I’m very sorry for the loss of your friend. This is a sinister disease. It’s very frustrating to live with. Normal people have no time for it or the people who it affects.😢
I know only to well what you are going through, been dealing with this since I was 16, I am now 53. Like you have had severe sickness but have come above that to some degree but am far from healthy. Sorry to hear about your friend. ❤ How the health system all over the world isn’t doing more about it by now leaves me dumbfounded. Wishing you the best ❤
I "only" have severe Brainfog (& mental PEM) due to Post-Covid-Syndrom but still cant participate in most social and work-related activities. Its impossible for me to withstand the social pressure we nowadays have to bear in our achievement-oriented society. Now just imagine people who next to brainfog have other crippling symptoms like the ones outlined in this video.
What mechanisms did you develop to cope with the situation when you were that severe? I'm very severe and I can't sleep and I'm just getting worse and worse because I fear of ending dead or with the feeding tube and I'm like just two steps away and the stress is then not making me recover. I don't know how to cope. I try to sleep but I can't and keep getting worse.
Much love to you man, from a fellow sufferer in New Zealand
Thank you for speaking out about this. I am glad that you improved. May God bless you and I hope you find relief
I’m very sorry for the loss of your friend. This is a sinister disease. It’s very frustrating to live with. Normal people have no time for it or the people who it affects.😢
I know only to well what you are going through, been dealing with this since I was 16, I am now 53. Like you have had severe sickness but have come above that to some degree but am far from healthy. Sorry to hear about your friend. ❤ How the health system all over the world isn’t doing more about it by now leaves me dumbfounded. Wishing you the best ❤
Do you have hypomobility had CFS 27 years though more fybromyalgia now now diagnosed autism ADHD heds causation
I "only" have severe Brainfog (& mental PEM) due to Post-Covid-Syndrom but still cant participate in most social and work-related activities. Its impossible for me to withstand the social pressure we nowadays have to bear in our achievement-oriented society.
Now just imagine people who next to brainfog have other crippling symptoms like the ones outlined in this video.
What mechanisms did you develop to cope with the situation when you were that severe?
I'm very severe and I can't sleep and I'm just getting worse and worse because I fear of ending dead or with the feeding tube and I'm like just two steps away and the stress is then not making me recover. I don't know how to cope. I try to sleep but I can't and keep getting worse.
Can you talk about the medical community who is not interested in this illness