The Test That Saved My Life - Eosinophilic Esophagitis

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  • Опубліковано 16 лис 2024

КОМЕНТАРІ • 92

  • @koober1
    @koober1 6 років тому +9

    My daughter whom is 8 was recently diagnosed with this after 4 months of eating issues. We found out shes allergic to gluten and dairy. Taking those out of her diet has given us our happy little girl back and she's eating like a champ again!!

  • @Tinkerginamama
    @Tinkerginamama 7 років тому +5

    Thank you for your post. My 9 year old daughter was just diagnosed with this today. We are at the beginning of the journey. Bless you and thank you for spreading awareness.

  • @courtneycreates3267
    @courtneycreates3267 7 років тому +5

    Hello! My name is Courtney and I am 17, I was diagnosed with Eosinophilic Esophagitis almost a year ago. I totally understand where you're coming from, it is a hard thing to deal with. It's so good to know that I'm not alone, thank you for posting about it!

    • @courtneycreates3267
      @courtneycreates3267 7 років тому +1

      (also I just now realized that this video is quite old, I just now came across it!)

    • @CoachColm
      @CoachColm  7 років тому +1

      Hey... I made this video the other day if you havent seen it... I talk about EoE in it. ua-cam.com/video/pbJBk7s4kvg/v-deo.html

  • @amybaby369
    @amybaby369 7 років тому +5

    Was just diagnosed with this yesterday. I'm being sent for allergy testing, again. Thanks for the video support

    • @CoachColm
      @CoachColm  7 років тому

      +AmyBaby 3 hey no problem. I hope you got some answers!

  • @mikeb0607
    @mikeb0607 2 роки тому +4

    I have eoe and I am trying to discern what I can and can't have. Unfortunately, allergy testing has proved confusing for me as my blood work (allergy tests) contradicted my skin prick test. That said, I have taken it upon myself to try the 6 food elimination diet. I've been on this diet for 2 weeks & it does feel like I am having some improvements. Please post more videos about your eoe experience, it helps me to hear from others who live with this condition. Cheers!

  • @itsmenckgonzalez
    @itsmenckgonzalez 7 років тому +1

    My son was diagnosed with EOE just yesterday and I am just starting to do research in it. He is only 10 months old. I am very happy that I found your videos. Keep it up! Looking forward to watching many more.

    • @CoachColm
      @CoachColm  7 років тому

      itsmenckgonzalez thank you. I wish your son all the best

  • @HumDoodle
    @HumDoodle 7 років тому +15

    I was diagnosed with EoE almost two years ago but I am one of the weird ones with no known food allergies. I have reacted to pretty much everything, for example rice, chicken, apples, chrisps and pasta. all allergy tests have come up negative and even though I get a reaction sometimes I can go weeks with no problems even eating things like chicken and rice. the advice I was given was basically just chew all food proberly, dont eat on the move and avoid risky foods in public. is there anyone else is my situation?

    • @CoachColm
      @CoachColm  7 років тому

      +adele irvine I haven't heard of that. What do you mean when you say react? Do you have difficulty swallowing? Maybe it's a airborne allergy?

    • @HumDoodle
      @HumDoodle 7 років тому

      Coach Colm I get kind of like a tightness in my chest which is the lower third of my esophagus swelling and narrowing then the food I have swallowed is basically stuck and I need to cough it up. and it's defenetly eosinophilc esophagus I have had biopsies at least 7 times

    • @latinboy906
      @latinboy906 7 років тому +1

      I have been diagnosed with EoE two weeks ago. It seems to have been brought on by undergoing Allergy Immunotherapy. I received my first allergy shot (allergic to dust mites, cats and dogs) and within two days, I was having difficulty swallowing. I don't have food allergies that I know of yet, just those environmental allergies.

    • @CoachColm
      @CoachColm  7 років тому

      +Emma Smith there are probably things you haven't been test for. Like dust for example is my main allergen. I can't really feel it instantly like eating something and getting sick but if I sleep in a dusty room then everything is out of whack.

    • @CoachColm
      @CoachColm  7 років тому

      +latinboy906 I hope you can figure it out

  • @user-wm4je4ct8y
    @user-wm4je4ct8y 6 років тому +4

    I just came back from the emergency room and they did an endoscopy to get a tiny piece of stuck lamb chop out of my esophagus. I'm terrified to eat now. I've only been eating liquid soup. I spent 8 hours gagging and unable to swallow even saliva, coughing the whole time trying to gag it out. By the time they did the procedure on me I was so weak I almost died on the operating table. My breathing kept stopping.

    • @CoachColm
      @CoachColm  6 років тому

      That's terrible! How are you feeling now?

    • @user-wm4je4ct8y
      @user-wm4je4ct8y 6 років тому +1

      I'm ok but still afraid to eat. Are those blood tests done by an allergist to see what you are allergic to?

  • @yourreward
    @yourreward 7 років тому +3

    I had a piece of bread stuck in my esophagus for hours - went to the gastro and he said it's probably EoE (haven't had my endoscopy yet). This test seems like the kind of thing I need - something to give me answers without trial-and-error.

  • @kiannagrace4338
    @kiannagrace4338 7 років тому +8

    I was diagnosed when I was 3 and right now I'm 100% complient from the top 6 allergens I was just at the doctor on Friday and I was so sick after it like I usually am I feel bad for anyone who has it bc it is not fun at all trust me you have breathing problems, stomach aches all the time, problems swallowing, and are only limited certain kinds of food consider yourself lucky if you don't have it

    • @CoachColm
      @CoachColm  7 років тому

      +Kianna Grace hope you get better soon Grace

  • @RiktorSkale
    @RiktorSkale 7 років тому +4

    Thank you for sharing this video!! I've had swallowing difficulties for years(food can get stuck for hours sometimes, dry food in particular). Today I saw an allergist and from the skin test it looks like I was allergic to everything, awaiting blood tests this Friday. I saw gastro last week and awaiting endoscopy next month. They both think I have EoE. Bodybodying with EoE was sort of my next question, gonna go watch that now!

    • @Hedgeflexlfz
      @Hedgeflexlfz 7 років тому +1

      RiktorSkale I have EoE. Skin prick tests have not been found to be an effective treatment. Seek elimination diet as well.

    • @einfachkiste
      @einfachkiste 2 роки тому

      you can't find out the problem with an allergic test. Only with a six food elimination diet.

  • @mathewmesser7608
    @mathewmesser7608 8 років тому +1

    Hi! Wow, I had this same shit for years but had no idea. I just experimented and noticed I improved by cutting out grains and dairy, it is interesting that you don't have negative symptoms to oatmeal or other grains. Thanks for teh videos, I watched and liked all of them.

  • @gregbernard4466
    @gregbernard4466 6 років тому +6

    I have Eosinophilic Esophagitis and had the dilation done in the ER. Tried the elimination diet myself by cutting milk and got better. I went vegan and have been great ever since. I did not take the Prilosec as anti-acids prevent absorption of calcium.

  • @mr.cheesesteak1864
    @mr.cheesesteak1864 8 років тому +1

    thanks I'm suffering from EE right now u help me a lot man, many kids at school don't even think it's real but it's there

    • @CoachColm
      @CoachColm  8 років тому

      +TheBronyDough 77 no problem pal. How are you coping?

    • @CoachColm
      @CoachColm  8 років тому

      +TheBronyDough 77 no problem pal. How are you coping?

    • @CoachColm
      @CoachColm  8 років тому

      +TheBronyDough 77 no problem pal. How are you coping?

    • @mr.cheesesteak1864
      @mr.cheesesteak1864 8 років тому

      I have been put on medication and I've been fighting it for two years

  • @PWRMindset
    @PWRMindset 5 років тому +4

    I was diagnosed with that 4 years ago, with the same allergies you have.
    (I'm 17)

    • @CoachColm
      @CoachColm  5 років тому +1

      Hope you're doing ok pal 👍

    • @PWRMindset
      @PWRMindset 5 років тому

      @@CoachColm Thanks pal! You too!

  • @Declan50
    @Declan50 2 роки тому +1

    Had a piece of salmon stuck in my esophagus recently. After an hour of trying to vomit it out, my girlfriend gave me some olive oil…And it came right out! Definitely not a cure for EOE but it lubricated my esophagus. Been struggling with EOE for 8 years, eating is always scary!

    • @toronto416.
      @toronto416. 8 місяців тому

      Hey I'm suffering badly my friend how about u?

  • @mishca5116
    @mishca5116 7 років тому +1

    I find your videos interesting and helpful. my young son was diagnosed wirh EoE 2 years ago. We have had allergy testing , he continues on a restricted diet but the only thing that gave him a clean scope was swallowed Pulmicort for 4 months. my son is only 13 ... not too articulate about his symptoms ... it's interesting that you can feel your esophagus immediately reacting to particular foods!

    • @CoachColm
      @CoachColm  7 років тому

      +Misha Catkins thank you for you lovely comment. I hope your son is in good spirits.

  • @pinkoceanflower3045
    @pinkoceanflower3045 4 роки тому +2

    I just got diagnosed with this condition. I now can't eat bread, potatoe, anything starchy, eggs, milk, and more. I don't understand how we all of a sudden can have this disorder. My digestion has suffered a lot the past 9 yrs.

    • @CoachColm
      @CoachColm  4 роки тому +1

      I feel your pain, my guess is that this has been around for a lot longer than we think, it's just being studied now. Life will be better when you get on top of those foods 👍

    • @tommyjefferson2955
      @tommyjefferson2955 7 місяців тому

      @@CoachColmyou ever consider GMOs or other environmental factors? There is no way this has been around forever. Ive talked to so many people who just started having these issues the past 5 years.

  • @redredred8408
    @redredred8408 4 місяці тому

    Sensation of a lump in the throat with a bit of tightness very gradually coming on after eating a certain food, goes away sometimes depending on what you do, comes back off and on throughout the day? Sometimes gives the feeling of needing to yawn/ gag a little bit? (No trouble breathing at all) Sometimes waking up not intensely swallowing “mucus” that isn’t actually there but from the lump

  • @mynameisnotalexandre
    @mynameisnotalexandre 8 років тому +1

    Hi Colm,
    Thank you for posting these videos. My 18 year old son, who is a long distance runner, was diagnosed with EoE just recently but has been suffering from this over the last 7+ years. What a relief to finally know what it is! Like you, he is allergic/intolerant to many foods - all poultry, fish, and according to the blood tests lots of other common foods. He's been struggling to gain weight and eat more, but as you know it's nearly impossible when your throat is closing up. I will show him your website today and I know he will be relieved to learn from your experience how to live and rebuild his body despite this medical condition.
    I am curious to know if you are treating your throat with any medication? Our doctor in France has prescribed mixing a Budesinide suspension with honey and swallowing it twice daily to get the swelling down.
    Thanks again. Good luck!!!
    Stephanie

    • @CoachColm
      @CoachColm  8 років тому +1

      Hi Stephanie. thank you for your comment. I'm glad your son has an answer to his symptoms. when I found out it completely changed my life. I'm sure he will see significant improvements when he figures out what foods to avoid. I'm not on any medication. I was prescribed something to help with acid reflux. but I don't get reflux anymore so I don't take it. I completely avoid any foods that cause symptoms and I'm perfect. I hope you're son figures out his trigger foods. I wish him all the best going forward. I would love to know how he gets on!
      Speak soon
      Colm

    • @CoachColm
      @CoachColm  8 років тому +2

      Hi Stephanie. I replied about a week ago to this comment but I don't know if i did it properly or if you got it.
      ...Thank you for your comment. I'm glad your son has an answer to his symptoms. when I found out it completely changed my life. I'm sure he will see significant improvements when he figures out what foods to avoid. I'm not on any medication. I was prescribed something to help with acid reflux. but I don't get reflux anymore so I don't take it. I completely avoid any foods that cause symptoms and I'm perfect. I hope you're son figures out his trigger foods. I wish him all the best going forward. I would love to know how he gets on!
      Speak soon
      Colm

    • @mynameisnotalexandre
      @mynameisnotalexandre 8 років тому

      Hi Colm, yes, I got it. Thanks again. It's been busy here as my son just left home in Texas for Edinburgh, Scotland for university... quite a scramble with this new diagnosis. Needed to see new doctors, start corticoid steroid meds on his throat, get lots of allergy tests. It's bad timing with his leaving so far away and on his own with this. Your post was reassuring to us that you can still thrive and get fit in spite of the dysphagia and auto-immune disease. He's been losing weight these past 2 years with this. Now working to get him feeling better and eliminate the main cause. We're starting with milk. We didn't think he was allergic (though his brother and sister are) but the allergist felt it was worth eliminating.
      We will be following your posts with interest, wishing you continued great health and success!

  • @simon5143
    @simon5143 2 роки тому

    Got diagnosed with EoE a few weeks ago (I’m 23). I’ve had issues since I was 8 but it wasn’t up until recently that I begun puking blood. I do have my share amount of allergies, but that wouldn’t explain why absolutely everything can get stuck. Peanuts will apparently kill me, so I haven’t tried eating that. Then there’s soy protein, but I only really feel that if I eat a high enough dosage.
    Perhaps I should get a new proper allergy test. My last one was when I was around 7, so it’s very likely it may have changed since then.

  • @1aliveandwell
    @1aliveandwell 4 роки тому +1

    My Ige tests, showed no allergies to anything but 2 very low allergy (dust mites, mold). Wondered why a Ige test wasnt done with it to see if enough Ige. Another Dr did Igg food allergy test and wondered why had so few allergies. I react to quite a few foods , so was amazed didnt show on labs. Celiac showed neg and enough IgA, but another lav (saliva, showed low SigA). Do much better without wheat or processed foods. (Learned by age 5, cakes were yucky (frosting nauseating and bread part made shaky).

    • @CoachColm
      @CoachColm  4 роки тому

      I know the uncertainty is hard to deal with. The food elimination diet (eliminate a food, for ~2 weeks, then monitor symptoms when you reintroduce it) is recommended a lot. It's something I've used a lot over the last few years and it helps find triggers.

  • @leviscottmusic
    @leviscottmusic 3 роки тому +1

    Do you have to take a PPI such as omeprazole along with avoiding these certain foods or do you just do well on your clean diet? Thanks for spreading awareness!

  • @HumDoodle
    @HumDoodle 7 років тому +1

    I was diagnosed with EoE almost two years ago but I am one of the weird ones with no known food allergies. I have reacted to pretty much everything, for example rice, chicken, apples, chrisps and pasta. all allergy tests have come up negative and even though I get a reaction sometimes I can go weeks with no problems even eating things like chicken and rice. the advice I was given was basically just chew all food proberly, dont eat on the move and avoid risky foods in public. is their anyone else is my situation?

    • @CoachColm
      @CoachColm  7 років тому

      I have a lot of food allergies as well obviously but they came up in my tests. I made this video the other day if you havent seen it... I talk about EoE in it. ua-cam.com/video/pbJBk7s4kvg/v-deo.html

    • @ilovetreestd
      @ilovetreestd 2 роки тому

      Me.

  • @mikesean7382
    @mikesean7382 3 роки тому +1

    i have eoe a hiatal hernia gastridis gerd and alot of inflamation of the esophagus they put me on pantoprazole im having some dizzy spells i believe from it have only took it 3 days

  • @trevortrickey422
    @trevortrickey422 6 років тому

    I was diagnosed with this this year I figured out I had this from years of food getting lodged into my throat like bread lots of meats if I had something like a milkshake in a burger i would feel like I had a pain in my chest and one day I got chick fil a lodged into my throat for twenty four hours it was hell but I went to uva and they solved everything and put me on a wheat dairy eggs and soy diet and it’s all good now

  • @staceykidd9896
    @staceykidd9896 7 років тому +1

    Hey there! I have EOE and I found this video and it's nice to know im not alone with this disease! QUESTION! Have you looked into BCAA's (l-glutamine) and how it can help decrease symptoms of EOE? I'm really hoping you can get back to me, I don't know how else to contact you!!

    • @CoachColm
      @CoachColm  7 років тому

      +Stacey Kidd hi! I'm only seeing this comment now. I don't know why but I didn't get any notification. I haven't heard of anything got to do with bcaa and symtom relief. Did you try it? I hope you're feeling better.

  • @ghufranali9340
    @ghufranali9340 4 роки тому +1

    Almost everything gives me chest tightness. Though, my blood test doesn't show alergies against them. I also have very severe gerd. Is there any tip how to avoid allergic foods.

  • @jacobtaylor7853
    @jacobtaylor7853 2 роки тому

    I was just diagnosed a couple of months ago but just had the allergy testing done a few weeks ago. Starting fresh on removing the foods I'm allergic to (which is practically everything good lol). Not sure which of the foods is my trigger so still need to go through the process of that. Some foods I was found to be allergic to I don't seem to have reactions to. I go in 2 weeks for the skin test so I guess we'll find out more then

  • @grandslamer1023
    @grandslamer1023 5 років тому

    I have EOE too I’ve had it for 3 months or more I had an endoscope yesterday I also have allergies and Azma I’m 12

  • @EASEinvesting
    @EASEinvesting 4 місяці тому

    Have you tried Dupixent for your eoe? If so any side effects or anything?

  • @onelittleowl
    @onelittleowl 7 років тому +2

    My husband was diagnosed with EoE about 6 months ago at the age of 27. We found out about his diagnosis after an endoscopy procedure to figure out why he had issues swallowing food. I'm glad the gastric doctor was aware of this condition and that he knew how to proceed! His throat is also so incredibly fragile, they attempted to stretch but were only able to stretch just enough to fit the pediatric size camera down. He hasn't had allergy tests done but I definitely want him to. Best of luck to you in your journey.

    • @CoachColm
      @CoachColm  7 років тому

      onelittleowl thank you so much. good luck to your husband

  • @THEITALIANBLACKGODDESS
    @THEITALIANBLACKGODDESS 6 років тому

    Hi Coach, I have skin allergy test coming up on Wednesday. First, the rashes happened. Now, Im having symptoms of EOE and my throat feels like it’s narrowing!
    I have a question if I may.. You said that “your diet is so clean.” What do you eat that doesn’t give you any reactions?
    I appreciate you sharing your story. Thank-you for sharing!

  • @octavianvisan1815
    @octavianvisan1815 6 років тому +1

    Hi. I was diagnosed with eosinophilic gastritis last year. How many types of foods contains a RAS test? I'm on a strict diet but it wasn't enough. I have to take steroids as well.

    • @CoachColm
      @CoachColm  6 років тому

      I had to list the foods and any airbord allergens (dust etc.) I wanted tested

    • @samss9744
      @samss9744 5 років тому

      Octavian how are you now? Are steriods working for you?

  • @ando5899
    @ando5899 2 роки тому

    Hey, did you organise the RAST testing with a gp or was it through the consultant that diagnosed you with EoE? I'm finally tackling this as opposed to needlessly suffering and considered a dietitian but assume a GP would have to organise the bloods?

  • @blink99v
    @blink99v 5 років тому +1

    Is this a globulous sensation you get when you swallow ? Or pills get stuck now and again? Back of tongue whitesh from like LPR?

    • @CoachColm
      @CoachColm  5 років тому

      I not sure what you mean by globulous sensation. But yes pills get stuck now and then. It's very uncomfortable. I ordered porrdige (oatmeal) recently and forgot to ask for coconut milk so it came with dairy. I had had to get sick after but my throat completely narrowed.

    • @redredred8408
      @redredred8408 4 місяці тому

      @@CoachColmsensation of a lump in the throat a symptom?

  • @Leatriceloves
    @Leatriceloves 5 років тому

    Where did you go for your allergy test I need one?

  • @adrianpetkov8354
    @adrianpetkov8354 6 років тому

    Hey just got dignoesed wit EoE and wanted to ask are you taking a PPI? Btw great physique you are a true motivation!

    • @CoachColm
      @CoachColm  6 років тому +1

      Use to. Not anymore though.

  • @RJManeri1
    @RJManeri1 7 років тому

    I have esophogitis and have been diagnosed over 10 years ago.I haven't done much about it but the first swallow of food always gets stuck.Then i have to cough it up and then i am good to continue eating.Bread is very bad for me and i do soo much better without it in my diet.I don't think there is a cure for this disease.

    • @CoachColm
      @CoachColm  7 років тому

      I agree with you that there probably no cure. I just completely avoid the foods and allergens that cause symptoms and I'm fine. I hope you are doing well.

  • @toronto416.
    @toronto416. Рік тому

    Coach you take anything for eoe?

  • @TyMonies
    @TyMonies 7 років тому +1

    was this rast test IGE or IGG?

  • @lorenmichelle8634
    @lorenmichelle8634 7 років тому +1

    I have esophyolagitce

    • @lorenmichelle8634
      @lorenmichelle8634 7 років тому +1

      I am allergic to many things

    • @CoachColm
      @CoachColm  7 років тому

      Check out this new video: I made it the other day... I talk about EoE in it. ua-cam.com/video/pbJBk7s4kvg/v-deo.html

  • @kellymulderino7156
    @kellymulderino7156 2 роки тому

    parasites cause EOE