My Kidney Journey
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- Опубліковано 26 сер 2024
- This is my story, lets start from the beginning. I want to share my story so people have a better understanding, sympathy and to educate about kidney diseases.
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Hi!
I am just turned 29 and I found out 4 weeks ago I have stage 5 kidney failure due to IgAN. I recognize a lot of feelings you have. Specially the feelings about feeling that I am indestructible, feeling like my body can handle anything. Now I see that life is so fragile. I currently have 12% of my kidney function but I am determined to life my normal life. I am still working 100% waiting for my kidney to fail and it is super scary. Right now the worst parts is the tiredness and even worse for me is that I am freezing, my body is shivering all day.
I am so grateful that I have family that wanna help me and that my wife is really supportive. I am grateful to live in Sweden where I have free health care and the donation list is short (if no one of my family can donate). I am grateful that I am young and healthy and educated. Hearing your story is helpful! Thank you!
Nothing is impossible with God. Claiming and declaring healing in Jesus' name.
i have a friend whose a dialysis patient for 10yrs. now. she is still fighting despite of struggles not just in financial and also to its emotional aspects. the good thing she is brave and still strong for her children. God bless u Ms. Bea and may God healing hands be upon you. and to all people suffering in any disease God will heal u.
Cried so much. My mother died last March 8, 2019 due to kidney failure after 1 year dialysis. And you are right life is short and we should enjoy every moment. Miss her everyday. Thank you for sharing this so much love ♥️ Godbless and Take care always! Love you Queen✨ Stay strong
Stay strong Bea! I too was diagnosed with CKD stage 5 and on dialysis for the last 2 years. I am almost about your age. I’m a physician who had a lot of aspirations in life and loves to travel but everything has to be put on hold because of my condition. During my battle I had about 100 plus blood transfusion and frequent hospitalisation since I bleed frequently and recurrent infection. From someone who used to have a very active lifestyle and his future seemingly bright, everything came crashing when my kidney failed. Now I have to do dialysis 2-3 times a week, Im always tired, and due to the recent pandemic, I am more prone to infection and it really affects my mental health knowing I am immunocompromised. I don’t get sleep (I’m lucky if I get 2-3 hours a day) as side effect of Ckd, my bones are getting really brittle and I had to take tons of medications, some of which are so large and unpleasant for my taste that I vomit often times. I am in constant pain and I still haven’t adjusted from my previous life. All I’m saying is you’re not alone and you’re being heard. There is always hope for us and I choose to be positive. Let’s also be thankful for our loved ones who never abandoned us in our darkest times. You know some friends come and go but the real ones (genuine friends and family) will be there and help you plow through these trying times. I feel your pain, your frustration and your sadness. But most importantly, I feel your HOPE! Hope that one day, we’ll get that transplant and make everything fine again. You do not know me but I’m sending you hugs! You are very brave to talk about this! Thank you for sharing this, Bea!
My wife had the same problem with IgA Nephropathy. I commend how brave you are. The dialysis alone is disconcerting. Hang in there and once you get your new kidney, things will change magically.
Im kidney dialysis patient for 5years.
Still going strong. Fighting for all of us!
💙💪
If there is really something that I admire about this queen, it is her strength. Above all the success, beauty, and fame, what she went through and how she faced it gave me a different view on how to deal with such issues that I was also going through myself with a couple of family members (cancer and aneurysm). She displayed vulnerability yet she was very courageous, her fighting spirit and positivity was inspiring and her hope was contagious. I love how she spread awareness on social media and displayed a will of never giving up despite the circumstances. I have been following her journey since day one and I am so happy to have finally given a chance to meet her in person just recently at an event. She is very humble and does surely lights up every room she walks in. Thank you Bea for sharing with us your journey, I wish you well! :)
I am bawling , just hit me because a ckd patient as well and my doctor at Toronto gen is getting my mind ready for dialysis. I am fighting with this disease for 11 yrs already.
Fighting!!
Keep the faith...
aninvite.blogspot.com/2018/03/amazing-ckd-stage-5-dialysis-patient_1.html?m=1
God is good Ms. Bea.. Bukas mawawala din ang sakit mo po. Amen
Im from Masbate City.
Be strong Bea! You will be ok. Stay safe and God bless! 🙏🏻🙏🏻🙏🏻
Pray for your healing journey Ms Bea, Ask Jesus for Healing by Trusting Him all the way. Ingat po kaau
Be strong queen My grandfather Is now in his 10th year as a dialysis patient 2 times a week sometimes thrice. He is 80 years old now and still fighting. anyway I just wanted to say that You can do it!!! I know you cannn!!! You are braved than your what if's. I love youuuuuu🥰❤️
Same case with my mom and my best friend, it was really really hard. Unfortunately my mom didn’t survive because she’s too old, right now my best friend is doing well she had her surgery last 2015 and everything is back to normal, she’s working and a mom now. Last nov i joined and signed the petition to extend dialysis treatment from 75 session to 100 plus, coz here in the Philippines the treatment is soooo expensive!! Bea, i’m praying for you and to all the people who is currently going some tough times, this is just a challenge. God will never leave us, you will survive and Our Lord God will heal you.
Dialysis patient represent.. ESRD is not easy but God is always with us.. 4 years in Peritoneal Dialysis or Home dialysis while 2.5 years on Hemodialysis in Fresenius kidney center here in CA.. godbless you queen and all the kidney patients we got this! #fighting
My uncle has also CKD and I feel sad for my cousins about it. But I'm glad that the Lord has given us the strength to continue our lives and fulfill our dreams. Lavan lang maam Bea, nanalo ka sa Miss International 😊 Mananalo ka rin dito sa laban nato❤️ In the holy name of Jesus, Amen. ☝️
You bring tears to my eyes I can definitely relate to your situation I had IGA Nephopathy and I am 10 weeks pregnant but I don’t want to live with fears imagine people died from Covid and we still lucky to be alive keep fighting💪🏻💪🏻💪🏻 we got this💖❤️💖
dont worry i got pregnant twice while while having Iga. everything will be alright. praying for you ;)
Thanks for sharing this video, coz I got 30% with my kidney, and I'm alone leaving here in Toronto but I thank God for the medical benefits here. More videos pls, and stay safe and God bless.
Eto yun isa sa mga kinakatakutan kong sakit... kaya mo yan miss bea. Lahat ng nangyayare satin my dahil at si papa jesus lang ang nakakaalam. Pagaling po kayo. God bless po.
I was just diagnosed with IGA a few minutes ago and went directly on this video because I remembered you immediately. I want to have a confirmation that there is hope. Thank you very much. I am also from Toronto and thankful ako kasi kahit papano free and healthcare dito sa Canada.
Hi I'm a ckd patient and had transplant last year and getting better now . The lesson that I learn through out the journey is nothing possible with god. All this happened for a reason. And if he give a challenge it's means he will give you also the answer. Coz when I been diagnosed with ckd last end of 2018, I don't believed it coz I don't have any symptoms that I have a kidney problem it just shown on the test result when I'm applying for a job. My world also got crush that instant coz where not that rich to afford this kind of medical care but in God plans all thing is possible in instant all the blessing came and got transplant Oct 2019 and now getting better and much healthier. Just pray to God and trust him and god bless.
I feel u bea rose!!! I am also suffering kidney failure IGA nephropathy at my age now. So young. But still fighting and longing for a transplant next year. Thanks for your vlog cause i also went disappointments and deppression. But now I am surviving. As u said life is short. So much cry as i watch this video reminiscing all our hardship to fight this battle. 😭😭
You are inspiration po.
Hindi madali ang napagdaanan niyo. Napakatapang. Napakatalino niyo po. And even with a lots of problems, maganda at mabuti pa rin po kayo.
Stay positive! Stay happy!
May God bless you po! Ingat palagi!
Parang i cant comment anything about this disease. Ang hirap lang. I will just pray for you always ms bea. Laban...
Hi ms. Bea :)
same po tayo :) Last August po na diagnosed din ako na may CKD stage 5 dahil yung creatinine ko po ay mataas .
Ngayon po nag dadialysis din po ako 2x a week .
need din po mg transplantation dahil 25 years old lang po ako .pero dahil sa kahirapan nag dadialysis nalang po ako .
Tatagan nyo po ang loob nyo .
malalagpasan din po natin eto :)
Mahirap po talaga yung sakit natin .
Lalo na po ako ay mahilig mag luto at kumaen dahil sa sakit ko di na po ako nakakaluto at nakakain ng masarap dahil amg dapat kainin ay walang any pampalasa :(
keep fighting bea! my hubby is a dialysis patient too.
I feel you miss bea my wife also is dialysis patient 6years and still fighting.Godbless you.
I can relate❤ Because my husband at the young age has IGA too, that leads to have a kidney transplant. We're lucky that he's doing well now and going 4 yrs as KT.
Hi Ms. Bea, I admire you being brave and speaking about your situation. “I felt it when you said, live life to the fullest, appreciate life as much as you can because life is short and life have a lot of surprises and you’ll never know.” I believe God is up there, watching and He will always guide and support you all the way. We are all praying for your fast recovery. Please don’t give up and be brave still. Keep safe always and stay healthy guid Ms. Bea. Bato guid! 😊💪🏻
I felt every single word. 😭 I admire you for being so brave! ☺ Thank You for sharing your kidney journey to us. Soon, we will be sharing our life testimony on how we overcome this journey given to us. 🤗 Trust HIM above all. 😇 CKD Stage 5 here! 1 year Hemodialysis patient! ☺
How did you got that CKD po. My father got the same 2
Get well soon po
this making me cry as an iga neph patient. take care and Merry Christmas!
Ive been following you since your MI journey and I am happy that you are recovering little by little! SUBSCRIBED! Please stay safe queen! ❤️
You’re such a brave soul Bea. Thank you for sharing this journey with us. Thank you for sharing so many wisdom. Indeed life is short.
I pray that God will heal you soon.
God hears every prayer and sees every tear. 🙏
Himat po kag paayo ka.
My mom is a dialysis patient. It is hard but I am thankful that there is something to keep her alive.
There's hope for a healthy solution. Watch this video @ ua-cam.com/video/RHEOhawHheI/v-deo.html
More testimonials @ facebook.com/intrapilipinas
+639158432474 WhatsApp
Keep the faith and stay healthy our very own Miss International, Bea Rose!
Napakatatag niyo po. Salamat sa pagbibigay ng pag-asa. May you be healed in Jesus name.
I remember our show in Durham you wer in the car & they told me you weren't feeling well but you came anyway. Gosh you're so strong B, I'm so glad you're okay now. Regards to your beautiful mom❤️
i had kidney transplant last year...
i experienced what you are going through... just pray and surrender all to God
everything is going to be fine..
Keep the faith! Stay strong. We are all praying for you! 🙏
I am also a diallysis warrior diagnosed 2018 a month before your diagnosed blown up on social media and that’s when the time I follow you on IG . I’m amazed of you that you did this video i keep trying to do my journey but by just start filming on it i can’t help but cry . but still wanted to do my journey. I just also made my channel just few months ago . I follow natural kidney journey it works good on me but I feel sometimes that i really need some good food which is basically bad for my body. Keep fighting laban lng tayo
Condolence po...
@@tellydianadayondon6534 why condolence?
Keep the faith...
aninvite.blogspot.com/2018/03/amazing-ckd-stage-5-dialysis-patient_1.html?m=1
I will include you on my prayers Miss Bea 🙏🙏
Praying for your healing. Keep Fighting and keep Safe always
Truly a champion, a queen by heart. Brave woman. Love you, Bea!
"God is good all the time"
Hi Bea you are so brave for posting something like this and sharing with all of your kidney disease journey. I know Its not easy I myself is going thru what youre going thru right now, its not easy but first thing that you need to do is to accept that your life will never be the same, went into depression/paranoia the first 6 months from my diagnosis, i would be paranoid in regards to what i eat to a point i would only eat boiled or blanched veggies, drastic weight loss came after it, from 135 lbs i went down to 82 lbs in less than 2 months. I did not want to talk to anyone even my family, i shut off my friends, was just basically work and home and on my days off ill be lying in bed crying. But slowly i came to realize that what im doing to myself is not helping my situation either, so I started educating myself about my kidney disease talked to my nephrologist more and asked them if I could speak to a dietician for a kidney friendly diet, and from that point on everything got easier. Its been 12 years since my initial diagnosis of glomerulai nephritis, and i thank god everyday that so far I dont need to have a kidney transplant just yet. Kidney is still functioning at more than 50% right now. Just keep having a positive outlook in life no matter what and just pray. God bless you always ❤
Stay strong Ms Bea. You are a great person I know Heavenly Father with bless you more. I can't forget when I met you in person you were so kind even if I'm just an ordinary person.
Hi Bea. God bless you. I just wanna encourage you to be strong in the Lord. I am a dialysis PD nurse and I do know how it feels to have a meltdown because of kidney failure. Most of the people I know and met have to go through this also but be encouraged you can still live a normal life. I see that you have a very good support system. Be encouraged. Just take it one day at a time, try not to overwhelm yourself with lots of worries especially future/ unknown worries, you already have enough at the moment. Just remember it could be worse. Smile. Jesus loves you. I will remember you in my prayers.
God is good! Just trust in him. This brought back a lot of memories. I had my kidney transplant more than 11 years ago and I believe that you will get through this.
Hi Ms.Bea,just keep fighting for all our love one in life,by GOD's grace we can make it!!!!Im also a dialysis patient just like u....stay strong and GOD BLESS
Fighting! God is good all the time.
Hello Miss Bea! Thank you for sharing us about your Kidney journey. It will surely raise awareness. 💜💕
Your health will be restored, i can tell. =) Whatever happens, good nor bad things, will contribute giving sense to whom you'll be molded as a person and to shape you in being the best version of yourself. Looking forward seeing you getting your kidney transplant and inspire more people. Update us.
I was on dialysis for 5 yrs and 8 months. I got a transplant 1st quarter this year.
Hi. I am a nurse in theatre here in europe (Ireland). Yung pinaka bata namin na for dialysis na ginawan namin ng fistula is 20 years old. I know it will be tough but you are tougher. Just count your blessings, libre yung medication mo ang iba sa pinas araw araw pinoblema ang kung saan sila kukuha ng bayad sa gamot or dialysis.
Thanks for sharing your experience lady. I just wish you could be back stronger in the future. Jesus bless you.
My good friend and classmate in Poveda in the early years Deena passed away 2 years ago from complications after her kidney transplant! I miss her so much! She was my prayer buddy, my counsel and my calm! I’ll pray for you and will ask Deena to intercede for you in prayer!
Hi Miss Bea, same here po. Kidney patient din po ako. Fighting like you po and hoping for KT soon! I admire you a lot Miss Bea, following your kidney journey po. Sana po gumawa pa kayo ng maraming inspiring video why not to give up on life and continue to fight kahit mahirap. Isa po kayo sa inspiration ko thru out my kidney journey din po. Keep safe and godbless po , Miss Bea! Love you! 💕
My mom was at 14% and she's been undergoing hemodialysis for more than 10 years and she's still fighting.
God keep her. My mom may have to undergo thia. I can only beg God to spare her for more time with us.
Wow 10 yrs.. Salute po! Yung boss ko po dito sa Taiwan dialysis patient din.. Peretoneal Dialysis naman ung sa kanya... They are the real fighter.. God bless po!
Sa ngayon eto po kinakatakutan kong sakit dahil my Mom and my two Aunt died because of Kidney failure. I just had my check up, Thank God ok Kidneys ko at hindi ako Diabetic.
Same with my cousin he was diagnosed June 2016 and died Dec 5 2016. God will heal you soon. Keep Fighting
Get well soon Ms. Bea.. we'll pray for your recovery 🙏
Everything is taking care of. May the Lord Almighty give you the strength, wisdom that you need during this time. God Bless you. 🙏🏻
Good for you, you can afford a transplant and you're still young. I have CKD also and undergoing a dialysis right now... I'm just hoping that I an get through this without the transplant...
Keep the faith...
aninvite.blogspot.com/2018/03/amazing-ckd-stage-5-dialysis-patient_1.html?m=1
I hope you are doing well now.
Your such an inspirational miss bea! happy birthday and I pray that you will get better soon 💕
Oh sorry you have to come to this... your a brave woman! God heal you! And bless you !
Hi Miss Bea meron din po akong Chronic Kidneys Disease Stage 3..laban lang po kaya natin to 😊
Hi David. Why don't you try Purtier Oral Live Stem Cell Therapy for your Kidney failure. That's what my friend is taking. She's a stage 5 kidney failure patient plus she had pneumonia due to a long term dialysis. God is good, she has recovered from pneumonia in less than a month and became more energetic and productive.
God Bless you!
Hi! Pwede po malaman ano po History nio bkit po kayo may CKD?
@@keithbrazil9354 as per experience po over the counter meds like pain reliever may part din po na family history
@@keithbrazil9354 sa kinakain din po
My Bro in law has kidney failure as well keep fighting po God bless 🙂
My thoughts and prayers, Bea! Stay safe! 😃❤
While I was watching this video, I couldn't help but cry because our father was diagnosed with End Stage Renal Disease as well last June 24. He is a fighter and go through dialysis for twice a week. It was hard. The moment we knew abt his situation and how it affects our mental health. Stay strong and keep on fighting Miss Bea Rose. God is with you 🙏💪🏻❤️
There's hope for a healthy solution. Watch this video @ ua-cam.com/video/RHEOhawHheI/v-deo.html
More testimonials @ facebook.com/intrapilipinas
+639158432474 WhatsApp
Praying for your fast recovery, queen Bea!
Ms. Bea prefer your family member as your donor.My husband was a kidney transplanted patient which was his donor is his brother. Praise God it was successfully done. We are here in Canada now living for good.Praise to God for healing my husband.Ms.Bea the Lord is able to heal you just pray and acknowledge Jesus Christ as your Lord and savior.I speak healing upon you in Jesus Christ name.Amem
God bless you Ms. Bea. laban lang po. meron po c God always sa atin
I am a warrior too, for about almost 3yrs now, gusto ko rin sana mag pa transplant but my siblings doubted the procedure, I guess takot Sila. So I have no choice so I have to live life in the machine forever
My queen has a brave heart .. iloveyou and always prayin' for you ❤😘
Praying for you ms Bea. Stay strong!. God bless. ❤️
Thanks for sharing Bea! Can’t wait for the next vlog! Keep fighting! 💐❤️❤️💐
Keep fighting! We are here if you need us.
Gagaling ka!!! One of my fav. Queen,
Ckd cause of death ng nanay ko, magpagaling ka!
Praying for your speedy recovery, Queen!
Hi. Kevin here! I'm from your IG. I'm the one always asking how are you doing. God bless Ms Bea!!! 143
Keep fight Bea! Looking up to you... stay strong! You got this girl xx
Dun ako timaan sa 17:50 ganda ng message ganito ako mag isip. Thank you sa advice
Good luck, Miss Bea!!!
You’re such a strong woman ❤️ praying for you
Hi bea.. I just remember that a friend nurse here in singapore who is working @ Raffles Hospital had a patient which is undergoing dialysis.. luckily, after this patient is hospitalised her egfr function increased. Hence dialysis is no longer needed. Maybe you may try to visit Singapore to check
U are Beautiful, smart and strong Miss Bea.. keep fighting!
Hugs Ms Bea!!! Praying for your speedy recovery!
2 options.. use a diaper or 'bedpan'.. nurse here hehe thanks for sharing this sensitive topic to netizens.. it's about time for us all to be educated about kidney health cause most people only know diabetes or high blood pressure or high cholesterol.. dialysis makes u super tired, but we know that you're a strong person and that you can get through this! 💕
Be strong and courageous God Loves you!
You're not alone. Me too.
Stay Strong!! Hoping you get a match for a transplant! 😁 Im a dialysis nurse and I agree that health should not be taken for granted. I have seen many success with home/pd hemodialysis as well as transplant!! *hugs*
love the color of the background...
I always wanted to reach you since I suffered the same thing... I mean, somehow, I also wanted to raise awareness to all the people and somehow try to ba a light even out of own darkness... Iga nephropathy patient here
Keep the faith...
aninvite.blogspot.com/2018/03/amazing-ckd-stage-5-dialysis-patient_1.html?m=1
Same here !. D po kayu nag iisa.
Take care always Bea. I can relate to your story I've been diagnosed with IGA nephropathy last year from then on I've been doing quarterly check up of my urine and blood test.
Stay strong Bea. Praying that you will find your match soon. 🙏❤️
Laban lang Bea
Guys sapokan tayo😘😘😘🤗🤗🤗 alam muna yon.
Thank you for sharing your story Miss Bea
Get well soon queen! God is with you
Prayers for you Ms.Bea🙏❤️
God is good, God bless 🙏💕
Sending virtual embrace... i had a kidney stone few years ago.. the pain was too much..
I wish you well queen. Thank you for sharing with us your story.