The Faces of Batten Disease

[@elnabjelland-hughes8172]

I read somewhere that gene therapy trials are ongoing - also children have had the missing enzyme infused into their brains with good effect - this is also ongoing

[@Fsociety046]

Please update about this family

[@cjm6757]

This has to be the worst disease imaginable.

[@FluffyEclairs]

Absolutely. It's been described elsewhere as childhood dementia. You watch your parents fade away, not your kids.

[@kamilyvictoria2063]

😢😢😢😢

[@legaretanya1707]

Est-ce queSad
Tis girl. Ded
Parents parents
So good. Tis girl she. Ange 👼
Died. So yong
C’est vraiment triste 😢
Une petite fille qui descender
Pauvre parents C’est vraiment. Si 👧 à cause de syndrome
C’est très triste 😢
C’est la vie Personne peut être éternel.
De Tanya Canada
C’est la vie qui décide
Espère ouvrir vidéos
Beaucoup des émotions 😢😢😢😢😢

[@marlo3944]

L un

[@janyahmurrpet7923]

Ok