LIVING WITH LEWY BODY DEMENTIA EP.2 | FULFILLING DREAMS AND INSURANCE NIGHTMARES
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- Опубліковано 16 вер 2024
- Living with Lewy Body Dementia. Jason was having a good day, so I decided it was the perfect day to film an update! Want to help us continue to make videos? Donate on Paypal: www.paypal.com...
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We are trying to decide how often to share an update with you all? Once a month? A few times a year? Comment below to let us know how often you would like to see how Jason is doing. Thank you!
Once a month, if it's not too much. :)
Once a month, would be great.
Once a month would be awesome. I've got early onset dementia and I'm going through a lot of the same things!
A Charming Abode Dear Leslie And Jason, I am so proud of both of you! Share all that is going on to each other. You are in for quite a experience! I will keep you in my prayers !! I love you both so much!
ONCE A MONTH IF YOU CAN
When she got teared up and he completed her sentence. Ughh.. how beautiful. You can see the love between you two. I see a normal, gorgeous, fun couple who are fighting this trial together.
I would hope that he would be 100% disabled veteran and have things covered by the VA. If this hasn't happened, I would definitely fight for this and don't take no for an answer!!! Thinking of you ❤️
My husband was 55 when he was diagnosed with Parkinson’s Disease. (That was 2-1/2 years ago.). I am SO grateful that we had him signed up at the Phoenix VA for healthcare a year before that! Our costs, compared to those who don’t get care (and prescriptions) through the VA - are mind blowing! Also, there are grants for RX’s for different “diagnoses” as well - is The Assistance Fund.
Blessings to you for sharing your journey.🙏🏻🌵
Consider getting help from your Congressperson. Also, Medical personnel should be able to pin this down to his untreated brain injury, in order to get veterans full benefits.
Absolutely,, find a lawyer and keep applying for disability and get his doctors to send in his assessment and documentation supporting Lewy Body Dementia. You may get turned down but don't give up. Eventually, Jason will get approved.
Two words about insurance claims. LAWYER UP! That's all you need to do.
It is absolutely Not silly that the lack of communication bothers you. You have a right to grieve what you are losing.
Yes ♥️
You rock as a couple. He has the best sense of humor and smile.
Jason this is important, you are helping others. You are still you but your contributing to life. Just do what you do Jason & thanks
They're great videos. You'd never know that he has any dementia@all. I would appreciate it if you'd explain what Lewy Body Dementia is. Jason looks completely normal even though we know that he's not.
Well said
One very important thing he hasn't lost is an amazing sense of humor. Sending best wishes on this difficult journey. Stay strong and always hold tight to the love you share.
Jason has such a fantastic sense of humour!!! So funny!
I agree with you 🤗 🌻. That's the 1 thing I get told, but I tell people you have to laugh about an with it cuz otherwise ur sad an wanna cry 🙄🤷♀️. Personally with my Dementia I feel like I don't have time to cry 😁😄
"We don't have time to waste" you are so right. My father is going through this. Its hard. But your right. You don't stop because of this.
First and foremost, I forgot to thank your husband for all his years of Service. I also forgot to mention that what your daughter wrote in your first video was so Beautiful. I just Love your husband’s sense of humor. You both are an adorable couple. I guess I’m now giving my age away. Best Wishes- Harriet ❤️🙏🏻
I am in tears. If I had not taken care of my mom I would not have got to share the best time in our relationship. Before she passed, she still knew me, my voice, my touch. I even got a kiss on the nose and an I love you. I personally found that Mom's basic personality was still there....it was just very exaggerated. Love is a precious thing.
I hate that you guys are going through this at such a young age, but I LOVE LOVE LOVE the way your husband is trying to keep his sense of humor. I also deal with difficult things with humor, and it is refreshing for me to see him still enjoy laughing at himself and just trying to make the best of a crappy hand that you've both been dealt. Kudos to both of you.
He's more talkative and he's so cuteeeee!👍😊
He is such a cutie! I try to plan filming around times when he's talkative! Otherwise, we aren't going to get much out of him! It can seriously vary hour by hour! Thank you so much for watching!
My father in-law passed away from it! Document as much as you need. You will have something to reflect on!
Love his sense of humor! He’s quite the funny guy!
Y’all are a cute couple and laughter is the best medicine
Check with the Disabled Vets of America for help getting coverage from the VA and to act as an advocate.
Great advice! Jason needs to be supported by the military! That's where he was disabled! Avoids so much insurance craziness! The VA is great! My dad served in the Army, and I had to have his papers sent to me in order to register him, because he didn't have them! But the support/respect was so refreshing!
When my dad came to live with me he had full blown dementia and was so combative! We adjusted his medications and worked through the trauma/ fear of losing his memories! It was such a sad but sweet time! God bless you both on this journey!
When I wrote you the first time, I mentioned I was a nurse. When I worked in rehab for a while, we had to learn that instead of being the helpful nurse we had to encourage our patients to do as much as they could for themselves. I feel like that is exactly the philosophy I kept in all of my experiences, nursing. I say that to encourage you Jason, to live your life to the fullest
. I hate to hear about the insurance problems. I wonder since this brain injury was during active duty why he doesn’t get VA benefits?
I. wondered the same thing. My husband was a WW2 survivor and towards the end of his life suffered from this same disease...He received excellent care at the VA .
I’ve just discovered your channel & I’m so impressed with both of you. I’m a behavioural clinician & I have seen so many dysfunctional relationships when life gets hard; the love shines out of both of you💕
Thank you! 😊💜
Praying for your family on this difficult journey! Enjoy life when you can.
I love his personality. Your are such an awesome couple.
Isn't he hilarious! He's just the best! Thank you so much for watching!! 💜
So agreed!
Every week? You may find some release just talking about it and sharing things. You know you’re helping so many people. Please ignore any negativity that people may write. You are both so kind, we are so lucky that you’re willing to share. 💫
I totally agree & it may- no it will help someone else! God Bless you & Jason🙌🏽
I use cameras in the house while I'm gone so I can actually talk to him in the moment if Joe needs me. I also capture activities without him realizing. There is also a cool spy camera so you can enjoy your activities but the camera records without anyone knowing. You get more realistic footage. It's so hard to "lose" a brilliant, witty person. Keep laughing and find support from others. That's what keeps me moving forward and feeling hopeful in dispair.
Jason is a beast and a road warrior. He’s the man! I’m so impressed with him. You both are so dear. Insurance companies are part of the corrupt corporate world. So sad they are so predatory. They love taking your money then turn all their energies into not paying out. I’m not surprised he’s funny. It’s obvious he’s always been funny. It would be nice if no one second guessed you. It’s not helpful. Personal friends or family that take offense that you didn’t tell them directly need to understand it’s not about them. You are doing the best you can in a difficult situation. You should get nothing but encouragement and support from everyone. They don’t walk in your shoes and cannot possibly know what everyday life is like. It’s hard to talk about the changes in your relationship that are painful. It’s grief you are living in the moment. Sending compassion and warm hugs 🤗
Indeed! 👍🏽
He's so awesome. How has he been coping? I feel he's so loving and aware of how hard it is for you. Sending your family a ton of gratitude & love.
I have Lewy body dementia. I also commented on your first video. All the changes I go through are so hard on my husband and daughter, it makes me sad. I can't do anything about it though. I have always been a very talkative person, and now most of the time, it just exhausts me, so I can relate to that. I feel like my eyes look weird in photos also. Most everything you all are discussing, I can relate to. My husband does not like to talk about these things at all, so I find it very helpful to watch these videos. I hope you will continue to make them.
We do plan on continuing to make them. I enjoy finding others who are going through the same thing! It helps to not feel so alone! I"m so glad you find these videos helpful! That was our goal. Sending you good vibes for easy days ahead. 💜
Michelle pagans , my Husband also was diagnosed with LDB . We are all in this fight together. Please if you ever need to talk hit me up. My husband watched these videos and could relate to Jason on all levels. It was good for him to see and listen not just to read about LBD. Thank you.
Thank you for sharing. I thought Jason didn’t want to talk but he’s probably too tired. Interesting.
I watched the first video that you did with Jason and I am so glad that you are choosing to share this part of your lives with others. I had never heard of LBD, but as in-home caregiver for elderly and disabled people, it is helping me to better relate to what some of them are going through and feeling. Even if it’s just age related dementia many of the symptoms are the same. Hearing Jason explain the way he is feeling and having him share from his perspective is really helpful. Thank you Jason!The love you share for each other is so evident and I love your sense of humor! I will pray that God will bless you as you continue to be a blessing to others.
My mother would forget how to get into her bathroom. Everyday I would have to instruct her how to move into the space and shut the door.
I grew very tired of the repetition. Bless you in your journey. It helps to have a sense of humor...
He has a wonderful smile!
You have an eager audience! We all want updates whenever you can manage them!❤️
Don't feel judged just accept the love. You are both so great.
Jason is the best - kind of adorable I would say. He still has a great sense of humour and intelligence. I hope he can do more of what he loves to do. ❤️🇨🇦
You do you and don’t let anyone’s judgement play any part on your lives. They aren’t living through it.
You two are such a amazing couple! You can really see the great love you have for each other. God bless you both!
I love you guys and remember..God has his hands on you both...i believe in miracles cause I have had them happen to me....dont ever stop praying...God works in his own time..just keep hoping and watch God work..
I wish you guys the best I will pray for you and ask God to open doors
Hi, I just found your videos and it is now end of November 2020. I lost my husband two years ago in September 2018 to Lewy Body Dementia and had never heard of it prior to his diagnosis. He was in the Army in Viet Nam in the 60's. We live in CT and through the VA and testing he became 100% (can't remember the term) eligible for VA care and his care was 100% paid for. Please, please push for this care. It is bitter sweet to watch your journey. Know that you are not alone because there are many times you will feel that way. A support group could be very helpful. Please feel free to reach out to me if you would like. In the mean time I will be following your journey. God Bless you both.
Your random clips are so enlightening! Jason, thank you for your honesty and transparency. Hugs.
It really frustrates me, to see someone struggling trying to get their insurance taken care of when Jason fought for not only me, but for this country!!! Where's cousin Eddie when ya need him?! HAHA
So glad Jason had a great experience with his BIG GO- CART!! That's what I thought it was!!! 🤦♀️ glad Jason is checking things off his list!! YOLO much love 💕
Oh cousin Eddie haha Yolo 😂
Would be great if time permits a monthly update. Thank you for being honest and forthright. It is going to help us get though this.
New sub here and it’s Jason’s illness that caught my eye. I’m a retired nurse...so I wanted to learn more about LBD.
I subscribed bc you both are so sweet and amazing. First, Jason, ty for your service🇺🇸
I’m an army vet myself. I wanted to make a suggestion and that is, perhaps get Jason signed up in the VA system. I’ve been using them for the last 15 years, and things are so much better starting around 2-3 years ago. I’m currently being treated for breast cancer and had a world renowned surgeon and was able to take radiation at Duke in Raleigh which is closer than the Durham VA to our home. I have a choice of where I want to go. My husband was able to keep the same Drs he had when he had BCBS while working. When he retired he got into the VA system. We have been very pleased. Jason is entitled to VA care. They also accept insurance if you want to keep yours.
The other thing that I want to very gently offer is some advice. I spent around 10 years of my 30 years of nursing with pts with dementia. For safety reasons, it might be a good idea to have a friend, neighbor, church or family member spend the night with Jason when you are working. His short term memory loss and the blanks in his memory and lack of judgement are kind of scary to hear. I apologize if you are already doing this. You both are amazing and I’m sorry you are going through this...you obviously have a great love story ❤️
Hi thank you so much! This was filmed quite a while ago! Since then, I no longer work nights and I’m home with Jason all the time. Being a nurse myself, I know where my priorities are, and being home with Jason was number one! ❤️
I love his sense of humor! You guys seem like such an adorable couple. Hang in there, and keep on keeping on 😊
As a retired nurse, because of your videos, I have a new understanding of Lewy Body Dementia. And the general public now has a glimpse of your lifestyle from both of your perspectives. You are both awesome people together with each other and filming is a great communicator. Keep it up as long as it’s helpful for you!
I think your both great. He is so lucky to have a true friend and devoted wife. One in a million you are . My dad was the most important person in my life . I wish i had learned about dementia.
I am so proud of both of you for sharing your journey. You tug at my heart strings!
You two are such a power couple.
What a beautiful couple. Jason you are amazing! Healthcare in our country is a nightmare. The insurance companies try to break your spirit so you’ll give up. Stay strong, keep sharing your story. You are helping so many other people who may be going through similar situations. God bless you both and may he hold you both in his hands. 🙏🏻❤️
Thank you Mary!! ❤
you two are such a great couple the love you have for one another you can just see it gosh i wished there was a cure for this disease
Having my dad with LBD he would snap & saycruel things that I would cry. I called Alzheimer society for support when needed. They don't mean what they say or even realize what they say at times, was advised not to internalize it as hard as it is.
You are an awesome couple sharing your journey, there isn't much out there on this disease. Keep your wit & humor up you are inspiring!
Love Jason! He’s humorous and I appreciate the energy he uses to help make these videos interesting and informative! You’re both amazing!
Thank u for sharing, I am now for last 4 1/2 years, with , bipolar, schizophrenia, and dementia. Lewd body. 2 years younger then me and now my elderly mom, I have been fighting to get life ins since beginning. For burial but when they hear dementia they denied . whew crazy, it truly has been a roller coaster ride , and even more now worried about COVID and would he be able to tell me how he is feeling , after I hear a cough etc. Thank u so much for being real . I hear your cries because when u go down that rode and think on it it hits , I’m losing someone I love. I hear u . Keep the camera rolling. It will only help others and also make many memories , and something for them to watch too for memories.
This showed up in my feed. My neighbor has been diagnosed with this but he's over 70. I know you don't want sympathy but 40's is just too young to struggle with it. You are my oldest son's age .My heart hurts for you. I'm also a nurse, Leslie. Best of luck to you guys xo
Did they say they were in their 40s? Im just curious how old he is. Definitely too young but hopefully the progression will slow or stop.
@@realascanb222 Yes, not sure the exact age but I think she said 45 or 46.
I am a retired nurse from Canada,today it is the last day of 2020. Have just finished this 2nd video, I feel very humbled and appreciative that I was able to meet both of you. Leslie you have a beautiful laugh and Jason you have a great smile. Will be following your channel into the start of 2021 and beyond. It is what it is. Hugs Cathy E
Just remember you will find out that you’ll need to decide who’s in your inner circle and who will need to be on the outside. Those on the inner will support you always and those on the outside you choose to share or you don’t! It’s easier said then done. Stay strong and be blessed!
Jason's eyes look much better in this episode.
Yes, they look MUCH better!!!
If you film it, they will come. I'd say share as often as you and Jason feel the need. Look at your views...they are awesome! You said if, by doing this, you guys help one person....well, you are helping hundreds, if not thousands, feel so not alone! Keep it up..and Jason, you are so funny! I love your smile ...and your kind eyes! The two of you are such a cute couple! Just keep having fun, fulfilling those goals and enjoy life! Though things are sometimes sad and often challenging, you smile through it and that makes all of us watching you smile large!
I totally get what you said about having a dementia diagnosis doesn't mean there are no longer any emotions or feelings. My late SIL had Alzheimer's. Her sister was a caregiver so my BIL could work. When her sister developed cancer she was so sad that she would not be able to take care of my SIL as she had planned. By this time my SIL was nonverbal and just walked or sat most of the time. Her sister said "I was sitting near her feeling so sad! I looked up and M stood up, walked over to me, leaned down and kissed me on the head then went back and sat down." I realized at that point that M may not be able to communicate, but she still was the empathetic woman she had always been! Blessings on the two of you for sharing this journey with us.
I can see why you two have been together for 30 years - so much love, tenderness, and kindred banter between you. Wishing you all the best; keep that wonderful sense of humor intact!
Thank you guys for your courage to post that. I'm a student physical therapist assistant and i just learned about different types of dementia this semester and this is really helpful to understand it from a dementia person and a caregiver perspective. Keep posting and challenging the stereotype and say hi to Jason for me.
I completely understand that talking thing. "Leave me alone!"
I don't like to interact with people anymore. Not at all.
This is a help to me, and my wife. Thank you
While this isn’t my experience we have a disabled daughter who has required 24/7 care her entire life. My best advice for you is to never take the first no as the only no. Insurance companies always deny first hoping you will go away. My heart goes out to both of you. God bless you!
I understand with MS, some people get good response from downhill snowboarding~premise being neuropathway builds. I am wondering if 1) any parts of your injured brain can rebuild in other areas with that type physical exposure 2) have you looked into HBOT hyperbaric oxygen therapy? O2 saturation dices. I worked as a tech in the field and we had a CP patient who did well;the O2 saturation helped wake up parts of the brain.
An O2 pressurized sat “dive” could even help the brain fatigue *but note that the dives could physically poop you out but you could adjust to that fatigue.
Grass fed butter. Grass fed meats. Zero processed anything ingested.
O2 via nasal cannula
Best wishes. You two are a lovely couple. Wishing you the best.
As far as insurance denials 1) get a hospital advocate *where ever your Dr is treating should have risk management and ask them to put you in touch with an advocate ~ if you can’t get assigned an advocate through the hospital, try
People might be commenting on Jason being funny not because they don't expect it due to the dx, but just because funny people are such a delight. I imagine people have always enjoyed his company for his humor; now we get to meet him thanks to your videos. Encouragement and love to you both.
I became disabled 17 years ago l too was high energy let's get er done person. At 50 I was in lots of pain and tired all the time. Diagnosis....fibromyalgia. As if that wasn't enough I had an accident at work that basicly caused injuries from my right side neck to my foot. It took five years for me to accept I'm unable to do 2/3 if not more of what I did well. I'm now 67 and have been learning to do things on my upside of my pain depression anxiety etc cycle. God bless you for showing the Real way it affects you. I've done well because no one knows until I tell them, because I only go out and socialize at church. I sleep extra the day before I go
Prayers for continuing on your informative site
By sharing your story, the misconceptions get blown apart. More people will begin to understand your experience and the experience of other patients & their family members.
Thank you for documenting I’m walking this journey also. Many people save me bless your heart really tell me how they feel sorry for me and I make it very clear that I am very blessed to be able to take care of my person my beloved husband my best friend and tell Everybody that today is the best it’s going to be in my motto is I am blessed not stressed
Just wanted to offer a tip that may help with the fatigue-Hydration! Get Pedialyte and have him drink the bottle over a set schedule per day. You will be amazed and Jason will feel so much better. Plus water
Omgoodness...this is so refreshing. Recently, my elder sister developed Alzheimer’s as well as cancer...I moved into her home to provide hospice care for her. She was not like Jason...Donna was pretty contrary, her entire 76 years on earth. She was quite a bit older than me...she raised me so I couldn’t allow her to be mistreated in a rehab center because she was mine to are for...anyway, dementia is a disorder that afflicts people who don’t deserve it. They rarely understand what’s happening and my hope is to just treat them like the people we love. If their condition is out in the open, how great is that! With my sis, people knew because of her age and appearance but Jason is young and looks like a vital man...treat him that way. Thank you for this. I just lost my sister and I miss her. I got so tired of the way people acted around her dementia so just be normal people. If things happen, laugh them off if they’re even a tad funny, or just be a kind person and don’t let it get weird. Oh, Donna would get so angry if I “kept using words”...now, I get it. Thank you for everything.
I have MS and mild to moderate short term memory loss. It’s tough to be told by a loved one, “you already said that” or “I told you we were doing this already.” Small things like that just makes your self esteem take a huge hit. They don’t intentionally mean to hurt my feelings but they get irritated with it. I get tremors and have ridiculous issues with my legs at night when trying to go to sleep. If I spend time with family and it’s loud in the room I find myself isolating because it’s too much stimuli and I can’t process it well. I was always the life of the party and it sucks! A few hours with my 3 yr old granddaughter and I can be “down” for a couple days because of the toll it takes. I know what’s happening, I haven’t become “stupid” but there is a huge learning curve for me to come to terms with limitations and to learn what the new triggers are and hopefully avoid them. It’s not always possible unless I avoid all contact with those situations and I refuse to give up time with my family. My daughters and husband are the rocks in my life and have adapted well to my limitations. I also hate when people try to “baby” me. I will tell YOU when I can’t do something. If I had a quarter for every time I have been subjected to the, “my friend had MS.......” I would be rich woman. Everyone wants to tell me all the stories of the people they know with MS who are doing soooo good and they can do this(meaning, they can do something that I’m saying I can’t do). What they don’t realize is that it hits everyone different and no two MS sufferers are they same. There are similar symptoms but the level of functioning is different and I have grown accustomed to hiding my true feelings and struggles with all but a few select people because I just don’t want to hear them drone on. I love it(sarcastically speaking) when people who have not seen me in a while say, “oh you look good!”. I know they mean well but I always want to retort, “did you think I was going to look like a zombie or the hunchback of Notre Dame?” I keep my mouth shut, smile with my teethe gritted and say, “thank-you” because I did make a snotty remark to someone once and it hurt their feelings, I felt really bad about it and apologized. Having a neurologically debilitating disease is no walk in the park! Keep strong!
You two are a darling couple‼️. Thank you so much for sharing your story.
From one soldier to another I gotta say you are very strong for having to go thru all you do and esp as a couple she is very strong as well. Kudos to you both 💖
I am absolutely crying my dad is going through the process of some type of dementia. I am not responsible for his care as he is married. But I feel like these are my dad's symptoms. It's been heartbreaking as I am disabled and can't help my dad more. But I wish we could diagnose him so we can move forward with his care. Ugh dementia is so heartbreaking.... thank you so much for your videos!!!! I mean.. THANK YOU!!! I'm learning through your eyes!
You are so good for Jason, he needs you in his life. You are an awesome couple!
I wish I had you two 6 yrs ago when my husband and I moved in with my parents to become full time care givers to my mom who had dementia and dad who had Lewy Body Dementia. You are an inspiration! I love your little laugh. My Mom laughed at everything and I inherited the same trait. I’ve told our sons “as long as I’m laughing I’m ok. If I stop laughing it’s time to worry”. My husband has had 3 surgeries to remove a brain tumor over the past 30 years, the latest in Oct 2019. I see a lot of the same characteristics of Lewy Body in him but he’s never been tested or diagnosed with it. I thank you for being so open and honest in your journey through this horrible disease. Hang in there. You will always have critics but there will also be more supporters and prayer warriors than you will ever know.
Jason's smile lights up my life! Much love from Newfoundland and Labrador Canada ❤❤❤❤❤❤
Has anyone suggested a Therapy Dog? Would listening to music be comforting?
With a brain injury, sometimes hearing things or seeing things is just too much, never mind trying to talk. I slept around the clock in a dark, quiet room for two years. Anything else was over-stimulating to a point of pain and collapse.
Thank you so much for sharing such a personal experience. Wishing your family so many blessings xxx
Hello 🙂 I just found you, and am a new subscriber. It's not an easy decision to make to open your lives so completely, and for doing that I thank you. LBD is a bitch of a disease and it robs a person of their identity.
I'm glad to see Jason's personality in these videos, and it's definitely something good to look back on. He's a wonderful man.
I have so many videos to catch up on!
I am a nurse as well. One of our yearly training videos is a series of 5 videos on Dementia. One of them is the journey of a parent with dementia from the start of the symptoms to her death. It really tells the story so we understand the journey. This is a great learning and teaching video and saving memories for you kids
That paragliding thing looks freaking cool!!!
As an LPN student, your videos have been extremely valuable to me. Thank you for helping me to learn. I keep thinking that I would love to see you two on SUP Straight Up Positive-- a program featuring conversations about living with brain change. Please consider connecting with Teepa Snow...she is about your age and has some wonderful ideas that might help in her Positive Approach to Care (PAC). PAC provides free 30 minute consultations for people experiencing brain change, their care givers and loved ones. I think they might have some ideas for dealing with insurance companies and much more. Thank you again for being so generous in sharing. You are truly blessings
Here is one of my favorite sessions with Teepa- ua-cam.com/video/5oUI0MBxsTU/v-deo.html
My mother in law had dementia ( don't know if it was Lewy or not) but on a day of clarity she slyly said," It is better not to answer a question at all than to give a wrong answer or sometimes I'll just say I don't know so they will leave me alone." You guys are handling this disease in a good way... Thank you for sharing.
So many of us understand what you are experiencing. I was a caretaker for my father who passed away in 2018 from LBD. I documented our journey and have a memoir being edited as we speak. You are right, people do not understand LBD, and were always telling me that my father was doing so well, when they never saw the real LBD world. My fatter lived in a delusional world and had ongoing hallucinations which aggravated the daily situation and at times made it intolerable. Much love and hugs.
The insurance companies are notorious for denying everything. he needs to look into Medicare / Medicaid. You need to get counseling for both of you. It will help. You need the support. It is not easy. You need to take care of you too. God Bless. I am here for you if you want.
Such bravery, so honest! Just starting my walk with Parkinson's. Thanks!
I feel so much for you dealing with insurance! I know what a terrible pain in the neck it can be! Keep hanging in there! God bless you both!
I’ve just put this on a Veterans page here in Australia as I strongly suspect this may be happening in Australia but not recognised. Thanks heaps Jason, love your work. XXXX
My mom has Alzheimer’s and we treat her like we have if she had her memory. It keeps everything normal .
Thank you so much for continuing to share your journey. You are both so helpful! God bless you 💜🙏💜
I would like to thank YOU and YOUR husband for making this decision about opening up your story to the whole world. It takes A LOT of courage to share a very intimate detail, to subject it to criticism and negative comments.
However, please, focus your attention on positive feedback. The majority is GOOD PEOPLE! We feel your worry through the screen and fully support and encourage your ‘journey’. You are going to build an amazing community. Stay strong, positive, and don’t forget to live life!
When things get tougher... consider setting up GoFunMe page. There are a LOT OF PPL who cannot wait to help other! Ppl are very responsive!
You are both an inspiration..... and yes insurance companies are so very difficult and cruel. Maybe there are family/patient advocate from a dementia support group that could help. Both of you are so kind and generous to share your journey.
What a dear, sweet couple you are. Jason, I love your comebacks! You are now in my daily prayers. Enjoy each other!
One thing about posting on social media is that people's responses will come from the entire range of people. You will hear some incredibly unaware and unformed people right along with the very caring and loving comments you will also receive. I wish I could spare you but that's the reality of social media. Thank you for posting, it's so helpful to the people who want to learn. We are grateful for the posts. Insurance is the biggest stressor for everyone dealing with any disability. It's a completely broken system.
Hi I'm Jennifer, I'm 44 years old living with Multiple Sclerosis. I was diagnosed in 2002. I just wanted to thank you for taking the time to share your your truth. Thanks again
You two are awesome together. Jason does have such a great sense of humor. Gee, I better take note of that time I sneezed, and coughed when I was 14. I have moderate hearing loss so I know I drive my husband crazy. I would love a monthly update. I will be keeping you both in my prayers. Hugs, Diana.
God bless you. My dad had LBD and died of a stroke in September. Miss him terribly. It was hard watching the disease progress. But I believe God answered my prayers of mercy, taking him before it got as bad as it could’ve. Perspective too. He was in his 80’s. Thanks for sharing your story. I truly believe you are helping others and bringing attention to a disease that most people don’t even know about.
i love the way you are so honest but choosing the joy in your days. Just watched valentine
s day...lesson to everyone to make days special. Thank you both so much for your willings to help others by your transparency.
As much as it takes to communicate and share. We are all supporting you.
Oh gosh I LOVE his sense of humor, it's still coming through. Sending some prayers for you two, you are blessed to have each other...does music help maybe? I suppose you get a LOT of suggestions...sorry....
People have reservations about doing anything that has risks...especially if they are uneducated and don't know anything about it..good for y'all getting out there and chasing dreams.
Share as much as you are comfortable with. I did wonder about his eyes,my dad's eyes changed. I always treated daddy with respect,love,comedy and patience . I second guessed myself all the time,just do your best. Jason enjoying life sounds great