I'll do a newsletter post about it and add the references there - youtube doesn't allow me to put the references as there isn't enough room in the video description.
I saw an advertisement for a sleep apnea device that uses clips of your videos in it. It was called Better Sleep. Letting you know in case you wanted to look into the misuse of your image for advertising purposes.
if you find the ad or have a link please let me know so i can take it down. i can't find the better sleep device online. thank you for letting me know. i'll look out for it
I experienced minimal pain after my procedure. The only discomfort I experienced was when attempting to chew anything thicker than a pancake or slice of bread, like a sandwich made from two slices of bread would have been quite painful. This pain diminished after about 5-6 weeks and was completely gone after two months. My ENT surgeon told me it was likely irritation at the location where the lead was attached to the nerve. Note that anything not requiring opening my mouth much like chips (crisps) or fries (chips) never caused any pain (even on the ride home from the procedure). I've read about similar experiences from other people online.
@@VikVeerENTSurgeon That would make sense- not even the strong pain relievers I received after the procedure would block the pain caused when that stitching was tugged. I wish there was a warning about this possibility before the procedure, so I could have avoided a lot of discomfort. Besides that I was quite happy with my procedure. Others that have had a similar experience also said it lasted several weeks and some went on a liquid diet to avoid the pain.
I live in the United States. About ten years ago I tried using a CPAP machine/device for nearly two years. The damn thing made my sleep worse. I would wake up with severe stomach cramps and most mornings I would wake up with the mask on the floor. The mask I had the most success with covered my entire face. lol I just found out about this Inspire treatment a few weeks ago. I suppose it is time to get myself (6'6", 425lb white male) back to some kind of sleep specialist and try some new treatments. I take Adderall XR for two reasons, mainly for ADHD (although I think I have ADD) and being so damn tired (even after a full nights sleep). Any advice doc? I have good BCBS PPO insurance right now. I used to get so upset when other people who had success with their CPAP machine telling me how great their sleep had gotten. lol
Oh and for context the reason why I stopped even trying to address my sleep apnea was because the doctor I was seeing kept pushing the damn machine and would not listen to me. It was the technician that would come to give me new supplies that eventually told me that CPAP machines sometimes will not work well for some people.
I'm afraid i'm not american and so a lot of that doesn't make any sense to me. we don't have to deal with insurance companies and all that. I think we probably call adderall something else - not something i've heard of. I would see definitely see a sleep centre with a MDT so you can get the best treatment. I wish you the best.
you can change the waveform and ramp settings and also which electrodes are being used. that sorts out the stimulation issues as there are about 4000 variables you can alter to get the settings right. the dry mouth sounds like you are now getting air to pass but your nose is still blocked - i'm guessing your mouth is open all night? sounds like they just need to fix your nose? when you wake up in the morning, before you get out of bed, sniff and see if your nose feels blocked on one side or both sides. if so - that is probably your answer - speak to the surgeon and get it fixed or use sprays. you'll need to be examined to check that any of this is correct.
Great video's my question is i tried cpap machine but suffered terrible dryness in my throat .also wake up every morning with a blocked nose so ive gave up on the machine ,is there any other device to try .
this video may help - talks about dry mouth and blocked nose. ua-cam.com/video/7DDgIuEtew8/v-deo.html lots of devices to try (although I would speak to your doctor). they will offer Tongue retaining devices, iNAP, positional devices (digital and analogue), cervical collars, perhaps ZEUS, etc
You mentioned that the UK requires that you at least consider an oral appliance first. Would it be a good idea to also require that you use something like the Knightsbridge Chin Strap to address the tongue-based problem before trying Inspire? Wouldn’t the Chin Strap cause the roof of the mouth to stop the tongue falling back, since your mouth is closed? Why would Inspire treat a tongue based problem in a way that a chin strap would not?
sadly it doesn't work that well. Inspire can literally make you stick your tongue out of your mouth - so there is a much bigger effect (if you can tolerate it). it is worth doing however - if you get a lot of benefit from the chin strap which only moves your tongue forward a few millimetres, then that's got to be better than an implant.
Have you done any video/investigation into using cervical collars for this type of OSA? I have mild OSA (I think my AHI was just on the threshold for even being considered to have OSA) and I didn't find a CPAP helped much. I could look at the data from it and see airway restrictions that it wasn't really addressing. It did clue me in to having nasal valve collapse, because the nasal pillow mask I liked pushed my nostrils up and open and I found I could instantly breathe enormously better even if I just put the mask on without the tube connected to the machine. However, the 'restrictions that PAP wasn't helping' appears to be due to my jaw falling back like you describe, at least if I believe the sleep apnea and CPAP community on the internet, and it even happens on my side if anything makes me push my jaw back or dip it towards my chest like a pillow or my arm or tilting my head down. It seems one solution is using a loose-fitting cervical collar, which will prop your jaw up without pushing it back. I think that Knightsbridge double-strap thing can do the same, though I tried something like that and it still shoved my jaw back.
How recently did you try the Knightsbridge? There was a recent problem where someone was allegedly counterfeiting this product. Maybe you had a counterfeit that had a manufacturing defect? I use it, and I don't think it pulls my jaw back.
Well Done! I agree and you are completely right - I've actually done the footage for a video on cervical collars and I'm going to give one away for free at some point to my newsletter subscribers.
So many issues with this device. ( including recall ) I have Complex apnea but now use oxygen only after not being able to use any breathing therapies.
I wake with panic attacks, and I rip the hose off or tear the mask off. I've destroyed 5hoses and 3masks and dragged the machine to the floor so many times, the poor CPAP machine is looking pretty fecked up :) I need to control the situation with my consultant. Such a faff.
@@stargazer1359 What issues did you experience with Inspire? It has been about five months since they activated my device and I'm finally seeing more consistent benefits after a couple of adjustments.
If the expectation is for a 70% reduction in apneas then I would still need a CPAP. My AHIs are never over 5 with CPAP. Doesn't seem a solution unless you could be sure to retire your CPAP, at least as far as I am concerned. Am I wrong?
lots of people in this situation. What we do is fix all the other problems (the other 30%) and when we think that the implant will solve the situation, then we go for that. because the NHS is a 'free' service, we cant just put it in anyone and hope it'll be okay. we need to show the benefit otherwise they will just take it away from us. I agree, just reducing the AHI but not changing your life is pointless.
it doesn't seem like a long way away. I've seen retinal / cochlea / OSA / implants and other devices for diabetes and for people to start walking again. the ethics of it all is hard to work through
I have no teeth which creates bad dry throat and I also am congested my nose is really badly blocked my gp said that I can’t have sleep apnea coz I’m only 28 which is a load of crap because I wake up choking and recorded my self sleeping and it was bad I’m suprised I’m even still alive and to top that off I’m on a load of meds which make it worse
You’re an excellent ambassador.
Many thanks for all your useful advice.
Best regards
My pleasure!
Excellent video as usual. I have a lateral wall issue and look forward to hearing more about this new devise.
Great video! Could you cite the studies you referenced in the video? Thank you
I'll do a newsletter post about it and add the references there - youtube doesn't allow me to put the references as there isn't enough room in the video description.
Great video as always Dr Veer
Thank you ever so much! Hope you are well.
Great video 🙏🏻
Thank you 🙌
I saw an advertisement for a sleep apnea device that uses clips of your videos in it. It was called Better Sleep. Letting you know in case you wanted to look into the misuse of your image for advertising purposes.
if you find the ad or have a link please let me know so i can take it down. i can't find the better sleep device online. thank you for letting me know. i'll look out for it
I experienced minimal pain after my procedure. The only discomfort I experienced was when attempting to chew anything thicker than a pancake or slice of bread, like a sandwich made from two slices of bread would have been quite painful. This pain diminished after about 5-6 weeks and was completely gone after two months.
My ENT surgeon told me it was likely irritation at the location where the lead was attached to the nerve. Note that anything not requiring opening my mouth much like chips (crisps) or fries (chips) never caused any pain (even on the ride home from the procedure). I've read about similar experiences from other people online.
perhaps it was pulling on the digastric muscle as we normally stitch the lead in there?
@@VikVeerENTSurgeon That would make sense- not even the strong pain relievers I received after the procedure would block the pain caused when that stitching was tugged. I wish there was a warning about this possibility before the procedure, so I could have avoided a lot of discomfort. Besides that I was quite happy with my procedure. Others that have had a similar experience also said it lasted several weeks and some went on a liquid diet to avoid the pain.
I live in the United States. About ten years ago I tried using a CPAP machine/device for nearly two years. The damn thing made my sleep worse. I would wake up with severe stomach cramps and most mornings I would wake up with the mask on the floor. The mask I had the most success with covered my entire face. lol I just found out about this Inspire treatment a few weeks ago. I suppose it is time to get myself (6'6", 425lb white male) back to some kind of sleep specialist and try some new treatments. I take Adderall XR for two reasons, mainly for ADHD (although I think I have ADD) and being so damn tired (even after a full nights sleep). Any advice doc? I have good BCBS PPO insurance right now. I used to get so upset when other people who had success with their CPAP machine telling me how great their sleep had gotten. lol
Oh and for context the reason why I stopped even trying to address my sleep apnea was because the doctor I was seeing kept pushing the damn machine and would not listen to me. It was the technician that would come to give me new supplies that eventually told me that CPAP machines sometimes will not work well for some people.
I'm afraid i'm not american and so a lot of that doesn't make any sense to me. we don't have to deal with insurance companies and all that. I think we probably call adderall something else - not something i've heard of. I would see definitely see a sleep centre with a MDT so you can get the best treatment. I wish you the best.
In your professional opinion, is there something that can be done if you experience undesirable changes in stimulation over time and dry mouth?
you can change the waveform and ramp settings and also which electrodes are being used. that sorts out the stimulation issues as there are about 4000 variables you can alter to get the settings right. the dry mouth sounds like you are now getting air to pass but your nose is still blocked - i'm guessing your mouth is open all night? sounds like they just need to fix your nose? when you wake up in the morning, before you get out of bed, sniff and see if your nose feels blocked on one side or both sides. if so - that is probably your answer - speak to the surgeon and get it fixed or use sprays. you'll need to be examined to check that any of this is correct.
Great video's my question is i tried cpap machine but suffered terrible dryness in my throat .also wake up every morning with a blocked nose so ive gave up on the machine ,is there any other device to try .
this video may help - talks about dry mouth and blocked nose. ua-cam.com/video/7DDgIuEtew8/v-deo.html
lots of devices to try (although I would speak to your doctor). they will offer Tongue retaining devices, iNAP, positional devices (digital and analogue), cervical collars, perhaps ZEUS, etc
You mentioned that the UK requires that you at least consider an oral appliance first. Would it be a good idea to also require that you use something like the Knightsbridge Chin Strap to address the tongue-based problem before trying Inspire? Wouldn’t the Chin Strap cause the roof of the mouth to stop the tongue falling back, since your mouth is closed? Why would Inspire treat a tongue based problem in a way that a chin strap would not?
sadly it doesn't work that well. Inspire can literally make you stick your tongue out of your mouth - so there is a much bigger effect (if you can tolerate it). it is worth doing however - if you get a lot of benefit from the chin strap which only moves your tongue forward a few millimetres, then that's got to be better than an implant.
@@RebelRobot01 chin straps are a misery to wear.
Have you done any video/investigation into using cervical collars for this type of OSA? I have mild OSA (I think my AHI was just on the threshold for even being considered to have OSA) and I didn't find a CPAP helped much. I could look at the data from it and see airway restrictions that it wasn't really addressing. It did clue me in to having nasal valve collapse, because the nasal pillow mask I liked pushed my nostrils up and open and I found I could instantly breathe enormously better even if I just put the mask on without the tube connected to the machine. However, the 'restrictions that PAP wasn't helping' appears to be due to my jaw falling back like you describe, at least if I believe the sleep apnea and CPAP community on the internet, and it even happens on my side if anything makes me push my jaw back or dip it towards my chest like a pillow or my arm or tilting my head down. It seems one solution is using a loose-fitting cervical collar, which will prop your jaw up without pushing it back. I think that Knightsbridge double-strap thing can do the same, though I tried something like that and it still shoved my jaw back.
How recently did you try the Knightsbridge? There was a recent problem where someone was allegedly counterfeiting this product. Maybe you had a counterfeit that had a manufacturing defect? I use it, and I don't think it pulls my jaw back.
Well Done! I agree and you are completely right - I've actually done the footage for a video on cervical collars and I'm going to give one away for free at some point to my newsletter subscribers.
I heard about one of the cofounders stealing the business. i'm not sure what happened - Kath Hope from Hope2Sleep would know as she knows everything.
Is the database of possible adverse reactions freely available to the public?
Yes i believe so - the articles certainly are. just look up MAUDE and inspire
So many issues with this device. ( including recall ) I have Complex apnea but now use oxygen only after not being able to use any breathing therapies.
I wake with panic attacks, and I rip the hose off or tear the mask off. I've destroyed 5hoses and 3masks and dragged the machine to the floor so many times, the poor CPAP machine is looking pretty fecked up :) I need to control the situation with my consultant. Such a faff.
@@stargazer1359 What issues did you experience with Inspire? It has been about five months since they activated my device and I'm finally seeing more consistent benefits after a couple of adjustments.
I'll look into the data properly in the podcast. I'll also talk about the recall. thank you.
I've just done the footage on a video about my experience with trying CPAP. I can finally understand truly what you are talking about.
If the expectation is for a 70% reduction in apneas then I would still need a CPAP. My AHIs are never over 5 with CPAP. Doesn't seem a solution unless you could be sure to retire your CPAP, at least as far as I am concerned. Am I wrong?
lots of people in this situation. What we do is fix all the other problems (the other 30%) and when we think that the implant will solve the situation, then we go for that. because the NHS is a 'free' service, we cant just put it in anyone and hope it'll be okay. we need to show the benefit otherwise they will just take it away from us. I agree, just reducing the AHI but not changing your life is pointless.
Am an aspiring ENT surgeon
Good luck - its a long difficult road, but I can assure you that it's all worth it in the end.
I expect this kind of thing will become routine and we’ll all just become different degrees of cyborg. Nttawwt.
it doesn't seem like a long way away. I've seen retinal / cochlea / OSA / implants and other devices for diabetes and for people to start walking again. the ethics of it all is hard to work through
I have no teeth which creates bad dry throat and I also am congested my nose is really badly blocked my gp said that I can’t have sleep apnea coz I’m only 28 which is a load of crap because I wake up choking and recorded my self sleeping and it was bad I’m suprised I’m even still alive and to top that off I’m on a load of meds which make it worse