Hi I'm a t4 paraplegic I live in Australia I had a motorbike accident 3 years ago I fractured my neck in 3 places and broke my back in 4 places so my back is filled with rods and screws. I was told I will never stand or walk again low priority so no physio/rehab. And told I will need full time care (nursing home) I refused that and I am livening by myself I do my own physio and taught myself how to crawl again and now can move my left leg which is amazing seeing I could only move my arms and shoulders so anything is possible I guess if you keep trying. I suffered from a lot of uti's as well and I found that taking cranberry tablets 3 times a day and 100% cranberry juice and plenty of water have helped and have not had a uti for about 6 mths now!!! So that is my story and hope that helps. Cheers. Bruce. :)
D mannose is the best. It works by preventing the bacteria from adhering to the bladder wall. It is recommended by Christopher Reeve foundation. I have my son on it, he has a T5 SCI.
Good vid. I had similar issues. I started drinking 6-8 oz cranberry juice everyday which I use to mix in some soluable fiber and the uti's became far less frequent.
Try cranberry gel caps....no sugar. Or cranberry concentrate from health food stores and mix in cold water with your fiber instead. No sugar. SUGAR feeds UTI's..........starve it with concentrate instead.
Hi I'm C6. I live in Brazil. I drink two liter of water/day and started Dmannose and Vitamin D to improve immune system. Its been two years that I dont have any symptom of uti. Dmannose works really good for me. I used to have recurrent uti symptons caused by E. Coli and I solved it with Dmannose but recently in a periodic urine culture exam was identified advanced Klebsiella P. infection and I had no symptoms. Does anyone here know specifically about uti caused by Klebsiella P.?
Thanks for the advice in this video dude! I hope you're well and happy :) They do suck, and seem to take forever to shift! Mine is gradually clearing up but it's always a worry when you still feel little pangs of pain throughout the day as if it could come back full force. I think I might ask for one more course of Anti-biotics once i've finished this one to be sure!
Im a 38 year male from india. I had bike accident a year ago. T4 level. In the beginning when I started using catheter I was having urinary infection . Somebody suggested radish juice early morning daily. I started taking that. It smells like shit. But... however past 6 months I dint have any urinary infection. Thought it might be useful to somebody..
Really appreciate your videos. I also use the D-Mannose. It's fantastic. What dosage do you use? I'm doing 1-500mg 3 times daily, and it's mostly effective. Methenamine is the other one? Have you had your bladder Botoxed? I did that, and with Myrbetriq, I don't leak, even with a UTI.
Hey Jason, glad you like the videos! Yes, D-Mannose I take are 500mg capsules with 15mg of vitamin C and 200mg of cranberry. As I mentioned I take 3 a day along with 3 Methenamine pills. I tried to ditch the methenamine a few months back and just stick with the D-mannose but I had a UTI within a week or two so I decided to stick with it. Funny you mentioned Botox because I am uploading a video as we speak about this. :) It has been great for me but even with botox, I will leak constantly if I have a UTI.
Hi im paralyze from the stomach down too man will love to talk to someone like u i now u say everything in ur videos but i got sou many questions if u reply will give u my number its will mean a lot for me i dont now no one in the same position as me and thanks for the videos man u seen full of live i feel stupid in my condition
Is it just that time of year or what?? I notice if I go out drinking for a couple nights I'm more prone to uti's. I'm pretty early in my sci. I'm an L1 incomplete. And only bout a year and a half in. I'm starting to get into WCMX and will have my Mike Box chair in about a month n a half. And when I'm out doing that I leak alot. I take oxybutinin 3 times a day and try to drink plenty of water. Do u have any advice on staying dry while u r more active? Like I said, I'm early in my injury and I'm sure I'll learn more in time through experience. But, if I can learn sooner through advice, that would b better. Thanx in advance.
Hey Shaun, I too am more prone to UTI's if I go out drinking a lot. It looks like you already commented/saw my video on botox injections for the bladder...that has really helped me avoid the accidents.
Shaun Corbin Alcohol increases the amount of times someone needs to use the washroom (in abled body people as well). When I drink I cath 3-4x more (once every hour). No leakage.
What if your at a place that doesn't have facilities for someone in a chair? And symphonies how about the next day and while u r sleeping, after drinking half the night? Thanks for the responses.
I carry with me the proper amount of catheters and ziploc bags. If I am in bed I'll catherize from bed and pee in the ziploc bag. I empty it in the morning. If I can't access the washroom to empty I'll ask someone to empty it for me. They understand since the place isn't accessible for wheelchairs. Use two ziplocs to prevent any possibility of holes occurring.
C6 Quadriplegic Incomplete: Until I was 20 I had UTI's much like you were describing here. It came to the point where it began effecting self-esteem and self-worth. With great discipline and study of my body, however, I have been able to stop these completely. I haven't had a single UTI for 3 years. I self-catherize around every four hours. I am on a 400mg dose of Sulfamethoxazole (Septra). I also take 2000mg of Vitamin D, 2000 Vitamin C, and a mens pill. I had taken Septra until I was 20 it wasn't until I started taking the vitamins (DAILY NEVER MISSING) when I started to have results. I double my Septra when I have a cold and quadruple my water intake when my urine becomes cloudy or when I am sick. Lastly, I always empty my bladder in the following situations 1) slight hint of AD 2) know I'll be out for long period of time 3) having the need to use the washroom 4) Morning and night no matter what I am feeling. I hope some people will find this useful - there is a light at the end of the tunnel. Water is your friend.
Paralyzed Living I noticed in your botox injection video you said you cath roughly 400-500cc. From what I've learned through urology that is an extreme amount of pressure you are putting on your bladder. Typically I am cathing out 200-300. If I get to 400 it's a dire emergency and have lots of AD. Just might be idea to cath sooner and you may have less leakage because that is quite a bit of pressure.
I catch myself every 4 hours too..... I have the same problem and yes my self esteem is effected badly. I get UTI's constantly, urine always burns my body always exhausted. I really need help because im allergic to some antibiotics and I'm done taking antibiotics 😭😭😭😭😭😭 my life is hell because of my bladder
paul kurt My fiance is also a T9 Complete for about 2 months now, we get to finally go home on Monday and these videos have given us so much hope for the future as well!
Hi Brian,just wondering how you were getting on with the D-Mannose, just about to start on them myself now because I am also a paraplegic and getting a lot of UTI's, love all your videos by the way :)
I had frequent UTIs as well. My urologist suggested Ellura which is a cranberry supplement. I've been UTI free since starting it. Botox injections also helped with my incontinence issues.
Hey man I'm on my wife's email but I'm a L2 paraplegic I was/am still kinda having the UTI problem and this really helped was wondering if you would email me had a few ?s man learn so much from ur VIDEOS thankyou
i wanted to ask, as im paralyzed as well and ive just got discharged from spinal rehabilitation where they teach you how to do all this stuff, if you write down what you drink and what comes out during the day? the nurses said this would help but i forget quite often and as im in school, i dont always have the time
I know a very late post here, but I was wondering if you have changed anything up from this bladder management program? Thanks and keep the videos coming! :)
Unfortunately dmannose didn't help me...can u spell the other u take? Methenamine?? I'm so tired of my monthly uti's! Btw my background is a spinal infarction. I walk with assistance but have flaccid bowels and neurogenic bladder.
Yes, you spelled Methenamine correctly. I noticed that I have to use both the methenamine AND D-mannose to get the desired effects. I have experimented with cutting out one or the other and it didn't go well.
Being female it is imperative that you wash well before/after using a cath. Also, if you have an active sex life, that also brings on UTI's for us girls. I had them before my paralysis and it was sexually related according to my DR. Wish you well. Use cranberry gel caplets 2x's a day and ocassionaly use a distilled water/sodium mix irrigation using a sterile disposable cath tube if you do self cathing as your method.
Please write the name of the supplement you are taking ( English is not my main language) Also if some time your urethra gets really tight just take some on or two Saw palmetto capsules,it works in matter of hours. It could also help with the fertility treatment , Peace
sorry I thought u have a spinal injury that spread through blood stream into the bladder.. u have different condition from what I'm looking for.. I hope I'm right I'm not English speaker 😅😅
The protocol is twice a day. 1 gram methenamine with 1000 Vitamin C. I use 1000 mg Emergen-C. It makes more sense to enter fluid into your bladder and kidneys rather than using a vitamin C pill that needs to be filtered through your blood steam. 07-21-21 mrsa e coli 10-14-21 e coli 01-19-22 klebsiella oxytoca 02-28-22 klebsiella aerogenes 05-15-22 Proteus mirabilis 06-26-22 Enterobacter cloacae 07-15-22 mrsa doxycycline 09-13-22 Proteus mirabilis I started taking this stuff in October.I am a C5 complete and use an ID caterer for the past 12 years. Prior to that 40 years of using a condom caterer and rarely ever had a UTI.I now 5 months UTI free now.
Great video series, tyvm for sharing. Couple questions: how long can you go overnight between cathing? i cannot imagine having to go 6-7 x day. Cost of catheters alone. And of course it would take awhile to change over drinking habits. I imagine it takes time for your bladder to expand over time so you are not leaking constantly...trying to figure out that happy medium myself. I leak mostly from external sources ie bending over or full bowel for example. How much water do you drink a day?
hi, i'm a veterinary medical professional living in ohio. your vids offer great insight which i hope can help my patients. do u have a private way of asking questions?
So will that help you not to embarrass yourself in public in case you're not in a catheter. And pls write the name of the drug you talked about. I'm a spinal cord patient and I really need to know how such accidents can be handled well.
I'm T3 para. Just would like to ask your favor, is UTI affecting the odor of our urine? I am experiencing it now, and it is uncomfortable with the smell. Thanks in advance
I am a big fan of your videos, but this one not so much. I am VERY against any pharmaceutical drugs. I (t5 complete) have been very fortunate with the uti issue, i just make sure plenty of water and really focus on what your doing during the cathing process and your golden. I do agree that uti's are the worst thing EVER, I may start adding some cranberry juice to the mix just to be diligent.
Guess I can't win em all. :) To each their own though. I just wanted to share what works for me. I was really trying hard to be as clean as possible while cathing and just seem to be prone to UTI's more than other paras I know. Methenamine is the only script I take for this and the D-Mannose with cranberry is more of a vitamin. I agree though that pharmaceutical drugs I can take the better.
hello, im a t-8 complete. for the last 5 months i have been having uti. its a pain in the ass because it puts me in the hospital. i will definitely try it your way and see what happens. thank you for making these videos, very helpful for us newbies.
Yeah! These UTI's are "pissing" me off! The antibiotics aren't doing it. I think it's time for the meds you're talking about. 6 months without a UTI would feel like a blessing.
C6 incomplete 32 years this year. Up until 4 years ago I had a bladder stimulator. No UTIs with that system. Been doing I/Cs since 2015. I must be very lucky as still no UTI. I Cath every 4 hrs or so, I can Cath anything up to a litre quite easily. The only thing I swear by is a few beers each night. My health is very good, never been back to hospital for anything other than rewire of my stimulator in 2002 . So I thoroughly recommend the 2 pints a night technique 😂🤣😂
I was also having many UTIs until a urologist had me inject a very weak vinegar solution into my bladder every day. I went over a year before I had another one and it was caused by being very dehydrated imo. It's been a miracle for me, maybe ask your doctor about it.
Actually, I have tried this irrigation technique. Unfortunately, I still had issues. Another noteworthy thing thing that helped me was making my bowel program more frequent. Apparently, the bacteria in your stool can work it's way into your bladder.
Thanks for your videos. I've been having UTIs monthly, as you describe in the video since I had a SPC fitted 16 months ago. I have Methanamine like you, what dose do you have it at? Also, any ideas for bladder health IF I have my SPC removed? (I am a 54 year old woman, originally injured 1990 L4&5 with a second spinal injury all Ls & Ss1995. Pre-SPC I used ISC & valsalva credal movement with UTIs coming out of my ears, I had so many)
+ceri love Hi there! I take 3 methenamine pills a day in addition to 3 d-mannose capsules. Not sure if you cath or not but I recently switched caths and I am much less likely to touch the new type of catheter when I am doing my biz. I think this has helped lessen my UTI's. I use a Coloplast Speedicath pre-lubed catheter.
Thank you for getting back to me so quickly. Your answer has really helped as it gives me something I can talk to my consultant about in 2 weeks time. I have made a note of the d-mannose capsules as well as dose of methanamine. I tried self catheterising but found it difficult regardless of type of catheter & had a UTI per month with 10 in 6 months prior to changing over to a supra pubic catheter changed 4 weekly on my insistence. I'll get back to you if I can't find out what d-mannose is but if I don't thanks for now and I'll let you know how I get on. Your grateful friend across the waters
Hi Brian, how are you? How many methenamine pills do you take? Hope you get well soon. Drink plenty of water and stay healthy. Kind regards, from, PaulLaw.
how often do you cath? they have me on a every 4hr schedule and I still put out 6-900cc bc I drink so much water!! I dont leak at all....I cant go unless I cath :-(
+James M Beilfuss II It depends on how much I drink...anywhere from 1.5-5 hours. Once you get to know your body better you won't have to do it on a schedule. If you are putting out that much volume I suggest going more often. Usually 400CCs is the ideal amount.
Mason Ellis I've been T6 for a week shy of 4 months and if you cannot feel your bladder, then I would cath every 2-4 hrs unless your drinking more then you cath more. Thats all I feel is a fullness so I know regardless of how much I drink if I feel pressure I cath. And some words of wisdom that were passed on to me, whatever you drink follow it up with same amount of water. That helps reduce tge number of UTIs! GOD BLESS!!!
+James M Beilfuss II I've been a C5 for one year and I was cathing every 4 hours and went to every five hours. Eventually, I will be cathing every six hours. If you are experiencing a UTI, I suggest catheterizing more often.
sorry my response is delayed. i dont get You Tube notifications. it averages to be every 4-6 hrs. I had to actually cut back on my water bc I was cathing 1000ccs. and I dont leak either...well thats a good thing.
hey Brian, how are you I got a question to ask you what does it mean when a catheter only goes in half way but once you remove it out you start leaking and a lol blood comes out . I don't know if it means uti or kidney infection for kidney stones I really don't know. or maybe it's because I have a hard time using # 2 ? I don't know ..
+Abdulhameed Gellani Usually that's a sign of a bladder infection. It could also mean that you have some blockage in your urethra and the catheter isn't going all the way into your bladder.
+Abdulhameed Gellani Hey I've also experienced that and I was told that I was using a less amount of jelly while inserting the catheter which might have damaged my urethra. Another reason could be a sphinctric spasm while inserting the catheter. The solution to the former is simple -> use more jelly while the solution to the second is taking muscle relaxants like Baclofin.
+Abdulhameed Gellani I've had to catheterize now for a long time, (T-7 paraplegic) and what I've learned is the sphincters in your urethra will either spasm, or just tighten up. You have to either do what the last guy said and take muscle relaxer or use your fingers at the base of your penis just into the scrotum to massage the urethra when you get to the first sphincter at your prostate, and BREATH. Deep breathing will help all your muscles down there relax usually. I was taught all this back in 1981 and it's always worked for me. If this happens all the time, you need to see your urologist and talk about alternatives like using a Foley (balloon) catheter or having surgery to open your urethra more. Try all the non-surgical first. Surgery should always be a last resort in my opinion.
I've had UTI's occasionally since I've been on it but I think that had a lot to do with the catheters I was using at the time. I also take d-mannose with cranberry capsules. Not taking vitamin C but I do take a daily multivitamin.
Hi Brian, how are you? Hope you are well and thank you for your such an informative video. Which brand of D Mannose do you use? Kind regards, from, PaulLaw.
I know I am getting/have a UTI when my urine becomes milky and stinky. I also experience extreme incontinence to the point that I am leaking constantly. I don't feel the pain directly but I can tell that my body is in pain because my body aches and I feel very sick. That uneasy sick feeling is how I know I am experiencing pain/discomfort below my injury level. I get the same feeling when my bladder is too full or if I bang my foot into something.
Dani S, I had exactly the same question. I have just been diagnosed with my first UTI after about 18 months following my T4 complete SCI (Transverse Myelitis). My pee became cloudy and had more odor than normal over the past few weeks. Additionally, I am also sensing a lot more pain in my mid-section (the "Hug" as some call it). I recently had the Botox injection (excellent!) so there is no leaking. I don't know if this is related or not, but my bowels have started to mutiny. I was fairly regular, but that has all disappeared. I once heard "happy bladder, happy bowel" and visa versa. So I am hoping that following the Rx things will get back to normal. Paralyzed Living thanks for the vids.
hello, im a t-8 complete. for the last 5 months i have been having uti. its a pain in the ass because it puts me in the hospital. i will definitely try it your way and see what happens. thank you for making these videos, very helpful for us newbies.
Hi I'm a t4 paraplegic I live in Australia I had a motorbike accident 3 years ago I fractured my neck in 3 places and broke my back in 4 places so my back is filled with rods and screws. I was told I will never stand or walk again low priority so no physio/rehab. And told I will need full time care (nursing home) I refused that and I am livening by myself I do my own physio and taught myself how to crawl again and now can move my left leg which is amazing seeing I could only move my arms and shoulders so anything is possible I guess if you keep trying. I suffered from a lot of uti's as well and I found that taking cranberry tablets 3 times a day and 100% cranberry juice and plenty of water have helped and have not had a uti for about 6 mths now!!! So that is my story and hope that helps. Cheers. Bruce. :)
Thanks for making this channel. Even after being paralyzed for over 30 years I'm still learning things.
Keep at it!
30 years?
D mannose is the best. It works by preventing the bacteria from adhering to the bladder wall. It is recommended by Christopher Reeve foundation. I have my son on it, he has a T5 SCI.
Good vid. I had similar issues. I started drinking 6-8 oz cranberry juice everyday which I use to mix in some soluable fiber and the uti's became far less frequent.
Try cranberry gel caps....no sugar. Or cranberry concentrate from health food stores and mix in cold water with your fiber instead. No sugar. SUGAR feeds UTI's..........starve it with concentrate instead.
Hi I'm C6. I live in Brazil. I drink two liter of water/day and started Dmannose and Vitamin D to improve immune system. Its been two years that I dont have any symptom of uti. Dmannose works really good for me. I used to have recurrent uti symptons caused by E. Coli and I solved it with Dmannose but recently in a periodic urine culture exam was identified advanced Klebsiella P. infection and I had no symptoms. Does anyone here know specifically about uti caused by Klebsiella P.?
I've got a UTI right now, not due to spinal cord injury thankfully, but I have one - very annoying. Definitely worth avoiding.
Yea, UTI's suck horribly.
Thanks for the advice in this video dude! I hope you're well and happy :) They do suck, and seem to take forever to shift! Mine is gradually clearing up but it's always a worry when you still feel little pangs of pain throughout the day as if it could come back full force. I think I might ask for one more course of Anti-biotics once i've finished this one to be sure!
Hi Brian, how are you? Hope you are happy and well? Nice to see you on the video. Hope you get better. Kind regards, from, PaulLaw.
C4 quad incomplete: found Vitamin C 1000 mg daily helped me avoid UTI's and drinking lots of water.
Thank you for your video.
I am use a urinary catheter Silicon
I replace it every once in a month
I am in the same position as fuzzy buddy. Just want to thank you.
Im a 38 year male from india. I had bike accident a year ago. T4 level. In the beginning when I started using catheter I was having urinary infection . Somebody suggested radish juice early morning daily. I started taking that. It smells like shit. But... however past 6 months I dint have any urinary infection. Thought it might be useful to somebody..
what's the causative organism plz today I had an exam about it .. I want to make sure of my answer😢😢
Really appreciate your videos. I also use the D-Mannose. It's fantastic. What dosage do you use? I'm doing 1-500mg 3 times daily, and it's mostly effective. Methenamine is the other one? Have you had your bladder Botoxed? I did that, and with Myrbetriq, I don't leak, even with a UTI.
Hey Jason, glad you like the videos! Yes, D-Mannose I take are 500mg capsules with 15mg of vitamin C and 200mg of cranberry. As I mentioned I take 3 a day along with 3 Methenamine pills. I tried to ditch the methenamine a few months back and just stick with the D-mannose but I had a UTI within a week or two so I decided to stick with it. Funny you mentioned Botox because I am uploading a video as we speak about this. :) It has been great for me but even with botox, I will leak constantly if I have a UTI.
Hi im paralyze from the stomach down too man will love to talk to someone like u i now u say everything in ur videos but i got sou many questions if u reply will give u my number its will mean a lot for me i dont now no one in the same position as me and thanks for the videos man u seen full of live i feel stupid in my condition
Can a uti kill a paralyzed person?
Is it just that time of year or what?? I notice if I go out drinking for a couple nights I'm more prone to uti's. I'm pretty early in my sci. I'm an L1 incomplete. And only bout a year and a half in. I'm starting to get into WCMX and will have my Mike Box chair in about a month n a half. And when I'm out doing that I leak alot. I take oxybutinin 3 times a day and try to drink plenty of water. Do u have any advice on staying dry while u r more active? Like I said, I'm early in my injury and I'm sure I'll learn more in time through experience. But, if I can learn sooner through advice, that would b better. Thanx in advance.
Hey Shaun, I too am more prone to UTI's if I go out drinking a lot. It looks like you already commented/saw my video on botox injections for the bladder...that has really helped me avoid the accidents.
Thanks for the response. Now a simple question. How do I put my picture on my profile? ? Lol
Shaun Corbin Alcohol increases the amount of times someone needs to use the washroom (in abled body people as well). When I drink I cath 3-4x more (once every hour). No leakage.
What if your at a place that doesn't have facilities for someone in a chair? And symphonies how about the next day and while u r sleeping, after drinking half the night? Thanks for the responses.
I carry with me the proper amount of catheters and ziploc bags. If I am in bed I'll catherize from bed and pee in the ziploc bag. I empty it in the morning. If I can't access the washroom to empty I'll ask someone to empty it for me. They understand since the place isn't accessible for wheelchairs. Use two ziplocs to prevent any possibility of holes occurring.
C6 Quadriplegic Incomplete: Until I was 20 I had UTI's much like you were describing here. It came to the point where it began effecting self-esteem and self-worth. With great discipline and study of my body, however, I have been able to stop these completely. I haven't had a single UTI for 3 years. I self-catherize around every four hours. I am on a 400mg dose of Sulfamethoxazole (Septra). I also take 2000mg of Vitamin D, 2000 Vitamin C, and a mens pill.
I had taken Septra until I was 20 it wasn't until I started taking the vitamins (DAILY NEVER MISSING) when I started to have results. I double my Septra when I have a cold and quadruple my water intake when my urine becomes cloudy or when I am sick. Lastly, I always empty my bladder in the following situations 1) slight hint of AD 2) know I'll be out for long period of time 3) having the need to use the washroom 4) Morning and night no matter what I am feeling.
I hope some people will find this useful - there is a light at the end of the tunnel. Water is your friend.
Paralyzed Living I noticed in your botox injection video you said you cath roughly 400-500cc. From what I've learned through urology that is an extreme amount of pressure you are putting on your bladder. Typically I am cathing out 200-300. If I get to 400 it's a dire emergency and have lots of AD. Just might be idea to cath sooner and you may have less leakage because that is quite a bit of pressure.
I catch myself every 4 hours too..... I have the same problem and yes my self esteem is effected badly. I get UTI's constantly, urine always burns my body always exhausted.
I really need help because im allergic to some antibiotics and I'm done taking antibiotics 😭😭😭😭😭😭 my life is hell because of my bladder
So can you stay without a catheter,and how do you do it without accidents
thanks for this channel. I've been paralyzed (T9 lvl) for 2 months now and it is amazing to see what I could accomplish down the road.
paul kurt My fiance is also a T9 Complete for about 2 months now, we get to finally go home on Monday and these videos have given us so much hope for the future as well!
Hi Brian,just wondering how you were getting on with the D-Mannose, just about to start on them myself now because I am also a paraplegic and getting a lot of UTI's, love all your videos by the way :)
D-Manosse works.
I had frequent UTIs as well. My urologist suggested Ellura which is a cranberry supplement. I've been UTI free since starting it. Botox injections also helped with my incontinence issues.
Hey man I'm on my wife's email but I'm a L2 paraplegic I was/am still kinda having the UTI problem and this really helped was wondering if you would email me had a few ?s man learn so much from ur VIDEOS thankyou
i'm a t7 been paralyzed since 2011 and uti been hell for me, so if u could put a link of where can i get these pills .
i wanted to ask, as im paralyzed as well and ive just got discharged from spinal rehabilitation where they teach you how to do all this stuff, if you write down what you drink and what comes out during the day? the nurses said this would help but i forget quite often and as im in school, i dont always have the time
You must be psychic, I just got my lab results back today and I have a UTI. Big fun.....
I know a very late post here, but I was wondering if you have changed anything up from this bladder management program? Thanks and keep the videos coming! :)
Unfortunately dmannose didn't help me...can u spell the other u take? Methenamine?? I'm so tired of my monthly uti's! Btw my background is a spinal infarction. I walk with assistance but have flaccid bowels and neurogenic bladder.
Yes, you spelled Methenamine correctly. I noticed that I have to use both the methenamine AND D-mannose to get the desired effects. I have experimented with cutting out one or the other and it didn't go well.
Being female it is imperative that you wash well before/after using a cath. Also, if you have an active sex life, that also brings on UTI's for us girls. I had them before my paralysis and it was sexually related according to my DR. Wish you well. Use cranberry gel caplets 2x's a day and ocassionaly use a distilled water/sodium mix irrigation using a sterile disposable cath tube if you do self cathing as your method.
I have got a UTI for one year and a half I've tried every antibiotic and none of them works
D-Manosse 1-2 tab per day.
Cool man! I was just thinking about making a video on this haha. You the man!
Please write the name of the supplement you are taking ( English is not my main language)
Also if some time your urethra gets really tight just take some on or two Saw palmetto capsules,it works in matter of hours.
It could also help with the fertility treatment ,
Peace
sorry I thought u have a spinal injury that spread through blood stream into the bladder.. u have different condition from what I'm looking for.. I hope I'm right I'm not English speaker 😅😅
Brian, you said you take d-mannose & methenamine 3 times a day. How many mg of each do you take? Thx!
The protocol is twice a day. 1 gram methenamine with 1000 Vitamin C. I use 1000 mg Emergen-C. It makes more sense to enter fluid into your bladder and kidneys rather than using a vitamin C pill that needs to be filtered through your blood steam.
07-21-21 mrsa e coli
10-14-21 e coli
01-19-22 klebsiella oxytoca
02-28-22 klebsiella aerogenes
05-15-22 Proteus mirabilis
06-26-22 Enterobacter cloacae
07-15-22 mrsa doxycycline
09-13-22 Proteus mirabilis
I started taking this stuff in October.I am a C5 complete and use an ID caterer for the past 12 years. Prior to that 40 years of using a condom caterer and rarely ever had a UTI.I now 5 months UTI free now.
Great video series, tyvm for sharing. Couple questions: how long can you go overnight between cathing? i cannot imagine having to go 6-7 x day. Cost of catheters alone. And of course it would take awhile to change over drinking habits. I imagine it takes time for your bladder to expand over time so you are not leaking constantly...trying to figure out that happy medium myself. I leak mostly from external sources ie bending over or full bowel for example. How much water do you drink a day?
Most insurance cove Catheters
I have the same injury as you do I get them all the time they suck thank you for the video my man
🖤
hi, i'm a veterinary medical professional living in ohio. your vids offer great insight which i hope can help my patients. do u have a private way of asking questions?
So will that help you not to embarrass yourself in public in case you're not in a catheter. And pls write the name of the drug you talked about.
I'm a spinal cord patient and I really need to know how such accidents can be handled well.
I'm T3 para. Just would like to ask your favor, is UTI affecting the odor of our urine? I am experiencing it now, and it is uncomfortable with the smell. Thanks in advance
Most definitely....am paraplegic & having hard time dealing with it....
I am a big fan of your videos, but this one not so much. I am VERY against any pharmaceutical drugs. I (t5 complete) have been very fortunate with the uti issue, i just make sure plenty of water and really focus on what your doing during the cathing process and your golden. I do agree that uti's are the worst thing EVER, I may start adding some cranberry juice to the mix just to be diligent.
Guess I can't win em all. :) To each their own though. I just wanted to share what works for me. I was really trying hard to be as clean as possible while cathing and just seem to be prone to UTI's more than other paras I know. Methenamine is the only script I take for this and the D-Mannose with cranberry is more of a vitamin. I agree though that pharmaceutical drugs I can take the better.
Does Methenamine or UREX or UTAC effect the medicine that you're already on causing you to double dose?
Thomaz .B Not that I have noticed. My other meds seem to work fine for me.
hello, im a t-8 complete. for the last 5 months i have been having uti. its a pain in the ass because it puts me in the hospital. i will definitely try it your way and see what happens. thank you for making these videos, very helpful for us newbies.
By the way D mannose is available on Amazon for 13.00 plus change, the Now brand 120 capdules
Powdered form makes more sense And after you drink it you have to wait 45 minutes.
Yeah! These UTI's are "pissing" me off! The antibiotics aren't doing it. I think it's time for the meds you're talking about. 6 months without a UTI would feel like a blessing.
+Butch Vegas Believe me, I've been there. This has really helped.
C6 incomplete 32 years this year. Up until 4 years ago I had a bladder stimulator. No UTIs with that system. Been doing I/Cs since 2015. I must be very lucky as still no UTI. I Cath every 4 hrs or so, I can Cath anything up to a litre quite easily. The only thing I swear by is a few beers each night. My health is very good, never been back to hospital for anything other than rewire of my stimulator in 2002 . So I thoroughly recommend the 2 pints a night technique 😂🤣😂
Litre too much.
So i struggle with uti's. Is this still working for you?
I was also having many UTIs until a urologist had me inject a very weak vinegar solution into my bladder every day. I went over a year before I had another one and it was caused by being very dehydrated imo. It's been a miracle for me, maybe ask your doctor about it.
Actually, I have tried this irrigation technique. Unfortunately, I still had issues. Another noteworthy thing thing that helped me was making my bowel program more frequent. Apparently, the bacteria in your stool can work it's way into your bladder.
you should try ellura
Very helpful video, thx
Thanks for your videos. I've been having UTIs monthly, as you describe in the video since I had a SPC fitted 16 months ago. I have Methanamine like you, what dose do you have it at? Also, any ideas for bladder health IF I have my SPC removed? (I am a 54 year old woman, originally injured 1990 L4&5 with a second spinal injury all Ls & Ss1995. Pre-SPC I used ISC & valsalva credal movement with UTIs coming out of my ears, I had so many)
+ceri love Hi there! I take 3 methenamine pills a day in addition to 3 d-mannose capsules. Not sure if you cath or not but I recently switched caths and I am much less likely to touch the new type of catheter when I am doing my biz. I think this has helped lessen my UTI's. I use a Coloplast Speedicath pre-lubed catheter.
Thank you for getting back to me so quickly. Your answer has really helped as it gives me something I can talk to my consultant about in 2 weeks time. I have made a note of the d-mannose capsules as well as dose of methanamine. I tried self catheterising but found it difficult regardless of type of catheter & had a UTI per month with 10 in 6 months prior to changing over to a supra pubic catheter changed 4 weekly on my insistence. I'll get back to you if I can't find out what d-mannose is but if I don't thanks for now and I'll let you know how I get on. Your grateful friend across the waters
Hi Brian, how are you? How many methenamine pills do you take? Hope you get well soon. Drink plenty of water and stay healthy. Kind regards, from, PaulLaw.
how often do you cath? they have me on a every 4hr schedule and I still put out 6-900cc bc I drink so much water!! I dont leak at all....I cant go unless I cath :-(
+James M Beilfuss II It depends on how much I drink...anywhere from 1.5-5 hours. Once you get to know your body better you won't have to do it on a schedule. If you are putting out that much volume I suggest going more often. Usually 400CCs is the ideal amount.
How many fluids in between catheterizations?
Mason Ellis I've been T6 for a week shy of 4 months and if you cannot feel your bladder, then I would cath every 2-4 hrs unless your drinking more then you cath more. Thats all I feel is a fullness so I know regardless of how much I drink if I feel pressure I cath. And some words of wisdom that were passed on to me, whatever you drink follow it up with same amount of water. That helps reduce tge number of UTIs! GOD BLESS!!!
+James M Beilfuss II I've been a C5 for one year and I was cathing every 4 hours and went to every five hours. Eventually, I will be cathing every six hours. If you are experiencing a UTI, I suggest catheterizing more often.
sorry my response is delayed. i dont get You Tube notifications.
it averages to be every 4-6 hrs. I had to actually cut back on my water bc I was cathing 1000ccs. and I dont leak either...well thats a good thing.
hey Brian, how are you I got a question to ask you what does it mean when a catheter only goes in half way but once you remove it out you start leaking and a lol blood comes out . I don't know if it means uti or kidney infection for kidney stones I really don't know. or maybe it's because I have a hard time using # 2 ? I don't know ..
+Abdulhameed Gellani Usually that's a sign of a bladder infection. It could also mean that you have some blockage in your urethra and the catheter isn't going all the way into your bladder.
@Paralyzed living, is there a solution to that ? I really really need the help.. Thank you sir .
+Abdulhameed Gellani Hey I've also experienced that and I was told that I was using a less amount of jelly while inserting the catheter which might have damaged my urethra. Another reason could be a sphinctric spasm while inserting the catheter. The solution to the former is simple -> use more jelly while the solution to the second is taking muscle relaxants like Baclofin.
+Abdulhameed Gellani I've had to catheterize now for a long time, (T-7 paraplegic) and what I've learned is the sphincters in your urethra will either spasm, or just tighten up. You have to either do what the last guy said and take muscle relaxer or use your fingers at the base of your penis just into the scrotum to massage the urethra when you get to the first sphincter at your prostate, and BREATH. Deep breathing will help all your muscles down there relax usually. I was taught all this back in 1981 and it's always worked for me.
If this happens all the time, you need to see your urologist and talk about alternatives like using a Foley (balloon) catheter or having surgery to open your urethra more.
Try all the non-surgical first. Surgery should always be a last resort in my opinion.
brian, is the hiprex (methinimime still helping? any side effects.
Yes, it seems to still be helping and there are no side effects that I can think of. I definitely don't want to get off of it.
no uti's?? are you taking with vitamin c?
I've had UTI's occasionally since I've been on it but I think that had a lot to do with the catheters I was using at the time. I also take d-mannose with cranberry capsules. Not taking vitamin C but I do take a daily multivitamin.
thx for your help. I started hiprex(methenamine) seems to be helping. if you don't mind which caths did you switch too??
Thanks Brian. What's your dosage on the D-Mannose?
+Lindsay Ptacek I take 3 of the capsules a day.
Hi Brian, thank you for your wonderful video. What’s your dosage on the D-Mannose? Kind regards, from, PaulLaw.
Hi Brian, hope you are well and thank you for such an informative video. Could you please let me know as to which brand of D Mannose you use?
Numan Choudhry it’s made by Solaray. It’s called D-mannose with cranactin.
Thank you Brian, much appreciated
Hi Brian, how are you? Hope you are well and thank you for your such an informative video. Which brand of D Mannose do you use? Kind regards, from, PaulLaw.
Thank you!
Heah demented12, the English name is D-Mannose. - Live Healthy!
Brian, thanks for the vid. How does the UTI show when you have it? How do you know you have one? Do you feel the pain that comes with the UTI? Thanks!
I know I am getting/have a UTI when my urine becomes milky and stinky. I also experience extreme incontinence to the point that I am leaking constantly. I don't feel the pain directly but I can tell that my body is in pain because my body aches and I feel very sick. That uneasy sick feeling is how I know I am experiencing pain/discomfort below my injury level. I get the same feeling when my bladder is too full or if I bang my foot into something.
Thanks for your feedback!
Dani S, I had exactly the same question. I have just been diagnosed with my first UTI after about 18 months following my T4 complete SCI (Transverse Myelitis). My pee became cloudy and had more odor than normal over the past few weeks. Additionally, I am also sensing a lot more pain in my mid-section (the "Hug" as some call it). I recently had the Botox injection (excellent!) so there is no leaking. I don't know if this is related or not, but my bowels have started to mutiny. I was fairly regular, but that has all disappeared. I once heard "happy bladder, happy bowel" and visa versa. So I am hoping that following the Rx things will get back to normal. Paralyzed Living thanks for the vids.
Get well soon DonWW
Hi Brian, how are you? Thank you for your video. Hope you get well soon. Kind regards, from, PaulLaw.
hello, im a t-8 complete. for the last 5 months i have been having uti. its a pain in the ass because it puts me in the hospital. i will definitely try it your way and see what happens. thank you for making these videos, very helpful for us newbies.
i agree with d-mannose (1tsp/day) it works for me. I also take vitamin C (2x500mg/day)