The Myositis Association presents this session from the 2016 Annual Patient Conference in New Orleans. Dr. Conrad "Chris" Weihl responds to participants' questions about IBM.
The bureaucracy going on here is what's slowing down knowing more and even fixing it, for example I had posted here a comment not offensive at all, and it got removed :(. All I was saying I had found this invention I am using with TENs (TENs it is not invasive at all) and I believe it will help everybody ua-cam.com/video/JAn9kj_jj8I/v-deo.html It really made me feel bad, that means something like "I don't care about what you are going through :("
My treatment was the standard high doses of Prednisone to start and Methotrexate for a very short time. Prednisone dose was tapered off some, but I stopped taking it on my own. Side effects from both drugs were making me ill. During that time fairly agressive physical therapy with therapist stretching my legs and arms was done. Before all of this I stopped taking Lipitor. I had a little improvement from the treatment. I have went from not able to walk or get out of a chair or touch the top of my head to walking slowly with a cane. Most of my improvement came after I stopped taking the Prednisone and went to eating more things that helped produce nitric oxide in my body.
@@mikeschad6358 Not sure what will work for you as everyone is a little different as to how nutrition helps them, but beets are a great place to start. Beet juice is good, and also real foods. Meaning nothing from boxed foods or premade anything. Mediterranean diet is good, as long as it is real food. I also take a supplement that has a combination of l - arginine and l-citrulline once a day.
I was diagnosed with polymyositis over 20 years ago and it's gotten progressively worse in the past I'd say year-and-a-half I'm in pain and my legs are weak and I have to use a walker and a rollator now could I possibly have IBM
What is the likelihood that receiving Pfizer BiValent vaccine and Flu vaccine at the same time can bring on an autoimmune disease? My husband had a gradual onset after we both got our vaccines. We have not had a definitive diagnosis yet, we are still working on testing. My son took care of a patient in the ER that developed myositis after Covid illness.
Even better further updates, I was able to create mixes of Brain waves and are equilibrating my energies like magic, so my electrical invention is not needed. The quality of life is not at its best like with my invention would do me manually, but since nobody cares for humanity's best state of being (yeah because my invention will help humanity, not only me, it has just not been experienced by anybody so no one (only me) has good feedback on this unbeliavable discovery. Here are the brain waves I started using this month 4/2023: ua-cam.com/play/PLbNfxHgFwlloOOY989CqJU9zUndC9lr-c.html And here is my discovery again, awaiting to be invented which I know what is needed to create it: ua-cam.com/video/JAn9kj_jj8I/v-deo.html
Wow, I had posted a comment here and it got removed, I felt so bad, basically that means they care less about people. The comment was not offensive at all. I was just saying I invented something with TENs to help myself which I tremendously believe will help everybody :(. ua-cam.com/video/JAn9kj_jj8I/v-deo.html
Hi Dr. Conrad. I have this. I got it at 36. I'm 39 now
hey Erica, how are you doing/feeling now. On you taking any meds that are helping?
@@everjust23 I was on Rituxab then had a major allergic reaction to the meds on the fourth dose. So that answer would be a definite no, at this time.
Sad that this is all we know about IBM. It's 2023.
The bureaucracy going on here is what's slowing down knowing more and even fixing it, for example I had posted here a comment not offensive at all, and it got removed :(. All I was saying I had found this invention I am using with TENs (TENs it is not invasive at all) and I believe it will help everybody ua-cam.com/video/JAn9kj_jj8I/v-deo.html
It really made me feel bad, that means something like "I don't care about what you are going through :("
My treatment was the standard high doses of Prednisone to start and Methotrexate for a very short time. Prednisone dose was tapered off some, but I stopped taking it on my own. Side effects from both drugs were making me ill. During that time fairly agressive physical therapy with therapist stretching my legs and arms was done. Before all of this I stopped taking Lipitor. I had a little improvement from the treatment. I have went from not able to walk or get out of a chair or touch the top of my head to walking slowly with a cane. Most of my improvement came after I stopped taking the Prednisone and went to eating more things that helped produce nitric oxide in my body.
what are you eating for ibm
@@mikeschad6358 Not sure what will work for you as everyone is a little different as to how nutrition helps them, but beets are a great place to start. Beet juice is good, and also real foods. Meaning nothing from boxed foods or premade anything. Mediterranean diet is good, as long as it is real food. I also take a supplement that has a combination of l - arginine and l-citrulline once a day.
I'm on Rutixab infusions. I feel I'm young with this. Had it for three years. I'm 39 now
This happened to me
@@Ir0nMa1d3n has the pain in the muscle gone away with this medication you are taking? 🙏🏼
All my auto immune issues started after a severe case of the flu back in 2006.
I was diagnosed with polymyositis over 20 years ago and it's gotten progressively worse in the past I'd say year-and-a-half I'm in pain and my legs are weak and I have to use a walker and a rollator now could I possibly have IBM
What is the likelihood that receiving Pfizer BiValent vaccine and Flu vaccine at the same time can bring on an autoimmune disease? My husband had a gradual onset after we both got our vaccines. We have not had a definitive diagnosis yet, we are still working on testing. My son took care of a patient in the ER that developed myositis after Covid illness.
What is the ratio or number of cases of ibm to Vietnam veterans? 1079 just after end of Vietnam incursion.
I have lost at least 10% of my strenth in less than a year
2021 and still not curable
Even better further updates, I was able to create mixes of Brain waves and are equilibrating my energies like magic, so my electrical invention is not needed. The quality of life is not at its best like with my invention would do me manually, but since nobody cares for humanity's best state of being (yeah because my invention will help humanity, not only me, it has just not been experienced by anybody so no one (only me) has good feedback on this unbeliavable discovery.
Here are the brain waves I started using this month 4/2023: ua-cam.com/play/PLbNfxHgFwlloOOY989CqJU9zUndC9lr-c.html
And here is my discovery again, awaiting to be invented which I know what is needed to create it: ua-cam.com/video/JAn9kj_jj8I/v-deo.html
When he said 45 years old that is a guideline. So your 43 ?. Too many irrelevant remarks and questions. I want to hear this expert doctor talk.
I am 39
Had it since 36.
@@Ir0nMa1d3n how are You now ?your Early stage ? Did you have pain in muscles
@@pro-mf7uk كيف الحال الان، هل هناك تحسن
@@Ir0nMa1d3n how was the symptoms of the early stage ?
Wow, I had posted a comment here and it got removed, I felt so bad, basically that means they care less about people. The comment was not offensive at all. I was just saying I invented something with TENs to help myself which I tremendously believe will help everybody :(.
ua-cam.com/video/JAn9kj_jj8I/v-deo.html