Very educational video! Your comment about the increasing numbers is spot on. My wife has EoE and was not diagnosed until 17 years old. She had many symptoms her entire childhood but it just wasn't caught. Thanks for spreading awareness!
My poor Son has been suffering with EOE and excema since he was 5 yrs old. We got approved for Dupixent finally in 2020. He never wanted to eat textures until the Dupixent starting working. He's non-verbal & Autistic. We thought he didn't want textures cause of his Autism. Long story short after endoscopy (5 so far) he was on Omperazole and the Flovent. Then Dupixent was invented! Thank you Jesus! However after taking it 3 yrs now. It's not working as the past month. He hasn't been wanting to really eat and I smell vomit or acid in his mouth. I was hearing him gag and coughing like somthing stuck. Right now their telling me he can't eat food cause he's non-verbal and possible food impaction. So he's just drinking the Pediasure Peptides that's prescribed to him. We increased Dupixent recently now it's the waiting game... so if it helps. But unfortunately he got it prescribed for excema. And it's not approved for EOE patients under 88 lbs. I'm hearing the trails will be complete for his weight in 2025! Ugh. So praying the max amount of 400 mg Dupixent based on weight will even help.! Ugh this is a confusing, frustrating health problem. I feel so bad for him, and he's smaller for age cause of EOE too. So sorry this was major vent!! ❤🙏❤️
@Mark Cooper, MD aww thank you so much appreciate it! It's so funny I thought he had EOE again, he just had an endoscopy last week. No inflammation, biopsy results came back no signs of EOE either. Lol I guess it's just acid reflux. I swear this kid constantly surprises me. His doc told me kids cough when they have reflux. So happy, to say.. that Dupixent is still working after all! Thank God. 🙏🥰
As an adult, it's scary to have food get stuck and uncomfortably wait/ have to vomit. I can't imagine what a difficult journey that's been for you and your son! I saw your update comment, and that's such a relief. It sounds like Dupixent works very well, hope to be able to try it.
My husband has this. Last week he couldn’t eat or drink anything for just over 3 days, this is the longest time so far. When his oesophagus closes he produces a huge amount of thick sticky mucus which he continually ‘vomits’. The main culprits are bread and meat. He refuses to take any medication and will not call GP or attend A&E when he has an episode. It ruins mealtimes because we never know when it will happen, especially if eating out in a restaurant.
bread and meat might be what gets stuck but might not be whats causing the inflammation to begin with. he needs to go to an allergist. for me, the cause was dairy. milk, butter, cheese. it would build up the reaction and bread was the most common food i had trouble swallowing. it would always get stuck. probably because of its texture and dryness. but it wasnt the cause. try having him elminate the 6 most common allergens for food. dairy, eggs, soy, nuts, wheat, corn.
Same. My husband has had this since he was a teenager. For a while used an inhaler with some sort of medicine that was supposed to help him, but ultimately it gave him sulphite intolerance, which made it even harder for him to find foods he can eat. At this point he has an episode at 90% of meals, it doesn’t even surprise me anymore. Because of that he doesn’t eat adequate amount of calories in the day, his immune system is weak, but he refuses to go to the doctor 🤦🏻♀️
chances are he is eating something on a regular basis which he needs to remove from the diet. he has to find out what the trigger(s) are. it could be chemicals like chlorine in the water. it could be pollen. but for the majority of people statistically its milk and wheat. have him cut out wheat and milk from the diet. that means all cheese, yogurt, ice cream, anything with "whey" in the label. no bread/cookies/soy sauce (yes even soy sauce has wheat) you have to CHECK ALL LABELS when you have this condition!!!@@irinaegorova2964
I was diagnosed with EoE almost seven years ago, and while I have mostly good days, there are days that are insufferable in terms of even just trying to swallow my own spit. My insurance wouldn’t cover the prescriptions for inhalers, but one gastroenterologist was a Godsend, and told me to use Flonase in the back of my throat, and to ensure I rinse my mouth after, and neither eat nor drink anything for an hour after. It has definitely helped in my quality of life, though I wonder how often I should use the spray, especially during peak allergy season here on Kauai.
My symptoms began 30 years ago after a severe bout of Adult Chicken Pox. I also contracted Valley Fever during the same time period. Esophagus inflammation lasted months, but as it remitted swallowing issues were mild. A relapse comes in the form of a seasonal sort of mild upper respiratory, virus-like infection with malaise lasting 3-10 days
So glad to finally have a diagnosis. So many times I’ve stopped eating and just stared off hoping for the pain and sensation to end. Can’t speak during these episodes, so the best I can do is give a thumbs up to reassure those around me I’m alright. The pain is horrible, can’t even swallow saliva, and the choking sensation is terrifying. Diaphragm spasms, neck aches. What sucks is I’m an athlete, so I need those high proteins and sometimes run into a trigger food! Finally said enough when I had an episode so bad I actually stopped breathing. It was nothing more than chicken broth, and just a spoonful…. Thankfully I had an endoscopy and I believe my eosinophils were around… 26? I think? High. My esophagus was constantly inflammed, to the point where a swallow study pill couldn’t pass by without pain. Anyway I was prescribed a PPI and that has helped so so much! Life is back to normal - in fact, it’s better than what used to be normal ☺️
(As well as making a list of what allergens I MUST avoid and which ones I should eat in moderation. Elimination diet kinda works for me, and allergen tests didn’t help due to, and I quote my immunologist “The tissues in the skin respond to allergens differently than what may trigger the tissues in your throat”. Really is a Trial and Error process that takes patience and kindness with yourself. I’ve been there folks, we’re in this together - you’re not alone ❤)
I feel you. I'm (was?) an athlete too but the fatigue caused by my flares is making it more and more difficult to train in a healthy way. Also my episodes seem to be triggered by intense workouts like races or long runs. I'm an ultrarunner. Ever since I have this symptoms I always get a flare of symptoms the day after a race or a long run. Do you recognize this as a fellow athlete? I recognize the symptoms you discribe, spasm like sensations above my stomach and in my chest, my throath cramping and making noises, refered pain to the upper back and eventually my diapragm will spasm. Also a lot of hicupping and painfull burping. It's horrible and wrecking my sleep.
im a 60 y.o. former athlete. started having issues a few years ago. after several trials and errors with the VA, i stumbled upon sipping water with meals when i feel food getting stuck. i do this and about 90-95% of the time, the food passes normally. just sipping water helped me. no drugs, etc. and i eat everything i want. just have to keep water nearby...😊
Thank you. My sister-in-law just revealed that she's been diagnosed with this condition, and made mention that it had a genetics component. Are there certain foods that are common triggers, or does that vary by people? Loved the style of the video, and the clarity of your explanations.
Just had my endoscopy & colonoscopy with biopsies last week. I just read my labs and was diagnosed with this and it said i had high eosinophils at 18. I dont understand what that means though. They also said i had gastritis and ive had GERD my whole life (34). Thanks for the educational video!
So, the eosiniphil number is essentially the count that they found on the biopsy out of every 10,000 cells in the tissues taken. The maximum for a healthy person is 2, maybe 3 during an allergic reaction. It’s definitely an indicator of EOE when in the esophagus, but I don’t know much about what it means for the colon.
@@user-im6fy4qp6m for EoE? I take 40mg of ppi a day and I am gluten, dairy and egg free. It’s what works for me. But I still have flares constantly with allergies and having a low immune system I tend to have a constant sore, irritated throat. No fix unfortunately. But I was quite successful on Steriods without an elimination diet. But I had to stop them due to to many bouts of thrush in my mouth and throat
Thanks for the explanation. I'm 44 and was diagnosed a couple of months ago. I've been trying to figure out which foods are causing the problem, but I've been mostly unsuccessful. I've quit drinking mate and I've seen an improvement, but not 100%.
I’m currently going through the same thing at 46 almost completely cut out drinking and now starting to cut out food like wheat and dairy totally sucks but definitely feeling a bit better
I dont know if i have this,I’ve had chronic hives for about 7 years now.With that comes gerd(er visits they give me maloox mixed with lidocaine). It will bad to where i vomit and have nausea when i eat.It comes and goes throughout the years.I finally have a gi and allergist appointment. 🤞
I have Twin 5yrs boys and they both have been diagnosed with it. One more severe than the other its been about a year and the flair upsa of throwing up and coughing than throwing up 😢 is stressful. 2nd biopsy already. SMH i have been trying to keep them away from all dairy and certain foods but they are picky eaters. Now it feels like i really don't have many choices on what to feed them. 😢
I'm having trouble being diagnosed with this the doctors telling me it could be anxiety, but it's litterally not the woman who performed the first endoscopy said she thinks it's eoe biopsy said it wasn't and now they won't listen to me, iv lost 55 pounds in 6 months just because I can't eat the food gets stuck at my Adams apple and you can see it bulging out
Rice!!! Omg I almost died from impaction in my esophagus recently from it. It scared me soooo bad! It's sad that I can't have it anymore. I'm going to have to see a nutritionist because of this disease and my gazillion food allergies, I'm left with practically nothing.
i think the texture of certain foods gets stuck but its not necessarily the trigger causing the inflmammation to begin with. try seeing an allergist, they will test you for food allergies and recomend something like an elimination diet to see if your propblems go away when you cut out certain foods.
Rice got me too! Had chicken and rice soup and had an EOE spasming episode that lasted about an hour. I was at my college campus and mortified. Couldn’t even drink water, it would re-trigger the sensation! Thankfully prescribed a PPI that has been a life saver.
Are these “symptoms” very suspicious of this? very gradually get a lump in the throat feeling with a bit of tightness there come on and linger for a couple hours after I eat something then usually stops, but then will come back on without anything some other time, doesn’t affect my breathing at all though, sometimes the tightness discomfort it makes it harder to sleep though when it happening at night
My blood test came back with high eosinophils and I have symptoms of EoE, does acid reflux cause the level of high eosinophils or something else, I don’t recall any allergies reaction :/
Hey, i got some questions about this cause i have been recently diagnosed with it, any chance i can contact you somewhere? Like via email, or any socials. I have alot of questions, and i suffer with anxiety, so it would really help me sleep at night if you helped me answer some of them.
I got diagnosed with EOE in 2021. I used to workout very regularly and heavy, but in the last years I continue to get cold symptoms the evening or next day after a workout. It makes my life really hard, as I always get sick after exercise. My suspicion is that acid / pepsines get up into my nasal system and cause some kind of throat infection. I also have ear pain when drinking carbonated beverages. Could that be possible?
While you may have some reflux into the nasal passages it may simply cause chemical irritation, not an infection. I’d try a saline rinse (make sure to use distilled water).
I 100% have this condition. I've also had eczema and hives for the last 15 or so years, for that I've stopped all the heavy steroid creams and just now resort to ice. And for the EOE I'm taking 20 mg Prilosec twice a day morning and night. I finally have insurance but if I to go to an allergist is there any chance to get on Dupixent? Or do they put you through a song and dance and make you wait several years before they prescribe it?
If my sons counts were 24 and 35 (don't know what areas of esophagus or what this really means), but his esophagus and stomach look normal on endoscopy, what is the criteria for definitive diagnosis of EoE? His GI doc wants him on 40mg of omeprazole for 3 months and repeat endo after. Could this just be GERD or stress related? He's had a really stressfull few months. We are testing for food allergies next week.
I'm thinking that I might have this. I had a really hard time swallowing some triscuts the other day, getting inner chest pain regularly through the day more and more. It also felt like I was punched in the nose (both sides for about 2 days). Im really not sure if thats related. Stool is not as consistent as it used to be, and is fairly loose lately. Ive gained about 20 pounds in the last year and that is unheard of for me. My wait has largely also been the same. Im in my mid thirties now. Partner has hsv so im wondering if i acquired it and its a version of that in my esophagus?
Hi, I'm looking for an opinion from you. A year ago I was diagnosed with EOE, with 25 eosinophils. After steroid therapy I had a complete remission, but given the complications of candidiasis that it caused me, I interrupted the treatment and tried therapy with proton pump inhibitors, but my Eosinophils at the end of the therapy were 30. I have always been left between 20 and 30. I decided to do the 6 food elimination diet, but after 8 weeks my eosinophils became 100, and 50 also in another part of my esophagus. Could anyone give me their opinion on how this was possible. The only explanation I can give myself is that during the diet I was eating too much of a food to which I am allergic. I await your opinion too.
Our son started rejecting a bottle as soon as he learned that he could--about 3 months. Eventually it led to having a G-tube placed and for 2 years he was getting the vast majority of his calories from feeds, which contributed to him falling behind developmentally (hunger and enjoyment of food are pretty good communication motivators). We finally found out that he has EOE recently. He does eat on his own now (varies a lot day to day), but not enough to thrive and gain weight as quickly as he needs to. Since learning of the biopsy results, we are trying to remove dairy entirely from his diet (unfortunate since cheese was one of his favorites, and probably the most calorie dense solid food he ate). Anyone with experience, any tips on handling this with a toddler that is unable to communicate well?
Thanks for sharing. Hopefully you get some insights from others going through this. For children I would seriously consider dupixent with a pediatric GI. It’s difficult to get toddlers to eat. Being able to target the underlying problem could allow more leeway on what to eat. Which in turn is what your son needs to start to flourish.
What are your thoughts on dupixent? My doctor said he wants me to start using it. But im hesitant because I've heard other people talk about bad side effects from it.
I think the side effects have to be weighed against the potential benefit. Overall the side effects seem minimal compared to the complications of uncontrolled disease.
Yes they can. Although once you get to the stomach and beyond it is normal to have some of them present. But large numbers, especially when eosinophils are by far the predominant immune cell hanging out, suggests disease.
Meeting Dr Ikpoko on UA-cam has really been one of the best day of my life after years of suffering I have finally be cured from cold sores, thanks so much doc
I was diagnosed yesterday and now I'm in the process of determining the cause.
I have recently been diagnosed as having EoE, thank you so much for making these video's and explaining the condition in such a clear way.
Very educational video! Your comment about the increasing numbers is spot on. My wife has EoE and was not diagnosed until 17 years old. She had many symptoms her entire childhood but it just wasn't caught. Thanks for spreading awareness!
The initial description is exactly what happened to me and how I got diagnosed for it
i was put in hospital from getting chicken in my throat
My poor Son has been suffering with EOE and excema since he was 5 yrs old. We got approved for Dupixent finally in 2020. He never wanted to eat textures until the Dupixent starting working. He's non-verbal & Autistic. We thought he didn't want textures cause of his Autism. Long story short after endoscopy (5 so far) he was on Omperazole and the Flovent. Then Dupixent was invented! Thank you Jesus! However after taking it 3 yrs now. It's not working as the past month. He hasn't been wanting to really eat and I smell vomit or acid in his mouth. I was hearing him gag and coughing like somthing stuck. Right now their telling me he can't eat food cause he's non-verbal and possible food impaction. So he's just drinking the Pediasure Peptides that's prescribed to him. We increased Dupixent recently now it's the waiting game... so if it helps. But unfortunately he got it prescribed for excema. And it's not approved for EOE patients under 88 lbs. I'm hearing the trails will be complete for his weight in 2025! Ugh. So praying the max amount of 400 mg Dupixent based on weight will even help.! Ugh this is a confusing, frustrating health problem. I feel so bad for him, and he's smaller for age cause of EOE too. So sorry this was major vent!! ❤🙏❤️
Thanks Nik. Your dedication as a mother is admirable. It sounds like your faith has kept you resilient through this trial.
@Mark Cooper, MD aww thank you so much appreciate it! It's so funny I thought he had EOE again, he just had an endoscopy last week. No inflammation, biopsy results came back no signs of EOE either. Lol I guess it's just acid reflux. I swear this kid constantly surprises me. His doc told me kids cough when they have reflux. So happy, to say.. that Dupixent is still working after all! Thank God. 🙏🥰
As an adult, it's scary to have food get stuck and uncomfortably wait/ have to vomit. I can't imagine what a difficult journey that's been for you and your son! I saw your update comment, and that's such a relief. It sounds like Dupixent works very well, hope to be able to try it.
@@nikangel5362how long did it take for endoscopy biopsy results to come back
Please look into mastic gum
My brother was just diagnosed with it, thanks for this video, liked and subscribed
Thank you so much for this explanation. Im new in this journey and trying to understand how to help myself.
I'm on 40 + 40 mg omeprazole a day now, in the morning and evening, i completly try to avoid cowmilk and i can live an almost perfect life now!
I thought this video was extremely educational, well presented, and understandable. Well done!
Thanks Michele. I’ll follow up with treatments soon.
My husband has this. Last week he couldn’t eat or drink anything for just over 3 days, this is the longest time so far. When his oesophagus closes he produces a huge amount of thick sticky mucus which he continually ‘vomits’. The main culprits are bread and meat. He refuses to take any medication and will not call GP or attend A&E when he has an episode. It ruins mealtimes because we never know when it will happen, especially if eating out in a restaurant.
Eventually his won't be able to swallow anything - he needs to go in before he ends up in the ER.
bread and meat might be what gets stuck but might not be whats causing the inflammation to begin with. he needs to go to an allergist. for me, the cause was dairy. milk, butter, cheese. it would build up the reaction and bread was the most common food i had trouble swallowing. it would always get stuck. probably because of its texture and dryness. but it wasnt the cause. try having him elminate the 6 most common allergens for food. dairy, eggs, soy, nuts, wheat, corn.
Same. My husband has had this since he was a teenager. For a while used an inhaler with some sort of medicine that was supposed to help him, but ultimately it gave him sulphite intolerance, which made it even harder for him to find foods he can eat. At this point he has an episode at 90% of meals, it doesn’t even surprise me anymore. Because of that he doesn’t eat adequate amount of calories in the day, his immune system is weak, but he refuses to go to the doctor 🤦🏻♀️
chances are he is eating something on a regular basis which he needs to remove from the diet. he has to find out what the trigger(s) are. it could be chemicals like chlorine in the water. it could be pollen. but for the majority of people statistically its milk and wheat. have him cut out wheat and milk from the diet. that means all cheese, yogurt, ice cream, anything with "whey" in the label. no bread/cookies/soy sauce (yes even soy sauce has wheat) you have to CHECK ALL LABELS when you have this condition!!!@@irinaegorova2964
I was diagnosed with EoE almost seven years ago, and while I have mostly good days, there are days that are insufferable in terms of even just trying to swallow my own spit. My insurance wouldn’t cover the prescriptions for inhalers, but one gastroenterologist was a Godsend, and told me to use Flonase in the back of my throat, and to ensure I rinse my mouth after, and neither eat nor drink anything for an hour after. It has definitely helped in my quality of life, though I wonder how often I should use the spray, especially during peak allergy season here on Kauai.
My symptoms began 30 years ago after a severe bout of Adult Chicken Pox. I also contracted Valley Fever during the same time period. Esophagus inflammation lasted months, but as it remitted swallowing issues were mild. A relapse comes in the form of a seasonal sort of mild upper respiratory, virus-like infection with malaise lasting 3-10 days
im a 60 y.o. male. ive found that if i sip on water the food passes quite easily. ive had this for years and sipping water helps me. 😊
So glad to finally have a diagnosis.
So many times I’ve stopped eating and just stared off hoping for the pain and sensation to end. Can’t speak during these episodes, so the best I can do is give a thumbs up to reassure those around me I’m alright.
The pain is horrible, can’t even swallow saliva, and the choking sensation is terrifying.
Diaphragm spasms, neck aches.
What sucks is I’m an athlete, so I need those high proteins and sometimes run into a trigger food!
Finally said enough when I had an episode so bad I actually stopped breathing. It was nothing more than chicken broth, and just a spoonful….
Thankfully I had an endoscopy and I believe my eosinophils were around… 26? I think? High.
My esophagus was constantly inflammed, to the point where a swallow study pill couldn’t pass by without pain.
Anyway I was prescribed a PPI and that has helped so so much! Life is back to normal - in fact, it’s better than what used to be normal ☺️
(As well as making a list of what allergens I MUST avoid and which ones I should eat in moderation. Elimination diet kinda works for me, and allergen tests didn’t help due to, and I quote my immunologist “The tissues in the skin respond to allergens differently than what may trigger the tissues in your throat”.
Really is a Trial and Error process that takes patience and kindness with yourself. I’ve been there folks, we’re in this together - you’re not alone ❤)
I feel you. I'm (was?) an athlete too but the fatigue caused by my flares is making it more and more difficult to train in a healthy way. Also my episodes seem to be triggered by intense workouts like races or long runs. I'm an ultrarunner. Ever since I have this symptoms I always get a flare of symptoms the day after a race or a long run. Do you recognize this as a fellow athlete? I recognize the symptoms you discribe, spasm like sensations above my stomach and in my chest, my throath cramping and making noises, refered pain to the upper back and eventually my diapragm will spasm. Also a lot of hicupping and painfull burping. It's horrible and wrecking my sleep.
im a 60 y.o. former athlete. started having issues a few years ago. after several trials and errors with the VA, i stumbled upon sipping water with meals when i feel food getting stuck. i do this and about 90-95% of the time, the food passes normally. just sipping water helped me. no drugs, etc. and i eat everything i want. just have to keep water nearby...😊
Thank you. My sister-in-law just revealed that she's been diagnosed with this condition, and made mention that it had a genetics component. Are there certain foods that are common triggers, or does that vary by people? Loved the style of the video, and the clarity of your explanations.
Thanks for the kind feedback. Please look for the video on dietary control of eoe. Thanks for watching!
Just had my endoscopy & colonoscopy with biopsies last week. I just read my labs and was diagnosed with this and it said i had high eosinophils at 18. I dont understand what that means though. They also said i had gastritis and ive had GERD my whole life (34). Thanks for the educational video!
So, the eosiniphil number is essentially the count that they found on the biopsy out of every 10,000 cells in the tissues taken. The maximum for a healthy person is 2, maybe 3 during an allergic reaction. It’s definitely an indicator of EOE when in the esophagus, but I don’t know much about what it means for the colon.
I have this, its so hard for me to eat. I have been eating less. So I have to get more help of this 😭
I was diagnosed at 24. After a pregnancy with HG. Gerd is very common in my family. But I’m the first with EoE
did you find a fix?
@@user-im6fy4qp6m for EoE? I take 40mg of ppi a day and I am gluten, dairy and egg free. It’s what works for me. But I still have flares constantly with allergies and having a low immune system I tend to have a constant sore, irritated throat.
No fix unfortunately. But I was quite successful on Steriods without an elimination diet. But I had to stop them due to to many bouts of thrush in my mouth and throat
Thanks for the explanation. I'm 44 and was diagnosed a couple of months ago. I've been trying to figure out which foods are causing the problem, but I've been mostly unsuccessful. I've quit drinking mate and I've seen an improvement, but not 100%.
I’m currently going through the same thing at 46 almost completely cut out drinking and now starting to cut out food like wheat and dairy totally sucks but definitely feeling a bit better
Quitte Milk completly, tuffen job ;)
Sorry for the autocorrect
I dont know if i have this,I’ve had chronic hives for about 7 years now.With that comes gerd(er visits they give me maloox mixed with lidocaine).
It will bad to where i vomit and have nausea when i eat.It comes and goes throughout the years.I finally have a gi and allergist appointment. 🤞
I have Twin 5yrs boys and they both have been diagnosed with it. One more severe than the other its been about a year and the flair upsa of throwing up and coughing than throwing up 😢 is stressful. 2nd biopsy already. SMH i have been trying to keep them away from all dairy and certain foods but they are picky eaters. Now it feels like i really don't have many choices on what to feed them. 😢
Fascinating and helpful video! 😁
I'm having trouble being diagnosed with this the doctors telling me it could be anxiety, but it's litterally not the woman who performed the first endoscopy said she thinks it's eoe biopsy said it wasn't and now they won't listen to me, iv lost 55 pounds in 6 months just because I can't eat the food gets stuck at my Adams apple and you can see it bulging out
I seem to get sudden attacks of this when eating certain foods. Chicken and rice especially. What is in these type of foods that trigger it?
Rice!!! Omg I almost died from impaction in my esophagus recently from it. It scared me soooo bad! It's sad that I can't have it anymore. I'm going to have to see a nutritionist because of this disease and my gazillion food allergies, I'm left with practically nothing.
i think the texture of certain foods gets stuck but its not necessarily the trigger causing the inflmammation to begin with. try seeing an allergist, they will test you for food allergies and recomend something like an elimination diet to see if your propblems go away when you cut out certain foods.
Rice got me too!
Had chicken and rice soup and had an EOE spasming episode that lasted about an hour. I was at my college campus and mortified.
Couldn’t even drink water, it would re-trigger the sensation! Thankfully prescribed a PPI that has been a life saver.
Are these “symptoms” very suspicious of this?
very gradually get a lump in the throat feeling with a bit of tightness there come on and linger for a couple hours after I eat something then usually stops, but then will come back on without anything some other time, doesn’t affect my breathing at all though, sometimes the tightness discomfort it makes it harder to sleep though when it happening at night
My blood test came back with high eosinophils and I have symptoms of EoE, does acid reflux cause the level of high eosinophils or something else, I don’t recall any allergies reaction :/
Hey, i got some questions about this cause i have been recently diagnosed with it, any chance i can contact you somewhere? Like via email, or any socials. I have alot of questions, and i suffer with anxiety, so it would really help me sleep at night if you helped me answer some of them.
I got diagnosed with EOE in 2021. I used to workout very regularly and heavy, but in the last years I continue to get cold symptoms the evening or next day after a workout. It makes my life really hard, as I always get sick after exercise. My suspicion is that acid / pepsines get up into my nasal system and cause some kind of throat infection. I also have ear pain when drinking carbonated beverages. Could that be possible?
While you may have some reflux into the nasal passages it may simply cause chemical irritation, not an infection. I’d try a saline rinse (make sure to use distilled water).
I 100% have this condition. I've also had eczema and hives for the last 15 or so years, for that I've stopped all the heavy steroid creams and just now resort to ice. And for the EOE I'm taking 20 mg Prilosec twice a day morning and night. I finally have insurance but if I to go to an allergist is there any chance to get on Dupixent? Or do they put you through a song and dance and make you wait several years before they prescribe it?
If my sons counts were 24 and 35 (don't know what areas of esophagus or what this really means), but his esophagus and stomach look normal on endoscopy, what is the criteria for definitive diagnosis of EoE? His GI doc wants him on 40mg of omeprazole for 3 months and repeat endo after. Could this just be GERD or stress related? He's had a really stressfull few months. We are testing for food allergies next week.
I'm thinking that I might have this. I had a really hard time swallowing some triscuts the other day, getting inner chest pain regularly through the day more and more. It also felt like I was punched in the nose (both sides for about 2 days). Im really not sure if thats related. Stool is not as consistent as it used to be, and is fairly loose lately. Ive gained about 20 pounds in the last year and that is unheard of for me. My wait has largely also been the same. Im in my mid thirties now. Partner has hsv so im wondering if i acquired it and its a version of that in my esophagus?
Hi, I'm looking for an opinion from you. A year ago I was diagnosed with EOE, with 25 eosinophils. After steroid therapy I had a complete remission, but given the complications of candidiasis that it caused me, I interrupted the treatment and tried therapy with proton pump inhibitors, but my Eosinophils at the end of the therapy were 30. I have always been left between 20 and 30. I decided to do the 6 food elimination diet, but after 8 weeks my eosinophils became 100, and 50 also in another part of my esophagus. Could anyone give me their opinion on how this was possible. The only explanation I can give myself is that during the diet I was eating too much of a food to which I am allergic. I await your opinion too.
Our son started rejecting a bottle as soon as he learned that he could--about 3 months. Eventually it led to having a G-tube placed and for 2 years he was getting the vast majority of his calories from feeds, which contributed to him falling behind developmentally (hunger and enjoyment of food are pretty good communication motivators).
We finally found out that he has EOE recently. He does eat on his own now (varies a lot day to day), but not enough to thrive and gain weight as quickly as he needs to. Since learning of the biopsy results, we are trying to remove dairy entirely from his diet (unfortunate since cheese was one of his favorites, and probably the most calorie dense solid food he ate).
Anyone with experience, any tips on handling this with a toddler that is unable to communicate well?
Thanks for sharing. Hopefully you get some insights from others going through this. For children I would seriously consider dupixent with a pediatric GI. It’s difficult to get toddlers to eat. Being able to target the underlying problem could allow more leeway on what to eat. Which in turn is what your son needs to start to flourish.
What are your thoughts on dupixent? My doctor said he wants me to start using it. But im hesitant because I've heard other people talk about bad side effects from it.
I think the side effects have to be weighed against the potential benefit. Overall the side effects seem minimal compared to the complications of uncontrolled disease.
Hi could you do one on Lymphosytic Esophagitis?
Can acid reflux drive up the level of eosinophils?
Yes it does. Non EoE reflux will increase eosinophils in some cases, but not to the degree of EoE.
I wish you practiced in my area. The local gastro practice is a joke.
Can the presence of these things affect other areas of your GI tract? Asking for a friend…
Yes they can. Although once you get to the stomach and beyond it is normal to have some of them present. But large numbers, especially when eosinophils are by far the predominant immune cell hanging out, suggests disease.
Has anyone found that meat, specifically chicken, is a cause of an EoE flair up? Like clock work, I get chicken stick because of my EoE.
This is possibly a trigger but it seems more likely due to meat being tougher and more susceptible to get caught in a stricture.
this is not a fascinating condition, its a living hell
Then isn’t it great that some people find it interesting enough to spend their life researching it…
How can I get mine treated, it's really difficult for me to swallow food substances @@MarkCooperMD
I have eoe And I taken inhaler
Do you use the inhaler every day or when you get symptoms?
@@sharoncross5371 yep
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