XXY Talk: Kelsey Maffei Age 38

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  • Опубліковано 11 вер 2024

КОМЕНТАРІ • 89

  • @davidherz2521
    @davidherz2521 4 роки тому +18

    I'm 21 and I have Klinefelter syndrome. Just 7 months ago I knew that I have it.
    When I knew it I felt so bad, I didn't want to keep going but with the testosterone treatment this thing change.
    I'm starting my sixth semester in Mechatronics Engineering and it seems that thanks to the treatment, my effort and the motvation of this type of videos I am doing better.

    • @LivingwithXXY
      @LivingwithXXY  4 роки тому +1

      How did you find out you had KS?

    • @davidherz2521
      @davidherz2521 4 роки тому +1

      @@LivingwithXXY With a genetic analysis that my doctor told me to do.

    • @ashersmart5837
      @ashersmart5837 4 роки тому

      Did your doctor ask you to get tested or did you approach your doctor to get tested?

  • @geoffh4192
    @geoffh4192 Рік тому +3

    I like how you he stated how it was delivered. That was the same with me. The urologist was very cold and it was very hard to hear that side of things. It was a huge shock for me. Thank you for sharing.

  • @davechristensen8299
    @davechristensen8299 Рік тому +3

    Good role models. Thanks for standing up for all different people.

  • @genioushustler5110
    @genioushustler5110 4 роки тому +21

    I have kleinfelders and I look at it as a blessing. Cant have kids. Yahoo. No child support baby momma drama for me. I am blessed to live life to the fullest. Most important is exercise. Enjoy this beautiful life. And if we cant have kids wonderful we can adopt and help a child in need. Life is about giving and giving.

  • @Lightbulb909
    @Lightbulb909 2 роки тому +4

    God, I remember when I was told I had KS. My parents knew prior to my being born, but was told at 15. For a whole week, I kept asking myself: “is this reality, is this really how I am”? But eventually I stopped thinking like this because I had been like this since birth, so that is who I am. Being told that I will not be able to have kids was hard to accept, but I have since accepted.

  • @robertmcdonald3272
    @robertmcdonald3272 4 роки тому +6

    I feel so much better after watching these videos on how to deal with klinefelters syndrome you guys are awesome and I’m happy you guys are spreading awareness

  • @charitygoodrow7127
    @charitygoodrow7127 4 роки тому +9

    Thank you for continuing to spread awareness about Klinefelter Syndrome. My son was diagnosed in utero as well and so I feel as though I have an upper hand with regards to awareness. So far, so good. He is excelling in ever sense of the word (walking at nine months and talking up a storm from age 6 months) and I look forward to learning how Klinefelter Syndrome will shape him in a positive way. Also, my son is extremely afraid of heights as well. My heart sank when you said your legs felt funny because I too suffer from height fear. Way to be brave! I'm interested in what Klinefelter looks like from your parents perspective.

    • @LivingwithXXY
      @LivingwithXXY  4 роки тому

      You can find a lot of our information on our two websites. www.livingwithxxy.com and www.livingwithxxy.org

    • @wedabest408
      @wedabest408 4 роки тому +1

      My son is almost 2 and he is not delayed at all..taking one day at a time and he is the most loving child to come across..praying for you and your family

  • @scoobydoo4985
    @scoobydoo4985 4 роки тому +23

    I have Klinefelter's XXY. I am 60 now. I was diagnosed at age 15 and I want to tell you all that want children. Regardless to what your endocrinologist says, and do go to an endocrinologist NOT a Urologist, it only takes ONE SPERM to impregnate the egg. JUST ONE. I have a daughter from me. She is now 22. There are lots of things I would gladly share with you to increase your ability to strengthen your sperm you may have or improve what you can get. You are a MAN because of the Y you have. You do create some sperm because of your Y. The lab techs told me that all men produce sperm but may be told they have nothing based on the magnification they do for the test. If it isn't registering in the millions, they will tell you that you are shooting blanks or totally sterile. Do NOT believe it

    • @jojothecuzo
      @jojothecuzo 4 роки тому

      What do you recommend to help? Lifestyle or diet?

    • @nhojleahcim47
      @nhojleahcim47 3 роки тому +1

      did you need help in getting your daughter? or was it all natural?

    • @scoobydoo4985
      @scoobydoo4985 3 роки тому

      @@jojothecuzo I recommend both lifestyle and diet. Circulation is key to exercise and health. Start walking if you can't run. Work out, hike, swim, do something that gets your cardio going. Diet is key as well.
      www.mother.ly/child/14-superfoods-for-men-while-trying-to-conceive-6-foods-to-eliminate

    • @scoobydoo4985
      @scoobydoo4985 3 роки тому +1

      @@nhojleahcim47 no help was needed. I did cheat in the younger years before making her by not taking regular shots of testosterone. I still had/have a very strong sex drive.

    • @ricoelgriego
      @ricoelgriego 3 роки тому

      This June 2020 the diagnosis of Klinefelter was and is a big sock. I'm 42 yr. A month ago, i did a micro-TESE surgery, because of KS. They took three sperm tubes, and they say that inside them can find at least 100 sperms with tail 48 nmm, instead of norman 60 nmm. Have you ever known how was the tail of your sperm?

  • @wedabest408
    @wedabest408 4 роки тому +10

    I found out that my son had it while he was still in my womb, they had the nerve to ask me if I wanted an abortion..That thought never crossed me and he is the most wonderful child that anyone could have..he is so loving and has seen the specialist who will monitor him annually..you are the only voice of reason on the internet, there are so many negative posts and people saying that boys like my son will grow up to have a sex change guarantee..people make that decision whether they have the disorder or not so I can’t stand posts like that..thank you for making these videos for people like my son and we will continue to follow your channel for support

    • @LivingwithXXY
      @LivingwithXXY  4 роки тому

      Thank you for the support, make sure you check out our websites and other social media!

    • @shelligreen5627
      @shelligreen5627 2 роки тому

      It shocks me and breaks my heart to think that a mother is given that choice to terminate a pregnancy with this condition? These people xxy and xyy are normal beautiful souls and can grow to be the best humans ever in society, caring, loving, hard working, honest, clean living etc. If there were a test to diagnose your unborn child as being gay, would they bring out the termination of pregnancy option for that too? Just outright wrong that woman are screened during pregnancy and given this choice.

    • @karimako1983
      @karimako1983 Рік тому

      Becky I totally agree,most changes of sexual orientation happens to normal xy males

  • @Just-laugh379
    @Just-laugh379 3 місяці тому +1

    I have Klinefelter syndrome, diagnosed at 35. 5 months ago. Still in a shock 😳

  • @curtisurbanski6362
    @curtisurbanski6362 4 роки тому +13

    I have xxy i found out about 2 years ago i am 23 now and ive been on the shot ever since i found out. I do feel a lot more motivated and also gained my appetite back along with some weight. Im 6 foot 5 tallest in my family and i ride dirtbikes and run a family bussiness. Your videos help me a lot amd reading all the comments makes me feel better knowing im not the only one with this.

  • @joaoespadavieira9354
    @joaoespadavieira9354 4 роки тому +5

    Hi. 42 years old. I discover that i am xxy last week. I would like to have childrens but the doctors said it's impossible. I want to believe that tomorrow it will be a much better day than today. I'm still shocked about this situation.

  • @cooldude1547
    @cooldude1547 4 роки тому +8

    Hi guys thanks for the video i got diagnosed with ks when i was 29 i felt hurt by the diagnosis and burst into tears in the doctors office too

  • @sherrisutton6809
    @sherrisutton6809 27 днів тому

    Thank you for this!!

  • @AnirudhRajBansal
    @AnirudhRajBansal 4 роки тому +4

    I just found out about this syndrome and have been reading a lot about it on the internet. I have all the symptoms... I probably have it. Been thinking I'm gay and living the gay lifestyle while being attractive to girls as well, which made me think I'm bisexual. I think I have the klinefelter syndrome considering all my physical and behavioral traits. I'm shocked but relieved I finally found an answer to all the confusion.

    • @AWDTH1111
      @AWDTH1111 2 роки тому +1

      I’m in the exact same boat. I’ve always looked feminine, and felt feminine like I could easily succeed at being a girl, but I’ve only ever been attracted to girls so I’m not gay. Also I’m 30 years old but I still look 19 and have a feminine face and my wife and I haven’t been able to have kids for 2 years now. I’m terrified I have this because it all adds up.

  • @fin1shingtouch1212
    @fin1shingtouch1212 2 роки тому +2

    Thank you Guys!💙

  • @bigzammo9813
    @bigzammo9813 2 роки тому +5

    I cry everyday I can't get over it I don't know who to turn to I have no 1 it's hard day by day

    • @LivingwithXXY
      @LivingwithXXY  2 роки тому +2

      Self Acceptance :) all in due time. Keep postive.

  • @sean8051
    @sean8051 4 роки тому +10

    Xxy, 41, divorced, no kids......obviously, lol. Silver linings is how I look at it. All my normal friends, they're slowing down. Not me and my fountain of youth in the form of daily 4mg Androderm testosterone patches. Plus the no kids has really turned out financially for the funner. I forget all the time that I'm genetically different. Nobody at work knows. I don't want to be treated differently

  • @barbaradixon9279
    @barbaradixon9279 3 роки тому +1

    I pray for yall daily 🙏✝🙏

  • @rmartin2819
    @rmartin2819 4 роки тому +2

    Good talk you guys. I’d like to hear more about why Kelsey waited ten years to be open about his diagnosis and if he still has concerns about being public with it?

    • @LivingwithXXY
      @LivingwithXXY  4 роки тому +2

      We will do another video on why he hid for 10 years. Once he opened up 2 years ago he continues to be more and more open about it pushing himself every day.

  • @miglius1992
    @miglius1992 4 роки тому +3

    I got diagnosed like 2 moths ago at 28, at first i gave nf about it but gradually later, I was feeling that I was fighting this crap all alone it is shocking that I could had help long time ago. But it is so rare genetic disorder that it took long time to find out that there was something really wrong with me.
    So short fun story, I found diagnoses on TV-show where Doctors and none doctors pretending to be doctors :D, They all where try to find out what that person have it. And the symptoms that person describer was Klinefleter, I was like ohhh shit its probably what I have! So I when to doctor to get tested and there it was :D
    For me it's the happiest and worse day of my life ever... I know that I have a long way ahead of me to learn to live with it, coz now I know symptoms and I know what is it and there are ways to control it and, yeah I would say you should give up when you came so far. Even if I have have another situation then him I still feel the struggle as much as all of us from day to day.
    For me is different am loner, and I always said that I will not want to have kids, so now I know that I cant have them, and I just leav it at that.

  • @kaylasilverfox473
    @kaylasilverfox473 3 роки тому +2

    I just got diagnosed at 26 I had swollen lymph nodes and testes they tested me and I got it ,and my testicles won't stop swelling so the doctor might have to take them,I've always wondered why I look "girly" people say I look like a bearded lady because if I don't have a beard than I look like James Charles because i naturally long eyelashes and feminine features ,has any one ever been called a bearded lady before

  • @barbaradixon9279
    @barbaradixon9279 3 роки тому +1

    God bless y'all ✝

  • @Anthonychimp
    @Anthonychimp 4 роки тому +5

    I just found out today that I have klinefelter's syndrome and I am 37 and just feel numb. Why wasn't this picked up sooner by doctor's.

    • @LivingwithXXY
      @LivingwithXXY  4 роки тому +2

      Feel free to reach out Info@livingwithxxy.org

    • @genioushustler5110
      @genioushustler5110 4 роки тому +1

      I found out at 35. It isnt too bad. Life goes on. You Will be fine.

    • @Zombeeeclover
      @Zombeeeclover 4 роки тому +4

      Skibadee my husband was diagnosed at the age of 44 when we couldn’t figure out why we couldn’t get pregnant. His dr of many years just assumed he had low testosterone but when he switched drs a laundry list of issues came up in his blood work which lead us to a genetic specialist and the specialist immediately knew when he examined my husband. He told him he has text book XXY but needed to test further and sure enough he has it. It was very hard on him at first but now he’s learned how to cope. Having a support system is important. As for us having children, he will never have a bio child. After several sperm analysts they determined he is completely sterile. We have been in the process of treatments with donor sperm to get pregnant. My husband is on the highest injection dose allowed for testosterone and he’s been able to grow a full beard and other body hair for the first time in his life.

    • @Zombeeeclover
      @Zombeeeclover 4 роки тому +2

      Just wanted to add that my husband is now 48 and he also wondered why it was never picked up by drs all those years. He said he started growing breast at the age of 14 and he was so thin. His gynecomastia is at a severe level 4 which is very noticeable considering he’s an average weight for a man of 6’. If you struggle with this condition as well, there are companies who make compression shirts to hide gynecomastia in men. It’s like a spanx for your chest. My husband hates the idea of wearing something like that but he gets depressed sometimes trying on shirts that cling to his chest which makes it impossible to hide. He does get random stares from people which upsets him. As for cosmetic surgery; insurance will fight back about breast removal as it’s not exactly an easy surgery like you would think. Sadly they consider this a cosmetic procedure.

    • @kamenotost22
      @kamenotost22 4 роки тому

      Hello guys! I want you to answer me a question...
      I have met a guy at my post-graduate program, who checks a lot of the characteristics of people with this syndrome. I have known him for just 3 months. I am pretty sure that he has that condition, but he has not told me that just yet. If I were to tell him that I know what he is going through, will I help him to be more open with me, or should I let him take his time and talk to me when he is ready? And what if I am wrong, and he is just a depressed guy with no facial hair and gynecomastia? I don't want him to feel exposed or threatened, I just want him to feel happy and confortable around me. I feel terrible thinking the possibility that he has KS syndrome and he is shy and reluctant to talk to me about it. Thank you.

  • @kyrialmennig6641
    @kyrialmennig6641 4 роки тому +5

    Yes im finding out at 40, and only because Im going Through 2 nd puberty, and having a monthly cycle. It was a shocker breasts I could no longer hide. Lost some friends and family and why? I was born this way!
    So much ignorance to the truth these days.
    Also saying you have kids you cant change gender. Tell Mother Nature that 🤬

  • @jodelka573
    @jodelka573 Рік тому

    Dziękuję

  • @alexramos7877
    @alexramos7877 2 роки тому +2

    I wish that I have friends with the same syndrome XXY that I got

    • @LivingwithXXY
      @LivingwithXXY  2 роки тому +2

      Alex, shoot us an email and we might be able to find someone in your area.

  • @larrybien7599
    @larrybien7599 4 роки тому +2

    WHEN YOU HAVE THIS YOUNG YOU DO NOT KNOW, UNTIL YOU GET AROUND 18, YOU FEEL DISCONNECTED FROM ALL, UNTIL YOU BODY IS BROUGHT BACK TO A CENTER, CAUSE WE ALL FEEL IN DIFFERENT WAYS HOW DO YOU FEEL BRO

  • @risktaker7996
    @risktaker7996 4 роки тому +3

    Hello bro. Can you make a video about your childhood? Perhaps you can show your early life pictures.
    I'm just curious. U^ェ^U

  • @kamenotost22
    @kamenotost22 4 роки тому +1

    Hello guys! I want you to answer me a question...
    I have met a guy at my post-graduate program, who checks a lot of the characteristics of people with this syndrome. I have known him for just 3 months. I am pretty sure that he has that condition, but he has not told me that just yet. If I were to tell him that I know what he is going through, will I help him to be more open with me, or should I let him take his time and talk to me when he is ready? And what if I am wrong, and he is just a depressed guy with no facial hair and gynecomastia? I don't want him to feel exposed or threatened, I just want him to feel happy and confortable around me. I feel terrible thinking the possibility that he has KS syndrome and he is shy and reluctant to talk to me about it. Thank you.

  • @fin1shingtouch1212
    @fin1shingtouch1212 2 роки тому

    🙏✝️

  • @Mkn622
    @Mkn622 4 роки тому +1

    .How do I lose weight or build muscle if I have Klinefelters Syndrome? -

    • @LivingwithXXY
      @LivingwithXXY  4 роки тому +5

      Healthy eating habits and working out.

    • @timbeaver2679
      @timbeaver2679 3 роки тому

      Sorry I'm just now responding. Maybe by now you've realized how to gain weight? I tried everything to gain weight and the only thing that helped me was eating regularly plus a protein shake and lifting weights. You have to pretty much ready twice as much or intake twice as much calories. However if you don't lift weights you'll gain weight in ways you don't want to. Gaining doesn't happen over night. It took me about 2 years to be at a normal weight. I weighed 120lbs until 32. I'm now 40 and weigh 160. I have stopped protein shakes but eat healthy and lift on occasion. My wife is a health coach and kickboxing coach. I owe a lot of gaining and helping me eat right to her.

  • @JBittermusic
    @JBittermusic 4 роки тому +2

    can a Men with KS grow a beard without getting T shoots?

    • @datsus5363
      @datsus5363 4 роки тому +2

      Yeah some men can

    • @happyguy7005
      @happyguy7005 4 роки тому

      Took me 2 years to grow a beard. I’ve also kept it for 23 years- still going.

    • @preetamkumar9496
      @preetamkumar9496 3 роки тому

      @Devil son outta hell Have you been clinically diagnosed?

    • @toxindz
      @toxindz 3 роки тому +2

      Yeah, use minoxidil.

    • @Just-laugh379
      @Just-laugh379 3 місяці тому

      Yes I have a beard and I was diagnosed couple months ago

  • @jonascholoestupin9599
    @jonascholoestupin9599 4 роки тому

    Can you still have kids if you have ks? I've been thinking if I have this syndrome because I've all the said physical symptoms, and I'm not really good at socializing with other people. btw I'm 18 yrs old and i've had all of the physical symptoms for like 8 years. Thank you for your answer!

    • @CubanCPM
      @CubanCPM 2 роки тому

      How are you now bro am 18 and I think I have all the physical symptoms

  • @larrybien7599
    @larrybien7599 4 роки тому +6

    Suck it up, there are millions of adoptable kids that need you, life is a test, just do it.I did and love these kids as my own, and they love me back, your humane, remember, JESUS Loves all as we and you should as well, get over it.

    • @jnharton
      @jnharton 2 роки тому +1

      No need to be a jerk. There's no reason people shouldn't go to reasonable lengths to have biological children.

    • @AWDTH1111
      @AWDTH1111 2 роки тому

      Shut up. “Suck it up” and “Get over it” are some of the most bullshit statements. Let people deal with their issues in their own time. You’re nothing like Jesus with that attitude.

    • @bigzammo9813
      @bigzammo9813 2 роки тому

      I want to adopt so bad but she just want to get pregnant 1 way or another

    • @SCCheaters
      @SCCheaters 2 роки тому

      Jesus loves all, but dont tell ppl to suck it up. some ppl cant accept adoption

    • @JohnJhones
      @JohnJhones 2 роки тому

      @@SCCheaters When did Abraham get his first child? People might think it's impossible but people are people and Jesus is Jesus.

  • @1pecrnet
    @1pecrnet 3 роки тому

    I’m curious whether the current movement to label a biological woman “he/him” bc of personal preference in any way offends those who have biological XXY due to Kleinfelter?