if anyone is suffering from this.. im praying for you. although i thought i had something like this but i dont.. i say thank you god and i pray for the people who have this and i hope they get cured 😢
I just wanted to thank you for making this clip. I just found out the I have RP. This is proving to be a great resource to show people when they ask "How do you see?" So thanks yours has been the only attempt that really conveys the way I see.
I was diagnosed with RP too:-( what are u experiencing with ur sight now how do u cope with everyday living I have a 4 yr old & I'm scared I have to take care of my baby!!!
I suffer with RP too but please be aware that EVERY case of RP is different. This video is close to what my eyes are like, however it may not be the same for others. Also with the lack of vision, disorientation happens VERY easily and depth pf feild is none existant. :)
I am aware that it is not the best quality of either filming or clip, and I want to eventually make better-made clip. This was only a first desperate test to share with you how I feel about my RP. My video skills are scarce and I have not much time, so I'll try to figure out how I can eventually make the most efficient way so I can provide additional perspective on Retinitis Pigmentosa. However, there are many much better videos here on UA-cam on this subject. :)
This is quite good Rikard, thank you, considering though that none of us see very much the same; a video for daytime rp vision would be also appreciated, presented like this, with simultaneous normal and rp vision. ;-)
DOCTORSHAWMUT Like this?: Retinitis Pigmentosa - indoor light and this: Retinitis Pigmentosa - scanning (daylight) ;) I will try to make better ones as soon I have the time...
As a person with RP: if u wanna imagine what its like, its similar to turning down the brightness and dimming the screen, its just that I see darker than other people and i have sensitivity to light
Hello, I was diagnosed RP in 1989 at the age of 12. Things have gone slowly getting worst year by year. Yes, this video shows it quite good, but, in my case, I'm 40 atm, and I had both eyes operated for cataract, my night vision is even worst. I get flashed by lights, for example, the cross roads with the Street light that it's shown here, it's not what I really see, the red light flashes me and even light in the water on the Street are annoying my vuision. But this is something that affects in different ways, case by case. Good job. I apprecciated your video.
I'm also 40 and learned about my RP in 89. I got cataract surgery a couple years ago and now I can read a reversed color computer screen with glasses. But the night vision suuuuucks. (for all of us I guess) I also think the video is close but then again, I'm looking at the "Normal Vision" through RP eyes.
Hi, I am also with RP and not only my night vision but the day vision gets worse, the sun is making me pretty much blind and any kind of light source basically. I wanted to ask you, did anything improved after the cataract surgery especially during the daylight?
@@ZikoSeyfi it did improve for the first 4, 5 years, then I had one eye getting worse. ATM in sunlight I see like a low resolution picture unless I wear RP glasses
My experience isnt as dark in the lit areas but the other areas are spot on. Plus my cataracts and the fact I’m super light sensitive- what a combination.
Could you tell me what were your first symptoms? I mean what age you started having symtopms? What were those symptoms? I don't have any blurs nor lunette vision, but when I turn off lights in my room and I want to go to sleep I have problem with seeing. Always thought it just might be normal as eyes need time to adjust to a place without light after spending several hours in a place with light, but still..
Mine isn’t this bad yet, but I still struggle to see at night. When I went to Lake Tahoe, I was bummed that I couldn’t see the stars, but having RP is better than cancer, so I’ll take it
Hi! First of all your video is wonderfull! i also suffer from RP so i can relate to what your saying. I was wondering if it would be ok for me to use a small part of your video in my own video to explain about this eyecondition, is that ok with you?
So if I'm understanding correctly, people with RP can see a little bit, through that one little dot in the middle and then the edges surrounding that hole are extremely blurry and distorted? I've also heard that sometimes the edges are black. Is that true?
I fear I am developing RP but this I definitely do not have. I can see very well at night. Now hopefully that doesn't change then I probably don't have it and am just being a hypochondriac.
i am a young adult with severe RP I am only 22 and all i can say is it is hard. The hardest part is as soon as you get used to the field decrease it gets worse again and when it comes to going out you find you get a little anxious especially in crowds but i had a licence (in australia) up until my vision become to severe to drive. I can still work (but my fiance and i have chosen for me to stop) its more that people don't like hiring people with vision problems (well that is what i experienced when i was looking for work.) the positive thing is that if you get a job there is plenty of equipment that can assist you in everyday life. Its just a shame that not so many actually know this disease is out there. Everyone i met I have to explain my disease as a lot of people think that you just wake up blind one day and not lose it slowly.
Oh shit you see that well at night? My field of vision is better but I can't see shit at night :( was expecting like almost no light when i was watching the vid. I mean the 10% is pretty damn bad I see more then that but I mean the actual amount of light that gets in is still a lot.
Now I understand what my mom sees... thanks for this!
if anyone is suffering from this.. im praying for you. although i thought i had something like this but i dont.. i say thank you god and i pray for the people who have this and i hope they get cured 😢
Thank you so much friend, This means a lot to me.
thx mate
أمين🤲🤲🤲🇩🇿
I just wanted to thank you for making this clip. I just found out the I have RP. This is proving to be a great resource to show people when they ask "How do you see?" So thanks yours has been the only attempt that really conveys the way I see.
I was diagnosed with RP too:-( what are u experiencing with ur sight now how do u cope with everyday living I have a 4 yr old & I'm scared I have to take care of my baby!!!
I suffer with RP too but please be aware that EVERY case of RP is different.
This video is close to what my eyes are like, however it may not be the same for others.
Also with the lack of vision, disorientation happens VERY easily and depth pf feild is none existant. :)
I am aware that it is not the best quality of either filming or clip, and I want to eventually make better-made clip. This was only a first desperate test to share with you how I feel about my RP. My video skills are scarce and I have not much time, so I'll try to figure out how I can eventually make the most efficient way so I can provide additional perspective on Retinitis Pigmentosa. However, there are many much better videos here on UA-cam on this subject. :)
This is quite good Rikard, thank you, considering though that none of us see very much the same; a video for daytime rp vision would be also appreciated, presented like this, with simultaneous normal and rp vision. ;-)
DOCTORSHAWMUT Like this?: Retinitis Pigmentosa - indoor light
and this:
Retinitis Pigmentosa - scanning (daylight)
;)
I will try to make better ones as soon I have the time...
As a person with RP: if u wanna imagine what its like, its similar to turning down the brightness and dimming the screen, its just that I see darker than other people and i have sensitivity to light
That's not how I see its not blurry it's just super dark like pitch black
Alyssa Kam same
@@g.t.7362 same, I don't have the tunnel vision at night or in the day at all. It's just extremely dark or dim
same, but probably its just the early symptom
There is many different types of rp
for me, it is dim and everything is dark at night. Cant see at all.
Hello, I was diagnosed RP in 1989 at the age of 12. Things have gone slowly getting worst year by year. Yes, this video shows it quite good, but, in my case, I'm 40 atm, and I had both eyes operated for cataract, my night vision is even worst. I get flashed by lights, for example, the cross roads with the Street light that it's shown here, it's not what I really see, the red light flashes me and even light in the water on the Street are annoying my vuision. But this is something that affects in different ways, case by case. Good job. I apprecciated your video.
I'm also 40 and learned about my RP in 89. I got cataract surgery a couple years ago and now I can read a reversed color computer screen with glasses.
But the night vision suuuuucks. (for all of us I guess)
I also think the video is close but then again, I'm looking at the "Normal Vision" through RP eyes.
Hi, I am also with RP and not only my night vision but the day vision gets worse, the sun is making me pretty much blind and any kind of light source basically. I wanted to ask you, did anything improved after the cataract surgery especially during the daylight?
@@ZikoSeyfi it did improve for the first 4, 5 years, then I had one eye getting worse. ATM in sunlight I see like a low resolution picture unless I wear RP glasses
My experience isnt as dark in the lit areas but the other areas are spot on. Plus my cataracts and the fact I’m super light sensitive- what a combination.
I'm the one who suffer RP
and the video is clearly true this how I see 😢
hello ada how are you now
Same 😕
Ada how do you know you can’t see...
Could you tell me what were your first symptoms? I mean what age you started having symtopms? What were those symptoms? I don't have any blurs nor lunette vision, but when I turn off lights in my room and I want to go to sleep I have problem with seeing. Always thought it just might be normal as eyes need time to adjust to a place without light after spending several hours in a place with light, but still..
@@TheMiksonPL
Nothings wrong with you then :)
I'm glad for that
Mine isn’t this bad yet, but I still struggle to see at night. When I went to Lake Tahoe, I was bummed that I couldn’t see the stars, but having RP is better than cancer, so I’ll take it
Hi! First of all your video is wonderfull! i also suffer from RP so i can relate to what your saying. I was wondering if it would be ok for me to use a small part of your video in my own video to explain about this eyecondition, is that ok with you?
Hi Steve, and thank you so much for your comment. Yes, please feel free to use any of my RP-videoclips as you like. ;) Kind regards Rikard
Wow thank you so much! i will of course add you in the description :)
So if I'm understanding correctly, people with RP can see a little bit, through that one little dot in the middle and then the edges surrounding that hole are extremely blurry and distorted? I've also heard that sometimes the edges are black. Is that true?
Yes
I fear I am developing RP but this I definitely do not have. I can see very well at night. Now hopefully that doesn't change then I probably don't have it and am just being a hypochondriac.
Just got my ERG done. I'll know on Monday.
@@NikoBell12 how are you?
NikoBell12 ya the signs are poor night vision and depth perception
I really hope you don't have it, this is the worst thing to get. Getting your sight taken away from you.
This is not how I experience it. It’s not shaky. There just are obscure areas I don’t see at all
could anybody tell me when you are a adult how this effect your life e.g. job or travel ect
i am a young adult with severe RP I am only 22 and all i can say is it is hard. The hardest part is as soon as you get used to the field decrease it gets worse again and when it comes to going out you find you get a little anxious especially in crowds but i had a licence (in australia) up until my vision become to severe to drive. I can still work (but my fiance and i have chosen for me to stop) its more that people don't like hiring people with vision problems (well that is what i experienced when i was looking for work.) the positive thing is that if you get a job there is plenty of equipment that can assist you in everyday life. Its just a shame that not so many actually know this disease is out there. Everyone i met I have to explain my disease as a lot of people think that you just wake up blind one day and not lose it slowly.
Tahlia Freeman Thanks helped
Hello Tahlia can you pleas give me a update 3 years later how do you feel now?
Can it represent the RP 60 % condition? Friend of mine has it, came here to understand how he sees
I suffer from this but my vision is like the first one normal I just can't see my sides
i being a sufferer of rp now that at least one strain does on rare accasions not effect peripheral vision
This reminds me of molly Burke
The reason i dont go out that much.
Im sorry 😔 how are you doing now
I have RP, I see like on third video. On first 2 videos with RP, I should see less.
Male, age 27.
Oh shit you see that well at night? My field of vision is better but I can't see shit at night :( was expecting like almost no light when i was watching the vid.
I mean the 10% is pretty damn bad I see more then that but I mean the actual amount of light that gets in is still a lot.
Yeah, well this vid was a few years ago and now I'm about < 5 degrees and my night vision is gone worse now.
@@prandre3101 :( Damn so sorry to hear that. I really hope for both our sakes that gene therapy will get there soon.
🇵🇱 Czy jest tu ktoś z POLSKI 🇵🇱 🇵🇱
Ja