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Crystal Saltrelli, CHC
Приєднався 12 чер 2009
Hi, I'm Crystal. I was diagnosed with idiopathic gastroparesis in 2004 at the age of 23. My experience with the condition has run the gamut, from being terribly sick, malnourished, and all but hopeless to being a happy 40-something wife, mom, and dual-certified coach, truly living WELL with gastroparesis!
Since 2010, I've been helping others with gastroparesis feel better and improve their quality of life. I truly believe that it is possible to live WELL after a gastroparesis diagnosis and that the possibility for change always exists -- regardless of the severity of your symptoms or how long you've had the condition.
Find my books on Amazon:
- Living (Well!) with Gastroparesis: bit.ly/gastroparesisbook
- Eating for Gastroparesis: bit.ly/eatingforgp
More on my website:
www.livingwellwithgastroparesis.com
Since 2010, I've been helping others with gastroparesis feel better and improve their quality of life. I truly believe that it is possible to live WELL after a gastroparesis diagnosis and that the possibility for change always exists -- regardless of the severity of your symptoms or how long you've had the condition.
Find my books on Amazon:
- Living (Well!) with Gastroparesis: bit.ly/gastroparesisbook
- Eating for Gastroparesis: bit.ly/eatingforgp
More on my website:
www.livingwellwithgastroparesis.com
Ep 5: How to Worry Less (with Lily Sais)
This is the latest episode of my new podcast, Living Well (When You Don't Feel Well). In this episode, we’re joined by Lily Sais, a coach and popular content creator who shares her journey with anxiety, disordered eating, and type 1 diabetes.
Our conversation with Lily centers on how we can take really good care of ourselves without worrying or obsessing about our health. We also talk about the importance of self-compassion, the ways we get caught up in overthinking - sometimes without even realizing it, and how sending our brain on a metaphorical holiday can bring about more clarity and peace.
If you're worrying a lot about having gastroparesis or struggling with anxiety around your health, this episode is for you!
To hear more episodes and join our community, visit livingwellpod.substack.com.
Our conversation with Lily centers on how we can take really good care of ourselves without worrying or obsessing about our health. We also talk about the importance of self-compassion, the ways we get caught up in overthinking - sometimes without even realizing it, and how sending our brain on a metaphorical holiday can bring about more clarity and peace.
If you're worrying a lot about having gastroparesis or struggling with anxiety around your health, this episode is for you!
To hear more episodes and join our community, visit livingwellpod.substack.com.
Переглядів: 144
Відео
It's been 20 years since I was diagnosed with gastroparesis. What's next for me & this channel?
Переглядів 1,3 тис.3 місяці тому
I was diagnosed with idiopathic gastroparesis in 2004 at the age of 23. It's now 2024 and I just turned 43. What a ride it's been! In this video, I'll share a personal update: what's life like 20 years after a gastroparesis diagnosis? I'll also discuss what's next for this channel and tell you about my latest project, a podcast called Living Well (When You Don't Feel Well). If you've been helpe...
A guided meditation to help you navigate gastroparesis
Переглядів 4316 місяців тому
If you're: - feeling stressed about navigating life with gastroparesis - trying to figure out what to do or how to move forward - constantly searching for answers and solutions on social media - in need of a few minutes of peace and relaxation ... then this guided meditation is for you. Join me for six restful minutes as we tap into our own inner wisdom. (And please let me know in the comments ...
Struggling with reflux? Here's what's helping me...
Переглядів 1,1 тис.6 місяців тому
Reflux has always been one of my most significant (and hard to manage) symptoms of gastroparesis. I recently came across two new products Arrae Heartburn and HartSpan Khelp and decided to give them a try. In this video, I'll share my experience (hint: very positive!) and offer a reminder about what's often going on when those of us with gastroparesis are struggling with reflux. As always, I am ...
From struggling with gastroparesis & anxiety to a bucket list adventure in the Grand Canyon
Переглядів 598Рік тому
In this video, I'm sharing what my hike to the bottom of the Grand Canyon has to do with living WELL with gastroparesis. I have some practical tips if you're hoping to take on a big adventure yourself while managing gastroparesis but more than anything, I hope this inspires you to think beyond your symptom management plan and do things that remind you just how expansive, capable, and resilient ...
My New Gastroparesis Diet Book! *All about the new edition of Eating for Gastroparesis*
Переглядів 3,2 тис.Рік тому
I’m excited to share that a brand new edition of Eating for Gastroparesis is now available for purchase on Amazon. I spent the last several months completely rewriting this book and I have to say, I think it’s the best thing I’ve produced to date! Link to purchase on Amazon: amzn.to/3XBchMv It’s everything that was helpful and informative about the previous editions combined with my newer train...
A little encouragement if gastroparesis feels scary right now...
Переглядів 2,2 тис.2 роки тому
This is an impromptu "pep talk" of sorts for anyone feeling scared, overwhelmed or otherwise struggling with gastroparesis. Whether you're newly diagnosed or not so newly diagnosed, if you're having a hard time right now, I hope this video brings you some measure of comfort. If this resonates with you, be sure to check out my new online program, Thriving with Gastroparesis: www.livingwellwithga...
Why am I still talking about gastroparesis after more than a decade?
Переглядів 1,5 тис.2 роки тому
I've been coaching, writing, and talking about living WELL with gastroparesis for over a decade now and, despite repeatedly thinking it was time to move on, I'm still here! It recently occurred to me that the reason I continue to create content is because what I'm able to share now feels like some of the most important stuff I've ever shared. It seems to me that *this* is what living WELL is re...
Megan's Gastroparesis Story: "I'm not afraid anymore."
Переглядів 5 тис.3 роки тому
Megan's Gastroparesis Story: "I'm not afraid anymore."
Traveling with Gastroparesis: My Must Haves
Переглядів 9 тис.3 роки тому
Traveling with Gastroparesis: My Must Haves
Ask Crystal: "Gastroparesis symptoms are ruining my vacation... how can I savage it?"
Переглядів 8513 роки тому
Ask Crystal: "Gastroparesis symptoms are ruining my vacation... how can I savage it?"
Ask Crystal: "Can gastroparesis go away forever?"
Переглядів 2,6 тис.3 роки тому
Ask Crystal: "Can gastroparesis go away forever?"
Covid-19 and Gastroparesis: My Motility Specialist Answers Your Questions
Переглядів 4,1 тис.3 роки тому
Covid-19 and Gastroparesis: My Motility Specialist Answers Your Questions
Ten (Updated!) Gastroparesis Diet Guidelines
Переглядів 61 тис.3 роки тому
Ten (Updated!) Gastroparesis Diet Guidelines
Gastroparesis FAQ: What is gastroparesis? Will it get worse? Is there a cure?
Переглядів 10 тис.3 роки тому
Gastroparesis FAQ: What is gastroparesis? Will it get worse? Is there a cure?
From Existing to Living: Samantha's Inside-Out Gastroparesis Story
Переглядів 2,4 тис.3 роки тому
From Existing to Living: Samantha's Inside-Out Gastroparesis Story
My Gastroparesis Story: Finding Freedom After 17 Years
Переглядів 13 тис.3 роки тому
My Gastroparesis Story: Finding Freedom After 17 Years
Review of Gastroparesis: A Road Map for Your Journey
Переглядів 6837 років тому
Review of Gastroparesis: A Road Map for Your Journey
Review: The Gastroparesis Healing Diet by Tammy Chang
Переглядів 2,5 тис.7 років тому
Review: The Gastroparesis Healing Diet by Tammy Chang
FAQ: Is gastroparesis progressive? Will symptoms get worse?
Переглядів 17 тис.8 років тому
FAQ: Is gastroparesis progressive? Will symptoms get worse?
Six Year Update: Gastric Pacemaker / Neurostimulator / Enterra for Gastroparesis Treatment
Переглядів 8 тис.8 років тому
Six Year Update: Gastric Pacemaker / Neurostimulator / Enterra for Gastroparesis Treatment
Gastroparesis Treatment: Self-Care for Gastroparesis
Переглядів 5 тис.9 років тому
Gastroparesis Treatment: Self-Care for Gastroparesis
Review: PlantFusion Complete Plant Protein vs. Vegan Orgain
Переглядів 4,9 тис.9 років тому
Review: PlantFusion Complete Plant Protein vs. Vegan Orgain
Ask Crystal: Acid Reflux & Gastroparesis
Переглядів 8 тис.9 років тому
Ask Crystal: Acid Reflux & Gastroparesis
FAQ Friday: What is Leaky Gut? Does it cause gastroparesis?
Переглядів 2,9 тис.10 років тому
FAQ Friday: What is Leaky Gut? Does it cause gastroparesis?
Understanding Gastroparesis & Gastroparesis Treatment (Presented to WNY Mito Group, November 2013)
Переглядів 10 тис.10 років тому
Understanding Gastroparesis & Gastroparesis Treatment (Presented to WNY Mito Group, November 2013)
Traveling with Gastroparesis: Tips, Food to Bring, & Product Suggestions
Переглядів 11 тис.11 років тому
Traveling with Gastroparesis: Tips, Food to Bring, & Product Suggestions
Why am I gaining weight with gastroparesis?
Переглядів 24 тис.12 років тому
Why am I gaining weight with gastroparesis?
Managing Gastroparesis Symptoms with Diet / Can Gastroparesis Improve?
Переглядів 8 тис.12 років тому
Managing Gastroparesis Symptoms with Diet / Can Gastroparesis Improve?
Gastroparesis-Friendly Juicing: Tips & Tricks
Переглядів 4,3 тис.12 років тому
Gastroparesis-Friendly Juicing: Tips & Tricks
Thank you so much for sharing! I was told yesterday by my doctor that this is likely what’s happening to me now. After watching this interview, my anxiety has gone down 💗
This video was really encouraging. Thank you for your story.
Thank you for this video
Hi, I am new on board to my diagnosis of this. I watch a few videos of yours trying to research . Thank you for showing me it’s a light at the end of the tunnel.
Any vegan replacement drinks for a person with gastroparesis?
i really needed to hear this, especially the part about online groups. the first thing i did is look up people with this illness and it terrify me to no end and ruined my mental health. i was (still am) constantly worrying about future thanks to the things i read online
I'm so glad that you found this video and I hope it helped to put your mind at ease. ❤
Beautiful approach! This helps. Thank you.
So glad it was helpful!
Hi Crystal! May I ask what other diagnoses do you have? Thank you! From a fellow GP survivor:)
Hi! Aside from GP, I also have Ehlers Danlos Syndrome, IBS, LPR/airway reflux, allergies/asthma, and SVT. I was diagnosed with POTS in the past but that doesn’t seem to be an issue for me anymore.
Thanks so much Crystal! What are your EDS symptoms? I have idiopathic GP and trying to find a cause :) thank you.
Thank you soooo much Crystal for sharing abt the condition and tips and tricks to deal with !!! God bless you❤️
Grateful for the opportunity to help others!
Amazing explanation
I am newly diagnosed 2 weeks, I am losing a pound a day. If I eat I am in so much pain, so I am living on baby food and cup of soups. I don’t know what to do really.
Hi, Rachel. I'm so sorry to hear that you're struggling. It can be really overwhelming and scary in the beginning but it won't feel like that forever. Do you have my Quick Start Guide to Gastroparesis Management? If not, I would download that and start there. There's a lot that we can do to help reduce symptoms: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
THANK YOU SO MUCH FOR COMING BACK!!!! I need your knowledge & advice please I’m so so miserable & im in my 20s 😫😖
I'm sorry that you're struggling, Sabrina. I've been where you are -- I was also quite miserable with all of this for most of my 20s. The "good" news is, things can change so much with time. Have you been listening to my new podcast? You might hear something that helps to alleviate some of the misery: livingwellpod.substack.com/podcast
You give me so much hope thank you 🙏🏽 😊
So glad to hear that, Destiny!! (And you might also like my new podcast then! livingwellpod.substack.com/podcast)
Thank you, so very much.
thank you
I I’m struggling with it really bad. My body is really sick. I don’t have many doctors here that are trying to help me right now. I’m seeing a new doctor tomorrow. I’m hoping I get good results.
I'm so sorry you're struggling right now ❤️ Do you have my Quick Start Guide to Gastroparesis Management? If not, it'll guide through putting together a plan to help you feel better. You can download it here: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
You always make things feel so manageable!
Jordan, that's the biggest compliment, thank you! I know all of this can feel so overwhelming but we're much more capable than we realize ♥
Just got diagnosed, this was so helpful, l know this is an old video and you probably don’t do video’s anymore but thanks 👍🏼
Joann, I'm so glad this was helpful for you! I'm not creating new videos right now but feedback like this sometimes makes me reconsider 🤔. (I do have a weekly podcast, though, if that might be helpful to you: livingwellpod.substack.com/)
What an uplifting story! I feel better already! 💪🏻
I'm so glad this resonated with you, Deborah ❤️ On my podcast recently we were talking about how hearing someone else's "success" story is sometimes what our brains need to realize there are other possibilities for us despite the diagnosis and our current experience. I think that's my favorite kind of hope. livingwellpod.substack.com/p/is-hope-helpful
This is so inspiring! I am dealing with a gastroparesis flareup and have struggled with health anxiety. I very much needed to hear this. Thank you both.
I'm so glad this was helpful to you!!
In support drinks Beware of MALTODEXTRIN !😮
Did you have a biopsy before ur pacemaker surgery to see if you had a lack of pacemaker cells/ ICCs?
Hi Leah. No, I don't believe so.
Hello, what if I have both celiac and gastroparesis? Do you have meal plans for me, I am also suppose to eat every 2 hours because I am a diabetic.
Hi, Cynthia. This blog post might be helpful for you: www.livingwellwithgastroparesis.com/blog/faq-how-do-i-manage-multiple-dietary-requirements I personally eat a gluten-free, gastroparesis-friendly diet so it's definitely possible!
Hubby was finally diagnosed after months of terrible pain and drastic weight loss. After downloading a diet and seeing what he couldn't eat, he has gotten pretty depressed. We were already on a restrictive diabetic diet so this was a real whammy. I found your site and ordered your book from Amazon. There is so little out there dealing with this that you are really doing a necessary job and we thank you.
Nancy, I hope the book has been helpful for your husband. I know this can be so overwhelming when you're first diagnosed.
@@csaltrelli It has and I've read it cover to cover. Thank you again for bringing this little known condition to light.
I get bad bad extremely bad Gerd... It burns so bad that feels like my body is burning.. also my pulse rate goes up ans I feel so hot.. I am watching this video while suffering... In my country it is 4:30am and I am still awake due to the intense buring and suffocation. I am taking Dexlanprazole 60mg as ppi, Rantac 300mg as H2 inhibitor, also Acotinamide 300mg for increasing motility. Then also I keep facing nights like this... I don't understand why... I can't go to any restaurant and eat anything at all these days. Just clear soups that's it. Boiled kind food at home... I am only 31... I don't know what to do. I have seen many gastroenterologists...
I now live totally on TPN because of gastroparesis.
I look pregnant after barely a quarter of a bread and yogurt.. I have so many symptoms along with multiple conditions, and a lot of tests to perform including colonoscopy and gastroscopy, swallow study and gastric emptying (also many othet tests for the heart and lungs, I'm handful 😅).. Thing is those fancy tests take time to perform and I'm very disabled at this point and very very underweight.. Thank you for sharing 🙏🏼
Thankyou
I have a feeding tube do to gastroparesis
I'm glad that you're getting the nutritional support you need ❤️
It seems like A LOT! 😳Makes me stressed to try n go somewhere!
I'm sorry to hear that! You certainly don't have to do or bring everything that I do but I travel quite often and I really love it, so it's worth spending a little extra time preparing.
Thank you for this great video.
Glad it was helpful!
I don't have gastroparesis, I'm having tests that could confirm it or not, like nausea after eating, extreme weight loss, barely going to the toilet, etc.. so I have a swallow study, colonoscopy & gastroscopy along with a gastric emptying study.. I'm suspected of having MNGIE, which is a mitochondrial disease with many symptoms, including neurological, cardiovascular, and eye issues along with cognitive issues like in memory, attention etc..
How do I not suffer when I’m having these symptoms? Thank you very much for at least giving us hope and for talking about this.
Hi Victoria. I'm so glad you're here and this question is one of my favorite things to talk about. To be clear, I'm not saying that anyone else should have any particular experience of gastroparesis but, for me, seeing that my experience of life comes from my thinking rather than my circumstances has really changed things for me. It's not that we like or enjoy having symptoms -- I certainly don't -- but what I've seen and experienced is how much less we suffer when we don't add a bunch of painful thoughts and emotions on top of that physical pain. This blog might help to clarify things a bit more: www.livingwellwithgastroparesis.com/blog/the-emotional-side-of-gp Also, if you haven't listened to my new podcast Living Well (When You Don't Feel Well), I highly recommend it. It's literally all about this very thing. ua-cam.com/play/PLXAk_p_qTXyaIbov1H0RfJhkfSXME_wD4.html Sending lots of good wishes your way!
@csaltrelli Thank you very much for explaining that. I really appreciate it. I was really suffering last night with a lot stomach pain in the center of my stomach and I felt at a despair and self pity moment when I asked God to help me and I came across your video and a doctor who was answering all gut related questions and she answered my questions. All Thanks to God.
ua-cam.com/users/liveIPqZpWv0vkE?si=hjrZ-yP_Ih0WVXSH
Just had a thought. This is supposed to affect women more than men. Women wear for the most part bras which are restrictive and could be making problems worse.
Yes, restrictive clothing can definitely exacerbate symptoms like pain, bloating, and reflux. Personally, I only wear wire-free bras and I wear them looser than I "should." I don't ever wear compression undergarments like Spanx, etc. or pants with compression panels, and no tight waistbands or belts. That's not necessary for everyone with GP, per se, but I think it's an important consideration. I don't see how our organs can work optimally when we're smooshing them all together in there!
A lot of people say it helps with gastric emptying as well was that not your experience?
No, that wasn't my experience. Enterra therapy is really intended to alleviate the nausea and vomiting associated with gastroparesis rather than speed up gastric emptying. Some people do experience improved gastric emptying but based on the studies I've read, the majority do not.
I'm so glad I found you. ❤
So glad you're here!
What about extreme cases where ppl have pumps and feeding tubes? I feel like they were left out completely.
I've talked about artificial nutrition and surgical intervention for those with severe gastroparesis in other videos but, as you said, those are extreme cases. Most people who are diagnosed with gastroparesis will not require artificial nutrition. The purpose of this video was to provide basic answers to questions that apply to most people when they are diagnosed. Hope that helps clarify and hope you found something helpful in it!
Thanks for the dietary information!! I have been able to walk off the abdominal pain. Sometimes it takes about 45 min of exercise to decrease the pain or completely resolve the pain. Since most of my episodes are during the night, it makes sense that when I'm moving around during the day, digestion is improved. Also applying a thermal heat pack directly over my umbilicus helps during an acute attack.
Yes, physical activity, especially walking, can be so helpful! That's my go-to, as well. Glad you've found what works for you!
Did any natural prokinetics ever work for you - ginger, artichoke etc? Also, was the abdominal massages you used to receive due to ur EDS able to be done at home? I’m curious if I could try something similar on myself.
I've tried all kinds of herbal things over the years and ginger has been the one that I continue to use, more for the anti-nausea properties than as a prokinetic, though. I have a post about it here: www.livingwellwithgastroparesis.com/blog/gastroparesis-ginger?rq=ginger Iberogast was also helpful to me, more as a prokinetic: www.livingwellwithgastroparesis.com/blog/iberogast-for-dyspepsia-gp-ibs?rq=iberogast As far as the abdominal work, I don't think I would do it myself unless instructed by a practitioner. I've had a lot of abdominal work that has made my symptoms significantly worse and I wouldn't want to do that to myself!
@@csaltrelli thank you!! Do you still go for those massages that helped? Just found out I have EDS, so looking for treatments
I don't because my practitioner retired and I haven't found anyone else who does the same kind of bodywork. Fortunately, my EDS symptoms have been much less bothersome over the last couple of years, I think largely related to a reduction in mind-body stress (the pandemic was really hard for me).
Hello, I missed seeing you out here.... Yeah I understand how you can get tired of talking about it....but I came along at the end of you being out there. So very good to see you again!💙💙💙💙
Thank you! I've been so touched by the response and have come to see that the kind of content I create is really wanted and needed... so we'll see what happens!
I was just diagnosed this year. Most days I feel I ky
I hope you've been able to find the information and support that you need. If you haven't already, I'd recommend downloading my Quick Start Guide to Gastroparesis Management. Someone in the comments recently called it "an excellent, easy-to-follow guide" and I think it's great for those who are newly diagnosed. Sending good wishes❤️ www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
HI you still around. Info. Good ,I think I've had it for quit some time, but maybe haded longer? I'm 71 yrs with its own story since I was 25 yrs .it's been a life of pain, but I've learned to deal day by day. From ilda b,m.😮
Day by day is it exactly -- that's how it all unfolds. I hope you've found information and support that's helpful to you. Sending good wishes ❤️
I am never hungry with my GP. If I eat anything when I am not hungry, I have projectile vomiting. I was told that I need to eat 6 to eight small snacks a day. I can't do that. I also have a liver malformations and it causes pancreatitis when my liver decides to let bile out.
I'm sorry to hear that you're struggling with GP, as well as the additional issues. I hope your doctors are helping you find the right plan/solution for you right now. There's definitely no one-size-fits-all and if you're not able to eat the small, frequent meals, I would continue to ask about other treatment options so that you can get adequate nutrition. Sending good wishes ❤️
Crazy, just got diagnosed with this. Looked on you tube, you came up. Looked back at my drs notes and you were listed s a resource, university of michigan. Glad Im at the right place. Thanks for everything you do. Any advice for a newbie?
Glad you're here! I recommend downloading my Quick Start Guide to Gastroparesis Management. It's a 30-page eBook that will make sure you fully understand the diagnosis and take you step by step through creating and implementing your own management plan. It's very straight forward and actionable and I think it's a great place to start when you're newly diagnosed: www.livingwellwithgastroparesis.com/quick-start-guide-to-gastroparesis-management
Nutrition shakes available??
I’ve had stomach problems for a long time now and looked up my symptoms and gastroparesis seem to fit my symptoms very well. Plus, I had also had stomach surgery when I was 18. I’ve mentioned this to several doctors and even been to see G.I. doctors, but they all dismiss it without asking any questions.
I'm sorry you're having a hard time getting an answer as to what's going on. Gastroparesis has symptoms in common with so many other conditions that proper diagnostic testing is important. You want to ask for a gastric emptying study. It's a noninvasive test that will tell you whether or not you have delayed gastric emptying. The criteria for a gastroparesis diagnosis are a documented delay in gastric emptying, symptoms of gastroparesis, and the exclusion of other possible causes (blockages, structural abnormalities, etc.). I would try again to talk with your doctor(s) about your symptoms and your concern about gastroparesis, and specifically request the gastric emptying study, if necessary. Hope that helps!
I just started having symptoms a few days ago. Gonna go get checked out. I dont know for sure if i have it. but I certainly had a painful experience a couple of nights ago.
Gastroparesis symptoms overlap with so many other conditions, so definitely a good idea to get things evaluated by your doctor. Typically doctors will rule out more common conditions first and then move on to motility testing like the gastric emptying study. I hope you feel better!
@@csaltrelli Trying Apple cider Vinegar in the mean time and eating smaller meals. I think my omaeprozol medication might be part of the problem. thanks for replying.
I have this and now on a nutritional drip for 12 hrs a day. Malnourished from this. I'm now on a low residue diet and now I'm able to eat some.
I'm glad you've found something that's helping!
Could include the vomiting due to a strong nausea just in the morning upon waking up and after throwing up cease ? Please help
I don't know whether you already have a diagnosis of gastroparesis but I either way, I definitely recommend talking with your doctor about your specific symptoms, as there are many things that can look like gastroparesis and vice versa. For example, vomiting in the morning and then feeling fine the rest of the day could be a result of something like GERD, or it could be due to gastroparesis from undigested food remaining in the stomach overnight, or something else entirely. We might expect that you'd have some symptoms at other times of the day with gastroparesis, but as I said, it's really important to talk with your doctor so that they can provide you with information based on your own health history and current situation.
@@csaltrelli thank you dear , I’m almost certain is Covid since cost me to breathe , I’ll test today to be certain
I had a similar experience, my gastroparesis got worse and the doctor discharged me. Nice to see you back Crystal.