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Coping with prednisone, Dr Mazen Dimachkie
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- Опубліковано 20 жов 2014
- Session at The Myositis Association's 2014 Annual patient Conference. Dr. Dimachkie answers questions about the drug myositis patients love and hate.
Jesus,this is a bloody nightmare - A lifetime of watchfulness,pain and anguish...all the while sporting a clown moon-face and buffalo hump.The Gods know the true beauty of vicious irony and cruelty.I start on Monday.
I really like hearing him speak. Steroid Taper is a very challenging thing, fraught with flares like wild fires all over tendons, facia, and muscle....good point to "wait it out" and see if it resolves. I wonder if while on the bone thinning prednisone, if you take biphosphonates, will the bone density improve, and more importantly, will the incidence of fracture decrease?
Audio?
Thanks a lot
Can barely hear!
These are my side effects: Headaches, blurry vision, dizziness, severe fatigue, anxiety, hot flashes, chills, night sweats, tremors, memory loss, heart palpitations, digestive issues, nausea, muscle soreness, anxiety, very emotional, insomnia, moon face, weight redistribution to belly and thighs, increased appetite and osteopenia. 😐
Oh, and high blood sugars and air hunger also. It's crazy!
how long have u been taking it and what are the doses?
@@MAYHAM-ze8bo I've been on Prednisone for the past 16 months. Started at 40mgs, now I'm down to just .5 mgs. The lower I'm getting, the tougher it is.
@@lf7065 I can't imagine the pain Yiu are going through, I was only on it for 2 weeks
@@MAYHAM-ze8bo Awww, thanks. It's not pleasant, but I'm managing. I feel that eating a pretty clean diet and taking supplements like Vitamin D3, B1 and Magnesium Malate help me a lot. That, and prayer. 🙂
Thanks i think thats why my dog was tripping out maybe lower the dosage ima try
Was put on it five days ago . Have had no sleep am hungry and can’t stop crying I’m not able to finish it off . It is awful.
Fosomax altered my voice box, negatively, just 1 pill. Boniva etc does not prevent bone breakage but increases fractures.
That's sounding familiar, my voice is getting much lower.
I need help…I had been taking 60mg a day then tapered to 40mg a day and once I was on 1 of 20mg a day…I forgot to take it one day and my blood pressure went up and I was in the ER. They claimed it was anxiety. I couldn’t sleep and etc. So the next day I decided I should just stay off it since I had missed the dose and my body went into shock. It was the worse and I have been dealing with flight or fight mode for over 3.5 years. 😔😥 I tried to go vegan, go on a fast and my body will not allow it. I take natural supplements for adrenals and cortisol support. Only one dr said I have “Cushings like” syndrome because of the prednisone. Anxiety, anger, mean…all those side effects and insomnia.
I just want my life back. 😥
I'm so sorry to hear that. You could try CBD oil and then work out. Also try to add as much more fruits into your diet as you can. I took 10mg today since I have inflammation on my ear. I was thinking of taking 20 mg tomorrow but probably I'll just take a low dose and see how it goes. Reading the comments here give me more anxiety. 😓
@@mv8908
Thank you very much. I’ve used CBD oil in the beginning but I will try to incorporate it again. I walk a lot and that does help. ☺️🙏🏽
Thank you
Thanks
If YOUR DIEING . BUT DEADLY FOR JUST A RASH
W2
What about thinning skin
Stress does that.