I too have researched this and thanks for a great explanation. I go to a hematology center and receive iron infusions, have high platelets forever. It seems You're a blessing sent from above. Thank you for time and effort put into this video. Keep up the good work. 👍
Thanks! I have researched a bit on my own for 5 years and no one can figure out what is the cause of my thrombocytosis. That being said, thanks for the simple visual of what’s going on. It was helpful to see it even if we still don’t know what’s going on.
@@QUIOCHO17 no. I’ve done every test, seen a rheumatologist too. Honestly I’ve not done the bone marrow biopsy because I’m terrified. My platelets are in the 525 range so since it’s nit crazy high I’m on the “get tested every 6 months” train. I recently found out my Vitamin D levels were ridiculously low. So I take a 10,000 supplement. I also work out & got a cpap machine. In general I don’t have negative symptoms right now. Cleaning up my diet-ditching sugar, too. So I do feel better I just wish I could get answers. But from reading on here a bunch of us may be in the “medical anomaly” category that my doc puts me in.
My platelet count was in the millions! I saw a hematologist, so they took bone marrow( the worst, most painful thing I've experienced) and I was told I had essential thrombocytosis. I take 1000mg of hydroxyurea and aspirin daily now and will be for the rest of my life(I'm 43yo) it's a mutation in the bone marrow. JAK mutation. As long as you take care of yourself, and take your meds, you have a normal life..I'm fine.
Hi! Can I ask if you could share more about the condition? A relative of mine is having a similar condition as yours and we are worried that it may possibly be fatal. Does this mean that my relative would have to take regular blood checkups and take medication for the rest of their life? My relative will be having this bone marrow surgery soon and would it be possible if you could share more about the experience? If it's a hassle, I would understand if you chose not to. But either way, I would like to thank you for your time in reading this and I sincerely hope that I could hear from you soon. :)
@@Lloydrellon hello. With anyone, when they hear "cancer", it's a scary word. When I was diagnosed, I thought my life is over! But, noooo, I'm going to be fine praise the Lord! Some doc say it's a "blood disorder ", some say cancer. You have to be positive, don't think the worst. I rarely talk about it. As for the meds, I guess it really depends on your relatives condition and what the doc feels is best for them. I am high risk of heart attack, stroke and blood clots, but like I said, just take care of yourself, it's that easy. Your relative may have to take meds for the rest of thier life, . I felt nauseous for thr 1st yr then that feeling tapers off, now its just once in a while, nothing to bad..some ppl get sores in the mouth , legs..i haven't. At least i can live my life normally. Im very greatful.The bone marrow extraction, was the worst I have to say! I was awake while the extraction took place..I was shaking uncontrollably after, I think I was in shock..worst and most painful thing in my life. Sorry it took so long to write you back. I hope all is well for your relative. Stay positive. Hope this helped.
Same here _that’s encouraging to know_ do you get dizziness & pressure in your head at times & tinnitus at times? I avoid & manage stress, have regular exercise & watch my diet
You forgot to mention primary ET is part of a myeloproliferative neoplasm or MPN for short. The World health organization (WHO) reclassified it as a cancer in 2008. There are three “driver” mutations discovered to date: Jak2, CALR and MPL. Hydroxurea is the old drug of choice bit is not for long term use for our chronic cancers. Nowadays Pegulated low dose weekly interferon is the drug of choice for our chronic cancer. I am 23 years diagnosed with ET.
My count is over 1200 and stopped all alcohol 4 months ago. Waiting for appt with a hematologist. Feel and look fine with zero symptoms. Ferritin is off along with a few things. Thanks Bud Lite.
@Rich Bar the 1st lab lost one the tests. They did however confirm that I don’t have the JAK2 gene mutation. Now they want to do a sonogram of my spleen and a new set of different blood tests. Waiting now for appointments, 1 this week and 1 next week. Seems like a bunch of ado over nothing frankly. I feel too good. Ironically I’ve been donating plasma for extra money, 15 donations and having too many platelets doesn’t disqualify me. I made 1800.00 in 2 months, tax free.
@@camilleacenita4191 Hi Camille yes. I had a genetic test that confirmed I had the gene that is associated with this. I also reluctantly agreed to a daily capsule of 500mg of Hydroxyurea and a baby aspirin. The platelet count is trending down and they follow up with a blood test once a month. Last week it was down to 850. If I have any side effects I can’t notice them. Crazy since I have no symptoms.
@@MarkSmith-js2pu im glad they found it already. Cause it same thing with me, I did some genetic test like jak2, bcr abl, calr, and mpl mutation still negative 😔 now they request me to do bone marrow aspiration and biopsy.
@@camilleacenita4191 I don’t want to be a downer at all, but did they screen for colon or lung cancer? I read high platelets can indicate that. I’m going to allow a colonoscopy just waiting for a time to do that.
ET is a type of blood cancer. It belongs to a group of conditions that affect the blood called myeloproliferative neoplasms (MPN). ET is a very slow-developing blood cancer and for most people, doesn't affect how long they live for.
My Hematologist found I had extremely high platelets 1.3 million several years ago and put me on Hydrea. I took it for several years and my prescription kept having to be adjusted constantly. After a few years on it, my body no longer tolerate it. My doctor decided to get me into a clinical trial medication called Jakafi. It works like a dream! My platelets run steady at about 230. It's' very expensive, about $90 per pill, but if your insurance covers it or your doctor can get you into a financial assistance program and it is worth it.
I have a pretty high platelet count - regularly over 500, most recently was 528. I’m also a regular platelet donor, so I get an update of my latest count each time I go in. It has steadily increased over 6 months from 475 to pretty much always over 500. My doctor has had me do blood work for other things, and didn’t mention my (high) platelet count. Red Cross and other blood banks will only turn you away if your count is 600 or more. No idea what causes it, but it leads to speedy donations, so that’s nice!
What are the doctors doing to bring you back into proper range I like to know that isn't there antibiotics that you can take??? I have the same issue, I don't feel like anyone cares anymore. I don't feel like anyone's practicing preventive medical care anymore!
@@erickanyc8907 same no one care i am actually dizzy righy i dont know if its platelets reason i am going to see my doctor on march and dont know whats happening
Can menstruation be a cause for platelets to be slightly elevated. Had cbc just recently during my 2nd day of menses and my platelet is 403. All other labs like hematocrit, rbc etc are within normal range.
I currently have this issue Normal - 400 Me - 503 Severe - 1000+ Kind of nervous about it. Redoing a blood test again in 2 months with change in lifestyle and nutrition.
Update: I had to go see a blood specialist, and they found me to be low iron deficiency so I started on supplements. I’ll go back to do blood work in about 2 weeks and see if it improved
Are you strictly vegan now and do you take any medication for it? I don't consume any animal products either and my platelets have continued to fluctuate between 450 and 500 as well.
My platelets were always normal. Within 1 week of getting over covid (omicron) I had 6 migraine auras in 1 day and a brief lapse of memory. I went to emergency room and my platelets are 686. I looked it up and it appears covid can increase platelet count. I cannot find anything on whether it goes back down well after the infection, but since covid, I've had skin itching after shower, due to a weird rash on back and stomach that only itches after shower; strange visual disturbances (screen looks blurry when reading on my phone) and generally weak. *IF YOU HAD COVID RECENTLY, IT MAY BE THE REASON.* I don't know why but wonder if it's due to bodily inflammation caused by covid infection. To the video maker, if you're aware, please advise. Thank you.
Mine is around 8lk to 9lk im just 30yrs old no idea what's causing it , I'm being put on ecospirin since 4 months . After doing bone marrow and several other blood works no mutation or issues have been found . Still continuing with the issue without knowing the reason even I had omicron but almost 1 year back
I have psoriasis, and that is also now a known reactive cause of thrombocytosis. Imflammatory conditions in general should have one's doctor consider that as a cause.
Hi I have psoriasis too and Thalassemia. Doctor said that my high platelets is caused by the Thalassemia but I think it is rare as I have had it for long time, my platelet used to be normal, but now is 583. I think mine one is caused by psoriasis too. Can I know how high is your platelate count please?
@@FF-lj4lw hi FF. My platelet count is 525-550 now steady, and before I knew I had psoriasis approx 10 years ago it was approx 300-350 every time ever checked. Is that how yours played out? My psoriasis has always been very mild…slightly on knees, slightly on scalp. My doctor never mentioned the two as connected, but now that I Google it, it’s a known connection. Even ChatGPT knew they were connected lol.
@Burps Hi thanks for your reply. I have had psoriasis for nearly ten years but my pletelet count was not too high before which is around 178-220. My psoriasis isn't very serious, it only occurs on my elbow and near the ear but I think they are getting worse since I have had my covid jab. :(
@@FF-lj4lw Thank you for that info, FF. I googled “Thrombocytosis and Psoriasis meta-analysis” (those are compilations of studies) and found good information as it looked at many angles…like how high are the PLT counts w duration of psoriasis, and how many went on to develop even higher PLT count over time etc. I don’t have changes in any blood count but my platelets, so a more generalized heme disorder like thalassemia isn’t considered for me by the docs. My mother had high PLT counts approx 450-550 her entire life, and only later in life (age 65) got psoriasis, interestingly. I’m sorry about the worsening since vax for you. Despite all the pressure to get it, I avoided it bc I suspected it’d have repercussions given my inflammatory issues (psoriasis, very mild spotty alopecia). I know many were forced to get it for work, travel, etc. Im sorry for the effect for you; I believe you regarding the connection, FF.
@ Burps Thank you so much for you information! It is very useful! At least we know it might be the connection between psoriasis and platelet as psoriasis is a chronic inflammation and autoimmune disease which might caused higher platelet count. I hope you get well soon 🙏 Take care!
93yr old woman w/COPD+Interstitial LD (diagnosed 6yrs ago) has experienced rapid decline since a case of bacterial pneumonia. Patient also has elevated platelets (diagnosed 17yrs ago with tests and spinal tap-no cause determined). Patient has fallen several times recently from passing out (viewed on video monitor), is breathless when sitting, and is having significant mental decline. However, SpO2 levels per oximeter shows 98% saturation consistently. Can elevated platelet count cause inaccurate reading? I feel patient (Grandma) would benefit from home oxygen treatment but oximeter results don’t support.
I'm going on Tuesday for a full blood count which I do because I have blood pressure when I looked at the form it said previously I had high platelets my doctor never told me when I rang up previously about my bloods I was told everything was ok or as they say no further action I'm a little worried.
My platelets were high! Because I was anemic an I recently stop drinking an I had a lot of Infections! My iron level was low so they put me on iron supplements an aspirin to stop blood clots! May platelets level was 800 an Amazingly now they went down to 500! God is Good!!
So my platelets count is at 566 and I've been feeling chest pain, light headed and some stuff related to reactive thrombocytosis. Should I be worried? I'm 19 yrs old
My skin itches when I take a shower. It’s very uncomfortable 😳. I also get dizzy and have passed out. I had a splenectomy many years ago because I have ITP or too few platelets. Thank you for this very important information. I wonder if it’s a possibility that my platelet count fluctuates. My blood tests have not caused a 🚩 red flag, so I assume I’m good.
I have platelet count of 550 twas just 475 six months ago, anyone please help advice what the first thing best to do to control the increase of may platelet count thanks and God bless us all!
I have high platelet 603k for months without knowing the danger but when my hematologist told me to further check that is when i alerted myself and ate healthy do exercise it went down to 466k i just continued a healthy lifestyle it went down again to 398k (normal) ,i am waiting for my jak2 test result
@@maybellejoy3709 hi i eat all healthy foods veggies , juicing, and exercise (treadmill walking) no process meats , but i also consulted hematologist, but i think why my platelet went to 603k high is bec i have been eating junks and drinking slimming pills, ( now no more ) If doing everything but still platelet high you have to check with your doctor
@@maybellejoy3709 yes me too but i change my unhealthy lifestyle now no more bruising, check your blood after 2 weeks of lifestyle change if platelet is going down then your on the right track, if not check with your hematologist doctor goodluck
I’ve had mildly high platelets for as long as I can remember. I’m in my mid 50’s and platelets are in the low 500’s, but were over 400 back when i was 30 years old. Any idea why?
My plaletes was 433. My wbc was.10.9. My Rhumatoidologist says she's gonna keep a check on it? I'm kinda concerned because the wbc decreased slightly from a mth ago and my platelets which was normal on the high side a mth ago and within a mth elevated. Do i still have the thrombocytosis at that level? When i was little i had a PTT causing bleeding. Now supposedly i don't now it appears the opposite from what i read.
Myplatelets is 48 and I problems but if you are going to have a minor operation ask your doctor to boast up your platelets or you're bleed to death. There are medicines to increase your platelets.
I am a 46 yr old female I'm worried because my blood work results came back showing my platelets shows high of 462 h.. What this even means? Should I worry, should I be on a special diet. My doctor says I shouldn't worry too much, but I do is my body 🤦🏻♀️😩
I've been going to my doctors for years for high platelets and genuinely not feeling well, my playlet count I said usually 500+ but recently they have rose to 630 Only now the doctors are taking me serious as I'm pregnant. I'm benign referred to a specialist I do have a lot of kidney problems like infections and stones I don't know what to do cause I genuinely don't think They are going to take me serious :(
Have your platelets continued to rise slowly or have they always been elevated and then increased from 500 to 600? Have they checked for JAK2 mutation? Or done a bone marrow biopsy? I hope your pregnancy is going well.
@@cocolee8396 that’s awesome they’re going down _ keep up the healthy eating & taking care of yourself with lots of rest & relaxing & avoid & manage stress
Just found out that my platelet count has been high for the past two years my last blood test that i did last month showed that my platelet count is at 587 i see a hematology/oncologist next month,if the doctors knew that ive had a high platelet count for the past two years then why r they just now telling me about it and just now wanting to do something about it
Maybe it was picked up that you had the high platelet count because of a recent Full Blood Count for a general routine check up. The doctor then looks back on past blood tests & can see that the platelets had been gradually increasing to high levels until eventually being above normal range!
My platelet count only 30000 to 40000.Since 11to 13 years....im steoride dependent....any solution plzzz..help me. I m so tired from steroid uses.....due to this many problem create with me. Plzz tell me how to maintain my platelet count.🙏
I'm super concerned... In 2020 my platelets were 458 In 2021 it was 437 This year (2023) it's 480. All other blood work done on CBC was normal. What could this be?
My platelet count as of today is 506k that why I'm not giving a fit to work in my medical result . How can i handle my platelet ? Can you please help me
My mother has polycethemia vera and her platelets count now is 890. 17 yrs taking hydroxyurea now since her platelets continue to increase even she drink 3x a day of hydroxyurea her blood developed medicine tolerance, her hematologist suggesting jakavi or jak 2 which is very expensive. We can't afford.
I am having a panic attack. Someone please share your experience so that I can prepare myself. I did PRP injection on face and injected Vitamin C weekly once for a year. I didn't do a blood test for 2 years as I had no health issues. I did one on June 29th in which the platelet count was 739. I took a test again on the 11th of July and the count was 728. I took the test again today ie. 25th of July and the count is 705. I have stopped all cosmetic treatments for 4 weeks now yet it's still above 700. 29 June - 739 11 July - 728 24 July - 705 Is it dropping or is it consistent? All other report came out normal. I didn't do JAK 2 and bone marrow biopsy as I don't want to accept that I have cancer😓😓 I thought if I stopped everything it should go back to normal in a week. Is that so or will it take months to go down?
Hi guys. My plat count was 426 today, healthy 28 year old male. No issues or symptoms what so ever. However my doctor ordered more blood work, should I be worried ?
@@sarahdansby7165 I think the results are based of my psoriasis I have a bad flare up on my legs. I also talked to another doctor and he told not to worry about unless its in the 800's
Anyone who has had lab work to find out that their platelets are high obviously had just been at the doctor! It's about doing to a blood specialist, they need to find a hematologist. And also if their primary care doctor isn't referring them to one then they need to find a new primary!
I have 539 platelet count. I found out when I went to the emergency room for taking supplements on a empty stomach that made me vomit for a couple weeks. I've did blood work for my doctor 2 times within 2 months and he never mentioned anything about my platelet count he just said my cholesterol was a bit wacky that was it. I'm guessing my platelets increased after damaging my gut with those supplements.
That’s what happened to me. Turned out I have gallstones.. The ER doctor said he wasn’t worried about my platelets it was at 488. So it depends on your doctor.
Hi there I had a blood test and my blood test was 590 I do suffer from platelets always being high but this is the highest It has been any advice please thank you in advance
@@lacyb8289i do have essentail thrombocythemia .. 5 years now im taking hydroxuerea sometimes 3x a day 2x a day its depends on my hematologist and everyday im taking clopidogrel ita like aspirin .. my platelets sometimes 1200 900 .
@@sahrah8253 hi Sahrah. No, no itching. My hematologist asked if I have itching especially when I get out of the shower, but I do not. Why do you ask? Actually for the first time in 3 years my blood platelet level was considered normal at 372. Then it went back up to 395 in April. The only things I did different was I first moved my bed in my room after 5 years. It was up against a wall where directly on the other side was huge electric wiring. I read a article where they said high platelets can come from exposure to strong electrical wiring or exposure to chemicals. Then I started going to an ayurvedic doctor for the platelets becauss no one was giving me answers. I went to 3 different hematologists/oncologist, 4 different gastroentologists, 1 rheumetoid doctor, 1 neurologist, 2 dentists, 4 different primary doctors, 1 endocrinologist, 2 pulmonary doctors and 1 allergy doctor. Trying to solve what was causing my elevated plaetlet level with no answers. My primary sent me to integrative medicine where I started acupuncture. My acupuncture doctor then sent me to her own acupuncture doctor who started all different kinds of weird methods with me which have seem to miraculously be working. I started drinking Tulsi tea (holy basil tea) every night as per my ayurvedic doctors directions, also bone both eevery night for 3 months. Dry brushing and meditation. All of the sudden my platelet level dropped to 400 then 372 then back to 395. The hematologist said to me "I don't know what you are doing but whatever it is keep doing it"
@@blondiex315 congrats....thank you so much for your reply...many people told that they high platelet cause itching...and allergic reaction....so i ask this question.... Sorry for my english.....thank you
@@annomaly751 Are you a doctor. Who told you that this is very dangerous level. I have been to many doctors and none of them would bother about platelets unless it’s above six lakh... anythin between 4-5 lakhs considered normal
@@shiningglory5414 my platelets count is 461. I was bit worried..after reading this message i feel relieved. Thanks.. So just wanted hear from u again as you said you consulted many doctors. Thank you
Normal doctors will show some concern but won’t do further testing unless you feeling any symptoms or changes in your body. Most doctors will find it alarming if you have over 750 that’s when they’ll recommend a bone marrow biopsy and scans.
my blood platelet count in january 2021 was 14,00,000 and in may 2021 was 11,00,000 and in july 2021 is 89,98,000 is it normal ? all my reports are normal and ultrasound is also normal
I too have researched this and thanks for a great explanation. I go to a hematology center and receive iron infusions, have high platelets forever. It seems You're a blessing sent from above. Thank you for time and effort put into this video. Keep up the good work. 👍
Thanks! I have researched a bit on my own for 5 years and no one can figure out what is the cause of my thrombocytosis. That being said, thanks for the simple visual of what’s going on. It was helpful to see it even if we still don’t know what’s going on.
Hi have you find out whats the reason of ur thrombocytosis ?
Please check out my detailed comment I just left in the comment section, I am wondering if we have similarities
Thanks
@@QUIOCHO17 no. I’ve done every test, seen a rheumatologist too. Honestly I’ve not done the bone marrow biopsy because I’m terrified. My platelets are in the 525 range so since it’s nit crazy high I’m on the “get tested every 6 months” train. I recently found out my Vitamin D levels were ridiculously low. So I take a 10,000 supplement. I also work out & got a cpap machine. In general I don’t have negative symptoms right now. Cleaning up my diet-ditching sugar, too. So I do feel better I just wish I could get answers. But from reading on here a bunch of us may be in the “medical anomaly” category that my doc puts me in.
@blondage X I can’t find your comment, sorry. Can you copy/paste or tag me?
@@gratefulMOMent my platelets keep getting high. Did your doctor ask you to do bone mart biopsies?
My platelet count was in the millions! I saw a hematologist, so they took bone marrow( the worst, most painful thing I've experienced) and I was told I had essential thrombocytosis. I take 1000mg of hydroxyurea and aspirin daily now and will be for the rest of my life(I'm 43yo) it's a mutation in the bone marrow. JAK mutation. As long as you take care of yourself, and take your meds, you have a normal life..I'm fine.
Hi! Can I ask if you could share more about the condition? A relative of mine is having a similar condition as yours and we are worried that it may possibly be fatal. Does this mean that my relative would have to take regular blood checkups and take medication for the rest of their life? My relative will be having this bone marrow surgery soon and would it be possible if you could share more about the experience? If it's a hassle, I would understand if you chose not to. But either way, I would like to thank you for your time in reading this and I sincerely hope that I could hear from you soon. :)
@@Lloydrellon hello. With anyone, when they hear "cancer", it's a scary word. When I was diagnosed, I thought my life is over! But, noooo, I'm going to be fine praise the Lord! Some doc say it's a "blood disorder ", some say cancer. You have to be positive, don't think the worst. I rarely talk about it. As for the meds, I guess it really depends on your relatives condition and what the doc feels is best for them. I am high risk of heart attack, stroke and blood clots, but like I said, just take care of yourself, it's that easy. Your relative may have to take meds for the rest of thier life, . I felt nauseous for thr 1st yr then that feeling tapers off, now its just once in a while, nothing to bad..some ppl get sores in the mouth , legs..i haven't. At least i can live my life normally. Im very greatful.The bone marrow extraction, was the worst I have to say! I was awake while the extraction took place..I was shaking uncontrollably after, I think I was in shock..worst and most painful thing in my life. Sorry it took so long to write you back. I hope all is well for your relative. Stay positive. Hope this helped.
@@Lloydrellon and yes, I have regular blood check ups like 1 every 3 to 6 mo.
Thank you so much for sharing.
Same here _that’s encouraging to know_ do you get dizziness & pressure in your head at times & tinnitus at times? I avoid & manage stress, have regular exercise & watch my diet
My spleen was removed , this answers some questions- glad I found this video
You forgot to mention primary ET is part of a myeloproliferative neoplasm or MPN for short. The World health organization (WHO) reclassified it as a cancer in 2008. There are three “driver” mutations discovered to date: Jak2, CALR and MPL. Hydroxurea is the old drug of choice bit is not for long term use for our chronic cancers. Nowadays Pegulated low dose weekly interferon is the drug of choice for our chronic cancer. I am 23 years diagnosed with ET.
I heard it wasn't classified as a cancer in some states. Some state say it's a blood disorder .
THANK YOU !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
How are you now ? What your doctors suggested you please elaborate more , this would be helpful
I am doing well!
My count is over 1200 and stopped all alcohol 4 months ago. Waiting for appt with a hematologist. Feel and look fine with zero symptoms. Ferritin is off along with a few things. Thanks Bud Lite.
@Rich Bar the 1st lab lost one the tests. They did however confirm that I don’t have the JAK2 gene mutation. Now they want to do a sonogram of my spleen and a new set of different blood tests. Waiting now for appointments, 1 this week and 1 next week. Seems like a bunch of ado over nothing frankly. I feel too good. Ironically I’ve been donating plasma for extra money, 15 donations and having too many platelets doesn’t disqualify me. I made 1800.00 in 2 months, tax free.
Hi @mark smith any update to you?
@@camilleacenita4191 Hi Camille yes. I had a genetic test that confirmed I had the gene that is associated with this. I also reluctantly agreed to a daily capsule of 500mg of Hydroxyurea and a baby aspirin. The platelet count is trending down and they follow up with a blood test once a month. Last week it was down to 850. If I have any side effects I can’t notice them. Crazy since I have no symptoms.
@@MarkSmith-js2pu im glad they found it already. Cause it same thing with me, I did some genetic test like jak2, bcr abl, calr, and mpl mutation still negative 😔 now they request me to do bone marrow aspiration and biopsy.
@@camilleacenita4191 I don’t want to be a downer at all, but did they screen for colon or lung cancer? I read high platelets can indicate that. I’m going to allow a colonoscopy just waiting for a time to do that.
ET is a type of blood cancer. It belongs to a group of conditions that affect the blood called myeloproliferative neoplasms (MPN). ET is a very slow-developing blood cancer and for most people, doesn't affect how long they live for.
It is NOT definitely blood cancer. Polycythemia Vera is a blood cancer/disorder.
My Hematologist found I had extremely high platelets 1.3 million several years ago and put me on Hydrea. I took it for several years and my prescription kept having to be adjusted constantly. After a few years on it, my body no longer tolerate it. My doctor decided to get me into a clinical trial medication called Jakafi. It works like a dream! My platelets run steady at about 230. It's' very expensive, about $90 per pill, but if your insurance covers it or your doctor can get you into a financial assistance program and it is worth it.
I have a pretty high platelet count - regularly over 500, most recently was 528. I’m also a regular platelet donor, so I get an update of my latest count each time I go in. It has steadily increased over 6 months from 475 to pretty much always over 500. My doctor has had me do blood work for other things, and didn’t mention my (high) platelet count. Red Cross and other blood banks will only turn you away if your count is 600 or more. No idea what causes it, but it leads to speedy donations, so that’s nice!
Number1stara that’s a pretty high platelet count , did your doctor prescribe you something to lower the number?
Hi how are you? I have like that problem did your doctor examine you for what reason for your high platelets i have mild high platelets
What are the doctors doing to bring you back into proper range I like to know that isn't there antibiotics that you can take??? I have the same issue, I don't feel like anyone cares anymore. I don't feel like anyone's practicing preventive medical care anymore!
@@erickanyc8907 same no one care i am actually dizzy righy i dont know if its platelets reason i am going to see my doctor on march and dont know whats happening
Same here , mine is over 600lack , I'm also gonna confuse ....
Thanks for the explanation I have too much platelet in my blood and I am seeing a hematologist I'm tired of the hydroxyudrea
Can menstruation be a cause for platelets to be slightly elevated. Had cbc just recently during my 2nd day of menses and my platelet is 403. All other labs like hematocrit, rbc etc are within normal range.
can you please explain how iron deficiency lead to thrombocytosis.
Just got my labs and they said I have thrombocytosis and my doctor wanted me to take iron pills to see if that would lower my platelets
I’ve had iron deficiency many times and never had thrombocytosis
@JJ Medicine is pressure in the head (the feeling like when you’re taking off in a plane) and pressure in your eyes some of the symptoms also? Thanks.
I’m getting that feeling currently_ my last platelets level was 550
You’ve explained this excellently , thank you
I currently have this issue
Normal - 400
Me - 503
Severe - 1000+
Kind of nervous about it. Redoing a blood test again in 2 months with change in lifestyle and nutrition.
Did you ever had 1000+? Also what diet/life style would you change? Thanks
Mines is 429 what are some changes you are making?
Severe is 10,000 dont stress
Mine is 705 can anyone say something to encourage me so that I don't pass out. Please
Update: I had to go see a blood specialist, and they found me to be low iron deficiency so I started on supplements. I’ll go back to do blood work in about 2 weeks and see if it improved
Excellent, helpful, interesting. Thank you.
My platelets was 500 went on a wfpb ( no animal products) within 6 months went down to 383🙏
What is the wfbp please
Are you strictly vegan now and do you take any medication for it? I don't consume any animal products either and my platelets have continued to fluctuate between 450 and 500 as well.
My platelets were always normal. Within 1 week of getting over covid (omicron) I had 6 migraine auras in 1 day and a brief lapse of memory. I went to emergency room and my platelets are 686. I looked it up and it appears covid can increase platelet count. I cannot find anything on whether it goes back down well after the infection, but since covid, I've had skin itching after shower, due to a weird rash on back and stomach that only itches after shower; strange visual disturbances (screen looks blurry when reading on my phone) and generally weak. *IF YOU HAD COVID RECENTLY, IT MAY BE THE REASON.* I don't know why but wonder if it's due to bodily inflammation caused by covid infection. To the video maker, if you're aware, please advise. Thank you.
@@Yvettep777 it's highly probable.
Mine is around 8lk to 9lk im just 30yrs old no idea what's causing it , I'm being put on ecospirin since 4 months . After doing bone marrow and several other blood works no mutation or issues have been found . Still continuing with the issue without knowing the reason even I had omicron but almost 1 year back
Been dealing with this same situation for 2 years. Will not go down. Doesn't increase or decrease. It's worrisome
I have psoriasis, and that is also now a known reactive cause of thrombocytosis. Imflammatory conditions in general should have one's doctor consider that as a cause.
Hi I have psoriasis too and Thalassemia. Doctor said that my high platelets is caused by the Thalassemia but I think it is rare as I have had it for long time, my platelet used to be normal, but now is 583.
I think mine one is caused by psoriasis too. Can I know how high is your platelate count please?
@@FF-lj4lw hi FF. My platelet count is 525-550 now steady, and before I knew I had psoriasis approx 10 years ago it was approx 300-350 every time ever checked. Is that how yours played out? My psoriasis has always been very mild…slightly on knees, slightly on scalp. My doctor never mentioned the two as connected, but now that I Google it, it’s a known connection. Even ChatGPT knew they were connected lol.
@Burps Hi thanks for your reply. I have had psoriasis for nearly ten years but my pletelet count was not too high before which is around 178-220. My psoriasis isn't very serious, it only occurs on my elbow and near the ear but I think they are getting worse since I have had my covid jab. :(
@@FF-lj4lw Thank you for that info, FF. I googled “Thrombocytosis and Psoriasis meta-analysis” (those are compilations of studies) and found good information as it looked at many angles…like how high are the PLT counts w duration of psoriasis, and how many went on to develop even higher PLT count over time etc. I don’t have changes in any blood count but my platelets, so a more generalized heme disorder like thalassemia isn’t considered for me by the docs. My mother had high PLT counts approx 450-550 her entire life, and only later in life (age 65) got psoriasis, interestingly. I’m sorry about the worsening since vax for you. Despite all the pressure to get it, I avoided it bc I suspected it’d have repercussions given my inflammatory issues (psoriasis, very mild spotty alopecia). I know many were forced to get it for work, travel, etc. Im sorry for the effect for you; I believe you regarding the connection, FF.
@ Burps Thank you so much for you information! It is very useful!
At least we know it might be the connection between psoriasis and platelet as psoriasis is a chronic inflammation and autoimmune disease which might caused higher platelet count.
I hope you get well soon 🙏
Take care!
Hi thank you Doctor for sharing, what medicine can help to reduce High portals?
This helped my understanding alot. Thank you my friend!
93yr old woman w/COPD+Interstitial LD (diagnosed 6yrs ago) has experienced rapid decline since a case of bacterial pneumonia. Patient also has elevated platelets (diagnosed 17yrs ago with tests and spinal tap-no cause determined). Patient has fallen several times recently from passing out (viewed on video monitor), is breathless when sitting, and is having significant mental decline. However, SpO2 levels per oximeter shows 98% saturation consistently. Can elevated platelet count cause inaccurate reading? I feel patient (Grandma) would benefit from home oxygen treatment but oximeter results don’t support.
Does UTI increases Platelet count?
Yess same happened with me
@@tsukiyomi3539 are you taking antibiotics?
Same happening with me 😭
Can platelet goes up anytime if someone start to recover from an anemia??
I want to know the answer to this ^^^
@@nicolebreeden4360 does your platelet count high?
Good question… it’s been a year, are you anemic still? What helped?
Can platelet goes up anytime if someone start to recover from an anemia?? Iron deficiency anemia??
I am assuming its related.
@@Anonymous-ot1sd how???
I'm going on Tuesday for a full blood count which I do because I have blood pressure when I looked at the form it said previously I had high platelets my doctor never told me when I rang up previously about my bloods I was told everything was ok or as they say no further action I'm a little worried.
My platelets were high! Because I was anemic an I recently stop drinking an I had a lot of Infections! My iron level was low so they put me on iron supplements an aspirin to stop blood clots! May platelets level was 800 an Amazingly now they went down to 500! God is Good!!
I have h pylori do you think that can be it ?
So my platelets count is at 566 and I've been feeling chest pain, light headed and some stuff related to reactive thrombocytosis. Should I be worried? I'm 19 yrs old
Ask your doctor about pots. Postural orthostatic tachycardia syndrome.
Or if you smoke weed that's why😊
@@DaisyChain808 = Wait cannabis can increase platelets or are you saying to smoke some ganja to help? I'm honestly very serious. Thank you in advance.
thank you it's amazing how explain
Can platelet goes up anytime if someone start to recover from an anemia??
My skin itches when I take a shower. It’s very uncomfortable 😳. I also get dizzy and have passed out. I had a splenectomy many years ago because I have ITP or too few platelets. Thank you for this very important information. I wonder if it’s a possibility that my platelet count fluctuates. My blood tests have not caused a 🚩 red flag, so I assume I’m good.
Yeah, high platelets make you itchy after a shower. Get the platelets down, the itchy goes away
I have platelet count of 550 twas just 475 six months ago, anyone please help advice what the first thing best to do to control the increase of may platelet count thanks and God bless us all!
My platelet of 440 in March 2021 and 430 in December 2021 is it consider high?
no normal is between 150 thousand to 450
Can gerd cause high platelet count ? My daughter platelet count is higher in range
Last month 505000 this month 487000
I have GERD and high blood platelet but my doctors never said that would be a cause .... Doesn't mean it isn't though!
I have high platelet 603k for months without knowing the danger but when my hematologist told me to further check that is when i alerted myself and ate healthy do exercise it went down to 466k i just continued a healthy lifestyle it went down again to 398k (normal) ,i am waiting for my jak2 test result
mine is 667 may I know what you it to lower your platelet count？
ive been experiencing lots of bruises for a month now
@@maybellejoy3709 hi i eat all healthy foods veggies , juicing, and exercise (treadmill walking) no process meats , but i also consulted hematologist, but i think why my platelet went to 603k high is bec i have been eating junks and drinking slimming pills, ( now no more )
If doing everything but still platelet high you have to check with your doctor
@@maybellejoy3709 yes me too but i change my unhealthy lifestyle now no more bruising, check your blood after 2 weeks of lifestyle change if platelet is going down then your on the right track, if not check with your hematologist doctor goodluck
Iam waiting for my pbs result and so scary hoping its not that worst coz all I search about this scares me
Rheumatoid patient here. Mine were at 677. I see my rheumatologist in a few days.
I’ve had mildly high platelets for as long as I can remember. I’m in my mid 50’s and platelets are in the low 500’s, but were over 400 back when i was 30 years old. Any idea why?
Sir ,is there any problem,B+platelets is transferred to o+ blood.
My plaletes was 433. My wbc was.10.9. My Rhumatoidologist says she's gonna keep a check on it? I'm kinda concerned because the wbc decreased slightly from a mth ago and my platelets which was normal on the high side a mth ago and within a mth elevated. Do i still have the thrombocytosis at that level? When i was little i had a PTT causing bleeding. Now supposedly i don't now it appears the opposite from what i read.
Did you ever go back to normal or find out what the problem was?
If no fever and no weakness during low platelets count (58k). And red spots shows on legs and hands. So what can do? It's dangerous?
Same wt you did ?
58 thousand red or white platelets
Did you ever find out ?
Myplatelets is 48 and I problems but if you are going to have a minor operation ask your doctor to boast up your platelets or you're bleed to death. There are medicines to increase your platelets.
I've had high platelets for at least 45 years and no one has ever cared!
My MPV is 13.1 , in lab report it says its suppose to range from 9.4 - 12.4 for normal. Am I too high in MPV?
Mine too . How are you doing now ?
@@devinpeirce7152 I have a Doctors appointment the end of this month, so I will find out soon.
Any updates?
I have high platelae 1292000 and wbc 67200 and Hb 11. Doctor said cml.its true
I have high inflammation count and high platelets since I had the covid shot. How can I correct this using sound frequencies
Very informative ..
Can being Gluten sensitive add to a slight higher count?
Yes
I am a 46 yr old female I'm worried because my blood work results came back showing my platelets shows high of 462 h.. What this even means? Should I worry, should I be on a special diet. My doctor says I shouldn't worry too much, but I do is my body 🤦🏻♀️😩
what if the platelet count is 476 with bleeding for about 3 weeks? is it dangerous?
Hi have u find put why u have high platelets
I've been going to my doctors for years for high platelets and genuinely not feeling well, my playlet count I said usually 500+ but recently they have rose to 630
Only now the doctors are taking me serious as I'm pregnant. I'm benign referred to a specialist
I do have a lot of kidney problems like infections and stones
I don't know what to do cause I genuinely don't think They are going to take me serious :(
Have your platelets continued to rise slowly or have they always been elevated and then increased from 500 to 600?
Have they checked for JAK2 mutation? Or done a bone marrow biopsy?
I hope your pregnancy is going well.
I am 600plus platelet also i dont know what to do
@@cocolee8396 has an appointment or referral been made to see a haematologist by your dr? What country do you live in?
@@charlieleonardo yes ive done jak2 no result yet, my platelet going down from 603k to 446k to 398k just by eating healthy
@@cocolee8396 that’s awesome they’re going down _ keep up the healthy eating & taking care of yourself with lots of rest & relaxing & avoid & manage stress
Just found out that my platelet count has been high for the past two years my last blood test that i did last month showed that my platelet count is at 587 i see a hematology/oncologist next month,if the doctors knew that ive had a high platelet count for the past two years then why r they just now telling me about it and just now wanting to do something about it
Can you update us about your platelet?
Maybe it was picked up that you had the high platelet count because of a recent Full Blood Count for a general routine check up. The doctor then looks back on past blood tests & can see that the platelets had been gradually increasing to high levels until eventually being above normal range!
mine is 667 im so nervous now
@@maybellejoy3709 are you experiencing any particular symptoms such as headaches & dizziness at times as well as tinnitus?
@@charlieleonardo no just lots of bruise for months now and now im waiting for my pbs result
Ager esr high ho platelet low ho to kya antibiotics le sakte hai??
My platelet count only 30000 to 40000.Since 11to 13 years....im steoride dependent....any solution plzzz..help me.
I m so tired from steroid uses.....due to this many problem create with me.
Plzz tell me how to maintain my platelet count.🙏
papaya leaves juice may help increase the platlet count ,along with apples.Send me your CBC report.
@@maqsood7 Ok Thanx
And kindly tell me..corona vaccine inject or not?
@@nadiawaheed4654 ,Take pfizer vaccine.
@@nadiawaheed4654 ,Kia aap k pass blood report hay ?
I'm super concerned...
In 2020 my platelets were 458
In 2021 it was 437
This year (2023) it's 480.
All other blood work done on CBC was normal. What could this be?
Same
Excellent
I have 465 what to do can I check with doctor or not I am having hair transplant surgery next week it will affect me or not
My platelet count as of today is 506k that why I'm not giving a fit to work in my medical result . How can i handle my platelet ? Can you please help me
How can treatment deficiency of ferritin
My mother has polycethemia vera and her platelets count now is 890. 17 yrs taking hydroxyurea now since her platelets continue to increase even she drink 3x a day of hydroxyurea her blood developed medicine tolerance, her hematologist suggesting jakavi or jak 2 which is very expensive. We can't afford.
My grandson his platelet is so oo high.. Any recommendations pls
What about Plavix, if one developed an allergy to ASA?
I am taking Plavix and Anagalide currently.
Hi my platelets count is highly or over u no my platelets count is 7laks how to normal pls tell suggestion what tablet
Hey
Earlier in the year I had a platelet count of 504. 9 months later today it’s at 463. No idea what caused it. Wish this was better understood.
I am having a panic attack. Someone please share your experience so that I can prepare myself. I did PRP injection on face and injected Vitamin C weekly once for a year. I didn't do a blood test for 2 years as I had no health issues. I did one on June 29th in which the platelet count was 739. I took a test again on the 11th of July and the count was 728. I took the test again today ie. 25th of July and the count is 705. I have stopped all cosmetic treatments for 4 weeks now yet it's still above 700.
29 June - 739
11 July - 728
24 July - 705
Is it dropping or is it consistent?
All other report came out normal. I didn't do JAK 2 and bone marrow biopsy as I don't want to accept that I have cancer😓😓
I thought if I stopped everything it should go back to normal in a week. Is that so or will it take months to go down?
You fail to mention the effect of having the JAK 2 mutation. That is what caused mine.
My father died from multiple myeloma, so I wonder if genetically that has something to do with my high platelet count
What is ur platelet count, if u don’t mind my asking?
Make an appointment with either a Genetics Doctor or Genomes Doctor to make sure.
Good question my father has Multiple, Myeloma. And my MVP is elevated.
I'm at 496 from my test yesterday, is it possible to lower it to atleast 450 by another test on Monday? I need it for work reasons.
Hey there, did it go down in a week?
My platelet 4.13 plz help you
Hi guys. My plat count was 426 today, healthy 28 year old male. No issues or symptoms what so ever. However my doctor ordered more blood work, should I be worried ?
Me too 421 but I just got my annual physical exam results today. Haven’t checked with a doctor again.
@@shai9 thing is everyone tells me if it’s not over 450 plus it’s normal
Has anything changed with you since getting your results. Mine is 435
@@sarahdansby7165 I think the results are based of my psoriasis I have a bad flare up on my legs. I also talked to another doctor and he told not to worry about unless its in the 800's
@@sarahdansby7165 I also don't have any bruising or anyone symptom's and all my levels are fine. so I'm not worried about it
Everyone that made a comment and has high platelets, needs to see a doctor. Period! Better yet- go straight to a MPN Specialist.
Yes you’re right Sue. Did you go to the doctor and get a prescription to get your platelet number down?
Anyone who has had lab work to find out that their platelets are high obviously had just been at the doctor!
It's about doing to a blood specialist, they need to find a hematologist. And also if their primary care doctor isn't referring them to one then they need to find a new primary!
59000 platelet count is there any remedy
I have high platelets...I was diagnosed with Von Willebrand disease this is a genetic disorder.
How high is your platelets
800’s
You can get info under JJ Medicine....I follow this doctor on UA-cam...check him out...many information on various topics 😊🙏🏽
I have 539 platelet count. I found out when I went to the emergency room for taking supplements on a empty stomach that made me vomit for a couple weeks. I've did blood work for my doctor 2 times within 2 months and he never mentioned anything about my platelet count he just said my cholesterol was a bit wacky that was it. I'm guessing my platelets increased after damaging my gut with those supplements.
Hi would you please let me know which supplements you were consuming? My platlets are 550
That’s what happened to me.
Turned out I have gallstones.. The ER doctor said he wasn’t worried about my platelets it was at 488. So it depends on your doctor.
Hi there I had a blood test and my blood test was 590 I do suffer from platelets always being high but this is the highest
It has been any advice please thank you in advance
Hi may i know whatsbthe reason why u have high platelet?
@@QUIOCHO17
Hi there I suffer from thrombocytosis. I will know more today my platelets have always been high always above 500
@@janesparrow5557 hi there have you find whats the reason of your high pltelets. I an freaking out mine is 478 :/
@@QUIOCHO17 mine came back at 433. Have you found out what has caused yours to be high?
@@MsCubanmex not yet how about you?
My platelate is so high 890 ...what is the meaning of this?
Did you ever receive a diagnosis? My mother just found out her are over 900. Thanks
@@lacyb8289i do have essentail thrombocythemia .. 5 years now im taking hydroxuerea sometimes 3x a day 2x a day its depends on my hematologist and everyday im taking clopidogrel ita like aspirin .. my platelets sometimes 1200 900 .
Thank you so much for responding. I’m thinking she does too, she goes to a hematologist soon.
I just found out i have 841 platelet count... And I'm very worried
My daughter four years old she is suffering from itches and she have 2 lakhs something platelets is there any pblm
Now iching is ok please answer
Mine is 217 l don't know if its ok
Google Mayo Clinic
That's a fine number
Mine 487 i am scared anyone find out why they have high pltelet?
Go see a hemotologist to get further testing could just be genetic
Now your platlets ok
@@poojaverma9870 dont know yet going to doctor tomorrow. How abt u
@@JRJS6802 genetic disease or genetic like i inhereted to family .?
@@JRJS6802 will get doctor appt tomorrow. Hmm
Just got my bloodwork results and my platelet count is at 402 K/uL. Thanks for the explanation.
My son 3year having platelet 452000.then what happens
GNANA PRAKASH that’s very serious for kid to have high platelet number...did you take your son to doctor?
How is your son now ...
its been 1 year... how is your 4 year old?
My Platelets, white blood cells and eosinophils are higher than normal, anyone can explain this to me?, Thank youuu
My platelets and eos are high too for a year now. I left a detailed comment in the comment section..check it out maybe we have similarities?
@@blondiex315 have you get itching???
Have you got itching??
@@sahrah8253 hi Sahrah. No, no itching. My hematologist asked if I have itching especially when I get out of the shower, but I do not. Why do you ask?
Actually for the first time in 3 years my blood platelet level was considered normal at 372. Then it went back up to 395 in April.
The only things I did different was I first moved my bed in my room after 5 years.
It was up against a wall where directly on the other side was huge electric wiring. I read a article where they said high platelets can come from exposure to strong electrical wiring or exposure to chemicals.
Then I started going to an ayurvedic doctor for the platelets becauss no one was giving me answers. I went to 3 different hematologists/oncologist, 4 different gastroentologists, 1 rheumetoid doctor, 1 neurologist, 2 dentists, 4 different primary doctors, 1 endocrinologist, 2 pulmonary doctors and 1 allergy doctor.
Trying to solve what was causing my elevated plaetlet level with no answers. My primary sent me to integrative medicine where I started acupuncture. My acupuncture doctor then sent me to her own acupuncture doctor who started all different kinds of weird methods with me which have seem to miraculously be working.
I started drinking Tulsi tea (holy basil tea) every night as per my ayurvedic doctors directions, also bone both eevery night for 3 months.
Dry brushing and meditation.
All of the sudden my platelet level dropped to 400 then 372 then back to 395.
The hematologist said to me "I don't know what you are doing but whatever it is keep doing it"
@@blondiex315 congrats....thank you so much for your reply...many people told that they high platelet cause itching...and allergic reaction....so i ask this question....
Sorry for my english.....thank you
I got 403 and I have been freaking out :(
403 platelet is normal
My platelets count is 448000 is it dangerous
Clasher yes that’s pretty high. Are you going to make a doctor appt today? You need to
are you saying 4,480?
@@annomaly751 Are you a doctor. Who told you that this is very dangerous level. I have been to many doctors and none of them would bother about platelets unless it’s above six lakh... anythin between 4-5 lakhs considered normal
@@shiningglory5414 my platelets count is 461. I was bit worried..after reading this message i feel relieved. Thanks.. So just wanted hear from u again as you said you consulted many doctors. Thank you
448k is in normal range your fine
534 platelet count. What are the causes?
Normal doctors will show some concern but won’t do further testing unless you feeling any symptoms or changes in your body. Most doctors will find it alarming if you have over 750 that’s when they’ll recommend a bone marrow biopsy and scans.
I stop steorid then my platlet is very low....so i again and again use steorid.13 years
My son is 5
His platelets are 450
Is it normal?
my blood platelet count in january 2021 was 14,00,000 and in may 2021 was 11,00,000 and in july 2021 is 89,98,000 is it normal ? all my reports are normal and ultrasound is also normal
Please reply
Did you have jack 2 blood test?
You need this to be followed up by your dr & a referral made to see a haematologist!
@@cocolee8396 negative hai
@@DharmikSujhav negative is good result, eat healthy exercise that is the best
I just recently quit taking alcohol for a month now... How high will be my platelet count? Anyone please.
My platelet count is 426 it is high??
My platelet count is 697.00 plz tell what i should i do.
Ask your doctor 🤦🏻♀️. UA-cam helps with increasing your knowledge 😉
I has 603k platelet also i am going to check my liver and spleen
Hi my platelets count is 4.17 what problem
You talking 4 million? Everyone on here freaking out about 400 and I'm a millionaire too. Lol
My platelet count is 403 10³ is this dangerous?
Is There a CURE ? something to reverse this ?
living at higher elevations from living at lower elevations ?
What about diabetics?
Thomsiedipina
i have also high platelet count 540+...
How r u now.mine is also same like urs
What's ur doctor told
419 vitamin d low 25
Mch low 26.7
My father is 58 his hematology test showed 297 PlT , but P-LCR 0%. Is that a serious problem?
My platelet count is 200 but my mpg is 13.6 so I’m worried
Oh my god! So I am not allergic to showers after all!!
I have 3,69,000 it's normal or high count