Hydrogen Sulfide SIBO ALMOST KILLED ME! Extreme MCAS And Sulfur Intolerance/Sensitivity
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- Опубліковано 3 лют 2021
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Hydrogen sulfide SIBO made me increasingly reactive to the point where I could not tolerate high-sulfur foods. This continued to the point where I could not eat, drink water, or take any MCAS meds without reacting. Once I started to treat the H2S SIBO, I finally brought myself back to baseline.
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High quality journal articles on bartonellosis:
1. Giladi, M., Maman, E., Paran, D., Bickels, J., Comaneshter, D., Avidor, B., ... & Wientroub, S. (2005). Cat‐scratch disease-associated arthropathy. Arthritis & Rheumatism, 52(11), 3611-3617.
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2. Maman, E., Bickels, J., Ephros, M., Paran, D., Comaneshter, D., Metzkor-Cotter, E., ... & Giladi, M. (2007). Musculoskeletal manifestations of cat scratch disease. Clinical infectious diseases, 45(12), 1535-1540.
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3. Maggi, R. G., Mozayeni, B. R., Pultorak, E. L., Hegarty, B. C., Bradley, J. M., Correa, M., & Breitschwerdt, E. B. (2012). Bartonella spp. bacteremia and rheumatic symptoms in patients from Lyme disease-endemic region. Emerging infectious diseases, 18(5), 783.
www.ncbi.nlm.nih.gov/pmc/arti...
4. Mozayeni, B. R., Maggi, R. G., Bradley, J. M., & Breitschwerdt, E. B. (2018). Rheumatological presentation of Bartonella koehlerae and Bartonella henselae bacteremias: A case report. Medicine, 97(17).
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5. Breitschwerdt, E. B., Maggi, R. G., Duncan, A. W., Nicholson, W. L., Hegarty, B. C., & Woods, C. W. (2007). Bartonella species in blood of immunocompetent persons with animal and arthropod contact. Emerging infectious diseases, 13(6), 938.
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6. Kalogeropoulos, C., Koumpoulis, I., Mentis, A., Pappa, C., Zafeiropoulos, P., & Aspiotis, M. (2011). Bartonella and intraocular inflammation: a series of cases and review of literature. Clinical Ophthalmology (Auckland, NZ), 5, 817.
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#hydrogensulfidesibo #hydrogensulfidetesting #hydrogensulfidetreatment #hydrogensulfidesibotesting #hyrogensulfidesibosymptoms #hydrogensulfidesibotreatment
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Good for you! Thanks for sharing! Glad that you figured it out and things are better. Chronic illness I swear is like detective work and it's a huge blessing to figure out pieces of the puzzle. Peace
Thank you! I’ve been waiting a while for the puzzle piece and it came just in the nick of time! And so did the hydrogen sulfide breath test
thank you so much for making this video. it's a puzzle piece to my own issues.
Another informative video Jake! I learned a lot. Thanks!
thank you!!!!!
Man that sounds like a really terrible time. Thank goodness you figured it out and can eat again! Love your channel. :)
Thank you Angie!!! These past two and a half years have been hell and I still can only eat five foods but I am hoping with sustained remission of SIBO, some of that reactivity will subside and I will continue to be able to put one foot in front of the other
Thank you so much for this, it's really helpful, I am going through exactly the same thing with lyme MCAS and sulfur intolerance !!!
So sorry to hear that you are suffering with that! But on the flipside I am glad to hear that this video was helpful to you❤️
@@BartonellaBabe people like you give me hope that it’s possible to get better even though you are searching for all the answers it’s nice to see that we’re not alone.
Thanks Jake 🤗🙏❤
thanks god u figured out this life threatening complications and helpnus all too
Ugh, so sorry:( I hany food issues and sulfur intolerance too and messed up w my disipline while seeing and ND. Ugh. My mental health is so bad I need to get under control first but all of it 😢
Thanks for the video
I'm so relieved to find someone so similar to me! Can I ask what dosage/frequency of rifaximin, and how you tolerated it? Also, any trouble with nausea and keeping the pills down? I'm in the same boat right now, haven't been able to eat for over 2 weeks, and am reacting to water and my daily meds with horrible GI symptoms. Hoping to get sibo treated as soon as possible!🙏Thanks for your awesome video!
I have a video called how I treated my hydrogen sulfide SIBO where I go over dosage, frequency, etc. so that should be helpful to you. I’m sorry to hear of your reactions to food, water, and meds. I just pushed through rifaximin and in a few days felt better so I hope you get relief soon!
Eating alot of oats, fresh fruit (oranges, strawberries, kiwis, and bananas) and kombucha has reduced my IBS-C by around 80 percent in the past four weeks. I credit alot of it to eating alot of organic oats 5-7 times per week. My favorite brand is Whole Foods 365 organic quick oats, or Flahavan's porridge. I try to avoid non-organic oats because some pesticides aren't good for your gut microbiome.
I try to minimize the amount of wheat I eat, particularly loaves of bread. The only wheat bread I eat now is lavash bread, which has much less wheat than traditional loaves of bread. I also eat traditional corn tortillas sometimes that I buy locally.
I can’t believe you figured all that out, without having to go to ER! Was this just in January? So glad the pain is reduced to a tolerable limit! When you said you had cut out butter too I was like “Oh my god she is going to evaporate!” Since in one of your vids you said butter was one of six foods you could eat. Hope you have been able to incorporate butter or some other fat/ protein back into your diet because DAMN 91 lbs?? I think I weighed that in 7th grade??
This happened at the end of December. Then several weeks after that I had another episode and I got down to 89 pounds. I haven't even made a video about that yet. I tried to add in a bit of butter today but it was a no go. The good news is that I have been able to add in about two ounces of dark meat turkey (it's the lowest sulfur meat) and I eat that every 4 days. I know it's pitifully slow but it's actually the most progress I've made in a long time. I have some hope that I haven't had in years
You’re my new favorite:)
omg thank you!!
I’ve been dealing with these horrible belching and bloating symptoms for 10 years. The pain and discomfort is unbearable. Every single thing I eat hurts. Everything I drink hurts. So much so that I just eat what I want because it’s going to hurt anyways.
I'm so sorry to hear about that awful pain and I hope you find relief soon!!
Have you tested your hydrochloric acid? You may not be producing any hence can’t digested anything. Try the baking soda test first thing in the morning. If you don’t each after 5 mins it’s a great indication you don’t produce anymore HCL
Try boiled water and in break fast take Oats Simple with 2bananas after 4hours in lunch take white rice Daal sabji Roti and don't take food in evening only take Papaya in evening and in dinner take Roti sabji don't take daal in night .Try this and it will heal ur Sibo😢
Yes, definitely MCAS needs to have a cause(s). Chronic infection number 1 suspect IMO.
AGREED!
Thanks for this and validation that I am on the right track even though I can only eat two foods
I finally pfigured out last week that the food was hitting my gut and probably the reaction between the foods and the H2s bugs was causing a massive histamine reax. After a lot of research, given how reactive I am, I plan to try a single strain probiotic to decrease histamine and then perhaps even another one to treat the sibo. The only trouble is on top of all the reactions I’m having… Which is pretty much do everything… With burning nerve pain, I also have an IgE mediated yeast allergy. Between the yeast, histamine reax and excipients, it makes finding a probiotic tricky but one strain at a time every single day I’m researching in the hope that I can turn it up.
I hope that you find something that works for you. I definitely think SIBO has a huge role to play in those with MCAS that react to many food and/or medicine triggers ❤️
Try soil-based probiotics. B. coagulans, B subtilis, and B butyricus are all generally recognized as safe.
I didn't have much success fighting SIBO until I started regularly taking in soil-based probiotics. You can also get B. coagulans in some dairy probiotic drinks and also it's found in GT's Synergy kombucha. I regularly drink kombucha and kefir. The secret is to start out with small amounts. I only drink about an ounce of kefir a few times a week (mostly because it's relatively high in fat), but kefir can have quite a bit of colony forming units per ounce.
ahhhh this video feels so timely
I've been having (seemingly) random horrible skin reactions for a few months so I'm getting my tryptase tested soon 😔 I've always written off my GI symptoms as medication side effects and my bladder pain being related to existing pelvic floor issues but ever since your other sibo video it seems like it's too convenient to be coincidental....probably gonna talk to my doc about that
I feel like SIBO is something so well known in a lot of the alternative health community but none of my 4 doctors pushed me in that direction in 2 years. It took my functional GI doc to do that. So yes I highly recommend the trio test. It's also developed by Pimentel so a lot of research has gone into it
@@BartonellaBabe yeah my BLMD is an integrative doctor so it's likely that she's familiar with it and the way I see it is that if it's negative it's something that's ruled out and if it's positive then it's something that's treatable. any information is helpful information at this point.
@@nintando yeah and what I would add about the breath test is that if your results are technically normal but close to abnormal (for example your methane is 9 and the cutoff is 10) and you have SIBO-like symptoms, it's worth perhaps treating and seeing how that goes
Hi, were you able to get rid of H2S with that round of xifaxan?
Wow. This sounds like my health problem. I can't even drink water. I have been diagnosed with hydrogen sibo but I haven't done the trio smart sibo test to diagnose for hydrogen sulfide but most likely that's what I have. I did the carnivore diet for years which alleviated all my symptoms but now it got worse. I just started a treatment protocol for hydrogen sulfide sibo but yeah it's weird how nothing can be digested with hydrogen sulfide sibo or aflame will happen. Not even water
Same here I can't even drink water 😢
Also, I have a UA-cam channel as well. But I just rant and rave about deep subconscious shit all the time LOL I just wanted to thank you because it was like God put your video right in front of my eyes so they would make that connection today
I'm so glad my video was helpful to you!! That's my main goal ❤️
Where did you.learn that H2S SIBO.contributes to bladder pain?Ive been suffering from severe bladder pain.and no.one knows why..thx.so.much
Dr. Allison Siebecker mentioned it in this video: ua-cam.com/video/Qn8FvYEuFlM/v-deo.html
She sees it a lot in her clinical experience ❤️ If I had to guess, it has something to do with the relationship between SIBO, MCAS, and interstitial cystitis/painful bladder syndrome. Learn more here too: ua-cam.com/video/WFfl0WnHpI8/v-deo.html
I'm going through something extremely similar, and even had c diff on my GI map that we treated (maybe?) vancomycin and dificid. I'm not even sure I had it at this point. Maybe it was h2S the whole time. Is that your experience too?
I had two other stool tests and neither had positive for c diff.
I can’t explain all of my nuanced thoughts on these topics but to make it very simple GI map has never helped me and the best way to get tested for SIBO is with a breath test and stool test will not tell you what is going on in the small intestine, at least not at this point in time where the research is at
You have such a great mind
awww thank you Wendy! It's the only part of my body that has worked normally over the past two years so I'm taking full advantage lol
I fully understand that.
I've had similar symptoms over the past year, but not quite so extreme as yours. Took me 6 months to figure out it was H2S sibo through TrioSmart test. Peaked at 8 ppm. Unfortunately I can't tolerate rifaximin for more than a few days. It irritates the hell out of my gastritis to the point where I cannot eat or sleep I'm in so much pain. Uva Ursi, FC cidal, and a low sulfur diet have helped quite a lot but it feels like I can't get over the hump to normal again.
I'm glad to hear those things are helping! You might already know this but there is a hydrogen sulfide SIBO support group on FB and there are quite a few more treatment options. Maybe some ideas there can help you get over that hump?
oh lol I think I see you in that group. So what are you thinking you're going to do to get over the hump?
@@BartonellaBabe Yes, i'm in the group. I've tried all of the common treatment plans (mozyme, B12, epsom baths, bismuth, ADP, neem, berberine, low sulfur, silver) and have seen improvement, but as soon as I go off antimicrobials, symptoms start getting worse. Currently trying to rule out any sort of structural or upper GI problems at the moment. I have gallbladder polyps and chronic gastritis and duodenal diverticula, which i'm sure are all playing a role in this, but haven't found a doctor who can put all the pieces together.
@@jsnell126 have you tried mucolytics yet? And do you have a good GI doc?
@@BartonellaBabe Like NAC, interfase, etc ? Yeah I take them on and off.
hey jake i cant find where or if you spoke about how long you took molybdenum for. how long did you take it?
hi tash I still take it. I started taking it around the time I made this video? So I've taken it for over a year
@@BartonellaBabe thanks!
O my god that is me ive not been well since nov..been of sick 8months.
how did you know the xifaxan was helping ? did it help right away ?
It did help right away for me. Not everyone has that same experience but I also think the mucolytics are key
Did you put anyone else have breathing difficulty after eating sulfite/sulfur/sulfide?
I'm hopeless, my stabbing gut pain is everywhere.
Hey! I haven't tested for SIBO but I've done a 16S test (which tests the bacteria in the large intestine) and I have a large overgrowth of both methanogens and H2S producing bacteria (Desulfovibrio and Bilophila).
I've had symptoms for about 16 months, one of which has been shortness of breath. It is slowly improving over time (and possibly as my gut heals). I seem to react to a lot of different foods rather randomly, so I'm not entirely sure if it's because of sulphur or not.
I think covid caused many of my gut issues (post-viral SIBO is a thing) and gut dysbiosis is extremely common with long covid.
Not sure if it's similar at all to what you have, but I do have high H2S and breathing issues.
Can I have h2s sibo with constipation?
That's definitely possible it's just less likely, based on the studies. You can also have a sulfur sensitivity/sulfur processing problem without having H2S SIBO. I believe they are two separate yet overlapping entities
How do you find a integrative gastro doc
One good way is adding yourself to Facebook support groups. I would start by asking in some SIBO groups for recs
you are so smart and beautiful
and funny.
Never give up
you will get well .
5:35 😂😂😂😂😂 I laughed at this
Could you eat fruit?
Hydrogen sulfide feeds on hydrogen and Xifaxan has been shown only effective on hydrogen, so I guess that the food supply was cut off. Polyphenols are used in the cattle industry to reduce hydrogen. ATRANTIL uses quebracho to lower hydrogen. Do you know of any polyphenols that could work to lower hydrogen and consequently, H2s? Green tea is always mentioned but it's not effective at 1-2 cups per day.
Yes I agree that the food supply was definitely cut off! I am not sure about polyphenols You sound way more educated about them than me but thank you for giving me something else to research! All I know is that green tea can cause histamine problems in those with MCAS
@@BartonellaBabe I actually got the information from ATRANTIL's website (they have a video that explains the science behind it) and they developed the product based on science developed for the cattle and poultry industry. The cattle industry is under the gun to control methane emissions, and when methane/hydrogen is controlled, they find the animals are healthier, they eat more and gain weight. So the animals have SIBO, are bloated and can't eat ...but these natural feed additives help them reverse gases. ATRANTIL uses the same ingredients used in the cattle industry. I find walnut extract and clove help, just like in the poultry / cattle industry...but can't be used long term b/c clove also kills good bacteria. So I'm still searching. I'm on the FB H2S page, so I'll post there if I find a good alternative to ATRANTIL, which is very constipating for me at least.
@@ingriddow2779 hi Ingrid - so does that mean that long term Antrantil might not be a good idea as it can be detrimental to good bacteria?
@@judithpoulin2351 ATRANTIL says you can use their product long term. The cattle industry uses similar (maybe not the exact same) tannins and saponins to lower methane on a long term basis. I'm not aware of any scientific studies on long term use of ATRANTIL, you would have to ask the manufacturer and better yet, get frequent GI Maps to check your individual biome.
@@ingriddow2779 terrific...thanks so much!
B6 deficiency cause it all
Pls go to medical school. You’re awesome.
Aww thank you Nicole but I am wayyyy too squeamish to be in medicine 😂
All of this sounds dreadful. Wild goose chase. If someone doesnt tolerate dietary sulfur, doesnt that just mean you are low on molybdenum? Try taking sulfur in pure ion form. Its angstrom sized sulfur ions in structured water. Put it in the bath. Or rub on skin. Or use it sublingually. Avoid the big meds at all costs. Hope youre doing better by now though ❤
Ur teeth look so fake! They r really nice
hahaha thank you!
Can I ask if you got migraines during your flares ? Or like aches all over your body and tightness like everything in your body felt tight