WE KEPT A SECRET | TRAVELING WITH DEMENTIA
Вставка
- Опубліковано 1 жов 2024
- WE KEPT A SECRET | TRAVELING WITH DEMENTIA 6/19/22. Living with dementia is rough. What happened when I took Jason on a bucket list vacation. How did he handle it, and would I do it again? Plus, it was pretty fun keeping our secret!
MEDICAL ID BRACELET: www.laurenshop...
Music: Commercial account Epidemic Sound
![How to Travel with Someone who had Dementia [5 tips]](/img/n.gif)
You’re an amazing wife and caretaker ❤️🙏🏻
Never apologize for tears.
God makes and saves our tears
AMEN! I lost my tears in 2019...so very sad..BUT they are returning slowly (2 rolled down my cheek). I LOVE my tears...Thank you God. Thanks for this channel. You guys rock!!!❣️
Your videos are so educational regarding dementia but so heartbreaking at the same time, God Bless your family.
So true ❤
Bless your heart ❤It’s ok to cry ❤Prayers for you, Jason, and your family 🙏🏻
Congratulations on reaching 100,000 It is well deserved The pictures are amazing as well as the food 😋 Happy you got to do this ❤Jason is a fun guy if I didn’t know I couldn’t tell he has it I was a caretaker for my husband who passed away from Alzheimer’s Ya it got scary and it got worse I couldn’t help him and I felt so hopeless 😢He’s been gone for 2 years now Married for 35 yrs and he was my everything 😢 I pray for all of you 🙏 I watched your video with everyone spoke about him It was so touching I shed tears myself 😢I wish the best to you and your family Leslie Your doing a great job 👏
I lost my husband to dementia in 2020.We were married for 44 years.
I am so happy you had this special time together.
When Jason said "You can't even tell," I died😂 He is so funny! I am keeping you and Jason in my prayers, Leslie. God bless you both 🙏
No. You didn't 'die'.
Lonely is a major disease. I approach from a different angle, I’m a Widow. My most difficult thing to deal with is having no one at the other end. Think this way. You can move a table BUT it’s so much easier if some one is on the other end carrying half 5he load.
You are amazing - new here - my Dad diagnosed with Lewy Body 20yrs ago before we knew what it was...in Scotland its still quite unknown. Your doing SUCH a great job educating & informing plus caring for your husband. Amazing he could travel...strong visual hallucination stopped my dad going out/ anywhere strange! Loneliness was part of my caring job - never apologise for your tears...much love x
My Dad is suffering from hallucinations now and it is so challenging for my Mom.
You are such a good wife. For better or for worse, you are living out your vows. I will pray for you dear lady. 🙌🏻🙏🏻
Congratulations guys, here’s to more adventures, you two are amazing and congratulations again for your 100,000 UA-cam subscribers 🎉🎉🎉 sending best wishes and thanks for great content 😘😘😘❤️
Girl I feel you. The last time we went to shop it was a nightmare. Thank goodness I took my son. We had to go to lowes to pick up stuff for a bathroom remake. My husband kept taking things off the selves and going to to places he was not allowed. Then in the checkout line he kept wanting to walk away . I tried to redirect him and talk to him. He ended up punching me in the stomach. He is not like the is normally. My so. Took him for a walk while I finished checking out Thru my tears. We took him to Waffle House , one of our favorites. He wouldn’t eat and kept trying to go behind the counter. We left and he hasn’t been anywhere. Of course now he has declined and can’t walk. Or talk . We are now on hospice. This has happened over less than a years time. Very hard and lonely like you said. We do life in the country and I have a small farm. Keeps my body and mind busy. Prayers for you. You will need it! God and Jesus and the Holy Spirit fortify me daily.
I'm so very sorry that you and your family are going through this very hard, hard time. My mother had dementia, my MIL, my BIL, and three of my aunts and uncles. You are so right when you say that God, Jesus and the Holy Spirit fortify us each day. Many, many times They carried me when I absolutely thought I couldn't go on. God Bless You and Yours on this journey. Diane in NC
❤
@@jimmiepatrum
14:32
Thank you for pronouncing my home’s name correctly! I wish you strength and all the love during this chapter of life. Virtual hugs from Budapest!❤
I'm happy you had a nice time! I've been watching your journey, and wish you two happiness and health!! Jason you are hysterical! I so love your humor! Leslie, you are my hero!!! God Bless you 🙏💖
When a friend of mine, who had been in the Navy, was first diagnosed with dementia he got his name along with a notice that he had dementia, plus his wife’s name and cell phone number tattooed on his forearm. We all kidded about it at the time but during the later stages of his disease that information came in handy because he was quite the escape artist and wandered away from home and got lost several times. We humans are pretty inventive when the need arises. I’m so glad the two of you were able to take this trip. I hope your plans to do it again soon come to fruition! You are an inspiration.
That is a wonderful idea!! Wish we had thought of it.
Wonderful adventure and thanks for sharing! Jason really enjoyed communicating too. When he starts off with things that inspire, encourage or bless him, his brain sends serotonin to support his expression. When asked what bothers him the brain sends cortisol which can work against his good efforts and yours. Once the stage is set Jason really participates with a new gusto! You are a blessed couple and what a gift to humanity!!!
Bless your heart for trying to do this trip. You rose to the occasion, you are strong and strong in ways you didn’t know you could be.
We love you and Jason to the moon and back. Thank you for taking us along.
I am a caregiver for my husband who has a brain injury. I enjoy watching the two of you. Yes, it is lonely. I only have my son and his family near me. My friends are in another state. They are truly supportive on the phone.
Really enjoyed this video! Thanks for the pictures and videos of your trip, looked amazing!! Thank you for all that you do. Jason is very blessed to have you ❤
One friend took his wife to Hawaii. He asked her wear an air tag on her person as she gets lost so easily (no dementia). It was very helpful. Congrats on your secret trip & subscribers
Wow! In spite of challenges, this is AWESOME!! I'm so thankful you were able to go and enjoy yourselves as much as possible! Praise Be to God! 🙌
So happy you got to do this. I know it was hard to, but you got to go and have fun together, hopefully more good memories then bad. Looked like you had a great time, despite the one day of boredom. Congratulations on your subscriber plaque! ❤
How cruel is this dementia! I really believe Jason is so savvy he can recognise when things are getting tough for u! He and you are so special with great personalities ♥️♥️♥️
Precious Leslie, Please don't ever apologize for your tears. God love you. As the old song says: "Tears are a language God understands," and we understand, too.
May God hold you close, and may God Bless both of you. I send you my love, and I continue to pray for both of you on this difficult journey. I am so sorry for all both of you are going through.
For today, I am happy for all that you can still do together as your journey unfolds, one day at a time. God bless both of you, and help you each and every day.
Always. With love from Diana in East Tennessee.
You’re a angel walking this earth 💕 Jason is lucky to have you. Never apologize for being vulnerable and tears. You’re doing a awesome job.
So happy that you got to take this trip even if it had its drawbacks. ❤
It was a lovely thing you did for Jason. He literally lit up the whole time. He intact with you. Never never apologize for the tears. As a former care giver. It’s hard.
Thoughts and prayers for you both.
You are doing such an amazing job . God will continue to guide you on your journey 🙏🩷🙌
We 'found' a lady whilst shopping ....we chatted to her and she took a shine to my hubby 😆 kept saying "your naughty and tapping him on the bum 😂. She was able to tell us her name and we reunited her with her husband. He was so grateful and we stayed and had coffee and prayers together x
Aw 😅so sad and sweet
Love you guys. It's hard to be strong for everyone. This is not an easy thing for any of you. You don't have to be brave for us or hide your tears. It's heartbreaking for all of us to watch because we've grown so close to you all. We love you and appreciate you. You are in our thoughts and prayers always❤❤❤🙏🙏🙏.
Very well said ❤
I truly love you guys. You are so open and honest about your the struggles. I pray for you both all the time. May God keep blessing you with morw days of making memories.
Love you guys so glad you got to travel! The pictures were beautiful!
What an amazing journey you are travelling, highest peaks and low valleys and all in between❤
Thanks for sharing your trip. The scenery was beautiful. So glad you guys enjoyed your trip.
As you and I have said many, many times, unless you have dealt with this situation, you have no clue what all is involved. EVERY aspect of your life is now different. I was caregiver for my mother for 10 yrs. She lived to 96 yrs old, had dementia and was as stubborn as they get. It was the hardest thing I have ever done. The anxiety, emotions, thought process, or lack of it. Personality changes. The anger and frustration that is directed at the caregiver, because they are the ones closest to them. And because the roles reverse as I became the “mother” and she was the “child”, who had absolutely no boundaries or reasoning, common sense or consequences.
Leslie, do not apologize for your frustrations, anger, or guilt feelings. You know you are doing the best you can caring for him and making sure he is kept safe. I know you are exhausted and overwhelmed. And most of the time you push all of that aside and keep doing what he needs. At some point you will find out, it is ok to tell little white lies to him. To keep him calm. Or to defuse a situation out of the many, many stressors during every day. No sense upsetting them due to their inability to reason, or believe something that is totally inconceivable. YOU are the one in charge. YOU make the rules. Since you are the one there, 24/7/365, NO ONE HAS THE RIGHT TO CRITICIZE YOU FOR ANY OF YOUR DECISIONS.
You are doing terrific. You are kind and compassionate. Prayers for you and Jason!
Jason is so precious! Thank him for his service. Leslie, you are phenomenal. ❤
My husband had a big setback this spring when we had to go stay at our daughter’s house while we were getting our house painted inside. He struggled with a lot of incontinence which actually lasted several months. It was very stressful, but after we returned home he has slowly improved. I have noticed in the past 13 years that any changes in his routine causes confusion. It does make you sad when you see every day the loss of your husband. You miss your old life, but to let yourself dwell on the losses makes it worse. I haven’t traveled with him in years. I totally hear you about the loneliness. It is always there. I cope by gardening and playing with my dogs. I have found during the years that my friends don’t get it, so I don’t really confide in them. It is too frustrating and actually makes me feel more alone. All you can do is be brave and carry on.
Oh honey, my heart is so sad for you. I felt very lonely while I was taking care of my husband even though I was surrounded with Faith and love.
So glad you got to travel. You were both very brave. All those places look gorgeous!
Long time subscriber here, first time commenter. I absolutely adore you two. I’ve cried several times watching your videos. You are the sweetest couple and I feel like you’re family. I am from Minnesota (kinda close) hehe. And often thought I would really love to have more people like you in my life , even just as neighbors! Wishing you guys all the best! Loved hearing about your travels. It looked AMAZING. ❤❤❤❤
Congratulations on your 100,000 goal being accomplished
First (probably belated) congratulations on the silver plaque🎉.Not sure what stage Jason is at from this video but a another vacation with 1 or 2 friends might still be possible. Family can be great traveling companions, but it might be too hard for them to remain neutral but helpful. Since everything is on the internet, there must be data on vacations with options for people traveling with special needs individual(s). And above all else check that WIFI strength! Love to all of you.❤
Yes, what about hiring a private dementia caregiver to accompany you.
This video brought back so many memories on my journey with my husband who had early onset dementia and posterior cordial atrophy which is rare and brought its own set of issues. I found my eyes tearing up a lot watching this. I’m so glad you were able to take a trip and hope you can take more. 😊❤️love to you both! I think you are terrific!
This is so great that you were able to travel on an awesome cruise. Jason is so cute, smiling and has a great sense of humor. Leslie, my heart goes out to you and you are doing a great job. I know that videos show a happy picture and that it is not like that all the time. 💕
Totally understand. Glad your making special memories for yourself. Yes, another person helps. I remember getting out to Costco by myself felt like a vacation. And you're right, while at home it's all manageable and "normal ", but all the behaviors come out. Wish I had a support group when I went through this with my Mom. Thanks for being that voice and support for others. ❤
It’s hard. I know. I was the sole caregiver for my mom who suffered from Dementia for 7 years. You are doing a absolutely fantastic job!👍
My apologies I can't remember both of your names, this is the 5th video I have watched and every one of them has brought tears to my heart and eyes. God works in amazing ways and laughter is the number one way in my opinion. Both my husband and I are recovering from TBI and I have Dementia as a result, but I also am a caretaker for my husband. You both help others see both sides of this torture and for that I'm forever grateful and blessed to get the chance to learn from both of you.
Sending prayers for you both and your friends and family.
Thank you for making these videos and congratulations on your plaque. ❤️🙏❤️🎉
Are you and Jason planning any trips this year? It’s nice to see that you still want to travel. My husband as you know had a stroke 3.5 years ago and our traveling pretty much stopped. Physically he could do some big it would be hard. Your tears made me sad because I know exactly how you feel. You yearn for how it used to be. Me too😥😥 Sending love and prayers to all❤
I’m so glad your trip went well! You are so patient and loving to do that with him!❤️❤️❤️
Please consider getting a bracelet for yourself that identifies you as a Care Giver for a Dementia patient. If, God forbid, something should happen to you and you can’t verbally communicate, your information can be accessed and Jason can be cared for.
Definitely travel buddies… some of his friends?
Your videos help me so much! I relate to the stress of traveling as a caregiver with my husband who has Alzheimer’s. We got home Sunday from an Alaskan cruise. It was alternately amazing & terrifying to take him so far away. I’m exhausted 😴! Thank you thank you for sharing!
You are brave and so strong 🥇 🙏 ✝️JESUS IS THE ANSWER♥️🎚🙏 and He will guide and protect you. Always 🎚Put God 1️⃣st ✝️.
I’m not understanding why these old post reappear as something current.
Hi Kathy! Did you watch the original video on A Charming Abode? This is our new channel, and all the videos are being moved over here! Then starting this Sunday the 18th, new videos regarding Jason and his dementia will be on this channel! So stay tuned and thank you for the support!
I felt the same about Vienna
It is very lonely and isolating.
Congratulations 🎊 Leslie!!!!☺ 100,000 wow!!!! You deserve it Leslie!☺
Sounds like an awesome trip. I have a friend who travels on Viking all the time. She's in her 80s and she usually travels alone and meets friends or family for the cruise or in a foreign city before or after the trip. She doesn't use a cane to walk normally but when she's traveling alone she carries one and she says that she gets way more help with directions, baggage etc. when she has her cane with her. I think she feels safer having a stick in her hand if anyone bothers her, lol.
I thought my dog was fussing at me at the end of the video and kept trying to figure out what she needed. Then I realized it was your dog. LOL Sounds like you had a wonderful trip! Congratulations on your Play Button!
My hubby and I did a Viking Cruise starting from Amsterdam in recent years. It was so wonderful to have everything planned. Glad your experience was so positive! You are an amazing couple. Sending love your way.
How wonderful! Maybe next time one of your daughters or your sister could come with for your benefit! Looks like you had an sentimental!! You are such a great wife/ caregiver ❤😊
I am new to the channel and binging on the episodes. My husband Geoffrey has Vascular Dementia (6 years) and we loved to travel but so difficult now. Geoff deeply mourns not travelling and driving. You are both gorgeous, but I know how difficult it is. We are off to Bali for 7 days this week with family and living life the best we can. Love to you both! Denise from Adelaide, South Australia, Australia ❤
I can’t even imagine your life. My mom had Alzheimer’s, but I didn’t live in it everyday, as you do.
I truly admire your love and commitment to Janson and our Heavenly Father., God.
I have a thought. POSSIBLY, for a future trip, see if you could find some wonderful volunteer, 🤪, who has a travel trailer, like a fifth wheel, or motor home, who would be willing to take charge, drive, etc., so that you’d be free to handle Jason situations. Jason could nap as needed, his environment maybe a little more consistent and the driving could happen working around naps, etc.
Possibly, hire such a person and then take a friend, of Yours, Lesley, to travel with you. She can help fill your lonely gap and she’d already know and understand your situation.
I sure wish I could do this for you. If I had the vehicle...
Oh my goodness! I’m so so glad you guys took the trip and it was fabulous. Difficult and different at times - from previous trips, but wonderful too. Tours are great, my husband never though he liked tours, but you learn so much more. So so glad y’all went. Yes, another friend couple next time would be nice too. Congrats on the UA-cam Play Button - well deserve! Love you both!
Thank you for this video. My husband was diagnosed with Multiple System Atrophy recently. It is a rare, progressive, and fatal Parkinsonism. A few weeks ago, he went on hospice care (early stage). My adult daughter and I rented an RV and are taking him on a road trip to the midwest in two weeks to visit family and friends. Like Jason, he naps a lot, so the RV will be perfect. Thank you again for this encouraging video.
I understand . I moved my mother in with us who has dementia. She wants to travel constantly and she talks about it and seems to think I can just put her on a plane and she will magically be able to navigate O'Hare or Phoenix airports 🙏 I am taking her to Utah to visit family this fall , she needs me to be there and I'm willing .
I am impressed. You have visited so many realy amazing places over here in Europe. I am living in Germany and was to Prag and Budapest this year, too. But not for the first time. I LOVE both cities.
I am so happy that you were able to enjoy your trip!
Keep going! Best wishes to both of you ❤❤❤
I understand, I’m a care taker. My husband has Parkinson’s with Front Temporal Dementia.
What an epic trip! My LO and I still travel but just local overnight trips!! Your hubby is so aware and articulate- putting sentences together and having meaningful conversations ended for us a year or so ago. I need that bracelet-I’ll check out your link
Your a wonderful person and a strong woman. Going through this with my dad. Headed to Cancun tomorrow and I’m nervous. Your giving me confidence and strength. God bless you and Jason ❤❤❤
I’m also a caretaker with a husband needing a wheelchair a lot. Do you think the Viking ships and tours could accommodate this need?
You two are dear ❤❤
Congratulations on Play Award🎉🎉🎉🎉🎉🎉🎉🎉🎉
We love Viking , did the cruise from Budapest to Amsterdam. Favourite holiday Ever! Glad you both did it. I totally get the intimidation of being he navigator, my husband is ours. Pat yourself n the back Leslie because you gave both of you a memory of a lifetime.
Just started watching your videos. I feel like we're going through the same thing. My husband was diagnosed at the age of 59. I can't do a trip with my husband alone anymore. The last few trips were with other couples. Today I scheduled a cruise that we'll go on with our children and grandchildren. We were avid travelers. It is very hard! You're an inspiration!
I so appreciate these videos. We are in about the same place that you guys are with this disease. Your videos are helping more than you know. When Jason talks it helps me see things from my husband’s point of view. That’s invaluable. You are so right about the loneliness. Thank you for helping with that too. Sending you guys love and prayers. Please, please keep the video’s coming!!
Jason it is amazing how much you look like Sarge, Vince Carter from the Gomer Pyle sitcom in the 60's. I rarely read the comments so maybe this does not come as a complete surprise to you but have really never recognized as strongly as I do in this episode. So glad you both got to see the beauty through out the world. Lynn, Dodge City, KS
Have you thought about slipping an airtight in Jason's pocket when you travel ( in case you get separated)? I have one on my service dog, one on my keyring and my 6 year old Granddaughter where's hers on a necklace when we travel. you can then see exactly where everyone is. I wouldn't travel without it...and don't suffer dementia.
I cared for my brother for the past 3 years. He had a stroke in 2020 and we had to put him in a nursing home. It was very painful to do that. He was diagnosed with dementia right away. I can't go into details of everything but just saying he had no place to go except the long term care. No family besides me and my children. He has a DNR. the last month of his life he declined rapidly. He passed away peacefully on May 28. The doctor told me he needed to go into ICU for fluids etc. I chose to call hospice in. That was hard but the right thing to do. The doctor said I made the right choice. I know he's living with Jesus now and that comforts us. He was 66 years old. 😊
Thanks for your tips for traveling. I also find that I notice how confused my husband with dementia gets when we travel on out-of-town trips to visit our daughter, son-in-law, and our two precious grandbabies.. He is zoned out and confused.
Thank you so much for all of your videos! My husband also has dementia and your videos help me feel less lonely and more understood. Seeing your journey makes me feel less crazy! Knowing what I’m experiencing is real and part of the dementia by what you are showing and telling us is a game changer for me. I don’t have your support system but watching your videos helps me feel less alone.. thank you.
I am in the same boat as you. We are in our mid 60's and are going through a lot of the same things. Last week we bought a used motorhome. I will be doing all the driving, which is fine. I am directionally dysfunctional as well and will be relying a lot on my GPS. Hoping we will get to do many many adventures before it is too late. Your videos have been very comforting as I can relate. Thank you!
I've been watching your vlogs for a long time now off and on and they are so educational and helpful.
I was a PCA and everything you have said makes so much since. It is what I had experienced, and yes, even as a professional, it felt so lovely. He is doing so much better than my patience. I am retired now, and I miss my patience, but it is a nice break now. You are doing great, and you are so strong. You are doing a great Job!
HE does hear our prayers. This week I found a hands on museum and experienced what I called Culture Day. Lots of smiles, laughs and pictures.
So Glad you guys had a nice trip and it went well. Also to come home to the awesome achievements of your UA-cam button, award . Congrats!!!
So happy it went so well for y’all and you came home refreshed and looking up again!! God Bless You!!♥️
We are going on a Viking Cruise (not river) in February to Greece, Turkey, Crete and 3 ports in Italy. I can’t wait.
Wow 😮 Buddhapest that's awesome!! I'm happy you got to go and just be a couple and nothing else 😊👏👏😊
Jason cracks me up . AND lets talk about the beautiful pictures, wow breathe taking, Congrats on your plack
Prayers & hugs to you & Jason. You are both precious.
You are amazing! Your faith is keeping you strong. Also you have to take care of you. What ap wonderful trip. Thank you for sharing.
It's ok to cry, it truly is the "long goodbye"., so difficult to watch our loved ones persona disappear. God bless you both 💞
Congrats for 100,000 subs..I’m glad you two had a chance to travel.❤
I am doing everything on my own as well…. More so since he passed…. Almost scary to think about, however, I am doing it…
This seems like a great cruise , it’s amazing how Jason can remember places and foods . That’s good . Every day Jason remembers is a good day.
That was very aggressive s trip abroad but your prayers were answered. Our Heavenly Father loves to answer prayers. Beautiful vacation with wonderful memories
Plez do think about future traveling with another couple. A male to accompany Jason to restrooms especially if family bathrooms are not available. A female to keep you company and navigate with you. I bring a caregiver when I can to help me sometimes block the bathroom or forewarn I’m in the men’s room. I have a necklace that looks like dog tags explaining he has dementia and to please be patient. Works great when people read the necklace and understand. Keep the Faith and love to see you keeping it real.
I am so glad you were courageous and took this trip! You will not regret it in years to come! May God bless you both and give you strength for the path you are traveling. My prayers are always with you!! 🙏❤️🙏
I just survived a stroke at 73 praise God. This video had me smiling for the both of u. My heart aches for as the stages of this dreadful disease slip by and the final stage is here. Some would say it’d be a blessing that Jason no longer would suffer but then I think of the heart wrenching pain and emptiness you and the rest of the family will be left feeling for a very long time. I saw the joy in both y’all’s eyes and u both know these trips will soon end but oh the beautiful memories u will have that u gave Jason those days of stepping outside of what he lives with 24/7 atleast for a few hours each day. We get to know one another on YT tho we are strangers but I wanted to say I love u both and I feel pain and sit and cry that so many people have this doggone illness and Im so sorry it tagged Jason as a victim. I pray for y’all always. Sending love and bunches of hugs.
I have always wanted to take a Viking cruise in Germany! I just may do it because of your recommendation. 😊 I am sorry it was hard. I hope the good outweighs the bad. I hope the memories bring you joy now and in the future. ❤
Your trip looked lovely. Enjoy the memories. Viking River Cruises are supposed to be top notch.