Achalasia: My Story, My Experience, & What I've Learned
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- Опубліковано 6 жов 2014
- Check out my updated video here: • About My Achalasia | J...
Sharing my Achalasia story for those researching and wanting to hear more from others who have it. I encourage you to also share your story as well.
I found this site to be helpful when looking for more information:
www.medicinenet.com/achalasia/...
Thank you for sharing your experience. I'm also living with Achalasia. I am 53 years now and was diagnosed that I had Achalasia 4 years ago at Mayo Clinic in South Africa .Since then , I haven't had any Surgery at all but I continue fighting for my life each and every day . My wife and children have all been so supportive during this journey. What I've learnt as an Achalasia warrior is that we must never give up. Self discipline and confidence are key to us warriors, because every breakfast time, lunch time and supper times are like war zones. Eating gluten free foods is also key to us Achalasia patients and one other thing I've mastered is to always stand up whenever I'm eating . Since my LES is not functioning, I've to have 2 litres bottle of liquid preferably non carbonated to push my food into the stomach. I'm still try to save some money so that I will go for an operational a cost of R40000 approximately equivalent to $2500. I still believe that soon I will get this amount and do the operation .
Which operation?
He probably is referring to Heller Myotomy.
God bless you. Wish you all the best
I can totally relate the agony of not able to swallow ur food ! I myself underwent POEM last year Thankfully it recovered..More power to achlasians 💪✌
I’m hoping to join you soon, meeting today to go over poem procedure.
How you doing now after 3 years of POEM
Thank you! For sharing I was diagnosed last year, I have lived miserable for a year and half. It has been tormentous for me and my family. I finally got the Pome surgery a couple of days ago.
I am 18 and just diagnosed with achalasia and I will have surgery in May. I have just had Botox injections in my sphincter and it helps but not completely. I'm so glad to know that someone else had achalasia at a young age and got through surgery and recovery because everything I have seen is with older adults. Your story really brightened my thoughts on this whole process of living with this disorder.
How did they diagnose you ? With endoscopy?
29 years old and I have had alkolasia for 6 years ... I can't keep anything down getting ready for surgery here in the next 6 months I hope this works 😔 🙏 😪
My manometry is on November 14 2018 at UCLA. This pain and lack of food is sheer misery.
It does help you pray more.
How are you now?
My dad just passed last week due to complications from Achalasia. He suffered terribly and was only 76.
Thank you for your warm frankness!
Thanks for sharing JB! Good to know there's others of us out there. Stay Strong!
Man i understand every bit of what you’re saying I’m going through the same thing I’m waiting on my second surgery thanks for the video
Thank you sharing! I am currently studying this right now and this was so helpful.
Thank you for the video. My 22yr old is going through it now. Many similarities.
Your story is helping others understand this disorder.
My best wishes, from across the pond in Ireland.
Thank you so much for sharing. My autistic son wad diagnosed with achalasia and wad treated with the heller myotomy procedure as well. He also lost a lot of weight before they finally figured out what was wrong. Everything you said was very true and helpful.
Thank you for this video. I have been diagnosed with Achalasia recently and awaiting surgery. I appreciate your advice and thanks again for sharing
Thanks for sharing this especially right now when my mom is going through the same. It really hurts seeing someone you love go through something unexpected and scary but hopefully she will get better ❤
You did a amazing job with collaborating what is Achalasia. I’m 33 I just was Diagnosed with it 9/8/21 this was the hardest process to deal with. Some people don’t understand the weight lost smh. But it’s the water or going out to eat for me i felt the same way smh omg. I’m like lord please heal my body. But I think you for this video it gives me some peace to know I’m not all by myself.
Thanks for sharing. I have suffered achalasia for a couple years now. It's a struggle. Trying to get surgery to make it easier. Your video gives me hope as you seem to be doing fine and are positive. Thanks.
Thank you for this video! I was diagnosed a few months ago after over a year of tests and I'm waiting for a stretch, the type I have effects my entire oesophageal pipe so I can't have the Botox and they aren't sure about the surgery. This can be such a lonely disorder to have because people don't understand why you can't just have a drink or eat something smaller! It feels so nice to see the comments and know you're not the only person going through it. Hope you are dealing with it well x
I have II Achalasia and have had a manometry test at Stanford. The test was hell! It took nearly 2 hours and felt like torture. I have had days of vomiting 20 times. I get so hungry, I keep eating small amounts to try and feel satisfied. I will be having a procedure soon, but not sure which yet. Hang in there people, it's hard to live with, but I'll pray for us all to be healed.
@@lindarockwell3729 did you get your achalasia treated? I just got diagnosed with type 2 achalasia and I was told I need surgery. Don't know what to do?
Thank you for sharing your experience with us. Thank you for your positive outlook and your tips/recommendations on what you should/should eat. I want to mention, in case you and viewers are not aware, that there are Achalasia support groups out there.now. There are support groups on facebook such as the one I'm in called Achalasia Questions and Answers support group. It is a wonderful group. It's a closed group so to get in you have to answer a couple questions and then you get approved and become a member of the group. God bless you🙏God bless all with Achalasia🙏.
Joonya, Thank You I'm 67 and just found out Achalasia is my problem. Your the first one I found that shared their experience. thank you.
Hi, Junya Bunya, I am so glad to have found you tonight. I've got Achalasia, too. I had a Heller's Myotomy in 2006 without a fundoplication. I was doing all right for several years and then the swallowing problems returned. The foam returned. And I started aspirating liquids, including saliva, which is a real bummer. But, now it's 2017 and I am doing better. I have good days and really lousy days but at least I know what's going on. I just wanted to check-in with you and I hope you are having good swallowing, living your life without too much pain or esophageal trouble and, thank you so much for your UA-cam video! I like to think of us, The Achalasians, (it almost sounds like Greek mythology, doesn't it!) as a sort of tribe of survivors who know, deep down inside ourselves, that we will deal with this strange swallowing problem and always, always come through the troubles with fearless success! Wishing you all the best, Deborah Nourse Lattimore
Thanks for sharing. I had a dilation as a way to make it through the first wave of COVID here in NJ. Then was finally able to have the POEM procedure this past July.
Oh hi I'm from NJ how r u doing with the poem surgery
Thank you so much for this positive video, it’s nice to know I’m not alone. Means a lot ♥️
I recently found out that I have type 2 achalacia I’m 37 did the poem surgery and doing well hope you are doing well wish you soon recovery
I’ve had 2 failed HM’s and ended up having an esophagectomy in 2016. I’m seeing another surgeon to have a Pyloromyotomy because my stomach became damaged during my esophagectomy. Best of luck to you and everyone who suffers from this horrible disease
Thank you Sensei! Been doing the dance for 2 years. Just figuring out how to live with this. You give me hope. With hope anything is possible. Anything
I had it for 24 years with no medicine or surgery mild exercise has helped me
thank you so much for sharing! this was so helpful!!!
Thank you guys for sharing honestly I've been in pain for years now and I recently had a strep throat I believe I had COVID and didn't know now I'm dealing with flu symptoms such as nausea and body aches so having a disease that makes all of that worst is heartbreaking. I'm currently waiting on a answer on what the best option my insurance is delaying the process but I trust God we're suffering in science. Thank you thank you 💗
I was diagnosed with achalasia in 2005 after several years of swallowing issues. I had the HM with fundoplication at that time and it has been so much better since. Still need water to help get anything down but so much better than before the surgery. Seems mostly stable for the past few years but always conscious about foods potentially getting stuck. It never gets normal but livable.
Thank you for sharing your story. I just had the heller myotomy and I'm able to eat a lot more. It's almost going on two months now. For the most part everything is find but I have like muscle spasms every now and then where I was cut.
God bless you, I had issues for 18 years and doctors recently diagnosed me a few months ago. Botox did not work for me, they will do POEM procedure next Tuesday. I hope everything goes well and I can heal from this monster.
I have my POEM procedure Next Tuesday and this video was very helpful I have lost about 12 pounds but I’m glad I’m getting it taken care of early I’m just so nervous
Thank you for sharing your story. Especially the part about how awkward it is and how much concentration it takes to swallow. I really appreciate the support!
Than you and you are welcome, it's good to know we're not alone in our struggle. =)
Yea I would suggest the achalasia Facebook page it's great with thousands of members that can help alot when your needing someone who understands what it's like because achalasia is 1/100,000 so very rare disease I'm type 2 achalasia and getting ready to choose between heller or poem and I'm hoping it's going to be heller do to how heartburn is something that poem doesn't help
Thank you Junya. I have this too and it has scared me big time. God bless and who needs doughnuts anyway!
Thank you for sharing your story! I am having the surgery in one week and am becoming increasingly nervous about it... I thought it might be good to look for people who have been through the surgery. I am so glad I did: I found YOU! You have helped me turn my anxiety into hopefulness. I realize everyone is different with such situations and procedures, but I am hopeful now that, though there may be challenges, it will be worth it to go through the procedure. I, too, have lost a lot of weight and I have a very difficult time eating and drinking pretty much anything. My botox treatment from three months ago has already pretty much worn off and I am "limping" along until my surgery. Thank you for taking the time to share your story and giving me hope.
Stephen
Absolutely, I'm glad I could help. You should also check out the "Achalasia Support Group" on Facebook, it's also helpful and you can read up on other people's different experiences.
Good luck on your surgery!
I had a hm 7 years ago. You still have to drink a lot of water to get it down. Biggest lesson is to remember is to drink water before you think you need to. Try and stay away from bread. It’s the hardest food to push down. Also heart burn has been an issue. Surprisingly Apple cider vinegar works the best for me and water. You’ll be fine. Remember to always pack a water bottle or two. Cheers
Thank you for this video. I have had problems with my esophagus for years. I had a Heller Myotomy did in 2015. They had to go back and redo it in 2016 and now I've been diagnosed with Esophageal Achalasia and they will do an Esophagectomy which is the procedure you had were they remove part of your espohgus and pull your stomach up. I've been doing my research and your video help ease my mind some. Thank you very much for sharing your story.
mindblowerjr does alchasia cause foam mouth spitting
mindblowerjr ihave panick attack and foam mouth spitting is it achalasia or I felt suicidal
Thank you for your personal story. I am having my surgery next week. Please wish me luck. : )
agree. disease sounds contagious & dangerous. Disorder sounds more "this affects ME /non threatening. glad your doing better. there is a facebook group for us too. CoolPeoplewithAchalasia
I believe i have this. Im 21 weeks pregnant and been going thru difficulty swallowing and food comming up since 2014. I had a scope done and it showed nothing. I went from 126lbs to now 103lbs. I want to have a manometry test done because everyone i know that has achalasia keeps telling me that nothing showed on theit scope either and that a manometry is like the gold standard test that rules out achalasia im praying i can get some help i know much cant be done until my son is born but this is a start. Im glad u are doing ok now! Achalasia is horrible
Did you get diagnosed with achalasia after you got your manometry when you were pregnant?
Hello, i had achalasia too since 2004, but i was healed in February 2010 after balloon dilatation in Island Hospital Penang Malaysia with Dr Siaw Eng Lok. Until now (2017), still in good condition and can eat normally. The balloon was imported from another hospital in Belgium
Same symptoms I had, took two years for them to diagnose me. At one point that said it was mental. Had the heller twice, 15 dilations and finally the poem . Still have some problems but I barely eat more than cup and half at a time. I graze now and order appetizers as a meals . I never drink shakes or thick things. And I eat slowly because of you feel that food in your stomach after a few bites STOP eating. You can make it work
So Ive been diagnosed a month ago after dealing with this for 2 years. Since I live in Germany and I will be getting the POEM, I have to wait until they have availability. Thank you for sharing your story
hi my wife is scheduled for POEM end of this month
how has this been for you ?
siddharth@silkasia.in
Did you have poem. How are you now?
I been battling this condition for awhile now. Five years ago I had the balloon procedure done. It worked for a min til two months ago it came back. Now I'm living off tomato soup(which is bad for my acid reflux) and thin mash potatoes almost like a soup. Sometimes I eat baby food and still have to drink water if water manage to get through. This is torture. So far I lost 15 pounds. I'm scheduled to see the GI SPECIALIST. Once everything is good to go I will hope to get the POEM procedure this time.
Hey , my 16yr old son has been in the hospital for the last 4 weeks he went down to 91 pounds but is on TPN feeding tube intravenously now and is up to 96 pounds but they are still discussing treatment options , poor kid has missed 5 weeks of school he’s had endoscopy , CT scan , barium swallow and esophageal mynometry and we are just waiting on the consultants to decide his treatment options .... it’s hard to keep going but thanks for your story it proves there is life with Achalasia
Hi kerrie , I wish your son quick recovery.my son is 15 years old suffering from the same illness.if you dont mind to tall us how is he doing now and what was the treatment option taken by the doctors.
Abdulsalam ALShareef hey , he had Heller Myotomy in April 5th so he’s almost 8 weeks post op and he’s a different child , no more vomiting he’s put on about 15 pounds since the op and he’s eating everything now the difference to our lives has been amazing , he was transferred to a different hospital in Dublin had the op 3 days later and was in for 12 days after the op , so far so good
You don't need Google to make you feel like you have cancer if you have Achalasia!
I'm having a relapse which really sucks. I was diagnosed about four years ago at the VA Hospital through manometry and barium swallow tests. I had an LES that wouldn't open and an esophagus that'd spasm out of control. It got to the point where whatever I ate/drank was immediately regurgitated. I suffered massive weight-loss and became malnourished from not being able to get the nutrition needed to sustain me. Three years ago I underwent the Heller Myotomy with Fundoplication and for several years things had improved. Now I have relapsed and am looking down the barrel of another surgery. This is not a fun disease (I use 'disease' because it is progressive to the point of being debilitating and because the etiology is unknown aside from a tepid consensus that it's related to an autoimmune malfunction)
Achalasia is miserable.
At its peak, it can be not just painful but also embarrassing and socially awkward as you sit down for a meal, take a few bites and then without warning projectile vomit. It's also terrifying when food gets stuck and you're pounding your chest as you try to move the food either up or down the tube so you can either vomit or breathe, especially if you're alone in your house so you decide you'll never eat alone but then whoever you're with freaks out and wants to give you the Heimlich. It's also dangerous because at night you'll aspirate undigested food which causes coughing all night and carries the risk of developing pneumonia. The pain you feel in your chest and back as if a rock is lodged in there is horrible and no contortions of the body will alleviate these. You can't swallow pain meds and can hardly swallow water so you lose the comforts of coffee or tea and even these feel as if you've swallowed rocks. These are all the side-effects/symptoms of the disease which cannot be alleviated or controlled by acid reflux medications or diet alone. (although they can help post-surgery)
It isn't fun, and while it can be mildly funny at times, it's no joke. Particularly when discussing a relapse. The symptoms are all the same except I'm often forced to manually initiate vomiting because my body's natural mechanics are insufficient. Anyway, that's the synopsis of my journey. I'm happy to have found other people who can relate to what I'm going through as it's hard to discuss and hard to explain in casual conversation.
Thank you for your candor. I no longer feel alone.
@@brendaheath6167 It does help to know that I’m not a weirdo unable to eat/drink normally. Your experience thus your educational content tells a story closer to the truth of what this disease is capable of. Throughout my journey no doctor has discussed a cure. Yep, no cure. Get your head set upon making life easier at the stage you are at currently because all the treatments are just efforts to help you get along. Evidently the progression of the swallowing defect changes as you age with how you manage to cope with the disability. Yes, the miracle of our eating tube has yet to be replicated. Gravity is your friend so raise the head of your bed enough to prevent aspiration. You can’t go to bed within 2 hours of eating. You won’t continue to overfill your tube if you dislike the heart attack chest pain that results from esophageal spasm but you can certainly use the dissolving tablet under your tongue when the spasm starts to stop that spasm. I’m currently several years post laparoscopic Heller Myotomy with partial fundiplication. My esophagus is pretty ragged looking and dilated; except at the lower esophageal sphincter where there is a stricture. Before the HM the docs had dilated my esophagus at least 4 times. It was after the last dilatation that I returned to the doctor with the same complaints about difficulty swallowing solids and liquids. They then did a manometry test; then esophageal barium swallow under fluoro. That provided the diagnosis: Achalasia grade III. I was told that the fundiplication portion of the HM was to try to limit the amount of backward flow (gastric contents) that will occur if I lay flat. Next threat to deal with is not allowing food to sit in the esophagus. That is happening now so I went back to the doctor. I can either choose to live with things as they are or see if a specialist in another city will offer to intervene with further interaction with a dilated tube. If an intervention is unsuccessful via either an unsatisfactory dilatation of the LES area or a tear of the esophagus, then the next and only option is to have a n emergency partial esophagectomy or something similar. Still no cure. So. Here I sit, learning how to just get by and hoping I can avoid getting several other horrible things downhill from here food sitting in my esophagus. Yeah it sucks. But there are worse things to have.
God bless you. Hope you’re well ❤
Thank you ❤️...my daughter has been diagnosed with this
Yogurt works good too
Anything soft foods.
Thanks for sharing. Ive had some of the same symptoms as you. Ive have dealt w/Achalasia since 2005, I went from 220 to 155lbs.(I was happi, but sick), I had surgery 2 open to lower sprincter(by having two of my ribs cut in my back), but now 17yrs. Later, in 2022, I have to have surgery, again on the same area(orally, this time) cause my lower esophageal is shaped like a upside down, Birds 🐦 beck, again. 🤦🏾♀️😩😵💫
Joonya, thank you for your interesting video. I was diagnosed a few days ago. My worst food is bread, well sandwiches really. I’m not too bad with toast. Take care everyone.
The sandwich was the first thing I regurgitated complex food to eat
i'm having the surgery next week. thank you for sharing this. i'm so tired of spitting up everything that goes in my mouth. hopefully i won't be on soup for the rest of my life... i like soup.. but come on!!!
Glad you're doing good, I'm headed for surgery next month. I've had trouble since November, and was diagnosed in April. I've opted to go to the swallowing center in Tampa, Fl to get the best care I can.
I'm late responding, but I hope your surgery went well and you're back to swallowing "normal" again!
+AJ the Rabbitt I'm pretty good now, I had complications during the surgery with the Doctor rupturing my esophagus. Once that healed up I've been good. Like you, I require lots of water while I eat. I don't like carbonated drinks, but that's kind of a good thing.
Sorry to hear about the rough start but glad you're better..
QuickQuestion, i'm wondering if it's just me but do you find yourself having to clear your throat a lot? I'm curious if it's just a me thing or related to the Alchalasia.
+AJ the Rabbitt Yep, either clearing my throat, or washing it down with a drink. I think it will always be that way.
+Nick Patrick Ok, good to know. I mean it sucks but it's good to know I'm not alone w/ this. Thank you. ✌
I have been dealing with Achalasia since 2003 but was not diagnosed until 2011 after being in the hospital for a month losing 82 lbs I had the Hellar Myotomy done in July 2011 I still today struggle with this horrible efliction , it's horrible 😩
thank you for sharing I have the same problem. I'm going to get the poem surgery. I also had to learn to eat different I can relate to what your saying. I take one probotic pill and one enzyme pill before I eat that is the only thing helping a little it helps with the swallowing. I'm still careful in what I eat but at least I can swallow and not be scared to choak.
Silvia Sanchez hi silvia...how r u now...need any feedbacks...let me know...i went through achalsia wen i was 17 years old...i suffered for 5 years...but atlast Allah gave me relief...now m all good...how r u now....
I have not been diagnosed yet but I have the barium swallow X ray in two weeks, I feel so bad right now as some days I can manage soup but like today I've only managed some liquids. I get so dehydrated and have lost a lot of weight. I'm 30 years old and had the odd occasion of finding it hard to swallow until a year ago, I had a bad cold and lost my voice 2 times in that year. Since then I haven't been able to manage solid food, I've choked about 20 times this last week and have had fluid aspirate into my lungs. I hope they can tell me what is going on when I have my x ray test.
Dude this is amazing. I've been wondering what's wrong with me for about 7 years. Literally everything you're saying is me right now...... I'm going to the doctor in about a month. Hopefully I can figure something out. I might switch to vegetarian.
bmx28kenilworth If you have Achalasia then a vegetarian diet isn't gonna help, hopefully you have something more easily curable. Good luck to you.
Would u be irritated only when eating or would it also occur just randomly sometimes?
I too suffer from achalasia. I have dealt with it for 2 years. I thought it was gerd, acid reflux . I had no idea, I did 2 esophageal dilation which they found nothing. I finally had the manometry swallow test & was having such issues during the test that the nurse had the dr. come in. he suspected I had achalasia. I Google it & boom it totally was what I was dealing with. 1- 100,000 deal with it. I too was unable to eat, or drink water. I would sometimes take 2 hrs to eat. I just had the POEM procedure done in Madison at the UW & couldn't be happier. I noticed right away that I could swallow. still on a liquid diet but am able to be full & drink plenty of water. I'm sorry you had the Heller manometry done. It is way more invasive & more problematic afterwards. not saying I will not have issues down the road. I was denied 2x for the POEM procedure as it is "newer " & not the normal fix to the insurance company. don't suffer through it, there is help out there! power onward!
Hi since you had it so soon can I discuss with you
my wife will have one end of the month
siddharth@silkasia.in
@@siddharthagrawal190 Hi Siddharth, how is she doing after the procedure? Kindly share your updates. I'm going for POEM procedure soon.
*Post POEM surgery Achalasia cardia patient here:*
friends, i recently tried slow breathing whenever i am struggling to swallow food, it might help but i guess you might want to have a gulp of little water....which may help with swallowing, i don't know but breathing slowly helps for me to some extent.
Sir how are you now. Can you provide some more post op details
Hi Junya I had my surgery the poem procedure iam now feelin great George J
I have achalasia I went through the same thing you did I still have it I was 7 when mine came out and 15 when I had my first surgery I had the same surgery as you and swolling test yes it is tuff
I know this is a bit off topic, but damn you're good looking!
Btw, glad you're not having too much trouble now!
I have struggled with Acalaysia since 23 Iam now 36 had a surgery in 2014. It was the best thing that ever happened 2 me an now its resurfaced. Iam 100pds from 145 within 2months cant hold anything down. I hv no energy miserable dont want to leave house so depressed. The process 2 get into a dr has taken so long cause the type of insurance i hv. I pray 4 a miricle!!!!
Hi, im from malaysia, i have been diagnosed with achalasia type 1, at which my esophagus and sphincter do not working. I feel better now since im not alone here facing this situation for the rest of my life. The sad thing is the doctor still cant prove the causes of this disease. And im still confuse either to do surgery or not. Hope for miracle to come for me, as God power can do everything. I face a lot of hardtime from 2018 untill now, everyone dont understand the situation happend over me. And i keep praying so that i get the strength to have a positive life.
You should try dilation first if you can afford that it will maybe not work. Also the cause is a auto immune disorder, you're doctor will never be able to pin down a exact cause. If you're family and friends don't believe you, show them, my wife and I been through the same thing
@@Incorporated298 thnks vinnie for your kind reply, now i feel kinda strength since i know im not alone, at least i have someone like you who understand us better...i ll discuss with my doctor regarding dilation procedure...thnkz again..☺
From malaysia? I also from malaysia! So, how are you? Have you done surgery?
Hi Isma, I also have achalasia type 1 and I'm from Canada. Otherwise, I did the Botox intervention but it didn't work. They even offered me to do the myotomy of Heller but I'm also scared and I'm also looking for God's assistance and I'm thinking about getting the gastro tube in order to be fed because I lost to much weight. Hang on Isma, stay strong!!! 🙏🏽🙏🏽🙏🏽🙏🏽
Meeting with my surgeon today for the poem.
I have it to i know how it feels god bless you🙏🏽😌😢
Hey there, Junya, how have things been for you since making this video? How was the surgery recovery? I have achalasia and sm going to get the surgery, although there is a new surgery called POEM that I'm considering. But I'll likely have the Heller myotomy and would love to know how your long-term results were. Thanks!!
Thrift Diving Hello, I have been very well. As long as I eat the appropriate things that don't trigger terrible acid reflux I'm okay. I still need to have water or a noncarbonated drink while eating to help assist the food down into my stomach since my esophagus doesn't work as it should.
Overall, I am doing great. I hope all goes well with your surgery.
Thats the same age it started for me.i just have to always have somthing to drink with food . and anxiety and stress gives me so much pain.
I have this for the last 14 years . I do a POEM on 4/6/21
I've a HM due on Monday with a fund wrap. Anxious about whether it's going to fix anything at all, having read the comments on this and other videos.
Matt OToole Well it has worked for me, I can swallow. My wee esophagus will probably never function properly but I'm able to swallow which is most important.
Good luck to you, I'm sure everything will turn out great.
Thanks, Junya. My op went well. No accidental damage by the looks of things. In quite a bit of pain, though. NHS staff were amazing, though, and I'm beginning to think it's feeling like I can swallow properly already, even though it's only my first day of trying a liquid diet. I'll never understand why you lot don't have free national healthcare. My dietician told me today to steer clear of doughnuts and I was reminded of your video.
I think I have that sir, Sir is the surgery good to go or is it horrible sir I’m ready to feel better and want to do good and feel better sir
Hi thanks for sharing your story, 6 months back we had no clue that there is such a disorder exists like Achalasia, my wife is going through a lot and finally surgery has been scheduled next month. The doctor has suggested POEM as the best option but we might end up with HM as so far Insurance has not approved POEM for my wife. can you throw some light on whats the difference between these 2 procedures and which one is more effective?
Hey how is wife now is she okey after the surgery hope she is doing well
How was your esophageal resection approached? Open surgery? Side approach? Laparoscopically via multiple small incisions via abdominal approach? Sternal approach?
I don’t know if I gave reflux or that how do I find out sometime u can swallow I feel it’s stuck in my throat ? But I had h pilots couple years ago and I still have stomach pain and burning in my chest
Hi. I haven't been diagnosed with Achalasia yet. I feel like I don't have it. I do not have problems with swallowing. I would like to know what other symptoms did you have other than the food getting stuck. I have been diagnosed with acid reflux. I get lots of small burps, just swallowing for no reason, throat burn sometimes. Just wondering if you had any of those symptoms and I pray you continue getting better and want have those problems again. Thanks Lynn
Hello!
I didn't have acid reflux at first but after surgery whenever I eat certain things I do get acid reflux. But my main symptoms at first included; my inability to swallow, food coming back up while laying down, sharp pain in my chest which I now know is called esophageal spasms. But no reflux at first, that I can remember.
I hope that's helpful. 🙏🏾
I have swallowing issues too I keep choking a lot on food but since from now on I always have water with my so I support the food to get swallowed but it’s still hard for me to swallow but I haven’t choked since but I’m still scared
How did you find out you have that ?
Hope all is well brother. Are you still active on here? I’d love to speak to you about your whole experience because I had literally the exact same thing happen to me at the same age.
Its called a Barium meal here in the UK
Thank you for sharing..i also have Achalasia..i haf surgery on 2018..i can swallow..and get food down ..but like you certain foods don't like me!...i hate this...anyway thanks...
What about after the surgery
hello sir! My dad is suffering from achalasia and us, living in the Philippines is having a hard time to find a suitable doctor to cure my father's illness. my dad's age is 60 and was already advice for surgery but with his condition (I'm talking about his strength cos for now I don't think he can handle the surgery cos of too much weight loss). Now he stays at home to recover and regain his strength. he only eats food that won't trigger his esophagus. I badly want to communicate, and know more about achalasia sir. that disease is rare in our country and only few had them.
Any group created to support achalasia patients and families 😢
I have type 3 achalasia, having my poem procedure in Wednesday.
My body also just started wanting me to drink a lot of water with every bite of food. It's really one of the only things that make me feel better.
Can the esophagus spasm while sleeping? It has woke me up a few times.
Yeah, I sometimes get them a lot while I'm laying down and usually because of something I've eaten. Try to figure out what foods trigger your spasms and see about cutting it out of your diet or at least before bed.
I have the same thing
I have Achalasia too and will be having the POEM surgery in two weeks. I have had problem throughout life but it got extremely worse in 2012. I believe it was the sphincter to spasm which felt like a heart attack every time it happened.
Thank you for sharing and my condolences on the long time pain you've had to endure. Good luck on your surgery, I'm hoping that it helps relieve you of much of your pain. I know for me I occasionally have the spasm issue but only when I eat the inappropriate things.
I had my surgery and I can eat without pain but I do have an issue with food backing up sometimes because I am told that the nerves being dead in the esophagus does not allow the food to keep moving down smooth. I have to drink water and it usually being on the warm side to allow the food to move. I know exactly what you mean about the spasms. I had that a couple times and it is painful. The spasms from the beginning were what caused the sphincter to close up in the first place. However I didn't know what was happening back then. Now I do know and hope that it will not do so. Thank you for sharing your kind words of condolences. I hope and pray for you as well that you will continue to have healing in your body so not to suffer with this anymore.
Hi and how have u been post this.
my wife is scheduled to have this end of the month
wud like to hear from you
siddharth@silkasia.in
To tell you the truth, I am able to get food down into my stomach but I have to eat small portions. The nerves being dead in my esophagus is frustrating because burps are not always successful and fulfilling. I am happy with even the little help it has done. I was to the point where liquids didn't go through anymore. However for your wife, I pray that her surgery will be much more successful in her eating and sleeping, and that her esophagus will come to life and work as it was designed by our creator God.
Hi julie...even i suffered from achalsia too..but all good now..i gt operated...all going good....wat about u...let me know...may be i can help u
prior the surgery, what was your diet? Junk food? soft drinks? over eating? Fresh fruits and vegis?
I had a pretty standard diet for young man in his early 20's. I ate fruits, cookies, juices, sodas, pizza, salad, etc. I didn't over eat, I was in good shape, and exercised daily.
Is the Gomorrah the symptom of it bcz I have stomach pain and saliva too ?
Did you have stomach pain ?
Your greater.
Hello, hope you are fine. I just watched your video. Actually I also have achalasia issue and I wanted to ask you about the procedure of gastro reflux in Heller Myotomy they stitch
upper part of stomach with esophagus.
Does this procedure creates any issue in long run?
would I able to do workout freely?
I can run easily after this surgery?
Does it creates any issue when i lift weight ?
How much time will it take to avoid such meal which a normal person consume ?
Is this surgery painful?
hope you will reply as soon as possible,I have surgery after tow days.
thanks
Q1: So far, it has been 6+ years since my surgery and I have no major issues besides always needed water on hand to assist w/ pushing food down and occasional heart burn whenever I eat the wrong things. I feel like I get acid reflux issues easier since the surgery which has forced me to eliminate a lot of acidy foods. I would also say be very careful about over eating.
Q2-4: Yes, once you've healed you are free to work out without any problems. I haven't had any side effects or issues whenever I bike, run, or lift weights..
Q5: I waited a few weeks before I started eating regularly, I would definitely consult your doctor about that though.
Q6: I don't recall any major pain, I felt normal, perhaps because I was more excited to swallow food that whatever pain I felt, I was okay with..lol
I hope this is helpful, feel free to ask anymore questions, i'm here for ya!
Good luck w/ your surgery!
+AJ the Rabbitt I want to suggest you some thing related with acid reflux, if it happens to you at night it will help you to lift you bed 4,5 inches from you head side.:)
I am really thankful for your support.
Stay blessed
+Xain Ehsan lift your bed*
+Xain Ehsan your*
+Xain Ehsan Thank you for the suggestion, I'll try that.
You stay blessed as well!
Which type of A do you have? How are you now? I have A1, pre op. Are you part of the Facebook Achalasia support group? TY for sharing.
Hello Elka!
I'm not familiar w/ the types, i'll have to do some research on that, I didn't realize that there were types. The surgery that I had I believe is called the Heller myotomy. That's where the tip of the stomach was wrapped around behind the esophagus. I haven't had any major complications. The biggest thing is server heart burn which is mostly my own fault for poor eating choices and lying down after eating.
But I am doing well, I've become very familiar w/ what foods trigger painful heart burn and what foods I swallow best. I've elevated my mattress which I'm finding to be very helpful while I sleep.
I had no idea that there was a Support group, i'm excited to hear about this, gives me hope! I'll be looking into this on FB, thank you for the heads up on that, i'm eager to learn more about my Achalasia and it feels good to know i'm not alone.
Thank you very much for your comment.
Talk to you soon!
They never gave me a type . omg not a lot of docs know about this it seems
I think I have Achalasia too. It's been a month already since I have trouble swallowing foods even water. I most of the time vomit what I eat.
Rwin Castillo how r u noq
How. R u now
Can you get disability on achalasia??? Because if it's incurable and never goes away then it should be I would think right??? I'm type 2 achalasia and life is just beyond depressing anymore
Hmmm. I'm not sure, I never thought about it or looked into it. 🤔
please anyone guide me
i also have achalasia cardia.and its diagnosed
i done two times balloon dialatation
but didn't work
iam from Pakistan
is this procedure available in Pakistan
Go get the procedure done dude, and make sure whom ever doing it is a really good Dr. there are some there that would fuck it up! I had it done 5 months ago and I am great now.
I suffer from this too. I am 70, and just found out I have this, but only starting 2 months ago. You can stay hydrated and get all nutrients needed so your body won't shut down. Make your own bullion in beef and chicken. Use crock pot (big one to make a lot at one time). Boil down meats and add any and all veggies that you can, plus fresh spices and let simmer for a couple hours in big pot or 8 hrs in crock pot. After simmering, strain very well all the broth (I toss veggies , too soggy, do not eat). The broth will be delicious, and you get all vitamins that your body needs plus the liquid to keep from de-hydrating. I also add liquid vitamins to my broth and collagen. Try it, this will at least keep you healthy until surgery. Best of luck.
Did you have POEM or HM with wrap?
Elka Adams i went through poem
MOHD ZIA hope you doing good!
I need to do the surgery but the surgeon leave me with choice of poem or HM with wrap
I’m so confused I don’t know what to choose
Can you help me
Hey there, I wanted to ask, does drinking alcohol cause any issues for you?
No, not really. The only issue I've run into is taking shots straight up though, it's a choking hazard.
@@joonyaboonya roger that. thanks for sharing!
I have archualasia myself. Im waiting on botox injection ... If my splinter is to tight my GI SURGEON GONNA pull the endoscopy scope out of me. An deside to do the HELLER MYOMENTRY.
Im very scared of this diease .. I cry everytime i puke it freaks me out. I have severe dry heaves afterwards ..
I puke blood alot of times.
Goodness me, your description of the surgery was not accurate in any way. I think you had HM rather than POEM... very different operations. Eat healthy is so important. I wish I had eaten healthily earlier...Donuts are definitely a no-no. Water works for me, but tea needs water too.
hey I Have had to take baby food
I had 2 surgeries already and a dilation
Had stage 3 achalasia
Wish you best of luck
Actually im doing great now ..
I thought when they did an operation on you was successful .
The operation doesn't cure Achalasia it just allows me to swallow again.