I think its important to point out a couple of fallacies of logic in what the Dr. presents about the "benefits" of HFE genes. The reality is that moderately increased iron IS beneficial for various reasons including athletic performance... having one copy of C282Y could assist in that. It could also be that even a 20 some year old with 2 copies might have decent athletic performance ... because they're 20 and haven't started accumulating iron in excess in the body! Also, the Dr. says "don't even talk about NTBI"... he's not interested.... how is that a science-based mindset? "Nobody has died from NTBI"... i think this is part of why hemochromatosis patients have such a problem with Drs' take on the condition... because Drs don't have the condition, don't experience the serious nature of the fatigue/degeneration, and all they focus on is morbidity statistics. Morbidity and wellness are not the same thing.
Can you comment on the treating hemochromatosis on iron chelators such as ferriprox as this has been what my doctor told me to do as my ferritin is around 4000. Any studies whether there is any difference of taking this long term medications as to delay iron overload complications vs potential complications of iron chelators?
I think its important to point out a couple of fallacies of logic in what the Dr. presents about the "benefits" of HFE genes. The reality is that moderately increased iron IS beneficial for various reasons including athletic performance... having one copy of C282Y could assist in that. It could also be that even a 20 some year old with 2 copies might have decent athletic performance ... because they're 20 and haven't started accumulating iron in excess in the body!
Also, the Dr. says "don't even talk about NTBI"... he's not interested.... how is that a science-based mindset? "Nobody has died from NTBI"... i think this is part of why hemochromatosis patients have such a problem with Drs' take on the condition... because Drs don't have the condition, don't experience the serious nature of the fatigue/degeneration, and all they focus on is morbidity statistics. Morbidity and wellness are not the same thing.
thanks
Can you comment on the treating hemochromatosis on iron chelators such as ferriprox as this has been what my doctor told me to do as my ferritin is around 4000. Any studies whether there is any difference of taking this long term medications as to delay iron overload complications vs potential complications of iron chelators?
What if you have high Tsat, high ferritin, and no inflammation, even with a CRP and sedimentation rate test?