my experience with guillain barre syndrome (yes, i almost died)
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- Опубліковано 15 лис 2022
- This was and is still obviously a very tramatic event for me, and I am still in recovery physically, emotionally, and mentally. Please be kind :)
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Being trapped in your body sounds like an absolutely terrifying experience!! I can't imagine how hard that must have been for you! My heart literally warmed up hearing all the kind things the nurses did with you to keep you company! Those small gestures make a BIG difference in such a difficult time like that!
I’ve nursed patients in inpatient rehab with GB and it’s truly such a cruel disease. As if getting a first virus isn’t bad enough, but having it attack your nervous system is crazy!
My youngest daughter was 28 when she was finally diagnosed with Postural Orthostatic Tachycardia Syndrome. (POTS), Ehlers Danlos and Mastosytosis. She had symptoms for 4 years before she was diagnosed. She went to college and trained as a 911 dispatcher. She had just begun her career and her symptoms advanced to the point she had to quit her job and was nearly bed ridden. Like you, she is a fighter and always has a smile on her face. She is now 36 and has a daughter who will be 8 in a few days. She has carved out a life for herself and her daughter despite the pain and other health issues she deals with every day. I am proud of you for handling all your health issues with courage. You are an ambassador.
My grandma unfortunately passed away from guillain barre syndrome because her immune system just wasn’t strong enough to fight it so I appreciate this video because it’s very rare and not many people know about it and it’s nice for you to talk about it and your experience so people can get knowledge about it.
As a medical student, im so so grateful that you could be able and had the will to share your story with everyone, cause this helps me to understand better what are pts going through, and how can I get better at diagnosing and treating my future patients. thank you so so much and im so glad you're going for a good recovery ✨✨✨
21 year old recovering currently from Guillian barre. Thank you for sharing this 🙏🏻♥️
My mom had this:( she went in from feeling sick, at first the doctors didn’t think anything and tried to send her home but she felt off, she went to the hospital and 10 hours later her lung’s collapsed and was on a vent. so glad people are bringing awareness to this. Her feet stayed paralyzed and her hands. She felt numbness 24/7 and was on so many meds. She still managed to have 3 kids and push through for YEARS! She has now passed (from a cold) she had barley any immune system left from this. Hope you’re doing well ❤️❤️❤️ thankful for you
Hello April, I am an OT, and am currently assisting a patient w/ GB syndrome. It is a very emotional experience and sometimes it looks as if we’re not making progress but they have come a long way, and this video has given me hope, I’m so glad that you have recovered and wish you all the best 🙏🏾
this video made me cry. i’m going to be an ICU nurse very soon, and it’s stories like this that inspire me. your strength and perseverance are beyond admirable. so glad you’re doing well !
As a nurse, I appreciate your appreciation! ❤️❤️🇨🇦
aww girl i’m so proud of u! i’m glad ur doing sm better now! 💓💓
forever proud of you.❤️
I am so glad you are better! This is one hell of a challenge to go thru!
So proud of u Minhee!!
Thank you for sharing your story and raising awareness. I hope you continue to recover and heal. ❤
I’m glad that everything got better for you! I know must’ve been a hard time but you made it through! You got this!
so sorry you had to go through that. best of luck with your treatment! 😊😊😊
That is a horrible experience but it's amazing to see you get through it! Thank you for sharing :)
Your so strong, keep going! Your fighting spirit and personality Will get you a far way
Thank you so much for having the strength to share!! You are very well spoken, as others have mentioned. I appreciate your outlook - your positivity, fighting sprit, not placing blame on others. I hope you have a speedy rest of your recovery!!!