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Paraplegic Leg Spasms (high muscle tone)
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- Опубліковано 22 жов 2020
- I demonstrate how the spasticity in my legs work. A lot of people assume that if you're paralysed, your legs should be flaccid and are often surprised when they see my legs move and think it is a voluntary movement.
There are pros and cons to the spasticity, but keeping them under control is a full time job! They mostly hinder me from doing things easily, and relaxing can be difficult, but they do keep my legs firing, which helps with muscle atrophy and circulation.
Also, they motivate me to move! When I'm idle, they punish me, and, being quite a lazy person, I try to see it more of a gift than a curse. Of course sometimes I wish they'd go away and leave me alone, just like my SCI, but you gotta live with it and make the most of it.
Hope you find this video helpful.
My injury is T11 incomplete since January 2019
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My legs are also spastic, I have such a hard time during winter. Thanks for sharing. The smile at the end is what it is. Things work out eventually.
Very informative, I never really understood how much you have to struggle just to move about, and how painful it is for you, my heart goes out to you Son xxx
I imagine he didn't want to worry you.
It's okay, I have them under control most of the time. No need to worry, it is just my new normal now.
thanks freddo.....yes every person witha SCI will have different issues with spasms....quads also can have Autonomic dysreflexia....with them.....which is very serious..........
Most able people will have no awareness of this. Interesting to see.
I think unless one sees it, one does not understand it. Thanks for sharing.
No worries, hope people can understand more after seeing it
Also, did you check out the Romeo and Julian? If so, what did you think?
@@FreddotheWheelchairGuy Found it! Another awesome production and your acting deserves an award. I specially liked when you threw your drink onto your enemy!
@@silkedavid8876 haha yes, it was great to film. The drink was originally meant to be thrown onto me, but I used the excuse that I didn't want my seat cushion to get wet, so I threw it on to Kyle 😂
@@FreddotheWheelchairGuy Sometimes being a wheelchair user comes in handy!
such a good thumbnail bro
Wishing you have nice day sir
I take care of paraplegic and baclofen pump really helps..
Yes, it’s an option I’m considering at the moment. Weighing up th pro’s and con’s. Thanks
@@FreddotheWheelchairGuy i can tell you this when she wasnt getting it, it was day and night her tone was increased where she was having spasms through out the day vs only having when she was upset or if i triggered one by getting her dress. Incontinence was also increased to every hr vs none at all, as well as her vs's were out of wack, i did not realize how much the baclofen helped until she wasnt on it. I hope that helps if any, God bless..
I have the exact type of tone!!! Annoying and difficult to maneuver. I still can’t get into the car by myself (1.5 years in).
Yes, it’s my biggest complaint about SCI - but I have learned to live with it. I find that stretching, meds, exercise and weed help, do you have any techniques that you use?
Really good video really helpful I spasm really bad I don't get stiff legs, my legs just shake and flop about uncontrollably it makes life so difficult
Yes mine do that sometimes too, it is difficult to deal with, but I have found that exercise, diet, hydration, sleep, stress can all affect them. Baclofen and cannabis helps me a lot, plus my standing frame and meditation.
Oh goodness that is painful. I have that as well my lower back muscles also go spastic. it is awful. Thank you for sharing.
Yes it can be difficult sometimes, sorry you suffer too, it is a weird thing to happen, crazy involuntary spasms, c'est la vie!
@@FreddotheWheelchairGuy que sera sera. I’m sorry that you suffer with spasticity and spasms it’s never fun and it makes it so difficult to get anything done.
Its look like same as me..
How is your spasm now after so many years? I recently connected you in fb, shudp. Commenting here coz others can participate and works with the algo for more helpful views
I was thinking about this the other day, I'm not sure if they've got better, or I've got more used to them.
I guess it is my new normal now, it's hard to say. Although last night I was really sick and they were horrible. It really sucks that they get worse when I'm ill and it makes transferring very difficult
I met with the accident 25 years back and am in this condition and couple of tips can share which helped me immensely and haven’t seen anyone saying. I changed my sleeping position to prone. It has 2 major impact on us ! 1. We can lay as many hrs even days on prone position and don’t need to change our sides because we don’t have any muscle in our front part of the body hence no chance of pressure sore and additionally it takes of all the pressure from our back as prone position gives a complete pressure free period and allows to heal our skins which we hurt while we sit on it through out the day. 2nd impact because of the upside prone position our hip joint cannot flex hence our leg is forced to be in a straight stretched position allowing our muscle to be more softer and less spastic. Since most of us while sitting and sleeping have our legs in a folded format the muscle shrinks hence gets more stiff. So when entire night it is stretched straight it eases the spasticity a lot. Thought of sharing these tips coz when I saw your sleeping position which was mine also many years back I use to have the same issue. And I take only 20 to 40 mg baclofen tablets now per day. Mostly 20 actually. @FreddotheWheelchairGuy
you ever tried to use the spasms for standing? i know some paraplegics which can use their spasms to stand. greetings from austria. handbiker
Yes, in the past I have used them to "walk" with a walker. I plan on doing a video about that in the future.
@@FreddotheWheelchairGuy hi freddo. thats great, i am curious to see it. i am incomplete para L3_5level. get legbraces soon(kafo`s)
I'm fully on your side my spasms are awful, I've had people laugh at me and call me a fake, thus happened about an hour ago when I asked someone to help me get onto a bench at the gym I left as I felt useless I couldn't do anything without help
Yeah I understand, it sucks sometimes. Luckily I have them under control most of the time, but when they get bad it can be pretty depressing and painful. How long have you been injured and what's your level ?
@@FreddotheWheelchairGuy I've been a complete paraplegic, waist down for about 9 months so I'm still learning, I try to be independent but when spasms kick in it's so hard. I struggle with foot care eg toe nail management as my legs either go stiff or just shake.
@@benjaminellis7568 Yeah man, I understand. I'll be making videos of how I keep them under control soon, hopefully that can help
@@FreddotheWheelchairGuy that would be a big help thankyou in advance
do you do any leg exercises....bike machine ?
I do indeed, I have a video about that coming up soon
@@FreddotheWheelchairGuy sounds great freddo👍
You said in an earlier video that you can’t feel your legs, but then your spasms can be quite painful. I’m confused 🤷♂️
Good question, I do have feelings in my legs. Which video did I say that I couldn’t feel them? But the spasms are painful because it’s like being shocked with electricity and it goes up through my whole upper body. It’s also incredibly uncomfortable, having violent involuntary movements. Hope that helps you understand
@@FreddotheWheelchairGuy In the video “How I became paralyzed”. Around 6:03 in the video. So you do have feeling, but I’m assuming it’s not normal feeling. Is it like 50% of normal sensation? Also, do you have partial movement or no movement at all? Thank you for making these videos to help bring awareness. I feel than unless you’ve experienced it yourself most people have no idea what it’s like to live with paralysis.
@@WhozOnfirst well, to be specific, the feeling in my right leg is pretty much numb, my left leg has a lot more feeling, sensitivity to touch, heat etc. I can wiggle me left toe, but that’s about it for voluntary movement. I can manipulate the spasticity to help with transfers, as you can see when I get on the bed. But apart from that they are mostly unwelcome! Hope that helps. Thanks
So I went back to see that clip you referred to, that was immediately after my accident, I was still on the cliff! My lower body was completely numb, lifeless and spasm free for a few weeks after my accident. The spasms started slowly at first and I thought they were “waking up” then they got worse. Also some feeling and sensation returned slowly after that too.
@@FreddotheWheelchairGuy Gotcha. It must be strange not being able to feel/move the lower half of one’s body. It’s like a disembodied experience where touching your legs feels like touching someone else’s legs.
At least helps to transfered without lift tour legs with tour hands.
Indeed it does 😂
having a hight muscle tone ....think your legs want to go hiking.........😊👍
Beautiful feet, they're amazing Freddo
Ha! What an interesting compliment, maybe I should set up an only fans 😂
Can you move your legs sir
I think it is obvious from the video I have very little voluntary control
@@FreddotheWheelchairGuy what does it feel like wen you try to move
Smoke some weed and enjoy your spasm free legs 😁 i take lioresal baclofen daily and they dont work but weed works like a charm soon as i smoke they stop
Yeah I use edibles and they work well. Maybe I’ll do a video on it one day. Thanks 😊