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- Опубліковано 9 лис 2021
- Persistent postural perceptual dizziness is a frustrating secondary condition that CAN be treated and managed!
This is not medical advice.
Please talk to your doctor about PPPD. Do not change your course of treatment based on something you see or hear here.
Ive had some sort of vertigo for about 12-13 years of my life and I haven't yet had it diagnosed... it comes in bad episodes every few years but has stayed in a mild form most of my life (the mild form barely effects me but I don't feel 100% right...maybe about 97% right). Currently as of this comment I'm having a really bad episode...one of my worst in a long time and I just want some sort of treatment...i feel so incapacitated right now
What field Doctor should I see psychiatrist, ENT , psychologist , or my primary Doctor I mentioned to all of them but they do not refer me to somebody that can help me. The acknowledgment I got so far is from visit video like this one. Physicians I see they don’t guide me for help.
i had PBBV and then a vertigo that staid over a year. i went to all kind of specialists, but it was all ok as they said. then it got better but again i woke up with PBBV and again a vertigo that staid. some days or hours it is not that worse but sometimes it gets really bad, specially when walking or standing and moving my head from one side to another, when walking in a open space or a busy place with lots of people walking by and when walking under spotlights. the only criteria for PPPD that doesn’t match with me is that i have no dizziness when i m driving my car. And also after a busy tiring day, when the vertigo usually gets stronger, i even feel it when i lie down to a flat position.
Can it still be PPPD?
I supposedly have Vm and pppd, I’m dizzy and unsteady all the time. I also have anxiety. You said your mri is clear then it’s not these things. My mri had white matter lesions do what does that mean?
Hiii want to know pppd recovery is not linear and it is a second condition after the insult of vestibular system
I was first diagnosed with vestibular migraine and then when I was referred to Dr. Senchek, a vestibular specialist and he believes I have pppd.
Many many manyyyy people have both!
I’ve had the feeling of unstableness only when walking. It came on about 2 and half months ago OUT OF BLUE. It feel like the ground is moving when walk ever so slightly. It comes and goes in waves but it started out very intense when it started but it’s still there. I had bloodwork and my doctor said my results where great. I don’t get headaches. I limited my caffeine intake from 300-350 Mg a day to 0-30 (green tea). I have a very good diet, workout intensity 4-5 days a week and take my supplementation very seriously. I wear glasses and haven’t had a new prescription in 5 years.. I’m at a loss💔😢 I don’t have any issues when driving, sitting or going to bed. Only when walking and I log 10k-15k steps a day and this recent condition has made it so difficult.
me too, i don’t have dizziness when driving, which doesn’t match with PPPD. But all the other criteria‘s i have. i m also helpless :(
have u visited a chiropractor? do u have problems/pain in ur neck or shoulders? it can also cause dizziness.
@@manouharuna1033is this resolved for u now ?
Please help! I've been dizzy for 2 months now!!!I don't have fb or any other social media. Ugh this is the worst.
Hi! I am more than happy to help! send me an email: madison@thevertigodoctor.com
i had a vng which came out that i have weakness in my left ear. my right is within normal limits but low for my age. i went to an ent he said he doesn’t think my dizziness is ear related. my neurologist went over all my symptoms and history and said he thinks it could be anxiety related, and physical therapist has mentioned pppd a couple times but as of right now i’m not sure what i really have. any advice?
symptoms are non spinning vertigo like i’m on a boat, visual vertigo like jumpy vision, imbalance, and disoriented like out of body experience. had this 3 years ago lasted 6 months started citalopram and went away within 2 months life went back to normal now it’s back again!
Is there a consensus that 3PD requires an obvious preceding event, or diagnosis? Is there an agreed upon source for this understanding? Thanks.
Hello! Yes, sometimes it's not obvious though.However by the Barany definition it does indeed need an underlying incident (even if it is unknown). find it under the Criteria section on C content.iospress.com/articles/journal-of-vestibular-research/ves622
@@thevertigodoctor so, if I understand correctly, it may not be understood what is the first incident, or what caused the first incident that leads to 3pd, but something must have happened. Which means, basically, that 3pd may be idiopathic, or there may be a clear link to something, that itself, may be idiopathic.
@@wouldbfarmer2227 I typically do my best to distinguish the 'underlying' issue with my patients because then it makes it easier to treat both conditions simultaneously, which would be the gold standard of care in my opinion. It could, technically, be idiopathic, but it's important to recognize that there is indeed something underlying, it does not just happen. Hope that helps :)
on July 6 I woke up with extreme vertigo and was bedridden for three days because of it. I went to a Doctor Who taught me the Epley maneuver but it didn’t really help and since then I had one other severe vertigo attack at the beginning of August. Since then I have had the same off-balance sensation constantly, like I am walking on a boat. I also have fullness in my ear and tinnitus that comes and goes. I saw an ENT who said he believes I have Ménière’s disease but I don’t meet the fourth criteria which is hearing loss. They tested my hearing and my hearing was perfect so I am at a loss and do not understand what condition I have. Is it possible that I have 3PD? I really don’t know what to think, all I have been told was that I should avoid salty food and I am scared to lay on my right side because the last time I did that was when I had the second vertigo attack. Do you have any advice?
could it come from your neck? May visit a chiropractor.
I’ve been dealing with dizziness now for 4 months and no one can figure it out.. I don’t have the rocking swaying sensation everyone always mentions :/ I feel it worse with head movements such as turning right or left. Or simply turning around to maybe walk the other direction. I’m fine going on walks, it kind of makes it less noticeable actually. Fine with driving. But it’s been constant every day. It’s gradually gotten a less overtime but it’s still here. A lot of times it feels like it’s coming from my eyes. I’ve seen my PCP many times, ENT, audiologist CT scans etc. I can watch tv and use my phone with no issues. No visual stimulations affect me at all either, like traffic passing by or crazy patterns. I still have no answers. Do you think this could be PPPD?
Trying vestibular physical therapist (with a very specific specialist) is REALLY important. PPPD is not a standalone condition, there needs another condition to diagnose PPPD as a secondary condition.
I have the same sensationa. Can Drive, use computer, walking fine...but the sweaying is 24/7, especially when go yo sleep, cause when im quiet, i feel It more.
@@Julen18GS This can be helped!
Hey! i feel the exact same way!!! i feel better when i go to the cinema or watch tv or while I'm in the car. Did you get diagnosed or find any answers?
@@thevertigodoctor is pppd manageable ? Do people have to go unemployed coz of this invisible disease ? 😢
My dizziness started after I woke up from a minor surgery where I was put to sleep for 1 hour. It’s now been 3 years and I’m still suffering with visual disturbances and very recently I been getting vertigo attacks. The doctor 2 1/2 years ago said it’s vestibular neuritis and I should of got better after 3 months if I do the exercises, but that didn’t work. Could you help please?
Hello, I cannot provide medical advice. Please seek help from a neurotologist and a vestibular therapist (one who has dealt with this previously) in your area. If you are in the US, you can search here for providers: vestibular.org/healthcare-directory/
If you're in the UK you can search here: www.acpivr.com/find-a-physio/
If you are located elsewhere, I am not sure where to search, but neurotologist would be the best bet (different than a classic neurologist or ENT).
@@thevertigodoctor thank you very much for taking the time to respond, that’s very kind of you. I’m based in the Uk. I will have a good look into a neurotologist
Hi
Can having prolonged BPPV that was eventually corrected leave you with pppd or can the fight or flight response from an initial bppv attack leave you pppd?
Hello, it's possible for that to happen.
I have hade the same experience.
Do you know why vestibular issues give many of us light sensitivity?
Hi! It's a symptom similar to dizziness. Often it's a symptom of vestibular migraine, and migraine comes with light sensitivity.
@@thevertigodoctor thank you for your answer! fortunately I don’t have migraine but visually induced dizziness, do you think vrt will help with that too?
I have central vertigo and is there help?
Yes, if you've not tried vestibular therapy with a vestibular physical therapy (specialist - they should treat >75% vestibular disorders), it's always worth a shot!
I have a question. What was the reason that got you interested in helping people who suffer with vestibular issues? 😊
How can I sign up for the free week of exercises you are offering right now? I do not have Instagram or FB.
I have an interest in it from an internship I had in Grad school and fell in love with the vestibular system, the rest is history!
Here's the link to sign up. If you have neither, that's fine, we have a solution for that :)
dogged-hustler-6560.ck.page/522ec0fb59
On Jan o3 2030 I had what I thought was a stroke after having my hair washed at the beauty shop as a hairdresser began blowing my hair dry I felt like someone slapped me upside of the head I did not experience anything as such as a vertigo type there dizziness even though I had never experienced vertigo but I was taking my ambulance to the nearest ER and was diagnosed with vertigo and given meclizine I came home and after several days I was still in the same shape I could not even stand up nothing was spinning I was just totally loopy and could not balance myself at all I went to my medical doctor and she still said it was very go gave me another prescription meclizine which was not helping so I went to rehab and they gave me 40 Epley maneuver treatments which did not do anything to help me at all so later as in a few days I called the ear nose and throat doctors and made myself an appointment there I was tested for Ménière’s disease I had every test possible done although they did fine I had a tumor on my parathyroid which was a blessing and I did have to undergo surgery to remove that after that Covid popped up on the same and my ENT doctor was trying to get me in with a neurologist out of town that because of Covid it was very difficult but I did go to see a local neurologist and of course they did a CT scan and it didn’t show anything my medical doctor finally decided I needed to go out of town and he chose Duke Hospital in Durham North Carolina to see a specialist there and that’s where I went and was diagnosed with PPPD and was told I needed to have therapy and it had to be a special kind of therapy so my friend who is in the medical profession was with me and we called a therapist as soon as we got back to the hotel and explain to him and he said he could get me in as soon as possible after so many visits with him I never had anything to change if anything I got worse and he could see that that was happening so he stopped for therapy OK today is June 11, 2022 after having Covid October 15 and in the hospital for 50 days and through rehab I came home and I have noticed that the PPPD has gotten worse I have watched numerous videos on UA-cam and I also have seen more neurologist and EMTs recently and I was told it was a neurological problem but I cannot get any help there is a Dr. Jo in Florida who is a vestibular doctor and he also does personal training that is what I am trying to fine I need help to get with someone who can help me with exercises to rewire my brain and to help me with this it is becoming a disability to me to where I cannot do anything I cannot function in my own home and after the death of my husband due to Covid I am alone now my email address is Debbie Davenport 32@gmail.com any information you can get to me concerning this matter it would greatly be appreciated this is going on three years that I have had to suffer with this 24 seven I have had or I have not had any relief at all since it first hit me it has been a constant thing every day please help me I cannot find any doctors in this area who even wanna talk about it or mention it it makes me wonder if they even know what it is anything you can do or tell me what to do I would greatly appreciate it thank you
Hello Debbie! Thanks so much for sharing your story. you can email me madison@thevertigodoctor.com for help!
Who is this woman you recommend? You mumbled her name.
If pppd manageable?
Yes, most definitely!
@@thevertigodoctor how long does it take for vestibular rehabilitation to work? I’ve been diagnosed with pppd and started rehabilitation 3 days ago