Hey! Great Video. I was diagnosed with Celiac disease back in May (2018), diagnosed as an adult that is so I had to totally change and adapt to a gluten free diet. It actually didn't take me long to adjust at all, since I felt miserable for a long time and I finally started to feel better. I can definitely relate to the struggles of going to a restaurant. I had a cross contamination incident a couple weeks ago and I felt that for days!
I completely relate to this video. I don't know how old you are but we seem to be about the same age. I am currently in the 7th grade and I would get really bad stomach aches when I was little. We thought it was dairy so I went dairy free and that helped a little but we then quickly realised that wasn't the issue. I am also a hypocondriact and my mom got me a blood test just to show me there was nothing wrong with me. My mom had seen something on facebook about people having bumps on there arms and legs which relates to Celiac. My mom also had gotten me tested for Celiac disease. My celiac test came back positive and so we did all the extensive testing for how bad my celiac was. We found that out when I was in 5th grade and it was really hard not being able to just eat a regular sandwich or some crackers. This video has really inspired me to be comfortable with my condition.
Im 23 and was diagnosed a little under a year ago. And even after being diagnosed it almost didn't feel real just cause I have eaten foods containing gluten (pasta, bread, cookies) literally all my life. Thanks for sharing your personal story! I feel like it validates so many of the frustrations I have with eating out and reading labels that my friends can't always understand, and it's nice to see that i'm not the only person going through this. And you're totally right in saying it's worth going through the hassle of being gluten free in order to feel healthy
Thanks for this video. Your advice has helped me. I recently discovered that I have an allergy to gluten. When I eat gluten I get excruciatingly painful gas pain in my stomach. I also get bloated, constipated, and have brain fog, and fatigue. I now know that I need to read labels if I think the allergen might be in there.
Hey, I'm 33 and might have celiac disease. I was diagnosed with a wheat allergy almost 20 years ago, but back then it was *very* difficult to avoid wheat, especially because labeling laws didn't require wheat to be labeled on packages until 2004(?). I also didn't feel anything immediately after eating wheat, so my mom and I both decided to ignore the doctor's advice and eat everything I was told I was allergic to. Now, my symptoms actually line up more with celiac disease than with an allergy, and it actually wasn't uncommon for celiac to bee misdiagnosed as a wheat allergy. I live in Asia now, and you would think it would be super celiac friendly because, at least where I live, they hardly ever eat pasta, but most of the sauces contain wheat. The labeling laws are also super lax. Some products have no ingredient labels, or the food is labeled in a language that nobody there speaks. Just thought that you might find that information interesting :) .
I am not yet diagnosed with celiac disease.. i undergo colonoscopy,abdominal ct scan,blood test.. but i did not undergo endoscopy and TTG for celiac blood test.. i have many symptoms,weight loss,dermatitis,hypertension,black and blood in the stool,palpitations,chest and abdominal pain,lower back pain,neck pain,brain fog,too much fatigue,confusion,depression,Sleeping problem,feeling something stock in my throat,trouble breathing,memory problem,changes in vision,depression.. So i start gluten free diet,i feel a little improvement in 11days i cut gluten foods in my diet.. but if i given a chance to be test i will garb it,so that i will know if my villi is totally Damage..
Hello Kara. What happened to your previous video? I remember the title of that video was something like "controversial opinion challenge" where you weighed your thoughts on controversial topics ranging from ethics, politics and religion. I remember that video like it was uploaded yesterday.
hey, thank u so much for this video and your advice you really gave me some positive vibes about it. I got diagnosed with celiac disease 1 week ago. I'm 17 years old. I also got diagnosed wih diabetes type1 6 years ago. I heared about the relation between celiac and lymphoma and i'm really concerened about it. Really wondering if I could prevent it or not... will I still be at a riskof lymphoma cancer if I went on a strict gluten free diet? thanks, much love.
Going on a strict gluten free diet will definitely benefit you more than not, so I would continue being gluten free if possible. I'm not sure as far as statistics go for the correlation between celiac and lymphoma or how likely it is, I would consult your doctor if you're worried. I'm sure it's a low statistic and you're better off being gluten free, but I'm not a medical professional. Good luck! xx
The risk of lymphoma is related to a certain type of refractory celiac disease (abnormal cells in your small intestine even after months of eating gluten-free). It is recommended to get a follow up small intestinal biopsy after being gluten free for 6 months to a year so your doctor can see how well you're healing. Eating gluten or getting constant cross-contamination would also increase your risk of developing refractory celiac disease. I know it is hard! I have had celiac for 3 years now.
As a celiac desease patient from a third world country, I find like all the worries and the problems that u encounter in your countries are so way far from the ones I encounter here. In my country there isn't something called gluten free food in restaurants, no bakery makes gluten free bread or anything. The packaged products just suck,and if u opt for the emported products u will have to pay like a fortune if u want to integrate them in your diet, this is way impossible too cauz they re not even accessible. Then the other difference is that while u have the gluten free FADE there, here it s sympathy, so I d better keep my mouth shut than receiving that ducking sympathy,
hi, newly diagnosed here and I would like to know how do you go about eating out? What do you generally opt for that has less chances of being cross contaminated? any tips would be useful.
download the “find me gluten free” app! it will give you ratings for restaurants and cafes that serve gluten free in terms of cross contamination and menu options. if you’re at a nicer restaurant, ask to speak to the chef or the manager and they will usually be accommodating to your needs. i would avoid anything fried, because even if something is gf often times the same oil is used for other glutinous items. and ask for meat to be cooked in foil so it’s on its own surface!
Hey! Great Video. I was diagnosed with Celiac disease back in May (2018), diagnosed as an adult that is so I had to totally change and adapt to a gluten free diet. It actually didn't take me long to adjust at all, since I felt miserable for a long time and I finally started to feel better. I can definitely relate to the struggles of going to a restaurant. I had a cross contamination incident a couple weeks ago and I felt that for days!
I completely relate to this video. I don't know how old you are but we seem to be about the same age. I am currently in the 7th grade and I would get really bad stomach aches when I was little. We thought it was dairy so I went dairy free and that helped a little but we then quickly realised that wasn't the issue. I am also a hypocondriact and my mom got me a blood test just to show me there was nothing wrong with me. My mom had seen something on facebook about people having bumps on there arms and legs which relates to Celiac. My mom also had gotten me tested for Celiac disease. My celiac test came back positive and so we did all the extensive testing for how bad my celiac was. We found that out when I was in 5th grade and it was really hard not being able to just eat a regular sandwich or some crackers. This video has really inspired me to be comfortable with my condition.
Im 23 and was diagnosed a little under a year ago. And even after being diagnosed it almost didn't feel real just cause I have eaten foods containing gluten (pasta, bread, cookies) literally all my life. Thanks for sharing your personal story! I feel like it validates so many of the frustrations I have with eating out and reading labels that my friends can't always understand, and it's nice to see that i'm not the only person going through this. And you're totally right in saying it's worth going through the hassle of being gluten free in order to feel healthy
I was diagnosed when I was 6 and have been coeliac for 8 years now 💕
Thanks for this video. Your advice has helped me. I recently discovered that I have an allergy to gluten. When I eat gluten I get excruciatingly painful gas pain in my stomach. I also get bloated, constipated, and have brain fog, and fatigue. I now know that I need to read labels if I think the allergen might be in there.
Hey, I'm 33 and might have celiac disease. I was diagnosed with a wheat allergy almost 20 years ago, but back then it was *very* difficult to avoid wheat, especially because labeling laws didn't require wheat to be labeled on packages until 2004(?). I also didn't feel anything immediately after eating wheat, so my mom and I both decided to ignore the doctor's advice and eat everything I was told I was allergic to. Now, my symptoms actually line up more with celiac disease than with an allergy, and it actually wasn't uncommon for celiac to bee misdiagnosed as a wheat allergy. I live in Asia now, and you would think it would be super celiac friendly because, at least where I live, they hardly ever eat pasta, but most of the sauces contain wheat. The labeling laws are also super lax. Some products have no ingredient labels, or the food is labeled in a language that nobody there speaks. Just thought that you might find that information interesting :) .
This is great :-)
However, you should know that oats are NOT gluten! You can eat oats! You just have to make sure that they haven't been contaminated.
Maddy Explores read up on oats. Apparently it’s a “reactor” it mimics gluten and the body has the same response, not for all people but some.
Thank you baby for this video. Im sorry your going through this. I was just diagnosed and learned alot from your video. 💗❤
Wishing you the best 8 months on. I love food so I can imagine this must be tough living with.
Great Video! I have been Gluten free for 11 years xx
Thank you so much for watching! I've been gf for 14 years as well :) xx
Thanks alot 🙌🏼
I've been diagnosed with celiac in January 2019 not quite a year yet it's so frustrating at times. I'm very disciplin myself especially with gluten.
I am not yet diagnosed with celiac disease.. i undergo colonoscopy,abdominal ct scan,blood test.. but i did not undergo endoscopy and TTG for celiac blood test..
i have many symptoms,weight loss,dermatitis,hypertension,black and blood in the stool,palpitations,chest and abdominal pain,lower back pain,neck pain,brain fog,too much fatigue,confusion,depression,Sleeping problem,feeling something stock in my throat,trouble breathing,memory problem,changes in vision,depression..
So i start gluten free diet,i feel a little improvement in 11days i cut gluten foods in my diet.. but if i given a chance to be test i will garb it,so that i will know if my villi is totally Damage..
Hello Kara. What happened to your previous video? I remember the title of that video was something like "controversial opinion challenge" where you weighed your thoughts on controversial topics ranging from ethics, politics and religion. I remember that video like it was uploaded yesterday.
hey, thank u so much for this video and your advice you really gave me some positive vibes about it. I got diagnosed with celiac disease 1 week ago. I'm 17 years old. I also got diagnosed wih diabetes type1 6 years ago. I heared about the relation between celiac and lymphoma and i'm really concerened about it. Really wondering if I could prevent it or not... will I still be at a riskof lymphoma cancer if I went on a strict gluten free diet? thanks, much love.
Going on a strict gluten free diet will definitely benefit you more than not, so I would continue being gluten free if possible. I'm not sure as far as statistics go for the correlation between celiac and lymphoma or how likely it is, I would consult your doctor if you're worried. I'm sure it's a low statistic and you're better off being gluten free, but I'm not a medical professional. Good luck! xx
The risk of lymphoma is related to a certain type of refractory celiac disease (abnormal cells in your small intestine even after months of eating gluten-free). It is recommended to get a follow up small intestinal biopsy after being gluten free for 6 months to a year so your doctor can see how well you're healing. Eating gluten or getting constant cross-contamination would also increase your risk of developing refractory celiac disease. I know it is hard! I have had celiac for 3 years now.
As a celiac desease patient from a third world country, I find like all the worries and the problems that u encounter in your countries are so way far from the ones I encounter here. In my country there isn't something called gluten free food in restaurants, no bakery makes gluten free bread or anything. The packaged products just suck,and if u opt for the emported products u will have to pay like a fortune if u want to integrate them in your diet, this is way impossible too cauz they re not even accessible. Then the other difference is that while u have the gluten free FADE there, here it s sympathy, so I d better keep my mouth shut than receiving that ducking sympathy,
great video!! you gave me some hope!!
Try Shar's Brand absolutly the best!
What other dietary restrictions do you follow? Some Celiac friends that I know also avoid cow milk.
hi, newly diagnosed here and I would like to know how do you go about eating out? What do you generally opt for that has less chances of being cross contaminated? any tips would be useful.
download the “find me gluten free” app! it will give you ratings for restaurants and cafes that serve gluten free in terms of cross contamination and menu options. if you’re at a nicer restaurant, ask to speak to the chef or the manager and they will usually be accommodating to your needs. i would avoid anything fried, because even if something is gf often times the same oil is used for other glutinous items. and ask for meat to be cooked in foil so it’s on its own surface!
Man you are gorgeous
Man you are thirsty as fuck. Creep.
How old are you? Five?
Damn near lmao I made this video almost four years ago I'm 18 now and look nothing like this ahaha