This was a really informative video. Have had stabbing pain during my period since i was 16, have become so scared of the pain that i am now reliant on ibuprofen and sometimes even the maximum dose of that per day doesnt stop the pain returning. Had my first appointment and the doctor said because ive been dealing with the pain since 18 and the painkillers work it isnt endo and was encouraged to take even more painkillers. So exhausting trying to be taken seriously
Thanks for sharing your story Sophie! I resonate with this soooo much. I've had extremely painful periods since I was 12 (to the point of vomiting and fainting), and the constant fobbing off by all medical professionals is the most frustrating part of it all. This has been my experience in the Netherlands as well as in Scotland - the only thing they've been willing to do is an ultrasound and put me on different kinds of contraception. Currently on the mini pill on which I don't have my period and so it manages my symptoms. I've currently given up on trying to find out whether it is endo or not, but know I'll have to get back on that at some point. Just feeling defeated atm 😅 I commend you for powering through and pestering them - you're right in saying that we shouldn't have to do this and I don't understand how medical professionals can just ignore the pain someone's in! I'm glad you got a diagnosis!! 💛
Gal I’m so sorry. It seems to be the same everywhere and isn’t just a UK problem but keep pushing for yourself. Because nobody else will and getting a diagnosis is worth it! And you shouldn’t have to live in pain! I’m on the mini pill now too and it hopefully will help. Praying you get answers soon x
@@emilyjames3110 Blood tests are fine for me but I don't really have a fear of needles. Biggest tip... Make sure you're hydrated so they can get to your vein but I hope it goes well.
Thank you for posting this x Can I ask what your pain was like? was it most of the month? We sound very similar other than at the start of it all, I had one period where it was heavy but normal for me, then I has 2 days off, then it started again! It didn't happen since but a few following were a week early etc. I have the left side pain and scans have come back clear. I'd love to know how you describe your pains. x
Thank you. I’m glad this video helped you. My pain honestly felt like I was being stabbed. It was super sharp and unlike any other pain I’ve had before. It was most of the month but even worse on my period. I really hope you can get an answer and that you find the best way to manage it for you!
Just come across you, been struggling with 99% of the symptoms endo has and been in pain/chasing doctors on and off for 9 years now- partly because I was unaware of endo and partly because I was taken down kidney/bladder issues route to no avail. How would you recommend pushing for a laproscopy?? I am in so much pain and have been for so long.. I feel like I'm not going to be taken seriously, as nothing has been shown on ultrasounds (even though it won't!!!) Absolute joke.
Honestly I’m so sorry. I can’t even begin to imagine the frustrations of waiting 9 years. Keep pushing. Say explicitly to your doctor that you believe it’s endo and that you want a laparoscopy. If you don’t say it explicitly they’ll potentially scoot around it. Also, if you’re in the UK try writing to your MP. I rang the doctors nearly every week for 9 months just to get somewhere because I wasn’t being heard and it’s tough but you’ve got to speak up for yourself. I hope this helps and that you get an answer soon 🥰
Also just something to be aware of is that endometriosis doesn’t usually show on ultrasounds. The only way to get a definitive diagnosis is through a laparoscopy. My gynae tried to tell me that it couldn’t be endo because my scan was clear so I put them straight. Another thing to try if they refuse to give you a lap is say to them “can you put it in my notes that you refuse to give me this treatment”. They’ll usually do it then.
This was a really informative video. Have had stabbing pain during my period since i was 16, have become so scared of the pain that i am now reliant on ibuprofen and sometimes even the maximum dose of that per day doesnt stop the pain returning. Had my first appointment and the doctor said because ive been dealing with the pain since 18 and the painkillers work it isnt endo and was encouraged to take even more painkillers. So exhausting trying to be taken seriously
That’s ridiculous! I’m so sorry you’ve experienced this. Don’t listen to that doctor and keep advocating for yourself x
@SophieLDodd Thanks, I do really struggle to be assertive with the doctors but you've inspired me a lot to speak my mind more.
@@AmyClarkesinger I’m so glad that this video was helpful! You can do it. Stick up for yourself gal
Thanks for sharing your story Sophie!
I resonate with this soooo much. I've had extremely painful periods since I was 12 (to the point of vomiting and fainting), and the constant fobbing off by all medical professionals is the most frustrating part of it all. This has been my experience in the Netherlands as well as in Scotland - the only thing they've been willing to do is an ultrasound and put me on different kinds of contraception. Currently on the mini pill on which I don't have my period and so it manages my symptoms. I've currently given up on trying to find out whether it is endo or not, but know I'll have to get back on that at some point. Just feeling defeated atm 😅
I commend you for powering through and pestering them - you're right in saying that we shouldn't have to do this and I don't understand how medical professionals can just ignore the pain someone's in! I'm glad you got a diagnosis!! 💛
Gal I’m so sorry. It seems to be the same everywhere and isn’t just a UK problem but keep pushing for yourself. Because nobody else will and getting a diagnosis is worth it! And you shouldn’t have to live in pain! I’m on the mini pill now too and it hopefully will help. Praying you get answers soon x
@@TheNicolls Thanks so much gal! I hope the mini pill will work as well for you as it does for me xx
@@TheNicolls I have to have a blood test! To see if I got pcos
Any advice
@@emilyjames3110 Blood tests are fine for me but I don't really have a fear of needles. Biggest tip... Make sure you're hydrated so they can get to your vein but I hope it goes well.
Thank you for posting this x
Can I ask what your pain was like? was it most of the month?
We sound very similar other than at the start of it all, I had one period where it was heavy but normal for me, then I has 2 days off, then it started again! It didn't happen since but a few following were a week early etc.
I have the left side pain and scans have come back clear. I'd love to know how you describe your pains. x
Thank you. I’m glad this video helped you. My pain honestly felt like I was being stabbed. It was super sharp and unlike any other pain I’ve had before. It was most of the month but even worse on my period. I really hope you can get an answer and that you find the best way to manage it for you!
Just come across you, been struggling with 99% of the symptoms endo has and been in pain/chasing doctors on and off for 9 years now- partly because I was unaware of endo and partly because I was taken down kidney/bladder issues route to no avail. How would you recommend pushing for a laproscopy?? I am in so much pain and have been for so long.. I feel like I'm not going to be taken seriously, as nothing has been shown on ultrasounds (even though it won't!!!) Absolute joke.
Honestly I’m so sorry. I can’t even begin to imagine the frustrations of waiting 9 years. Keep pushing. Say explicitly to your doctor that you believe it’s endo and that you want a laparoscopy. If you don’t say it explicitly they’ll potentially scoot around it. Also, if you’re in the UK try writing to your MP. I rang the doctors nearly every week for 9 months just to get somewhere because I wasn’t being heard and it’s tough but you’ve got to speak up for yourself. I hope this helps and that you get an answer soon 🥰
Also just something to be aware of is that endometriosis doesn’t usually show on ultrasounds. The only way to get a definitive diagnosis is through a laparoscopy. My gynae tried to tell me that it couldn’t be endo because my scan was clear so I put them straight. Another thing to try if they refuse to give you a lap is say to them “can you put it in my notes that you refuse to give me this treatment”. They’ll usually do it then.