many things before I physically have to sit down. I love to cook and bake, especially for other people, but I have to pace myself or otherwise I get very stressed. I'm constantly trying to think of how I can cut corners in recipes; I buy lots of prechopped veggies and fruits because sometimes it's just too hard for me to cut them myself! It often leaves me feeling guilty/lazy but I'm just having to learn that the way I have to live my life is different and that's ok!
Yes all this! I've gotten creative with doing cooking tasks on a cutting board on my lab while sitting on the couch, since standing up is a huge trigger for my symptoms. I also tend go set a timer when doing tasks like washing dishes that require standing, otherwise I'll forget to stop while I still feel okayish, and end up confused, and dropping things, with a major headache. But some days, nothing beats "lazily" ordering takeout
Same! Fibro warrior and fellow Spoonie here, too! 99.9% certain I have chronic Lyme. Previously, I was a chef. Now, it's upsetting to be knocked out just making one small meal. The guilt can be heavy, but like these lovely ladies pointed out: it's all about learning your triggers and self care. Thanks again for the video, Chloe & Jess!
Same here. If you have someone who is willing and able, sometimes I have them help with chopping the veggies in bulk and freezing them. The freezer is my friend! lol
Thank you. I have fibro too, and have a hard time with exhaustion because it fluctuates and can feel almost like I'm making it up. Hearing that other people have the same symptom is reassuring
Not quite to that extent, but I do experience a very similar thing where I am ALWAYS tired. In my case it's that if I don't set an alarm, I will sleep forever. Like I will literally stay in bed until I have a headache rather than wake up. I have slept for like thirteen hours before. And I've always known it's not NORMAL, but I also always thought it was just my sleep pattern being that bad and eventually it would correct itself. I'm now wondering if it's depression or something - because I do also have a habit of looking at a task and going "Not right now, that's too hard", even if it's only going to take five minutes. I just feel like I have no energy to do stuff. So I feel your pain lol.
I've been eagerly waiting for this collab! I've never heard Chole describe her fatigue in detail, and mine is very similar. I also have Fibromyalgia, Postural Orthostatic Tachycardia Syndrome, Hypothyroidism, Polycystic Ovarian syndrome, and weird flushing and sweating (sometimes hives) that make it hard to stand, walk, go outside, or do basic hygiene. I know it's a mouthful.. and that people probably don't want to read long walls of text like this, but I appreciate you both sitting down and talking about this. This changed my life suddenly, and drastically, and I've had to fight doctors the whole way. I feel a little less alone, so thank you both! Also, I wanted to add that extreme emotions are also a big trigger for me. So even laughing too much is exhausting. It makes relationships difficult.
Having a lower energy is something I've struggled with most of my life and it's something I constant feel guilty over after seeing other people and people in movie and shows. One of the things I take away DissociaDID's videos is not feeling guilty for recognizing my triggers and respecting them. Thank you both!
It feels so good to hear other people talking about these things. Especially how you have to plan to take several days to recover after a day of doing something that other people might not think is that big of a deal, but for you is totally draining. A lot of people really don’t understand that, and it’s so good not to be alone in it.
Rewatching this video years after it was made and since coming to realise I have CFS has made such an incredible impact on my self acceptance ❤❤❤❤ thanks so much guys :) love you both so much
Can I just say thank you so much to both of these amazing people for always putting trigger warnings? Because sometimes avoiding hearing certain things can really save me from a panic attack. Absolutely love that they do this. THANK YOU!
Wait... oh my! This explains so much of my life, the near constant exhaustion- some days I’m okay, sometimes it’s just like I’ve had my batteries removed; I just can’t move, I’m exhausted 😩 literally just booked an appointment. You guys are my favourite youtubers and thank you for educating me on this! It’s like, walking to the shops, it just zaps me for hours - I’ll bring this up
I had to deal with this short-term because I had untreated anaemia, and it really made me realise what it would be to deal with it long-term and how chronic fatigue or ME could stop you from being able to hold down a 9-5 job. I could walk to and from university (a five minute walk), but as soon as I got home I had to sleep for hours, and I basically spent all my spoons on student-ing and was utterly screwed for the rest of the day and for the whole weekend. If I had more than one lecture in a day, the second one was a complete crapshoot as to whether my brain would be working or would just be mush. I knew what it was, and I knew that I had an appointment for bloods coming up soon and that it would all be fixed, so I at least knew that it was only a short-term issue. But god, if I had to deal with it in the long-term with no idea what was wrong with me... I'm incredibly impressed at the strength of everyone dealing with chronic health conditions. Not strength as in "omg, you're so inspiring", but just... The fact that you can carry on with life the best you can when it's so crushing and exhausting. Props to you, and I hope you get the diagnosis that you want.
Fyi, most doctors either don't know anything about ME/CFS, have outdated and possibly harmful information, or believe it's a psychogenic (mental health) condition. I would suggest checking out online resources such as the advocacy org #MEAction at meaction.net and the patient forum phoenixrising.me for lots of info on diagnosis/testing, potential treatments, ME/CFS specialists, how to pace well, and moral support. Good luck in your journey and I hope you can get some acknowledgement and help!
Don't let them label you without testing for everything else. Can be all sorts including thyroid issues, and constant stress or anxiety will also do it to you. Being Mia diagnosed with me/cfs is hell for the people with the actual illness as then it gives medical persons a messed up untrue example of what we're really going through.
I've been following a lot of DID channels recently and stumbled upon DisociaDID just a few days ago. For anyone watching, DID is a very interesting condition and more common than some think. As for Jessica, I've been watching her for years and absolutely love her ♥️ What an awesome collab!
@@themusiquesystem5195 Yes, it's something I've been passionate about for years and seeing more and more channels pop up, and even collabs like this are incredible! There's so much stigma and negativity surrounding those with DID and OSDD, but know that there are people who support you and all the other systems out there ♥️
YESSSSS OMG I'VE BEEN WANTING THIS COLLAB SINCE I STARTED WATCHING THE DISASSOCIADID SYSTEM. THEY ARE SUCH A LOVELY SYSTEM ;;_;; Chloe hearted one of my comments & replied about my exfiance who I believe has undiagnosed DID cause I miss the other people within the body despite not being about to interact with the body anymore.
It's funny. I sat here and was like, "yes, yes, yes, same, me as well..." My doctor told me to "power through it." Like, trying to makes it worse... And generally puts me out for longer... He also brought up another patient of his that was worse off than I am. And he decided to attribute it to my mental health problems and not my physical health issues that have been prevalent for years... Granted, I'm going to find another doctor soon, as he did something else I really did not like, and hopefully things'll move from there. But as for now, I'm living with undiagnosed exhaustion that can take me out for days at a time 🙃
@Hellena Rose My goal isn't to. I wish someone would take me seriously. That's all. My apologies if it came off that way. And there's barriers in my life that are making getting to another one hard currently, so it's not a quick process, unfortunately.
That's the worst thing your dr could have told you to do! Unfortunately, most doctors either don't know anything about ME/CFS, have outdated and possibly harmful information, or believe it's a psychogenic (mental health) condition. I would suggest checking out online resources such as the advocacy org #MEAction at meaction.net and the patient forum phoenixrising.me for lots of info on diagnosis/testing, potential treatments, finding good ME/CFS specialists, how to pace well, possible co-morbities, moral support, etc. Hope you are able to use those resources as your doctor is being so unhelpful!
That's horrible, and even if it was just due to mental health, it is a terrible approach. It's not like you are doing it to yourself. Some doctors are just straight up assholes. And many people just accept it. And end up not getting adequate medical attention.
I'm a month late but I practically squealed with joy at seeing two of my favorite youtubers being adorable together! Chloe and everyone in the DissociaDID system are wonderful and I've learned so much from them all about DID and trauma and Jessica and her willingness and thoughtfulness to share her knowledge on disabilies and his history of disabilities have taught me so much. Ugh basically you both are rays of sunshine and I wish you both everlasting happiness.
The whole not being able to live a childhood resounded in me, i was diagnosed with ME at 9 but was quickly discharged from specialists and never got the help and by the time I relapsed at 17 last year, I only just understood what it was and that everyone didn’t feel constant pain and fatigue lol (I doubted my sickness for so long) I love this video and it’s so encouraging to see other people who have dealt with similar things, thank you for sharing it 💕
So.. here’s a funny. I’m watching this and halfway through my face starts hurting. And I realize that I have this huge smile plastered on my face, which shocked me to be honest. I had to stop the video and ask myself “why am I smiling?? They are talking about a condition with such a serious impact on day to day life..”. And I really had to take the time and acknowledge my emotions. Two human beings that I’ve never seen in my life- probably never will, managed to transfer their positivity to me. I cannot relate to DID or chronic fatigue but i relate to dealing with different struggles. I absolutely love their state of mind and the way they approach talking about and dealing with disability. Both Jess and Chloe/Nin are so inspiring and just exist beautifully on this planet in a way thats so organic and unrefined. Looking at you, I cannot help but smile ❤️
As a 20 years old woman I've been using the internet for the most part of my life, but I still find fascinating how easily influencers with large audiences can educate people. It's really not that hard to watch a UA-cam video while driving somewhere or eating. It's easey, but you still getting new knowledge. Being subscribed to Jessica helped me to start searching for information about deafness, and various disabilities, and other topics. I even remembered my childhood dream to learn sign language. And this 15 minutes long video became the catalyst for my research about dissociative identity disorder. Thank you, Jessica and Chloe! That was really fun and educational, you're both such amazing youtubers ♥ p.s. sorry about my english, I'm only learning this language
My mom has had chronic fatigue for my entire life, and I am so glad to see you educating people about it! She just stopped going to doctors because no one believed her... “but you don’t LOOK sick!” She is the strongest and bravest person I know.
I love it when some of my fave youtubers collab. On anything. Both are amazing at teaching and explaining, and they always make me reflect on lots of new thoughts.
Hello Jessica. Excellent collaborative effort put forth by the two of you. Real people communicating their personal life experiences with such openess & honesty. Refreshing. And quite educational, especially to those who are not familiar with such diagnoses or are not aware of the specifics of certain diagnoses. You are truly helping people across the spectrum. Thank you, ladies. Lovely as always 👍🤟💝
Thank you for everything both of you do!! You have saved my sanity (and let's be honest.... my life) numerous times!! As someone who also has an incurable, invisible, debilitating disability, I can't do much. So on my really bad days when I'm stuck in bed, in extreme pain and can't move, I just put on one of your channels and binge watch it for hours and sometimes days. It might sound ridiculous but it helps get me through all im going through. I love you both so much!! P.S. please tell Claudia she is an amazing woman and I love her too!!
Dear Jessica & Chloe, I want to say a huge thank you for shining a light🌟on a topic that needs more attention: invisible disabilities. This video helped to create a sense of belonging in me that has been missing. It is a comfort to know that your experiences mirror mine in many ways. 💖 It’s difficult to feel alone in this, as I have no partner to turn to. This is invaluable, & I’m certain I will return to watch this video many times for support. Thank you so much! 💞 Love & hugs always, Belle🦋
What a nice surprise crossover! I love both of your channels, they are both so educational and you are both such lovely people as well! Great content + great personality = LOVE LOVE LOVE
@DesertRoseWishes all in one gulp probably, but if you spread it out throughout the day, your body has time to remove excess water to keep a consistent balance of water for osmosis and other bodily stuffs
I'm more worried about what it could imply. Being unexplainably really thirsty is an early sign of type 1 diabetes, especially if it just started out of nowhere. If it's always been like that and it works for her, then it might be fine, she could just have really fast metabolism and has to pee a lot.
ArtBook&Gaming I do know that it helps my pots to drink about that much in a day:) although I rarely do because I don’t have the energy to get up to pee that much hahah
@DesertRoseWishes Hmmm. Not familiar with that but it sounds interesting. Also, this video from her explained a lot: ua-cam.com/video/A5KzgfRPfas/v-deo.html
I'm so thankful that videos like this exist now. I really would have loved it when I was in middle school gym class and consistently called lazy and not trying hard enough. I was built like a giraffe too so everyone thought I should be amazing at sports or something.
I am so excited to see this collab! Both yours and the DissociaDID systems' videos are probably my most watched videos on UA-cam and I almost feel like I want to cry (from happiness, though there is a bit of fun migraine/fatigue induced tears in there too :P ). I have a combination of rare diseases which have caused me to become housebound (in isolation due to the severity of my conditions) and mostly bedbound (Mast Cell Activation Syndrome, Hypermobility Spectrum Disorder, Erythromelalgia and Dysautonomia *likely POTs* with a nice healthy dose of chronic fatigue) and I don't think I can adequately express how much both yours and Chloe's videos have given me in terms of comfort, laughter and education. I thank you truly, with my whole heart. Much love!!
Have you watched any of Chronically Jaquie's videos? Jaq unfortunately passed away earlier this year, very unexpectedly, but as far as I'm aware her husband has left up her channel and all of her past videos. She dealt with Mast Cell, POTS, and EDS, among others - a lot of people seem to have that combination! - and a lot of her videos are very similar to Jessica's in that she discussed techniques, treatments and equipment that helped with various conditions. If you haven't seen any of her stuff yet, you might find it useful given the similarity of some of your conditions.
Thank you so much for doing this collab! I can’t begin to express to you as someone with DID how wonderful it is to see positive representation of us in the media. Where it’s like « hey here’s a person with DID we’re actually not focusing on their DID because there are other aspects to them. » and just y’a thank you so much you are so lovely
As someone who has overt DID and complex regional pain syndrome (type 2 with present nerve damage) also known as reflex sympathetic dystrophy and now has a dorsal root ganglion spinal cord stimulator implant in my back to help the severely damaged nerves in my leg be less painful so that I can actually use it and avoid the dystrophy part of the RSD, I can freaking RELATE to doctors fudging things up. I love this collab and I'm grateful for it. Truly, I can't explain how grateful. I feel a little less alone watching your videos, both of you. 🖤
You girls are so cute your personalities form into the biggest bundle of joy I just love to watch. I really hope you make more videos together in the future.🌈
Agh loving Chloe's amazing sign language. And seeing two of my faves together ^_^ Especially related to the part about 'just' depression. I have a disorder which includes chronic fatigue and excessive daytime sleepiness as symptoms.... for so long me and my doctors all wrote it off as depression, and now I think actually this triggered my depression in the first place! Thank you both for making this. Every time I remember you needed to lie in a dark room for 2 years I wince so hard for you. I'm so glad you pulled through that Jessica. xx
Watching this video reminded me that I hadn't taken my meds. So thanks love both your channels a lot as I have a both DID and a similar connective tissue disorder and was very alone before finding people like me exist.
thank you so much for the captions, i have a heard time understanding things so i have to read the words being said and hear them to properly understand so thank you so much
So excited for more jessica content!!!! Love you both (and all your alters chloe), and hi to claudia and the pups!💖💕 You're so amazing, inspiring, and beautiful! PS Congrats on half a million!
Yes! Two of my favorite people! It’s funny, this video popped up at the same time that I was laying down after nearly passing out from cfs and heat this morning. I was just telling my mother when my cfs acts up I’m so exhausted at times that even eating is a chore. I can sit with my plate too exhausted to lift the fork or even chew sometimes 😢 It’s so validating to see someone speak up about this condition! I’m not lazy! Just broken! Love you ladies!!
😍 I just found your channel and I adore you! I have been watching DissociaDID for over a year 😁 so happy you guys did some stuff together! So excited to watch and learn ❤
Came here because of DissociaDID... but am now an instant fan of Jessica! Love you both, please continue to do collabs in the future! 💕 I, myself am a daily chronic migraine warrior... and I find the content that both of you produce to be so inspiring! Will continue to be a big fan of both channels! 💜👌🏼
It’s nice to hear someone else talk about how when they think back to when they were kids that they were always I’ll, and not that it was some big event that caused it. Whenever I’m asked by doctors when my symptoms started I’m like “um, since I was born?”
First of all it I just started watching DissocialDID a couple weeks ago. So crazy that you did a collab! My mental/physical health is a mess. The system I'm in can't seem to really help me with anything. It's all so stressful and just a mess. I've been referee out for several things. First I had a sleep study, but that doctor only gave me the results on sleep apnea -- nothing else. I've got an allergist who I get allergy shots from-- he tried to tell my re-flux would be cured it I just raised my bed and my migraines would be cured if I stopped drinking caffeine-- please, still to your own expertise thank you. And I can not even begin to tell you how long I've been trying to get into a neurologist to work on my migraines. That still leaves me with my gastro problems, chronic and wide spread pain, numbness in my hands, and others. That doesn't even begin to factor in the depression and anxiety. My anxiety was out of control for a while, but it's back to tolerable. The depression is at a maintenance level. Wow, that felt great to get off my chest. Hopefully, I get it all sorted out eventually.
Yeah a new video!! I actually love to learn new things about these conditions, I may need to use these facts in the future ~ and watching two beautiful and positive people is a delight!
For a few years I have been subbed to you and seeing this video you did with Chloe really made my day because both of you have inspired me so much and helped me through a lot. Chloe helped me understand Dissociative Identity Disorder more since I live with it daily and Jessica you helped me realize through your chronic fatigue video that something was wrong physically and helped me push to get my fibromyalgia diagnosed. Thank you both for making such an awesome video and working so well together. 💕
You uploaded this just as I'm opening my delivery from collectif (yaya sales!). Fantastic timing! Thank you for uploading this kind of video, it's so important and you make these topics feel less scary. Thanks to you both :)
I just found your channel. I've been subscribed to dissociaDID for awhile now and then found you through watching Jammidoger. Then this video popped up. I was diagnosed with ME when I was 15 (I'm 30 now) and also am now in the category of Fibromyalgia and I have depression. This video was a pleasure to watch because it is so nice to be able to relate to someone about these conditions. For me, I get shut down from reading my school books which is so helpful since I'm still in school. 🙃 So, as much as I value my knowledge and intelligence, I like to turn it off in my down time. Also, I didn't know just falling asleep on any floor was a thing. I often fantasize about just dropping.
It's funny. Hospitals are strangely an incredible source of comfort for me. They make me feel seen and looked after more than any other place or experience, and my anxiety is virtually nonexistent when I'm in one.
My mum lives with fibromialgya, chronic fatigue, ME, arthritis, and other things I don't even know how to spell or pronounce. This video has actually helped me understand how it differs and affects everyone differently.
It was lovely watching you guys fall into friendship! 💜 A note about the 'work on your mental health and your physical health will get better' nonsense, a doctor admitted to me last week, "Doctors like checking boxes. If a doctor doesn't know what's wrong with you, oftentimes they'll give you a diagnosis of 'anxiety' or 'panic disorder' just so they have something to put on the paper." 😡
I came from DissociaDID and I love your style! I can’t wait to watch more of your videos. This setting was so intimate and amazing. You’re both such elegant speakers and this was such a good conversation thank you for sharing it with us.
I couldn't imagine what you guys go through. One of the side effects of my tablets is fatigue. Its makes me exhausted. But its nothing on this level. All the love and support to people out there with it
Yesss my faves! ❤️❤️ And I can relate since I got a chronic fatigue diagnosis when I was young. My experience is not the same though, it turned out (after 10 years trying to get diagnosed) to be caused by a few different underlying conditions so it manifests pretty differently.
In the 90s the UK changed the name from M.E to C.F.S and that continues to be the name doctors are taught (in the rare instances where they are taught about it) which is why they use it interchangeably (as many patients prefer the term M.E yet any of us who were diagnosed in the 90s early 2000s will have C.F.S written as their official diagnoses. In the medical community they are the same illness, and even in general society they are (which is why many of us write M.E/C.F.S). However, neither are to be confused with C.F (chronic fatigue) which is a symptom, not a diagnosis or illness in itself.
Exactly this!! I am bedbound / housebound. With symptoms in my whole body, pain, and severe exercise intolerance. I get lumped in with people who clearly do too much stuff in their life on a bad diet and are just "chronically fatigued". I know people who are extremely active and then run around saying they have CFS. Like hell do they.
Two of my fav diverse youtubers together :'). I've been following DissociaDid and Jessica for a while now! It makes me happy to see you together and happy. Thank you so much!
OH MY GOD i follow you both religiously and had no idea this would be a collab omg yes IM SO EXCITED TO WATCH thanks for putting this up! I think the stigma and lack of knowledge on DID sucks, even most of the mental health community doesnt know about this disorder so having bigger individuals cover the topic is a huge positive!
Thanks for this video ladies! I have me/cfs (interchangeable in NZ) and fibromyalgia syndrome plus others). Had it for 8 years + and I used to run for fun! Lol. 10km+ for fun, bike 50km+ for fun. Running marathons then chronic fatigue. Spent many years in a dark non stimulating room. Thanks for sharing your experiences. You go thorough grief (multiple times for me) but you get through it. Self care is definitely major.
I've been diagnosed with fibromygalia, chronic fatigue syndrome, depression and anxiety. So much of what you're saying resonates and I'm seeking to be reevaluated. Thank you for this it makes me feel less alone in all this
I am in the process of getting a diagnosis of CFS. I have been looking at a lot of things on line, and getting a lot of contradictory information. But listening to you girls is a breath of fresh air. I have always had mental health issues due to childhood trauma, but my health has been so much worse the last few years. Recently while in session with my psychologist we discovered a trigger event ( a flu like illness that lasted for many months, somewhere on the region of 6) after which my mental health and my general ability to cope became worse. When I heard you talking about thinking it was "just" depression I so related. Now that CFS is on the table it fills in the parts of the jigsaw I was missing so well. I have watched quite a few of Jessica's videos and they have REALLY helped. I now realise that it is ok to be the way I am, that it is not my fault.
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*Captions Currently Synching*
I hope you enjoy the video, and remember to go send ua-cam.com/users/DissociaDID some love!
Yay! Can't wait to watch it with cc (I need a bit of help :D )
Jessica Kellgren-Fozard Everyone in the DissociaDID system is amazing. I can’t tell you how happy it made me to see the you were working on videos with them ❤️ You’re amazing too lovely lady.
You need a trigger warning for all the medical talk in this video. I clicked because of DissociaDID and did not realize you would be describing in detail painful medical procedures. :(
Also I'm now starting to think I might have this because I also avoided running. Pretty much all through school I found P.E. to be an exhausting and stressful time. I had a heart attack while running in the sixth grade. Oddly even though excersizing is something most people do to lose weight I found that I actually lost weight after I finished high school and was no longer being forced to excersize on a daily basis. I later found out that stress can make you gain weight so it turned out the reason I was so over weight in school is because I was excersizing every day. Of course I've since gained that weight back for entirely different reasons that have caused me stress.
I do not understand people who find excersize to be relaxing. To me it's stressful and exhausting. Just doing warm ups I was already exhausted and pretty much just laying on the ground wandering if I was going to pass out... I've never heard of anyone else having this problem till I heard the two of you talking about it in this video.
OMG, you had dislocated your jaw, a day before moving house?! Ouch! Btw, I really enjoyed all your informative videos on such topics, it really teaches me a thing or two, expanding my little world a bit more.
Hey! This is so weird for me bc I've been watching you for months now Jessica, but I only discovered the channel of the very lovely Chloe the day before yesterday & I've been binging ever since! I had no idea what amazing act of kismet got Chloe & friends on my feed but I'm not one to look a serendipitous gift horse in the mouth so I just took the win. I guess now I know what it was, although kinda weird the algorithm took so long to show me this if it was catalyst.
Anyways, I just wanted to say that I was diagnosed with fibromyalgia more than 10yrs ago, among other things as is so often the case, & I was lead to believe that fibro & CFS are almost exactly the same thing. The distinction made to me at the time, which honestly felt pretty semantic, was that fibromyalgia is a chronic pain condition with associated intense fatigue & Chronic Fatigue Syndrome is a chronic condition of intense fatigue with associated chronic pain. They honestly made it sound like whichever symptom was slightly worse & could be characterized as the chief complaint determined the diagnosis. From your video I gathered that things had changed so I looked it up & both the UK's NHS site & the Mayo Clinic here say that CFS/ME is one condition with 2 names. I'm so confused as to how such major medical authorities could be so careless & inaccurate. What actually is the difference why don't they recognize that there's any distinction at all?
Love you both so much! Thanks for doing what you do! It helps a lot! After spending a few hours grocery shopping in one of those moderized shopping carts, getting dirty looks that clearly convey "but she's so young & she doesn't look sick. She shouldn't be stealing that cart from a real disabled person" & making a point to hold my back & make my limp more obvious when I get up so people don't look at me like I'm a horrible person for needing it, watching your videos really makes me feel better. Sometimes you just need to hear someone else to say, "You have nothing to prove to them & no matter how 'young & healthy' you may look to them, you ARE valid, your conditions DO matter & I know that having an invisible illness doesn't make your pain disappear." You guys do that for me. I can't ever express what that means to me, but I have a feeling you already know. To begin to repay the favor, I hope you all know that YOU are not only valid & worthy of love, kindness, respect & empathy, but you're an inspiration to the rest of us. You are NOT alone! We walk through this life with you & while many may not realize it, NONE of us ever take a single step by ourselves. Much like our illnesses, just bc you can't see us doesn't mean we aren't there with you all the time. 💙💋💜
Chloe fiddling with the tulle of Jessica's dress (and Jessica inviting her to do so) is one of the cutest things I've ever seen 😭
Omg, I know how grounding this is. I used to fight panic attacks by going to the small fabric store near my college. The right times of day it would be practically empty (which is probably why it went out of business, unfortunately). I would walk back and forth through all the aisles running my hands over each of the bolts. It was grounding to feel so many different textures.
Timestamp, because you lovely people deserve it:
9:46
💜💜💜
Probably one of the littles
I hate tulle, I have autism and certain textures feel like my skin is burning off, including tulle and felt. But, I do understand how grounding it could be to someone else. I find that cotton, velvet (or similar fabric) and leather really ground me and make me feel calmer
I have to agree. It was so sweet.
" The whole.... *system* "
Ooh the unintended double meaning
That is a term persons who have DID use to describe how their many selves are in one body. It is a system. That is my understanding and definition, though perhaps not exactly absolutely correct.
Ruth Christianson
Yep, as someone with DID that’s the most common terminology. Basically a way to describe all of the alters (alternate personalities) all in one body.
lol
Damn, as always thought 'Alters' meant alternate states of consciousness🤦🏽♀️ I need to pick up a book😂
@@candygurlxxx178 No that's what it means, Alters does indeed stand for Alternate states of consciousness. Most people will say 'alternate personalities' as it was previously known as multiple personality disorder and although most people are ok with using personalities they aren't exactly. Well, I'll stop rambling because all I meant to say was you thought correctly. - Paige
HOW DID I NOT KNOW THIS EXISTED!!!!!!!!! IVE WATCHED BOTH THESE PEOPLE FOR AGES AND SOMEHOW DIDNT KNOW THIS COLLAB EXISTED!!!!!!!!!!!!! AAAAAAHHHHH IT WAS SO GOOD!!!!!!!!!!!!!!
Right?! Is just what happened to me now
Same! Also, 69th like.
I totally feel you in this comment haha!! omggg
SAME OMG
ME TOOO!!!!
I'm very happy to see this as someone with Dissociative Identity Disorder. A lot of people really don't understand it and seeing someone with a platform as large as yours help share that we're not scary and dangerous. Much love to both of you 💕
I have DID but the psychiatrists around here don’t believe in it so won’t diagnose me. My psychologist however knows I have it.
Agreed, I'm really glad they are helping other people understand what I and others deal with everday
Mood. It's severely underdiagnosed and unrecognized, and every bit of public education helps.
You are a beautiful human being and I am sending you hugs and love from WA
Likes: 665
Me: adds a like
Also Me: I just summed Staten
Jessica's nightmare story about the lumbar puncture makes me so angry every time I think about it. The fact that she can find humor in the whole ordeal today is an incredible sign of strength.
She's so inspiring 💖
My Dad had a horrible time with a lumbar puncture, I think it was probably exacerbated by his neurological condition(MSA) but he ended up really sick and then dehydrated. I remember visiting him in the hospital, he was so pale, and he could barely talk. I can't remember now whether his neck muscles had atrophied before or after the lumber puncture, either way his neck muscles basically stop being able to hold his head up and so he was always at risk of choking and really couldn't eat very well. Either way, Lumbar Punctures scare the crap out of me. Also Jessica is amazing.
@@Aconitum_napellus I've always been afraid of a lumbar puncture because I hate the idea of needles being stuck inside me (blood tests and vaccination are scary, but I have to do them anyway) and because the spine seems like a sensitive spot to me. But I never knew that it was risky beyond spinal headaches - or infection if not sterilised properly. *fear intensifies* But was the atrophy of his neck muscles stimulated by the lumbar puncture or did it just coincide with it? Correlation is not causation.
Having LPs done by med students and having them done by trained doctors or radiologists makes a WORLD of difference. I had a similar experience to Jessica's when I was 18, only instead of stabbing me with the needle multiple times, the student dug the needle around in my back trying to find the correct location. It was arguably the worst hour of my life. But the next day, they popped me downstairs to radiology and the whole thing was over within 30 minutes.
It should be illegal having medical students doing LP without having done it successfully on a dummy (or corpse) at *least* a couple dozen times.
I had it done by an "expert", and still it was the most painful thing I've done.
Oh and him saying something along the lines of "Your spine discs are a bit too close together, I'll have to use this other spot. Don't worry, the chance for permanent nerve damage doesn't go up by much, now hold still"...
Well, let's just say that having a painful procedure, where moving can result in paralysis, done by a medical student would be a HUGE *NO* from me.
PS, I had insane headache for a week after, it didn't go away until I had a cup of coffee, hated it before but from that point on I love coffee. It was my wife that knew it might help, bless her.
PPS, I've said that if they need a second LP they can just prepare a pine box for me instead. And I'm not entirely sure if I'm joking or not...
God, Chloe (or Kya now) and the whole system articulates themselves SO well no matter what they're talking about 🥺 I'd listen to them talk abt literally anything for hours ❤️
i’m seven months late but this is the crossover i’ve been waiting for
YES!!!!!!!!!!!!!!!!!!!!!!!!!!
I literally LOVE Jessica and Dissociadid and I'm just now finding about this video and I could not be happier
maybeitskogayne yes
maybeitskogayne same
I love how chloe plays with the tool to keep grounded. I was fully waiting for a Kyle switch out because he seems to like joining in at random times haha. Love you kyle
Well, she is Nin now, but the person we are seeing in this video is 100% Chloe, Nin didn’t exist and was nowhere to be seen during this video so the correct way would be “Chloe”.
I don’t wanna coma across as rude, just as informative :)
Isabella Bustamante no that actually helps thank you. I’m so used to changing names because of the trans friends around me that I automatically change it. I don’t take offence thank you for politely explaining I was wrong.
Tianna Black you’re very welcome ☺️
I FUCKING LOVE THIS COMMUNITY GUYS ❤️ HUGS
Tianna Black I think Kyle makes a quick appearance at 2:46. You can notice a slight change in accent.
I miss the DissociaDID system so much, the internet is the worst, and I don’t think I’ll ever forgive the people that bullied them off of it
God I miss them a lot I hope they're doing okay
From what I can tell,
Their content was used as a foundation for people who were harmful to the community.
Which is why they had to take time off, they are not okay, but we can't really help either.
From everything I have seen, they weren't bullied off. The system was standing up for a child preditor, and either one of their littles, or someone else's little, was groomed. Its not just like "oh illness! Let's go poke it!"
There was a reason behind her leaving.
Did they leave for good?! I thought they were taking a break?
Louise A Schmal I don’t think they were standing up for them? I thought it was their partner system and they broke up when it came out because nins system didn’t know
Been waiting for ages for this! My two favourite educational youtubers!
Right life complete
They are also two of my most favorite youtubers, but for me this was unexpected. Their collab made me really happy though
I couldn't stop smiling when I found this video! I couldn't believe they found each other :))))
Y e s
We need both of them and molly!
If anyone is wondering why Jessica drinks so much water, partly it is because with POTS staying hydrated is imperative. Becoming dehydrated makes someone with POTS suffer with more symptoms. Along with that it is important to get enough sodium and other electrolytes because drinking so much "washes away" important electrolytes.
pots is so much fun fr
Thank you so much for having a TW for vomit! No one else does it/there's tons of films with scenes pertaining to it and it makes it difficult to navigate certain media.
if you don't already know about it the website 'doesthedogdie' has a category for it!
Same I’m emetaphobic
Jennifer Sturbaum inderd! Thanks!
yes! It made me so happy to see it! it gave me such a relieving feeling, to be able to avoid it, because as you said no one ever puts tw for that sort of thing
Same, I have emetophobia too so definitely know the struggle there
MY TWO FAVORITE PEOPLE WORKING TOGETHER?!?! 😍😍😍😍
I have been watching DissociaDID for a few months now!!! This is the collab I never expected that I am SUPER happy about!!!
Kyle's accent started kicking in
Because it's fake
@@MrsBestiaAzul 😂😂😂😂yep, i totally agree
@Mr.BlueBeast There's science behind it, maybe you should look into it.
I've loved both Jessica and Kya & Co for so long but never saw this video. I had forgotten Kya & Co had this disorder. I myself found out I had fibromyalgia a few years ago, and the chronic fatigue is exactly like Chloe described.
"When is depression /just/ depression?" When it is extremely temporary. -.-
So, pretty much never.
I’m a visually impaired lesbian from Somerset lmao, I used to watch your bsl videos years ago and seeing you now married to Claud and catching up on so many videos makes me so happy:)
I’m now 18 and studying to become a carer and doing work experience in a adults with learning disabilities school and just want you to know how inspiring you are and cheers for putting your story out there and keeping it real as situations are more relatable than we think:)
THEY LET A MEDICAL STUDENT DO THE LUMBAR PUNCTURE I want to perish 😭 if a dr asked me to do one I’d run away
To be fair, medical students need to learn to do these procedures on real people. They just need good supervision and proper followup, which obviously didn't happen in this case because she was discharged!
@@ceven526 thats true, I just assumed as its a procedure with some risks youd be taught during foundation years. IMO if a dr asks you to do something as a med student you feel you aren't well prepared for that has serious risks you should say im not trained im not doing this. Sad times for me if I get asked to do one
watch when i get told to do one in 5th year now 😂😂
I don't think I know ANYONE who has a good lumbar puncture story to tell, tbh. I had mine at age 12 and I'm 43 now and I refuse to ever have another one for any reason! 💗🌻
@@Elle-cg1dh I've had a lumbar puncture, and while it wasn't pleasant I was well taken care of! I was about 8, and they didn't know what was happening with me so I did in fact have specialists and they even put me to sleep for it because I was afraid. The aftermath was horrible and very blurry though - couldn't get to the bathroom or really move.
I enjoyed this so much. You have good chemistry and relate well to each other. Jessica, not everyone would understand that Chloe liked the tulle because it was grounding but because you are such a kind and caring person it didn't phase you a bit. Like the others that commented I have been waiting for this video ❤ and I appreciate the content. Such valuable information. Thank you.
just found the dissociaDID channel and have watched jessica for ages! amazing collab you guys
If I haven't done so already, I would like to wish you welcome to the Dis-Associate family. :)
Hope you enjoy it there, and that we can help you learn a lot. As always, please don't hesitate if there's something you're wondering about. All we ask i that you're respectful, and catious about possible triggering subjects. ;)
Christian F. thank you so much! that’s so lovely. i’m learning a lot everyday and i’m enjoying learning about a new community of people on the internet
@@mollysmith9606 You're welcome, and thank you too! Although it's 10 past midnight here, so not exactly "day" anymore. ;)
Hope you too have a brilliant day. :)
same (well i've been watching entropy theses last few days mostly, but the topic is similar + i really like the few videos i've seen of dissossiaDID channel) i'm a bit freaked out to see that collab now tbh :'D
I love the “Big Day Out” plan because it really could help me, not necessarily for my physical health, but for my mental health. I have bpd, adhd and bipolar and sometimes having a lot of stimuli around makes it harder to cope emotionally, so being more conscious about what I am going to do that day would really help me.
I had to get my dad to choose which video I watch first cause you and dissociaDID uploaded at the same time and the decision was too difficult
Where the right next to each other, because mine were
To Jessica and Chloe. Thank you so much for this video. I have suffered from ME for 12 years. It means so much to hear the two of you talk about it as ME makes me feel so isolated. You are both delightful. I could listen to your banter all day.
Thank you so much for this video!! I don't have ME/Chronic fatigue but I have fibro/chronic pain which often comes with extreme fatigue. Chloe's story about getting fatigued just doing chores or cooking really resonated with me. Cleaning my house sometimes takes me an entire week because I can only do so many things before I physically have to sit down. I love to cook and bake, especially for other people, but I have to pace myself or otherwise I get very stressed. I'm constantly trying to think of how I can cut corners in recipes; I buy lots of prechopped veggies and fruits because sometimes it's just too hard for me to cut them myself! It often leaves me feeling guilty/lazy but I'm just having to learn that the way I have to live my life is different and that's ok!
Yes all this!
I've gotten creative with doing cooking tasks on a cutting board on my lab while sitting on the couch, since standing up is a huge trigger for my symptoms. I also tend go set a timer when doing tasks like washing dishes that require standing, otherwise I'll forget to stop while I still feel okayish, and end up confused, and dropping things, with a major headache.
But some days, nothing beats "lazily" ordering takeout
Same! Fibro warrior and fellow Spoonie here, too! 99.9% certain I have chronic Lyme. Previously, I was a chef. Now, it's upsetting to be knocked out just making one small meal. The guilt can be heavy, but like these lovely ladies pointed out: it's all about learning your triggers and self care. Thanks again for the video, Chloe & Jess!
Same here. If you have someone who is willing and able, sometimes I have them help with chopping the veggies in bulk and freezing them. The freezer is my friend! lol
Thank you. I have fibro too, and have a hard time with exhaustion because it fluctuates and can feel almost like I'm making it up. Hearing that other people have the same symptom is reassuring
Not quite to that extent, but I do experience a very similar thing where I am ALWAYS tired. In my case it's that if I don't set an alarm, I will sleep forever. Like I will literally stay in bed until I have a headache rather than wake up. I have slept for like thirteen hours before. And I've always known it's not NORMAL, but I also always thought it was just my sleep pattern being that bad and eventually it would correct itself.
I'm now wondering if it's depression or something - because I do also have a habit of looking at a task and going "Not right now, that's too hard", even if it's only going to take five minutes. I just feel like I have no energy to do stuff. So I feel your pain lol.
I've been eagerly waiting for this collab! I've never heard Chole describe her fatigue in detail, and mine is very similar. I also have Fibromyalgia, Postural Orthostatic Tachycardia Syndrome, Hypothyroidism, Polycystic Ovarian syndrome, and weird flushing and sweating (sometimes hives) that make it hard to stand, walk, go outside, or do basic hygiene. I know it's a mouthful.. and that people probably don't want to read long walls of text like this, but I appreciate you both sitting down and talking about this. This changed my life suddenly, and drastically, and I've had to fight doctors the whole way. I feel a little less alone, so thank you both! Also, I wanted to add that extreme emotions are also a big trigger for me. So even laughing too much is exhausting. It makes relationships difficult.
I know it's 3 years later, but look into Mast Cell Activation Syndrome (MCAS) for your flushing and hives if you haven't already.
@@pocketluna3607 I actually tested negative for MCAS. It ended up being histamine intolerance. Thank you though!
Having a lower energy is something I've struggled with most of my life and it's something I constant feel guilty over after seeing other people and people in movie and shows. One of the things I take away DissociaDID's videos is not feeling guilty for recognizing my triggers and respecting them. Thank you both!
It feels so good to hear other people talking about these things. Especially how you have to plan to take several days to recover after a day of doing something that other people might not think is that big of a deal, but for you is totally draining. A lot of people really don’t understand that, and it’s so good not to be alone in it.
Rewatching this video years after it was made and since coming to realise I have CFS has made such an incredible impact on my self acceptance ❤❤❤❤ thanks so much guys :) love you both so much
Never saw this collab coming but I love both of these channel and I’m happy they collabed
Can I just say thank you so much to both of these amazing people for always putting trigger warnings? Because sometimes avoiding hearing certain things can really save me from a panic attack. Absolutely love that they do this. THANK YOU!
Wait... oh my! This explains so much of my life, the near constant exhaustion- some days I’m okay, sometimes it’s just like I’ve had my batteries removed; I just can’t move, I’m exhausted 😩 literally just booked an appointment. You guys are my favourite youtubers and thank you for educating me on this! It’s like, walking to the shops, it just zaps me for hours - I’ll bring this up
I had to deal with this short-term because I had untreated anaemia, and it really made me realise what it would be to deal with it long-term and how chronic fatigue or ME could stop you from being able to hold down a 9-5 job. I could walk to and from university (a five minute walk), but as soon as I got home I had to sleep for hours, and I basically spent all my spoons on student-ing and was utterly screwed for the rest of the day and for the whole weekend. If I had more than one lecture in a day, the second one was a complete crapshoot as to whether my brain would be working or would just be mush. I knew what it was, and I knew that I had an appointment for bloods coming up soon and that it would all be fixed, so I at least knew that it was only a short-term issue.
But god, if I had to deal with it in the long-term with no idea what was wrong with me... I'm incredibly impressed at the strength of everyone dealing with chronic health conditions. Not strength as in "omg, you're so inspiring", but just... The fact that you can carry on with life the best you can when it's so crushing and exhausting. Props to you, and I hope you get the diagnosis that you want.
Fyi, most doctors either don't know anything about ME/CFS, have outdated and possibly harmful information, or believe it's a psychogenic (mental health) condition. I would suggest checking out online resources such as the advocacy org #MEAction at meaction.net and the patient forum phoenixrising.me for lots of info on diagnosis/testing, potential treatments, ME/CFS specialists, how to pace well, and moral support. Good luck in your journey and I hope you can get some acknowledgement and help!
Don't let them label you without testing for everything else. Can be all sorts including thyroid issues, and constant stress or anxiety will also do it to you. Being Mia diagnosed with me/cfs is hell for the people with the actual illness as then it gives medical persons a messed up untrue example of what we're really going through.
Did you end up finding out what was wrong?
I've been following a lot of DID channels recently and stumbled upon DisociaDID just a few days ago. For anyone watching, DID is a very interesting condition and more common than some think.
As for Jessica, I've been watching her for years and absolutely love her ♥️ What an awesome collab!
Strawberry_ Raine we love seeing other people becoming involved and educating themselves with this disorder
@@themusiquesystem5195 Yes, it's something I've been passionate about for years and seeing more and more channels pop up, and even collabs like this are incredible! There's so much stigma and negativity surrounding those with DID and OSDD, but know that there are people who support you and all the other systems out there ♥️
Strawberry_ Raine aww thanks love-Hailey/Ary
YESSSSS OMG I'VE BEEN WANTING THIS COLLAB SINCE I STARTED WATCHING THE DISASSOCIADID SYSTEM. THEY ARE SUCH A LOVELY SYSTEM ;;_;;
Chloe hearted one of my comments & replied about my exfiance who I believe has undiagnosed DID cause I miss the other people within the body despite not being about to interact with the body anymore.
The last message about taking care of yourself and not feeling guilty.. That meant everything to me. Really. You have no idea. Thank you.
It's funny. I sat here and was like, "yes, yes, yes, same, me as well..."
My doctor told me to "power through it." Like, trying to makes it worse... And generally puts me out for longer... He also brought up another patient of his that was worse off than I am. And he decided to attribute it to my mental health problems and not my physical health issues that have been prevalent for years...
Granted, I'm going to find another doctor soon, as he did something else I really did not like, and hopefully things'll move from there.
But as for now, I'm living with undiagnosed exhaustion that can take me out for days at a time 🙃
I'm sorry you've had this experience. I hope you find a new doctor that gives you the care you deserve!
@Hellena Rose My goal isn't to. I wish someone would take me seriously. That's all. My apologies if it came off that way.
And there's barriers in my life that are making getting to another one hard currently, so it's not a quick process, unfortunately.
That's the worst thing your dr could have told you to do! Unfortunately, most doctors either don't know anything about ME/CFS, have outdated and possibly harmful information, or believe it's a psychogenic (mental health)
condition. I would suggest checking out online resources such as the advocacy org #MEAction at meaction.net and the patient forum phoenixrising.me for lots of info on diagnosis/testing, potential treatments, finding good ME/CFS specialists, how to pace well, possible co-morbities, moral support, etc. Hope you are able to use those resources as your doctor is being so unhelpful!
That's horrible, and even if it was just due to mental health, it is a terrible approach. It's not like you are doing it to yourself.
Some doctors are just straight up assholes.
And many people just accept it. And end up not getting adequate medical attention.
I'm a month late but I practically squealed with joy at seeing two of my favorite youtubers being adorable together! Chloe and everyone in the DissociaDID system are wonderful and I've learned so much from them all about DID and trauma and Jessica and her willingness and thoughtfulness to share her knowledge on disabilies and his history of disabilities have taught me so much.
Ugh basically you both are rays of sunshine and I wish you both everlasting happiness.
The whole not being able to live a childhood resounded in me, i was diagnosed with ME at 9 but was quickly discharged from specialists and never got the help and by the time I relapsed at 17 last year, I only just understood what it was and that everyone didn’t feel constant pain and fatigue lol (I doubted my sickness for so long) I love this video and it’s so encouraging to see other people who have dealt with similar things, thank you for sharing it 💕
I adore her. You each, as you're own creators, have helped me emotionally and physically cope. It's so genuine. Love y'all
I didnt know there was a colab from jessica and dissociadid!! blew my mind! love it
I love these lovely strong women. As someone with several chronic illnesses this meant so much. Thank you.
So.. here’s a funny. I’m watching this and halfway through my face starts hurting. And I realize that I have this huge smile plastered on my face, which shocked me to be honest. I had to stop the video and ask myself “why am I smiling?? They are talking about a condition with such a serious impact on day to day life..”. And I really had to take the time and acknowledge my emotions. Two human beings that I’ve never seen in my life- probably never will, managed to transfer their positivity to me. I cannot relate to DID or chronic fatigue but i relate to dealing with different struggles. I absolutely love their state of mind and the way they approach talking about and dealing with disability. Both Jess and Chloe/Nin are so inspiring and just exist beautifully on this planet in a way thats so organic and unrefined. Looking at you, I cannot help but smile ❤️
As a 20 years old woman I've been using the internet for the most part of my life, but I still find fascinating how easily influencers with large audiences can educate people. It's really not that hard to watch a UA-cam video while driving somewhere or eating. It's easey, but you still getting new knowledge. Being subscribed to Jessica helped me to start searching for information about deafness, and various disabilities, and other topics. I even remembered my childhood dream to learn sign language.
And this 15 minutes long video became the catalyst for my research about dissociative identity disorder.
Thank you, Jessica and Chloe! That was really fun and educational, you're both such amazing youtubers ♥
p.s. sorry about my english, I'm only learning this language
My mom has had chronic fatigue for my entire life, and I am so glad to see you educating people about it! She just stopped going to doctors because no one believed her... “but you don’t LOOK sick!” She is the strongest and bravest person I know.
I love it when some of my fave youtubers collab. On anything. Both are amazing at teaching and explaining, and they always make me reflect on lots of new thoughts.
Hello Jessica. Excellent collaborative effort put forth by the two of you. Real people communicating their personal life experiences with such openess & honesty. Refreshing. And quite educational, especially to those who are not familiar with such diagnoses or are not aware of the specifics of certain diagnoses. You are truly helping people across the spectrum. Thank you, ladies. Lovely as always 👍🤟💝
Thank you for everything both of you do!! You have saved my sanity (and let's be honest.... my life) numerous times!! As someone who also has an incurable, invisible, debilitating disability, I can't do much. So on my really bad days when I'm stuck in bed, in extreme pain and can't move, I just put on one of your channels and binge watch it for hours and sometimes days. It might sound ridiculous but it helps get me through all im going through. I love you both so much!! P.S. please tell Claudia she is an amazing woman and I love her too!!
I have Chronic Fatigue Syndrome too, and it was so amazing to see someone that I admire talk about it - so thank you! ♥️
Dear Jessica & Chloe,
I want to say a huge thank you for shining a light🌟on a topic that needs more attention: invisible disabilities.
This video helped to create a sense of belonging in me that has been missing. It is a comfort to know that your experiences mirror mine in many ways. 💖 It’s difficult to feel alone in this, as I have no partner to turn to. This is invaluable, & I’m certain I will return to watch this video many times for support.
Thank you so much! 💞
Love & hugs always,
Belle🦋
What a nice surprise crossover! I love both of your channels, they are both so educational and you are both such lovely people as well! Great content + great personality = LOVE LOVE LOVE
Jessica: I drink ~8 liters a day.
Me: How? I barely get 2 liters and quite often not even that.
@DesertRoseWishes all in one gulp probably, but if you spread it out throughout the day, your body has time to remove excess water to keep a consistent balance of water for osmosis and other bodily stuffs
@DesertRoseWishes 7l/h is enough, but in a day, no. Pretty sure you'd drown before you got water poisoning.
I'm more worried about what it could imply. Being unexplainably really thirsty is an early sign of type 1 diabetes, especially if it just started out of nowhere. If it's always been like that and it works for her, then it might be fine, she could just have really fast metabolism and has to pee a lot.
ArtBook&Gaming I do know that it helps my pots to drink about that much in a day:) although I rarely do because I don’t have the energy to get up to pee that much hahah
@DesertRoseWishes Hmmm. Not familiar with that but it sounds interesting. Also, this video from her explained a lot: ua-cam.com/video/A5KzgfRPfas/v-deo.html
I'm so thankful that videos like this exist now. I really would have loved it when I was in middle school gym class and consistently called lazy and not trying hard enough. I was built like a giraffe too so everyone thought I should be amazing at sports or something.
I am so excited to see this collab! Both yours and the DissociaDID systems' videos are probably my most watched videos on UA-cam and I almost feel like I want to cry (from happiness, though there is a bit of fun migraine/fatigue induced tears in there too :P ).
I have a combination of rare diseases which have caused me to become housebound (in isolation due to the severity of my conditions) and mostly bedbound (Mast Cell Activation Syndrome, Hypermobility Spectrum Disorder, Erythromelalgia and Dysautonomia *likely POTs* with a nice healthy dose of chronic fatigue) and I don't think I can adequately express how much both yours and Chloe's videos have given me in terms of comfort, laughter and education. I thank you truly, with my whole heart. Much love!!
Have you watched any of Chronically Jaquie's videos? Jaq unfortunately passed away earlier this year, very unexpectedly, but as far as I'm aware her husband has left up her channel and all of her past videos. She dealt with Mast Cell, POTS, and EDS, among others - a lot of people seem to have that combination! - and a lot of her videos are very similar to Jessica's in that she discussed techniques, treatments and equipment that helped with various conditions. If you haven't seen any of her stuff yet, you might find it useful given the similarity of some of your conditions.
@@aim-to-misbehave5674 Yes I have, thank you!
Thank you so much for doing this collab! I can’t begin to express to you as someone with DID how wonderful it is to see positive representation of us in the media. Where it’s like « hey here’s a person with DID we’re actually not focusing on their DID because there are other aspects to them. » and just y’a thank you so much you are so lovely
I miss nin and the whole dissociadid system :((
Same :(((
they're back!
As someone who has overt DID and complex regional pain syndrome (type 2 with present nerve damage) also known as reflex sympathetic dystrophy and now has a dorsal root ganglion spinal cord stimulator implant in my back to help the severely damaged nerves in my leg be less painful so that I can actually use it and avoid the dystrophy part of the RSD, I can freaking RELATE to doctors fudging things up. I love this collab and I'm grateful for it. Truly, I can't explain how grateful. I feel a little less alone watching your videos, both of you. 🖤
You girls are so cute your personalities form into the biggest bundle of joy I just love to watch. I really hope you make more videos together in the future.🌈
two of my faves togather where has this gem been all this time. YT just recomended it. About time
Agh loving Chloe's amazing sign language. And seeing two of my faves together ^_^ Especially related to the part about 'just' depression. I have a disorder which includes chronic fatigue and excessive daytime sleepiness as symptoms.... for so long me and my doctors all wrote it off as depression, and now I think actually this triggered my depression in the first place! Thank you both for making this. Every time I remember you needed to lie in a dark room for 2 years I wince so hard for you. I'm so glad you pulled through that Jessica. xx
Watching this video reminded me that I hadn't taken my meds. So thanks love both your channels a lot as I have a both DID and a similar connective tissue disorder and was very alone before finding people like me exist.
Thank you for reminding me to take my meds, lol
thank you so much for the captions, i have a heard time understanding things so i have to read the words being said and hear them to properly understand so thank you so much
I loved you guys energy. Very clear explanations, Jessica makes everything so much entertaining and DissociaDID teaches very well
I literally started watching dissociadid like 3 days ago and now, Jessica collabed with her!!!
THIS IS A COLLAB I NEVER KNEW EXISTED BUT IM HELLA EXCITED 💕💕💕
When two of your favourite youtubers make videos together you were not expecting
Omg how have I not seen this collaboration I love both of them so much
I saw the thumbnail and literally out loud went "ooh!" I love seeing my favorites interact 💙
So excited for more jessica content!!!! Love you both (and all your alters chloe), and hi to claudia and the pups!💖💕 You're so amazing, inspiring, and beautiful! PS Congrats on half a million!
Yes! Two of my favorite people!
It’s funny, this video popped up at the same time that I was laying down after nearly passing out from cfs and heat this morning. I was just telling my mother when my cfs acts up I’m so exhausted at times that even eating is a chore. I can sit with my plate too exhausted to lift the fork or even chew sometimes 😢
It’s so validating to see someone speak up about this condition! I’m not lazy! Just broken!
Love you ladies!!
Relatable!
😍 I just found your channel and I adore you! I have been watching DissociaDID for over a year 😁 so happy you guys did some stuff together! So excited to watch and learn ❤
Came here because of DissociaDID... but am now an instant fan of Jessica! Love you both, please continue to do collabs in the future! 💕 I, myself am a daily chronic migraine warrior... and I find the content that both of you produce to be so inspiring! Will continue to be a big fan of both channels! 💜👌🏼
I HAVE BEEN WAITING FOR THIS. Love the DissociaDID gang. so happy to see you all collab-ing!
Although I don’t suffer from ME/CFS (but a list of other things) I found this video so comforting. Also love both you and Chloe ❤️
It’s nice to hear someone else talk about how when they think back to when they were kids that they were always I’ll, and not that it was some big event that caused it. Whenever I’m asked by doctors when my symptoms started I’m like “um, since I was born?”
First of all it I just started watching DissocialDID a couple weeks ago. So crazy that you did a collab! My mental/physical health is a mess. The system I'm in can't seem to really help me with anything. It's all so stressful and just a mess. I've been referee out for several things. First I had a sleep study, but that doctor only gave me the results on sleep apnea -- nothing else. I've got an allergist who I get allergy shots from-- he tried to tell my re-flux would be cured it I just raised my bed and my migraines would be cured if I stopped drinking caffeine-- please, still to your own expertise thank you. And I can not even begin to tell you how long I've been trying to get into a neurologist to work on my migraines. That still leaves me with my gastro problems, chronic and wide spread pain, numbness in my hands, and others. That doesn't even begin to factor in the depression and anxiety. My anxiety was out of control for a while, but it's back to tolerable. The depression is at a maintenance level. Wow, that felt great to get off my chest. Hopefully, I get it all sorted out eventually.
Yeah a new video!! I actually love to learn new things about these conditions, I may need to use these facts in the future ~ and watching two beautiful and positive people is a delight!
Both of you ladies are so well spoken. So proud of you all❤️
For a few years I have been subbed to you and seeing this video you did with Chloe really made my day because both of you have inspired me so much and helped me through a lot. Chloe helped me understand Dissociative Identity Disorder more since I live with it daily and Jessica you helped me realize through your chronic fatigue video that something was wrong physically and helped me push to get my fibromyalgia diagnosed. Thank you both for making such an awesome video and working so well together. 💕
You uploaded this just as I'm opening my delivery from collectif (yaya sales!). Fantastic timing!
Thank you for uploading this kind of video, it's so important and you make these topics feel less scary. Thanks to you both :)
I just found your channel. I've been subscribed to dissociaDID for awhile now and then found you through watching Jammidoger. Then this video popped up. I was diagnosed with ME when I was 15 (I'm 30 now) and also am now in the category of Fibromyalgia and I have depression. This video was a pleasure to watch because it is so nice to be able to relate to someone about these conditions. For me, I get shut down from reading my school books which is so helpful since I'm still in school. 🙃 So, as much as I value my knowledge and intelligence, I like to turn it off in my down time. Also, I didn't know just falling asleep on any floor was a thing. I often fantasize about just dropping.
Hospitals are draining for basically everyone, I can only imagine how every part of you is just like "nope!"
It's funny. Hospitals are strangely an incredible source of comfort for me. They make me feel seen and looked after more than any other place or experience, and my anxiety is virtually nonexistent when I'm in one.
@@FlailTV this a pretty old comment but same
My mum lives with fibromialgya, chronic fatigue, ME, arthritis, and other things I don't even know how to spell or pronounce.
This video has actually helped me understand how it differs and affects everyone differently.
It was lovely watching you guys fall into friendship! 💜 A note about the 'work on your mental health and your physical health will get better' nonsense, a doctor admitted to me last week, "Doctors like checking boxes. If a doctor doesn't know what's wrong with you, oftentimes they'll give you a diagnosis of 'anxiety' or 'panic disorder' just so they have something to put on the paper." 😡
It's so weird coming to this video after Nina and Chloe integrated into Nin.
Yeah
I came from DissociaDID and I love your style! I can’t wait to watch more of your videos. This setting was so intimate and amazing. You’re both such elegant speakers and this was such a good conversation thank you for sharing it with us.
I couldn't imagine what you guys go through. One of the side effects of my tablets is fatigue. Its makes me exhausted. But its nothing on this level. All the love and support to people out there with it
Yesss my faves! ❤️❤️ And I can relate since I got a chronic fatigue diagnosis when I was young. My experience is not the same though, it turned out (after 10 years trying to get diagnosed) to be caused by a few different underlying conditions so it manifests pretty differently.
In the 90s the UK changed the name from M.E to C.F.S and that continues to be the name doctors are taught (in the rare instances where they are taught about it) which is why they use it interchangeably (as many patients prefer the term M.E yet any of us who were diagnosed in the 90s early 2000s will have C.F.S written as their official diagnoses. In the medical community they are the same illness, and even in general society they are (which is why many of us write M.E/C.F.S). However, neither are to be confused with C.F (chronic fatigue) which is a symptom, not a diagnosis or illness in itself.
Exactly this!! I am bedbound / housebound. With symptoms in my whole body, pain, and severe exercise intolerance. I get lumped in with people who clearly do too much stuff in their life on a bad diet and are just "chronically fatigued". I know people who are extremely active and then run around saying they have CFS. Like hell do they.
Exactly! It looks like in the video they actually do say ME and CFS differ but they don't. Chronic fatigue however is indeed a symptom! Not a disease.
Two of my fav diverse youtubers together :'). I've been following DissociaDid and Jessica for a while now! It makes me happy to see you together and happy. Thank you so much!
OH MY GOD i follow you both religiously and had no idea this would be a collab omg yes IM SO EXCITED TO WATCH thanks for putting this up! I think the stigma and lack of knowledge on DID sucks, even most of the mental health community doesnt know about this disorder so having bigger individuals cover the topic is a huge positive!
Thanks for this video ladies! I have me/cfs (interchangeable in NZ) and fibromyalgia syndrome plus others). Had it for 8 years + and I used to run for fun! Lol. 10km+ for fun, bike 50km+ for fun. Running marathons then chronic fatigue. Spent many years in a dark non stimulating room. Thanks for sharing your experiences. You go thorough grief (multiple times for me) but you get through it. Self care is definitely major.
I've been diagnosed with fibromygalia, chronic fatigue syndrome, depression and anxiety. So much of what you're saying resonates and I'm seeking to be reevaluated. Thank you for this it makes me feel less alone in all this
chloe playing with jessica’s skirt because it made her feel grounded is so adorable
I am in the process of getting a diagnosis of CFS. I have been looking at a lot of things on line, and getting a lot of contradictory information. But listening to you girls is a breath of fresh air. I have always had mental health issues due to childhood trauma, but my health has been so much worse the last few years. Recently while in session with my psychologist we discovered a trigger event ( a flu like illness that lasted for many months, somewhere on the region of 6) after which my mental health and my general ability to cope became worse. When I heard you talking about thinking it was "just" depression I so related. Now that CFS is on the table it fills in the parts of the jigsaw I was missing so well. I have watched quite a few of Jessica's videos and they have REALLY helped. I now realise that it is ok to be the way I am, that it is not my fault.
My two favourite UA-camrs doing a collaboration? FABULOUS!!
OMG.
This is way too perfect. And I haven't even watched it yet.
very recently found both of your channels separate for this and have been binging them so much and i stumble upon this and got so excited!
I’m so stupid. I misread the title as “Life with ME” as in “Life with MEEEEEEEEE!
Aren’t I fabulous?? It’s MEEEEEEEE!” lol
i love you two so much, thank you for the video, it is the collab i was dreaming about