Married with Multiple Sclerosis for 47 Years (Chronic Progressive MS)
Вставка
- Опубліковано 29 вер 2024
- Greg married Nancy in 1974 and less than one year later he was diagnosed with multiple sclerosis. In the 47 years since their wedding Greg's condition has progressed, and so has the couple's love.
SBSK Patreon: / sbsk
SBSK's Socials:
/ specialbooksbyspecialkids
/ chrisulmer
/ specialbooksbyspecialkids
/ sbsk
I’ve been watching SBSK for years and now there is an episode on the condition I have. I feel even more a part of the community now. Thanks Chris and Alyssa!
I have MS too! It’s great to see our struggle on SBSK after years of watching.
I have MS too! I saw that this video was up and couldn’t wait to watch it
Same! 😁
I've been diagnosed since 95. I was 25. I am so happy to see you did this! I was going to suggest. MS affects men differently than women. They are a fun couple! You must laugh at life. And especially when one has a condition that can change from day to day. I hope you will interview a female.
My wife has ms and got diagnosed just a few weeks after our wedding two years ago.
When he started teasing Chris with the 'what?', instantly knew this man was a gem
I saw it coming and thought it was hilarious!
I know right
My mom, uncle and grandma all have MS. Just like Greg, my mom was a teacher and after her diagnosis, it got too difficult and she retired early. It’s been very difficult, especially since I was 7-8 when she was diagnosed. I’m 21 now, and it’s definitely not easy and over the years, her health due to MS has been declining. MS has been a big part of my family since I’ve been seeing family members with it since I was very young, and since I have 3 family members with it (MS is a “rare” disease but it felt so common to me since this is all I’ve ever really known growing up) Nancy is such a pure soul and I know it’s not easy having a loved one with MS and all the hardships you go through. Bless them both ❤️
Another beautiful video. Thank you so much for gifting us with your channel.
I'd really like to see more videos of people living with MS. My sister in law was diagnosed in the beginning 2020 and I'd like to understand it more
I have a UA-cam channel, living with MS... not to self promote on somebody else's Channel but it is just starting and I have one maybe two videos there. My main Channel day from Colorado has more videos about it but it's not really am getting any particular direction. Other than my daily video stream as I get my eight-year-old daughter up in the morning for school.
Woooooowwwww! What a house full of love and joy! A nice video to start the day
My 27 year old friend has been diagnosed with MS, how can I be a better friend to him knowing this.
Only happy tears I have. This is what love is all about. I hope with our amazing researchers that a cure can be found.
Hello there👋👋. How are you doing today?hope you had a nice day?GOD BLESS YOU!!!
OMG I lost it at the memory thing, I KNEW he was going to do that LOOOL🤣🤣
Aloha! Wonderful couple! Meke Aloha nou!
This was beautiful. My mom was diagnosed with primary progressive MS shortly after she married my dad, then had me against everyone's advice. Spoiler alert: it worked out! They've been together for 43 years and she's in a position very similar to Greg's now. I have so much respect and admiration for Nancy. Caregivers like Nancy are angels on earth
I have a very similar story! My parents had a difficult time conceiving, and then my mom got diagnosed with MS. She was told she shouldn't get pregnant, so they finally looked into adoption, but the adoption service immediately told her she wouldn't get a baby because she 'wouldn't be able to take care of it' 🙄 then they went to get IVF, had me, and, surprise, she's been a great mother to me, and my parents have been married for 34 years.
How wonderful hearing these beautiful stories of resilience - I am sure they will give hope to many in similar situations. X
My mom has MS and her and my dad have an amazing relationship.
Any Man would be lucky to have a Wife like Nancy.
or a husband like Greg!! I understand this is very much a terrible place he is in at this point, but it hasn't always been as bad. what a funny man and beautiful relationship!
God bless them both…🤗 Chris your amazing thank you 🙏
Godbless them both ❤💙
"I'm still standing excuse me" omg such a good sense of humor
😂
How Long have you been married?
"We were trying to figure that out earlier"
That was the most relatable thing ive ever heard 😂
That was funny
0:48 yeah hahahaha!
Towards the end of of his life my dad had a lot of trouble communicating, was often quiet, and sometimes you'd wonder if he was still "there." But then he'd make a "dad joke" and I'd feel so much better. I know one time my mom and I were with him. Mom was trying to see if he was comfortable and asked "Do you feel funny?" and Dad said "HA HA!" lol
“Every day I’m with her is my favorite memory. Every day” Wow I went from laughing to crying real quick 😭😭😭
No I can't 😭😭😭😭
I lost it when you asked Greg if he struggles with his memory and he purposely went "What?" Nancy knew EXACTLY what he was up to at that point. "Don't. He's teasing you." XD!
That was so funny. I was like OMG Chris you fell for that one.
I enjoyed that laugh too. Having a sense of humor through out it all is very important to the well being of the family, and this gentleman has a wonderful sense of humor !
What a troll haha
That was funny 😆
My 97 year old great grandmother has a lot of memory issues. I saw her at her nursing home a few weeks back and met a couple of the other residents at dinner time. Before I left I asked them “so you’re Fred and you are Judy right?” Judy replies “yup, but we don’t know who she is!” (Pointing to my great grandma). Great grandma replies “I don’t even know who I am.” We all bursted out laughing. Sometimes you just have to make the best of your situation.
Like Greg, I also have a neurological disorder, but so lucky to have a husband who loves me as much as Nancy loves Greg. When you're sick, it means the world to have someone by your side; someone who will never give up on you... and even when you wanna give up on yourself, they won't let you❤ this is the True meaning of LOVE.
That's wonderful. I'm glad that you have that kind of love and partnership in your life. I'm no advocate for marriage by any means, but I gotta admit, whoever originally wrote those vows were onto something. To devote yourself completely to someone for better or worse, richer or poorer, in sickness and in health, till death do you both part is one spot on depiction. One that's also really underrated. Sadly, we've heard them so much that it's lyrics have lost it's impact and meaning. When you find the kind of love that's unabashed, unrepentant, audacious, unconditional, fierce, untamed, unfeigned...you just know when you got it. And gurl, you got that ish. 💕👍
@@nuckinfuts7610 I agree with them all also BUT the “till death do you part” for me isn’t true. My husband passed about 11 years ago at the age of 46, I was 44, we had been married for 27 years and passed away in 2010 of the swine flu pandemic. At 11 years I still feel at married to him as the day we said I DO. I understand what you mean but I have never even thought of another person ever coming along and and changing that love I have for him EVER 🙂.
@@wandafrmbama5803 My dad passed when I was 12. That was more than 20 years ago. My mom never ever dated and, as far as I know, never even considered or had an interest in it. I think there is something really special about that and I'm glad you feel the same way about your husband.
@@wandafrmbama5803 agree, love is everlasting and goes beyond the physical realm. Many faiths who've long used these traditional vows also felt it was necessary to revise that last line. For instance, the Unitarian church kept the beginning portion pretty much the same, but replaced _"till death do us part"_ with _"to love and cherish always."_
I'm not lucky at all
I can totally imagine Greg as a teacher, the kind all the students just love.
Yep!!! 🤗
Ohhh this one hits home. I've been diagnosed with remittent-relapsing MS 6 years ago. It all started with tingling in my feet and hands, just like Greg. I'm still standing, still walking, thanks to some amazing drugs that keep me stable.
This couple is amazing! You can feel the love.... Thanks for sharing your sweet story with the world!
Can I ask, did/do your hands also twitch or just feel like they're not doing what you want them to? My back stopped working in May and since my hands and feet don't feel right... I am a bit worried
@@headerahelix please go to a doctor, it could be nothing serious but if it has you worried go and get yourself looked at.
Today I found out I maybe have a syndrome at 20 years old.
Its hard to admit it and I started to feel useless.... I have problems with my vision and the doctor thinks that is part of the syndrome. I am waiting for the diagnosis in a month.
Your channel remember me that is not a problem is a part of me and that makes me special and instead of being sad I should be proud. I was born with slow development and I hated my self for that... Trying to love my self even do is hard.
Thank you🙏 even do I am sad right now I hope for the best, 🖤
Don’t worry❤️, you are strong!. People with a syndrome or a disability is NOT useless!
You are just as worthy and important as anyone else! It’s okay you have struggles! And it’s okay to be sad. I have many struggles too. My dad does too. We have to live life anyways! Much love to you.
@@Blurryfaceakarye thank you🙏 😭🤍
@@mybubbles5552 thank you❤
@Uchiha Rose. Don’t be sad embrace whatever is going on with you. Make Jesus the Lord are your life. For years I was shame of what people think. I was pick at my hold middle and high school. Today I am 58 years old and so Bless. Never let know one still your joy.
Finding out your spouse has a progressive disease a year into marriage is the epitome of till death due us part in sickness and health. What a beautiful couple.
My wife passed away at 36 from MS so this touches me to the core.
Sorry my friend 😞
So sorry for your loss❤️❤️❤️
♡
We love you!!!
So sorry be strong dear
Both of you are the pure essence of what true marriage is. Through health & through sickness, for better or for worse. I can only hope that I have a marriage that lasts 47 years. God bless you both! Greg, I hope you live life to the fullest and know you are so admired and so supported and adored! Same for you Nancy. You both are gems. 🌞
Agree 150%!! Perfectly said 💯 😀
I have MS, my first attack was when I was pregnant with my son, I suddenly lost feeling in my right thumb, by the next morning I was numb on my right side, they first thought I’d had a mini stroke, but after 14 nights in hospital 3 MRIs, a lumber puncture and a heap of blood tests, they diagnosed MS! My son is 18 in November so it’s been that long!
I now need a walker for my mobility, I can’t walk without it now due to my poor balance, coordination, strength and vision! My husband passed away 12 years ago and my sister stepped in as my carer, I’m so happy she did, she cracks so many jokes with me all the time! We are never sad, which is the best!
It is so wonderful to see that Nancy and Greg have such a great sense an humour! Just magical! 😊💗
My sister has really stepped up for me, too, and we're much closer now--I'm so grateful!!! 🙏💖
Wow, you sound so positive and strong. I’m glad you have help. 🙏
This is interesting to me, I've had MS since 2008 at age 25, and was told you are "immune" to MS attacks during pregnancy. I guess not! 😳
Take care 💗
Love to you and your sister! I have a much younger sister. She was 15 years of nonstop labor, strife, and fun! Oh, my. No kids for either of us, ever. She is so brilliant! I am so happy that you two have that joy!
My oldest sister was diagnosed with MS about 5 years ago. It's an awful disease and it breaks my heart to watch my sister struggle because of it.
I'm glad you have an awesome sister to support you ❤
Props to Nancy for her love for Greg. And also Rachel, there aren't many young people willing to dedicate their services to the infirm or elderly, that warmed my heart to know she cares so much too!
"IM STILL STANDING" XDDD
I already like them!
I have MS and today I got my cognitive testing results. It wasn't great news. I think I really needed to see this today. I hope that my husband is as wonderful as Nancy is! I've been married for 24 years and hope I still have many more years ahead.
Sorry your results weren't what you hoped for, Kelli! From what I understand with MS though, it can be very up and down, so maybe they caught you on hard day? As for hubby, he might just surprise you--things change, as they inevitably do anyway, but there are treasures from it... If you can keep your sense of humor! God bless you both 🙏💖
Their beautiful sense of humor reminds me of our family! Such love and admiration for this wonderful couple. Sending hugs! ❤️
When my body was shutting down in 2012 and I was waiting to see specialists, my husband was out enjoying his “extra curricular” activity. I discovered it in January 2013. He moved out a few months later, said he wasn’t spending the rest of his life taking care of me. That was after 15 years and 2 children. In June of that year I was diagnosed with cancer in my spinal cord in my c-spine. October was the surgery and I have been left with nerve damage that affects my mobility. I get flare ups, similarly to someone with MS (one of my specialist tells me) that knock me out for extended periods of time, especially if I get sick. Thank God I have amazing parents who have been able to help my children and I.
I LOVE the attitude and sense of humour this couple has 💕 This is what in ‘sickness and in health’ looks like. Wishing you many more years of love, humour and making memories together 🥰🇨🇦
im sorry that happened to you are strong and your parents are caring and have their priorities straight. Your husband was presented with a test and he did not pass.
I had a teacher who had MS. He was in a electric wheelchair and he let the class drive it around the basketball court one day. He was a very wise and compassionate teacher and person. Really the best teacher I ever had.
@@Carlsmith-ry3qv you and the other profile which has the picture of the lady, need to leave people alone. Asking the exact same question to random folk. And for what purpose 🤔. Very strange!!
“Every day with her is my favorite memory “❤️ what a Beautiful couple ✨✨✨✨💟
"i'm still standing" LOL omg I love these people.
47 years together and he still remembers the first date. Impressive!
I loved the Polaroid at the end, too!
I have MS so seeing someone with MS on the channel really helps show me how different it can be for everyone impacted by this disease. Thank you for all you do Chris!
Hello there👋👋. How are you doing today?hope you had a nice day?GOD BLESS YOU!!
Greg seems like someone I would admire if I knew him personally
My brother in-law's parents both had Multiple Sclerosis, fortunately non of their children had it. They have both passed but they managed to take pretty good care of themselves.
Thankfully MS is only about 2% hereditary.
I love this channel and what you guys are about. I got diagnosed with MS about 7 years ago and it’s been a fear of mine that I may not find someone who’s willing to “travel the road less traveled” with me. But this just gave me hope. God bless them!
Greg is the greatest teacher and was a mentor for me throughout middle school. He was probably 10 years into his diagnosis and had his share of daily struggles then. No matter how sick, tired, weak, or strong he was at the time, he never let it keep him from giving us 100% of him, his humor, or his love of teaching. I continuously see him outside in his garden and cannot pass without thinking of those times. Very special man. Very special friend to anyone he meets!
These two could absolutely be a comedy duo. Both of them are hilarious. And in the spirit of the jokes they make about themselves, Greg wouldn't have to write that much material for his 30 min segment : ). Love you guys.
they are absolute goals, if my relationship doesn’t have as much love as they have i don’t want it
I was recently diagnosed with MS at the end of January of this year! Hands and feet went numb. Even want blind temporarily from the scars in my brain and even my spinal cord. I couldn't even too the bathroom, walking had to learn to walk again! Went too acute rehab This is very hard for me too live with for the rest of my life. But it doesn't hold me back! Very special video right here.
Greg is so sweet and Nancy is the perfect example of true, selfless unconditional love. Beautiful marriage
It would be impossible for me to love them more! Goals.
Hello there👋👋. How are you doing today?hope you had a nice day?GOD BLESS YOU!!!
BLESS THEIR HEARTS!! A lot of laughter is what it takes. And stand by your man. He said “I don’t know what we talked abt”.. that was cute. I just love their love..
hearing them laugh together with real joy, beautiful.
Hello there👋👋. How are you doing today?hope you had a nice day?GOD BLESS YOU!!
"what?" omg hahaha! It's so wonderful to see that despite everything, these two can still laugh together
For real! I was dying of laughter at that part lmao
I haven’t cried in awhile watching these videos but this one really hit me hard. Such a beautiful couple, thank you for sharing💕
7:13 hahahaha this is hilarious. They are such a fun time!
This reminded me of my grandparents. My grandma took care of my Pop alone the entire time he had dementia. She refused home health (and I wish she hadn’t - it’s admirable, but everyone deserves help and time for themselves) and did all of his care, 24/7, for about eight years. For about half that time he had no idea who she was, for about a year he couldn’t even sit up or speak. I’ve never seen love the way my grandma loved my Pop, she loved him so deeply his illness wasn’t even a factor. Or maybe it made her love him even more. That’s the kind of love these two have, and it’s such a rare and special kind of love, as cheesy as that might sound it’s true. Thanks for another great one, Chris.
My mom has ms. Thankfully, the copaxon shots 3 days a week help to slow the progression. We got lucky and caught it early.
They are such a sweet couple!! True love right here!!🥺😭
I went to bed fine one night, woke up the next morning and couldn't feel anything below my waist, and couldn't walk. Then got an MRI, and it showed I have MS.
I have MS. It really is like a ticking time bomb. For me I woke up blind, but now that I look back I see little episodes that I now know were MS, like my right foot fell asleep for a few weeks once and I was tripping over, my left pinkie and ring finger a few years before that and blurry vision that was diagnosed for migraines. If there are lesions, those are the episodes you didn’t notice. Good luck with treatment, they are making some exciting developments at the moment.
Happened to me after my 3rd brain surgery, it is always a shock. Blessings to you on your healing journey 🙏💖
@@lulumoon6942 wow, same to you.
@@chrissquitieri3628 Thanks, Chris 💪
@@blondesense1708 Hey we relate! My left palm and both of the bottom of my feet went numb. And went blind for like 5 days. Many MRI's and spinal taps. I even had to get Blood apheresis done too. Its a terrible experience. And it sucked! But we just keep fighting! Where did you get treated at?
wow this story is so touching and it brought me so much joy! as a 24 year old who was diagnosed with MS 5 years ago, this gave me hope that I can find somebody who will love me unconditionally. it has been a struggle for me but this gave me hope.
“She laughs at my jokes even when they’re not funny” 🥺 the one thing all of your videos have in common that is so refreshing to see is true love. Whether it’s a parent & child, partners, friends. There is so much love ❤️
He stole my heart talking about Nancy. This couple are the perfect couple. Perfect love and we can all learn from them. X O
My father is diagnosed with progressive MS. I hope he can find a caring wife like Nancy.
I love this couple! They are an example of true love and their humor is awesome!
Ohhhh myyyyy I absolutely love this couple. What wonderful sence of humour in such a tough situation. They make me so happy and I couldn’t stop laughing “3 out of 47 ain’t bad” 🤣🤣💕
Jus sending a hello your way and lots of blessing to u as husband and wife😊.
These interviews are so impactful. Thank you for putting in the effort and sharing these people's stories.
It's like Dodo with humans LOL
I had two step sisters that had MS. It’s a horrible disease. They passed in their forties. God bless him and his family
My deepest condolences to your family.
Haha! Greg is hilarious and his wife is a wonderful person. You can tell she loves her husband and he looks at her with love as well.
I adore Greg’s sense of humor! laughter is the best medicine.
There's love enough for everyone on earth. There's a special someone for everyone on earth...if we can just find that someone. Greg and Nancy have found their someones. They have proved it to eachother, and the world, that adversities will come in relationships but gliding through them with a great sense of humor might just be the key to success. You are both a success story❤
A beautiful story, loved listening to these people's positivity and strength, pure love and fight. Just love love love it! And bless Rachel, such a warming smile you see the kindness right through it. I'm glad Greg has such people around, and vice versa cos he seems great
I was diagnosed with pediatric MS when I was 17 and this is such a great video to me for the reason that I want my partner to know that regardless of how bad things might get, we can still get through it. There are much better treatments out nowadays too, and better medical care in general. It’ll be nice to see how much better things might be in the future.
That's a freaking super attitude, ACE, no doubt the people in your life are lucky to have you!!! 👍💪💖🙏🌈
I love this so much. I am a nurse and it is so hard to see patients with MS with a poor support system. His spirit and attitude is inspiring!
💖💖💖Thank you for caring, Emma, and please know that good medical staff, from nurses and doctors through to custodial staff to orderlies to receptionists and LPNs make an enormous difference during our care/stay, and beyond, you can't begin to imagine!!! 😮 I may not remember the names but I have so many dear people in my heart just the same!!!!!!!!!😍 (I'm not crying, you're crying!) LOL
7:05 to about 7:30 was so funny! I watched that part a few times. His deadpan "What?" was so perfect, and everyone laughing was just icing on the cake.
can you explain the joke for me? I had a hard time understanding it haha
Has he tried chemo my father has MS and he did chemo back in 2016 and he's doing great he doesn't need to use his cane anymore or his wheelchair
@Mandi W I’m so sorry :(( I guess everyone’s body is different and everything a bit affects differently
So glad to hear your Dad had success, enjoy the bonus time!
Oh, I love them so much. Their love is so strong.
This interview changed my life, thank you so much
What an awesome couple. You don’t see people married this long anymore. He is teaching us.
Yes.
Hi everyone: It's so nice to see you all again on UA-cam. I want to meet you all one day. Take care and stay safe.
Hey Marleen, I feel the same way, this is the best gang in the whole internet! 😊THANKS, CHRIS!!! 💖💖💖
This was so pure and I loved them. My mom had to help my dad after a severe accident and witnessing it firsthand, it’s a lot to take on the role of caregiver AND spouse. You’ve done a great job, Nancy.
And Greg, you are so charming and I wish I knew you in real life! I could spend hours joking around with you and hearing you speak.
This video was a pleasure to watch, thank you!
"I try not to take things too seriously, because that would be depressing. And I don't do depressing". I'm going to keep this in my heart for the rest of my life.
I don’t do depressing! Yes sir!!
No matter how hard things can be, you can still find joy! Yes ma’am!
Spectacular couple! Thank you for sharing some of your story!
This one hit home for me. My mom has Multiple Sclerosis as well and everyday is a gift truthfully. Sometimes things get really bad but then itll get better again as well!!:)
Its nice to hear this! I'm the mom in the situation and it hurts so much sometimes, I don't want my child to see me weak, but its encouraging to see so many people talk about how its not all bad all the time.
@@AnnaRoemantic I understand the pain from it and all of the worrying that comes along with it as well. But having that allows us to realize to live in the moment and be as happy as you can be:) You've got this and you're so strong!!
7:05 - I want to let Greg know that I fell for it too, lol! ❤
This is a real love story, I'm overwhelmed and crying bc they remind me so much of my grandparents
I'm so happy to see this! My husband was diagnosed with MS a year & a half ago, also within our first year of marriage. We were high school sweethearts & are more in love than ever. What a beautiful couple showing the love & humor are going to keep going strong.
Wow my gf and I both have MS
My hubby has MS and still works a full time job. We found out that he had it, 4-5 years ago...
Hey guys, i am not the kind of person to put on some comments on youtube but i am a suscriber for a while and I love your testimonial videos. My fiancee was diagnosed with MS 2 years ago and i am at her side loving her so much. This video helped me to gain even more faith that love wins above all. Thank you a lot for this
I love their sense of humor. They truly love each other and it shows. I was diagnosed with Tarlov Cyst Disease 3 months after my husband and I were married. It was a very hard first year, but I’m blessed to have a husband who loves me through it all. He never complains about having to help me.
"I'm still standing, excuse me" lol...good sense of humor. You start with that and then get your life back
God bless them, they are adorable!
My moms brother died of MS in the early 2000s he was only 52 we all miss you and love you Mikey
RIP Mikey, and so glad you remember him fondly, he's still with you then.
Nancy sounds like a badass.
I think that applies to both her and Greg tbh.
@@millacernemusic you're absolutely right.
Yeah, you nailed it! 👍💪
"I'm still standing, excuse me"
Oh that sense of humor 🤣
True love right here. While I am not disabled in this way (I am disabled though), it takes a special person to marry someone and STAY with them if they are disabled. Sadly so many leave their spouse once they become disabled because it's to much for them. They don't think of their spouse sadly. I mean I understand it can be hard of course, but love is stronger than any disability.
Also if you don't have laughter, things will be hard. Laughter helps you deal with it. I've gotten to the point where I can even laugh about myself. Live, love, laugh!
I agree that ppl need to be reminded of manners. There are so many things that ppl do to make the world harder.
And we all get our turn needing others if we're lucky to live long enough!
I find new reasons to love this community more and more everyday. Greg and Nancy thank you for being such pure souls this world desperately needs. Thank you for sharing
It's pretty awesome, glad you're here with us!!! 💖
You have a cool name :)
@@WeNeedMorePositivityInTheWorld Thanks, it's fun! 😊
What a lovely couple! Very enjoyable to hear their story, and I wish them many more happy years together.
Laughter is the best medicine and the key to a great marriage.
I also have ms and to see them joke and laugh together reminds me of me and my husband and how he looks after me and how we make the best outta it.
It's like a secret club 😊💖
So glad the comments are back so we can show our appreciation and love!
This story was so heartwarming, the two of them clearly love each other so much!!! ❤️ So glad comments are back too!! :)
Hello there👋👋. How are you doing today?hope you had a nice day?GOD BLESS YOU!!!
I love them so much ❤️❤️
I loved the part where he teased Chris!! 😂 I had the best time watching them. Their love is so pure and they’re the sweetest. I wish them the best
What a lovely couple!
They are hilarious! 🥰🥰🥰 that’s beautiful