Newly Diagnosed? | Tips From Someone Living With MS For 10 Years

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  • Опубліковано 3 гру 2024

КОМЕНТАРІ • 78

  • @hedgehogwildlifejunction9119
    @hedgehogwildlifejunction9119 Рік тому +14

    your a better person, for all your expereinces and hello look at how many people you have now met. you have learnt humility and caring. good for you you have calmed down and getting more out of your life you have left the rat race. MS saved my life. I was working 60hours a day rushing around like a looney toon lol blood pressure so high i am surprised i never had a stroke. Now i live in a land of chill out. stay who you are. your cute lol, and kind and caring. stay safe.

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Thank you!! In that sense I actually feel like my life improved since diagnosis 😆😂

    • @hedgehogwildlifejunction9119
      @hedgehogwildlifejunction9119 Рік тому +1

      @@LifeofSebMS yep well lets face it you wouldnt know really would you. If you hadnt got it could have been worse lol. I always look at the bright side of life. went from BP OF 220/115 when working now too an average of 130/70 lol. go figure.

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +1

      😅🧡

    • @aldenmenorsanchez7373
      @aldenmenorsanchez7373 Рік тому

      ess

  • @homap5270
    @homap5270 Рік тому +7

    My boyfriend was also diagnosed in 2013! 10 years living with MS. He used to be a marathon runner (ran 36 marathons in his life before MS), he can't do that anymore but he is so disciplined in his exercising, diet, medicine, doing his best every day, every moment and I look at him and I admire him more and more every single day.

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +1

      That is so beautiful Homa! Make sure to show him how much you admire him! It’s the best recognition you can give an MSer 🙏🏻🧡

    • @huseyinbarin1653
      @huseyinbarin1653 3 місяці тому

      You are a great life partner I admire you!!!!

  • @lindseymcmullen-vickers4257
    @lindseymcmullen-vickers4257 Рік тому +15

    Seb , you are so lovely and have a very calming effect and energy. I love listening to your voice and true feelings that MS gives to us all impacted with this awful disease. I’m sending you my hugs and love and stay strong. X

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +1

      Thank you so much Lindsey ☺️🧡

  • @roberture5903
    @roberture5903 Рік тому +5

    Seb, it's amazing you were diagnosed 10 years ago because that's when my symptoms started creeping in and I wasn't diagnosed until 2017. If only I'd known then what I know now things may have been different from me. Anyway my friend you are and inspiration for all of us to keep going.

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Thank you Robert!! It’s usually like that, we have to go around with weird symptoms for some time before we get a clear diagnosis… try not to be angry at those four years! It’s all part of the process that most of us have to go through 🙏🏻🧡

    • @roberture5903
      @roberture5903 Рік тому

      @Nartarlyia Tremaynne thank you so much for your kind words and I so much appreciate it but to be fair I think I was in denial for a couple of years myself but I'm still walking and I'm alive so I'm grateful. God bless you and thank you again. And yes by the way I could use some sunshine from Australia because we don't get enough of it here in the part of New York state where I'm at haha

  • @sergeychalkov4
    @sergeychalkov4 Рік тому +6

    2013 was the year I turned 30. And that was the year I started business with a sociopath who killed me in every moral way possible. I thought I will have to live half dead from that year on. I got my MS Dx in 2021 and then the great things started to happen. This year I got my permanent residentship in Korea, found myself surrounded by wonderful people and involved in interesting projects. MS answered so many questions for me. My best wishes, Seb!

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +1

      Thank you for sharing, Sergey! It’s beautiful that you see your MS diagnosis as a turning point from which things improved in your life! You learnt to steer clear from the bs and go for what actually made your life better, right? 🙏🏻🧡

  • @vicenterocha8119
    @vicenterocha8119 Рік тому +5

    Seb, you’re amazing. I love watching your videos cause at one point I could feel that too. My diagnosis was february of 2022, I’m now living a life learning how my limits are, but seeing you so calm makes me hopeful about my future. ❤

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Hey Vicente, thanks for your comment. Have faith that you will eventually reach a state of acceptance, which is a blessing seeing as so many people otherwise are on a constant hunt for MORE 🙏🏻🧡

    • @jsterling6805
      @jsterling6805 Рік тому

      Just remember the MS Mantra. “I may have MS but MS does not have me.”

  • @dearbhlar6681
    @dearbhlar6681 Рік тому +9

    I am in the process of getting an official diagnosis 😢, i want to get to the stage youre at mentally as right now i cant even look back on photos of myself. Feels like a different person x

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +2

      Hey there, I know the feeling… don’t rush it, just allow the news to settle in at their own pace. Learning to surrender is a valuable quality that the fewest possess 🙏🏻🧡

  • @Ogirl4164
    @Ogirl4164 Місяць тому

    I don't see the downfall. You are still doing something in the world ❤being the voices those who are suffering or frustrated about symptoms. I love your channel. There's so many big possibilities in this ❤❤

  • @lauracarlson9260
    @lauracarlson9260 Рік тому +1

    Perfect! yes- I am "different" and yet it is still me. My main learning in 18 years with MS is that I really need to prioritize and do the things I really want to do- and do them as soon as I can. Appreciate what I can do and those around me- prioritizing both of them! If I write a book it will be "An Urgent Life- Living with Intention and Priorities"

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Well said!! There really is an urgency about living life that we are aware of that probably everyone should apply to their lives 😅🧡

    • @jsterling6805
      @jsterling6805 Рік тому

      Can’t wait to read it.

  • @taopaille-paille4992
    @taopaille-paille4992 6 місяців тому

    You seem to be a great man. Congrats to your journey and wisdom. I m dealing with a new auto-immume neuro vascular disease and trying to get used to my new self and go back to a pretty good life if possible

  • @ulftruffe8723
    @ulftruffe8723 Рік тому +1

    In 1992 it got dark. I couldn't go. Pain in my brain. I throw up all the time. The ambulance came. Week after week in hospital. That was my start of my ms. Now I can train in water 4 times a week. I need help but I'm on top of my world. My self. Being calm, focused, eating well and real friends got me to this place in life. Difficult but worth it. I didn't expect that as it looked so dark. So don't give up. Embrace your new self.😊

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Thank you so much for sharing your version of the story, dear Ulf! That is truly beautiful 😊🧡

    • @ulftruffe8723
      @ulftruffe8723 Рік тому +1

      @@LifeofSebMS 😊

  • @peterjansen3056
    @peterjansen3056 Рік тому +3

    Spot on! Nothing to add. Thank you.

  • @emilioreyes7849
    @emilioreyes7849 Рік тому +5

    Thank you for sharing ❤

  • @Chuckie123
    @Chuckie123 Рік тому +3

    Ahh its great your loving yourself and not comparing that is my goal to get there also im not there yet but im getting there . I dont think there is a 1 of us that MS hasn't taken our Career i remember being in class with a energy drink not far from me at all times . Blaming my falls on the cleaning people they had to much wax on the floors and blaming my falls on all the pain i was having. Seems like none of us R exact in our symptoms but 1 thing we do have is knowing how this MS effects our lifes in so many ways Thank You for posting 🧡

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +1

      Thank you for sharing your progress in the journey, brother. You’ll get there, trust 🙏🏻🧡

  • @drakulie
    @drakulie Рік тому +4

    Are you on any medications, and if so, how does the medication make you feel immediately after taking them? For example, any negative side effects, or do they calm your symptoms, improve them somewhat, etc?? Thanks for sharing!!

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +2

      Hey there, I am currently on Ocrevus and the only medication I am taking otherwise is urotrol to calm my bladder. I control my muscle spasticity with yoga 4 times a week 🙏🏻🧡

    • @drakulie
      @drakulie Рік тому

      @@LifeofSebMS thanks the reply. 👍👍

  • @gabikynigou2523
    @gabikynigou2523 Рік тому +1

    Back to 1998 when I was diagnosed in very bat way! Thanks God or Divinity today you have more information to make your life better!!!😊

  • @RoxyMs567
    @RoxyMs567 11 місяців тому +1

    Thank you. My eyes were hurting I thought it was because I was reading too much. I have an eye doctor appointment next week. I have a suspected diagnosis for MS.

    • @LifeofSebMS
      @LifeofSebMS  11 місяців тому

      Wishing you a speedy process 🙏🏻🧡

  • @MultiTonil
    @MultiTonil Рік тому

    I was diagnosed 7 years ago with CIDP 🤷🏻‍♂️ you are a incredible inspiration 👍🏻 great video

  • @imblessed8986
    @imblessed8986 Рік тому

    I thank GOD for you and I would like to thank you for your awesome words of, encouragement! This was a great reminder for me to hold on to. 🙏🏿

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Never forget! We have the strength within us to accept what we have or don’t have 🙏🏻🧡

  • @angelebabin5845
    @angelebabin5845 Рік тому

    It seem that you are living your life and not for someone else. Wishing you all the best. Than you for sharing your journey.

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Thank you Angèle! Wish you the best too 🙏🏻😘

    • @angelebabin5845
      @angelebabin5845 Рік тому

      @@LifeofSebMS I hope your doing well and that your no to sick.

  • @RisaTvDuck
    @RisaTvDuck Рік тому

    Hey Man! God bless you! 🙏💪

  • @neetujogi8087
    @neetujogi8087 Рік тому +1

    I am a lot of these symptoms of ms. I ve been to multiple doctors a and my mri s dont show much. But the symptoms that started suddenly keeps me nonfunctional and bedridden most times. Can u help me to diagnose this as I really cannot live lik this guessing my problem 😢

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +1

      Stay strong and keep insisting with your doctors 🙏🏻🧡

  • @GIBKEL
    @GIBKEL Рік тому

    Hope Brazil was great!

  • @realfoodrealmoney
    @realfoodrealmoney Рік тому +1

    What test or tests helped diagnose you?

  • @Kand1210
    @Kand1210 Рік тому +1

    This is beautiful! Thank you sharing ❤

  • @dermlover1
    @dermlover1 Рік тому +1

    Did you meet your current partner post diagnosis?

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +5

      Post! I actually showed up on the second date with my cane 😆🙏🏻

  • @RH-kg9eo
    @RH-kg9eo 5 місяців тому

    Hello
    How are you
    Where are you now
    I realy want to know

  • @rebeccahowell3402
    @rebeccahowell3402 Рік тому +1

  • @sarasmile6071
    @sarasmile6071 Рік тому

    This is off subject, but you have beautiful eyes.

  • @janyou17
    @janyou17 Рік тому

    Seb, I want to take care of you.. 😢❤

    • @LifeofSebMS
      @LifeofSebMS  Рік тому

      Thank you Anastasia 🥰🧡

    • @janyou17
      @janyou17 Рік тому

      @@LifeofSebMS I'm serious. ANASTACIA is my mom's name. She died 4 yrs ago of brain tumor. 😥. I'm alone in this world. I wanna take care of you.

    • @janyou17
      @janyou17 Рік тому

      I'm actually male. Not gay not bi. Just in between. 😃😃 I hope u will like me. But I'm serious. I want to take care of you.

  • @user-vo8nf3qf1f
    @user-vo8nf3qf1f Рік тому

    Me encantaria que hagas este video en castellano❤

  • @dazza0670
    @dazza0670 Рік тому +2

    are you on Facebook Seb ?

    • @LifeofSebMS
      @LifeofSebMS  Рік тому +3

      I am, but I barely use it… find me on IG instead: seb_yoga

  • @DonnaPowell-o3h
    @DonnaPowell-o3h 10 місяців тому

    Thank you for sharing 🙏🏿❤️