I got diagnosed level 1 and 2 (I have a lot of repetitive/restrictive behaviors but other categories are low support) when I was 17, and started working with autistic students and watching autism family videos when I was 14 because of a community service project. I’m really grateful that I found my calling. I connect with the most hard to reach kids because I can use my experiences to understand how they’re feeling and processing, and communicating especially.
Yes! I am 30 years old and got my diagnosis of autism this month actually! I started watching UA-cam videos like yours this year for support and advice for my 4 year old son with autism support level 3. Under suggested videos, one about females with autism and how they can present differently kept coming up. So I clicked it and almost had a panic attack when I realized I was on the spectrum too! Because I don't present like my son who is nonverbal, very active, and a sensory seeker I never considered that I would be autistic. I just thought I was always an overly sensitive, orderly, picky eating, poor sleeping individual with depression and loads of anxiety. Most doctors thought my mental illness came from my traumatic childhood, but I was actually born this way! I'm still wrapping my head around the thought I am autistic and that I perceive the world differently than others. I feel more compassion towards myself and that has been very healing. It's also interesting looking back on my life and seeing things through a different lens. I hope that I can use my experiences and be an even better mother and advocate for my son! Thanks for this video you guys are doing a wonderful job and I relate so much!
I'm a father of a autistic boy. I struggled my whole life with no diagnoses. It wasn't until we started looking into my son that we realised I very much have autism and have my whole life. I hear a lot things my son does. I can't concentrate, I've always been socially awkward, all my report cards say I can't concentrate or sit still...list goes on. Spoke to his paediatrician about myself and she confirmed there is a 99% chance I am and just have learnt to live with it. I can figure out stuff in my job that a lot of others can't. A lot of signs were there. Just never knew it.
I've told you in one of the past live streams. I don't know you very much but we seem very much alike Jordan. I feel the pain you described as well when my kids are shrieking. I do the same toe stim too plus I recently realised I do a derived kind of hand flapping when overwhelmed. Do the aspie test. You'll be surprised. While doing it I was like " Oh well I guess I'm neurotypical afterall" because all my answers felt normal. And then when I got the results.... There is just not the slightest bit of doubt. I'm aspie. I hate common expressions too. I think my biggest pet peeve is when someone tells me "give me 2 seconds". Why not give me an accurate estimate mate? Do the aspie test!!
Big hugs to you Jess. You are not in this alone. We experience the opposite, my 11 year old doesn’t cope well with school and my 10 year old is now homeschooled. So holidays for us are a time to recoup. ❤️
I love watching your videos. You are so strong for taking such good care of your family. Meltdowns are so hard to deal with, and I am sending you virtual hugs. I hope and wish it would be getting better for you. I know it's not easy and it may not, but I still hope it does.
Oh also, I have a stim with my toes too, Jordan, I’ve been doing it for so long that the bones click.. it’s funny when I don’t realize I’m doing it in public against my shoes and people are looking around for the noise. 😅 I loved this conversation, thank you for being so open.
Big hugs Jess. Saxxon doesn't seem to understand his occasional care days yet, so I don't deal with any change in his behaviour on holidays. I know it's coming though so I do try and limit routine where I can. Certain events have routine in them but I don't let the event itself become routine. His day starts and finishes the same way but what happens in between is always different. I've spent 23yrs watching his dad get distressed when change occurs and I want to minimise that for Saxxon if I can. His dad needs time to work through things and if they change he says his brain tries to "run away" and he gets anxious. I spent most of our married life talking to a spot on the wall or floor because he couldn't think or talk when making eye contact. He also couldn't grasp the concept of compromise, things were either his way(happy) or my way(mild resentment). It has given me great insight as to how things may be for Saxxon.
Your such an amazing mummy and u always manage to keep a smile on your face. I love watching your family and your day to day routines. I'm waiting for my 2 year old to get diagnosed and he has his 1st meeting with the pediatrician next week. I already know he has autism because hes non verbal, stims by shaking his head from side to side, very fussy about eating and wakes up at 3am most nights till around 9am. There's other signs too and I'm just praying it's only a mild case of autism. Yes I've definitely noticed some unusual traits in myself and suspect I too have autism as I'm extremely sensitive to certain sounds and peoples mannerisms. I feel awkward in social situations and struggle to make friends I'm easily offended and have a routine that I tend to do most days. I think once i have my son diagnosed and the right help i will look into getting myself help as i feel my quality of life is poor and my mind races constantly. Your a strong girl and have a beautiful family and maybe you would be brilliant working with kids with autism as you have patience and a massive understanding of it. Keep up the good work and I look forward to seeing your next video. Xx
I totally feel what you going through, Elena has just turned 5 and her meltdowns are getting more frequent and for longer. Her brother Hunter of 2 is also copying her behaviours ! I am granny but I know mom is under a lot of pressure during school holidays, she also has a 3 month old little girl. Thank you so much for sharing the good and the ban and how YOU are feeling, I love passing your videos onto my daughter and discussing them with her…. Elena went for her ADOS assessment yesterday and was a complete angel 👼 she is also no. Verbal but showing signs of starting to talk, she also uses signing. 🥰👍🏻
I thought Jordan might have had ADHD . I have ADHD and can usually spot my own sort 🤣. The same genes are often in play with both conditions. I definitely don't have autism myself but I believe both my ex and I am carrying those genes ( he may actually be on the spectrum) We both have sensory issues but he can't stand a rattle in the car that no- one else can hear, the feel of sand on him, he was a very fussy eater as a younger person, hates certain lights etc. For me certain artificial lighting can feel like it is coming at me ( I can handle it but I just notice it affects me and makes my attention span worse) I tend to feel quite overwhelmed in certain environments with my ADHD both with my emotions and senses. All my kids have sensory issues in some form , even the ones that don't have autism but those kids do have adhd to varying degrees. This is also true of some of my grandkids.
Yes I definitely have noticed some sensory issues that I have that I never knew about before having my daughter diagnosed it actually makes me feel better knowing what I'm going through is something very common. I don't watch any other blogs on UA-cam but I truly enjoy your videos they give me hope and keep me pushing on thank you guys for sharing your life
Hi I wanted to ask has jacob ever gone through phases of laughing hysterically? My son wakes at night and laughs for ages. He also laughs when he has got a tummy ache etc. He has got sever autism and is 3and half now
Changes are so so hard for autistics at times. We are having huge changes here and my son is really struggling with it. Although he is older and he now expresses it differently he doesn’t have screaming meltdowns he just gets super hyperactive and seeks pressure. The pea pods are fantastic we had one of those. Some days are really hard for everyone. School holidays are the worst in this house. Stay strong
Unfortunate to hear that it’s so common, and will probably happen every school holiday! I’m so glad to hear you loved the pea pod too! Such a great sensory tool
Yep. Jordan. Some pitches of sound physically hurts my body too. It feels like i am being electrocuted. Its a sudden strong painful jolt through my body. And if that noise continues the shocks through my body continue.
@@aussieautismfamily I live alone and mostly avoid people. (Yep. Not a great plan). When i go out i wear earmuffs like for lawn mowing or the ones that roll up and poke in my ears. Ive got worse as ive isolated myself. But being an Aussie living in Victoria we have spent alot of time either being asked to not go out unnecessarily or activities i did do got cancelled. My NDIS plan is being redone in November and sensory help will be aimed for. I am happy to avoid people and stay isolated. But i also understand that isnt a healthy plan. I need to get back to going out and learning ways to cope with some noise. I may always struggle with some sounds and learning to calmly remove myself or regulate my distress would be a good plan even if avoidance seems easier.
Hugs as usual...that kiss and his smile...heartwarming 💜...I feel u Jordan the screaming physically hurts me too🙈...yes we hv...I think we r both on the spectrum 😳
I have a lot of autistic traits. No eye contact rocking .hate social icing haté change love to stim,and line up objects. But nobody around here want a to test me because I have bipolar. And PTSD diagnosis
I feel your suffering don’t be brave just have a good cry 😢 Could you have a back up place or person he could go to during holidays even for a few hours
I got diagnosed level 1 and 2 (I have a lot of repetitive/restrictive behaviors but other categories are low support) when I was 17, and started working with autistic students and watching autism family videos when I was 14 because of a community service project. I’m really grateful that I found my calling. I connect with the most hard to reach kids because I can use my experiences to understand how they’re feeling and processing, and communicating especially.
YOU ARE AMAZING FULL STOP
Yes! I am 30 years old and got my diagnosis of autism this month actually! I started watching UA-cam videos like yours this year for support and advice for my 4 year old son with autism support level 3. Under suggested videos, one about females with autism and how they can present differently kept coming up. So I clicked it and almost had a panic attack when I realized I was on the spectrum too! Because I don't present like my son who is nonverbal, very active, and a sensory seeker I never considered that I would be autistic. I just thought I was always an overly sensitive, orderly, picky eating, poor sleeping individual with depression and loads of anxiety. Most doctors thought my mental illness came from my traumatic childhood, but I was actually born this way! I'm still wrapping my head around the thought I am autistic and that I perceive the world differently than others. I feel more compassion towards myself and that has been very healing. It's also interesting looking back on my life and seeing things through a different lens. I hope that I can use my experiences and be an even better mother and advocate for my son! Thanks for this video you guys are doing a wonderful job and I relate so much!
I'm a father of a autistic boy. I struggled my whole life with no diagnoses. It wasn't until we started looking into my son that we realised I very much have autism and have my whole life. I hear a lot things my son does. I can't concentrate, I've always been socially awkward, all my report cards say I can't concentrate or sit still...list goes on. Spoke to his paediatrician about myself and she confirmed there is a 99% chance I am and just have learnt to live with it. I can figure out stuff in my job that a lot of others can't. A lot of signs were there. Just never knew it.
Great to hear you speak so openly Jordan!
I've told you in one of the past live streams. I don't know you very much but we seem very much alike Jordan.
I feel the pain you described as well when my kids are shrieking. I do the same toe stim too plus I recently realised I do a derived kind of hand flapping when overwhelmed.
Do the aspie test. You'll be surprised. While doing it I was like " Oh well I guess I'm neurotypical afterall" because all my answers felt normal. And then when I got the results.... There is just not the slightest bit of doubt. I'm aspie.
I hate common expressions too. I think my biggest pet peeve is when someone tells me "give me 2 seconds". Why not give me an accurate estimate mate?
Do the aspie test!!
Big hugs to you Jess. You are not in this alone. We experience the opposite, my 11 year old doesn’t cope well with school and my 10 year old is now homeschooled. So holidays for us are a time to recoup. ❤️
I love watching your videos. You are so strong for taking such good care of your family. Meltdowns are so hard to deal with, and I am sending you virtual hugs. I hope and wish it would be getting better for you. I know it's not easy and it may not, but I still hope it does.
Oh also, I have a stim with my toes too, Jordan, I’ve been doing it for so long that the bones click.. it’s funny when I don’t realize I’m doing it in public against my shoes and people are looking around for the noise. 😅 I loved this conversation, thank you for being so open.
Big hugs Jess. Saxxon doesn't seem to understand his occasional care days yet, so I don't deal with any change in his behaviour on holidays. I know it's coming though so I do try and limit routine where I can. Certain events have routine in them but I don't let the event itself become routine. His day starts and finishes the same way but what happens in between is always different. I've spent 23yrs watching his dad get distressed when change occurs and I want to minimise that for Saxxon if I can. His dad needs time to work through things and if they change he says his brain tries to "run away" and he gets anxious. I spent most of our married life talking to a spot on the wall or floor because he couldn't think or talk when making eye contact. He also couldn't grasp the concept of compromise, things were either his way(happy) or my way(mild resentment). It has given me great insight as to how things may be for Saxxon.
Your such an amazing mummy and u always manage to keep a smile on your face. I love watching your family and your day to day routines. I'm waiting for my 2 year old to get diagnosed and he has his 1st meeting with the pediatrician next week. I already know he has autism because hes non verbal, stims by shaking his head from side to side, very fussy about eating and wakes up at 3am most nights till around 9am. There's other signs too and I'm just praying it's only a mild case of autism. Yes I've definitely noticed some unusual traits in myself and suspect I too have autism as I'm extremely sensitive to certain sounds and peoples mannerisms. I feel awkward in social situations and struggle to make friends
I'm easily offended and have a routine that I tend to do most days. I think once i have my son diagnosed and the right help i will look into getting myself help as i feel my quality of life is poor and my mind races constantly.
Your a strong girl and have a beautiful family and maybe you would be brilliant working with kids with autism as you have patience and a massive understanding of it. Keep up the good work and I look forward to seeing your next video. Xx
I totally feel what you going through, Elena has just turned 5 and her meltdowns are getting more frequent and for longer. Her brother Hunter of 2 is also copying her behaviours ! I am granny but I know mom is under a lot of pressure during school holidays, she also has a 3 month old little girl. Thank you so much for sharing the good and the ban and how YOU are feeling, I love passing your videos onto my daughter and discussing them with her…. Elena went for her ADOS assessment yesterday and was a complete angel 👼 she is also no. Verbal but showing signs of starting to talk, she also uses signing. 🥰👍🏻
Yes unfortunately I hear it so common that school holidays are rough on them! Hopefully with school back now they will start feeling better 😊😊
I'm a 26 year old mom with autism
I thought Jordan might have had ADHD . I have ADHD and can usually spot my own sort 🤣. The same genes are often in play with both conditions. I definitely don't have autism myself but I believe both my ex and I am carrying those genes ( he may actually be on the spectrum) We both have sensory issues but he can't stand a rattle in the car that no- one else can hear, the feel of sand on him, he was a very fussy eater as a younger person, hates certain lights etc. For me certain artificial lighting can feel like it is coming at me ( I can handle it but I just notice it affects me and makes my attention span worse) I tend to feel quite overwhelmed in certain environments with my ADHD both with my emotions and senses. All my kids have sensory issues in some form , even the ones that don't have autism but those kids do have adhd to varying degrees. This is also true of some of my grandkids.
Yes I definitely have noticed some sensory issues that I have that I never knew about before having my daughter diagnosed it actually makes me feel better knowing what I'm going through is something very common. I don't watch any other blogs on UA-cam but I truly enjoy your videos they give me hope and keep me pushing on thank you guys for sharing your life
Aw thank you for watching and also supporting us!!
Hi I wanted to ask has jacob ever gone through phases of laughing hysterically? My son wakes at night and laughs for ages. He also laughs when he has got a tummy ache etc. He has got sever autism and is 3and half now
Changes are so so hard for autistics at times. We are having huge changes here and my son is really struggling with it. Although he is older and he now expresses it differently he doesn’t have screaming meltdowns he just gets super hyperactive and seeks pressure. The pea pods are fantastic we had one of those. Some days are really hard for everyone. School holidays are the worst in this house. Stay strong
Unfortunate to hear that it’s so common, and will probably happen every school holiday! I’m so glad to hear you loved the pea pod too! Such a great sensory tool
Yep. Jordan. Some pitches of sound physically hurts my body too. It feels like i am being electrocuted. Its a sudden strong painful jolt through my body. And if that noise continues the shocks through my body continue.
Wow I’m so sorry you have to feel this! Doesn’t sound fun! How do you manage noise?
@@aussieautismfamily I live alone and mostly avoid people. (Yep. Not a great plan). When i go out i wear earmuffs like for lawn mowing or the ones that roll up and poke in my ears. Ive got worse as ive isolated myself. But being an Aussie living in Victoria we have spent alot of time either being asked to not go out unnecessarily or activities i did do got cancelled. My NDIS plan is being redone in November and sensory help will be aimed for. I am happy to avoid people and stay isolated. But i also understand that isnt a healthy plan. I need to get back to going out and learning ways to cope with some noise. I may always struggle with some sounds and learning to calmly remove myself or regulate my distress would be a good plan even if avoidance seems easier.
Hugs as usual...that kiss and his smile...heartwarming 💜...I feel u Jordan the screaming physically hurts me too🙈...yes we hv...I think we r both on the spectrum 😳
Thank you so much lovely! It must cause sensory overload for you too 💛 much love
I have a lot of autistic traits. No eye contact rocking .hate social icing haté change love to stim,and line up objects. But nobody around here want a to test me because I have bipolar. And PTSD diagnosis
I also can't watch cartoons because of noise and everything moves to fast. Makes me cringe. Don't like people around me also
I feel your suffering don’t be brave just have a good cry 😢
Could you have a back up place or person he could go to during holidays even for a few hours
Much love and support to you. Continue on your road on getting the silver play button along with interviewing with Chris ULMER of SBSK
Thanks Tyreese!!