My Handbag Keeps Me Alive | Living Differently

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  • Опубліковано 14 сер 2018
  • When Lauren was diagnosed with pulmonary arterial hypertension as a child, she and her mother Tracy knew just how serious it was. The family had already experienced tragedy at the hands of the disease with Lauren’s father passing away due to the condition in 2010. After receiving her diagnosis Lauren underwent treatment and now, she pumps an experimental drug into her heart - which involves carrying the pump around with her everywhere she goes. Despite facing a shortened life expectancy, Lauren lives life in the present without inhibitions. She’s training to become a nurse to help people just like herself.
    Producer: Joe Roberts, James Thorne
    Editor: James Thorne
    Director: Elie Khadra
    Series Producer: Charley Sutton
    Executive Producer: Alex Morris
    Head Of Production: Adam Mudditt
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КОМЕНТАРІ • 2,5 тис.

  • @sunyyshinee
    @sunyyshinee 6 років тому +3052

    "I can't control what happens to me, only how I respond to it" wow okay we all need to learn from that

  • @rachelel9087
    @rachelel9087 6 років тому +5520

    "I'm not scared, because I feel like there's going to be a time when I need to be scared, and now is not that time"
    Wow. As someone with multiple chronic autoimmunes that can end up fatal....wow. This hit me hard. Truly. And I don't say that about ANYTHING. Thank you for that Lauren.

    • @sarawilkinson6766
      @sarawilkinson6766 6 років тому +38

      Rachel El I agree, it reminds you to be in the moment. Incredible young woman.

    • @shania209
      @shania209 6 років тому +18

      Very meaningful

    • @anetten425
      @anetten425 6 років тому +9

      How old is she?

    • @fantazjaz7448
      @fantazjaz7448 6 років тому +16

      I wish I had watched that phrase when I nearly died a year ago and agree she is so strong EDIT: STAY STRONG GIRL

    • @gabrielleandrew542
      @gabrielleandrew542 6 років тому +7

      So wise so profound what an amazing young woman she should be made a nurse quick so she can mentor others

  • @strangelove4267
    @strangelove4267 5 років тому +1827

    She’s currently doing well at SFSU, I became a friend of her’s in history class.

    • @jesusandstephforever5733
      @jesusandstephforever5733 5 років тому +74

      How old is she? Thank God is is doing well.

    • @BobCindyL
      @BobCindyL 5 років тому +77

      Thank you for the update. :)

    • @briannabergman8381
      @briannabergman8381 5 років тому +42

      Thank you so much, I was worried!

    • @krishmajoshi
      @krishmajoshi 5 років тому +33

      @@jesusandstephforever5733 she's 18 or 19

    • @ThisIsYourOnlyWarning
      @ThisIsYourOnlyWarning 5 років тому +46

      Oh thank you so much for the update! Please let her know there’s a lot of people checking on her and wishing her the best?

  • @RomyKane
    @RomyKane 5 років тому +750

    My heart broke into a thousand pieces when her mom started talking about her life expectancy and her voice cracked 💔 wishing her the best

    • @adhc8560
      @adhc8560 4 роки тому +23

      That woman's suffering shows in her eyes. First watching her husband die, and now watching her daughter suffer and knowing she may lose her too. I hope so much a cure comes in time to help this beautiful girl - so smart, so lovely, so mature and thoughtful.

    • @craigtaylor4131
      @craigtaylor4131 4 роки тому +6

      I hope she lives a long and happy life

    • @jammier6483
      @jammier6483 4 роки тому +9

      She is now a nursing student at SFSU however her sister now has it.

    • @alittleofeverything4190
      @alittleofeverything4190 3 роки тому +3

      She has already lived longer than expected. Her mom lives with this fear every night she goes to bed. They are all role models for us who live basically pain free every day. Love life! Peace!

    • @rawdata678
      @rawdata678 3 роки тому

      @@jammier6483 so its genetic. Hidyopathic means "we dont really know"

  • @burymedeep-be7dm
    @burymedeep-be7dm 6 років тому +1840

    And I was whining the last 6 hours of my shift last night cause water got in my boot and my sock was wet. You're pretty tough.

    • @carlocolombo8768
      @carlocolombo8768 6 років тому +25

      burymedeep 2093 6 hours, whats your job? And why wasnt the sock dry?!

    • @burymedeep-be7dm
      @burymedeep-be7dm 6 років тому +82

      Random PERSON I clean machines in a large bakery. So we blast chemicals and water and a water boot filled upand i didnt bring extra pair of socks.
      The stuff I complain about is so inconsequential compared to some this girl is really amazing

    • @iampringlestm8603
      @iampringlestm8603 6 років тому

      @@burymedeep-be7dm Seriously?

    • @iampringlestm8603
      @iampringlestm8603 6 років тому

      @Twins Gaming Seriously?

    • @iampringlestm8603
      @iampringlestm8603 6 років тому

      SERIOUSLY????

  • @JodieLouise98
    @JodieLouise98 6 років тому +1836

    She is so mature and has a deep understanding of life at such a young age. Very inspiring!

    • @toaster3183
      @toaster3183 6 років тому

      Mature means shes not acting her age

    • @cacti3884
      @cacti3884 6 років тому +6

      @@toaster3183 No? Mature means you're mature lmao

    • @_little.sam_
      @_little.sam_ 6 років тому +1

      @@toaster3183 it's immature, I think you got it mixed up

    • @toaster3183
      @toaster3183 6 років тому

      @@_little.sam_ yeah my dad said mature meabs not acting their age lolollololol

    • @_little.sam_
      @_little.sam_ 6 років тому +2

      @@toaster3183 ma·ture
      adjective
      1.fully developed physically; full-grown.

  • @Jenna-lo1yp
    @Jenna-lo1yp 6 років тому +1868

    *I'm a dumbass. I thought It was some self-centered teen saying she can't live without her handbags 😂 but boy was I wrong! God Bless Her!*

  • @soccerboy1447
    @soccerboy1447 6 років тому +759

    I feel like shit for complaining about anything now. Shes done so much better than me with her sickness (idk what to call it). I hope she lives a long happy life with no pain

    • @ry9134
      @ry9134 5 років тому +31

      A Salty Fry you shouldn’t feel bad. we all have days where we don’t fell good. i know that other people have it worse but that doesn’t mean that we should feel bad for going through a human bodily function, pain.

    • @jennajames5446
      @jennajames5446 5 років тому

      If you never know, I feel condition usually fits

    • @jacobramonebennett-watkins2234
      @jacobramonebennett-watkins2234 5 років тому +8

      You have a right to complain I don't understand this mindset... Everyone has a right to complain about a shitty situation vs. someone else's shittier situation.
      Now if you over-complain then yes thats a different story, but every human being has the right to complain regardless of the extremeness of the injury or diagnosis

    • @larissaleigh4488
      @larissaleigh4488 5 років тому +7

      Ok but like, just because someone has worse problems than you that doesn't make yours invalid.
      If you are broke and cant pay your rent, sure, its not as bad as being homeless but its still a valid problem and you can still complain or be worried about it even though its not as bad as some other problems in the world.
      The " oh i shouldn't complain about anything because there are others who have it worse" mindset is illogical and really annoying

  • @minalaine9692
    @minalaine9692 6 років тому +2098

    Why do good and inspiring people like you get to have lives like that

    • @k.o.h8446
      @k.o.h8446 6 років тому +205

      Lulu Laine I think its the other way around. People who get lives like that *are* inspiring.

    • @lodoesstuff3594
      @lodoesstuff3594 6 років тому +98

      Because people with those lives learn to be kind. The ones without those lives don't learn how they feel.

    • @varpu3379
      @varpu3379 6 років тому +2

      Ootko suomalaine?

    • @Kinobambino
      @Kinobambino 6 років тому +50

      The people who struggle the most and lift themselves up are often more powerful than those who lead easy lives

    • @moniquegrove9809
      @moniquegrove9809 6 років тому +14

      Because they grow to be good and inspiring people in there life and they leave an impact on us to be better people

  • @fullmetalgaara2
    @fullmetalgaara2 6 років тому +701

    What a wise young woman. I'd listen to her podcast.

  • @3brendan933
    @3brendan933 6 років тому +223

    she's the kind of girl people write books about... so sad she has to deal with it but i think it makes her a wonderful person, i hope life turns out good for her

  • @missiesmith949
    @missiesmith949 3 роки тому +97

    My adoptive daughter was born with only half an heart, basically. She had her 1st open heart surgery at 2 HOURS old. She has had several more since then. Both of her parents died from the same condition before my girls 4th bday.
    These girls are amazing survivors. They can do anything. They can take over the world.

    • @PanDeSal.28
      @PanDeSal.28 3 роки тому +1

      🙏🙏🙏

    • @jerilyn9683
      @jerilyn9683 3 роки тому +1

      God bless you 🙏 ❤

    • @badlandschugs2042
      @badlandschugs2042 3 роки тому +1

      No one asked

    • @badlandschugs2042
      @badlandschugs2042 3 роки тому

      @Meme Guy! Coming from a guy with the word meme in his name he doesn't really live up to it does he no

    • @kingtut7213
      @kingtut7213 3 роки тому +8

      @@badlandschugs2042 stop being cringe

  • @MrsznewyawkRN
    @MrsznewyawkRN 6 років тому +608

    My mom had to use this device but with a different medications cause she had heart failure this past october she got put on the transplant list and received a heart an we still have her today THANKFULLY.

    • @user-lv6is9bc6v
      @user-lv6is9bc6v 6 років тому +6

      thank god and her being resilient!!

    • @Kinobambino
      @Kinobambino 6 років тому +2

      That's beautiful. Send her my love and keep on loving life 😊

    • @gatooncracko527
      @gatooncracko527 6 років тому +1

      That’s a miracle. Wow, I am so happy for you.

    • @Chris-fe1kx
      @Chris-fe1kx 6 років тому +2

      Mrsznewyawk godbless your mom, stay strong 🙏🏻🙏🏻

    • @PixelSheep
      @PixelSheep 6 років тому +2

      Nice! All the best for you and your mum!

  • @lclark715
    @lclark715 6 років тому +470

    She has an old soul. Very inspirational

  • @ArtisticPawsStickerEmporium
    @ArtisticPawsStickerEmporium 5 років тому +53

    "I'm not scared, because I feel like there's going to be a time when I need to be scared, and now is not that time"... ty Lauren

  • @kendallsummary971
    @kendallsummary971 5 років тому +701

    This must be so hard for the mom I can't even imagine 😣

    • @Angie-ry7ql
      @Angie-ry7ql 5 років тому +1

      Yeah:(

    • @amongusinreallife3
      @amongusinreallife3 5 років тому +5

      Um you think it’s hard for her mom ITS HARD FOR HER

    • @jasonstarrising
      @jasonstarrising 4 роки тому

      iloveyoutkp
      No u

    • @Unknown70896
      @Unknown70896 4 роки тому +1

      Kendall Summary hard to imagine why you’d describe your situation the way you just did on social media and you basically saying and making it sound like your mums dying and your enjoying your coke in the next room... maybe get of the computer and go wipe dat arse. That what family is for but your is obviously irrelevant in yourself to make it this open.

    • @lucy7559
      @lucy7559 4 роки тому

      But she copes so well

  • @patm934
    @patm934 6 років тому +804

    36 years old very young,but managed to stay strong for his beautiful wife and daughter

    • @katiehansen5931
      @katiehansen5931 5 років тому

      Pat M my uncle joe wasn’t married to Aunt Tracy when he passed

    • @katiehansen5931
      @katiehansen5931 5 років тому

      I’m Lauren’s cousin

    • @liamhoskinson4505
      @liamhoskinson4505 5 років тому +1

      @@katiehansen5931 how old is Lauren, out of curiosity

    • @katiehansen5931
      @katiehansen5931 5 років тому +3

      Aliya Hoskinson 18 she will be 19 in December 2 days after Christmas her and my dad have the same birthday the crazy thing is we both have heart conditions but I’m adopted 😂

    • @katiehansen5931
      @katiehansen5931 5 років тому +1

      Aliya Hoskinson we are both 18

  • @its_brandeeb
    @its_brandeeb 6 років тому +520

    I cried along with her mom. I don't know that I'd be strong enough to hear that about any of my boys. She is such a brave young woman and very grounded

    • @rachelel9087
      @rachelel9087 6 років тому +6

      That whole family has been through a lot. Her father died, and her mother has been intubated at some point (scar on her neck) Jesus :/

    • @Snyde91
      @Snyde91 6 років тому +6

      Username does not check out.

  • @amyevans5209
    @amyevans5209 5 років тому +125

    My nephew has this he's had the pump since January 2019 and he's doing amazing and it will be out in August of this year! Keep fighting baby girl! Y'all are AMAZING!!!

    • @gooselaughter5149
      @gooselaughter5149 5 років тому +6

      @Axiss Playz But the father had it too...

    • @salj.5459
      @salj.5459 4 роки тому +4

      Axiss Playz The only dumbass here is you

    • @MiSSJUiCEBOXXLiVE
      @MiSSJUiCEBOXXLiVE 4 роки тому +3

      Axiss Playz Hows that possible when the dad had it?🤔

    • @FOC-xu2kw
      @FOC-xu2kw 3 роки тому +2

      Amy Eva's how can your nephew survive without the medicine in the pump? There is no cure for this disorder.

    • @dynishaspalding220
      @dynishaspalding220 3 роки тому

      @@MiSSJUiCEBOXXLiVE mp

  • @pufca5856
    @pufca5856 6 років тому +40

    “I can’t control what happens to me, but I can control my reactions of it.” Smart and beautiful girl.

  • @tanyaak9382
    @tanyaak9382 6 років тому +1956

    I hope no one ever steals her bag 😫

    • @isabell9269
      @isabell9269 6 років тому +63

      @@mariannalove4880 LOL? WHAT THE HECK THAT AIN'T FUNNY!

    • @MOCHIOKIE-xx5ts
      @MOCHIOKIE-xx5ts 6 років тому +47

      It's not funny Marianna this is a serious thing if you can't take something seriously than why comment something that can offend others.

    • @lizalvarezllamas
      @lizalvarezllamas 6 років тому +89

      I know, I thought the same thing because where I live is very insecure so if that happened to her that would be a disaster, but luckily she has her dog so she can feel safer

    • @IvanBraginski13
      @IvanBraginski13 6 років тому +3

      @@MOCHIOKIE-xx5ts dont shit on them they didn't make the comment

    • @aliasanew3398
      @aliasanew3398 6 років тому +6

      there are some really sick people in this world.

  • @stephaniegrant8164
    @stephaniegrant8164 6 років тому +1845

    Such a fighter. Sending my prayers ❤️

  • @MirceaD28
    @MirceaD28 5 років тому +550

    how much money we pour into war, weapons, and how much in research? Just sad

    • @secondswell
      @secondswell 5 років тому +15

      It wouldn't matter anyway for the wider spread disease's like cancer even if they found a cure they would probably not release it cancer is a multi billion dollar industry. For diseases like hers that are not wide spread they probably would release a cure if they had one people are greedy.

    • @dogvtf
      @dogvtf 4 роки тому +18

      @@secondswell bruh theres probably already a cure for cancer. it's probably just being covered up cuz governments gotta get that green.

    • @secondswell
      @secondswell 4 роки тому +3

      @@dogvtf that's pretty much what I said.

    • @olgabagildinskaia7415
      @olgabagildinskaia7415 4 роки тому +15

      @@dogvtf there can't be a cure for cancer because cancer is not just one illness. There are numerous types of cancer, each reacting differently to different types of treatment. So that's just a naive thing to think.

    • @kittenmimi5326
      @kittenmimi5326 3 роки тому +2

      @@olgabagildinskaia7415 cure for 'cancer' which is not just a single thing would be.... expecting a single cure to be able to solve many many diseases at obce. That'd be wishing for some magic there lol
      About treatments that might help, those probably already exist but dtill in trial with questiomable results, not getting widespread enough to be useful or people exploiting that by jacking uo thr prices so much almost nobody will be able to afford it

  • @moonlightpalace8038
    @moonlightpalace8038 3 роки тому +9

    " I cant' control what happens to me only how I respond to it " ....this girl is wise beyond her age ... sending loads of love

  • @deborahk5433
    @deborahk5433 6 років тому +4662

    Its important to educate ourselves about these things, I learn so much when I watch these mini docu.. You're sooo strong baby girl ❤️❤️❤️

    • @porterhouse5502
      @porterhouse5502 6 років тому +2

      DeeDee Nicole 123 nice virtue signaling

    • @feero9680
      @feero9680 6 років тому +3

      Doc.*

    • @skyeperry1923
      @skyeperry1923 6 років тому +1

      Yeah

    • @emily.6903
      @emily.6903 6 років тому +7

      DeeDee Nicole 123 maybe don’t call her baby girl?

    • @briana_patrick
      @briana_patrick 6 років тому +12

      @GamingwithJamie Plays it's a term of affection you dumbass

  • @IRISistibleMakeup
    @IRISistibleMakeup 6 років тому +450

    Lauren's strength is incredible and I wish the best for her but can we also talk about her mother? She lost a husband and now her daughter is going through the same disease. I wish her all the best, hope her daughter still has many many years to live.

  • @jagdiskheidi2261
    @jagdiskheidi2261 5 років тому +718

    When I grow up I will find a cure to this

    • @ijeomaaao
      @ijeomaaao 5 років тому +78

      @@bjornnielsen7613 come on...... let her try to save people. Stop being sarcastic.

    • @ijeomaaao
      @ijeomaaao 5 років тому +15

      @@bjornnielsen7613 damn... okay

    • @roxyndra
      @roxyndra 5 років тому +32

      please do. I believe!

    • @lizziehodder7590
      @lizziehodder7590 5 років тому +30

      @@bjornnielsen7613 honestly let the girl have dreams

    • @lizziehodder7590
      @lizziehodder7590 5 років тому +30

      @@bjornnielsen7613 yeah there is disapointments but if she wants to find a cure she can try

  • @KaileexLove
    @KaileexLove 5 років тому +46

    My heart goes out to her and her family. I can’t even imagine losing my husband and then my daughter. What a strong family

  • @alien-ann
    @alien-ann 6 років тому +2711

    Moral of the story don't steal people's handbags

  • @guipacker
    @guipacker 6 років тому +185

    I never comment on videos but WOW. This girl is like a breath of fresh air. She transformed my day today. Thank you.

  • @janyou17
    @janyou17 5 років тому +17

    At her such a young age she is doing all those treatment preparations for herself. Her perseverance and will to survive is amazing..

  • @karssgovroom
    @karssgovroom 5 років тому +504

    She looks like a mix between Joey King and Chloe Grace Moretz

  • @fishypoop
    @fishypoop 6 років тому +355

    I hope nobody takes that bag. She is so inspiring...I’m speechless

    • @corypaws6741
      @corypaws6741 5 років тому +6

      Like, steals it? Because I'm pretty sure it's attached to her.

    • @utkarshmishra7416
      @utkarshmishra7416 5 років тому +35

      @@corypaws6741 no like a bag snatcher thief, where they snatched your bag and run away.

    • @kawaiipinkukittyangel7957
      @kawaiipinkukittyangel7957 5 років тому +1

      @@utkarshmishra7416 i Hope that doesnt happen......

    • @devon1777
      @devon1777 3 роки тому

      she wears it as a crossbody, as long as she does that no one can take it

    • @Char10tti3
      @Char10tti3 2 роки тому

      @@devon1777 won't stop someone who really wants the bag unfortunately

  • @billybrown8919
    @billybrown8919 6 років тому +244

    i hope she has a long and good life!

  • @ooommm4024
    @ooommm4024 2 роки тому +1

    All I can say is go for it! I followed a similar path, growing up with multiple dangerous medical problems, and eventually went back to college to become a registered nurse. Despite extreme pain, nearly dying from a rare, life threatening vascular defect called Dunbar Syndrome, and being 1 semester away from graduating, I refused to let the circumstances keep me down. This placed promoting quality of life in perspective.

  • @gregoryoh2758
    @gregoryoh2758 4 роки тому +4

    She is a brave warrior, I have been diagnosed for over 12 years already and currently use the same drug bur I use it in my stomach, may God keep her

  • @boogieg8763
    @boogieg8763 6 років тому +57

    i have cancer and i had to have thins tube in my chest for almost 2 years and it was hell. i would cry and be so depressed just about the tube. you are so strong lauren! i look up to you. praying!

  • @Loug522
    @Loug522 6 років тому +2317

    I hope she gets better!

    • @audrey9947
      @audrey9947 6 років тому +183

      There is no cure.

    • @jacktangent
      @jacktangent 6 років тому +161

      She said in the video there wasn't a cure. As disappointing as it is - she will probably never get better.

    • @gummyfishlegz
      @gummyfishlegz 6 років тому +42

      There isn’t a cure...

    • @anetten425
      @anetten425 6 років тому +116

      I think the person means that they hope it gets easier or they fined a cure.

    • @lilava7326
      @lilava7326 6 років тому +15

      Me too... Poor girl...

  • @LTilli313
    @LTilli313 4 роки тому +2

    So this girl real does adapt to everything. Did I hear there was a long wait list for a service dog, so she just got a dog and a trainer to him herself? That's amazing and I love her attitude.

  • @g.s777
    @g.s777 4 роки тому +1

    Poor girl man she so sweet doesn't deserve this at all.

  • @linolium4814
    @linolium4814 6 років тому +384

    I also have a tube in my chest :)
    (I have short gut syndrome and I'm on TPN)
    It's nice to see that you're not alone

    • @rachelel9087
      @rachelel9087 6 років тому +36

      I have no tube, but a port. She does a kickass job at prepping it.

    • @christinewilkinson6059
      @christinewilkinson6059 6 років тому +17

      Mik P I was on tpn for 2 years from issues with gastroparesis. Good luck and many prayers for you💚

    • @namineutane5932
      @namineutane5932 6 років тому +10

      good luck! I hope you stay strong! bless you and your family.

    • @mauragrier6958
      @mauragrier6958 6 років тому +6

      I also have a broviac in my chest for TPN/IV fluids :).

    • @ingoingmage9207
      @ingoingmage9207 6 років тому +4

      What is short gut syndrome?

  • @berkeuslu
    @berkeuslu 6 років тому +122

    She is smart and beautiful. I hope they will find a cure someday.

  • @hannahb2479
    @hannahb2479 5 років тому +5

    It's so hard not to cry when you hear about this stuff :( 😭

  • @emma-leyahcharity8080
    @emma-leyahcharity8080 5 років тому +2

    I’m literally crying she’s so inspiring I love these videos she needs to stand strong she’s beautiful

  • @ljubicastojanovic2660
    @ljubicastojanovic2660 6 років тому +55

    5:16 she has a great attitude, this sentence should be a quote somewhere 😊

    • @mimi-fl1ys
      @mimi-fl1ys 6 років тому +1

      Ljubica Stojanovic It's already a quote by someone else.

    • @negg7046
      @negg7046 6 років тому

      There's a quote along the lines of what she said.

  • @EmoPurpleTurtle17
    @EmoPurpleTurtle17 6 років тому +51

    It's nice she can be so positive about a difficult situation and not let it stop her from doing what she wants in life.

  • @Nodexis
    @Nodexis 4 роки тому +11

    I don’t know her but I love her she’s very strong ♡ ♡ ♡

  • @kinchowangmo4144
    @kinchowangmo4144 5 років тому +3

    She is such a positive spirit. “Live each day like last day” thanks for the advice 🙏

  • @mje19D
    @mje19D 6 років тому +86

    Lauren is an incredible young woman. So inspiring and strong. I hope she somehow reads this comment and smiles. Thank you for your bravery and charm. :)

  • @chigasaki06
    @chigasaki06 6 років тому +87

    Watching these videos reinforces how fragile life can be. I love her perspective..."do it now," time waits for no-one and we can pass at any moment. Praying for her strength and a cure.

  • @gotchufam2964
    @gotchufam2964 4 роки тому +2

    She’s an amazing girl, she can change the the world with her dreams, her positivity and her response to the things that get in her way, nothing can stop her, she is strong she will get through this, she is an inspiration to everyone. If she can push through despite the situation she’s in why can’t you?
    Bless her soul I wish her luck on her journey.

  • @ValerieMarieM
    @ValerieMarieM 5 років тому +1

    "I can't control what happens, only how I respond to it." That is profound. So glad this young woman is able to live her life with such an amazing outlook.

  • @vampiricly
    @vampiricly 6 років тому +342

    this isn’t nearly as deep as the other comments but she looks kinda like Chloe Grace Moretz??

  • @lunamoon7218
    @lunamoon7218 6 років тому +41

    My bff has crohnes disses and she has to have a tube going into her stomach and she's always in the hospital. God bless the people who are like this girl and my friend, these people are true angles 😇

    • @nyla-amarasmit8117
      @nyla-amarasmit8117 6 років тому +2

      I have crohn too. I have portocath. Permanent iv tube
      I have benign braintumor. Chronic pain high dose morfine. Sleep disorder and kidney damage.
      Not out of bed since oct 2017.
      Now renting a wheelchair when i need to go to hospital.
      Have surgery again soon.
      I hate being this ill. Girl in video is amazing. She lives. I dont.
      Im stuck. And have only my 2e dad
      😢😢😢

    • @sabanoor885
      @sabanoor885 5 років тому +2

      Amarah smit stay strong I hope things get better for you❤️ I have Ulcerative Colitis and it’s such a debilitating disease as is Chrohns I had to have an emergency surgery because I had a toxic megacolon

    • @nyla-amarasmit8117
      @nyla-amarasmit8117 5 років тому +1

      @@sabanoor885 oh noo.. hope you are now bit better after surgery?
      Crohn is bad.. but for me chronic pain is way worse.
      I cant do anything. Not lay on any normal bed. Not sit in every chair. Not walk. A normaly pretty simple operation was so painfull (surgeon was an .... so she didnt believe me no pain doctor was consulted) that i wanted to die. Not b/c of my shitty life no only b/c of the pain.
      Also sleepdisorder is also horrible.
      But all combined... 😢😢i cant...
      Thanks be strong. Hope you do have good care! 💖🙏💖🙏

  • @ellenharropsfx4538
    @ellenharropsfx4538 5 років тому +1

    She is so amazing! I can't believe how positive she is and how much energy she has for life! I wish I was even half as inspiring as her. I wish her the best in life and all she gets from it xxx

  • @lucyespinoza-bl3sc
    @lucyespinoza-bl3sc 5 років тому

    this girl is absolutely amazing, no like, wow, her positive outlook on everything is just literally mind boggling

  • @crinsuphalak4868
    @crinsuphalak4868 6 років тому +47

    I’m glad that there is a documentary about this. I have been diagnosed with this condition about 11 yrs ago. It’s hard. I feel your pain and all that you go through. There is time that I’m afraid but I tell myself that I have to be strong not for just my family but for me.

    • @crinsuphalak4868
      @crinsuphalak4868 6 років тому +3

      Thank you so much for putting this out there. Everyone need to learn and know about this rare condition.

    • @ughkook
      @ughkook 6 років тому +3

      You are a strong person and I wish you lots of love and happiness.
      I'm thankful you and I exist in this moment together!

  • @bex8832
    @bex8832 6 років тому +144

    Such a lot for a young girl to go through! Very brave girl, absolute credit to her parents. I hope she continues to keep well ❤

    • @gummyfishlegz
      @gummyfishlegz 6 років тому +1

      Bex 88 she cant get well..... there isn’t a cure...

    • @bex8832
      @bex8832 6 років тому +4

      @@gummyfishlegz Yes I know I watched the video! Read what I've written - I said I hope she continues to keep well... 🤦🏻‍♀️

    • @jasonstarrising
      @jasonstarrising 4 роки тому +1

      Bex 88
      There is no cure
      She will never get well

  • @Jesussavedme
    @Jesussavedme 5 років тому +9

    In heaven we will all be perfect 💖 No more desiese no more pain no more suffering I wish her the best she's so sweet and beautiful inside and out God bless you sweetie

  • @jasminetorres5486
    @jasminetorres5486 5 років тому

    Bless her. I hope she lives a long wonderful life! I love how happy she is and I hope she gets to live her life to the fullest.

  • @cutelilly1000vedios
    @cutelilly1000vedios 6 років тому +100

    Omg she’s so pretty!
    She looks like an actress!

    • @Pineapple85247
      @Pineapple85247 5 років тому +3

      An actress can look like anything.

    • @amayahaynes244
      @amayahaynes244 5 років тому

      LSDWI, so what you got from all of this video is that shes pretty, she could die any second and your worrying about her looks shame on you.

    • @kevinsidarta8392
      @kevinsidarta8392 5 років тому +4

      @@amayahaynes244 ayyee chill she is just saying that lil girl is pretty dats all.theres nothing wrong with dat comment wtf.

    • @Tasnim33
      @Tasnim33 5 років тому

      Like Chloe Grace I thought

    • @jacyannc7381
      @jacyannc7381 5 років тому +1

      @@Tasnim33 me too!!!

  • @simply3663
    @simply3663 6 років тому +21

    My mom has the same thing. And when ever I see the pump it makes me cry. So I was crying through like the whole thing.😭😭🙏🏻🙏🏻

  • @thedustiev1
    @thedustiev1 3 роки тому +1

    What an inspiring young woman. Her sunny outlook & her ability to grab life with both hands & not think too far ahead amazes me. I want to try & be more like this🙏

  • @anyabrandon4991
    @anyabrandon4991 5 років тому

    This made me cry so much, she's so brave - such a fighter. My sister died of this at 3 years old and it's such a heartbreaking thing to have

  • @jordanmahoney2765
    @jordanmahoney2765 6 років тому +7

    As someone who has a congenital heart defect and missing pulmonary valve, I could relate a lot to what she was saying. It was really inspiring to hear how optimistic she is. I really look up to and admire her for this.

  • @nicoleperal8236
    @nicoleperal8236 6 років тому +75

    *Im so sorry for people with problems like this 😕😢*

  • @Rahul-cu4bz
    @Rahul-cu4bz 4 роки тому +2

    Such a brave girl.It was really heart wrenching and emotional to watch.May god bless u

  • @miamarie4484
    @miamarie4484 6 років тому

    What a strong, beautiful girl. I hope she lives better. She’s so inspirational to all. Stay strong girl!❤️

  • @de3414
    @de3414 6 років тому +3

    She just made me realize not to be scared and to make the most of life.

  • @flintdances7713
    @flintdances7713 6 років тому +26

    She's such a fighter! It must be extremely hard to accept that she will become immune to the drug soon and will probably pass away prematurely. She has so much more courage than me! Then again her condition is so much more severe.
    I'm 14 and I was told that I'm slowly going deaf from my frequent ear infections. They said there's a pretty good chance I'll be more than half deaf by the time I'm 30.

    • @maeannsacay4552
      @maeannsacay4552 6 років тому +3

      I'm 16 but I have a permanent infection in my right ear and it happened when I was just 6 yrs old...I'm a little bit deaf so when someone wants to say something secret to me, they have to whisper in my left ear...oh and i have to come to see a doctor everyday when my right ear starts to hurt or there's a liquid flowing out

    • @laurenspencer2670
      @laurenspencer2670 5 років тому +1

      Ophelia The Sergal you’re so strong girlie!! This is Lauren from the video💜sending love

    • @flintdances7713
      @flintdances7713 5 років тому +1

      @@laurenspencer2670 Thank you!

  • @nurseali4902
    @nurseali4902 3 роки тому

    Wow! What an amazing young woman! Such a beautiful heart and a maturity beyond her years. She will be the best nurse ever!

  • @faith9196
    @faith9196 5 років тому +1

    I absolutely love her. I hope she’s doing well. She’s so brave and so inspiring.

  • @cm2ca
    @cm2ca 6 років тому +40

    Such a beautiful, articulate young lady!!!💜💙💚

  • @vipinjamwal1522
    @vipinjamwal1522 6 років тому +13

    This is not easy to live such a life she is a real fighter

  • @dani1768
    @dani1768 5 років тому

    What a beautiful soul, I hope you live a long happy carefree life. She is definitely going to change lives❤️❤️

  • @brownsugar1822
    @brownsugar1822 5 років тому +3

    What a positive and beautiful young lady i wish her well .

  • @IMADALBASRII
    @IMADALBASRII 6 років тому +64

    My dear. My thoughts with you and with all children and kids who facing all hardships. Think this life is a journey and never think you are stopped actually you might faster than other we live how long don’t make different we all will leave

  • @givemefood1616
    @givemefood1616 6 років тому +13

    I have a complex congenital heart condition and have had 3 open heart surgeries , and although I don’t have a pump myself I do what it’s like not to know what’s going to happen in the future with my condition especially since it’s palliative. I really sympathise with you, you are so brave and I hope new treatment will soon be found to help not only you but people with the same condition 💓

  • @tiffinyrae7614
    @tiffinyrae7614 5 років тому

    What a WISE, WISE, young lady!! She was actually very inspiring to me; speaking volumes about doing what you love - NOW! And not caring what others think... very good advice. I loved hearing her story 😊So glad she shared it 🙏🏽

  • @annacooper7298
    @annacooper7298 5 років тому

    I love her. She has such an amazing personality and I wish I could live as positivity as she does

  • @MissNebulosity
    @MissNebulosity 6 років тому +13

    You can tell that she is a very detail-oriented, intelligent girl by the way she speaks.

  • @iamherenowandgoneforever5120
    @iamherenowandgoneforever5120 6 років тому +14

    *imagine someone just dash by and snatch the bag from her* that's just so scary to think of

    • @n_u001
      @n_u001 5 років тому

      the tube just rip straight out and she just drops dead on the floor oh well

    • @jasonstarrising
      @jasonstarrising 4 роки тому

      hello oofpuke
      A black guy

  • @zhairesimon2089
    @zhairesimon2089 5 років тому +32

    fight hard and NEVER GIVE UP♥️♥️ Lauren

  • @fabulousomelette5168
    @fabulousomelette5168 5 років тому +2

    As soon as this video started I literally started to cry

  • @esxoanddszo5391
    @esxoanddszo5391 6 років тому +16

    *_U are so brave and I love ur personality! U go girl!!!_*

  • @N3RDYG0GGLES
    @N3RDYG0GGLES 6 років тому +10

    Wonderful girl and good doggo. It's so good that she's able to surpass some of the limits her condition brings, and that she's staying positive wherever she can. This is one of those times where saying that someone with a condition is "inspiring" is really accurate.

  • @Minecraftian09
    @Minecraftian09 6 років тому

    The stuff she said at the end was extremely inspiring. I hope I can take her words to heart and live like I only have a few years left.

  • @magicalcadet2323
    @magicalcadet2323 5 років тому +1

    Awww poor girl I hope she has a good life

  • @euphoriajk5487
    @euphoriajk5487 6 років тому +17

    🙏❤ prayers. She's so positive and so inspirational. I realized that I keep complaining about all the stuff that annoys me, and I just keep complaining and complaining that I don't realize the blessings that I recieve. Like I easily break down and stuff for the smallest things and she just helped me. May God bless her and her family. I will continue to pray for you and everyone else who is going through tough times. You guys aren't alone and that God will always be with you. 🙏❤ Thank you for helping me realize this. God bless!❤🙏

  • @justinaliu8199
    @justinaliu8199 6 років тому +37

    I always thought I had the worse life in the world now I know how lucky I am keep up the hard work! I would never be as couraged as you!

    • @heythere7788
      @heythere7788 6 років тому +1

      justina liu why do u think u have the worst life

    • @Tyler-wb9qk
      @Tyler-wb9qk 6 років тому +6

      Yashi Chu ikr why do people even comment these things

  • @alicelangford2903
    @alicelangford2903 3 роки тому

    I've watched quite a few of these short episodes now about the different conditions people have to live with.... as someone who doesn't suffer with any conditions, my heart really goes out to them. They live their lives and don't let their condition define them... and when I sit and think about all the different things that can go wrong with the human body; the thousands upon thousands of conditions, and types of conditions that are out there, it makes you realise how privileged you are as a person that your health has never succumbed to any of them... bodies truly are amazing things, and to anybody out there living with a condition, you are amazing, because I couldn't live with something not working the way it should....

  • @tek512
    @tek512 3 роки тому +2

    This is a dang tough girl, and pretty wise to boot. I can only hope she's still doing well.

  • @nathanmasters7952
    @nathanmasters7952 6 років тому +261

    Imagine if someone tried to snatch her purse? 😖

    • @sreerajr6470
      @sreerajr6470 6 років тому +1

      Nathan Masters same here

    • @anetten425
      @anetten425 6 років тому +1

      Oh my goodness

    • @anetten425
      @anetten425 6 років тому +8

      That would be terrible

    • @lizmowrey9866
      @lizmowrey9866 6 років тому +46

      Thankfully she's got her service dog and a big dog is a good deterrent

    • @janedevonshire3936
      @janedevonshire3936 6 років тому +10

      Ahh, why did you make us imagine that, ❤❤😥😰😢😨😭

  • @vneziagabriell151
    @vneziagabriell151 6 років тому +107

    You are a total mature girl

  • @catcallender5913
    @catcallender5913 5 років тому

    Wow! This girl is so inspiring & wise beyond her years. I loved her statement about living without inhibitions! Powerful.

  • @jonlizsam
    @jonlizsam 5 років тому

    Lauren, you are a wonderful and beautiful young lady with a sweet mom. Your attitude is amazing!!! Great job getting the bubbles out of the cassette and doing cath care. You’re coping so well with PAH. I know that you’re going to be a super fabulous RN. I was a nurse, providing the many PAH therapies and caring for some inspiring people. Those 10 plus years were the hi light of my 30 year career, because I was inspired so often and had a chance to help people learn to live with their diagnosis and and manage so many things in order to stay alive. Thank you for sharing your video. You made my Day!!

  • @ventorix
    @ventorix 6 років тому +6

    im shocked at how she can survive. hope she lives on forever :)

  • @angeldust3676
    @angeldust3676 6 років тому +293

    I would die if I went out without my bag because I'm a brittle asthmatic some of you may not know what brittle asthma is but it's when your lungs are permanently partly closed so I'm basically always having a asthma attack of a normal asthmatic so when I do have an attack it completely closes and I can't breathe at all so I have my inhalers in my bag all the time one day I didn't get them out quick enough and I fainted I almost died that day I have almost died twice in just 3 years

    • @Hannah-io9jb
      @Hannah-io9jb 6 років тому +35

      cat girl This is terrible. I have never heard of this kind of condition. I prayed for your healing and may you be well. I believe and hope that you will be well and whole one day. May you also be safe and live a long happy life. Xx. *hugs*

    • @YskarAlbumLuna
      @YskarAlbumLuna 6 років тому +14

      oh damn i know the feeling of when the lungs close completely, it's completelly terrible, worst feeling in the world, that's sad af

    • @marisa8565
      @marisa8565 6 років тому +6

      Im really sorry for u idk what to say but i hope u live a long life

    • @mindfucker8515
      @mindfucker8515 6 років тому +10

      Maybe wear one around your neck too, just in case you forget the bag

    • @kjh-h7162
      @kjh-h7162 6 років тому +6

      You sound like you need to have an oxygen tank

  • @kristen3565
    @kristen3565 5 років тому

    Truly inspiring! We can all learn something from this and she is honestly motivating. I hope a cure is found one day. She is incredibly strong and powerful, go girl!

  • @helennguyen8093
    @helennguyen8093 5 років тому +3

    You're such a brave and strong girl, and I wish nothing but the best for you in the future!