I would just like to say if there is anyone out there who wants to judge and complain just please GO AWAY! This is a care group of like minded people and Leslie is doing her very best to trust GOD and put one foot in front of another as she loves and cares for the love of her life. GOD bless you dear sweet Leslie. We are in this together. You and Jason are loved very much by this community and everything you post is so very appreciated. Thank you so much. ❤️❤️❤️🙏🙏🙏
Oh Leslie, I am so sad you have to go through this. My husband died in 2021, with "muscle weakness" and dementia. I insisted on keeping him home as long as possible (I'm now 81) and it nearly brought me to my knees. Thankfully my doctor intervened and moved him to health care (nursing home) where he spent the last 6 months. All of this during Covid. I would urge you to get someone to relieve you as much as possible. He no longer knew who I was and possibly was not clear who he was. I truly did not understand the toll it was taking on me until after he died. Do not consider it to be selfish to ask someone to help you. It's such a difficult journey for both of you. God bless.
we all have our own journey and make the choices that best suit our relationships. I honor Leslie's choices not just because I made the same choice but because her choice is perfect for her. :)
My heart goes out to you. I lost my husband just 3 weeks ago to dementia. We were on this journey for a decade. I retired 5 years ago to be home and care for him and the last 3 required full time care with constant monitoring. It’s the cruelest of diseases. I’m so glad you have a support group and please know that you will need either family or a paid caregiver in the late stages. No one person can care for a dementia patient 24/7. Prayers 🙏
Your love for Jason shines through each time you do one of these videos! I’m thankful that you also have a support group and your faith to lean on. Never feel funny or weird about unloading on us. We are here to support you and send love/prayers to you both.
When someone comments negatively about things you have to do with Jason they obviously do not know how hard it is to deal with someone with dementia and how very difficult it can be. They are coming from a place of ignorance and it's sad that they think they know better. Unless you are forced to live a life with dementia in yo it is very hard to explain what you are going through with others. All you are trying to do is protect him but you also have to protect yourself and your finances. My in laws both had dementia and alzheimers and it was very difficult to reason with them, explain things to or just try to get them to change their minds once they are set on something. My father in law threw tantrums and got very ugly when we finally had to move them to an assisted living facility. They even tried escaping several times and actually made it out once and spent $450.00 on a taxi to "go home" to their house 2 hours away! He didn't even recognize his own house when he got there. I'm so sorry you are going through this, Leslie. Life can be so unfair, sometimes and I am so sorry you have been dealt with such a difficult situation. I think you are doing a wonderful job, and I know you are doing the very best you can with being very sensitive to Jason's feelings. My prayers are with you.🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
Keto diet -- high fat and low carb, coconut oil (1 - 3 tbspns daily) and vitamin D help people with dementia. New research points to dementia being related to fungus in the brain -- see video from dr. cameron jones dated august 15 2020. Parasites may also be an issue. God bless Jason and family.
@@rccyberwarrior2267Leslie, u r doing such a great job dealing with Jason's problems. U must have had a wonderful. Life together.. as I have said before, u grew up together as u have been together since your early teens. I am a retired nurse who has to deal with these problems daily, from the hospital or living situation. Dementia, and altzheimers were my patients. On my side of the curve, I was able to give such good and loving care to your loved ones as my job. I got sdo much from these patients and their families. I miss my people very much. I feel blessed to have been able to give this care, and not only help the patients, but the families. I miss them all. Again, Leslie, please do not wear yourself down to the nubbins before u finally get to the end. God bless you and your families so much. My prayers surly go out to u all. Love 💕 Glenda veborg.
No one should say anything negative about how you are coping with this situation. I know it is heartbreaking and sometimes hurtful when all you are trying to do is keep Jason safe and happy. Your happiness you have to take bits at a time because you are constantly looking after him and sometimes sorrow comes along with that. I applaud you for loving him and doing all you know to do to protect him and support him in anyway you can. Prayers for the both of you that God will continue to give you strength and trust in Him as you go through this battle together.
For those who have no idea about this horrible disease you do become a mother to your loved one. It doesn't work any other way. What else can you call it? You need to bathe them,wipe their bottoms,dress them exactly what any mum would have done to her child.I have been taking care of my mum for nearly 4 yrs. She is at home with dad and me and there is no talk of her going into a home by my dad,me or my siblings. I am her primary caregiver and it isn't easy at all at times. My mum has reached the stage where she can only eat or drink by herself. Her walking is slowly going so has the use of a wheelchair when we are out. I can leave her with dad for about an hour or so but any longer is harder on my 'young' 93 year old dad especially if she needs to go to the toilet and she doesn't recognize him. The journey is hard,every month is different but there are still good moments in the day. At least my siblings are able to help out in small ways but for me to go away for days is impossible. I had a 3 week break in January but i can go out for a coffee or dinner. In my country I am able to receive a carers benefit for looking after my mum and all her pull on panties are supplied free of charge . We are able to get more support but don't need it at present but when the time comes we shall use it. This is the biggest and last gift I can give to my mum for all the love she showed me. She is definitely worth it and I don't see it as giving up my life for her.I was living a very full life until the age of 55. I never had kids so didn't put my life on hold for anyone else. This is my time to 'mother' someone, that being my beautiful mum who is just that both inside and out.And she is worth it!! I am not English but from the Mediterranean region and my generation still take care of our elderly at home if possible.
No one knows the struggles of other people. If you have never been a caretaker of a person with dementia please don't be critical. Even if you have been a caretaker every circumstance is different. My dad had dementia and what I missed most was being able to have an intelligent, meaningful conversation. He died of a heart attack before the dementia was end stage. In a way I am glad it was the heart attack because even though he most likely lost time he didn't linger and suffer.
My heart is broken 💔 for you both. We had to form new bank accounts, cancel credit cards, take out house phone, it's exhausting. You are a mother to him now, start planning for 24 hour nursing needs as it will shift to next stage quickly. Please plan for your self, living arrangements, keep your true friends close, counseling on acceptance the relationship is coming to an end as you knew it so your heart is more ready. They seem to go to a place we can't share, basically your just an observer to keep them safe for now. In those moments of clarity, simply show the love ❤️. Take care and pray diligently, Heavanly father hears you and will send you help. God bless sweetheart.
My dad had Lewy Body, and my mom was his primary caregiver for the duration. You’re doing an amazing job. It’s a hard road, and unless you can see behind the scenes, it’s almost impossible to understand. Although my mom is gone now, I know she would be a huge cheerleader for you and Jason! You both are doing a huge service to other people dealing with a dementia diagnosis. My mom would have so appreciated such a resource when she went through it. Thank you!
No one should ever judge you. You are doing an amazing job. I am a hospice nurse now but a former ICU nurse for 25 years. Most of my patients have dementia and they are all so different but similar in many ways. It has to be one of the hardest things to watch. I feel for you and Jason. It affects everyone and no one more than you and your kids. The stress it puts on the spouses is tremendous. You sharing your story with others is so helpful to all caregivers dealing with this. I have the pleasure of knowing many spouses of patients who I have known for a year and they are amazing people. The stress I see on some of them is tremendous. They do become children again. sending you all love
Oh Leslie, you are going through it with grace and dignity. I know we don’t see behind closed doors but you are an inspiration for sure. I’ve been watching you and Jason off and on for the past several years. Please know we don’t expect you to be strong, cool, calm and collected all the time. It’s got to be so very hard to lose your best friend to this difficult disease who also happens to be your dear husband. Prayers for you and Jason❤
Leslie, please tell Jason, when he's ready, that his honesty is all he needs to give when you help tell about this journey. He never needs to apologise nor do you. Thank you for your bravery.
I am crying as I’m watching this because I had to totally get me and my husband are in it right now and it changes all the time he has vascular dementia and Alzheimer’s and it does it changes the whole relationship / marriage dynamic. He was like my best friend now I’m the person he likes the least and it does hurt if I didn’t have God in my life I don’t see how I could get through it. What has been especially hard is finding support groups in my area. . I appreciate your videos very much.
It's so difficult for me to imagine anyone questioning your caregiving choices and techniques with Jason. I'm sure off camera things get tougher, but on camera they can still be pretty tough. I admire you so much for the love you exude for Jason and the patience and kindness. to me, you are a saint! 💝
I felt so bad for Jason, it is one thing to be confused and another to know you should be able to do a task but can’t. Jason is so blessed to have you as his wife. It is terrible journey for a couple to be on. Sending you hugs. ❤️❤️❤️❤️❤️❤️
I know exactly what you’re talking about in every situation I went through this with my mom… I can’t believe people have the nerve to judge or say anything. You are one of the most gracious women I have seen in this situation. Consider keeping us updated with just videos from you… You’re a great speaker and we love to hear from you and what’s going on. If Jason doesn’t want to do the videos anymore that’s fine… We will still watch and we are still interested!
When my dad started with diagnosis of Alzheimer’s we had him pay for things in store with money we put in his wallet. I understand it is so hard for you and him. Prayers for the both of you. My sister and I would come to my moms house and we would stay over for the weekend and give mom a break. As it progressed they had a fenced in yard but we needed to put a chain that opened on other side so he could be outside with out walking away for miles. We put alarms on the doors so we knew when he was going out of house. I can’t even imagine what it is like when your brain is all confusion. They withdraw. 😢 bless you and make sure you also take care of yourself and don’t be ashamed to ask for help!!! My dad had a friend that would take him out once a week to breakfast for normalcy. I hope some of these ideas can help you in your journey. God bless
Leslie you are a woman of grace & dignity. I look to you as an example of how I’d like to be during my really tough days with my husband with Alzheimer’s. My husband was diagnosed when our youngest child graduated High School so I traded parenting for caregiving. It’s the worst.
I can’t even imagine the massive adjustments you’re both having to make on this terrible journey. All diseases are awful, but to me there’s something particularly insidious and evil about dementia. I’m so sorry it came to you two, yet so grateful for your openness and transparency. A few years back, this was my sweet mother’s journey. Tomorrow, it could be mine. Or my husband’s. It could *and will* happen to many of us in our turn. Everything I can think of to say seems so inadequate, but I was thankful to hear that you are both Believers. Our Abba Father walks every journey beside us, and promises that what we endure on this side is NOT the end of the story. 💜
With dad & mom both with dementia I had to make very difficult calls. Drivers done. Take over finances. Incorporate more Home care and much more. I dealt with their anger for several years. But as a care giver these decisions are necessary. What is so painful is that our roles change. Prayer for you Leslie is for discernment, wisdom and of course peace that passes all understanding in this particularly hard stage.
Doing the same with a close relative ....it is very much like one person disappeared and I am learning to adjust to someone who is a stranger. Thank you for your videos.
I'm really glad that you respected Jason's wishes and didn't push him to film . He seems uncomfortable a lot to me in your videos so it was interesting to hear him express that . I take care of my mom who has dementia and I really appreciate your videos . I hope Jason doesn't feel like he needs to "show boat " for us . He can be real it's appreciated ❤
I'm so sorry that you are having to go through this. my husband had FTD doe about 8 years during which time he could not work. I was on disability as was he so money was tight. Eventually he developed cancer and was put in hospice care at the hospital. He wanted to go into long term care which was unreasonable and it would have used up all of our resources. He said to me that I'd be fine, "with no money" until he passed away , which was about 10 weeks later. He became very cruel in the last 3 years of our life together. I don't know how I coped. My faith, I guess. Hang in there. Pray lots. God bless.
I found Jason not wanting to participate in the moment a reality check in the video,and actually a good one because Jason is always so obliging in discussing his condition, it was positive for him to be able to show his feelings at that time and say no.Lesley ...despite the hardships of this disease you are doing a fanastic job, take care of yourself too
I don’t comment ever, but felt led to say your love for each other & for Jesus is amazing.I prayed for and your family today.I have watched you both for years & think you are such an inspiration.God bless you 🙏🏻💕
You have my deepest respect for how you are managing the changes that you are experiencing due to Jason's illness. You are doing the very best you can in the face of this terrible illness.
Prayers for you Leslie. I always said that God sent me to EMT school when I was 44, got me a job working in an ER for 20 years helping RN's Docs, PAs, so when my husband (of 40 years) had cancer, I could take care of him at home. We only got 7 months with chemo and radiation, but no one in his family realized how tired I was from doing it all alone. I admire you so much, and I know you don't sleep well because they get up at night and fall, or I had to put a lock on the basement door...God Bless you! Jason is very lucky to have you as his wife and caretaker.
Jason how you feel is really ok. If you need a nap do it. Your body says rest. You rest. It's ok, Jason I understand my husband felt just like you. Honey take one minute at a time. Just be at peace love Hugs for both of you. Just a heads up. This is so hard. Irritability and fuzzy head. Knowing he can not do what he could at one time is so hard for him. You young lady, you rest when you can. This is hard to. You know he may get irritated and not know why. Have pain and can not tell you. Watch his body language. I just went through all this. I am praying for you kids. Safety is big. As time goes by you may need Hospice to help. Honey get any help you can. You just described my husband. Yes I also turned into my husband's mother. Just do your very best with love. I wish I was there to help you. It is so awful this disease I know. I am praying everyday for you kids. Love and Hugs Patti Smith
I can relate with how difficult it is when your role changes as a caregiver. My mom had dementia and my dad had his own health issues so although he wanted to he wasn't able to care for her or himself anymore. Having to become the parent to your parents is hard on everyone just as I'm sure having to become the parent to your spouse is.
I found it great that Jason could be genuine. Man, if I was aware of a serious decline in myself, I’d also be disappointed and frustrated and irritated. It seems that when he mentioned the decline, his feelings about it came up - and it was like f this sh*t, I don’t even want to do the video now, so stop asking me questions. Struck me as totally understandable! Kudos to Jason for being real. And I also found it admirable that he can still set up a fireplace, even if a nap was necessary.
Good evening Leslie! I admire you so much for having the strength to get through each day! I believe your strength comes from God. He will never leave you nor forsake you. I believe He is going before you and carrying you as well in this difficult journey of your sweet Jason. Thank you for sharing with everyone. May God bless you both. I’m praying for you and Jason. 🙏🏻💕
I so appreciate the effort that you have taken to help others. Please take care of yourselves. Live your lives a day at a time🙏🏼💕 we are with you all🙏🏼💕
Its so heartbreaking he is acutely aware. Oh my gosh, my heart just goes out to ya'll. I am putting every fiber of hope into research and treatment for you guys.
I guess I was very lucky when my partner of 44-years was tested to keep his driver's license and he didn't pass the written or driving portion of the test, he very calmy said I don't mind losing my license I have you. When he was having issues with finances, he willingly handed me the reigns and allowed me to manage everything. I took care of him until late stage seven, at that time I don't think he knew who I was. At late stage six the sundowning started, that was the hardest for me to handle because he'd wander out of the house at all hours, so I wasn't able to sleep day or night. I lost weight because I couldn't take time to eat. I hated to let him go, but finally the last 911 call he went after the EMTs and they said they couldn't leave him with me because he might hurt me. He never came home after that, he lost his ability to walk, talk, and at the end the ability to swallow. He only lived 8 weeks after he left my care. It's only been 7 months since he passed, but I hindsight it was a blessing, dementia is a horrible disease.
I’m so glad you have a support group! My mom took care of my Dad by herself for five years by herself and the toll it took on her was so hard to see. Keep getting support!!
My heart goes out to you. I have been a caregiver for my neighbor who had dementia. How I loved her. People need to realize that at some point, they do become child like. And they react positively when treated as such. At least in my case. I would make sure that a challenge turned into a laughing fest. God bless you! Keep the faith!
My heart breaks for you (and for the rest of us going through it, too). I'm further ahead of you. Both my parents got dementia and are further along in their journey. As his care needs increase, his dementia will take over every aspect of your life. You'll end up like a single mother of a baby -sleeping when he sleeps, following him around the house for safety reasons, etc. Hire help and hire it SOON so that he can get used to it now before he really needs it. But beware the paranoia and the anxiety... and the anger. Don't wait to medicate the heck out of anxiety and sleeplessness. Get a doctor who isn't afraid to write psychiatric drugs. If you hesistate or wait too long the anxiety increases and feeds the paranoia which feeds the anger and the aggression. Then, one day, the person gets VIOLENT. It's terribly hard to medicate violence out of someone. It's FAR better to medicate BEFORE it becomes an ingrained habit. Once the police start coming out for violence, people get sent to a group home and then, the nightmare of being evicted for violence begins. The first thing that happens in a group home with someone who becomes violent is medication. So, don't hesistate to get on top of anxiety and paranoia with meds at home. Watch out for the end of stage 6 when the language starts to go. I am soooo very sorry.
I know that this is so sad on you especially since this is the love of your life.please never stop sharing! I know I love reading your posts and you are educating us so much!!❤❤❤❤❤❤❤
I like your videos. I do worry about your safety at times. I know its not in Jason's nature normally, but some people can get violent as the disease progresses. I'm glad you have a great support system. Your bringing alot of good information about dementia.
I am so sorry that people feel that they can have an opinion. Especially when they have not gone through what you are experiencing. I’ve cared for my grandmother in law who had Alzheimer’s. I printed out a card that I carried with me so that I could show it to people that didn’t have a clue. My grandmother didn’t want to talk about what she had and there were times when I would have to talk to her like a child. I would have to tell her to stay with me and not go anywhere, as I was checking out at the grocery store. People would look at me as if I was a terrible person. I had lost her once and wasn’t going to do that again. So when I handed them the printed out business card and they read it, I think it helped everyone understand. Well….as much as they could. No one really can understand until you have had to go through it. Then my father in law had Parkinson’s with dementia. It was rough taking away the keys. It was tough taking away the credit cards. We kept his wallet, but put in expired cards. He wanted the keys to the gun safe😮. We’re we mean because we said no? HELL YES, we didn’t care if it came across that way. We were keeping us ALL safe. We love you both. Hang in there. I’m so glad that you’re doing the support groups, it truly helps. 😘
I respect that you’re respectful towards his feelings. It looked like he wanted to talk for just a sec, and then that a switch was flipped. I felt bad for both of you. You’re always so kind and understanding towards him, which helps him I’m sure. Im sorry he’s declining. You seem so strong….just remember….you’re human too. I couldn’t make these videos without crying. I admire your strength and how you hold together for us. Ignore the negative, even though it’s hard I’m sure. It’s ok to cry Lesley. It’s not a sign of weakness. Jason is so lucky to have you. I’ll be praying that you continue to be strong. But remember to give yourself some grace too. You’re not being his mother….you’re being his wife-in sickness and in health. I can’t imagine how this hurts to watch him decline. Love from Tennessee.❤
You have said so many personality traits I am seeing. So thank you for your voice. This is helping me with my husband to know I am not crazy in some of my feelings.
I went through it with my Mom , unfortunately she passed away last month, but believe me I understand every single thing you are talking about, I had to reverse roles and I became the Mothers figure and she became like my daughter, the money issues are a very hard subject to navigate because, yes they loose total concept of the situation, and they do become very concerned about their stuff , I totally understand what you’re going through, your not alone , God bless you guys and guide you to navigate all issues ❤❤
Just recently found your channel. Thank you for sharing such personal experiences with us. I lost my dad 16 years ago to alzhemier's after 16 years, My mom was his caregiver and the only blessing was that my dad was the temper tantrum kid before his diagnosis and became very calm and sedate once diagnosed. There came a point where mom could no longer care for dad, her own health was in jeopardy. Blessed to find a wonderful facility dad carried on for another 3 years and passed peacefully. In many ways this is such a horrible disease for both the patient and caregiver. Keeping you BOTH in my thoughts and prayers and thank you again for your courage to share your journey with us.
My husband died a couple years ago of Alzheimer’s. It was awful so I know what you’re going through. I have a daughter who is a CNA and has taken care of Alzheimer patients so she was able to help me a lot.
I am so sorry. When you have done everything right. When you have enjoyed the reward of seeing your dreams come true for you and your family. When you finally are at a point to sit back and enjoy the results of all you and your spouse have built together through the years, to realize you will be making the rest of life’s journey without him has got to be the most heartbreaking and unfair conclusion I can imagine. I am so very sorry. It just isn’t supposed to work out this way.
How dare anyone question how you handle this tough time in your lives. No one can imagine the struggle you face every day. I was a caregiver to my mom and after she passed I became a paid caregiver to a gentleman who was a highly respected FBI agent. It was my goal to keep him happy and content.
I'm sending love and prayers your way. ❤I found this video through watching your other channel and the cozy hobbies video you did there a couple of months ago. I have been enjoying a few of the cozy hobbies and I always think of you when I start my diamond painting. Now I will whisper a prayer for you instead. All this is to say I don't have any experience with what you are going through, but I wish you both the best and I can only imagine the pain and stress you are feeling. It is obvious you love Jason very much and that he loves you, too. I feel there must be so much stress and grief for you. I can't imagine why someone would feel the need to criticize or judge you for your choices. Please know that I am praying for you and Jason and your entire family.
Leslie and Jason,you have no idea how your videos have helped me. Thank you ! I as others am having such a hard time. My husband has moderate dementia and I would say he is 80 % gone. There is not much left of his former social personality. He hardly speaks to me anymore unless I prompt him and then it a minimal response and sometimes he does not understand me anyways, I can see it in his eyes. He is empty of emotion and its so hard to pull him out of this . I am lonely and worn out,physically and emotionally. He sleeps a lot snd he is always tired. We just a month ago had to put our 15 year old dog down and it was hell He always intereacted with her with walking a talking. She was our glue.Now thats gone... I do everything and pretty much always have but I am 72,have my own health issues and feel imprisoned. I am going to get him into a day program soon atleast for one day a week to have on my own. Last week he was out for 3 hrs. I spent that time crying and blasting Tina Turner c.d.s. I cried over my dog,my brothers death anniversary coming the next day and my moms was this week. I lost my younger brother,my sister,my mom and my 2 best friends all in 9 months 6 years ago.Now its the long goodbye with my husband,thats if this does not kill me first lol. Sorry for the pity party but there is no one to hold me up but myself. I feel your pain Leslie, I really do. Thanks again.
My father had dementia. His fixation was money. He thought we were all stealing from him because he couldn't handle is account any longer. We would show him the bank statements. That satisfied him for awhile then he caught on. He couldn't sleep at night. Sleeping medicine made him sleep all day but fully awake at night no matter how we tried to schedule it. So my mother slept very little. Unless you've been there you have no right to give advice. Be kind to caregivers. My dad would sit quietly and listen for someone to read the bible so one of his neighbors came over once a week for an hour and read to him while my mother went for a walk and visit with friends. They both looked forward to him coming. God bless you.
Dearest Leslie, We love you and Jason. We understand how you both feel and how it affects and changes your relationship. You are both amazing in your own way. No one should be judging either of you. You are an amazing care giver and wife and Jason is such a character and is so used to making everyone laugh, we do understand that he feels crap for not being his old self. It breaks my heart for you, having to be so strong and take the abrupt, seemingly cold side of Jason right now. We know it’s not the real Jason. He can’t think straight and despite his obvious undying love for you, his frustration is mounting. You are the closest person to him and guess what? You are the lucky one who has to get it all! His anger, upset, dismay at himself, his frustration - you get it all. God bless you both. We love you so much and we do understand and value your shared video’s. We understand Jason’s moods can change and he may not want to talk sometimes. Please don’t worry about us. It’s all part of it and is helpful to see the rough with the smooth. That’s real life! You are both amazing. We love you both 🥰 ❤❤❤
Leslie, ive been on your journey with my father. Hard watching them decline. Hardest days work i had to do was to tell my father we had lost my brother. He couldn't process and sadly passed 3 months after because the grief was just the final straw. As his carer it was heartbreaking and cruel. I witnessed the aggression too. Hang in there and keep smiling lovely lady you are doing amazing. Take each day as it comes. x❤
I see my mother in law going through this now and suspect I will be too some day but you are so young to have to do this stay strong and look after yourself too❤
I’m sorry for your loss.😢 Be good to yourself and let go of any guilt or regret. I’m sure your husband would agree that now you need to try to relax and take care of yourself. Much love and prayers for you from NC ❤
My heart breaks listening to you as his caregiver. My Mom had Alzheimers and was aggressive, and was so angry when she lost her independnece. So hard. Many prayers for you and Jason.
I lost my husband to dementia in November. I lost my mother to dementia 3 years ago. It is a terrible disease and I totally understand what you are dealing with. As the dementia progresses as you are experiencing now, your role has to shift and you become more like a “mother” out of the need to keep him safe and to also protect finances, etc. I know how difficult this is, but please try to take some time for you. Stress can be tough on your health and I know as a nurse you understand that. Praying for you and Jason.
My heart goes out to you and Jason, he’s a great guy and so blessed to have you as his wife and caregiver but so stressful for you ! Your a wonderful loving, godly woman and I have so much admiration for you. And Jason! Praying in earnest for you both, I know it’s not easy and just know its going to be alright by the grace of God! 🙏🙏🙏❤️❤️
You just explained my life exactly, I had to take over finances two years ago and he just loves it I give him upedates on our bank account and what has been paid each month etc. It is very hard to go through it alone I am alone and sometimes I need a good cry and keep on going, luckily I have God to turn too He is always there to help. Keep going love your videos they are very encouraging
Leslie u are a wonderful caring, loving wife caregiver. Don’t let anyone put up down for anything. Ur an Angel. My heart breaks for u an Jason. This is a very hard journey. U keep him safe , loved an cared for.
First Leslie, you ARE going through this with grace and dignity. And it’s ok and understandable the feelings you are having and sharing. You and Jason are amazing individuals that are going thru the most unimaginable situation. The change of dynamics with in the marriage from equal partners to you having full responsibility of just managing everything in the Ho e and personal lives is humongous. Then add a caregiver on top. Can’t imagine but you are very generous and articulate in expressing your feelings and the situation. The fact that Jason can share his frustrations and speak out and say , I don’t want to do this is ok, always. And it speaks volumes in its self. You have your own pain and then hurt for him as well bc he is quite aware of the fact he’s losing his former self. You both are in constant grieving the loss of who you were before this awful disease. Please know you are kept in prayer and love. I’ve followed you both for years and have the deepest respect for you both and family. It may not feel like it but you both are doing an amazing thing by sharing. I’m sure it’s helping thousands of people. As a retired RN, May I suggest at some point maybe you could find a live-in helper for room and board. A single RN or a nursing student? Just a thought. I know you are trying to keep household as normal as possible. But it’s too much for any one person. Take your time and find the right person thru word from others. Hugs to you both. Tell Jason we are sending love to u both❤️
❤❤❤ I know exactly what you are going through My husband has dementia and they are like a child and it’s really hard when you have lost your husband to this disease it’s so cruel As they say it a long goodbye We looked after his Mother but when it’s your Husband it’s so different very lonely It’s the hardest thing I’ve ever had to do So don’t ever forget You are amazing and Thank You for sharing I know it’s not easy but sometimes it helps knowing what other Carers are going through too So Thank You God Bless ♥️♥️♥️
Oh man, Leslie, do I hear you! Finances were one of our worst struggles. No matter how I tried to explain my husband could no longer reason like he used to. He insisted on ordering expensive stuff for himself, and I just wasn’t quick enough to catch it all. Prayers for you.
I’m so sorry you’re going through this Leslie. This is a horrible disease. I’m praying for you and Jason. I’m so happy that you have your faith to help get you through this very difficult time. My father had Alzheimer’s and passed 2 1/2 years ago. My mother was his caregiver and it definitely was so hard for her, especially at the end. Support is so vital and I’m happy to see you have this as well! Take care of yourself and thank you for sharing your story with us! 🙏❤️
I know is this is a difficult time for the both of you. My mother lives with my family and as a care taker it’s exhausting. Jason is so lucky to have you as his wife❤Jason blesses so many people I can tell!, even your UA-cam viewers! Jesus has you both by his hand and you both can always count on Him! Love you both so much! God Bless!
When Mom was still at home, she would get numerous calls asking for her credit card number. She would get in such a tizzy that we were afraid she would have a heart attack. All of her life, Mom was frugal and didn’t trust strangers. Now she could not comprehend that the callers were trying to steal her identity and take her money. Soon after my brother and I shared caring for Mom in our own homes. I would strongly advise not trusting a dementia patient with credit cards or personal information. The roles become reversed and you become the parent. Let us all support caregivers on the journey with their loved ones. If you haven’t walked a mile in their shoes, don’t criticize.
I am a caregiver and I get all that you are saying. I have done the app for purchases and that’s how I learn that he has signed up for subscription purchases by mistake. This is different thAn AD. Thanks for sharing.
People don’t know what you are going through until they are there. As a disabled person who use to be very independent I understand. My oldest daughter use was in denial. She did not want to accept that I am getting older and my spinal injuries are taking told on me. She did not even believed the doctors. My prayers are with you and Jason.
I'm glad you have the app and I'm sure that you have things in place and may have moved on from this, so my suggestion is for other caregivers: would it be possible to open another current account, move most of the balance into it, and feed the first account a suitable amount on a regular basis. It would be something to do when your spouse is in a good mood and with the help of the right bank staff not too much of a short term nightmare.
I completely identify with this. I remember when my dad was no longer logical in his actions or thinking, and trying to discuss things and reason with him did no good. Ultimately we had to put things in place to protect his finances and his personal safety that he vehemently opposed, which was tough being his daughter (not his spouse or mother), but they were necessary in order to protect his financial and physical livelihood. I remember feeling amazed at how much the parent/child relationship had transitioned to me behaving as his mother, which was crazy to me. He passed away in 2019 due to Alzheimer's so I know exactly what you're going through. The road is long and tough and never gets easier. Sending love and light your way. And don't forget to take care of yourself so you can remain strong and resilient.
The same with my dad as well. We had to move him from his home in Arizona to our home in Colorado. He lived with us the last 8 months of his life. We had 24/7 care for him. As much as it was a blessing to have him at home it was also so terribly hard to see him regress on a daily basis. My dad was a highly intelligent man that had his own business for over 40 years. I had to shut that all down which was heartbreaking for me. To watch my dad go from running a successful business and living alone to seeing him lift a spoon full of food up and not know what to do with it was awful. I miss our talks and his advice. I miss his love and his crazy sense of humor. I miss him. I know that him losing his mind had to be the worst way to go for him.
I would just like to say if there is anyone out there who wants to judge and complain just please GO AWAY! This is a care group of like minded people and Leslie is doing her very best to trust GOD and put one foot in front of another as she loves and cares for the love of her life. GOD bless you dear sweet Leslie. We are in this together. You and Jason are loved very much by this community and everything you post is so very appreciated. Thank you so much. ❤️❤️❤️🙏🙏🙏
I don’t see any negative comments.
Oh Leslie, I am so sad you have to go through this. My husband died in 2021, with "muscle weakness" and dementia. I insisted on keeping him home as long as possible (I'm now 81) and it nearly brought me to my knees. Thankfully my doctor intervened and moved him to health care (nursing home) where he spent the last 6 months. All of this during Covid. I would urge you to get someone to relieve you as much as possible. He no longer knew who I was and possibly was not clear who he was. I truly did not understand the toll it was taking on me until after he died. Do not consider it to be selfish to ask someone to help you. It's such a difficult journey for both of you. God bless.
we all have our own journey and make the choices that best suit our relationships. I honor Leslie's choices not just because I made the same choice but because her choice is perfect for her. :)
I went through the same thing with my husband during Covid! A nightmare! I was 79 years old.
My heart goes out to you. I lost my husband just 3 weeks ago to dementia. We were on this journey for a decade. I retired 5 years ago to be home and care for him and the last 3 required full time care with constant monitoring. It’s the cruelest of diseases. I’m so glad you have a support group and please know that you will need either family or a paid caregiver in the late stages. No one person can care for a dementia patient 24/7. Prayers 🙏
Bless you x take care of yourself, I'm sorry for your loss x
I’m so sorry for your loss. ❤️
I am so sorry for your loss!
Sorry for your loss
So sorry for your loss
Your love for Jason shines through each time you do one of these videos! I’m thankful that you also have a support group and your faith to lean on. Never feel funny or weird about unloading on us. We are here to support you and send love/prayers to you both.
When someone comments negatively about things you have to do with Jason they obviously do not know how hard it is to deal with someone with dementia and how very difficult it can be. They are coming from a place of ignorance and it's sad that they think they know better. Unless you are forced to live a life with dementia in yo it is very hard to explain what you are going through with others. All you are trying to do is protect him but you also have to protect yourself and your finances. My in laws both had dementia and alzheimers and it was very difficult to reason with them, explain things to or just try to get them to change their minds once they are set on something. My father in law threw tantrums and got very ugly when we finally had to move them to an assisted living facility. They even tried escaping several times and actually made it out once and spent $450.00 on a taxi to "go home" to their house 2 hours away! He didn't even recognize his own house when he got there. I'm so sorry you are going through this, Leslie. Life can be so unfair, sometimes and I am so sorry you have been dealt with such a difficult situation. I think you are doing a wonderful job, and I know you are doing the very best you can with being very sensitive to Jason's feelings. My prayers are with you.🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏
@@9384cows , Very well said. Its sad , so sad.
oh my goodness, my husband had lewi Body died in March. i took away debit card. you for sure hsve to be his mom like caregiver
Keto diet -- high fat and low carb, coconut oil (1 - 3 tbspns daily) and vitamin D help people with dementia. New research points to dementia being related to fungus in the brain -- see video from dr. cameron jones dated august 15 2020. Parasites may also be an issue. God bless Jason and family.
@@rccyberwarrior2267Leslie, u r doing such a great job dealing with Jason's problems. U must have had a wonderful. Life together.. as I have said before, u grew up together as u have been together since your early teens. I am a retired nurse who has to deal with these problems daily, from the hospital or living situation. Dementia, and altzheimers were my patients. On my side of the curve, I was able to give such good and loving care to your loved ones as my job. I got sdo much from these patients and their families. I miss my people very much. I feel blessed to have been able to give this care, and not only help the patients, but the families. I miss them all. Again, Leslie, please do not wear yourself down to the nubbins before u finally get to the end. God bless you and your families so much. My prayers surly go out to u all. Love 💕 Glenda veborg.
No one should say anything negative about how you are coping with this situation. I know it is heartbreaking and sometimes hurtful when all you are trying to do is keep Jason safe and happy. Your happiness you have to take bits at a time because you are constantly looking after him and sometimes sorrow comes along with that. I applaud you for loving him and doing all you know to do to protect him and support him in anyway you can. Prayers for the both of you that God will continue to give you strength and trust in Him as you go through this battle together.
❤
For those who have no idea about this horrible disease you do become a mother to your loved one. It doesn't work any other way. What else can you call it? You need to bathe them,wipe their bottoms,dress them exactly what any mum would have done to her child.I have been taking care of my mum for nearly 4 yrs. She is at home with dad and me and there is no talk of her going into a home by my dad,me or my siblings. I am her primary caregiver and it isn't easy at all at times. My mum has reached the stage where she can only eat or drink by herself. Her walking is slowly going so has the use of a wheelchair when we are out. I can leave her with dad for about an hour or so but any longer is harder on my 'young' 93 year old dad especially if she needs to go to the toilet and she doesn't recognize him. The journey is hard,every month is different but there are still good moments in the day. At least my siblings are able to help out in small ways but for me to go away for days is impossible. I had a 3 week break in January but i can go out for a coffee or dinner.
In my country I am able to receive a carers benefit for looking after my mum and all her pull on panties are supplied free of charge . We are able to get more support but don't need it at present but when the time comes we shall use it. This is the biggest and last gift I can give to my mum for all the love she showed me.
She is definitely worth it and I don't see it as giving up my life for her.I was living a very full life until the age of 55. I never had kids so didn't put my life on hold for anyone else. This is my time to 'mother' someone, that being my beautiful mum who is just that both inside and out.And she is worth it!! I am not English but from the Mediterranean region and my generation still take care of our elderly at home if possible.
No one knows the struggles of other people. If you have never been a caretaker of a person with dementia please don't be critical. Even if you have been a caretaker every circumstance is different. My dad had dementia and what I missed most was being able to have an intelligent, meaningful conversation. He died of a heart attack before the dementia was end stage. In a way I am glad it was the heart attack because even though he most likely lost time he didn't linger and suffer.
My heart is broken 💔 for you both. We had to form new bank accounts, cancel credit cards, take out house phone, it's exhausting. You are a mother to him now, start planning for 24 hour nursing needs as it will shift to next stage quickly. Please plan for your self, living arrangements, keep your true friends close, counseling on acceptance the relationship is coming to an end as you knew it so your heart is more ready. They seem to go to a place we can't share, basically your just an observer to keep them safe for now. In those moments of clarity, simply show the love ❤️. Take care and pray diligently, Heavanly father hears you and will send you help. God bless sweetheart.
My dad had Lewy Body, and my mom was his primary caregiver for the duration. You’re doing an amazing job. It’s a hard road, and unless you can see behind the scenes, it’s almost impossible to understand. Although my mom is gone now, I know she would be a huge cheerleader for you and Jason! You both are doing a huge service to other people dealing with a dementia diagnosis. My mom would have so appreciated such a resource when she went through it. Thank you!
Oh my goodness-
I’m alone in my journey with my husband and you are speaking my heart right now.
Thank you for sharing ❤
No one should ever judge you. You are doing an amazing job. I am a hospice nurse now but a former ICU nurse for 25 years. Most of my patients have dementia and they are all so different but similar in many ways. It has to be one of the hardest things to watch. I feel for you and Jason. It affects everyone and no one more than you and your kids. The stress it puts on the spouses is tremendous. You sharing your story with others is so helpful to all caregivers dealing with this. I have the pleasure of knowing many spouses of patients who I have known for a year and they are amazing people. The stress I see on some of them is tremendous. They do become children again. sending you all love
Oh Leslie, you are going through it with grace and dignity. I know we don’t see behind closed doors but you are an inspiration for sure. I’ve been watching you and Jason off and on for the past several years. Please know we don’t expect you to be strong, cool, calm and collected all the time. It’s got to be so very hard to lose your best friend to this difficult disease who also happens to be your dear husband.
Prayers for you and Jason❤
Leslie, please tell Jason, when he's ready, that his honesty is all he needs to give when you help
tell about this journey. He never needs to apologise nor do you. Thank you for your bravery.
LESLIE, you are doing a phenomenal job loving and caring for Jason!
I am crying as I’m watching this because I had to totally get me and my husband are in it right now and it changes all the time he has vascular dementia and Alzheimer’s and it does it changes the whole relationship / marriage dynamic. He was like my best friend now I’m the person he likes the least and it does hurt if I didn’t have God in my life I don’t see how I could get through it. What has been especially hard is finding support groups in my area. . I appreciate your videos very much.
It's so difficult for me to imagine anyone questioning your caregiving choices and techniques with Jason. I'm sure off camera things get tougher, but on camera they can still be pretty tough. I admire you so much for the love you exude for Jason and the patience and kindness. to me, you are a saint! 💝
I felt so bad for Jason, it is one thing to be confused and another to know you should be able to do a task but can’t. Jason is so blessed to have you as his wife. It is terrible journey for a couple to be on. Sending you hugs. ❤️❤️❤️❤️❤️❤️
We’re with you Leslie, my heart aches for you. Keep on trucking you’re doing a wonderful job.
My heart goes out to you both after watching my dad look after my mum with Alzheimer’s. You are doing an amazing job and are so graceful and kind. 💕
I know exactly what you’re talking about in every situation I went through this with my mom… I can’t believe people have the nerve to judge or say anything. You are one of the most gracious women I have seen in this situation. Consider keeping us updated with just videos from you… You’re a great speaker and we love to hear from you and what’s going on. If Jason doesn’t want to do the videos anymore that’s fine… We will still watch and we are still interested!
Your doing good kid. Hang in there. Prayers and lots of love I'm sending your way.
When my dad started with diagnosis of Alzheimer’s we had him pay for things in store with money we put in his wallet. I understand it is so hard for you and him. Prayers for the both of you. My sister and I would come to my moms house and we would stay over for the weekend and give mom a break. As it progressed they had a fenced in yard but we needed to put a chain that opened on other side so he could be outside with out walking away for miles. We put alarms on the doors so we knew when he was going out of house. I can’t even imagine what it is like when your brain is all confusion. They withdraw. 😢 bless you and make sure you also take care of yourself and don’t be ashamed to ask for help!!! My dad had a friend that would take him out once a week to breakfast for normalcy. I hope some of these ideas can help you in your journey. God bless
Leslie you are a woman of grace & dignity. I look to you as an example of how I’d like to be during my really tough days with my husband with Alzheimer’s. My husband was diagnosed when our youngest child graduated High School so I traded parenting for caregiving. It’s the worst.
I can’t even imagine the massive adjustments you’re both having to make on this terrible journey. All diseases are awful, but to me there’s something particularly insidious and evil about dementia. I’m so sorry it came to you two, yet so grateful for your openness and transparency. A few years back, this was my sweet mother’s journey. Tomorrow, it could be mine. Or my husband’s. It could *and will* happen to many of us in our turn.
Everything I can think of to say seems so inadequate, but I was thankful to hear that you are both Believers. Our Abba Father walks every journey beside us, and promises that what we endure on this side is NOT the end of the story. 💜
With dad & mom both with dementia I had to make very difficult calls. Drivers done. Take over finances. Incorporate more Home care and much more. I dealt with their anger for several years. But as a care giver these decisions are necessary. What is so painful is that our roles change. Prayer for you Leslie is for discernment, wisdom and of course peace that passes all understanding in this particularly hard stage.
It’s so brave of you to share all of this, you are amazing. Remember the good times of your marriage. Lots of love to you.
Doing the same with a close relative ....it is very much like one person disappeared and I am learning to adjust to someone who is a stranger. Thank you for your videos.
I'm really glad that you respected Jason's wishes and didn't push him to film . He seems uncomfortable a lot to me in your videos so it was interesting to hear him express that . I take care of my mom who has dementia and I really appreciate your videos .
I hope Jason doesn't feel like he needs to "show boat " for us . He can be real it's appreciated ❤
I'm so sorry that you are having to go through this. my husband had FTD doe about 8 years during which time he could not work. I was on disability as was he so money was tight. Eventually he developed cancer and was put in hospice care at the hospital. He wanted to go into long term care which was unreasonable and it would have used up all of our resources. He said to me that I'd be fine, "with no money" until he passed away , which was about 10 weeks later. He became very cruel in the last 3 years of our life together. I don't know how I coped. My faith, I guess. Hang in there. Pray lots. God bless.
I found Jason not wanting to participate in the moment a reality check in the video,and actually a good one because Jason is always so obliging in discussing his condition, it was positive for him to be able to show his feelings at that time and say no.Lesley ...despite the hardships of this disease you are doing a fanastic job, take care of yourself too
I don’t comment ever, but felt led to say your love for each other & for Jesus is amazing.I prayed for and your family today.I have watched you both for years & think you are such an inspiration.God bless you 🙏🏻💕
You have my deepest respect for how you are managing the changes that you are experiencing due to Jason's illness. You are doing the very best you can in the face of this terrible illness.
Prayers for you Leslie. I always said that God sent me to EMT school when I was 44, got me a job working in an ER for 20 years helping RN's Docs, PAs, so when my husband (of 40 years) had cancer, I could take care of him at home. We only got 7 months with chemo and radiation, but no one in his family realized how tired I was from doing it all alone. I admire you so much, and I know you don't sleep well because they get up at night and fall, or I had to put a lock on the basement door...God Bless you! Jason is very lucky to have you as his wife and caretaker.
Jason how you feel is really ok. If you need a nap do it. Your body says rest. You rest. It's ok, Jason I understand my husband felt just like you. Honey take one minute at a time. Just be at peace love Hugs for both of you. Just a heads up. This is so hard. Irritability and fuzzy head. Knowing he can not do what he could at one time is so hard for him.
You young lady, you rest when you can. This is hard to. You know he may get irritated and not know why.
Have pain and can not tell you. Watch his body language. I just went through all this. I am praying for you kids. Safety is big. As time goes by you may need Hospice to help.
Honey get any help you can. You just described my husband. Yes I also turned into my husband's mother.
Just do your very best with love. I wish I was there to help you. It is so awful this disease I know.
I am praying everyday for you kids.
Love and Hugs
Patti Smith
I can relate with how difficult it is when your role changes as a caregiver. My mom had dementia and my dad had his own health issues so although he wanted to he wasn't able to care for her or himself anymore. Having to become the parent to your parents is hard on everyone just as I'm sure having to become the parent to your spouse is.
I found it great that Jason could be genuine. Man, if I was aware of a serious decline in myself, I’d also be disappointed and frustrated and irritated. It seems that when he mentioned the decline, his feelings about it came up - and it was like f this sh*t, I don’t even want to do the video now, so stop asking me questions. Struck me as totally understandable! Kudos to Jason for being real. And I also found it admirable that he can still set up a fireplace, even if a nap was necessary.
You are so strong and kind given your own physical health and given this nightmare you live.
Good evening Leslie! I admire you so much for having the strength to get through each day! I believe your strength comes from God. He will never leave you nor forsake you. I believe He is going before you and carrying you as well in this difficult journey of your sweet Jason. Thank you for sharing with everyone. May God bless you both. I’m praying for you and Jason. 🙏🏻💕
I so appreciate the effort that you have taken to help others. Please take care of yourselves. Live your lives a day at a time🙏🏼💕 we are with you all🙏🏼💕
Praise God I am not living with these issues. I am so sorry that you are going through this. I am so glad that you are leaning on the Lord.
Its so heartbreaking he is acutely aware. Oh my gosh, my heart just goes out to ya'll. I am putting every fiber of hope into research and treatment for you guys.
So glad you have a good support group and family support. God is walking with you. We’re holding you in prayer ❤ Dale
I guess I was very lucky when my partner of 44-years was tested to keep his driver's license and he didn't pass the written or driving portion of the test, he very calmy said I don't mind losing my license I have you. When he was having issues with finances, he willingly handed me the reigns and allowed me to manage everything. I took care of him until late stage seven, at that time I don't think he knew who I was. At late stage six the sundowning started, that was the hardest for me to handle because he'd wander out of the house at all hours, so I wasn't able to sleep day or night. I lost weight because I couldn't take time to eat. I hated to let him go, but finally the last 911 call he went after the EMTs and they said they couldn't leave him with me because he might hurt me. He never came home after that, he lost his ability to walk, talk, and at the end the ability to swallow. He only lived 8 weeks after he left my care. It's only been 7 months since he passed, but I hindsight it was a blessing, dementia is a horrible disease.
I’m so glad you have a support group! My mom took care of my Dad by herself for five years by herself and the toll it took on her was so hard to see. Keep getting support!!
You are both amazing. It's heartbreaking to see you so sad Leslie, and Jason too as he knows he's loosing himself. Much love to you both!!! Thank you.
My heart goes out to you.
I have been a caregiver for my neighbor who had dementia. How I loved her.
People need to realize that at some point, they do become child like. And they react positively when treated as such. At least in my case.
I would make sure that a challenge turned into a laughing fest.
God bless you! Keep the faith!
My heart breaks for you (and for the rest of us going through it, too). I'm further ahead of you. Both my parents got dementia and are further along in their journey. As his care needs increase, his dementia will take over every aspect of your life. You'll end up like a single mother of a baby -sleeping when he sleeps, following him around the house for safety reasons, etc. Hire help and hire it SOON so that he can get used to it now before he really needs it. But beware the paranoia and the anxiety... and the anger. Don't wait to medicate the heck out of anxiety and sleeplessness. Get a doctor who isn't afraid to write psychiatric drugs. If you hesistate or wait too long the anxiety increases and feeds the paranoia which feeds the anger and the aggression. Then, one day, the person gets VIOLENT. It's terribly hard to medicate violence out of someone. It's FAR better to medicate BEFORE it becomes an ingrained habit. Once the police start coming out for violence, people get sent to a group home and then, the nightmare of being evicted for violence begins. The first thing that happens in a group home with someone who becomes violent is medication. So, don't hesistate to get on top of anxiety and paranoia with meds at home. Watch out for the end of stage 6 when the language starts to go. I am soooo very sorry.
God bless you and Jason
It’s hard to be the one always adapting. You’re doing a great job-in no way is this easy. And you are really rocking it. ❤
Don’t forget to take good care of the carer she is one amazing lady sending you both love xx
I know that this is so sad on you especially since this is the love of your life.please never stop sharing! I know I love reading your posts and you are educating us so much!!❤❤❤❤❤❤❤
I like your videos. I do worry about your safety at times. I know its not in Jason's nature normally, but some people can get violent as the disease progresses. I'm glad you have a great support system. Your bringing alot of good information about dementia.
I am so sorry that people feel that they can have an opinion. Especially when they have not gone through what you are experiencing. I’ve cared for my grandmother in law who had Alzheimer’s. I printed out a card that I carried with me so that I could show it to people that didn’t have a clue. My grandmother didn’t want to talk about what she had and there were times when I would have to talk to her like a child. I would have to tell her to stay with me and not go anywhere, as I was checking out at the grocery store. People would look at me as if I was a terrible person. I had lost her once and wasn’t going to do that again. So when I handed them the printed out business card and they read it, I think it helped everyone understand. Well….as much as they could. No one really can understand until you have had to go through it. Then my father in law had Parkinson’s with dementia. It was rough taking away the keys. It was tough taking away the credit cards. We kept his wallet, but put in expired cards. He wanted the keys to the gun safe😮. We’re we mean because we said no? HELL YES, we didn’t care if it came across that way. We were keeping us ALL safe. We love you both. Hang in there. I’m so glad that you’re doing the support groups, it truly helps. 😘
❤❤ I can’t imagine what it’s like 24/ 7 . 🙏🙏
I respect that you’re respectful towards his feelings. It looked like he wanted to talk for just a sec, and then that a switch was flipped. I felt bad for both of you. You’re always so kind and understanding towards him, which helps him I’m sure. Im sorry he’s declining. You seem so strong….just remember….you’re human too. I couldn’t make these videos without crying. I admire your strength and how you hold together for us. Ignore the negative, even though it’s hard I’m sure. It’s ok to cry Lesley. It’s not a sign of weakness. Jason is so lucky to have you. I’ll be praying that you continue to be strong. But remember to give yourself some grace too. You’re not being his mother….you’re being his wife-in sickness and in health. I can’t imagine how this hurts to watch him decline. Love from Tennessee.❤
You have said so many personality traits I am seeing. So thank you for your voice. This is helping me with my husband to know I am not crazy in some of my feelings.
You are a precious woman who is earning jewels in her crown before our Lord…well done 💞
I went through it with my Mom , unfortunately she passed away last month, but believe me I understand every single thing you are talking about, I had to reverse roles and I became the Mothers figure and she became like my daughter, the money issues are a very hard subject to navigate because, yes they loose total concept of the situation, and they do become very concerned about their stuff , I totally understand what you’re going through, your not alone , God bless you guys and guide you to navigate all issues ❤❤
Just recently found your channel. Thank you for sharing such personal experiences with us. I lost my dad 16 years ago to alzhemier's after 16 years, My mom was his caregiver and the only blessing was that my dad was the temper tantrum kid before his diagnosis and became very calm and sedate once diagnosed. There came a point where mom could no longer care for dad, her own health was in jeopardy. Blessed to find a wonderful facility dad carried on for another 3 years and passed peacefully. In many ways this is such a horrible disease for both the patient and caregiver. Keeping you BOTH in my thoughts and prayers and thank you again for your courage to share your journey with us.
My husband died a couple years ago of Alzheimer’s. It was awful so I know what you’re going through. I have a daughter who is a CNA and has taken care of Alzheimer patients so she was able to help me a lot.
I am so sorry.
When you have done everything right.
When you have enjoyed the reward of seeing your dreams come true for you and your family.
When you finally are at a point to sit back and enjoy the results of all you and your spouse have built together through the years, to realize you will be making the rest of life’s journey without him has got to be the most heartbreaking and unfair conclusion I can imagine.
I am so very sorry.
It just isn’t supposed to work out this way.
Leslie, you are an amazing wife, my prayers are with you
How dare anyone question how you handle this tough time in your lives. No one can imagine the struggle you face every day. I was a caregiver to my mom and after she passed I became a paid caregiver to a gentleman who was a highly respected FBI agent. It was my goal to keep him happy and content.
I'm sending love and prayers your way. ❤I found this video through watching your other channel and the cozy hobbies video you did there a couple of months ago. I have been enjoying a few of the cozy hobbies and I always think of you when I start my diamond painting. Now I will whisper a prayer for you instead. All this is to say I don't have any experience with what you are going through, but I wish you both the best and I can only imagine the pain and stress you are feeling. It is obvious you love Jason very much and that he loves you, too. I feel there must be so much stress and grief for you. I can't imagine why someone would feel the need to criticize or judge you for your choices. Please know that I am praying for you and Jason and your entire family.
Leslie and Jason,you have no idea how your videos have helped me. Thank you !
I as others am having such a hard time. My husband has moderate dementia and I would say he is 80 % gone. There is not much left of his former social personality. He hardly speaks to me anymore unless I prompt him and then it a minimal response and sometimes he does not understand me anyways, I can see it in his eyes. He is empty of emotion and its so hard to pull him out of this . I am lonely and worn out,physically and emotionally. He sleeps a lot snd he is always tired.
We just a month ago had to put our 15 year old dog down and it was hell He always intereacted with her with walking a talking. She was our glue.Now thats gone...
I do everything and pretty much always have but I am 72,have my own health issues and feel imprisoned.
I am going to get him into a day program soon atleast for one day a week to have on my own.
Last week he was out for 3 hrs. I spent that time crying and blasting Tina Turner c.d.s. I cried over my dog,my brothers death anniversary coming the next day and my moms was this week.
I lost my younger brother,my sister,my mom and my 2 best friends all in 9 months 6 years ago.Now its the long goodbye with my husband,thats if this does not kill me first lol.
Sorry for the pity party but there is no one to hold me up but myself.
I feel your pain Leslie, I really do. Thanks again.
My father had dementia. His fixation was money. He thought we were all stealing from him because he couldn't handle is account any longer. We would show him the bank statements. That satisfied him for awhile then he caught on. He couldn't sleep at night. Sleeping medicine made him sleep all day but fully awake at night no matter how we tried to schedule it. So my mother slept very little. Unless you've been there you have no right to give advice. Be kind to caregivers. My dad would sit quietly and listen for someone to read the bible so one of his neighbors came over once a week for an hour and read to him while my mother went for a walk and visit with friends. They both looked forward to him coming. God bless you.
Dearest Leslie,
We love you and Jason.
We understand how you both feel and how it affects and changes your relationship.
You are both amazing in your own way.
No one should be judging either of you.
You are an amazing care giver and wife and Jason is such a character and is so used to making everyone laugh, we do understand that he feels crap for not being his old self.
It breaks my heart for you, having to be so strong and take the abrupt, seemingly cold side of Jason right now.
We know it’s not the real Jason. He can’t think straight and despite his obvious undying love for you, his frustration is mounting. You are the closest person to him and guess what? You are the lucky one who has to get it all! His anger, upset, dismay at himself, his frustration - you get it all.
God bless you both. We love you so much and we do understand and value your shared video’s. We understand Jason’s moods can change and he may not want to talk sometimes.
Please don’t worry about us. It’s all part of it and is helpful to see the rough with the smooth. That’s real life!
You are both amazing.
We love you both 🥰 ❤❤❤
Leslie, ive been on your journey with my father. Hard watching them decline. Hardest days work i had to do was to tell my father we had lost my brother. He couldn't process and sadly passed 3 months after because the grief was just the final straw. As his carer it was heartbreaking and cruel. I witnessed the aggression too. Hang in there and keep smiling lovely lady you are doing amazing. Take each day as it comes. x❤
Jason YOU NEVER need to feel like you need to be cheerful or encouraging talking about a noticeable decline. I appreciate your realness.
I understand & you are such a strong person doing a great job with this situation.
I see my mother in law going through this now and suspect I will be too some day but you are so young to have to do this stay strong and look after yourself too❤
Praying for you both.
I just lost mine a month ago. This journey is a hard one. It is not for the weak. Hang in there. You are awesome.
I’m sorry for your loss.😢
Be good to yourself and let go of any guilt or regret. I’m sure your husband would agree that now you need to try to relax and take care of yourself.
Much love and prayers for you from NC ❤
Love you Jason, thank you for sharing your life and journey.
I am so, so sorry. Peace and strength to you both.
You are in my prayers!
My heart breaks listening to you as his caregiver. My Mom had Alzheimers and was aggressive, and was so angry when she lost her independnece. So hard. Many prayers for you and Jason.
I lost my husband to dementia in November. I lost my mother to dementia 3 years ago. It is a terrible disease and I totally understand what you are dealing with. As the dementia progresses as you are experiencing now, your role has to shift and you become more like a “mother” out of the need to keep him safe and to also protect finances, etc. I know how difficult this is, but please try to take some time for you. Stress can be tough on your health and I know as a nurse you understand that. Praying for you and Jason.
My heart goes out to you and Jason, he’s a great guy and so blessed to have you as his wife and caregiver but so stressful for you ! Your a wonderful loving, godly woman and I have so much admiration for you. And Jason! Praying in earnest for you both, I know it’s not easy and just know its going to be alright by the grace of God! 🙏🙏🙏❤️❤️
You just explained my life exactly, I had to take over finances two years ago and he just loves it I give him upedates on our bank account and what has been paid each month etc. It is very hard to go through it alone I am alone and sometimes I need a good cry and keep on going, luckily I have God to turn too He is always there to help. Keep going love your videos they are very encouraging
Leslie u are a wonderful caring, loving wife caregiver. Don’t let anyone put up down for anything. Ur an Angel. My heart breaks for u an Jason. This is a very hard journey. U keep him safe , loved an cared for.
First Leslie, you ARE going through this with grace and dignity. And it’s ok and understandable the feelings you are having and sharing. You and Jason are amazing individuals that are going thru the most unimaginable situation. The change of dynamics with in the marriage from equal partners to you having full responsibility of just managing everything in the Ho e and personal lives is humongous. Then add a caregiver on top. Can’t imagine but you are very generous and articulate in expressing your feelings and the situation. The fact that Jason can share his frustrations and speak out and say , I don’t want to do this is ok, always. And it speaks volumes in its self. You have your own pain and then hurt for him as well bc he is quite aware of the fact he’s losing his former self. You both are in constant grieving the loss of who you were before this awful disease. Please know you are kept in prayer and love. I’ve followed you both for years and have the deepest respect for you both and family. It may not feel like it but you both are doing an amazing thing by sharing. I’m sure it’s helping thousands of people. As a retired RN, May I suggest at some point maybe you could find a live-in helper for room and board. A single RN or a nursing student? Just a thought. I know you are trying to keep household as normal as possible. But it’s too much for any one person. Take your time and find the right person thru word from others. Hugs to you both. Tell Jason we are sending love to u both❤️
I will continue to pray for you two, love you both
My continued Blessings to you, Jason and family, sending much love and support.🙏🙏
❤❤❤ I know exactly what you are going through My husband has dementia and they are like a child and it’s really hard when you have lost your husband to this disease it’s so cruel As they say it a long goodbye We looked after his Mother but when it’s your Husband it’s so different very lonely It’s the hardest thing I’ve ever had to do So don’t ever forget You are amazing and Thank You for sharing I know it’s not easy but sometimes it helps knowing what other Carers are going through too So Thank You God Bless ♥️♥️♥️
When you worry chronically abiut food clothing and shelter,that is stressful
I agree with all the positive encouraging comments here, just one last thing ((HUGS))
Oh man, Leslie, do I hear you! Finances were one of our worst struggles. No matter how I tried to explain my husband could no longer reason like he used to. He insisted on ordering expensive stuff for himself, and I just wasn’t quick enough to catch it all. Prayers for you.
Sending good thoughts and energy to cope your wat. You're doing a GREAT JOB!!!
And what a wicked ride it is. Im so SORRY. 😥😥😢😢😭😭😭😭😭😭😭😭😭😭😭😭
Thank you Leslie. May God bless you.
I’m so sorry you’re going through this Leslie. This is a horrible disease. I’m praying for you and Jason. I’m so happy that you have your faith to help get you through this very difficult time. My father had Alzheimer’s and passed 2 1/2 years ago. My mother was his caregiver and it definitely was so hard for her, especially at the end. Support is so vital and I’m happy to see you have this as well! Take care of yourself and thank you for sharing your story with us! 🙏❤️
I know is this is a difficult time for the both of you. My mother lives with my family and as a care taker it’s exhausting. Jason is so lucky to have you as his wife❤Jason blesses so many people I can tell!, even your UA-cam viewers! Jesus has you both by his hand and you both can always count on Him! Love you both so much! God Bless!
When Mom was still at home, she would get numerous calls asking for her credit card number. She would get in such a tizzy that we were afraid she would have a heart attack. All of her life, Mom was frugal and didn’t trust strangers. Now she could not comprehend that the callers were trying to steal her identity and take her money. Soon after my brother and I shared caring for Mom in our own homes. I would strongly advise not trusting a dementia patient with credit cards or personal information. The roles become reversed and you become the parent. Let us all support caregivers on the journey with their loved ones. If you haven’t walked a mile in their shoes, don’t criticize.
Such bittersweet times my heart goes out too you both. Sending love and prayers 🙏❤️
I am a caregiver and I get all that you are saying. I have done the app for purchases and that’s how I learn that he has signed up for subscription purchases by mistake. This is different thAn AD. Thanks for sharing.
My heart goes out to you! I can’t imagine it. My mom had Alzheimer’s and now my oldest sister does, very sad! Kudos to you for all you do for him🥰🥰
We should all be so blessed to have such a wonderful and loving supporter. Love and strength to you both. X
People don’t know what you are going through until they are there. As a disabled person who use to be very independent I understand. My oldest daughter use was in denial. She did not want to accept that I am getting older and my spinal injuries are taking told on me. She did not even believed the doctors. My prayers are with you and Jason.
I'm glad you have the app and I'm sure that you have things in place and may have moved on from this, so my suggestion is for other caregivers: would it be possible to open another current account, move most of the balance into it, and feed the first account a suitable amount on a regular basis.
It would be something to do when your spouse is in a good mood and with the help of the right bank staff not too much of a short term nightmare.
I completely identify with this. I remember when my dad was no longer logical in his actions or thinking, and trying to discuss things and reason with him did no good. Ultimately we had to put things in place to protect his finances and his personal safety that he vehemently opposed, which was tough being his daughter (not his spouse or mother), but they were necessary in order to protect his financial and physical livelihood. I remember feeling amazed at how much the parent/child relationship had transitioned to me behaving as his mother, which was crazy to me. He passed away in 2019 due to Alzheimer's so I know exactly what you're going through. The road is long and tough and never gets easier. Sending love and light your way. And don't forget to take care of yourself so you can remain strong and resilient.
The same with my dad as well. We had to move him from his home in Arizona to our home in Colorado. He lived with us the last 8 months of his life. We had 24/7 care for him. As much as it was a blessing to have him at home it was also so terribly hard to see him regress on a daily basis. My dad was a highly intelligent man that had his own business for over 40 years. I had to shut that all down which was heartbreaking for me. To watch my dad go from running a successful business and living alone to seeing him lift a spoon full of food up and not know what to do with it was awful. I miss our talks and his advice. I miss his love and his crazy sense of humor. I miss him. I know that him losing his mind had to be the worst way to go for him.