Many thanks for this video. Would like to emphasise the investigations you would do for this; creatine kinase of course will be elevated. If you order an EMG, expect myopathic changes to show up. You may also want to do a muscle biopsy.
Why would a 9 minute video have so many non skippable adverts for people who may have or might have this horrible problem, esp when you cant even get an appointment closer than 6 months out?
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Many thanks for this video. Would like to emphasise the investigations you would do for this; creatine kinase of course will be elevated. If you order an EMG, expect myopathic changes to show up. You may also want to do a muscle biopsy.
Why would a 9 minute video have so many non skippable adverts for people who may have or might have this horrible problem, esp when you cant even get an appointment closer than 6 months out?
une vidéo super explicative merciii
Would the patients Compliment Direct Antiglobulin Test (DAT) be expected to be Positive in this case?
How do u get tested for this ?
One of the worst conditions in a young person I’ve come across in quite a while.
Where were you 😕
I have this and it is sooooo painful. Any natural ways to treat this? The pain is real.
my wife uses cannabis cream for rubs on her skin. we empathize with you. many blessings
have you had IVIG infusions?
STAY ON MEDICINE PLEASE dont take my path...Something like DECORTINE 5- 10mg every 2nd day should keep you superhuman...Please talk to your doctors
Also stay active like simple walks,and dont worry about it....pain is the way, just embrace it :)
Why would you paywall the overview lmao