IS SOMETHING WRONG WITH MY FEEDING TUBE?! (5.3.17)
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- Опубліковано 9 лют 2025
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I met another Frey life viewer in my local grocery store today. We both had Frey life shirts on and we noticed at the same time smiled and ended up having a deep meaningful conversation for a few minutes, it's cool that something like a vlog on UA-cam could make two strangers connect and stop their day to talk and smile to eachother. I thought I'd share as if Mary reads this I bet it'll make her smile. And I bet it'll make other Frey life family (the people) smile too. I'm happy to be apart of this community and family. We are so inspirational and kind, sure there's a few nuts here and there but you get nuts everywhere it's the sweet ones that makes the rest worth it (unless you're alleging to nuts XD )
"We the people" smile! (and "like," lol ;)
Allison S thats so cool!
Allison S I think mary will see this :)
Hey guys, I recently found your channel and subscribed. I'm a nurse so I find your videos super amazing for two main reasons. First and foremost, how incredibly awesomely positive you both are, it's truly infectious to watch such happy spirited people. And secondly because I find it all so educational as a nurse because I've had such little exposure to CF individuals during my time as a nurse. Thank you guys for doing what you do and please don't ever stop!
I'll officially be a nurse in about a month and I feel the same as you! Love their awesome, positive sprits AND seeing all the medical stuff! It's really interesting to see a patient adapting to things like CF and feedings tubes outside the hospital.
Yay Becky! You did it! What sweet friends to throw her a little celebration ☺️ I finished my very last final on April 21st! I just have an internship to do this summer and then I'm freeeeee! It's the best/scariest feeling!
Mackenzie Corbin Congrats to you!!
I don't think putting "You did it" on the cake is weird at all lol. That's a really cute table set up! It's simple, but elegant! Hoping there's mothing wrong with the tube and the pain is just a sign that you're still healing on the inside. I love that quote on your wall! "Do what you think you can't do." It applies to so many different things in life! Yup, itchiness on or around a scar is usually a sign of healing! That's great! Haha Mary, you dancing at last year's Great Strides walk was awesome! Lol. One thing I always mean to tell you guys, but I always forget - one of the many things I love about your vlogs (ao far since I'm a new subscriber) is that no matter what, you both are almost always smiling about something. Yeh, you have your bad times, but you never let them last long. That sends a message of hope to SO many people out there fighting all kinds of struggles. So thank you for that :)
I thought of y'all today as I went to visit my newborn grandson in the hospital. I used a wheelchair to conserve my energy. Your explanation of that choice for you gave me a new perspective and the courage to do it myself. Being as I am wiped out right now, back at home tells me that it was the right choice. Thanks for helping me with that!
hearsthewater I use a chair whenever I go to the store to conserve energy as well as keep myself safe. I'm going through testing right now for suspected multiple sclerosis. I have rheumatoid arthritis, fibromyalgia, and multiple connective tissues disease and a bunch more stuff. so energy conservation is super important. keep your spirits high, and look for the good in all things. it's not easy but it's possible.
chronically jaquie is another youtuber with medical treatment similar to mary. she has nurses come in her home to help her. this seems to take a huge burden off her long time boyfriend. you can also see how she deals with her illness as a young adult. she doesn't act like or is treated like a child. the difference is quite evident and she's enjoyable to watch. her faith in God is awesome! her channel popped up in my suggested to watch feed so I ended up watching several of her videos lastnight. nice lady
Cyster Sledge I commented this hoping peter and mary would see and possibly watch, peter looks totally worn out. there are other ways to handle this kind of situation and still be around. I know mary wants to do everything themselves but there comes a time when you have to look at your partner and his needs. maybe they can't see it but as viewers that have watched them for awhile, we can. in sickness and in health, I get it. God made other professionals too that can help too! I'm getting in home nursing and therapy now that is awesome. it takes such a huge burden off my husband and family.
okay so i was already giggling at the way you said 'she takes me to see her goats' but then i died at 'SHES MORE THAN GOATS' 😂
Something about Mary dancing on the stage, just made me smile. Seriously girl, you know how to move! Good luck with your appointments tomorrow!!! 💜💜💜
While I was struggling at physical therapy I kept thinking do what you think you can't do!
Yay a new video! Keep getting better Mary! Watching these videos always make me feel better about my auto immune disease! It could always be worse! We are all so blessed just to wake up each day with or without chronic pain am I right? God is good! 💜💜
Hey Mai , I feel the same way I love watching them do life with such a positive attitude no matter what the circumstances . I deal with an auto immune diseases as well and all the lovliness that comes with it but watching mary and others gives me encouragement and to do what I think I can't ! I will be praying for you and for your healing as well as Mary too ! God bless !
I love how they can is a platform known for hateful comments but bring people together, and teach is how important life is and to life it fully! !
i watch yall religiously. im chronically ill and might just start vlogging even though it makes me incredibly nervous you guys give me so much joy ❤
The Vlogging Murrays the internet is a cruel place haha. ❤
Ollie makes my heart melt, he is such a special boy❤️God bless❤️
Don't go too crazy on newborn stuff, Mary. They don't fit in it for long. My son was born in January and within two weeks he had outgrown most of his newborn size stuff. I'd been given so much by friends and family that I ended up donating a few bags of stuff to my local AFYMCA. Brand new stuff, still tagged. Clothes, bibs, a couple teddy bear loveys, packs of pacifiers, etc. And I still have enough stuff saved and packed away for any other babies I have in the future.
Laura Martell My 15mo wore NB clothes for about 7m! hes just now in 6-9m clothes lol
Katy Simmons mine's 15 weeks and he's in mostly 3, 3-6 months and some bigger 0-3s. The difference in sizes between brands in frickin' ridiculous. I have a sleeper that's "9 month" size and another someone gifted me that's "3 month" and they're EXACTLY the same size.
I'm about to finish my finals!! ❤❤❤ thanks for the encouragement
The Vlogging Murrays Thank you! 👍👍
Veronica Haley great job you got this!
Third day in a row of getting here under a minute. I have too much time on my hands haha
I just finished my last final and am officially a senior. Aaaaand now hip surgery in 5 days 😬
Hope the surgery and recovery go well and yay you're a senior!! You did it!!! Try to have some fun before the surgery.
sayswice good luck with your surgery! i'm sure it'll go smoothly :)
Lauren Jayne thank you :)
yaas u got this girl!! wishing you the best
Hope your surgery goes well! And congrats on becoming a senior!!
My heart flutters whenever I watch your videos
Lily Cooper i know me too
I hope you feel better, Mary! I'm so sorry about the pain and the ER fun date. ;) LOVE y'all!!
Aww. I'm exited to see how this walk will bring so many people together!
I did just finish my finals so thank you, enjoy the cake for me 😂
Post exam celebrations are the beesssttt. It was very thoughtful of you both!
Hope you feel better Mary. Best wishes for you, Peter, and Ollie
I have been a long time subscriber and just find it is infectious watching you guys because you are so happy and are always looking for the positives. Wish you guys luck for the future.
Just finished finals at Penn State, graduating tomorrow, starting my dream job next month at SpaceX building spaceships that go to the space station :) Congrats to all you graduating seniors out there!
Love u so much u can do anything ur inspiring a joyful to watch hope all goes well ❤️❤️❤️❤️
I love Ollie's award worthy smile!
Glad you didn't lose the feeding tube. I have been worried since you did it again that it would be a lot of hassle and not last any longer than the other one. Hang in there girl!
I am going to the walk in Memphis, Tn at the Memphis Zoo this weekend, my cousin Sarah Clements is a CF fighter so we do it for her and all the other fighters out there!
Mary has a cute sneeze!
4 days away from starting my finals! Officially terrified but watching you guys helps me calm down :)
OMG The cutest sneezes ever! 😘. Baby shopping is fun! You get to spoil the baby, have fun and not have to wake every 4 hours for feeding! hahaha! Seriously though. I love being an aunt and had my girls, my sister's two daughters I helped raise, over every weekend. I would take 1 one weekend, the other the next when they fought lol. My Jessica got Married and has two children! Blessings come in many ways! xo
My daughter just took her last final in college and graduates next Saturday....my son had his last day of high school today and graduates 3 weeks after my daughter. This momma's heart is happy but also very emotional lol
Allison your Awesome.I really enjoy the frey life they make me smile everyday.Margaret from Florida.👍💗😀💪
Yeah ! 128K followers ! The numbers just keep climbing ! Go Mary Go ! You also, Peter & Ollie !
I love your Service Dog!!! Ollie is such a good boy and he's so freaking adorable!!! I have a cat named Ollie. He's a little jerk, but in the good way. He likes to bat and bite my hand if it dangles off the bed. I'm so glad I found this vlog channel. It puts a little smile in my day, every day. Thank you guys.
Great Strides this Saturday in St. Charles, MO! 💜
I find that it's a good idea to buy baby clothes in sizes 6-9 months. That way, no matter how big the baby was at birth, the clothes will be able to be worn longer. ❤💕💗💞
I'm signed up for the walk here in Raleigh, NC!!! Cannot wait to show my support for you!!!!
You guys are amazing hope You get to feeling better and heal soon Mary love all three of You God Bless
Mary you are doing great, only two weeks and look at you go! Are you in any of the feeding tube support groups? Feeding tube awareness has a great support group on Facebook for hearing people's similar experiences to your own and trouble shooting the 'teething' issues when things are new and you aren't too sure. You are becoming a pro already but it's comforting to have that to fall back on with people that have had feeding a long time or others with new tubes too 🙂
Great dancing last year Mary!!!! Love you guys❣
It's funny when you talk to the camera, I find myself talking to you as though you can hear me, LOL.
I'm also about to finish my finals!!! One last class and I take my exam and then get a 6 week externship and my 2 certifications😊 very proud of myself!! Finishing almost 2 months early!
Marissa Case fabulous job
I just bought a couple of things from you guys. I'm supporting you as you go through this and I'll take a picture of my shirt and post it on FB and tag you in it. I love you guys soooo... much and am praying that they find a cure for this. Love from AZ
Have you ever thought of making a spotify playlist with some of the songs that you guys listen to and sing to in the car? I always love the stuff that you guys jam to
I love you guys! Yours is the first vlog I watch each day. You make me smile. Thank you!
You two inspire me every day! Thank you!
I'm not going to lie, ever since I've heard about y'all doing foot baths I've been doing them also. So refreshing!! I'm also a stickler about clean feet and my bed.
Best way to spend my birthday afternoon! :) Can't wait to get the package I ordered!
My name is Becky and I am about to take my college finals too!! 😂
Becky B Good luck! I remember those days
Aw thank you so much!!!
You both are so great to have a cake for your friend, your so thoughtful. You both are the best In the You-tube world. God bless you all always. ♥♥
Mary, kohl's typically has good prices on infant clothes as long as u use the coupon. this weekend there is 20 percent off.
Yay for Becky! On June 5th I will actually start school again after being out for 27 years. Scary!
Ann Butler you can do it courage is not the absence of fear it is fear that said its prayers and did it anyway!
Thank you Karen!
Mary I loved your dance, so cute. I hope your pain is turn care of.
My walk is late, June 10 2017. I can't wait!!!
May 20th is my cousins wedding! But I'll be thinking of you two and Ollie and hoping for a great day and great time with your walk!
What a cute sneeze🤣
Great dancing, Mary!
I ❤️Ollie Boy! He's such a cutie!
Thanks for the "you did it" LOL! My finals will be over soon 🙂
My last college final is on the 10th!!! Man the last four years have been real! It's not quite the real world yet coz I'm going straight to grad school:) finally! And congrats Becky!
I do the Samaritan 5k in the same place and it's really a great route!
I'm currently a college junior and watch your videos everyday! (like even though I am constantly super busy, I make time to watch everyday) and even though I don't take my finals until June (quarter system), I still got a little boost from your little final exam shoutout haha
sometimes soreness can be caused by granulation!!..the water can go down making leakage around the stoma..i used to make stoma pads made from cut up quilted sanitary pads,, they work great and absorb any leakage
Marys dance= on point!!!!
This might help. If you have any smaller vests try that. I use the child large sometimes of the hill rom vest. It doesn't go down all the way. Maybe it will would somewhat help?
I watch The Frey Life while I have foot-baths :P.
So awesome! Go Team Frey!!!
I never knew how incredibly hard this disease was on a person until I saw your videos. but you still see how wonderful life. your smile is completely contagious and your both good looking too!😉 I too wash my feet at the end of the day and think of Jesus when I do it. I know too much information. good night and we'll see you tomorrow.
You both look fantastic!!!
I am really going through a lot right now, I wish so much that I personally could reach out to you and pour my heart out as I feel I need help with God's guidance for me. I can't help but question. And for me here where I live, I have no one I can trust sadly not even family. In light of this I want you both to know your Vlogs, give me encouragement and strength to carry forward even though I feel like giving up. Thank you Peter and Mary for being honest, loving and sincere with all you do!! I am so Blessed to be apart of your Frey Life Family!!!
~Jennifer~
Had no idea sneeze were contagious. I sneezed right after marry did! haha
Just finished my first set of finals in nursing school! 3 semesters until I get my RN!!
Thank you for the finals encouragement..... i need it!! (also I may be procrastinating studying by watching your vlogs lol:D )
Love the Frey life....
Thumbs up for Mary's awesome dance!!!!
Love you guys!❤️🙏🌹
Dallas TX is on Friday the 13th! Hopefully it doesn't rain! I might be going depending on how I feel this next week! Gonna buy a shirt if I do!!
Can you guys do an updated "Day in the Life"? You guys are awesome!
My last final is tomorrow! I can not wait for it to be over!
Woohoo finished my finals last week! :)
Great vlog today🐶 and oli cuter than ever!
The cake was so accusatory!
We sneezed at the same time Mary! Lol.
have you increased the feeding amount over the last 2 days? could be the distention of your jejunum.
hug Ollie
Hahaha did those people stop to turn around and look at OLLIE??
Loving your videos as always love you
This video made me smile and I would check to see if your ballon has a leak in it I know I've had mine pop before and I've woke up with my gtube laying next me that wasn't good at all it's a pain in the butt your videos always make my day! ❤️
@thefreylife I have finals Monday and Tuesday next week and then I GRADUATE COLLEGE on May 13!!! I've been in college for 5 years, and lots and lots of doctor appointments and surgeries later!
I finally made it (that was supposed to be at the end of the comment lol)
My fiancé is graduating from college on the 13th. He will be graduating from UTA with a Bachelors in Management 🙂🎉 we are so proud of him. I'll pass along your "You Did It!" to him. 💗
If the pain doesn't improve then please get it checked, sweetie xxxxx
Hey guys! I am quite new to the Frey life but LOVE watching your videos every night (or at least, it's the evening here in the UK). I hope everything with the feeding tube settles down.
I have a question! I really want to buy a tshirt this month, but I was hoping to get an idea of sizing. I am a size 6/8 (I think? I'm a UK 10/12) and I was wondering what size long sleeve you would recommend??
The part of Australia I am in isn't doing it til august but super excited. If I can't walk im going to get someone to push me in my wheelchair but my goal is to walk it
I wish your church was less than an hour and half away, I'd really like to check it out.
I finished my last final on Tuesday but my summer microbiology and sociology classes start in a couple weeks so my celebration is kinda short 😂😂
hey guys hope your ok
Cute clip dancing mary! Lol
Just finished my finals 2 days ago!!!!
Bit late to the game here and don't know much about CF, was wondering about something Mary said about the stickers being packaged in one of the other videos. She said that if another CF patient was ordering the stickers it would be Peter that packaged them and Mary would not touch the stickers. Was just wondering why that was necessary for CF patients.
Lily Rose so the recipient doesn't get any of the CF germs that Mary's body produces (CF germs can "conflict" with one another, and cause bigger health problems if you catch someone else's when you also have CF.)
I always come home from school and watch your new vlog, it wasn't there this afternoon so I kept checking my feed and I finally searched your channel and it said I wasn't subscribed! Weird!