His intelligent brain still shines through / his quick humor is a result of that intellect and that endures!!! Thanks for teaching us through your experience- you and Jason shine so bright!
My hubby was diagnosed with Alzheimer's in 2020, passed in 2023 from congestive heart failure. He went to sleep and never woke up. He died exactly as he hoped. Dementia is a soul sucking illness for all involved and many states don't support the caregiver. We need better understanding for all involved.
My dad had an Alzheimer's diagnosis and I was so dreading the final stages. He got covid in Feb. of 2022, and developed congestive heart failure. He died in his sleep and never had to live through the stage of not being able to communicate, control his movements, etc. I was so grateful for this, for him.
He is definitely a very intelligent guy for sure..if too personal just tell me it is but has his limitations stopped his wanting to be intimate. My Dad passed with dementia and my Mom said he was ok until he couldn't walk or talk very well.
It's so clear that Jason is a genius, so clever and witty, even in the face of decline. Praying for you both, as you navigate each season's new normal.
I have realized that my husband’s unpleasant Lewy Body Dementia symptoms are fueled by anxiety. It takes a lot of medication to fight the waves of anxiety to allow for more normalcy in his behavior. Most people don’t have a clue what it’s like to be married without a real partnership. I see the changes in both of our husbands in our own faces. Ehug, Dementia Sister.
When you say people don’t want to hear negativity that really bothers me. This is not negative at all. You are sharing real life. Praying for you all!✝️🙏
I heard you say people don’t want to hear the negative. I found my friends are afraid of this Dementia diagnosis as we are in the older age group and when I join them in social times they don’t understand what I am going through caregiving. One day a week I go to Dementia support group and say what I need to say to people who understand. Then when I meet up with friends, we can just be “normal” in social interactions that they are comfortable doing
@@LIVINGWITHDEMENTIAPODCASTI hope you can keep the comments on I love to leave a nice comment!! Idk why people would leave bad comments that’s so terrible 😡💕
I know it truly breaks your heart to see Jason not be able to be as he once was. My husband had Altzheimers and there is a definite difference. He never seemed to be able to know what was happening whereas Jason does and is able to articulate how he feels about things. How he is able to handle it is amazing. He is personality plus and such a nice person. I know it isn't always that way for you. Any form of dementia is so heartbreaking. We are so advanced and can do so much when it comes to other things. I just pray that one day there is more that can be done to prevent others from going through this! Love you and Jason.
Thank you for this. My husband watched with me and really listened to Jason and could relate. My husband has declined a lot recently. He has swallowing issues and gets more confused now. He also is sleeping during the day and getting up a lot at night. He had a hospice assessment a few weeks ago but did not meet criteria as he was deemed to be stage 6 . So we carry on through the fog. I cried with you when you mentioned Jason’s intelligence.That is the worst thing. My husband was a brilliant architect with a Master’s from Rice. Closing his design studio nearly destroyed me. But fourteen years later we are still here doing the best we can on a daily basis. Bless you hoth❤
Hello! I wanted to reach out to you because your situation is exactly what my husband (who has stage 6 vascular dementia) and I are experiencing. He was such an accomplished man. I feel lost sometimes as to how to deal with this horrible disease. Thank you for sharing your experience. I hear you.
So many things resonate - (partner of someone with a dementia like condition, that’s not dementia but may as well be ) financial - OMG 😂 clicking on a learn to be a crypto currency trader, mood, sleep, memory ( understand why not at that moment, but not remembering for next time). I appreciate your honesty and willingness to share - it makes such a difference to someone who gets it. Thanks
There are many hospice teams in cities. If one does not accept that your loved one is in need of hospice, get a second or third assessment from another team from another office. The swallowing problems alone should qualify him. My family had the same experience, one week we got an assessment from one hospice office and they said no, a week later our loved one was approved by the second hospice team we called in . Keep advocating for your loved one.
So glad you turned the comments back on, even if briefly, so you can be reminded the majority of us simply appreciate, support, love and pray for you both. 🙏💚
Thank you so much for these videos. My husband is only 70 and he never believed he had dementia. I had been able to care for him and manage his care at home until last month on our 49th anniversary. He was fixated on buying an old truck and I told him we couldn’t do that right now. I was actually scared for my safety. He has been in the hospital for a month and the doctor said he doesn’t believe he can ever live at home again and needs to go to memory care. My heart is broken and I miss him so much. Nobody knows what you are going through. Everyone tells me You’re a strong woman, you’ll be okay. I just want to scream and say I’m not okay with this. It’s so unfair and he doesn’t deserve to have this horrible disease. Nobody does,
My Mom only forgot 1 person, my Dad, they had been married 70 years at that point. It so hurt my Dad who was dying of cancer at the time. I think it was my Mom being protected from the impending heartache of losing my Dad. Sorry for your struggles
My heart goes out to you. I have said it so many times that my Mom does not deserve this. You will stay in my thoughts. Wish I could do more!!!! This is NOT fair! Sending you much love.
Oh my goodness, when Jason talked about how much longer things are taking, it floored me. My husband is going through the same thing. The difference is my husband thinks taking the entire summer to put a roof on our chicken run is normal. Thank you for this validation. I'll try to just be patient. Also, thanks for mentioning the spending. It's one of the hardest aspects of this mess. I'll try to talk to him about the children and I having to deal with all the stuff he buys once he's gone. I don't have anyone to talk to... I'll try to find the early-onset fb group. You two are amazing. You'll never know how much you've helped me to show grace to my husband. God bless!
Try to find a local support group, it will help so much. It sounds easy to outsiders but one of the most difficult things is finding someone to sit with your loved one when you need to go out . This is for your own mental health. Been there done that. God Bless you.
You two blow me away with your strength, courage, and faith. You both are in my prayers, friend. 🙏 I know this is not an easy road by any means, but one thing I’ve noticed is that your love keeps you going. You both are amazing. Xoxo ❤
Suicidal ideations, constant naps, mood changes, lack of sleep, loss of quality in life, behaviors swings. The cycle of loss and challenge cannot be described for how CTE alters marriage, family and most importantly our loved one. Appreciate this channel as after 30 years of marriage I cannot believe how we walk alongside these transitions. Appreciate you both as it helps me to feel like we are the only ones going through this. I wish we had group supports here in 🇨🇦 Canada. Jason the shakes are different and new but mindfulness breath work does assist this ❤
As an emergency room psych nurse, I had encountered SO many situations where several doctors were prescribing and the pharmacies were not catching contraindications. So dangerous!
As another RN, all patients need someone to advocate for, especially as they decline. Otherwise, wrong decisions are made, putting patients in jeopardy. Thank you and Leslie for being that advocate. Take care. Judy
@@judymoorehead3046my mother's doctor never noticed her cognitive decline, KNEW she had carotid stenosis, knew she had High BP, High Cholesterol, and prescribed her baby aspirin and a statin. Nothing for her BP. Rehab facility doctor took her off it because she's high risk for stroke. I'm convinced Mom has been having TIAs for years. Some doctors should never practice again.
@arjones0819 •I needed this thanks ❤I had Neurolepultic Mallignant Syndrome GP issued Typo 20 mgs TDS halliperidol ?Quitipine ?Then gave a slow acting injection -No Pharmacist if i could roast his nuts i would he said Pharmacists where not needed -My sister in law is one ?I almost died of it now i have this conbo a brain injury -Epilepsy Dopamine Blockade -I shall throw a party when he retires !❤❤
Thank you for continuing to share your journey. My husband just died in July after nearly 17 years of dementia with me being his 24/7 caregiver til the last several months. I think trying to reason with Jason as to why he shouldn't be spending money on things he doesn't need is admirable. But at this stage you might want to just remove his access to spending. Hard to do but necessary as he's farther along now. You naturally want to preserve his dignity but hoarding is never a good thing and takes its toll. Eating less and sleeping more were segways for my husband into the final stage. That last stage was the quickest. His aggression and wandering made it impossible for me to care for him at home anymore. And as much as I wanted to keep him at home, he ended up in hospice in a care home. Very sad for me and for him as well. Stay strong Leslie, we're all here for you. XX
I’m so sorry. I was told Saturday that the doctor is suspending my daughter, son and I from visiting my husband. He said I was a trigger because my husband hung onto my arm and didn’t want me to leave and wanted to come home with me. He couldn’t be redirected and they had to sedate him. My heart is broken and I can’t imagine what my husband is going through right now. I don’t want to lose this precious time with him.
Thank you for turning the comments back on. My husband also experienced head injuries in Vietnam. I feel he also has CTE, exhibiting symptoms parallel to Jason. I am also an advanced practice nurse.My husband also has Parkinson’s from agent orange exposure and PTSD. Again thank you. I do not have a support group available to me in this area. I really thought the VA would have a support group but they do not. Your channel really helps me. I do not feel so alone on this roller coaster journey. God Bless you.
Leslie, thank you so much for your transparency as you and Jason share. You are truly providing ministry to those who are going through similar trials. Not they we want others to be going through what we are but there is comfort in knowing that others understand. Hugs and prayers to both of you. PatK.
My husband had Alzheimer's for 21 years and I don't pull punches. I tell people what to expect and you're doing something amazing for people that are just starting out with some kind of dementia
Thanks to both you and Jason for the update and allowing yourselves to be vulnerable in front of your UA-cam audience. I know that sharing your experiences will help so many. It is always a good thing to know you are not going through something alone to say the least!
Leslie, we all love Jason so much, and it’s easy to see you do too. I don’t know why such an awesome guy has been burdened with this, although I can’t help but believe he got some kind of chemical,or poisoning or head trauma in the military. My hope is he never loses his long term memory and can enjoy many years with his family. He really is special. I hope the shot you are on continues to keep your immune system up. That 22:08 Jason stays in the pleasant zone. That you both enjoy the concert and it gives Jason a bit of his life back. Hugs, judy
I don't have this in my life but I come to your postings because it gives me an honest look into what people go through in your situation. Please keep posting updates. Bless you both.
It was great to see Jason and hear him express his frustrations and feelings. You are doing great things Leslie. Stay strong and lean on others to help you.
You have the patience of Job! Not many people could do what you have done! They would quit, but by God’s grace you are so helpful and loving!God bless you both for this challenge in your lives!!!
He doesn't remember that he can't do things but keeps buying. I can relate. My guy keeps buying the same thing over and over again. You're so brave and kind.
Thank you so much for doing these videos. I am my father’s sole caregiver. I never fully understood Dementia until going through this with my father. It’s an awful disease. You literally watch your loved one slowly disintegrate before your eyes. I have siblings but they offer no help so it’s just me. it’s such a difficult thing to live through alone that I actually thought I was losing my mind a few times. Because I was in such a bad place I went searching for anything to help, which is how I found your videos.. I also joined a Facebook support group which has been tremendously helpful as well. Even though my father is elderly, and in late stage dementia, I can still watch your videos and relate to everything you’re going through. I feel your pain….. and your joy when you talk about how wonderful Jason is. I wanted you to know that the videos you’re doing cannot be easy, but I’m so thankful for it! You’ve helped me at times when I needed it most, so Thank You!!!!!
@@carolg.6838 Yes, I’ve since learned how common it is. It still doesn’t make it easier to accept when you’re struggling. Lesley’s videos have helped. ❤️
You and Jason are a blessing to others who may be feeling lost and alone in their own situation. So sorry that you must walk this path, prayers for strength and peace that only our savior can provide 💕🙏🏻
I am so impressed with Jason's self awareness and his candor. The reality of his brilliance and where he is now and how he is doing and that he is willing to share this journey with us is so remarkable. The two of you together, figuring it out, dealing with the day to day and then letting us have a small insight into your lives is just incredible. You are helping so many and giving voices to others that are struggling and feel alone. THANK YOU!!!
Thank you both for sharing. My heart breaks for you and I can’t imagine how hard it must be for both of you. It was so good to see Jason and he seemed to enjoy visiting with us. Leslie you are such an inspiration to all of us. You are a wonderful wife and care giver and I know that isn’t an easy task. Praying for you both. Hope you have a very blessed week.
Leslie, you are a super hero. You are doing great. From someone who has been there, a live in caregiver for 10 yrs for my mother, I truly appreciate you and your stamina. It’s a horrible disease for the patient. But also for the caregiver. So nice to see Jason still has his wit and sense of humor. We all love you both. Take care of you too!! I hope you both enjoy the concert! Let us know how it went. 🙏❤️
Only started you on youtube recently. My brother has dementia and it is frustrating to him and his wife is struggling with demands of 24/7 caregiving. I digress, Jason is so charming and personable, and you are so articulate about this journey. I wish you both strength and peace.
Thank you so, so much for what you are doing. This is the only place I have found where you can see the day to day things that are happening. So many sites are clinical and, as you say, they always talk about memory, memory, memory. I can’t tell you how many times I have found myself saying “Yes!! That is exactly it!!” to one of your videos. Our doctor feels that my husband has entered the middle stages of early onset dementia but my husband will not admit that he has any issues. He has been referred to a neurologist twice and he refuses to go. Because he will not admit that he has a problem, I find myself isolated. I can’t tell anyone about it because it would upset him if he heard about it. I have told our children. Our daughter who lives in the same town can clearly see the issues. Our sons who live further away don’t see it. I tried to tell a friend once and she just said that he seems fine to her. (can you say Show Timing) Anyway, I wanted you to know that you are my lifeline. I know it is hard to make these videos and that people can be stupid in the comments but I really appreciate what you are doing.
My husband was exactly the same way as yours. He wouldn't admit anything was wrong. He wouldn't go to a doctor. I told him that he possibly had a brain tumor that could be fixed but he still said no. After awhile he had some other issues and I called his MD and made an appointment. Meanwhile I got on my chart and explained to his doctor what I was seeing. He checked him, ask questions and started him on Aricept and Lexapro for his moods and it made him more manageable. At that time others didn't realize what was going on. There comes a time when you can't hide it anymore. I pray you will be able to get him to a doctor soon even if you have to lie a bit. Sometimes you have no choice.
I have LBD, so I am very grateful for these videos. They help me to understand what I am going through and what my caretaker wife is going through - - Gary.
My Dad and his Mom had this, slightly different versions. Now his baby sister has it. My brothers and I are watching ourselves. You are doing great, praying for you. We are all refusing statins now since they deprive the brain of food. Dad had memory loss but mostly aphasia and remembered us all until the end. Granny could talk your head off but had no clue who anyone was. I'm sorry you are having to go through this. Please seek Jesus, you will always remember each other. He will never leave you or forsake you. Amen.
Leslie you are correct about being vigilant and informed in our own health care. We must advocate for our own treatments. Thank God that you understood what is and what is not acceptable to Jason regarding his medication, doses, changed etc. Cymbalta when used for its intended purpose, is still a serious drug that needs to be monitored. Drugs that affect brain response should only be prescribed with a detailed medical history. I am surprised that this health care worker was not aware of the repercussions of mixing serotonin medications without clear research and knowledge. With so many shortages in the health care system, mistakes can happen. Even in times of best scenario health care, Mistakes can happen. It is so important to understand what meds and therapies are appropriate for each individual patient. Leslie you and Jason are truly children of God. You have always acknowledged the faith that you both have in Jesus. Jason, I have followed your journey since you first talked about it in public. You are an intelligent and articulate person. Obviously you were blessed with very high intelligence. I pray for you my friend. I pray for Leslie, your daughters, your little grands and all your family and friends. I call you friend because, I often pause and wonder how you and Leslie in that moment in time. I have so much empathy, respect and love for the both of you. You two are true examples of commitment and honor in times of adversity . I try to understand the frustration, the sorrow and the loneliness of your truth. I pray for you and I pray for a cure for this insidious disease. You and Leslie show such dignity and love while navigating a path that there but for the grace of God... Please, please ignore the people who always have a criticism or insensitive comment. They have to live with their own bitter and ugly heart. Tearing people down will never build oneself back up. I'm sorry its so long. I truly want to tell you both that so very many of your viewers, feel like we are your friends. I guess that it is always a good think when we think of others as friends, even though we've never met. Please God if I ever have to walk a similar journey in my life, let me do so with the Faith and honor of Leslie and Jason.❤
I was prompted to pray for you guys while stepping into the shower one morning....later that day you posted on Charming Abode and I went, "OH. Okay, God." (I don't follow that channel) I'm posting here as a little reminder that God continues to send warriors on your behalf, even when you don't know it ❤ Love you both! Thank you for sharing your journey with us. P.S. Remember that you are ministering to warriors as well. We all face the battlefield of the mind, but Jason has a unique, divine assignment. But honestly...could anyone else do it with more humor and flare? May God bless you and keep you.
You’re so right when you say it’s very important to have someone who will allow your frustration to be vented without being accused of being on a “rampage “ as I was last week. I went home and cried my heart out. It hurts to see my spouse suffering daily so I feel your frustration and pain, but I also see your love!
Leslie my sister had early onset Alzheimer’s, and when she was first diagnosed she also was buying everything, she focused on candles, and little nesting items, also her taste changed she used to dress so classic, and she started buying outfits that a streetwalker would wear… a complete turn around, to her Ralph Lauren style.. Jason is truly a wonderful man, his personality shines,his intellect is truly amazing… God Bless you both xo
I can't imagine what you must be feeling, Jason. My life was changed in a single moment of time 23 years ago in a horrific auto accident, leaving me paralyzed. I went from having several talents and abilities to virtually nothing... instantly. I wouldn't wish any of these debilitating conditions on anyone, but if I'd had the choice, I'd choose to lose my mental capacity ahead of my physical. When your physical abilities are taken, it's like being trapped in a machine that no longer works while still having your full cognizant fortitude. You and your wonderful wife are in our prayers for certain! We hope you get the miracle you deserve!!! ❤🙏❤️
Thank you for sharing! My husband has many of the same symptoms as Jason but hasn’t been formally diagnosed. It is so very helpful to hear what Jason is going through. God bless you both!
❤❤I’m still so impressed with both of you. What people sometimes forget is it’s not just Jason but you also suffer. I am a 75 year old female and have been dealing with dementia for a while now. I can no longer drive or take care of our banking. Our daughter and our granddaughter take care of us. My husband will soon be 80 and although no dementia, thankfully, it’s nice for help for him. My back was hurting so bad all the time too. I was blessed to recently have had surgery. It was an all day surgery with a very long recovery, around a year, I am not in pain so I don’t have to worry about any pain medications. Thank you for sharing your lives with us.
How about headphones at the concert? It really helps people I know with autism at church where the inside noise can be too much. I imagine it helps to wear them ahead of time to get used to them. You are a fantastic wife and Jason has a great sense of humor. I know it's very difficult as I've been through it with both parents. I'm thankful you have support❤️
Jason is so wonderful, understands so well what is going on with his dementia. He’s not frustrated, he’s kind and knows so much and is aware of all his memory Problems. I’m diagnosed with MCI in January 24, soon after my husband seemed to start having memory problems but, denies it, he is easily frustrated 😩 I am always walking on egg shells Leslie you’re doing awesome!
God bless you both! I’m a geriatric nurse with 20 years experience in dementia and ALZ patients. I know Jason’s dementia isn’t from Alzheimer’s but the struggle you have is so similar to my patients and their families. As I tell my families, take one day at a time! You’re doing as awsome job!! 🙏😊
Words can NOT express how grateful I am for you giving of yourself to educate us. I am going through this right now with my husband, however I have NO support. Because for the most part when he goes to the doctor he presents as NORMAL they tell me there is nothing wrong. He went from the smartest most loving gentle person to literally behaving like a child and frequently gets so aggressive I have to leave for fear what he may do to me. He never leaves his bed, sleeps most of the day or watches tv all day. He is completely unable to recall what you tell him minutes before. This has gone downhill so fast it’s hard to imagine where he will be in a few months
Oh guys, I am relating! My sweet hubby has been in Memory Care since February. He has early onset Alz, was Dx'd 8 years ago and due to his restlessness and being up alot during the night, I had to move him into Memory Care. HARD! I am really doing fine by the grace of God, but my heart SO goes out to my husband. My strong, dignified, respected, handsome husband is slowly fading away and is a vulnerable adult. BUT my hope is in the fact that he knew the Lord and God's got his boys back. Our loved ones will be totally restored and better someday Leslie! And we'll talk again...Thank you for helping me not feel alone.
I was recently diagnosed with Parkinson’s and this video helped me so very much. I have become a hermit for lack of a better name. What I deal with is gearing up to go out and be with a small group every other Thursday. When I get their I really am not in the mood to talk much. I go because I want my husband to be able to has his wife with him. Anything I do can take 1-2 days of fatigue. My husband is able to continue with his goings on and that makes me happy. Sleeping/tiredness is ever present. Thank you both for being so transparent. You a light in a dark frightening world for me and I know other’s. May God bless
So sorry to hear that. My daughter is 50 and she has it for about 10 yrs. She is wheelchair bound. It breaks my heart to see her this way . She is still living alone and is still independent. I know it’s a hard journey. I pray for a miracle every day for her. May the good Lord give u peace to go on each day knowing u are going to get through this.
Jason is just such an adorable person. He's still vibrant, witty and sweet. The fact that his sense of humor is still so top-notch is very encouraging. Leslie, I know you must be struggling so much. You both are just the salt of the earth kind and good people. Thank you for providing and braving the update for all of us who care so much about you. I love your videos so much. God bless you both.
Leslie, I want to thank you for sharing your life as a caretaker. It is so lonely and as I watch you and Jason, it makes me realize I am not the only one going through this. I want to be the person my husband needs me to be and try to keep a positive outlook, but darn, it’s so hard sometimes. It is so hard not to have ‘your person’ anymore, the one you shared everything with, the one that had your back. We just hit retirement age and all of our dreams have changed. Just thank you again for helping us that need to feel heard.
Leslie,I admire you and Jasin for being so honest and willing to discuss all of the symptoms and issues that go with this illness.You two are so brave and to be commended on how you are sharing all of this to help others understand more clearly .I admire you and Jason so much and I say "God bless"you both.Thank you for the people you are helping .😉❤🙏❤👍
My Dad was always a strong man. Worked in the woods until his 80s. It was so hard to watch him get weak due to congestive heart failure topped with dementia. The constant repeating and fixation on certain things was difficult, but nothing as difficult as when he forgot who I was. I'm so sorry you are going through this at such a young age. My Dad was in his late 80s early 90s when the dementia started.
Jason looks really well even with his prognosis that’s down to you Lesley,the caring is hard I know but when you love somebody it all we can do. I love Jason’s sense of humour,may god bless you both and keep you safe.xxxxx
Hi Leslie and Jason! I have watched you two for a long time but I just now subscribed & hit the bell! yay! This video touched my heart, You two are amazing. & have some much love together & for other people. It's so touching, you have been together for so long, My husband & I have been together too since high school. I get a kick out of Jason & his humor, always. Leslie when you talked at the end by yourself, you looked so peaceful even with all you two have been through, but It sure is easier for believers to have that peace! You both bring Joy & not negativity , I love to listen, I loved your wall painted! o.k. many blessing..xxxxx
Thank you so much for what you are doing here. You really just don’t know. My heart is also breaking, my husband ( my knight in shining armor) has dementia, we’re going on around 10 years now. I’m devastated and don’t have people to talk to. Not really . It’s too much, and I am beyond overwhelmed. Biggest problem is that I am sick, and that can’t be changed. I’ve been sick with late stage Lyme disease, for 35 years. Among other things. He has been my caregiver before all this. Now it’s my turn to care for us both. I’ve been doing my best, but it’s a long shot from being good enough… and I know that, but have no options. I’m living a nightmare.
God bless you. My thoughts are with you. I understand. I have been there. My late husband threatened to break every thing in the house. He did not remember this. He was put in a memory care. I feel so guilty, because I had a great amount of relief, after putting him in memory. I'm still recovering, 6 yrs. on, but I can remember the good memories more now than the bad. God be with you.
My step father passed many years ago - but the reason was from LBD (Lewey Body Dimensia). when you spoke of the desire they have to spend and buy, it brought back so many memories. My dad would constantly make my mother, who was his caregiver at the time, drive through one car lot after another looking for new cars. 🙄 They couldn't afford it, but it became like an OCD issue along with buying flashlight batteries.🙄 After he passed in the care center, my mother had drawer after drawer in the house as well as boxes of various size batteries. I know it may sound comically sweet, but in the moment, it can be very trying. My prayers are with both you and Jason. May all the days you have together ALWAYS have snippets of your lasting love for one another. God bless you from Missouri 😊♥️🙏♥️🤗♥️
@paulaclark7837....know just what you are saying. My Mom had LBD and was obsessed with buying toilet bowl brushes and aluminum foil. It was crazy. The bright side : they are inexpensive and don't go bad. It is now, a few years out from the situation that I can see a "bright side." God Bless. 💗
God bless Jason he is so cute, speaks so well, very open, not in denial...appreciate this video and want to congratulation you on how you are taking care of him, such a sweet couple
I truly appreciate these updates. You have no idea how helpful they are. Having a spouse (or anyone) with this disease is so cruel. I lost a good friend from dementia. And, now going through this with a SIL. My heart breaks watching the deterioration of someone you love, and what the caregiver goes through. You are amazing Leslie. Love and prayers to you and Jason.❤️🙏
You are helping us caregivers who are not dealing with dementia. My husband’s stage four cancer has been grueling for two years and at age 73. I am an exhausted caregiver. You inspire me and I share your love of our Lord. I’ve had my husband watch Jason a few times. my husband struggles with chemo brain now and is a very smart engineer and he can relate with Jason finding changes with building things, etc.. I hope you can keep this comment section open. Our Lord had to take many insults, but kept going and I hope you can too as we really benefit by being able to talk to you. Much love Oh, a second thing is there anybody here who can recommend a caregivers group in the northern suburbs of Indianapolis? I don’t want virtual I need face-to-face and it has to be close to home. Thank you.
Thank you for sharing. My husband has dementia and we are still trying to find a mood stabilizer for him. The walking on egg shells is my present life. My husband has had two TBI’s and therefore I don’t think we get the help we need from doctors. I have been told by several doctors that he has Post concussive syndrome and there is only so much they can do. We have finally gotten into a new psychiatrist and we are working to stabilize his moods. I realize that we can’t change his dementia diagnosis, but all I want for my husband is to be happy and not ridden with anxiety. It is a vicious cycle. When he is severely anxious it impacts his cognitive functioning.
God Bless you and Jason. They say not to question God; and I don’t, but Jason’s personality and intellect is off the charts. He is amazing, I really enjoyed listening to him. You are an amazing and beautiful young wife, you are lucky to have each other. Again, God Bless❤
You can't imagine how enlightening these updates are, although I understand how difficult they are to achieve. Leslie, your hair is so sophisticated 🙂like this.
Current time is 10:11 on Thursday. I just wanna tell you, Leslie, I think you are completely delightful. You are a positive woman in such a way that you beam light in every direction. My husband has Lewy Body and I’m the caregiver. I am finding much comfort in your content. You are really beautiful person.
This update came at the perfect time. My 37 year old neighbor that grew up with my oldest daughter was recently diagnosed with Frontal lobe dementia as a result of a car accident a couple of years ago💔. His wife is also an RN. I am sending her this video because I think your information is so important. Praying for y’all 🙏♥️
My 60 year old brother had TBI (Jumped and beaten and robbed!) Slow slide down into bvFTD... the Medical community does not have great experience or strategies to HELP THEM. BEYOND SAD!
I like how you handle things with humor! My husband had a stroke 10 years ago and we did that also. It was the only way we got thru it along with a lot of prayer. Your perspective and being able to share is so inspiring!
Leslie, I wish I could like this video a thousand times. You and Jason are so precious, and I wish I could just wrap my arms around you and cry with you. Your love for each other is so obvious, and I know it breaks your heart to slowly lose the real Jason. I continue to pray for the two of you when I pray for my relative who has early onset dementia due to a TBI when he was in the military. I pray that God will continue to give you strength to handle the everyday challenges, and that He will wrap His loving arms around you when it feels like more than you can stand. I'm sure your autoimmune issues exacerbate the difficulties of your role as a caregiver and loving spouse. I wish I lived closer so I could literally do something to help. Sending much love; I admire both of you greatly. ♥
Leslie, Jason and you are such precious people ❤️. My heart aches for the pain and heartbreak you feel living with and dealing with the situation 🙏🙏❤❤. Love you
My heart is with Leslie. Everyone worries about the patient, but the caretaker needs lots of hugs. I know, 101 y/o mom with dementia and a 85 y/o hubby starting with it. It’s a sad thing, her uplifting personality is amazing. Tfs cheers
Jasons insight into his own psyche and strengths and weaknesses is remarkable. I admire both Leslie and Jason sharing this journey in the hopes of helping others but also it allows all of us whom have truly come to care for you both. You both are truly wonderful, generous , loving people and we care deeply. Much positive energy and love to you both. ❤️🐝💐
I really admire your strength and courage to be so open and honest about your journey through such a challenging time of life. You are hugely helpful for so many who are trying to handle these life changes.
God has blessed Jason with you, his wonderful caregiver. God won't let you down. He will give you comfort, strength and courage. I can't imagine all that you have to go through in caring for and supporting Jason. Please know I keep both of you in my prayers. Your sharing of your experiences are surely helping others. God bless!
I am here for you both; Leslie for your positivity, patience, knowledge, transparency, inspiration and love for Jason, Jason for your knowledge, openness, amazing sense of humour, brevity in the face of adversity, perseverance, honesty; .. you are both such a lovely couple. And I’ve learned so much about dementia because none of us are immune and I know it could cross my path too as we all age over the years. THANK YOU BOTH for that. My admiration for you both is off the charts.. so please know that 95% of us support and respect you, please ignore or swipe past the rest. Your idea for the OAR concert is fantastic; knowing you have an ‘escape route’ might just be the ticket & Jason hopefully can relax & enjoy, and as you said..leave the show if necessary. All you can do is try, right and pray for the best? First time commenter ..sorry to ramble, just know you are loved..even from far away in 🇨🇦🎸❤
I feel better about my cognitive decline after listening to Jason. I dont feel so alone. Thanks to both of you. I need help with moods now. You both are blessed to have each other. I do short visits with multiple people. I appreciate that you share your experiences . I dont feel so alone in my struggles. I have triuble reading and writing as well. Sorry if this is choppy. Much love to you.
Dear Jason,you are an inspiration and a hero for sharing some of the most difficult things in life...may God bless you and your beautiful princess Lesley....she adores you and it is always so clear....I understand when comments are turned off because people can be cruel and so entitled...you are both so precious and I send lots of love from a sunny South Africa🇿🇦
Jason's insight into his disease is truly remarkable
Yes that’s what I was going to say….he’s really incredible!
It really is!
SO true!He is just one amazing guy and it really makes me sad that things like this happen to people.God Bless both of them.
Yes, I think the same. He is such a wonderful person, too. You both are.
You both are so awesome, sharing such a sad journey. You are remarkable
His intelligent brain still shines through / his quick humor is a result of that intellect and that endures!!! Thanks for teaching us through your experience- you and Jason shine so bright!
Well said god bless you ❤❤😊😊
love this comment ❤️ They are such a special couple.
I don’t think you realize how much you are helping others…
My hubby was diagnosed with Alzheimer's in 2020, passed in 2023 from congestive heart failure. He went to sleep and never woke up. He died exactly as he hoped.
Dementia is a soul sucking illness for all involved and many states don't support the caregiver.
We need better understanding for all involved.
My dad had an Alzheimer's diagnosis and I was so dreading the final stages. He got covid in Feb. of 2022, and developed congestive heart failure. He died in his sleep and never had to live through the stage of not being able to communicate, control his movements, etc. I was so grateful for this, for him.
Thank you God! @@annmossjoyner4977
He is definitely a very intelligent guy for sure..if too personal just tell me it is but has his limitations stopped his wanting to be intimate. My Dad passed with dementia and my Mom said he was ok until he couldn't walk or talk very well.
Jason's vocabulary never fails to impress me.
Same
I agree.
Yes, he is very intelligent! Having CTE doesn’t make you a dummy! He still has his Harvard vocabulary, and I pray he doesn’t lose it. 🙏🏼❤️
Indeed Jason!
It's so clear that Jason is a genius, so clever and witty, even in the face of decline. Praying for you both, as you navigate each season's new normal.
Bless his heart for sharing his personal experience from his point of view. ❤❤❤
God bless you both. I feel so close to you both.
I have realized that my husband’s unpleasant Lewy Body Dementia symptoms are fueled by anxiety. It takes a lot of medication to fight the waves of anxiety to allow for more normalcy in his behavior. Most people don’t have a clue what it’s like to be married without a real partnership. I see the changes in both of our husbands in our own faces. Ehug, Dementia Sister.
So impressed by Jason and his ability to share his thoughts with us. Hope you have more good days. Great personality!
When you say people don’t want to hear negativity that really bothers me. This is not negative at all. You are sharing real life. Praying for you all!✝️🙏
I heard you say people don’t want to hear the negative. I found my friends are afraid of this Dementia diagnosis as we are in the older age group and when I join them in social times they don’t understand what I am going through caregiving. One day a week I go to Dementia support group and say what I need to say to people who understand. Then when I meet up with friends, we can just be “normal” in social interactions that they are comfortable doing
So glad the comments are on. Ignore the ugly comments and allow us that care for Jason wish him well and share that many people care for him. 💗
We will see how this goes! ❤️ Thanks for watching today!
@@LIVINGWITHDEMENTIAPODCAST Yes, thank you!!!
@@LIVINGWITHDEMENTIAPODCASTI hope you can keep the comments on I love to leave a nice comment!! Idk why people would leave bad comments that’s so terrible 😡💕
❤
Thaank you both you 2 rock for sure love ya God Bless you both❤❤😊😊
I know it truly breaks your heart to see Jason not be able to be as he once was. My husband had Altzheimers and there is a definite difference. He never seemed to be able to know what was happening whereas Jason does and is able to articulate how he feels about things. How he is able to handle it is amazing. He is personality plus and such a nice person. I know it isn't always that way for you. Any form of dementia is so heartbreaking. We are so advanced and can do so much when it comes to other things. I just pray that one day there is more that can be done to prevent others from going through this! Love you and Jason.
Thank you for this. My husband watched with me and really listened to Jason and could relate. My husband has declined a lot recently. He has swallowing issues and gets more confused now. He also is sleeping during the day and getting up a lot at night. He had a hospice assessment a few weeks ago but did not meet criteria as he was deemed to be stage 6 . So we carry on through the fog. I cried with you when you mentioned Jason’s intelligence.That is the worst thing. My husband was a brilliant architect with a Master’s from Rice. Closing his design studio nearly destroyed me. But fourteen years later we are still here doing the best we can on a daily basis. Bless you hoth❤
🙏🏼
God bless you and your husband, from Susan in UK ❤️
Hello! I wanted to reach out to you because your situation is exactly what my husband (who has stage 6 vascular dementia) and I are experiencing. He was such an accomplished man. I feel lost sometimes as to how to deal with this horrible disease. Thank you for sharing your experience. I hear you.
So many things resonate - (partner of someone with a dementia like condition, that’s not dementia but may as well be ) financial - OMG 😂 clicking on a learn to be a crypto currency trader, mood, sleep, memory ( understand why not at that moment, but not remembering for next time). I appreciate your honesty and willingness to share - it makes such a difference to someone who gets it. Thanks
There are many hospice teams in cities. If one does not accept that your loved one is in need of hospice, get a second or third assessment from another team from another office. The swallowing problems alone should qualify him. My family had the same experience, one week we got an assessment from one hospice office and they said no, a week later our loved one was approved by the second hospice team we called in . Keep advocating for your loved one.
So glad you turned the comments back on, even if briefly, so you can be reminded the majority of us simply appreciate, support, love and pray for you both. 🙏💚
Thank you so much for these videos. My husband is only 70 and he never believed he had dementia. I had been able to care for him and manage his care at home until last month on our 49th anniversary. He was fixated on buying an old truck and I told him we couldn’t do that right now. I was actually scared for my safety. He has been in the hospital for a month and the doctor said he doesn’t believe he can ever live at home again and needs to go to memory care. My heart is broken and I miss him so much. Nobody knows what you are going through. Everyone tells me You’re a strong woman, you’ll be okay. I just want to scream and say I’m not okay with this. It’s so unfair and he doesn’t deserve to have this horrible disease. Nobody does,
Peace, dear one. You are not alone.
I'm so sorry you're going through this difficult journey. ❤
My Mom only forgot 1 person, my Dad, they had been married 70 years at that point. It so hurt my Dad who was dying of cancer at the time. I think it was my Mom being protected from the impending heartache of losing my Dad. Sorry for your struggles
My heart goes out to you. I have said it so many times that my Mom does not deserve this. You will stay in my thoughts. Wish I could do more!!!! This is NOT fair! Sending you much love.
God bless you, Sue. That is so hard. Praying for you right now!
Oh my goodness, when Jason talked about how much longer things are taking, it floored me. My husband is going through the same thing. The difference is my husband thinks taking the entire summer to put a roof on our chicken run is normal. Thank you for this validation. I'll try to just be patient. Also, thanks for mentioning the spending. It's one of the hardest aspects of this mess. I'll try to talk to him about the children and I having to deal with all the stuff he buys once he's gone.
I don't have anyone to talk to... I'll try to find the early-onset fb group. You two are amazing. You'll never know how much you've helped me to show grace to my husband. God bless!
Try to find a local support group, it will help so much. It sounds easy to outsiders but one of the most difficult things is finding someone to sit with your loved one when you need to go out . This is for your own mental health. Been there done that. God Bless you.
Leslie - as your head was turned looking at Jason all I could think was - Cinderella, you look like Cinderella 🩵🩵🩵 You two are such a special pair 🥰☀️
I agree…🤍🤍 and Jason’s tshirt lol. I’m from Massachusetts so you know I love it. And he is wicked smaht 🤍🤍
@@cherylmacedo5521 🫶That’s true he is 😊
Hugs. I lost my husband to complications of FTD on 4.18.2024 at age 65. Enjoy each day you have together.
You two blow me away with your strength, courage, and faith. You both are in my prayers, friend. 🙏 I know this is not an easy road by any means, but one thing I’ve noticed is that your love keeps you going. You both are amazing. Xoxo ❤
My thoughts exactly, Liz.
Yes!
Suicidal ideations, constant naps, mood changes, lack of sleep, loss of quality in life, behaviors swings. The cycle of loss and challenge cannot be described for how CTE alters marriage, family and most importantly our loved one. Appreciate this channel as after 30 years of marriage I cannot believe how we walk alongside these transitions. Appreciate you both as it helps me to feel like we are the only ones going through this. I wish we had group supports here in 🇨🇦 Canada. Jason the shakes are different and new but mindfulness breath work does assist this ❤
As an emergency room psych nurse, I had encountered SO many situations where several doctors were prescribing and the pharmacies were not catching contraindications. So dangerous!
😮
As another RN, all patients need someone to advocate for, especially as they decline. Otherwise, wrong decisions are made, putting patients in jeopardy. Thank you and Leslie for being that advocate. Take care. Judy
Doctors dump meds at people. All of them.
@@judymoorehead3046my mother's doctor never noticed her cognitive decline, KNEW she had carotid stenosis, knew she had High BP, High Cholesterol, and prescribed her baby aspirin and a statin. Nothing for her BP. Rehab facility doctor took her off it because she's high risk for stroke. I'm convinced Mom has been having TIAs for years. Some doctors should never practice again.
@arjones0819 •I needed this thanks ❤I had Neurolepultic Mallignant Syndrome GP issued Typo 20 mgs TDS halliperidol ?Quitipine ?Then gave a slow acting injection -No Pharmacist if i could roast his nuts i would he said Pharmacists where not needed -My sister in law is one ?I almost died of it now i have this conbo a brain injury -Epilepsy Dopamine Blockade -I shall throw a party when he retires !❤❤
Thank you for continuing to share your journey. My husband just died in July after nearly 17 years of dementia with me being his 24/7 caregiver til the last several months. I think trying to reason with Jason as to why he shouldn't be spending money on things he doesn't need is admirable. But at this stage you might want to just remove his access to spending. Hard to do but necessary as he's farther along now. You naturally want to preserve his dignity but hoarding is never a good thing and takes its toll. Eating less and sleeping more were segways for my husband into the final stage. That last stage was the quickest. His aggression and wandering made it impossible for me to care for him at home anymore. And as much as I wanted to keep him at home, he ended up in hospice in a care home. Very sad for me and for him as well. Stay strong Leslie, we're all here for you. XX
I’m so sorry. I was told Saturday that the doctor is suspending my daughter, son and I from visiting my husband. He said I was a trigger because my husband hung onto my arm and didn’t want me to leave and wanted to come home with me. He couldn’t be redirected and they had to sedate him. My heart is broken and I can’t imagine what my husband is going through right now. I don’t want to lose this precious time with him.
@@johnsuechandler478, can they actually do that? Look deeper into what they have said to you xxx
Jason sounded really good today and so self aware! You look happy Leslie. I’m glad his mood has been doing good! ❤
Thank you for turning the comments back on. My husband also experienced head injuries in Vietnam. I feel he also has CTE, exhibiting symptoms parallel to Jason. I am also an advanced practice nurse.My husband also has Parkinson’s from agent orange exposure and PTSD. Again thank you. I do not have a support group available to me in this area. I really thought the VA would have a support group but they do not. Your channel really helps me. I do not feel so alone on this roller coaster journey. God Bless you.
Leslie, thank you so much for your transparency as you and Jason share. You are truly providing ministry to those who are going through similar trials. Not they we want others to be going through what we are but there is comfort in knowing that others understand. Hugs and prayers to both of you. PatK.
Yes! 😊👍
My husband had Alzheimer's for 21 years and I don't pull punches. I tell people what to expect and you're doing something amazing for people that are just starting out with some kind of dementia
Thanks to both you and Jason for the update and allowing yourselves to be vulnerable in front of your UA-cam audience. I know that sharing your experiences will help so many. It is always a good thing to know you are not going through something alone to say the least!
You and Jason are my heroes for being so brave and trying to enlighten us about this awful, terrible, heartbreaking disease. Thank you.
Leslie, we all love Jason so much, and it’s easy to see you do too. I don’t know why such an awesome guy has been burdened with this, although I can’t help but believe he got some kind of chemical,or poisoning or head trauma in the military. My hope is he never loses his long term memory and can enjoy many years with his family. He really is special. I hope the shot you are on continues to keep your immune system up. That 22:08 Jason stays in the pleasant zone. That you both enjoy the concert and it gives Jason a bit of his life back. Hugs, judy
I don't have this in my life but I come to your postings because it gives me an honest look into what people go through in your situation. Please keep posting updates. Bless you both.
It was great to see Jason and hear him express his frustrations and feelings. You are doing great things Leslie. Stay strong and lean on others to help you.
You have the patience of Job! Not many people could do what you have done! They would quit, but by God’s grace you are so helpful and loving!God bless you both for this challenge in your lives!!!
Much LOVE and RESPECT to you both!
He doesn't remember that he can't do things but keeps buying. I can relate. My guy keeps buying the same thing over and over again. You're so brave and kind.
You and Jason are pretty darn incredible. You are helping so many people.
As one living with FTD, I so appreciate your honesty and candor. I completely in line with your experience and keep living! That is my motto everyday!
Thank you so much for doing these videos. I am my father’s sole caregiver. I never fully understood Dementia until going through this with my father. It’s an awful disease. You literally watch your loved one slowly disintegrate before your eyes. I have siblings but they offer no help so it’s just me. it’s such a difficult thing to live through alone that I actually thought I was losing my mind a few times. Because I was in such a bad place I went searching for anything to help, which is how I found your videos.. I also joined a Facebook support group which has been tremendously helpful as well. Even though my father is elderly, and in late stage dementia, I can still watch your videos and relate to everything you’re going through. I feel your pain….. and your joy when you talk about how wonderful Jason is.
I wanted you to know that the videos you’re doing cannot be easy, but I’m so thankful for it! You’ve helped me at times when I needed it most, so Thank You!!!!!
It is not uncommon that only one child is mostly the sole caretaker of a sick parent.
@@carolg.6838 Yes, I’ve since learned how common it is. It still doesn’t make it easier to accept when you’re struggling. Lesley’s videos have helped. ❤️
Everyone’s journey is different. Just know that those of us that have faith wish Jason and you the best. Delete the haters-they don’t matter,
You and Jason are a blessing to others who may be feeling lost and alone in their own situation. So sorry that you must walk this path, prayers for strength and peace that only our savior can provide 💕🙏🏻
I am so impressed with Jason's self awareness and his candor. The reality of his brilliance and where he is now and how he is doing and that he is willing to share this journey with us is so remarkable. The two of you together, figuring it out, dealing with the day to day and then letting us have a small insight into your lives is just incredible. You are helping so many and giving voices to others that are struggling and feel alone. THANK YOU!!!
Thank you both for sharing. My heart breaks for you and I can’t imagine how hard it must be for both of you. It was so good to see Jason and he seemed to enjoy visiting with us. Leslie you are such an inspiration to all of us. You are a wonderful wife and care giver and I know that isn’t an easy task. Praying for you both. Hope you have a very blessed week.
Leslie, you are a super hero. You are doing great. From someone who has been there, a live in caregiver for 10 yrs for my mother, I truly appreciate you and your stamina. It’s a horrible disease for the patient. But also for the caregiver. So nice to see Jason still has his wit and sense of humor. We all love you both. Take care of you too!! I hope you both enjoy the concert! Let us know how it went. 🙏❤️
Thank you for the update. It makes me so happy to see Jason kidding around, laughing and smiling. Thanks so much!!💙
Only started you on youtube recently. My brother has dementia and it is frustrating to him and his wife is struggling with demands of 24/7 caregiving. I digress, Jason is so charming and personable, and you are so articulate about this journey. I wish you both strength and peace.
Jason is still explaining good and clear. Your hair looks nice like that.
Jasons a rock star yep ❤😊🎉🎉
Thank you so, so much for what you are doing. This is the only place I have found where you can see the day to day things that are happening. So many sites are clinical and, as you say, they always talk about memory, memory, memory. I can’t tell you how many times I have found myself saying “Yes!! That is exactly it!!” to one of your videos. Our doctor feels that my husband has entered the middle stages of early onset dementia but my husband will not admit that he has any issues. He has been referred to a neurologist twice and he refuses to go. Because he will not admit that he has a problem, I find myself isolated. I can’t tell anyone about it because it would upset him if he heard about it. I have told our children. Our daughter who lives in the same town can clearly see the issues. Our sons who live further away don’t see it. I tried to tell a friend once and she just said that he seems fine to her. (can you say Show Timing) Anyway, I wanted you to know that you are my lifeline. I know it is hard to make these videos and that people can be stupid in the comments but I really appreciate what you are doing.
My husband was exactly the same way as yours. He wouldn't admit anything was wrong. He wouldn't go to a doctor. I told him that he possibly had a brain tumor that could be fixed but he still said no. After awhile he had some other issues and I called his MD and made an appointment. Meanwhile I got on my chart and explained to his doctor what I was seeing. He checked him, ask questions and started him on Aricept and Lexapro for his moods and it made him more manageable. At that time others didn't realize what was going on. There comes a time when you can't hide it anymore. I pray you will be able to get him to a doctor soon even if you have to lie a bit. Sometimes you have no choice.
You always need to be an advocate for your own health. But so glad you, Jason, have Leslie to be your advocate. God bless you both!!
I have LBD, so I am very grateful for these videos. They help me to understand what I am going through and what my caretaker wife is going through - - Gary.
Hugs to you both. Thank you for including us into your journey. xo
My Dad and his Mom had this, slightly different versions. Now his baby sister has it. My brothers and I are watching ourselves. You are doing great, praying for you. We are all refusing statins now since they deprive the brain of food. Dad had memory loss but mostly aphasia and remembered us all until the end. Granny could talk your head off but had no clue who anyone was. I'm sorry you are having to go through this. Please seek Jesus, you will always remember each other. He will never leave you or forsake you. Amen.
Leslie you are correct about being vigilant and informed in our own health care. We must advocate for our own treatments. Thank God that you understood what is and what is not acceptable to Jason regarding his medication, doses, changed etc. Cymbalta when used for its intended purpose, is still a serious drug that needs to be monitored. Drugs that affect brain response should only be prescribed with a detailed medical history. I am surprised that this health care worker was not aware of the repercussions of mixing serotonin medications without clear research and knowledge. With so many shortages in the health care system, mistakes can happen. Even in times of best scenario health care, Mistakes can happen. It is so important to understand what meds and therapies are appropriate for each individual patient. Leslie you and Jason are truly children of God. You have always acknowledged the faith that you both have in Jesus. Jason, I have followed your journey since you first talked about it in public. You are an intelligent and articulate person. Obviously you were blessed with very high intelligence. I pray for you my friend. I pray for Leslie, your daughters, your little grands and all your family and friends. I call you friend because, I often pause and wonder how you and Leslie in that moment in time. I have so much empathy, respect and love for the both of you. You two are true examples of commitment and honor in times of adversity . I try to understand the frustration, the sorrow and the loneliness of your truth. I pray for you and I pray for a cure for this insidious disease. You and Leslie show such dignity and love while navigating a path that there but for the grace of God... Please, please ignore the people who always have a criticism or insensitive comment. They have to live with their own bitter and ugly heart. Tearing people down will never build oneself back up. I'm sorry its so long. I truly want to tell you both that so very many of your viewers, feel like we are your friends. I guess that it is always a good think when we think of others as friends, even though we've never met. Please God if I ever have to walk a similar journey in my life, let me do so with the Faith and honor of Leslie and Jason.❤
Well put thank you for that input ❤😊
Ditto💕🙏🏻
He sure is wicked smart, and has such a sense of humor. Can’t imagine how hard this is for both of you. Bless you both.
I was prompted to pray for you guys while stepping into the shower one morning....later that day you posted on Charming Abode and I went, "OH. Okay, God." (I don't follow that channel)
I'm posting here as a little reminder that God continues to send warriors on your behalf, even when you don't know it ❤
Love you both! Thank you for sharing your journey with us.
P.S. Remember that you are ministering to warriors as well. We all face the battlefield of the mind, but Jason has a unique, divine assignment.
But honestly...could anyone else do it with more humor and flare?
May God bless you and keep you.
You’re so right when you say it’s very important to have someone who will allow your frustration to be vented without being accused of being on a “rampage “ as I was last week. I went home and cried my heart out. It hurts to see my spouse suffering daily so I feel your frustration and pain, but I also see your love!
Leslie my sister had early onset Alzheimer’s, and when she was first diagnosed she also was buying everything, she focused on candles, and little nesting items, also her taste changed she used to dress so classic, and she started buying outfits that a streetwalker would wear… a complete turn around, to her Ralph Lauren style..
Jason is truly a wonderful man, his personality shines,his intellect is truly amazing… God Bless you both xo
I can't imagine what you must be feeling, Jason. My life was changed in a single moment of time 23 years ago in a horrific auto accident, leaving me paralyzed. I went from having several talents and abilities to virtually nothing... instantly. I wouldn't wish any of these debilitating conditions on anyone, but if I'd had the choice, I'd choose to lose my mental capacity ahead of my physical. When your physical abilities are taken, it's like being trapped in a machine that no longer works while still having your full cognizant fortitude.
You and your wonderful wife are in our prayers for certain! We hope you get the miracle you deserve!!! ❤🙏❤️
Thank you for sharing! My husband has many of the same symptoms as Jason but hasn’t been formally diagnosed. It is so very helpful to hear what Jason is going through. God bless you both!
🙏🏼
❤❤I’m still so impressed with both of you. What people sometimes forget is it’s not just Jason but you also suffer.
I am a 75 year old female and have been dealing with dementia for a while now. I can no longer drive or take care of our banking. Our daughter and our granddaughter take care of us. My husband will soon be 80 and although no dementia, thankfully, it’s nice for help for him.
My back was hurting so bad all the time too.
I was blessed to recently have had surgery. It was an all day surgery with a very long recovery, around a year, I am not in pain so I don’t have to worry about any pain medications.
Thank you for sharing your lives with us.
Enjoy the gifts of every day. Hang in there. This life can be tough, but also beautiful. And the eternal life that awaits us all is Heavenly.
How about headphones at the concert? It really helps people I know with autism at church where the inside noise can be too much. I imagine it helps to wear them ahead of time to get used to them. You are a fantastic wife and Jason has a great sense of humor. I know it's very difficult as I've been through it with both parents. I'm thankful you have support❤️
Leslie I think you are a remarkable woman - thank you for your courage and patience. Jason has a beautiful spirit. Much love from Australia
So kind of Jason to share his insights and experiences.
Jason is so wonderful, understands so well what is going on with his dementia.
He’s not frustrated, he’s kind and knows so much and is aware of all his memory
Problems. I’m diagnosed with MCI in January 24, soon after my husband seemed to start having memory problems but, denies it, he is easily frustrated 😩
I am always walking on egg shells
Leslie you’re doing awesome!
God bless you both! I’m a geriatric nurse with 20 years experience in dementia and ALZ patients. I know Jason’s dementia isn’t from Alzheimer’s but the struggle you have is so similar to my patients and their families. As I tell my families, take one day at a time! You’re doing as awsome job!! 🙏😊
Words can NOT express how grateful I am for you giving of yourself to educate us. I am going through this right now with my husband, however I have NO support. Because for the most part when he goes to the doctor he presents as NORMAL they tell me there is nothing wrong. He went from the smartest most loving gentle person to literally behaving like a child and frequently gets so aggressive I have to leave for fear what he may do to me. He never leaves his bed, sleeps most of the day or watches tv all day. He is completely unable to recall what you tell him minutes before. This has gone downhill so fast it’s hard to imagine where he will be in a few months
I always love to see Jason.
Oh guys, I am relating! My sweet hubby has been in Memory Care since February. He has early onset Alz, was Dx'd 8 years ago and due to his restlessness and being up alot during the night, I had to move him into Memory Care. HARD! I am really doing fine by the grace of God, but my heart SO goes out to my husband. My strong, dignified, respected, handsome husband is slowly fading away and is a vulnerable adult. BUT my hope is in the fact that he knew the Lord and God's got his boys back. Our loved ones will be totally restored and better someday Leslie! And we'll talk again...Thank you for helping me not feel alone.
I was recently diagnosed with Parkinson’s and this video helped me so very much. I have become a hermit for lack of a better name. What I deal with is gearing up to go out and be with a small group every other Thursday. When I get their I really am not in the mood to talk much. I go because I want my husband to be able to has his wife with him. Anything I do can take 1-2 days of fatigue. My husband is able to continue with his goings on and that makes me happy. Sleeping/tiredness is ever present. Thank you both for being so transparent. You a light in a dark frightening world for me and I know other’s. May God bless
So sorry to hear that. My daughter is 50 and she has it for about 10 yrs. She is wheelchair bound. It breaks my heart to see her this way . She is still living alone and is still independent. I know it’s a hard journey. I pray for a miracle every day for her. May the good Lord give u peace to go on each day knowing u are going to get through this.
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Jason is just such an adorable person. He's still vibrant, witty and sweet. The fact that his sense of humor is still so top-notch is very encouraging. Leslie, I know you must be struggling so much. You both are just the salt of the earth kind and good people. Thank you for providing and braving the update for all of us who care so much about you. I love your videos so much. God bless you both.
My prayers and love for both of you!..Thank you for this Leslie......It is a blessing to many that you and Jason do this series!
Leslie, I want to thank you for sharing your life as a caretaker. It is so lonely and as I watch you and Jason, it makes me realize I am not the only one going through this. I want to be the person my husband needs me to be and try to keep a positive outlook, but darn, it’s so hard sometimes. It is so hard not to have ‘your person’ anymore, the one you shared everything with, the one that had your back. We just hit retirement age and all of our dreams have changed. Just thank you again for helping us that need to feel heard.
Leslie,I admire you and Jasin for being so honest and willing to discuss all of the symptoms and issues that go with this illness.You two are so brave and to be commended on how you are sharing all of this to help others understand more clearly .I admire you and Jason so much and I say "God bless"you both.Thank you for the people you are helping .😉❤🙏❤👍
Jason; YOU ROCK !!!!!!!!! Thank you for sharing your feelings; it is so helpful to others. It is so good to still see your sense of humor.
My Dad was always a strong man. Worked in the woods until his 80s. It was so hard to watch him get weak due to congestive heart failure topped with dementia. The constant repeating and fixation on certain things was difficult, but nothing as difficult as when he forgot who I was. I'm so sorry you are going through this at such a young age. My Dad was in his late 80s early 90s when the dementia started.
Jason looks really well even with his prognosis that’s down to you Lesley,the caring is hard I know but when you love somebody it all we can do. I love Jason’s sense of humour,may god bless you both and keep you safe.xxxxx
Hi Leslie and Jason! I have watched you two for a long time but I just now subscribed & hit the bell! yay!
This video touched my heart, You two are amazing. & have some much love together & for other people.
It's so touching, you have been together for so long, My husband & I have been together too since high school. I get a kick out of Jason & his humor, always. Leslie when you talked at the end by yourself, you looked so peaceful even with all you two have been through, but It sure is easier for believers to have that peace! You both bring Joy & not negativity , I love to listen, I loved your wall painted! o.k. many blessing..xxxxx
Thank you so much for what you are doing here. You really just don’t know. My heart is also breaking, my husband ( my knight in shining armor) has dementia, we’re going on around 10 years now. I’m devastated and don’t have people to talk to. Not really . It’s too much, and I am beyond overwhelmed. Biggest problem is that I am sick, and that can’t be changed. I’ve been sick with late stage Lyme disease, for 35 years. Among other things. He has been my caregiver before all this. Now it’s my turn to care for us both. I’ve been doing my best, but it’s a long shot from being good enough… and I know that, but have no options. I’m living a nightmare.
Ivermectin cures Lymes.
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My husband with FTD has no attention span, he can’t sit long enough to eat. You’re doing good Jason. Keep busy.
God bless you. My thoughts are with you. I understand. I have been there. My late husband threatened to break every thing in the house. He did not remember this. He was put in a memory care. I feel so guilty, because I had a great amount of relief, after putting him in memory. I'm still recovering, 6 yrs. on, but I can remember the good memories more now than the bad. God be with you.
My step father passed many years ago - but the reason was from LBD (Lewey Body Dimensia). when you spoke of the desire they have to spend and buy, it brought back so many memories. My dad would constantly make my mother, who was his caregiver at the time, drive through one car lot after another looking for new cars. 🙄 They couldn't afford it, but it became like an OCD issue along with buying flashlight batteries.🙄 After he passed in the care center, my mother had drawer after drawer in the house as well as boxes of various size batteries. I know it may sound comically sweet, but in the moment, it can be very trying. My prayers are with both you and Jason. May all the days you have together ALWAYS have snippets of your lasting love for one another.
God bless you from Missouri
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@paulaclark7837....know just what you are saying. My Mom had LBD and was obsessed with buying toilet bowl brushes and aluminum foil. It was crazy. The bright side : they are inexpensive and don't go bad. It is now, a few years out from the situation that I can see a "bright side." God Bless. 💗
Simply said, I love y’all, and the fact that you are willing to share your lives. ❤
God bless Jason he is so cute, speaks so well, very open, not in denial...appreciate this video and want to congratulation you on how you are taking care of him, such a sweet couple
I truly appreciate these updates. You have no idea how helpful they are.
Having a spouse (or anyone) with this disease is so cruel.
I lost a good friend from dementia. And, now going through this with a SIL.
My heart breaks watching the deterioration of someone you love, and what the caregiver goes through. You are amazing Leslie. Love and prayers to you and Jason.❤️🙏
You are helping us caregivers who are not dealing with dementia. My husband’s stage four cancer has been grueling for two years and at age 73. I am an exhausted caregiver. You inspire me and I share your love of our Lord. I’ve had my husband watch Jason a few times. my husband struggles with chemo brain now and is a very smart engineer and he can relate with Jason finding changes with building things, etc.. I hope you can keep this comment section open. Our Lord had to take many insults, but kept going and I hope you can too as we really benefit by being able to talk to you. Much love
Oh, a second thing is there anybody here who can recommend a caregivers group in the northern suburbs of Indianapolis? I don’t want virtual I need face-to-face and it has to be close to home. Thank you.
Thank you for sharing. My husband has dementia and we are still trying to find a mood stabilizer for him. The walking on egg shells is my present life. My husband has had two TBI’s and therefore I don’t think we get the help we need from doctors. I have been told by several doctors that he has Post concussive syndrome and there is only so much they can do. We have finally gotten into a new psychiatrist and we are working to stabilize his moods. I realize that we can’t change his dementia diagnosis, but all I want for my husband is to be happy and not ridden with anxiety. It is a vicious cycle. When he is severely anxious it impacts his cognitive functioning.
God Bless you and Jason. They say not to question God; and I don’t, but Jason’s personality and intellect is off the charts. He is amazing, I really enjoyed listening to him. You are an amazing and beautiful young wife, you are lucky to have each other. Again, God Bless❤
You and Jason are doing everything just right! People find peace in hearing that someone else understands 💕
You can't imagine how enlightening these updates are, although I understand how difficult they are to achieve.
Leslie, your hair is so sophisticated 🙂like this.
Current time is 10:11 on Thursday. I just wanna tell you, Leslie, I think you are completely delightful.
You are a positive woman in such a way that you beam light in every direction.
My husband has Lewy Body and I’m the caregiver. I am finding much comfort in your content. You are really beautiful person.
This update came at the perfect time. My 37 year old neighbor that grew up with my oldest daughter was recently diagnosed with Frontal lobe dementia as a result of a car accident a couple of years ago💔. His wife is also an RN. I am sending her this video because I think your information is so important. Praying for y’all 🙏♥️
My 60 year old brother had TBI (Jumped and beaten and robbed!) Slow slide down into bvFTD... the Medical community does not have great experience or strategies to HELP THEM. BEYOND SAD!
I like how you handle things with humor! My husband had a stroke 10 years ago and we did that also. It was the only way we got thru it along with a lot of prayer. Your perspective and being able to share is so inspiring!
Thank you, Jason, for your courage. Thank you for helping others & their caregivers who walk a similar path. God seriously bless you.
Leslie, I wish I could like this video a thousand times. You and Jason are so precious, and I wish I could just wrap my arms around you and cry with you. Your love for each other is so obvious, and I know it breaks your heart to slowly lose the real Jason. I continue to pray for the two of you when I pray for my relative who has early onset dementia due to a TBI when he was in the military. I pray that God will continue to give you strength to handle the everyday challenges, and that He will wrap His loving arms around you when it feels like more than you can stand. I'm sure your autoimmune issues exacerbate the difficulties of your role as a caregiver and loving spouse. I wish I lived closer so I could literally do something to help. Sending much love; I admire both of you greatly. ♥
Leslie, Jason and you are such precious people ❤️. My heart aches for the pain and heartbreak you feel living with and dealing with the situation 🙏🙏❤❤. Love you
My heart is with Leslie. Everyone worries about the patient, but the caretaker needs lots of hugs. I know, 101 y/o mom with dementia and a 85 y/o hubby starting with it. It’s a sad thing, her uplifting personality is amazing. Tfs cheers
Jasons insight into his own psyche and strengths and weaknesses is remarkable. I admire both Leslie and Jason sharing this journey in the hopes of helping others but also it allows all of us whom have truly come to care for you both. You both are truly wonderful, generous , loving people and we care deeply. Much positive energy and love to you both. ❤️🐝💐
I really admire your strength and courage to be so open and honest about your journey through such a challenging time of life. You are hugely helpful for so many who are trying to handle these life changes.
God has blessed Jason with you, his wonderful caregiver. God won't let you down. He will give you comfort, strength and courage. I can't imagine all that you have to go through in caring for and supporting Jason. Please know I keep both of you in my prayers. Your sharing of your experiences are surely helping others. God bless!
I am here for you both; Leslie for your positivity, patience, knowledge, transparency, inspiration and love for Jason, Jason for your knowledge, openness, amazing sense of humour, brevity in the face of adversity, perseverance, honesty; .. you are both such a lovely couple. And I’ve learned so much about dementia because none of us are immune and I know it could cross my path too as we all age over the years. THANK YOU BOTH for that. My admiration for you both is off the charts.. so please know that 95% of us support and respect you, please ignore or swipe past the rest. Your idea for the OAR concert is fantastic; knowing you have an ‘escape route’ might just be the ticket & Jason hopefully can relax & enjoy, and as you said..leave the show if necessary. All you can do is try, right and pray for the best? First time commenter ..sorry to ramble, just know you are loved..even from far away in 🇨🇦🎸❤
I feel better about my cognitive decline after listening to Jason. I dont feel so alone. Thanks to both of you. I need help with moods now. You both are blessed to have each other. I do short visits with multiple people.
I appreciate that you share your experiences . I dont feel so alone in my struggles. I have triuble reading and writing as well. Sorry if this is choppy. Much love to you.
God bless you .🙏
Dear Jason,you are an inspiration and a hero for sharing some of the most difficult things in life...may God bless you and your beautiful princess Lesley....she adores you and it is always so clear....I understand when comments are turned off because people can be cruel and so entitled...you are both so precious and I send lots of love from a sunny South Africa🇿🇦