Thank you for sharing your journey. You (and Selma Blair) have given me the courage to share mine as well. The more I learn, the more I realize MS has been a major part of my life for an extremely long time. But we are warriors! We will adapt and continue to live life to the best of our ability.
As a psychologist, I understand all of your pain.., the depth of disease. I pray to God to give courage & strength to all of them who are suffering. You are strong enough dear people.
Saying "I understand" is really unprofessional for a psychologist. Word it better, "I can only imagine" since you don't have MS yourself. I wouldn't want to sit with a psychologist with that type of mentality or reckless wording.
I'm glad the two previous replies see through the bullshit of your comment. You can be familiar with the pain, perhaps through observing/working with other clients, but you cannot truly understand individual pain from their point of view. Seriously, wtf were you thinking by flexing you were a psychologist. "I understand all of your pain". Wtf??
100% @krux I agree. As a person who suffers from these symptoms AND goes to therapy with a real professional, her words that she “understands” deeply is insulting to me, given she has no experiential lived reality. Thank you for speaking the truth. It is unhealthy when people misrepresent themselves this way - it makes creating safe spaces for others even more difficult
Wow 20 lesions, you poor guy! I'm recently diagnosed but only had 3. My attack/relapse was very different from yours. Tingling from the neck down then paralyzed on the right side for just over a week. I see a lot of people arguing in the comments. This disease is individual for every single person. It is not a competition. If anything we need to ban together. Thank you for sharing, it helps hearing peoples stories.
yes def gotta stick together! My first doc said he thought only young girls got MS, i said NEXT! I only had 3 lesions also, my neuro said i cant have MS cuz i only had 3 LOL. I said i know MS confirmed ppl with NO lesions. I try not to get jaded but damn ive had my share of bad docs... After 7 MRIs, 2 LPs I STILL havnt got an official DX, after years of living with it there isnt anything else it could be....recently ive heard very interesting things like ambien (the sleeping pill) for dramatic improvements in brain injury, stroke patients etc...i wonder if MS ppl can benefit?! another one is QUALITY coconut oil for cog fog & fatigue, i like it. I take 1 tablespoon a day with food or in hot drink, some ppl say the saturated fat isnt good but why not cut down on other fat (like crisco, lard, butter) when cooking, use better for you coconut oil instead.... 5K to 10K a day Vit D (infused WITH Vit K) with biggest meal of the day, make sure you eat calcium rich foods daily as it helps Vit D absorb. these are just a few things to get you curious to research for yourself
Daniel im assuming your asking me that question... No i wasnt paralyzed on my whole left side. I had left head / face numbness tingly, my left foot is very numb & sensitive to stimulus. I have various degrees of numbness in about 40% of my body btw. time to take coconut oil i feel fatigue coming on... lol
I didn't know the exact symptoms of MS till I saw Selma Blair talking about them. I am a huge fan of hers and seeing her go through such a debilitating disease and fighting it, just impacted me hugely. My heart goes to everyone suffering from this disease. I admire also all the people coming out and posting these videos and sharing their stories to create awareness and more understanding on this. I hope one day there will be a cure. Blessings to all
Keldor Miro surprisingly she did great for a long time. She was in a wheel chair and luckily she could afford a nice van and everything to get around. We were very lucky to have her around for all those years. She was the best grandma ever!
@@DStabs720 Such a blessing for many other Grama's and people to hear this. You are loved and special still, and so very important to your loved one's. ❤
Hello everyone best of luck fighting against ms I got diagnosed when I was 19 I had complete paralyzes on the left side of my body I couldn't speak either and I had optic neurits all in one attack I'm 22 now starting treatment soon relapses have been on and off affecting walking speech and vision . However I'M currently studying two degrees and working part time , we are all in this together and I believe that by sharing our stories we are encouraging each other to keep going . Healthy diets everyone without saturated fats and excerise . Keep positive 😉
hey, I just wanted to let you know that, after watching your "my MS story video," I finally got off my a#% and posted my own. so thanks for the inspiration! :)
+metaspencer Hey metaspencer! I'm very happy my video incited you to make your own. I think everyone with MS, no matter how different, can find something to relate to in these experiences and that makes us feel less alone. Keep it up!
@@LifeofSebMS thanks, Seb, in my vision, i have also stories. I have a Chanel Sons of Anarchy, with stories about Marilyn Manson, rock singer. 👍👍👍👍Keep on touch
I too have MS. After years of various symptoms I was finally diagnosed in 1998. I don't have any medication but have a vit b12 injection every 3 months. I have a positive attitude, even when I am having a bad time. It's holistic and I will not let it rule me....well, not my mind anyway. Good luck to you my man.....🙂
Hi, I was recently diagnosed with secondary progressive ms and I am not sure about medications. Did you follow any specific diet? Are you still without any medications now? Thank you.
My mum had ms for about 25 years had the b12 injections every 3 months went into nursing home January 2020 because all mobility had gone but happy in there she was getting the best care for her.then COVID took her on 1st November 2020 she was only diagnosed with Covid on the 24th of October so quickly.but my point is some people can live a long time after being diagnosed with ms 💕
Hi, I was recently diagnosed with MS and I did some research on alot of things , and when I did my research on the list of medications I could try , I am very nervous to start on a medication because of some of the harsh side effects, and when my blood tests came back everything was fine except my vitamin D3 was very low and I also had gotten covid 19 which sparked a trigger in my immune system, and then I did some more research and it saids that having low vitamin D3 can trigger an Ms attack and getting a unknown virus can trigger an Ms attack and stress can be a trigger and eating unhealthy can trigger for an Ms attack , so I decided that for a year im going to eat really healthy and get as much sunlight and eat alot of rich foods in vitamin D3 and exercise because exercise is really good for the body to avoid an Ms attack and naturally you body wants to heal itself but if you have alot of toxins and other issues your body has to fight off first then the body cant heal what you want it to heal, and in that year if doing my very best of staying healthy doesn't work and in my MRI tests shows that I developed more lesions then I will consider taking an medication, alot of those medications have liver side effects and possibly brain infection side effects that can cause death and I seen alot of things that saids that the medications could be used for chemo for cancer which is very strong to take and the medications make your immune system very weak which can be scary and some of the medications that you can take can make your Ms worse if you got off of it so that's another concern and the doctors want to say that you'll be fine but my doctor wanted me to do a medication that can cause an brain infection and he didn't tell me that side effect the pharmacy had told me about it so I would say make sure you do your research as well , and the doctors want to say that they don't know what causes Ms but I have a very strong feeling that it's from not being healthy , having alot of inflammation in your body can cause Ms triggers and can cause other diseases as well , alot of the process foods that people eat have alot of chemicals in the food that your liver and body have to detox from it and if you eat constant process food your liver and body can go on overload and act out of wack , your hormones act out of wack and your immune system will act out of wack as well, vitamin D3 is probably the most important vitamin to have and make sure it's not low ever , I understand that I could put myself in risk for a year by doing the holistic porch but I would like to at least try that way first and if I know that I tryed my very best to be healthy and if it still doesn't work then I guess I will try a medication.
Hope you're doing well now. I've had MS for over 25 years, no disease modifying drugs in the past ten years. Stay strong and keep a positive mental attitude. x
Hi, what made you stop taking the medication? I was diagnosed 6 years ago but think I've had MS for longer. I refused all treatment, I'm just a very holistic person, I prefer a good diet and yoga. What have you found helps?
@Anu bala hi, my balance is off but I'm working on it with tai chi, my legs get tired when walking uphill, I have a neurogenic bladder but seem to manage 90% of the time.
Hey sweetheart, I am 46 and have lived with lupus all my life . I now have ms because lupus attacked my Milan sheath . It's hard some days and I struggle walking these days and my eye sight is very poor . Never give up hope and faith because that is what gets us through the hard days. Stay strong and keep blogging I am listening xoxoxo molly from Sydney Australia
Kudos for the video content! Sorry for chiming in, I would appreciate your initial thoughts. Have you heard the talk about - Liyaraah Sclerosis Redemption (should be on google have a look)? It is an awesome one off product for overcoming the symptoms of multiple sclerosis minus the normal expense. Ive heard some pretty good things about it and my best friend Jordan after a lifetime of fighting got astronomical success with it.
Wow, your bravery gives me chills. I’m still learning to accept MS and the way it will affect my life, and yet, I persist on living my best life! I hope you will too!
My mom was diagnosed when I was in the 6th grade.. I’m 32 yrs old now and still blessed to have my mom in our lives. I do not wish this on my worst enemy, hate this disease
MS does not cause death... your mum will be fine. We need to stop this Stigma of MS being this horrible deadly disease. It is not. The treatments available now are amazing.
My Daughter got diagnosed with MS today, She had double vision. Continuous hiccups, pain in legs. We r treating her. Thnx for sharing your story. Stay Strong. Miracles happen you will be fine in one day.
Thank You...I'm starting my journey, I noticed symptoms about a years ago. The constant pain, especially my back, legs, arms and neck, headaches, vision changes, my balance, and this uncontrollable sleepiness and walking slowly with a cane now...It's shameful 2 doctors thought I was faking! Going to see specialist in major city next week.
it’s bad really bad when ppl does that. sorry to hear this hope you’d found the better doctors and got better. I know this I went through the same situations.
This is the 2nd spinal tap scare story I've encountered in these videos. I had one when I was 6, and it was nothing. That was 60 years ago. Now, I can be grateful.
You're a beautiful man...I've just been diagnosed in the hospital in the last few days. Woke up to a dragging foot and needing to use a walking stick. MS is not fun. Hang in there and stay prayed up, Doll! Im too afraid to trust pharmaceuticals due to side effects. I'm going to try a plant based diet and pray to God for healing. Bless you, Seb
I am really sorry you were treated like a specimen not a person,then spinal uuuweee and more tests!!!!I have messed up immune system,No spinal but tests and Drs.&tests,ugh.finally after yrs.got lupus dianosis,Rheum.arth.osteodegenerative arth.thyroid issues,now after being not believed I thot had Parkinson's disease ,My.rheum.sending me back to neurologist cause thinks I do!!My dad died in 2000 from it.i got symptoms shortly after that,but not believed,tests don't always show,but was ruled out what u have frm.mri.i have had 4 @20yrs.then&suddenly I can't get up good walk good sleep good memory leaving me or can't say correct words.and can't take steroids like prednisone so I take plaquenil. Now I'm 62,so told my daughter no more tests&prob.no more added meds.but I'd let them officially diagnosed me to help with care&disability. I live with her.i have strong faith& days are sometimes long.hope you the same.....faith&hope.♥️
Anonymous Girl plant based diet and low sat fat kept people in a Canadian study symptom free for over 30years!!! I was dx’ed 12 tears ago - I have no symptoms. Look up the study!!!
@@1life857 Disgusting. You should crawl back under whatever rock you've been living under. Plants are the most nutritious and healing foods on the planet. Let me guess, you think keto is conducive to health. It's not like Atkins died of a heart attack, or that Baker's bloodtests are disastrous. I'm afraid the only way you've woken up is by waking in another dream. You're in deep, deep sleep.
you are an amazing person im 17 and have ms it is verry hard living with it but it was good to hear your story becouse ms has taken me out of school and made me very depressed thanks for sharing its verry helpful
白龍布萊克 how are you going with it? I am turning 17 and have had symptoms for years and am getting tested after this covid crap is over... I am terrified.
taytastrophe ou god I have a whole list. Mainly, major hip and back pain, like I can’t lay down. Extreme fatigue, I can sleep 17 hours and still need to lay down for a bit. Really bad heat intolerance- especially during summer and warmer weather I can’t go out. I also lose a lot of feeling when typing on my phone and my hands tingle a lot. My legs are also really restless and I get these major spasms on my right leg always under my knee, where I feel if I move I will start seizing ( they’re bad haha ). I pull muscles 24/7 and always am in some sort of pain. I also have a lot of little symptoms like rapid eye movement and vision loss sometimes, aswell as slurred speech etc etc. frankly I don’t think there is a single symptom of MS I don’t have.
@@shayrose7705 omgg I'm so sorry to hear that too. I hope u you will get tested after this quarantine. There are also other people on UA-cam who share their experiences and struggles with MS. Some of them said that they had early and subtle symptoms before but they ignored it. Then, 5 years or 3 years after the symptoms will come back and become more palpable according to them. Haysss
I suffer from MS too :) Thank you for sharing with us your story Seb! :) It's been 10 years that i live with MS and everything was fine till i started suffering from unbelievable headaches, migraines and ear pain 1 year ago. I quitted my job, my social life, my personal life but not because I was depressed. I'm really in much pain so i can't do anything. But i do believe that everything is going to be alright for all of us. We have to be patient and strong physically n mostly psychologically :) Greetings from Greece :)
What kinda of a person puts a dislike?. You are extremely strong and brave. I have a brain disorder. It's not MS but very similar. You are amazing to have carried on functioning. Inspirational x
kay w. you are very lucky !! my spinal tap was horrible. the Dr couldn't get the needle in the right spot so they sent me to x-ray and another Dr did it. my right leg started flopping around. the pain was excruciating. never again...
Lucky! For me they didnt get it right and my foot kicked by it self, and it came blood out of the spinal test.. i asked for something so i could relax because i had to take a new one.. but they didnt give me anything (they are very strict in norway when it comes to valium ecs, so the simply didnt have it where i was).. so they just had to take a new test right afterwards. I was 24 and so scared. Felt the same as when i gave birth without medication.
My first was painless followed by headaches. My second, they were trying to find why I lost muscle on my right arm, hurt like hell but hardly any headaches.
My spinal tap was virtually painless. They gave me a mild sedation and anesthesia. I couldn't feel a thing and was surprised it took only around 15 minutes.
I'm 16 and was diagnosed with MS just a month ago, after experiencing 3 months of symptoms. It's very unnerving knowing that you have to live with a chronic disease, but I'm staying strong! Hopes and prayers for everybody else out there suffering with this - you are not alone!
My grandfather has had MS since before I was born (I'm 21), and he's still going strong even though he has his struggles. Now, they are thinking I might have MS, which is a bit scary, but I know I can get through whatever life throws at me!
I know that you posted this year's ago, I identify with many of your symptoms and can empathize. MS is a thief that steals pieces of us, you seem like such a genuine sincerely sweet young man. I'm really hoping you go into remission, and have peace. *Big Hugs* to you, your Canadian sister 💕
I want to tell you and everyone that was so brave to tell your truth about MS. I am more inspired to tell my truth about MS. for the last 3years I have been so ashamed of my diagnosis. I've cried many days because I felt so alone and voiceless. I am a mother to 2 boys and to see my children worry about me makes me feel less than a mother. Every weekend were our playdates game days but being depended on a Walker breaks my heart. Hearing my children tell me I'm still as perfect as I was when God created me melts my heart. Continue to keep me in prayers and I will pray for my entire MS family❤
OMG!! I suffer from this debilitating disease as well! I understand your pain and frustration. It’s awful! But all we can do is TRY and be strong. Take care❤️
First off - God bless you. You’re very brave to make a video describing your ordeals with MS. Very brave. You should be commended. You’re doing the world a lot of good in showing people that a handsome young man such as yourself can be afflicted with MS. You’re a very courageous man and your upbeat attitude and humor shine quite bright. It sounds like you had Trigeminal nerve involvement (specifically v2 and v3 branches). If you ever come down with Trigeminal Neuralgia (TN), I highly recommend you contact Dr. Ronald Brisman, a New York City based doctor. Brisman is one of the world’s foremost experts on the disease and has arguably the highest success rate in treating it. God bless you my friend. Given your indomitable spirit, I predict a life filled with success and happiness for you. :)
Electric Eye Slide I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
Thank you. You have made me feel 'less scared' ..... perhaps even 'less alone' ......... I was diagnosed just yesterday. A whole new chapter for me .... though I have been living with MS for a few years .... I have not known. Until that diagnosis yesterday. I hope your tomorrows are better than your todays. xx
Sue Randle I've been diagnosed today after all scans and I've got a similar symptoms.. I hope I will stay strong enough to fight MS back... wish u all the same xxx
May God heal you!! We have a friend who was diagnosed 20 years ago and he was on expensive medication for years, and now the Dr. tells him that he no longer has MS. !!
I have Ms as well couldn't walk for 6 months. I was ready to overdose and die. My oldest daughter who was in college asked me to get rid of all pharmaceutical drugs and try natural medicine. I went to my grandmother who is 110 today. She's Oneida Indian she was able to help educate me on plants n herbs. 7 years later and I've haven't had any more problems with m.s. Thanks for sharing your journey. I wish you the best and stay healthy.
I can’t thank you enough for this!!!! My middle school sweetheart just reached out to me and asked if we could just do the wild relationship because he doesn’t have much time left and has always been in love with me. He explained he has MS and just wants to live out the end with the woman he’s always loved. I’ve always loved him but I didn’t know what to expect and wanted to know what he was going through because a really private and humble person. Thank you so much for being so authentic and open with your journey. Seriously...thank you. I know this has been YEARS since you’ve posted it. I hope in all hopes of hope you’re doing well.
My father has MS, wheel-chair bound, I'm going through the diagnoses stage at the moment. I've had a couple of attacks and my balance and vision, along with brain fog and shooting pains, sensations etc. Seems each episode leaves a different problem behind. Where-as my dad, has terrible ataxia. Really is different for everyone. Thank's for sharing, it helps people who may not otherwise have known what thier suffering could be, and prompt a visit to the DR.
You are so strong I'm on my journey for MS diagnosis but here on the UK they take so long. Hope you're doing fine with no more attacks, I know they can be awful. It's been suspected MS to me, excuse my english, pronunciation, so I'm waiting to see my doctor to see what she says. Hope that if indeed is MS, I can get it diagnosed and treated sooner rather than later 'cause I'm stuttering, numbness and tingling on my legs and arms as well as stiff legs, balance and coordination problems, and the other day I was walking with my friends and my right foot kept dropping and making me almost fall each time. Very embarrassing. I've been living with MS, not 100% confirmed, for about 8 years or so. Keep strong. Your support would mean very much to me, all the best and hope you're doing fine :)
XxThePianist & ViolinistxX I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
Thanks for the people leaving sweet comments. this has been a year ago I posted here I will certainly follow you hehe :p :) I got into day vlogging so u can check that out and I did some vlogs on explaining what's happening now. which I'll upload the rest in due time xP :)
Hi, Sab, your story is very similar to mine and I had almost the same attaches. My type of MS is also RR and because of my 27 lesions my doctors in Spain directly gave me gylenia which I've been taking for 2yrs now.Stay strong.
MissBellaaa1 hi i m also having gilenya foe last 6 mnth.how u doing n how long u have to continue?? it's very costly n not affordable without insurance.
You did such a great job explaining your symptom evolution, thank you. It is very scary and I have had a number of those you've mentioned and have just been to my doctor where I'm not getting much help at all and it's so frustrating. The way you describe the numbness in your face is "exactly" what I've experienced and the vision loss. ...I think the pandemic has really turned our medical system upside down and my doc seems to prefer to believe I'm not in the typical age group.?! ....but I'm not convinced. I even had a salty tongue for six weeks. Sigh.... The very best wishes to you. You seem like an exceptional person.
Thank you for sharing Jane! Yeah the pandemic has really messed things up… the medical system and OUR system. I’m really sorry you need to go through this. Focus on following a healthy, anti-inflammatory diet for now. All the best to you 🧡💪🏻
I was diagnosed at 15, my MS was so extreme they put me on Prednisone(6 months) and ran tests for about a week. My spinal tap was the single worst experience of my life. I was immediately put on Tysabri and I have had a semi normal life for the past 7 years.
What can I say. I got diagnosed, MS a year ago. But the body challenges I was experiencing, were way older than I thought. Almost 8 years before my diagnosis and subsequent treatment. I can totally relate to your situation my friend. I get emotional when I see others jogging at the park, knowing I was an athlete once and can't do this anymore. And recently my wife left me because of my condition was the worst of all. But I know there is hope and there is nothing you can't achieve. I wish you good health and more power my friend. Stay positive and keep smiling 🙂 Would love to meet you one day 🙏
Hi, I've been under Avonex for 14 years and the neurologist also gave me paracetamol so I don't feel the side effects of the treatment, I feel so surprised your didn't prescribe you such a simple thing to make your life easier. Now, I'll switch to Gylenia because my number of flares increased so I hope it will work well, I'll check your other videos to see if you talk about it. Another man with MS
Thank you for sharing ... this is heart breaking to hear hope to know how are you doing recently since I know it’s been 3 years so far ... stay strong! Your life is worth living and you have purpose with or without MS P.S. you have the most biggest beautiful eyes! (Hope that made you smile)
my symptoms were not like yours but am being diagnosed with regard to MS (my MRI results next week); my symptoms have accompanied me a couple of years now, and in the last year almost every day included some of those: fatigue beyond comprehension, burning and stabbing sensations all over the body including face and the brain itself, tingling, severe pains of different kind in every possible place, severe migraines, brain fog, problems with speech, dyslexic issues, not to mention mood swings and depressive attitude; I was being treated for Lyme for almost a year, but when the specialist told me I was Lyme-free, I was puzzled cause all of the symptoms still accompanied me (apart from migraines); lately I found out about dr Walhs diet and have been trying to stick to her diet - with great results so far; today is the first day without any symptoms whatsoever... even if the MS would come up positive on the test, I can see that I also have some control over my body; I've heard about people who already had lessions in their brain due to MS but when they changed their diet, the symptoms went away; I really belief we may help ourselves so don't give up hope
Thank you so much for taking the time out to make this video for us. I'm so afraid I'm starting symptoms of MS myself. I hope you are doing ok. Again thanks.
I fell 400 ft 22 yes ago. No one ever mentioned the possibility of aquiring MS. Thank you for your story!! I had many a ha moments listening to you. Also, immunotherapy (chemo) for melanoma I believe sped this up. Best wishes to u xo
Just watching your story. It’s so helpful to hear you speak your story. I started with vision loss, having optic neuritis. I had blood work done, home heath nurse giving me steroids, and yes a spinal tap with also was the most horrendous experience. That and my MRI came back normal. Then I had episodes of random muscle spasms that would last days, seizure like episodes, fatigue where I can’t keep my eyes open no matter how hard I try and it feels like I’m in a haze. I’ve also had several numbness episodes in one leg. I’ve also developed migraines so bad that I can’t move and most recently, memory loss and trouble with multitasking and now I stutter in my speech when trying to say a word. After a year and a half I had a new MRI done where they found T2 flair hyperintensities in the periventricular region of my brain, which was not there prior and is one of the more common areas that MS attacks. And yet my doctor says I’m fine.... hopefully I get some answers soon. ❤️
I remember my spinal tap, I got to watch ,the nurses held several mirrors angled so can see.it was cool.the needle was huge.i didn't know there was liquid in your spine. its feels really good hearing other people's stories. it reminds you that you are not the only one. KEEP FIGHTING WARRIORS!!! KEEP MOVING FORWARD!
I had 1 , 2 weeks ago. It is cool. Yeah, it's not pleasant at all, but you get the results you need. I was shown the fluids and saw them as crystalline light fluids. Amazing.
an MSer here from 2005..keep strong!! I also remember at my first spinal tap I was screming and 4 people were trying to keep my body stable for 45 minutes...Then I would feel such an awful dizziness for more than a month..With Tysabri I would feel so fine for 3 years and then with Gilenya for 5,5 years...but when my body got really got used to it and it didn't have anything more to offer...I wish u the best mate!
Amber Owens hi is your mom on all kinds of meds? Wow that’s a long time. God Bless. I’m starting to notice strange symptoms n I’m scared crazy. Just starting research. Omg.
@@claramarone5510 She is typically takes steroids during a relapse and otherwise takes shots in her legs nightly. MS is different for everyone but it can be managed if you take care of yourself. Best of luck to you!
Thanks for sharing your story, you are a strong person. I have recently been diagnosed with MS at 22 and it is nice there is information and support out there. I hope you continue to live a good healthy life
last year i got diagnosed with MS. I had vision loss and i was really shocked as I was 15 and i didn't knew something like this can also happen to me at such a age
I will keep you in my prayers. Thanks for posting your story, l hope you can be as symptom free as possible, for many, many more years. May God bless you.
I feel you bro! The condition dare i say sucks! One of the things i constantly remind myself is "things could be worse" but never do i even attempt to imagine how so... Subscribed
I was just diagnosed and i found your story very comforting i have been telling my dr for 3 years something is wrong with my balance and my feet going numb, finally i know i am not crazy thank you
I'm going through testing now. I'm seeing a neuro at an MS clinic. When I have another flare up he's doing a spinal tap. He keeps saying it isn't MS but insists I continue to be monitored 'in case it is MS' I know it's MS but I also know it takes a while to be diagnosed. I have lesions on brain MRI but nothing on the spine yet. I'm living my life to the fullest right now. Thanks for sharing your story.
My younger brother has just been diagnosed. I am devastated for him as he has a baby who is 6m. Thanks for sharing your story. I'm panicking about the future but can't imagine what he must be going through. How does someone with MS stay positive?
I have a friend that was diagnosed about 15 years ago and she lives a full life! MS can be controlled with medicine. It's come a long way in the medical world. Think positive for your brother!
Big life changes stressers bring out lurking diseases, VERY important for MS ppl not to stress!!!!!!! you can adopt a more zen outlook, that helps. years ago i had a friend whos mom had a nervous breakdown from family, work etc...stress. Her doc said try not to worry bout things you cant control, adopt a go with the flow tude.... It made a HUGE change in her whole life including possitve health changes... heres a few alternative things that may help....recently ive heard very interesting things like ambien (the sleeping pill) for dramatic improvements in brain injury, stroke patients etc...i wonder if MS ppl can benefit?! another one is QUALITY coconut oil for cog fog & fatigue, i like it. I take 1 tablespoon a day with food or in hot drink, some ppl say the saturated fat isnt good but why not cut down on other fat (like crisco, lard, butter) when cooking, use better for you coconut oil instead.... 5K to 10K a day Vit D (infused WITH Vit K) with biggest meal of the day, make sure you eat calcium rich foods daily as it helps Vit D absorb. these are just a few things to get you curious to research for yourself
I was dxd 8 years ago.. it's quite unpredictable.. but your best bet is 1. Stay active. At least keep stretching 2. Stay on medication 3. As for diet.. at least avoid gluten, milk and lentils (paleo).
Thank you for sharing. I am undiagnosed at present . But I have some symptoms... I don't know what it is but ms is what a friend of mine who works in a hospital has suggested. You make it seem less scarry. Thank you.
My mom has been diagnosed with ms before eleven years. When my family announced me that she had this dissease i lose my world. But after months I learned how to help my mom. I become "friend" with this and in my country we have the sentence whatever you dont kill you, make you powerful. I hope all people in the word and more specific in my country face this dissease as health issue and not as stigma Many kisses from Greece
Thank you for sharing your story Seb. I've been experiencing a tingling on my left side of my face, my hands feel like they go numb. I wake up with a dead arm. My left foot tingles. My hand/finger joints ache, as do my knees, hips and back. You mentioned itching. My calves itch too. The fatigue...I've spent the best part of the last 4 years lying on my bed. I've spent some time over the last few days trying to work out what's wrong and if I should see a doctor.
@@LifeofSebMS thank you for your reply. I really appreciate it. I'll make an appointment tomorrow. I'm just scared and don't want to be a hypochondriac
& this made me cry because i had so much of these in a year! one after the other. knowing it that i have MS kills more then having the pain. MS is a mess! i count the days. 2years & the world swinged upside down! never let your strength get low! what i learnt so far.
My Dr suspects MS so I’m scheduled for an MRI soon. I have really bad memory problems, a difficult time finding words, but mostly I have bladder retention problems which has been an issue for almost a decade. Thanks for sharing your story! Wish me luck!
My heart reaches out for you and your family. Thank you for sharing your personal stody and a glimpse into Life with MS. May Allah bless you all. Ameen.
My mother got the absolute worst kind of this disease in the 80’s, when few even knew what it was. She died at home, almost 20 years ago when I was very young, and it traumatized me for years. Fortunately, nowadays there are good treatments and medication for this disease, the prognosis is a lot better, and you can live a fruitful life.
Thankyou for sharing your journey. My son is showing some signs of MS, mostly co-ordination and balance. MRI didn't raise any alarm, tingling and numbness he has never mentioned, or vision problems. So I am relieved but still cautious his symptoms are due to birth trauma. The information in your video has been priceless. I will watch more.
Your video clearly explained your symptoms, your diagnosis too finally your treatment. I have not been diagnosed yet but clearly I'm experiencing many of your same symptoms. Mine started about 5 years ago with a tingling sensation around my right ear until today where I'm having vision issues in my right eye and tingling sensation around my nose and lips. I also have balance issues. I think it's time to make another appointment to finally get a diagnosis.
Hi I am infected with ms I would like to talk about what is going on in my head with someone who has ms and lives his life normally .... we are stronger with supporting each other
I too have MS. I know how hard it is. I have lived with my disease since 2002. Obviously gets worse with time. I have a lot of the symptoms unfortunately but I won't give up easily. I wish you well and hope you are able to keep your body holding on as long as you can.
i'm a 2nd going on 3rd year medical student in America studying for my board 1 exam before starting rotations in hospital this June of 2018, and i want to thank you for sharing your story. I used it to better learn about multiple sclerosis-- to associate a face and story with the disease. The detailed info you offered--- initial symptoms, medications used, adverse effects-- was all helpful; I even watched your video with my textbook open, so as to reference the medications you've used and the symptoms you've experienced. Now, in the future, when someone walks in with early symptoms as you described, I hope to catch it early in its course. Thanks and best of luck!
We need to create a database of various treatments, including the Wahls protocol to see the different responses. Does anyone know of such a database. The only thing seems to be forums where people discuss their treatments. Thx.
@@gartnsu1 My wife has been doing Wahls for at least 1.5 years now. I can tell you as her husband that is HAS WORKED. She's been losing too much weight, but the pain in her hands and legs have dropped off tremendously. Cutting out the inflammatory foods has done wonders. I would suggest this to anyone considering it. She eats nothing but greens and good cuts of meat now. We have discovered a wide variety of recipes that are great. When I ask her if it was worth it, she almost starts laughing.
Thanks so much for sharing your story. I've just experienced an episode of double vision where my eyes weren't in alignment (diplopia) and my balance was off during a busy 12 and a half hour night shift as a RN. I had a CT- showed nothing, MRI- showed abnormalities. I was diagnosed with clinically isolated syndrome and took it quite well although feel guilty for taking time off work, now the reality of what might happen is sinking in so I'm stocking up on all the relevant vitamins/ supplements and awaiting another neuro appointment for spinal imaging. You are inspirational and a reminder that nothing is insurmountable!
![[UA] Eternal Fire проти NAVI | EPL Season 20 Malta](http://i.ytimg.com/vi/chvlsDygrZM/mqdefault.jpg)
Thank you for sharing your journey. You (and Selma Blair) have given me the courage to share mine as well. The more I learn, the more I realize MS has been a major part of my life for an extremely long time. But we are warriors! We will adapt and continue to live life to the best of our ability.
Thank you for your comment! And indeed, I want to show the world that our lives still carry on however difficult we may have it!
Yes I have had Ms for almost twenty years now
@@dianeamaral8151are you mobile? I'm not diagnosed with anything. I just have crazy tingling that doesn't go away.
As a psychologist, I understand all of your pain.., the depth of disease. I pray to God to give courage & strength to all of them who are suffering. You are strong enough dear people.
Shruti, you don’t understand unless you have multiple sclerosis. I think you want attention. You aren’t powerful and special.
Saying "I understand" is really unprofessional for a psychologist. Word it better, "I can only imagine" since you don't have MS yourself. I wouldn't want to sit with a psychologist with that type of mentality or reckless wording.
I'm glad the two previous replies see through the bullshit of your comment.
You can be familiar with the pain, perhaps through observing/working with other clients, but you cannot truly understand individual pain from their point of view.
Seriously, wtf were you thinking by flexing you were a psychologist. "I understand all of your pain".
Wtf??
A psychologist who chats wishes to an invisible sky fairy who gives cancer to kids is not someone who'd I'd let anywhere neat my ailment lol
100% @krux I agree. As a person who suffers from these symptoms AND goes to therapy with a real professional, her words that she “understands” deeply is insulting to me, given she has no experiential lived reality. Thank you for speaking the truth. It is unhealthy when people misrepresent themselves this way - it makes creating safe spaces for others even more difficult
I also have MS. Stay strong 💪
TaijuannaJaye I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
How are you feeling taijuanna? You're on any medication?
Hi taijuanna hope you are well and doing better?
i do to
@@BMax-no9mg 😍
Wow 20 lesions, you poor guy! I'm recently diagnosed but only had 3. My attack/relapse was very different from yours. Tingling from the neck down then paralyzed on the right side for just over a week. I see a lot of people arguing in the comments. This disease is individual for every single person. It is not a competition. If anything we need to ban together. Thank you for sharing, it helps hearing peoples stories.
yes def gotta stick together! My first doc said he thought only young girls got MS, i said NEXT! I only had 3 lesions also, my neuro said i cant have MS cuz i only had 3 LOL. I said i know MS confirmed ppl with NO lesions. I try not to get jaded but damn ive had my share of bad docs... After 7 MRIs, 2 LPs I STILL havnt got an official DX, after years of living with it there isnt anything else it could be....recently ive heard very interesting things like ambien (the sleeping
pill) for dramatic improvements in brain injury, stroke patients etc...i
wonder if MS ppl can benefit?! another one is QUALITY coconut oil for
cog fog & fatigue, i like it. I take 1 tablespoon a day with food or
in hot drink, some ppl say the saturated fat isnt good but why not cut
down on other fat (like crisco, lard, butter) when cooking, use better
for you coconut oil instead.... 5K to 10K a day Vit D (infused WITH Vit
K) with biggest meal of the day, make sure you eat calcium rich foods
daily as it helps Vit D absorb. these are just a few things to get you
curious to research for yourself
Sleekcartim .sleekcartim
?????
If you don't mind me asking, were completely paralysed on your left side for a week?
Daniel im assuming your asking me that question... No i wasnt paralyzed on my whole left side. I had left head / face numbness tingly, my left foot is very numb & sensitive to stimulus. I have various degrees of numbness in about 40% of my body btw. time to take coconut oil i feel fatigue coming on... lol
I didn't know the exact symptoms of MS till I saw Selma Blair talking about them. I am a huge fan of hers and seeing her go through such a debilitating disease and fighting it, just impacted me hugely. My heart goes to everyone suffering from this disease. I admire also all the people coming out and posting these videos and sharing their stories to create awareness and more understanding on this. I hope one day there will be a cure. Blessings to all
My grandma lived with MS for 50 years
My mother had it for about 16 years and died a miserable death from it at the age of 44. The most debilitating thing I have ever seen.
Keldor Miro surprisingly she did great for a long time. She was in a wheel chair and luckily she could afford a nice van and everything to get around. We were very lucky to have her around for all those years. She was the best grandma ever!
Let's hope if it's a correct diagnosis ..its a treatable situation.
@@DStabs720 Such a blessing for many other Grama's and people to hear this. You are loved and special still, and so very important to your loved one's. ❤
Hello everyone best of luck fighting against ms I got diagnosed when I was 19 I had complete paralyzes on the left side of my body I couldn't speak either and I had optic neurits all in one attack I'm 22 now starting treatment soon relapses have been on and off affecting walking speech and vision . However I'M currently studying two degrees and working part time , we are all in this together and I believe that by sharing our stories we are encouraging each other to keep going . Healthy diets everyone without saturated fats and excerise . Keep positive 😉
hey, I just wanted to let you know that, after watching your "my MS story video," I finally got off my a#% and posted my own. so thanks for the inspiration! :)
+metaspencer Hey metaspencer! I'm very happy my video incited you to make your own. I think everyone with MS, no matter how different, can find something to relate to in these experiences and that makes us feel less alone. Keep it up!
@@LifeofSebMS thanks, Seb, in my vision, i have also stories. I have a Chanel Sons of Anarchy, with stories about Marilyn Manson, rock singer. 👍👍👍👍Keep on touch
have you tried pine bark?
I will help cure multiple sclerosis! megalayner100@gmail.com
@Storm Media good stuff!
I too have MS. After years of various symptoms I was finally diagnosed in 1998. I don't have any medication but have a vit b12 injection every 3 months. I have a positive attitude, even when I am having a bad time. It's holistic and I will not let it rule me....well, not my mind anyway. Good luck to you my man.....🙂
What r your symptoms do your skin burns
Hi, I was recently diagnosed with secondary progressive ms and I am not sure about medications. Did you follow any specific diet? Are you still without any medications now? Thank you.
My mum had ms for about 25 years had the b12 injections every 3 months went into nursing home January 2020 because all mobility had gone but happy in there she was getting the best care for her.then COVID took her on 1st November 2020 she was only diagnosed with Covid on the 24th of October so quickly.but my point is some people can live a long time after being diagnosed with ms 💕
Hi, I was recently diagnosed with MS and I did some research on alot of things , and when I did my research on the list of medications I could try , I am very nervous to start on a medication because of some of the harsh side effects, and when my blood tests came back everything was fine except my vitamin D3 was very low and I also had gotten covid 19 which sparked a trigger in my immune system, and then I did some more research and it saids that having low vitamin D3 can trigger an Ms attack and getting a unknown virus can trigger an Ms attack and stress can be a trigger and eating unhealthy can trigger for an Ms attack , so I decided that for a year im going to eat really healthy and get as much sunlight and eat alot of rich foods in vitamin D3 and exercise because exercise is really good for the body to avoid an Ms attack and naturally you body wants to heal itself but if you have alot of toxins and other issues your body has to fight off first then the body cant heal what you want it to heal, and in that year if doing my very best of staying healthy doesn't work and in my MRI tests shows that I developed more lesions then I will consider taking an medication, alot of those medications have liver side effects and possibly brain infection side effects that can cause death and I seen alot of things that saids that the medications could be used for chemo for cancer which is very strong to take and the medications make your immune system very weak which can be scary and some of the medications that you can take can make your Ms worse if you got off of it so that's another concern and the doctors want to say that you'll be fine but my doctor wanted me to do a medication that can cause an brain infection and he didn't tell me that side effect the pharmacy had told me about it so I would say make sure you do your research as well , and the doctors want to say that they don't know what causes Ms but I have a very strong feeling that it's from not being healthy , having alot of inflammation in your body can cause Ms triggers and can cause other diseases as well , alot of the process foods that people eat have alot of chemicals in the food that your liver and body have to detox from it and if you eat constant process food your liver and body can go on overload and act out of wack , your hormones act out of wack and your immune system will act out of wack as well, vitamin D3 is probably the most important vitamin to have and make sure it's not low ever , I understand that I could put myself in risk for a year by doing the holistic porch but I would like to at least try that way first and if I know that I tryed my very best to be healthy and if it still doesn't work then I guess I will try a medication.
Take the medication as early as possible. Healthy eating won’t stop the progression. Hope you make the right choice 🙏🏻🧡
Hope you're doing well now. I've had MS for over 25 years, no disease modifying drugs in the past ten years. Stay strong and keep a positive mental attitude. x
Hi, what made you stop taking the medication? I was diagnosed 6 years ago but think I've had MS for longer. I refused all treatment, I'm just a very holistic person, I prefer a good diet and yoga. What have you found helps?
Great
@@27TaLisa What are the symptomps of MS ?
@@BevRother do you have some disability without any medication or treatment? Please reply
@Anu bala hi, my balance is off but I'm working on it with tai chi, my legs get tired when walking uphill, I have a neurogenic bladder but seem to manage 90% of the time.
Hey sweetheart, I am 46 and have lived with lupus all my life . I now have ms because lupus attacked my Milan sheath . It's hard some days and I struggle walking these days and my eye sight is very poor . Never give up hope and faith because that is what gets us through the hard days. Stay strong and keep blogging I am listening xoxoxo molly from Sydney Australia
Kudos for the video content! Sorry for chiming in, I would appreciate your initial thoughts. Have you heard the talk about - Liyaraah Sclerosis Redemption (should be on google have a look)? It is an awesome one off product for overcoming the symptoms of multiple sclerosis minus the normal expense. Ive heard some pretty good things about it and my best friend Jordan after a lifetime of fighting got astronomical success with it.
I hope you get better..
Hi molly I'm percocet from US
Molly Mayor I have the same thing
look up Dr terry wahls
Wow, your bravery gives me chills. I’m still learning to accept MS and the way it will affect my life, and yet, I persist on living my best life! I hope you will too!
I will help cure multiple sclerosis! megalayner100@gmail.com
I haven’t been diagnosed yet but I’m waiting to get answers from my neurologist. I plan on doing the same
My mom was diagnosed when I was in the 6th grade.. I’m 32 yrs old now and still blessed to have my mom in our lives. I do not wish this on my worst enemy, hate this disease
MS does not cause death... your mum will be fine. We need to stop this Stigma of MS being this horrible deadly disease. It is not. The treatments available now are amazing.
My Daughter got diagnosed with MS today, She had double vision. Continuous hiccups, pain in legs. We r treating her. Thnx for sharing your story. Stay Strong. Miracles happen you will be fine in one day.
So sorry about your daughter! Hope you two are staying strong 💪🏻🧡
Thank You...I'm starting my journey, I noticed symptoms about a years ago. The constant pain, especially my back, legs, arms and neck, headaches, vision changes, my balance, and this uncontrollable sleepiness and walking slowly with a cane now...It's shameful 2 doctors thought I was faking! Going to see specialist in major city next week.
it’s bad really bad when ppl does that. sorry to hear this hope you’d found the better doctors and got better. I know this I went through the same situations.
You guys are all brave. I have a cousin with progressive MS. May god give you all strength 🙏🏻🙏🏻
This is the 2nd spinal tap scare story I've encountered in these videos. I had one when I was 6, and it was nothing. That was 60 years ago. Now, I can be grateful.
🙏🏻🧡
I'm struggling with MS for almost 15 years mainly my attacks related to my vision, thank you for sharing your story 💐 ps. You're so handsome 😎
Sara Andersen I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
My mom got diagnosed today, she has blurred vision in one eye. Does every one with MS loose their ability to walk?
im a bad youtuber No, MS is different for everyone & about two thirds of people with is never lose their ability to walk without assistance
Bullsh*t
Sara Andersen ❤️
You're a beautiful man...I've just been diagnosed in the hospital in the last few days. Woke up to a dragging foot and needing to use a walking stick. MS is not fun. Hang in there and stay prayed up, Doll!
Im too afraid to trust pharmaceuticals due to side effects. I'm going to try a plant based diet and pray to God for healing. Bless you, Seb
I am really sorry you were treated like a specimen not a person,then spinal uuuweee and more tests!!!!I have messed up immune system,No spinal but tests and Drs.&tests,ugh.finally after yrs.got lupus dianosis,Rheum.arth.osteodegenerative arth.thyroid issues,now after being not believed I thot had Parkinson's disease ,My.rheum.sending me back to neurologist cause thinks I do!!My dad died in 2000 from it.i got symptoms shortly after that,but not believed,tests don't always show,but was ruled out what u have frm.mri.i have had 4 @20yrs.then&suddenly I can't get up good walk good sleep good memory leaving me or can't say correct words.and can't take steroids like prednisone so I take plaquenil. Now I'm 62,so told my daughter no more tests&prob.no more added meds.but I'd let them officially diagnosed me to help with care&disability. I live with her.i have strong faith& days are sometimes long.hope you the same.....faith&hope.♥️
Anonymous Girl plant based diet and low sat fat kept people in a Canadian study symptom free for over 30years!!! I was dx’ed 12 tears ago - I have no symptoms. Look up the study!!!
@@jakethedog4397 Plant based/vegan diet is what caused MS. Stay away from plants and wake up!
@@1life857 Disgusting. You should crawl back under whatever rock you've been living under. Plants are the most nutritious and healing foods on the planet. Let me guess, you think keto is conducive to health. It's not like Atkins died of a heart attack, or that Baker's bloodtests are disastrous. I'm afraid the only way you've woken up is by waking in another dream. You're in deep, deep sleep.
@@1life857 I’ve been plant based for over 40 years it’s the most healthy way and no I don’t have MS I’m listening for a friend who may have it
you are an amazing person im 17 and have ms it is verry hard living with it but it was good to hear your story becouse ms has taken me out of school and made me very depressed thanks for sharing its verry helpful
Haven Cook do you have trembling in ur hands and all over ur body??
Haven Cook I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
Hi I'm 25 and have had multiple sclerosis for 10 years. Thank you for sharing your story
@@toeders1 but everyone has specific signs patients of ms are not the same
@@lunaestrella531 I know
I’m 16 and I have MS too
Let’s fight it together
白龍布萊克 how are you going with it? I am turning 17 and have had symptoms for years and am getting tested after this covid crap is over... I am terrified.
@@shayrose7705 what symptoms do u feel? Im also 17 and my legs have been feeling weak for 2 days. Im terrified too
taytastrophe ou god I have a whole list. Mainly, major hip and back pain, like I can’t lay down. Extreme fatigue, I can sleep 17 hours and still need to lay down for a bit. Really bad heat intolerance- especially during summer and warmer weather I can’t go out. I also lose a lot of feeling when typing on my phone and my hands tingle a lot. My legs are also really restless and I get these major spasms on my right leg always under my knee, where I feel if I move I will start seizing ( they’re bad haha ). I pull muscles 24/7 and always am in some sort of pain. I also have a lot of little symptoms like rapid eye movement and vision loss sometimes, aswell as slurred speech etc etc. frankly I don’t think there is a single symptom of MS I don’t have.
taytastrophe and agh I’m sorry to hear that
@@shayrose7705 omgg I'm so sorry to hear that too. I hope u you will get tested after this quarantine. There are also other people on UA-cam who share their experiences and struggles with MS. Some of them said that they had early and subtle symptoms before but they ignored it. Then, 5 years or 3 years after the symptoms will come back and become more palpable according to them. Haysss
My mom had MS!! The most beautiful human in the world...she has past but will forever be my hero 💜💜💜
I suffer from MS too :)
Thank you for sharing with us your story Seb! :)
It's been 10 years that i live with MS and everything was fine till i started suffering from unbelievable headaches, migraines and ear pain 1 year ago. I quitted my job, my social life, my personal life but not because I was depressed. I'm really in much pain so i can't do anything. But i do believe that everything is going to be alright for all of us. We have to be patient and strong physically n mostly psychologically :)
Greetings from Greece :)
🙏❤
hey how are you now if I may ask??
What kinda of a person puts a dislike?. You are extremely strong and brave. I have a brain disorder. It's not MS but very similar. You are amazing to have carried on functioning. Inspirational x
my spinal tap was completely painless.. im so blessed I had a good experience with it
ur very lucky!
kay w. you are very lucky !! my spinal tap was horrible. the Dr couldn't get the needle in the right spot so they sent me to x-ray and another Dr did it. my right leg started flopping around. the pain was excruciating. never again...
Lucky! For me they didnt get it right and my foot kicked by it self, and it came blood out of the spinal test.. i asked for something so i could relax because i had to take a new one.. but they didnt give me anything (they are very strict in norway when it comes to valium ecs, so the simply didnt have it where i was).. so they just had to take a new test right afterwards. I was 24 and so scared. Felt the same as when i gave birth without medication.
My first was painless followed by headaches. My second, they were trying to find why I lost muscle on my right arm, hurt like hell but hardly any headaches.
My spinal tap was virtually painless. They gave me a mild sedation and anesthesia. I couldn't feel a thing and was surprised it took only around 15 minutes.
I'm 16 and was diagnosed with MS just a month ago, after experiencing 3 months of symptoms. It's very unnerving knowing that you have to live with a chronic disease, but I'm staying strong! Hopes and prayers for everybody else out there suffering with this - you are not alone!
Did u try vitamin B1
Check out DR Berg on vitamin B1
Try dr wehls diet, wim hof cold therapy include vitamin + minerals like B1,6,12 magnesium, zink & vitamin D over 3,000
@@leximohamed9532 have you tried not to follow an advise from someone who is not a real doctor .
Dr. Berg is better than a REAL doctor. You know real doctors get more business with sick people
There is a girl who said her moms MS went away she went vegan it helped her
Dear God, I pray for you and others that Are faced with MS. I thank you 🙏 for sharing your story; please hang in there as I pray for a cure.
My grandfather has had MS since before I was born (I'm 21), and he's still going strong even though he has his struggles. Now, they are thinking I might have MS, which is a bit scary, but I know I can get through whatever life throws at me!
love your attitude!!!! 😁
Do you have some issues ?? Reply please
@@anubala6421 you could have just checked out my channel.. I have many videos about this
I know that you posted this year's ago, I identify with many of your symptoms and can empathize. MS is a thief that steals pieces of us, you seem like such a genuine sincerely sweet young man. I'm really hoping you go into remission, and have peace. *Big Hugs* to you, your Canadian sister 💕
I want to tell you and everyone that was so brave to tell your truth about MS. I am more inspired to tell my truth about MS. for the last 3years I have been so ashamed of my diagnosis. I've cried many days because I felt so alone and voiceless. I am a mother to 2 boys and to see my children worry about me makes me feel less than a mother. Every weekend were our playdates game days but being depended on a Walker breaks my heart. Hearing my children tell me I'm still as perfect as I was when God created me melts my heart. Continue to keep me in prayers and I will pray for my entire MS family❤
stay strong dear, prayers to everyone suffering from MS,
@@tsomoyangchen4938 thank you so much❤🙏
You’re amazing 🙏🏻🧡
OMG!! I suffer from this debilitating disease as well! I understand your pain and frustration. It’s awful! But all we can do is TRY and be strong. Take care❤️
First off - God bless you.
You’re very brave to make a video describing your ordeals with MS. Very brave. You should be commended.
You’re doing the world a lot of good in showing people that a handsome young man such as yourself can be afflicted with MS.
You’re a very courageous man and your upbeat attitude and humor shine quite bright.
It sounds like you had Trigeminal nerve involvement (specifically v2 and v3 branches). If you ever come down with Trigeminal Neuralgia (TN), I highly recommend you contact Dr. Ronald Brisman, a New York City based doctor. Brisman is one of the world’s foremost experts on the disease and has arguably the highest success rate in treating it.
God bless you my friend.
Given your indomitable spirit, I predict a life filled with success and happiness for you. :)
Electric Eye Slide I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
Thank you. You have made me feel 'less scared' ..... perhaps even 'less alone' ......... I was diagnosed just yesterday. A whole new chapter for me .... though I have been living with MS for a few years .... I have not known. Until that diagnosis yesterday. I hope your tomorrows are better than your todays. xx
Sue Randle I've been diagnosed today after all scans and I've got a similar symptoms.. I hope I will stay strong enough to fight MS back... wish u all the same xxx
Sue Randle I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
Bravo !
Our family is also affected by MS. Hope you are doing well and continuing to inspire others.
May God heal you!! We have a friend who was diagnosed 20 years ago and he was on expensive medication for years, and now the Dr. tells him that he no longer has MS. !!
erm, as far as im aware there is no cure for MS just yet. So either the person was misdiagnosed, or managed hes decease very well. well done!
which medication?
Praise God!
Barbara Ellis which medication? Could you ask him? You could do us all a big favor
I know too my friend after year she can walk and she will be she is so fine and strong without cure just only with ability
I have Ms as well couldn't walk for 6 months. I was ready to overdose and die. My oldest daughter who was in college asked me to get rid of all pharmaceutical drugs and try natural medicine. I went to my grandmother who is 110 today. She's Oneida Indian she was able to help educate me on plants n herbs. 7 years later and I've haven't had any more problems with m.s. Thanks for sharing your journey. I wish you the best and stay healthy.
If you wouldn't mind sharing some of the more common plants and herbs that you used? Thanks
So brave....and gorgeous 😊. Sending you good vibes. .. and hope you find the right treatment. .. Thanks for this video.
Best vibes to you too! And thank you :)
Bibi T 😎
Bibi T 😎
Bibi T ♠♥😎
Bibi T 😎😍
My daughter has MS now for 29 years and she is very frail and bed ridden. Just keep strong and take it Day by Day.
Love and strength to all that suffer.♥️
I can’t thank you enough for this!!!! My middle school sweetheart just reached out to me and asked if we could just do the wild relationship because he doesn’t have much time left and has always been in love with me. He explained he has MS and just wants to live out the end with the woman he’s always loved. I’ve always loved him but I didn’t know what to expect and wanted to know what he was going through because a really private and humble person. Thank you so much for being so authentic and open with your journey. Seriously...thank you. I know this has been YEARS since you’ve posted it. I hope in all hopes of hope you’re doing well.
Thank you for sharing this beautiful story, Jo! Give him all the support you can from the love you have for him. Best of luck to you two!
Thank you for putting your story out. It's eerie but also comforting to hear such a similar story
When I had my spinal tap I was so anxious I couldn't stop panic laughing. Thank you for sharing you're experiences
SecretMermaid yeah I got some drugs before mine it was fun enough
I will help cure multiple sclerosis! megalayner100@gmail.com
My nime is khattab Iraq.MS 7years
Gorgeous man I'm so sorry to hear of your health struggles and just want to wish you love n happiness.
My father has MS, wheel-chair bound, I'm going through the diagnoses stage at the moment. I've had a couple of attacks and my balance and vision, along with brain fog and shooting pains, sensations etc. Seems each episode leaves a different problem behind.
Where-as my dad, has terrible ataxia. Really is different for everyone.
Thank's for sharing, it helps people who may not otherwise have known what thier suffering could be, and prompt a visit to the DR.
🙏🏻🧡
You are so strong I'm on my journey for MS diagnosis but here on the UK they take so long. Hope you're doing fine with no more attacks, I know they can be awful. It's been suspected MS to me, excuse my english, pronunciation, so I'm waiting to see my doctor to see what she says. Hope that if indeed is MS, I can get it diagnosed and treated sooner rather than later 'cause I'm stuttering, numbness and tingling on my legs and arms as well as stiff legs, balance and coordination problems, and the other day I was walking with my friends and my right foot kept dropping and making me almost fall each time. Very embarrassing. I've been living with MS, not 100% confirmed, for about 8 years or so. Keep strong. Your support would mean very much to me, all the best and hope you're doing fine :)
XxThePianist & ViolinistxX
I'm sorry but what did u mean why ur legs were dropping ?!
XxThePianist & ViolinistxX I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
My foot kept dragging on the floor during the relapses. It's called foot drop. Hope that clarified it :)
Thanks for the people leaving sweet comments. this has been a year ago I posted here I will certainly follow you hehe :p :) I got into day vlogging so u can check that out and I did some vlogs on explaining what's happening now. which I'll upload the rest in due time xP :)
New healing solutions are found daily, I hope one surfaces for you, soon. 'Always hope' ,keeps me going (I have CRPS and PTSD) .
Hi, Sab, your story is very similar to mine and I had almost the same attaches. My type of MS is also RR and because of my 27 lesions my doctors in Spain directly gave me gylenia which I've been taking for 2yrs now.Stay strong.
MissBellaaa1 hi i m also having gilenya foe last 6 mnth.how u doing n how long u have to continue?? it's very costly n not affordable without insurance.
You might find the book and website called "Overcoming Multiple Sclerosis" interesting. Take care, and God bless.
Robert thanku
MissBellaaa1 I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
You did such a great job explaining your symptom evolution, thank you. It is very scary and I have had a number of those you've mentioned and have just been to my doctor where I'm not getting much help at all and it's so frustrating. The way you describe the numbness in your face is "exactly" what I've experienced and the vision loss. ...I think the pandemic has really turned our medical system upside down and my doc seems to prefer to believe I'm not in the typical age group.?! ....but I'm not convinced. I even had a salty tongue for six weeks. Sigh.... The very best wishes to you. You seem like an exceptional person.
Thank you for sharing Jane! Yeah the pandemic has really messed things up… the medical system and OUR system. I’m really sorry you need to go through this. Focus on following a healthy, anti-inflammatory diet for now. All the best to you 🧡💪🏻
I was diagnosed at 15, my MS was so extreme they put me on Prednisone(6 months) and ran tests for about a week. My spinal tap was the single worst experience of my life. I was immediately put on Tysabri and I have had a semi normal life for the past 7 years.
What can I say. I got diagnosed, MS a year ago. But the body challenges I was experiencing, were way older than I thought. Almost 8 years before my diagnosis and subsequent treatment. I can totally relate to your situation my friend. I get emotional when I see others jogging at the park, knowing I was an athlete once and can't do this anymore. And recently my wife left me because of my condition was the worst of all. But I know there is hope and there is nothing you can't achieve. I wish you good health and more power my friend. Stay positive and keep smiling 🙂 Would love to meet you one day 🙏
Oh no, so sorry to hear about that 😞💪🏻
Thanks for sharing 🧡🙏🏻
Everything you said exactly is my M.S. story also! Relapsing/Remitting M.S.! I felt such a kinship listening to your story. :-)))
I will help cure multiple sclerosis! megalayner100@gmail.com
I also have MS. Stay strong. Stay focused. Stay motivated! 🙌
💪🏻🧡
Proud of you keep strong ... Hope God will save us soon from MS
God doesn’t give us anything life does
God gives us strength to deal with whatever life gives us
I too have MULTIPLE SCLEROSIS hope things go ok for you.
Hi, I've been under Avonex for 14 years and the neurologist also gave me paracetamol so I don't feel the side effects of the treatment, I feel so surprised your didn't prescribe you such a simple thing to make your life easier. Now, I'll switch to Gylenia because my number of flares increased so I hope it will work well, I'll check your other videos to see if you talk about it.
Another man with MS
Thank you for sharing ... this is heart breaking to hear hope to know how are you doing recently since I know it’s been 3 years so far ... stay strong! Your life is worth living and you have purpose with or without MS
P.S. you have the most biggest beautiful eyes! (Hope that made you smile)
I’m so sorry you had to endure the stress of all those years of not knowing. Blessings to you ❤️
my symptoms were not like yours but am being diagnosed with regard to MS (my MRI results next week); my symptoms have accompanied me a couple of years now, and in the last year almost every day included some of those: fatigue beyond comprehension, burning and stabbing sensations all over the body including face and the brain itself, tingling, severe pains of different kind in every possible place, severe migraines, brain fog, problems with speech, dyslexic issues, not to mention mood swings and depressive attitude; I was being treated for Lyme for almost a year, but when the specialist told me I was Lyme-free, I was puzzled cause all of the symptoms still accompanied me (apart from migraines); lately I found out about dr Walhs diet and have been trying to stick to her diet - with great results so far; today is the first day without any symptoms whatsoever... even if the MS would come up positive on the test, I can see that I also have some control over my body; I've heard about people who already had lessions in their brain due to MS but when they changed their diet, the symptoms went away; I really belief we may help ourselves so don't give up hope
My body burns, tingles, aches
I have MS also. Diagnosed in 2005. Two MRIs set for this friday.
Stay sharp!
Thank you so much for taking the time out to make this video for us. I'm so afraid I'm starting symptoms of MS myself. I hope you are doing ok. Again thanks.
Penny Baroody me too Penny very frightening isn’t it? Other illness has similar symptoms though so don’t overly worry xxx
I fell 400 ft 22 yes ago. No one ever mentioned the possibility of aquiring MS. Thank you for your story!! I had many a ha moments listening to you.
Also, immunotherapy (chemo) for melanoma I believe sped this up.
Best wishes to u xo
🤗🧡
Just watching your story. It’s so helpful to hear you speak your story. I started with vision loss, having optic neuritis. I had blood work done, home heath nurse giving me steroids, and yes a spinal tap with also was the most horrendous experience. That and my MRI came back normal. Then I had episodes of random muscle spasms that would last days, seizure like episodes, fatigue where I can’t keep my eyes open no matter how hard I try and it feels like I’m in a haze. I’ve also had several numbness episodes in one leg. I’ve also developed migraines so bad that I can’t move and most recently, memory loss and trouble with multitasking and now I stutter in my speech when trying to say a word. After a year and a half I had a new MRI done where they found T2 flair hyperintensities in the periventricular region of my brain, which was not there prior and is one of the more common areas that MS attacks. And yet my doctor says I’m fine.... hopefully I get some answers soon. ❤️
Hope you got some answers by now! 🙏🏻🧡
I remember my spinal tap, I got to watch ,the nurses held several mirrors angled so can see.it was cool.the needle was huge.i didn't know there was liquid in your spine. its feels really good hearing other people's stories. it reminds you that you are not the only one. KEEP FIGHTING WARRIORS!!! KEEP MOVING FORWARD!
I had 1 , 2 weeks ago.
It is cool.
Yeah, it's not pleasant at all, but you get the results you need. I was shown the fluids and saw them as crystalline light fluids. Amazing.
Yeeees 💪🏻🧡
Thank you for posting your story. My heart & blessings are with you. Keep fighting.
an MSer here from 2005..keep strong!! I also remember at my first spinal tap I was screming and 4 people were trying to keep my body stable for 45 minutes...Then I would feel such an awful dizziness for more than a month..With Tysabri I would feel so fine for 3 years and then with Gilenya for 5,5 years...but when my body got really got used to it and it didn't have anything more to offer...I wish u the best mate!
Thank you for sharing your health journey. I think I might have MS. I get the itching all over, which is a new symptom. I'm seeing a neurologist soon.
I hope you got some clarity on this 🙏🏻🧡
My mom has had MS for 37 years now. She was diagnosed at 19 while pregnant with my sister. ❤
Amber Owens hi is your mom on all kinds of meds? Wow that’s a long time. God Bless. I’m starting to notice strange symptoms n I’m scared crazy. Just starting research. Omg.
@@claramarone5510 She is typically takes steroids during a relapse and otherwise takes shots in her legs nightly. MS is different for everyone but it can be managed if you take care of yourself. Best of luck to you!
Amber Owens thank you
Thank you so much for sharing! I was recently diagnosed with MS also. Your video was inspiring!
I will help cure multiple sclerosis! megalayner100@gmail.com
Thanks for sharing your story, you are a strong person. I have recently been diagnosed with MS at 22 and it is nice there is information and support out there. I hope you continue to live a good healthy life
last year i got diagnosed with MS. I had vision loss and i was really shocked as I was 15 and i didn't knew something like this can also happen to me at such a age
Oh no, stay strong 💪🏻
I will keep you in my prayers.
Thanks for posting your story, l hope you can be as symptom
free as possible, for many, many more years. May God bless you.
I feel you bro! The condition dare i say sucks! One of the things i constantly remind myself is "things could be worse" but never do i even attempt to imagine how so...
Subscribed
I was just diagnosed and i found your story very comforting i have been telling my dr for 3 years something is wrong with my balance and my feet going numb, finally i know i am not crazy thank you
I'm going through testing now. I'm seeing a neuro at an MS clinic. When I have another flare up he's doing a spinal tap. He keeps saying it isn't MS but insists I continue to be monitored 'in case it is MS' I know it's MS but I also know it takes a while to be diagnosed. I have lesions on brain MRI but nothing on the spine yet. I'm living my life to the fullest right now. Thanks for sharing your story.
My younger brother has just been diagnosed. I am devastated for him as he has a baby who is 6m. Thanks for sharing your story. I'm panicking about the future but can't imagine what he must be going through. How does someone with MS stay positive?
I have a friend that was diagnosed about 15 years ago and she lives a full life! MS can be controlled with medicine. It's come a long way in the medical world. Think positive for your brother!
Big life changes stressers bring out lurking diseases, VERY important for MS ppl not to stress!!!!!!! you can adopt a more zen outlook, that helps. years ago i had a friend whos mom had a nervous breakdown from family, work etc...stress. Her doc said try not to worry bout things you cant control, adopt a go with the flow tude.... It made a HUGE change in her whole life including possitve health changes... heres a few alternative things that may help....recently ive heard very interesting things like ambien (the sleeping
pill) for dramatic improvements in brain injury, stroke patients etc...i
wonder if MS ppl can benefit?! another one is QUALITY coconut oil for
cog fog & fatigue, i like it. I take 1 tablespoon a day with food or
in hot drink, some ppl say the saturated fat isnt good but why not cut
down on other fat (like crisco, lard, butter) when cooking, use better
for you coconut oil instead.... 5K to 10K a day Vit D (infused WITH Vit
K) with biggest meal of the day, make sure you eat calcium rich foods
daily as it helps Vit D absorb. these are just a few things to get you
curious to research for yourself
I was dxd 8 years ago.. it's quite unpredictable.. but your best bet is 1. Stay active. At least keep stretching 2. Stay on medication 3. As for diet.. at least avoid gluten, milk and lentils (paleo).
Thank you for sharing. I am undiagnosed at present . But I have some symptoms... I don't know what it is but ms is what a friend of mine who works in a hospital has suggested. You make it seem less scarry. Thank you.
Life goes on! 🙏🏻🧡
When I first got diagnosed I had the WORST itching on my neck. Hang in there!
I will help cure multiple sclerosis! megalayner100@gmail.com
🧡🙏🏻
I was just diagnosed with ms. Tingling in hands and numbness in stomach and back. I’m starting ocrevus in 4 weeks. Thanks for sharing your story!
I hope you’ll be happy on Ocrevus! 💪🏻
@@LifeofSebMS so far so good 😊
Thanks for your story man ;). If anyone knows of any communities for young people with MS. please share
you can look up matts MS on FB & UA-cam
Jeath Tunes I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
My ms team dot com
Also...
For cooling vests reach out to MS ASSOCIATION OF AMERICA (MSAA)
I just watched this video of of curiosity but I am glad that you have shared your story, you’re very sweet
Wow what a story... always learning something new.... thanks man!! My thoughts with u..
My mom has been diagnosed with ms before eleven years. When my family announced me that she had this dissease i lose my world. But after months I learned how to help my mom. I become "friend" with this and in my country we have the sentence whatever you dont kill you, make you powerful.
I hope all people in the word and more specific in my country face this dissease as health issue and not as stigma
Many kisses from Greece
So inspiring!! Thank you 💪🏻
Spinal tap is how they diagnosed me as well..plus our symptoms are very alike especially with the vision
Hope you're doing good man! Merry Christmas 🎄
JT L what did they found when u did spinal tap ?
It showed my myelin levels were super low..that and a tiny lesion on my brain is how they diagnosed me.
ILLumi TeXaN PaRaNoRmAl why did they do a spinal tap?? couldn't they find the lesion in the MRI?
I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
Thank you for sharing your story Seb. I've been experiencing a tingling on my left side of my face, my hands feel like they go numb. I wake up with a dead arm. My left foot tingles. My hand/finger joints ache, as do my knees, hips and back. You mentioned itching. My calves itch too. The fatigue...I've spent the best part of the last 4 years lying on my bed.
I've spent some time over the last few days trying to work out what's wrong and if I should see a doctor.
Go see a doctor!!
@@LifeofSebMS thank you for your reply. I really appreciate it. I'll make an appointment tomorrow. I'm just scared and don't want to be a hypochondriac
@@bravehearticus How are you now. Do u have MS ?
I am going to the hospital in 2 weeks and i am also scared. how about you?
Thank you for sharing your story. 😇👍 Hope that all is well.
& this made me cry because i had so much of these in a year! one after the other. knowing it that i have MS kills more then having the pain. MS is a mess! i count the days. 2years & the world swinged upside down!
never let your strength get low! what i learnt so far.
khadeeja mazhar I am also a UA-camr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
i will!
My Dr suspects MS so I’m scheduled for an MRI soon. I have really bad memory problems, a difficult time finding words, but mostly I have bladder retention problems which has been an issue for almost a decade. Thanks for sharing your story! Wish me luck!
My heart reaches out for you and your family. Thank you for sharing your personal stody and a glimpse into Life with MS. May Allah bless you all. Ameen.
Allah lol
@@RPas-kt1cy Allah is the Merciful and Compassionate.
@@muhammadx656 Lol okay
@@RPas-kt1cy MS anyone may get it at any stage. Please donate for research.
@@muhammadx656 yeah I will do it right now lol go with alah brother
My mother got the absolute worst kind of this disease in the 80’s, when few even knew what it was. She died at home, almost 20 years ago when I was very young, and it traumatized me for years.
Fortunately, nowadays there are good treatments and medication for this disease, the prognosis is a lot better, and you can live a fruitful life.
Thankyou for sharing your journey. My son is showing some signs of MS, mostly co-ordination and balance. MRI didn't raise any alarm, tingling and numbness he has never mentioned, or vision problems. So I am relieved but still cautious his symptoms are due to birth trauma. The information in your video has been priceless. I will watch more.
Hope you got some answers! 🙏🏻🧡
stay strong ms warrior
Your video clearly explained your symptoms, your diagnosis too finally your treatment. I have not been diagnosed yet but clearly I'm experiencing many of your same symptoms.
Mine started about 5 years ago with a tingling sensation around my right ear until today where I'm having vision issues in my right eye and tingling sensation around my nose and lips. I also have balance issues.
I think it's time to make another appointment to finally get a diagnosis.
Hi I am infected with ms I would like to talk about what is going on in my head with someone who has ms and lives his life normally .... we are stronger with supporting each other
I too have MS. I know how hard it is. I have lived with my disease since 2002. Obviously gets worse with time. I have a lot of the symptoms unfortunately but I won't give up easily. I wish you well and hope you are able to keep your body holding on as long as you can.
i'm a 2nd going on 3rd year medical student in America studying for my board 1 exam before starting rotations in hospital this June of 2018, and i want to thank you for sharing your story. I used it to better learn about multiple sclerosis-- to associate a face and story with the disease. The detailed info you offered--- initial symptoms, medications used, adverse effects-- was all helpful; I even watched your video with my textbook open, so as to reference the medications you've used and the symptoms you've experienced. Now, in the future, when someone walks in with early symptoms as you described, I hope to catch it early in its course. Thanks and best of luck!
Watch Dr. Terry Wahl's Ted Talk MS story. From a wheelchair to normal life without medication through lifestyle change.
Amazing story 🙌🏻🧡
My spinal tap was horrific as well. I was diagnosed when I was 50. I can't believe your going through this so young.
😞🧡
I started Dr.Terry wahls diet + not avoide fit + fish, omega3 +6 , Flax Seeds, sesame seeds + avoids gluten. Take care :) Aga from Poland
howd wahls diet go
Is the Wall diet working. Have your symptoms improved?
We need to create a database of various treatments, including the Wahls protocol to see the different responses. Does anyone know of such a database. The only thing seems to be forums where people discuss their treatments. Thx.
Martin K well if it is like here that a person NEVER answers again after a post (80% of the time on youtube) it will never happen
@@gartnsu1 My wife has been doing Wahls for at least 1.5 years now. I can tell you as her husband that is HAS WORKED. She's been losing too much weight, but the pain in her hands and legs have dropped off tremendously. Cutting out the inflammatory foods has done wonders. I would suggest this to anyone considering it. She eats nothing but greens and good cuts of meat now. We have discovered a wide variety of recipes that are great. When I ask her if it was worth it, she almost starts laughing.
Thanks so much for sharing your story. I've just experienced an episode of double vision where my eyes weren't in alignment (diplopia) and my balance was off during a busy 12 and a half hour night shift as a RN. I had a CT- showed nothing, MRI- showed abnormalities. I was diagnosed with clinically isolated syndrome and took it quite well although feel guilty for taking time off work, now the reality of what might happen is sinking in so I'm stocking up on all the relevant vitamins/ supplements and awaiting another neuro appointment for spinal imaging. You are inspirational and a reminder that nothing is insurmountable!
Hey sam. How are you doing 4 years later? Are you taking any meds at the moment ?
Just been diagnosed with ms.....thank you for your video helped me to get my head around it all and notice very similar symptoms