thank you for sharing and easing my brain it was on overload, I do have slow emptying of my bowels and have not yet been diagnosed with Gastroparesis but I am Diabetic and experiencing peripheral neuropathy so I can see the writing on the walls. you have given me some peace of mind by realizing that we are all different and might not experience the same symptoms, Looking forward to viewing your coming videos. Thank you and continue with your peaceful therapy, you are to the point but much more optimistic than most of the doctors that talk about the problem with slow bowel emptying., May GOD continue to bless you and thanks again for sharing your story.
I haven't been diagnosed either but like you said the writing is on the wall. I like that one. Lol But I highly believe that my medication caused it. I'm on Zoloft (which I hate) and Gabapentin. Ugh. After all the latest information I've received its so hard to trust doctors these days. I'm 49 years old and I heard of so much medical malpractice. It's sickening. But atleast now I know it's not IBS. When I heard about the muscle not working it dawned on me THIS IS WHAT IT FEELS LIKE!! My stomach muscle tightens. So frustrating. I'm going to make a doctor appointment soon and get my blood tested for Diabetes 2. I do consume way too much sugar in my coffee. I just hope it's idiopathic. Diabetes 2 is actually treatable.
Similar issues, I can relate, I heard a chiropractor can help??? Something about the nerve being pinched? I had a major surgery last year to fix it and I still cannot eat but I no longer vomit 10x a day
Thank you for all the important information. I was just diagnosed with gastroparesis. It frightened me at first, but you've helped put my mind at ease. I have to stay off the scale, because it frightens me every time I lose more weight. I've lost over 30 lbs. in a short amount of time. I purchased your book from Amazon today and I'm looking forward to reading it.
Any updates? I had a surgery last year and I still can barely eat. I have low pain but such food adversion. The idea or being told to eat is scary. I'm so scared of food causing me pain, sickness and sugar drops. I am not diabetic but I do get major drops in sugar and the shakes. I currently eat 2 foods and drink water/tea. SOS
Thank you so much for all of the information on these videos. You have helped me so much. I truly appreciate you. My son is 25 years old and he was just diagnosed and I am trying to educate myself on this condition so I can help him better.
Does he still have it? Did he have any neck pain/neck problems before the GP began? If so, look into cervical instability being a root cause. Dr. Ross Hauser at Caring Medical is the one who helped treat the ROOT CAUSE of my GP; it was a problem with the vagus nerve (impinged at the top of my spine) that was at the root. He is brilliant and has been researching this stuff for YEARRRRRS. These videos will help explain it: ua-cam.com/video/-zBSm9Ouslc/v-deo.html ua-cam.com/video/xa3tAMyqqtE/v-deo.html ua-cam.com/video/JtJXEpKCZ3o/v-deo.html
I had a major surgery to correct this 1 year ago and I cannot eat much. I don't know if I now am afraid of food but I have zero appetite, never hungry and only eat 2 things. I am afraid of that pain and never learned to eat post surgery. I need to learn to eat again but I hate eating 😢
I took too many NSAIDS and gave myself gastritis. I was put on PPIs and when I went back for a follow up endoscopy, I had a stomach that was perfectly healed, but full of bile. The doctor said he suspects it to be Gastroparesis. I'm terrified. I really hope I can reverse it 😭
@giancarlovassallo4594 hey mate. My digestion has improved drastically with probiotics and prebiotics. I still have bouts of functional dyspepsia which is similar to Gastroparesis, but only when I drink alcohol or too much coffee or greasy food. It has never quite returned to normal, my stomach is forever sensitive, but if I manage it I can almost live symptom free
I have the same problem. My lower denture hurts my gums, and my dentist suggested that I not wear them. I used only pureed foods. (At my Dr's suggested also.) I got so bored!!! So now I eat only soft foods, but I need lots of liquid after each couple of bites
We do have to plan for the future and not just live right now. I love to travel and feel that trying to plan vacations is no longer possible. My last small trip I was in the room 80% of the time because I had to stay close to the restroom. Totally wasted vacation and I don’t want to plan any future trips.
Living with gastroparesis sucks and hurts a lot. I’m in constant pain. I fear to eat anything because I’m scared of the pain it will cause. I’m constantly taking prn after prn. But no matter what there’s always pain
I'm sorry to hear you're struggling. If you haven't already, you might consider downloading my Quick Start Guide to GP Management to see if there's something in there that might help you: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
OMG I could have wrote this also. They did a surgery but never learned to eat again. I'm terrified of foods and down to 2 foods and tea. Now high cholesterol cause the 2 foods are highly processed. I'm so afraid of food due to pain. I'd rather starve than suffer that pain.
I just started having symptoms a few days ago. Gonna go get checked out. I dont know for sure if i have it. but I certainly had a painful experience a couple of nights ago.
Gastroparesis symptoms overlap with so many other conditions, so definitely a good idea to get things evaluated by your doctor. Typically doctors will rule out more common conditions first and then move on to motility testing like the gastric emptying study. I hope you feel better!
@@csaltrelli Trying Apple cider Vinegar in the mean time and eating smaller meals. I think my omaeprozol medication might be part of the problem. thanks for replying.
I take a double dose diabetic friendly protein shake in the morning... skip lunch so my lazy stomach has extra time to move...then a regular size dinner... together with domperidone...now I don't have to take zofran any more
I’m so glad you’ve found what works for you! I’m also really glad you shared, as this is a great example of how the typical guidelines - small, frequent meals, for example - are really just that, and the best thing we can do, always, is listen to our gut and do what works for us individually. Sending good wishes!
I've talked about artificial nutrition and surgical intervention for those with severe gastroparesis in other videos but, as you said, those are extreme cases. Most people who are diagnosed with gastroparesis will not require artificial nutrition. The purpose of this video was to provide basic answers to questions that apply to most people when they are diagnosed. Hope that helps clarify and hope you found something helpful in it!
Crystal, I don’t know if I have Gastroparesis but I have symptoms for sure. I can’t sleep more than 2 hours since this started. Any suggestions on how to sleep with this?
I don't know whether you already have a diagnosis of gastroparesis but I either way, I definitely recommend talking with your doctor about your specific symptoms, as there are many things that can look like gastroparesis and vice versa. For example, vomiting in the morning and then feeling fine the rest of the day could be a result of something like GERD, or it could be due to gastroparesis from undigested food remaining in the stomach overnight, or something else entirely. We might expect that you'd have some symptoms at other times of the day with gastroparesis, but as I said, it's really important to talk with your doctor so that they can provide you with information based on your own health history and current situation.
I hope you've been able to find the information and support that you need. If you haven't already, I'd recommend downloading my Quick Start Guide to Gastroparesis Management. Someone in the comments recently called it "an excellent, easy-to-follow guide" and I think it's great for those who are newly diagnosed. Sending good wishes❤️ www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
I strongly suspect I have this due to having had really bad symptoms for over a decade but I didn't know this was a thing until this week because it took me that long to figure out that food not digesting was very likely the primary cause of the abdominal pain I get frequently (I'm autistic and mentally slow. I just don't figure stuff out that easily). I have an appointment to see a gastroenterologist tomorrow and I'm worried about what will happen if I'm right and I do have this. Just about everything I eat is a no no so I'd have to get used to an entirely different diet with none of the foods I like for the rest of my life. That makes me sad.
I'm so glad that you're seeing a doctor to hopefully get an answer as to what is causing your symptoms. That's definitely the first step and, remember, that's the only place you are right now. It's interesting how our brains get so far ahead of us, isn't it? If it is gatroparesis, then you'll be able to deal with that more readily in the moment (it always feels really, really hard to deal with something that might happen in the future because there's literally nothing we can do about it since it's not actually happening). I totally understand feeling worried or sad about what a gastroparesis diagnosis might mean. It's so normal and human to have ALL kinds of feelings about a diagnosis like this. The one thing I'd love for you to know is that this condition is incredibly dynamic. If you are diagnosed and you do need to follow a diet that's very different than the one you're currently following, there's no guarantee that that's forever. In fact, I just posted a video recently with Megan, who is eating things she never thought she'd eat again. Things can definitely change over time. And regardless of what comes, it is absolutely possible to live a happy, full life despite having a gastroparesis and even following a strict gastropareis friendly diet. AND it's totally okay to feel unsure and overwhelmed and sad when you get a diagnosis. We don't have to try to not feel those things because they will ebb and flow and we'll deal with what's in front of us in the meantime. I'm really glad you're here and I hope you find the support and encouragement that you need if you are diagnosed. Sending you LOTS of good wishes for your appointment tomorrow!
I don't have gastroparesis, I'm having tests that could confirm it or not, like nausea after eating, extreme weight loss, barely going to the toilet, etc.. so I have a swallow study, colonoscopy & gastroscopy along with a gastric emptying study.. I'm suspected of having MNGIE, which is a mitochondrial disease with many symptoms, including neurological, cardiovascular, and eye issues along with cognitive issues like in memory, attention etc..
Can you do a video on Idiopathic gastroparesis? It's completely turned my life upside down. For months we didn't know if I was gonna make it out alive. My husband was my rock he spend many of nights rubbing my back and wiping my mouth and forehead than having to go to work 8 to 5 with only 3 hrs of sleep evenings, late at night/early morning are my problem times I've vomited in sleep. I went to bed one night feeling off called my Dr. Told him what was going on and he said it was just either the flu or a cold and I'd be fine. Weeks turned in to months turned in to YEARS!!! go by and I'm getting worse AND WORSE I couldn't eat or drink more than a few bites before getting extremely full and sick. keep in mind I was 250 pounds when I started having issue by the time my dr.s got a handle on it I was 140 pounds I lost over Half of me in just a few short months. It got so bad I went to your docs in and this dr. Saved my life he actually took me seriously he did ever bloodwork test he could not long after he came back in the room and ask if I had HEP C because my liver markers were through the roof I guess he believed me by the shock on my face and in my voice (keep in mind I had laryngitis really bad and coukd hardly talk from my throat being so raw)I said wait thats needle drugs right? No I've never touched a drug like that in my life I cried cause I knew something was wrong and it wasn't "just all in my head"and no one listened till him turns out it wasn't HEP anything he referred me to his partners who ran some very uncomfortable tests had a camera shoved down my throat, had a gastric Emptying scan, had my nose and throat numbed and a camera shoved down my nose and throat to see how my swallowing was doing than having it yanked back out my nose I remeber panicking her first try and pulling it out cause I was scared it would get stuck and I'd either die or I'd have to be cut from nose to stomach to get the probe out. After 3 years my symptoms are under control my weight is up and stabilized at 165 my liver and kidneys are back to almost 100% and no thanks to my GI Dr. His solution was to TRY ME ON EVERY oral anti nasua meds HE COULD THINK OF INCLUDING a medicine called DOMPARADONE that I couldn't get at any legal US pharmacy because the side effect are so awful its ban so i would have had to smuggle in an illegal medicine in to the USA which I'm sure the DEA wouldn't have APPRECIATED or I could go more invasive and we could do a PORT or an IV line to run fluids and IV anti nasua meds and a feeding tube. After doing my own research i didn't like all the complications that came with invasive treatments so I kindly passed. Thank you to the girl in my support group who came over one day after my husband was at his wits end and told me about the medical MJ program and how the CBC oil controls the vomiting and nasua while the THC will make you wanna eat like no tomorrow. Having that conversation with my PCP changed my life he got me on the program all these years later you wouldn't know I have gastroparesis unless I tell you.
Wow i cannot even imagine how terrifying that wouldve been.... im happy that you actually are fine now. I am going to a similar dilemma and would like to know if domeridone and THC are the ones that saved you from the situation
@@dryoochannel I didn't take the domparadone I threw the script out. THC and CBD are all I take to control my GP. The MJ is what saved my life with in minutes of my first hit which had to be shot gunned because I was so sick my nasua and vomiting stopped. My kidneys and liver are functioning at almost 100% again. My weight is back up to the one 160s after I lost almost half of me.
@@dryoochannel I know how terrifying it can be. Sometime you'll feel alone and like no one understands but I promise people do care and understand especially the ones who have been there and gone through it the best advice I can give is find a local gastroparesis support group or an online support group. Or you can reach out to me and ill be happy to answer any questions or just listen.
Thank you so much for tbe reply, im going to get a gastroscopy test tomorrow and ill see what exactly is the cause... but my nausea bloatedness is so severe and scared if its something worse... but again thanks for the kind words
Doctors ignored me until my lab work showed starvation and wasting. Post surgery I have gained 13lbs this past year. I still cannot eat comfortably and food hates me. I hate to eat, people say im anorexic but I don't care about looks. I want to gain weight. Its impossible
I'm so sorry that you're struggling and that it was so hard for you to get the attention and care that you deserve. Aside from the practical steps that I recommend in my Quick Start to Gastroparesis, I think it could be really helpful to just get curious about some of the things that look really true right now. For example, what if food doesn't hate you? What if food is totally neutral and completely impersonal? Similarly, what if the functions of your body are equally impersonal and, in fact, what if your body is doing the absolute best it can for you, despite whatever circumstance it's in? Sometimes a great deal of the stress that we feel around food and eating is wrapped up in these stories that our brains have made up that look very real and true. Not to say that our physical experience isn't real -- of course it is -- but just those feelings of hating eating, etc. are often lessened when we start to question the stories that our brain has been repeating to us. Just some food for thought! Sending good wishes your way.
thank you for sharing and easing my brain it was on overload, I do have slow emptying of my bowels and have not yet been diagnosed with Gastroparesis but I am Diabetic and experiencing peripheral neuropathy so I can see the writing on the walls. you have given me some peace of mind by realizing that we are all different and might not experience the same symptoms, Looking forward to viewing your coming videos. Thank you and continue with your peaceful therapy, you are to the point but much more optimistic than most of the doctors that talk about the problem with slow bowel emptying., May GOD continue to bless you and thanks again for sharing your story.
I haven't been diagnosed either but like you said the writing is on the wall. I like that one. Lol But I highly believe that my medication caused it. I'm on Zoloft (which I hate) and Gabapentin. Ugh. After all the latest information I've received its so hard to trust doctors these days. I'm 49 years old and I heard of so much medical malpractice. It's sickening. But atleast now I know it's not IBS. When I heard about the muscle not working it dawned on me THIS IS WHAT IT FEELS LIKE!! My stomach muscle tightens. So frustrating. I'm going to make a doctor appointment soon and get my blood tested for Diabetes 2. I do consume way too much sugar in my coffee. I just hope it's idiopathic. Diabetes 2 is actually treatable.
Pretty sure years of NSAIDS, opiates, and antibiotics coupled with excessive chronic post nasal drip caused my issue.
Similar issues, I can relate, I heard a chiropractor can help??? Something about the nerve being pinched? I had a major surgery last year to fix it and I still cannot eat but I no longer vomit 10x a day
Diagnosed in 2011 have had the issue with weight gain been following you a long time and read your books, so helpful
Thank you for all the important information. I was just diagnosed with gastroparesis. It frightened me at first, but you've helped put my mind at ease. I have to stay off the scale, because it frightens me every time I lose more weight. I've lost over 30 lbs. in a short amount of time. I purchased your book from Amazon today and I'm looking forward to reading it.
How are you doing now?
Any updates? I had a surgery last year and I still can barely eat. I have low pain but such food adversion. The idea or being told to eat is scary. I'm so scared of food causing me pain, sickness and sugar drops. I am not diabetic but I do get major drops in sugar and the shakes. I currently eat 2 foods and drink water/tea. SOS
This is the first helpful video I've found on GP. Thank you.
Thank you so much for all of the information on these videos. You have helped me so much. I truly appreciate you. My son is 25 years old and he was just diagnosed and I am trying to educate myself on this condition so I can help him better.
You are so welcome, Maria. Sending so many good wishes to your son!
Does he still have it? Did he have any neck pain/neck problems before the GP began? If so, look into cervical instability being a root cause. Dr. Ross Hauser at Caring Medical is the one who helped treat the ROOT CAUSE of my GP; it was a problem with the vagus nerve (impinged at the top of my spine) that was at the root. He is brilliant and has been researching this stuff for YEARRRRRS. These videos will help explain it:
ua-cam.com/video/-zBSm9Ouslc/v-deo.html
ua-cam.com/video/xa3tAMyqqtE/v-deo.html
ua-cam.com/video/JtJXEpKCZ3o/v-deo.html
Love the bucket analogy.
very insightful and calming to my mind. Thank you!
I had a major surgery to correct this 1 year ago and I cannot eat much. I don't know if I now am afraid of food but I have zero appetite, never hungry and only eat 2 things. I am afraid of that pain and never learned to eat post surgery. I need to learn to eat again but I hate eating 😢
This was so sensitive and helpful..
I took too many NSAIDS and gave myself gastritis. I was put on PPIs and when I went back for a follow up endoscopy, I had a stomach that was perfectly healed, but full of bile. The doctor said he suspects it to be Gastroparesis. I'm terrified. I really hope I can reverse it 😭
How are you doing now? I’m so sorry you went through all of this, and I hope that isn’t going to cause permanent problems for you too ♥︎
@bennym1326 I did the same. Same boat pretty scary. Any update?
@giancarlovassallo4594 hey mate. My digestion has improved drastically with probiotics and prebiotics. I still have bouts of functional dyspepsia which is similar to Gastroparesis, but only when I drink alcohol or too much coffee or greasy food. It has never quite returned to normal, my stomach is forever sensitive, but if I manage it I can almost live symptom free
I have the same problem. My lower denture hurts my gums, and my dentist suggested that I not wear them. I used only pureed foods. (At my Dr's suggested also.) I got so bored!!! So now I eat only soft foods, but I need lots of liquid after each couple of bites
I did the same. Good to hear you got some relief.
We do have to plan for the future and not just live right now. I love to travel and feel that trying to plan vacations is no longer possible. My last small trip I was in the room 80% of the time because I had to stay close to the restroom. Totally wasted vacation and I don’t want to plan any future trips.
That sucks. I know the feeling I don't have much of an exciting life myself but I take it one day at a time.
I hope the both of you have gotten better.
Thank You for all the great information !
Happy Thanksgiving 🍁
Living with gastroparesis sucks and hurts a lot. I’m in constant pain. I fear to eat anything because I’m scared of the pain it will cause. I’m constantly taking prn after prn. But no matter what there’s always pain
I'm sorry to hear you're struggling. If you haven't already, you might consider downloading my Quick Start Guide to GP Management to see if there's something in there that might help you: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
OMG I could have wrote this also. They did a surgery but never learned to eat again. I'm terrified of foods and down to 2 foods and tea. Now high cholesterol cause the 2 foods are highly processed. I'm so afraid of food due to pain. I'd rather starve than suffer that pain.
I just started having symptoms a few days ago. Gonna go get checked out. I dont know for sure if i have it. but I certainly had a painful experience a couple of nights ago.
Gastroparesis symptoms overlap with so many other conditions, so definitely a good idea to get things evaluated by your doctor. Typically doctors will rule out more common conditions first and then move on to motility testing like the gastric emptying study. I hope you feel better!
@@csaltrelli Trying Apple cider Vinegar in the mean time and eating smaller meals. I think my omaeprozol medication might be part of the problem. thanks for replying.
Thank you Crystal!
Amen.. Thank you so much for such great information.. 😇😇🙏🙏
ive also heard that lymes and thyroid disease can cause this😢
Thank you so much Crystal
Great video thank you
I have this and now on a nutritional drip for 12 hrs a day. Malnourished from this. I'm now on a low residue diet and now I'm able to eat some.
I'm glad you've found something that's helping!
I take a double dose diabetic friendly protein shake in the morning... skip lunch so my lazy stomach has extra time to move...then a regular size dinner... together with domperidone...now I don't have to take zofran any more
I’m so glad you’ve found what works for you! I’m also really glad you shared, as this is a great example of how the typical guidelines - small, frequent meals, for example - are really just that, and the best thing we can do, always, is listen to our gut and do what works for us individually. Sending good wishes!
Wow that's great. I'm gonna have to try that.
What about extreme cases where ppl have pumps and feeding tubes? I feel like they were left out completely.
I've talked about artificial nutrition and surgical intervention for those with severe gastroparesis in other videos but, as you said, those are extreme cases. Most people who are diagnosed with gastroparesis will not require artificial nutrition. The purpose of this video was to provide basic answers to questions that apply to most people when they are diagnosed. Hope that helps clarify and hope you found something helpful in it!
Thank you so so much 🙏
You're welcome, Anette! Hope the info was helpful for you.
Thanks!! 💜
Great content
Can Gastroparesis manifest even long after a heavy eating disorder?
Thank You
Crystal, I don’t know if I have Gastroparesis but I have symptoms for sure. I can’t sleep more than 2 hours since this started. Any suggestions on how to sleep with this?
What is it that's interfering with your sleep? Specific symptoms, general insomnia, anxiety?
I have no clue, my symptoms started a week ago. I’ve never had sleep problems in my life and the last 2 nights I’ve had insomnia.
@@csaltrelli I’m waking up with heartburn, that’s what I think the cause is.
Could include the vomiting due to a strong nausea just in the morning upon waking up and after throwing up cease ? Please help
I don't know whether you already have a diagnosis of gastroparesis but I either way, I definitely recommend talking with your doctor about your specific symptoms, as there are many things that can look like gastroparesis and vice versa. For example, vomiting in the morning and then feeling fine the rest of the day could be a result of something like GERD, or it could be due to gastroparesis from undigested food remaining in the stomach overnight, or something else entirely. We might expect that you'd have some symptoms at other times of the day with gastroparesis, but as I said, it's really important to talk with your doctor so that they can provide you with information based on your own health history and current situation.
@@csaltrelli thank you dear , I’m almost certain is Covid since cost me to breathe , I’ll test today to be certain
I was just diagnosed this year. Most days I feel I ky
I hope you've been able to find the information and support that you need. If you haven't already, I'd recommend downloading my Quick Start Guide to Gastroparesis Management. Someone in the comments recently called it "an excellent, easy-to-follow guide" and I think it's great for those who are newly diagnosed. Sending good wishes❤️
www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
I strongly suspect I have this due to having had really bad symptoms for over a decade but I didn't know this was a thing until this week because it took me that long to figure out that food not digesting was very likely the primary cause of the abdominal pain I get frequently (I'm autistic and mentally slow. I just don't figure stuff out that easily). I have an appointment to see a gastroenterologist tomorrow and I'm worried about what will happen if I'm right and I do have this. Just about everything I eat is a no no so I'd have to get used to an entirely different diet with none of the foods I like for the rest of my life. That makes me sad.
I'm so glad that you're seeing a doctor to hopefully get an answer as to what is causing your symptoms. That's definitely the first step and, remember, that's the only place you are right now. It's interesting how our brains get so far ahead of us, isn't it? If it is gatroparesis, then you'll be able to deal with that more readily in the moment (it always feels really, really hard to deal with something that might happen in the future because there's literally nothing we can do about it since it's not actually happening).
I totally understand feeling worried or sad about what a gastroparesis diagnosis might mean. It's so normal and human to have ALL kinds of feelings about a diagnosis like this. The one thing I'd love for you to know is that this condition is incredibly dynamic. If you are diagnosed and you do need to follow a diet that's very different than the one you're currently following, there's no guarantee that that's forever. In fact, I just posted a video recently with Megan, who is eating things she never thought she'd eat again. Things can definitely change over time.
And regardless of what comes, it is absolutely possible to live a happy, full life despite having a gastroparesis and even following a strict gastropareis friendly diet. AND it's totally okay to feel unsure and overwhelmed and sad when you get a diagnosis. We don't have to try to not feel those things because they will ebb and flow and we'll deal with what's in front of us in the meantime.
I'm really glad you're here and I hope you find the support and encouragement that you need if you are diagnosed.
Sending you LOTS of good wishes for your appointment tomorrow!
Look for Dr Darido at Houston Heartburn an Reflux Center. He has a procedure that has cured people of this disease🙏🙏
I don't have gastroparesis, I'm having tests that could confirm it or not, like nausea after eating, extreme weight loss, barely going to the toilet, etc.. so I have a swallow study, colonoscopy & gastroscopy along with a gastric emptying study..
I'm suspected of having MNGIE, which is a mitochondrial disease with many symptoms, including neurological, cardiovascular, and eye issues along with cognitive issues like in memory, attention etc..
Good info!👍
Glad it was helpful!
Can you do a video on Idiopathic gastroparesis? It's completely turned my life upside down. For months we didn't know if I was gonna make it out alive. My husband was my rock he spend many of nights rubbing my back and wiping my mouth and forehead than having to go to work 8 to 5 with only 3 hrs of sleep evenings, late at night/early morning are my problem times I've vomited in sleep.
I went to bed one night feeling off called my Dr. Told him what was going on and he said it was just either the flu or a cold and I'd be fine. Weeks turned in to months turned in to YEARS!!! go by and I'm getting worse AND WORSE I couldn't eat or drink more than a few bites before getting extremely full and sick. keep in mind I was 250 pounds when I started having issue by the time my dr.s got a handle on it I was 140 pounds I lost over Half of me in just a few short months. It got so bad I went to your docs in and this dr. Saved my life he actually took me seriously he did ever bloodwork test he could not long after he came back in the room and ask if I had HEP C because my liver markers were through the roof I guess he believed me by the shock on my face and in my voice (keep in mind I had laryngitis really bad and coukd hardly talk from my throat being so raw)I said wait thats needle drugs right? No I've never touched a drug like that in my life I cried cause I knew something was wrong and it wasn't "just all in my head"and no one listened till him turns out it wasn't HEP anything he referred me to his partners who ran some very uncomfortable tests had a camera shoved down my throat, had a gastric Emptying scan, had my nose and throat numbed and a camera shoved down my nose and throat to see how my swallowing was doing than having it yanked back out my nose I remeber panicking her first try and pulling it out cause I was scared it would get stuck and I'd either die or I'd have to be cut from nose to stomach to get the probe out. After 3 years my symptoms are under control my weight is up and stabilized at 165 my liver and kidneys are back to almost 100% and no thanks to my GI Dr. His solution was to TRY ME ON EVERY oral anti nasua meds HE COULD THINK OF INCLUDING a medicine called DOMPARADONE that I couldn't get at any legal US pharmacy because the side effect are so awful its ban so i would have had to smuggle in an illegal medicine in to the USA which I'm sure the DEA wouldn't have APPRECIATED or I could go more invasive and we could do a PORT or an IV line to run fluids and IV anti nasua meds and a feeding tube. After doing my own research i didn't like all the complications that came with invasive treatments so I kindly passed. Thank you to the girl in my support group who came over one day after my husband was at his wits end and told me about the medical MJ program and how the CBC oil controls the vomiting and nasua while the THC will make you wanna eat like no tomorrow. Having that conversation with my PCP changed my life he got me on the program all these years later you wouldn't know I have gastroparesis unless I tell you.
Wow i cannot even imagine how terrifying that wouldve been.... im happy that you actually are fine now. I am going to a similar dilemma and would like to know if domeridone and THC are the ones that saved you from the situation
@@dryoochannel I didn't take the domparadone I threw the script out. THC and CBD are all I take to control my GP. The MJ is what saved my life with in minutes of my first hit which had to be shot gunned because I was so sick my nasua and vomiting stopped. My kidneys and liver are functioning at almost 100% again. My weight is back up to the one 160s after I lost almost half of me.
@@dryoochannel I know how terrifying it can be. Sometime you'll feel alone and like no one understands but I promise people do care and understand especially the ones who have been there and gone through it the best advice I can give is find a local gastroparesis support group or an online support group. Or you can reach out to me and ill be happy to answer any questions or just listen.
Thank you so much for tbe reply, im going to get a gastroscopy test tomorrow and ill see what exactly is the cause... but my nausea bloatedness is so severe and scared if its something worse... but again thanks for the kind words
Small meals help?
Doctors ignored me until my lab work showed starvation and wasting. Post surgery I have gained 13lbs this past year. I still cannot eat comfortably and food hates me. I hate to eat, people say im anorexic but I don't care about looks. I want to gain weight. Its impossible
I'm so sorry that you're struggling and that it was so hard for you to get the attention and care that you deserve. Aside from the practical steps that I recommend in my Quick Start to Gastroparesis, I think it could be really helpful to just get curious about some of the things that look really true right now. For example, what if food doesn't hate you? What if food is totally neutral and completely impersonal? Similarly, what if the functions of your body are equally impersonal and, in fact, what if your body is doing the absolute best it can for you, despite whatever circumstance it's in? Sometimes a great deal of the stress that we feel around food and eating is wrapped up in these stories that our brains have made up that look very real and true. Not to say that our physical experience isn't real -- of course it is -- but just those feelings of hating eating, etc. are often lessened when we start to question the stories that our brain has been repeating to us. Just some food for thought! Sending good wishes your way.
Where can I find a Doctor that won't play God with the medicine again.