SYNGAP1 - What Kyle Knows & Can Do - Special Needs Student - Special Education
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- Опубліковано 2 жов 2024
- The first 1,000 people to use this link will get a 1 month free trial of Skillshare: skl.sh/kelliky...
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Kyle is turning 16 years old this month! Support him with the gift of a donation to the Syngap Research Fund! Read more here: secure.giveliv...
Kyle is nonverbal, so sometimes it’s difficult to know what he understands and can do. In this video, we show what Kyle knows!
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Kyle was born in 2006 and has SYNGAP1, a rare genetic disorder that causes epilepsy, global developmental delays, intellectual disability, autism, etc. I share more about his diagnosis in this video: • What is SYNGAP1 | Rare...
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Order my COLORING BOOK for Special Needs Moms & caregivers here: amzn.to/3hVa6kt
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FTC Disclaimer: This description contains an affiliate link from Skillshare; I earn a small commission if you click on the Skillshare link above. It doesn’t cost you anything; thank you for your support!
The first 1,000 people to use this link will get a 1 month free trial of Skillshare: skl.sh/kellikyle03221
I jumped up and down with excitement when I noticed that you posted a video. I adore you and Kyle. You are always so positive and compassionate with Kyle. His smile is so contagious! I love him very much!❤️❤️❤️❤️
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kyle’s long list of skills, abilities and cognition are a testament to kyle’s mom, just as much as to kyle himself - your dedication, patience and unconditional love are so apparent. And thank you for including some of kyle’s sel-initiated behaviors and emotions - i love it when he expresses pleasure!!!
Thank you for your comments!! ❤️
Thank you so much for showing what Kyle CAN do! We hear so much of what kiddos can't do, it's so nice to see what he can do!
I LOVE this! Thank you for sharing all the things Kyle CAN do. I really resonated with the first part where you talked about what he can’t do. My son is similar but with a different diagnosis. I find myself saying “no” a lot when I am asked about his abilities as well. I love the “Go Kyle, go” :)
Kyle, you don't know me, but I have to tell you that I am very proud of all your knowledge and skills!! I am very proud of you!! Your Mom, Dad and Sister must be too!! Each time our children progress and learn we are very proud and elated!! Kyle, what a fine young man you are becomming! Congradulations!!🥳👍
Aww, thank you!! ❤️
I’m glad he can read, identify colors, shapes, letters of the alphabet, and everything kids should know by 5 years old. He’s lucky to already know this stuff and be able to read. A lot of people with his disabilities need lots help with that. I have some of his disabilities, but not as severe as his. You and him should work on writing, preparing meals, zipping his coat, brushing his teeth. He may need 24h care (unlike me) but he still needs to learn how to do all that independently and if he works on writing, he will be better at communicating. Have you tried doing the rapid prompting method with him? You know it should be a piece of paper (ether laminated or not) that has letters, numbers, punctuations and a space bar. It’s very underrated way to communicate.
Thank you for sharing all of this! We have not tried the Rapid Prompting Method, but I have heard of it.
You and your family are so full of grace and love. Kyle is a sweet boy, and you all are a beautiful family.
Kyle is so smart!! It’s always good to focus on the “cans “ and celebrating small victories versus focusing on the “ cant’s. This helps me every time I feel down. Every time we have a IEP meeting, therapy session or doctors appointments I am always met with all the things that my boys can’t do and it’s heart crushing. I really enjoyed this video. Kyle is so sweet ❤️ You have raised a wonderful young man! He is blessed to have parents who never give up!! Good job mama!
Thank you so much!! ❤️
Hi Kelli thank you for this video. I have cerebral palsy and I always get laughed at for what I can’t do
I am so sorry that that has been your experience. I will never understand how some people can be so cruel.
Happy birthday early Kyle! You guys are. Wonderful parents❤️❤️
Goodjob Kyle.. 👍
Your special son is so blessed to have such an amazing, caring family!❤️😇
Thank you!
Hi Kellie and Kyle what a great video Kellie!!!!!! Happy Almost sweet 16 Kyle that's so exciting!!!! Go Kyle go you are amazing, you can make me smile, you can brighten my Day with your smile and sweet sounds, Kyle and Kelli can make an amazing channel!!!!!!! Kelli your channel really inspires me I love it!!! you could write a book on what Kyle can do I would totally read it! Go Kyle Go!!!!!!!
Aww!!! ❤️ Thank you for your kindness and supporting our channel!
What a heartwarming presentation! I am so glad that I subscribed and it is so good to see a video on what Kyle can do. I am so sorry that you have to answer questions so much on what Kyle can't do. The most amazing thing with your raising Kyle, is that in these videos is that you treat Kyle with so much respect, and you treat him as an individual and let him do what he can, and in many ways that helps him grow and learn. I really think there is a lot more going on in his mind than any test or questionnaire can measure. "Kyle is nonverbal, so sometimes it’s difficult to know what he understands and can do" - I believe that really is true. But you know that and you let Kyle do as much as you can, and turn every moment and experience into a teaching moment. You don't baby him. You even alter the words of songs you sing: "Hush little Kyle, don't say a word..." You treat him with so much dignity, and at the same time you provide the care he needs. That is truly amazing. This is one of my favorite videos. I really am in awe at your patience, and parenting skills. I know a lot of kids in my area who go into college and major in Special Education, and I hope that they have a chance to watch your videos because it teaches them how to work with and interact with students with similar needs as Kyle.
Thank you for taking the time to leave this comment! ❤️ I appreciate the feedback. ☺️
What can of sancks does kyle like??
He likes cottage cheese, cheese sticks, guacamole, cheese whisps, and plain Greek yogurt with peanut butter mixed in.
Thank you for showing us what Kyle can do. It's better to look at the can instead of the cant dues. My disability causes me not to be able to do certain things. I go to a school that specifically works with my disability. I love it so
I'm so glad you go to a school that you love! So important! ❤️
Recently discovered your videos and they are amazing and inspiring. Thank you for all that you do. Sending love to you, Kyle and your family.
God bless your beautyful family.
youre such a strong lady,
Most ppl couldnt do....what you can do
Hes blessed, so so blessed, to have all of you
What a great video Kyle is very smart I liked when I saw his valentine's day card that was sweet can't wait to see the birthday video
When is Kyle's birthday? Mine is on March 21st...
The same! You and Kyle share a Birthday! ☺️
Hi Kelli. I just discovered your channel and are learning so much. I’m so glad you made and shared this particular video with us. As a sightless person myself, I know how difficult and unfair it is when people think of our *challenges* as the single most defining aspect of us, when in fact, we are *all* defined by what we are as human beings and by what we *can* do. You two are quite a team! Best wishes for you, Kyle! You are simply fantabulous, buddy! :)
Thank you!! ❤️
Kyle I hope you have a wonderful 16th birthday.
Hi I just found your channel! Subbed!
my mum is my full time carer so my mum now's whot it's like to be a carer ☺😊
I have subscribed and liked and turned on your notification's to and l have special need's and autistic and l really loved this video tack really good care ☺😊👍✌👋👋👋💚💙
Thank you for sharing about yourself and for following our channel! 🥰
May i ask what kind of tablet you’re using and on what operating system it runs? Or is what Kyle uses to talk an App on a regular tablet?
The tablet he uses for entertainment is the Amazon Kindle Fire. The tablet he uses for communication is a Speech Generating Device (SGD) called the Accent 1000. It was approved through our insurance.
Thank you!!
Good job kyle
He loves to swim take him swimming for his 16 birthday
He already has begun pointing to our neighborhood's pool!
@kelli&Kyle I have autism
Thank you for sharing. ❤️ Autism is a part of Kyle's diagnosis of SYNGAP1.